Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYThe epilepsy.com Community Forum is a place where members can interact with one another through a series of messages which are viewable by anyone on the website. Typical messages on the Forum include questions about epilepsy and/or treatment options, discussions about epilepsy awareness, and other general communication. It is an open environment for visitors to discuss whatever is on their mind! All visitors can read what has already been posted, while users must be logged in to post or respond to threads.
Members can access the Forums by clicking the Community Forum button within the left-hand, blue "My.epilepsy.com Community" navigation bar. Once in the forum, the middle section of the page displays the list of active topics within this section. Further down, you will see a list of the most recent forum activity, including the latest and the most popular forum discussions. By clicking on the title of any Forum Topic, you can jump directly to the listing of all threads appropriate page for that forum. From this point, you can use the "Preview" link to see a snippet of the conversations in each discussion, and/or click on a discussion link to go into any of the active discussions posted in this topic. If you are logged in as a user, you also have the ability to “add a new comment” as a follow-up to the message you see or start a new thread!
How do I post a new Forum discussion?
The quickest way to start a new discussion is to click on the Community Forum button in the left-hand navigation, within the "My.epilepsy.com Community." If you are logged in, near the top of this page you will see an orange "Start a New Discussion" button. Complete the form with your desired title, topic, tags, and content. You can then click “Preview” to review or post or if you are already happy with the content, simply click “Submit” and it will appear on the website.
How do I reply to another user’s forum topic?
To post a reply, you need to be on a page viewing the particular message to which you wish to reply. You can arrive on these pages by clicking on the topic title links throughout the My.epilepsy.com Community, and you must be logged in as a User to post a reply.
Just below the message, you will find a series of links. To post a reply to the first message in a thread, you’ll see a link titled “Add a new comment.” If you want to reply to a message other than the original in a thread, the link will read “Reply.” By clicking on either of these links, you will be presented with a form to fill out with your reply. You can then click “Preview” to review and post, or if you are already happy with the content, simply click “Submit” and it will appear on the website.
How do I edit a post? Logged in epilepsy.com members can edit only posts that they originally write.
How do I browse through the Forums? There are a number of ways to browse through the Forums, depending on where you are within the My.epilepsy.com Community. From the main Forum page (http://www.epilepsy.com/forum), users are presented with a table of information: each “row” contains a forum topic, the total number of discussions within that topic and the total number of comments within that topic. Clicking on the "Preview" link by each topic name will give you more information about the topic, including a brief overview of the content and the information about the last post in this topic. If you click on any of the topics links, you will be presented with the discussions within that topic, from which you can view the individual posts.
If you are viewing an individual topic, you’ll find an additional navigation tool that is useful. Appearing above the topic content, you will see the following format:
These links can be used as navigation “back” in the organization of the website. That is, ‘Home’ will take you back to epilepsy.com; ‘My.epilepsy.com Community’ will take you to the main My.epilepsy.com Community homepage; etc. These links show you how “deep” you are on the website, and are useful to quickly jump to another section within the Forums.
| Title | Posted | |
|---|---|---|
| Are you an ETP Champion? | Jan 22, 2010 | |
| ETP | ||
| Dealing with doctors | Nov 18, 2009 | |
| willowwaters | ||
| Diary reminders | Nov 16, 2009 | |
| epi_help | ||
| Can you relate? (Auras, Complex Partial Seizures, Night Terrors)? | Dec 12, 2009 | |
| ChelaHarper | ||
| Ongoing Struggle and no answers! | Nov 30, 2009 | |
| naakshig_raven | ||
| Anyone Having Computer Problems When Visiting This Website? | Nov 23, 2009 | |
| Ask Epi Chat | Jan 1, 2010 | |
| epi_help | ||
| Mom needing advice | Nov 17, 2009 | |
| ChristiansMom2 | ||
| New to the site, new to this whole thing! | Jan 14, 2010 | |
| Jerr04 | ||
| PLEASE HELP ME. 3 SEIZURES & NOW ABNORMAL EEG. WHAT DOES THIS MEAN FOR ME? | Dec 30, 2009 | |
| AMYTRAWEEK | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Severe Epilepsy And Pregnancy | May 23, 2012 | |
| AmyBoop88 | ||
| Lamictal Nausea, Dizzy Spells | May 23, 2012 | |
| karyliin6 | ||
| Fish oil and absence seizures | May 23, 2012 | |
| absence_amie | ||
| Weaning off of Dilatin | May 23, 2012 | |
| Katz | ||
| Paying for your seizure pills with no insurance? | May 23, 2012 | |
| Tatianalee | ||
| Best pediatric neurologists in NC? | May 23, 2012 | |
| Ashleygordon82 | ||
| Banzel/Keppra/Lamicital | May 23, 2012 | |
| mindyraa | ||
| I think I just had a seizure??!!?? | May 23, 2012 | |
| msmith1997 | ||
| Epilepsy, Keppra, OCD | May 23, 2012 | |
| AngelicScars | ||
| HAIR LOSS with Zonegran!! Doctor Says There's No Such Side Effect | May 22, 2012 | |
| amyoon | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,619 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,243 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,077 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| my son | Dec 21, 2009 | |
| Nichole M | ||
| If I have Generalized Siezures can I still be a Candidate for brain surgery?? PLEASE ANSWER!! | Jan 30, 2010 | |
| Syd-Vicious20 | ||
| Im a 14 year old girl (from the U.S.) with JME and in need of a friend like me! | Jan 31, 2010 | |
| Syd-Vicious20 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Hyperventilation & epilepsy, a way to help yourself. | May 23, 2012 | |
| buteykomike | ||
| Medicine adjustments | May 23, 2012 | |
| fashionlove45 | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Community Feedback on Proposed New epilepsy.com Feature | Sep 30, 2009 | |
| kdredske | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| A good punch in the jaw outta cure your shaking! | Dec 1, 2009 | |
| staceinspace | ||
| View all Stories | ||
| Title | Posted | |
|---|---|---|
| New to this | May 23, 2012 | |
| kitkat2503 | ||
| Is it Emotional | May 23, 2012 | |
| frustrated1965 | ||
| Adjusting with the thought of epilepsy after misdiagnosis for over 20 years | May 22, 2012 | |
| goofyheather | ||
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
