We provide a range of educational opportunities, programs, and services for people living with epilepsy, families, friends, and caregivers.
- Many programs and services are available and implemented through our network of local Epilepsy Foundations and are often tailored to the communities they serve.
- Other services are offered from the national office, such as national policy and legal support efforts, research, public awareness, and training programs for selected health care professionals and community caregivers.
The Epilepsy Foundation’s SUDEP Institute works to prevent sudden unexpected death in epilepsy (SUDEP) and support people bereaved by SUDEP and other epilepsy-related deaths. Activities include
- Raising awareness among people with epilepsy, their families, the medical community, and the public
- Driving research into the causes of and ways to prevent SUDEP
- Offering bereavement support services and an online community for those affected by SUDEP
We believe that everyone, including people with all types of epilepsy and associated conditions, deserves to live a full and productive life to the best of their abilities. Our Wellness Institute is raising awareness about healthy behaviors, promoting evidence-based programs and activities, partnering with local and national organizations, and disseminating research. We are sharing practical and effective strategies to enhance the well-being and overall quality of life of people living with epilepsy, their families, and their caregivers.
We have joined the Research Triangle Institute, Columbia University, and 26 rare epilepsy organizations to build a patient registry to collect information about people living with rare epilepsies. The registry will be used by researchers to better understand these conditions, improve treatments, and improve the lives and quality of care of people living with them.
Find information on parent and family networks, support groups, children's programs, respite care, and more.
Overnight camps offered by our network of local Epilepsy Foundations are special places where kids with epilepsy can play, explore, and learn together. With trained counselors and medical professionals on staff, they can swim, climb, and do activities that might otherwise be dangerous. For many, what's even more important than the activities, is the chance to make friends with others for whom seizures, medicine, and frequent doctor visits are part of everyday life.
This epilepsy awareness program for high school teens provides tools to dispel myths and reduce misunderstanding associated with epilepsy.
This epilepsy awareness program for middle school students (ages 11-14) provides tools to dispel myths and reduce misunderstanding associated with epilepsy, while pushing for the inclusion of epilepsy education in school health and science classes.
You'll find informaiton about these additional programs and resources we offer in other areas of epilepsy.com:
- Our Research Program covers the entire spectrum of discovery – from idea to market. We foster the development of new scientists and support research that leads to better treatments and care. We strive for excellence, innovation, and radical thinking to end epilepsy.
- Our Education Programs include training for school nurses and other personnel, child care personnel, first responders, care coordinators, medical interpreters, and epilepsy researchers.
- Studio E is a multi-week art therapy program open to people with epilepsy in cities across the U.S. Participants are given the opportunity to creatively express themselves and their emotions with the guidance of a professional art therapist.
- The Kids Crew kids invites children ages 14 and under to help raise awareness, share stories, and participate in local events.
- Athletes vs Epilepsy invites people of all ages and skill levels to raise awareness through sports.
- "Talk About It!" brings celebrities of television, film, and music together with top epilepsy and seizure experts to help end misperceptions and misunderstandings about epilepsy.
- Our Community Action Network (CAN) assists volunteers who want to develop an activity related to epilepsy that raises funds for the Epilepsy Foundation, increases advocacy, brings services, or raises awareness about epilepsy within their own community.
- Our 24/7 Helpline has trained information specialists standing by to answer your questions about epilepsy and seizures and provide you with help, hope, support, guidance, and access to national and local resources.
- Patient Assistance has resources to assist with the cost of medications.
- The J Kiffin Penry Patient Travel Assistance Fund provides reimbursement of travel expenses for eligible patients and their families who have had to travel more than 50 miles from their home to receive FDA-approved medical care and/or treatment for their epilepsy/seizure disorder, but lack adequate financial resources to cover travel expenses.
- The Clinical Trial Patient Assistance Fund provides financial assistance to individuals with limited financial resources who have been accepted for enrollment in any IRB-approved clinical trial of an epilepsy therapy and who have signed an informed consent form for the trial.
- National & Community Resources list connects families that have a child who has other disabilities in addition to seizures.