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Hormones and epilepsy

Sun, 10/29/2017 - 01:28
Hi everyone! I didn't know how to edit my previous post since I made a mistake on some dates I had mentioned. My epilepsy journey is kind of long and complicated. It all started at 13 years old (less than a year after starting my period) when I would lose my memory for a day and was aware of my name, surroundings but would forget very short term things like the name of someone I just met. I went to a neurologist and was diagnosed with epilepsy and prescribed Topomax. The medication gave me twitches and jerks and wasn't helping whatsoever. I was disgnosed with juvenile myclonic epilepsy. After a year of taking that I was prescribed Keppra. It seemed to be helping a lot better except for when I had my seizures it was grand mal without any twitching. My seizure types changed for the worse. Some of my trigger seizures include lack of sleep and very loud music. After seeing an herbalist I decided to take the natural route and I had never felt better in my life. With the help of herbs and diet changes I was able to reduce my Keppra medication from 1250 to 500 mg and was seizures free for 22 months. About 2 months ago I underwent surgery to remove an ovarian cyst and experienced 3 seizures in a matter of 45 days, something that never happened. All my seizures took place either on my period or when I was ovulating. My surgeon warned me that my hormones were going to be wack until a few cycles. I'm starting to think my seizures are hormonal and due to hormonal imbalances. Have any of you ladies experienced this? Does anyone have success battling this? Any input is appreciated!

Comments

I have type two catamenial

Submitted by Trillian on Thu, 2017-11-09 - 16:59
I have type two catamenial epilepsy. I was diagnosed aged 17, but my seizures stopped aged 20, roughly the same time I had a progesterin implant for contraception. I always thought they might be linked, so she’s 34, thinking of starting a family, I saw an obstetric neurologist who assured me there was no correlation. I had the implant removed, three weeks later the first of a long line of tonic clonic seizures. Always 12-14 days before my completely irregular periods. My neurologist (make) at the time actually told me I had NEAD because I was petrified of becoming a mother, but I knew it wasn’t. I found a different nhs neurologist who prescribed keppra and I’m now 1 year seizure free. Maybe progesterone of some type might help. I know there are some natural sources.

I have type two catamenial

Submitted by Trillian on Thu, 2017-11-09 - 17:00
I have type two catamenial epilepsy. I was diagnosed aged 17, but my seizures stopped aged 20, roughly the same time I had a progesterin implant for contraception. I always thought they might be linked, so she’s 34, thinking of starting a family, I saw an obstetric neurologist who assured me there was no correlation. I had the implant removed, three weeks later the first of a long line of tonic clonic seizures. Always 12-14 days before my completely irregular periods. My neurologist (make) at the time actually told me I had NEAD because I was petrified of becoming a mother, but I knew it wasn’t. I found a different nhs neurologist who prescribed keppra and I’m now 1 year seizure free. Maybe progesterone of some type might help. I know there are some natural sources.

I also use a period/ovulation

Submitted by Trillian on Thu, 2017-11-09 - 17:00
I also use a period/ovulation tacking app on my phone, but if your hormones are fluctuationing that probably won’t help you atm.

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