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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYWelcome to My Epilepsy Diary Help. We're really excited about the new diary and hope you are too. We've just added some new features like being able to enter seizure clusters, your medical history, and new reporting graphs.
Go here to download the My Epilepsy Diary User Guide. (2.6Mb PDF) It should answer any questions you have. However, if there is anything you need help with that you can't find in here, please don't hesitate to email the webmaster at webmaster@epilepsytherapyproject.org.
We've broken down the user guide to smaller chunks since the document is getting so large. All files are PDFs.
We have a community forum setup for Help & Feedback on My Epilepsy Diary. Feel free to ask questions and post comments in this area of the website.
If you are a member of our community who had a diary before this new version, please be sure to review and edit your seizure and medicine information. Although most of your previous diary information was transitioned into the new diary, each field did not match 100%. Therefore we need you to review the information and be sure that it is correct.
If you are a member of our community who would still like to access your old seizure diary, please contact the webmaster for directions on how to do this. The old diary will be available until 9/22/2011 at which time it will be discontinued.
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| New & despairing | Jul 8, 2010 | |
| dmarie71 | ||
| Epilepsy SITES = DEPRESSION?? | May 15, 2010 | |
| Solace | ||
| Help, can I stil have seizures with normal EEG | Apr 12, 2010 | |
| galaxymel | ||
| Sharing diary info with doctors | Jun 11, 2010 | |
| epi_help | ||
| feellings of seizure diagnosis | Jun 25, 2010 | |
| gina22 | ||
| feeling alone? | Jun 24, 2010 | |
| paperflowers | ||
| wanting to be a better person | Apr 17, 2010 | |
| Jewell | ||
| Question for VNS patients: Should I be concerned? | Apr 17, 2010 | |
| suebear | ||
| Carbatrol | Jun 28, 2010 | |
| cdytmire | ||
| Depression | Apr 17, 2010 | |
| proofsc | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Severe Epilepsy And Pregnancy | May 23, 2012 | |
| AmyBoop88 | ||
| Lamictal Nausea, Dizzy Spells | May 23, 2012 | |
| karyliin6 | ||
| Fish oil and absence seizures | May 23, 2012 | |
| absence_amie | ||
| Weaning off of Dilatin | May 23, 2012 | |
| Katz | ||
| Paying for your seizure pills with no insurance? | May 23, 2012 | |
| Tatianalee | ||
| Best pediatric neurologists in NC? | May 23, 2012 | |
| Ashleygordon82 | ||
| Banzel/Keppra/Lamicital | May 23, 2012 | |
| mindyraa | ||
| I think I just had a seizure??!!?? | May 23, 2012 | |
| msmith1997 | ||
| Epilepsy, Keppra, OCD | May 23, 2012 | |
| AngelicScars | ||
| HAIR LOSS with Zonegran!! Doctor Says There's No Such Side Effect | May 22, 2012 | |
| amyoon | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,619 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,243 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,077 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| VNS Therapy | May 27, 2010 | |
| cdytmire | ||
| Don't miss Epilepsy Talk Radio or the new Epilepsy Diary | Apr 25, 2010 | |
| warren7 | ||
| "I'm sorry you cannot do that because you have epilepsy!".....that's what I've been told | Jun 3, 2010 | |
| lenecauchihaber | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Hyperventilation & epilepsy, a way to help yourself. | May 23, 2012 | |
| buteykomike | ||
| Medicine adjustments | May 23, 2012 | |
| fashionlove45 | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Community Feedback on Proposed New epilepsy.com Feature | Sep 30, 2009 | |
| kdredske | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Help me | Mar 21, 2010 | |
| Senior_10 | ||
| View all Stories | ||
| Title | Posted | |
|---|---|---|
| New to this | May 23, 2012 | |
| kitkat2503 | ||
| Is it Emotional | May 23, 2012 | |
| frustrated1965 | ||
| Adjusting with the thought of epilepsy after misdiagnosis for over 20 years | May 22, 2012 | |
| goofyheather | ||
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||