More information and programs for families living with Lennox Gastaut Syndrome are available at the following sites. The content on these sites has not been developed or reviewed by 

  • Please note that many questions and concerns for families with LGS may be similar to those of people with other types of epilepsy or developmental disabilities. Search for the topic areas of concern, such as managing your epilepsy, independent living, financial resources, advocacy and other programs and services. Email the Epilepsy Foundation at if you can't find what you are looking for or have specific questions or concerns about resources for Lennox Gastaut Syndrome. 

LGS Foundation 

NINDS (National Institutes of Neurological Disorders and Stroke) Information Page on Lennox Gastaut Syndrome

Resources from Industry

Authored by: Patricia O. Shafer RN MN on 6/2014