Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
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If you (or your loved one) have had a vagus nerve stimulator implanted, what happened after it?
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| Discussions | Members | |||
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Anti-epilepsy treatments: What's new?
Created by Presidentat3/31/08 - 2:02 pm Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
| 3 | 7 | ||
Antiepileptic Drug Screening
Created by Presidentat12/7/07 - 3:38 pm Discussion of preclinical models for screening potential antiepilepsy therapies
| 1 | 7 | ||
1 | 7 | |||
Bugs Today: epilepsy.com Website Feedback and Architects Group
Created by warren7at11/15/07 - 11:57 am Provide feedback and new ideas to make epilepsy.com a more effective resource
| 20 | 32 | ||
1 | 9 | |||
2 | 3 | |||
Community Mentors
Created by epi_helpat11/11/07 - 2:21 pm A group of community members interested in being volunteer moderators and mentors to users of my.epilepsy.com
| 9 | 23 | ||
Dating and Epilepsy
Created by Pixied...at11/29/07 - 5:56 pm Men and Women ages 25 to 40 who live with epilepsy every day of their lives and are strong enough to survive
| 2 | 26 | ||
1 | 6 | |||
New - Epi-teens
Created by Epi-Teenat5/4/08 - 2:57 pm A Group for teens living with Epilepsy to share their experiences with others, and share advice with others
| 1 | 1 | ||
Epilepsy due to Viral Encephalitis (an Acquired Brain Injury~ABI~)
Created by ValNew...at1/11/08 - 7:05 am Epilepsy due to Viral Encephalitis
| 2 | 5 | ||
New - Epilepsy Innovation Summit May 2008
Created by warren7at5/13/08 - 7:08 pm Notes and Discussions Inspired by the May 7, 2008 Epilepsy Innovation Summit in Boston sponsored by CIMIT and NIO
| 1 | 3 | ||
Experiences with Simple Partial Seizures
Created by JayBri...at2/23/08 - 12:45 am This group is for people to share their experiences with simple partial seizures with others.
| 2 | 19 | ||
New - FACES Pediatric Subcommittee
Created by Cindy ...at5/1/08 - 11:42 am Discussion forum for the FACES Subcommittee
| 0 | 4 | ||
Frontal Lobe Epilepsy
Created by criskrisat11/16/07 - 4:29 pm A Group for Discussions Associated with Epilepsy focused in the Frontal Lobe
| 3 | 13 | ||
Husbands and Wives and questions
Created by Hisgraceat2/24/08 - 5:07 am Spouses dealing with each other and their symptoms
| 1 | 7 | ||
0 | 4 | |||
1 | 4 | |||
katelins group
Created by katelinat12/29/07 - 9:47 pm before and after surgery in LA and Ventura county CALIF
| 0 | 2 | ||
Lamictal
Created by Foxyfo...at2/29/08 - 2:07 pm Daughter will be starting Lamictal and I need to hear of your experience with it.
| 1 | 13 | ||
Laughter The Best Medicine
Created by rebaat11/13/07 - 10:21 am Relieving the stress of everyday life through laughter
| 1 | 15 | ||
1 | 4 | |||
Living a life with Epilepsy
Created by kjcana...at11/18/07 - 9:13 pm A place where people can come and talk about how they deal with their life on a day to day basis with Epilepsy
| 7 | 41 | ||
New - living with epilepsy and ASD....autistic spectrum disorder
Created by sophia...at4/28/08 - 5:53 am this is a happy friendly group to talk about living with A.D.H.D/ADD, Rett syndrome OR Aspergers syndrome this is for anyone who you know has got any of these conditions
| 1 | 1 | ||
Miss Diagnosed
Created by annerut01at2/10/08 - 7:55 am Teachers thought ADD my doctor thought differently
| 0 | 4 | ||
Mormons Living With Epilepsy
Created by mormon...at4/13/08 - 11:16 pm This is where members of the Mormon faith can talk about how their faith in God and living in the Church has helped them deal with their epilepsy.
| 0 | 1 | ||
4 | 9 | |||
My precious daughter has seizures
Created by AMbi071at12/17/07 - 10:13 pm Love, Care, Tears, and Fears
| 1 | 25 | ||
1 | 5 | |||
New - Northern Virgina Support Group
Created by Beryat5/11/08 - 5:22 am Looking for people in Northern Virginia (Parents/siblings/Patients) looking for Support Groups
| 0 | 1 | ||
O' Yeah Canada
Created by Godiva...at11/11/07 - 4:58 am A place for people in Canada to sort out medications, insurance, driving laws & more.....every where seems to be different
| 1 | 6 | ||
Old timers
Created by Colinaat12/18/07 - 10:44 am A group of members who've been around a long time and have a lot of experience to offer.
| 33 | 67 | ||
New - Pacific NW USA
Created by middlemanat4/21/08 - 1:28 pm A place for people with epilepsy that live in AK, WA, OR, ID, or MT USA
| 0 | 4 | ||
Practical Living with Epilepsy Catalogue Project
Created by warren7at11/15/07 - 10:44 am A project to create a catalogue of products for safer living with epilepsy
| 1 | 5 | ||
Readers Group
Created by Readergalat12/31/07 - 10:32 pm Book club with group readings and discussions of books.
| 0 | 6 | ||
11 | 13 | |||
Sample Group - Have a look at what you can do!
Created by etpweb...at11/10/07 - 6:45 pm This Group has been started to provide and example of the new Groups feature and has links to the Help Section.
| 0 | 6 | ||
New - Seizures + Weight Loss Surgery
Created by meltin...at5/15/08 - 5:46 am Have you had WLS or are you planning it?
| 0 | 1 | ||
Service Animals, Therapy Animals, and Pets
Created by Vallie...at11/20/07 - 4:06 pm A group for those who rely on the human-animal bond to get them through the day.
| 4 | 13 | ||
Spousal support group
Created by jm2jmmat12/31/07 - 10:40 pm to learn more about how others support spouses w seizure disorders , common experiences, offer help + hope
| 3 | 14 | ||
Struggling after surgery
Created by mommy2...at12/8/07 - 11:20 am Those who've undergone seizure surgery and face a variety of struggles
| 8 | 10 | ||
teens!! our lifes and more
Created by davitaat11/10/07 - 1:26 pm where tens can get to know eachother
| 1 | 5 | ||
Temporal Lobe Epilepsy
Created by katfaerieat4/13/08 - 7:47 am Discussions on personal experiences with temporal lobe epilepsy
| 6 | 19 | ||
1 | 14 | |||
The Cabana
Created by spizat3/14/08 - 10:11 pm A place for the serious, the not so serious and the seriously silly...Enjoy!
| 18 | 21 | ||
The Stolen Laughter - Depression
Created by spizat12/6/07 - 4:12 pm Depression - The Misunderstood and Unspoke Of Disability
| 8 | 21 | ||
0 | 5 | |||
Wearable Seizure Detection
Created by warren7at4/4/08 - 11:16 am Our group will explore technologies and developments to enable a practical seizure detector that can be used in everday life
| 6 | 6 | ||
Women and epilepsy
Created by Purple...at4/10/08 - 6:58 pm Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start...
| 2 | 11 | ||
You Would Think I am Without Epilepsy
Created by joelat4/4/08 - 3:24 pm Persons whom one of their problems is Epilepsy
| 0 | 2 |
