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If you’re a woman with epilepsy, you probably have many questions about what birth control may be best for you, how epilepsy or medications may affect your baby, outcomes of pregnancy, or other health concerns.

This section highlights some major research projects that are trying to help answer these questions. If you are interested in participating in these studies, contact researchers or coordinators of the study at the websites listed.

Birth Control

Epilepsy Birth Control Registry (EBCR): The EBCR is a collaborative study with researchers from Harvard and Columbia University Medical Schools to understand the safety and effectiveness of birth control methods in women with epilepsy. The website includes a survey for participants and provides information about birth control for women with epilepsy.

For more information visit: www.epilepsybirthcontrolregistry.com

Pregnancy Studies

MONEAD (Maternal Outcomes and Neurodevelopment Effects of Antiepileptic Drugs): This study is being conducted at many universities and clinics in the United States and will follow women over time as they go through pregnancy. The researchers are trying to better understand problems during pregnancy that affect the health of women with epilepsy and their babies.

For more information visit: https://web.emmes.com/study/monead

WEPOD (Women with Epilepsy: Pregnancy Outcomes and Deliveries): This is a collaborative study that is following women over time to understand fertility patterns or problems in women with epilepsy compared to women without epilepsy.

For more information visit: http://clinicaltrials.gov/ct2/show/NCT01259310

Pregnancy Registries

Pregnancy registries follow women with epilepsy during pregnancy to understand the effects of seizure medications (AEDs), seizures or other factors on the health of babies born to women with epilepsy. Women with seizures who are thinking of becoming pregnant or are pregnant, may enroll in one of these registries.

North American AED Pregnancy Registry (United States)

UK and Ireland Epilepsy and Pregnancy Registry

Australian Epilepsy Pregnancy Registry

EURAP Pregnancy Registry

Kerala Registry of Epilepsy and Pregnancy (India)

 

Adapted from American Epilepsy Society, www.aesnet.org

Reviewed by: Patricia O. Shafer RN, MN on 1/2014
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