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United Against SUDEP
The Epilepsy Foundation SUDEP Institute is proud to partner with SUDEP Action in recognizing October 23rd as SUDEP Awareness Day — a day devoted to raising awareness about sudden unexpected death in epilepsy around the world.
What is the goal of SUDEP Awareness Day?
- Encourage people with epilepsy to learn about SUDEP and their individual risk
- Promote ways people can manage their epilepsy to reduce their risk
- Highlight the need for more research into SUDEP to help save lives
- Raise awareness of SUDEP amongst the general public
- Honor the lives of all those who have died from the condition
2016 Theme: “United Against SUDEP”
You can Unite Against SUDEP and can help people with epilepsy reduce their risk by sharing the following messages:
- SUDEP stands for sudden unexpected death in epilepsy. Learn more in this SUDEP FAQ.
- SUDEP is linked to seizures; the best way to reduce that risk is to have as few seizures as possible. Find tips for managing epilepsy and seizures.
- Take your medication regularly and reliably to get better seizure control. Learn more about medication adherence.
- Speak to your doctor before making any changes to your medication.
- Make sure you have regular reviews. Find tips for talking with your health care team.
- Discuss any lifestyle changes, such as having a baby or going to university, with your doctor.
- Avoid excess alcohol consumption and using recreational drugs for better seizure control. Learn about preventing SUDEP.
- Tell your doctor if your seizures have changed.
- If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. Learn about epilepsy treatments.
- The risk of SUDEP varies from person to person. Not everyone with epilepsy is at risk; it is important you discuss your risk with your health professionals. Find tips for talking about SUDEP.
How can I participate in SUDEP Awareness Day?
- Share the #DareTo Say SUDEP Infographic.
- Check out the "Downloads" section on this webpage and join our social media campaign.
- Share the messages above, as well as the infographics and posters.
- Share pictures of you and your loved holding the "Social Media 'Selfie' Sign"
- Use the hashtags listed below and tag the Epilepsy Foundation's social media accounts:
- Make a donation to the SUDEP Institute to support research into how to prevent SUDEP and to help provide support, education, and hope to families impacted by epilepsy and SUDEP.
- Write to or meet with your local health professionals with information about SUDEP, epilepsy risks, and how they can help people with epilepsy.
- Write to or meet with your local politicians to make them aware of SUDEP and epilepsy risks. Ask how they can help raise awareness locally and nationally.
- Hold an information stand in your local hospital or in a public place to share information about epilepsy, epilepsy risks, and how people with epilepsy can help keep safe.
- If you have epilepsy, make an appointment to talk to your medical provider about your risk for SUDEP and how you can reduce your risk.