Below is a list of selected SUDEP articles featured on Epilepsy.com or published elsewhere.
Help for Families who have Lost Someone with Seizures July 24, 2014 Find out what help is available for people who have lost a loved one, and how you can get involved.
Using Special Pillows to Potentially Prevent SUDEP July 9, 2014 Newsletter Article. A recent study examined whether “anti-suffocation” pillows could theoretically prevent the build up of dangerous levels of carbon dioxide as a way to reduce SUDEP risk.
Epilepsy-related Deaths During Pregnancy May 28, 2014 Newsletter Article. Some epidemiological studies have suggested an increased risk of death during pregnancy among women with epilepsy compared to women without epilepsy.
SUDEP and Genetics May 7, 2014 Newsletter Article. Much of the research into the genetic risks of sudden unexpected death in epilepsy has focused on single gene mutations that give rise to risks for mortality. However, a recent study may move us beyond a search for a single gene as the cause.
SUDEP and the Burden of Sudden Death in the Young April 23, 2014 Newsletter Article. Learn about the huge growth in available information about SUDEP.
One Family’s Loss Spurs SUDEP Awareness February 19, 2014 Newsletter Article. Read about how a grieving family is working to help others with epilepsy.
How Do You Learn About SUDEP? February 12, 2014 Newsletter Article. Learn about the huge growth in available information about SUDEP.
SUDEP Surveillance? January 15, 2014 Newsletter Article. SUDEP Editor Dr. Daniel Friedman looks at efforts to fully understand SUDEP.
Seizures Can Stop The Heartbeat: Does This Cause SUDEP? January 8, 2014 Newsletter Article. Dr. Gena Ghearing explores this connection and calls for more study.
SUDEP: The Need for Global Conversation November 21, 2013 Newsletter Article. Learn about the need for increased awareness and discussion about sudden unexpected death in epilepsy.
Could Oxygen Starvation of the Brain Cause SUDEP? September 11, 2013 Newsletter Article. Learn about this potential cause of Sudden Unexpected Death in Epilepsy.
Making Progress to Build Awareness for SUDEP September 4, 2013 The SUDEP Institute has made a lot of progress since being launched by the Epilepsy Foundation six months ago. Find out more about the current work of the Institute and future plans.
Electric Shutdown of the Brain: is it a cause of SUDEP? July 17, 2013 Newsletter Article. Learn about electric shutdown of the brain, and if it is a cause of sudden unexplained death in epilepsy.
Why is Animal Research Important in SUDEP? June 12, 2013 Newsletter article: Carl L. Faingold, PhD, looks at animal models of Sudden Unexpected Death in Epilepsy (SUDEP) that are vital to developing treatments
Talking about SUDEP May 15, 2013 Newsletter article: Resource Specialist, Patty Osborne Shafer RN, MN, looks at discussing the risk of Sudden Unexpected Death in Epilepsy.
The SUDEP Institute: What Is It? Why is it Needed? May 8, 2013 Newsletter article. Elson L. So, MD, from the Mayo Clinic - Minnesota, looks at the SUDEP Institute,a big step forward in the fight against Sudden Unexpected Death in Epilepsy.
Prevention of SUDEP August 8, 2012 Newsletter article. Devinsky talks about SUDEP prevention. Dr. Orrin
Predicting Sudden Death from Epilepsy May 30, 2012 Newsletter article. Joseph Sirven, MD, epilepsy.com Editor-in-Chief, presents a study looking at the effectiveness of using monitoring devices in predicting SUDEP.
Sudden Unexpected Death in Epilepsy: Risk Factors March 2012 Newsletter article. In the February 2012 issue of the Journal,Epilepsia, there are two studies that address the risk factors of Sudden Unexpected Death in Epilepsy (SUDEP). Both studies are important additions to our understanding of the issue of death and epilepsy.
Friedman D, Hirsh L Sudden Unexpected Death in Epilepsy – An Overview of Current Understanding and Future Perspectives. European Neurological Review, 2012;7(1):67-71.
Sudden, Unexpected Death in Epilepsy, Devinsky, O
Adjunctive Anti-epileptic Drug Therapy and Prevention of SUDEP October 2011 Newsletter article. A meta-analysis of the impact of anti-epileptic drugs on the prevention of sudden unexplained death in epilepsy (SUDEP).
Recently Published Results of U.S. Government-Sponsored Workshop on SUDEP July 2011 Newsletter article. Momentum against SUDEP results from a continuing effort by the scientific and the lay communities in finding ways to expand research and education in SUDEP.
Who is at risk for SUDEP July 2011 Newsletter article: . This research helps to further our knowledge of identifying individuals early who may be at risk for sudden death from seizures.
Steve Wulchin Presents Testimony at the Institute of Medicine (IOM) meeting in D.C., June 28, 2011 testimony. "At 5am, on March 28, 2006, my wife and I were awakened to the sound of a loud crash. We ran toward the sound, into our 15 year old son's room to find him on the floor, wedged between his bed and the nightstand, his lips blue and teeth clenched. He was having a seizure. We called the ambulance and went to the ER. After a couple of hours he was ready to go home, with many more questions than answers. [...]"
SUDEP Recommendations May 2011 Spotlight Newsletter article. This report is essential reading for all professionals who deal with epilepsy. In this document we see the blueprint for future trials, future collaborations and the future education of both professionals and patients and their caregivers who have epilepsy.
New Campaign to Shed Light on Epilepsy's Dark Secret May 13, 2011 release. Beginning today, the commitment to find some answers is strengthened - through the launch of a SUDEP awareness campaign.
Building the Momentum Against SUDEP April 2011 Spotlight Newsletter article.There is clearly a mounting momentum against SUDEP in the last few years, which is urgently needed to address the many research, education, and counseling issues in SUDEP.
High SUDEP Rate in Some Persons with Childhood-Onset Epilepsy January 2011 Spotlight Newsletter article. (link) A commentary by Elson L. So, MD. The cause of SUDEP is still unknown, but Drs. Sillanpää and Shinnar's study reinforces the need to strive for seizure control as one current strategy for reducing SUDEP in persons with epilepsy.
SUDEP A Global Conversation 2005 book from Epilepsy Australia. Reprinted with the permission of Epilepsy Australia - the national coalition of Australian epilepsy associations and Epilepsy Bereaved UK. http://www.sudepglobalconversation.com/
Combined analysis of risk factors for SUDEP Hesdorffer, D., T. Tomson, et al.
SUDEP, VNS and the FDA November 2010 Spotlight Newsletter article. In a recent issue of the British Medical Journal, two journalists criticized the US Federal Drug Administration on it's lax oversight of safety of approved medical devices.
SUDEP 101: The Basics August 2010 article. Most people with epilepsy live a full and healthy life, and should not spend time worrying about potential epilepsy-related catastrophes. But people who live with epilepsy or with a loved one who has epilepsy should be aware that epilepsy occasionally can be fatal.
Unmasking Silent Killer in Epilepsy July 2010 New York Times article. Steve Wulchin discussing SUDEP -"there's no magic answer, but awareness."
A Preventable Cause of SUDEP finally is established March 2010 Newsletter Article. Baylor researchers find a gene linking heart irregularities with epilepsy, giving an important clue to the mechanism sudden unexpected death in epilepsy.
Articles Before 2010
Sudden unexpected death in epilepsy: risk factors and potential pathomechanisms Surges R, Thijs R, Tan H, Sander J.
Sudden unexpected death in epilepsy: current knowledge and future directions. Torbjörn T, Nashef L, Ryvlin P.
Sudden unexplained death in epilepsy: observations from a large clinical development program Leestma JE, Annegers JF, Brodie MJ, et al.