I realize I'm a new member of this well-run, informative channel aimed at contemporary people of all ages who just happen to have the challenge of living with epilepsy. I'm one of the 2.5 million Americans with it, and have had it...
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Thu, 2/9/2012
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- --- ↑ Start with these Links ---
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Welcome to the redesigned epilepsy.com
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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYGroup Blogs
 George R Hats Off to "MEC"
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 Roxanne D Livin' on the Edge
Created by Roxanne Dat07/28/2007 - 6:03am|3914 Views Blog Posted To: EPILEPSY CAN BUILD YOUR STRENGTH, WISDOM, FAITH, AND HOPE I had my first at 8 yrs old. I didn't again until I was 22. I have complex partial petit mals. Right when I was going back to a new neuro doc to try new meds, I was pregnant. After I had Kristina, I tried new meds that did not help.
So,...
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 danies... Epilepsy
Created by danies...at12/30/2008 - 5:03pm|4033 Views Blog Posted To: daniesbrwneyes's blog I was dignosed with epilepsy at the age of seven years old. The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread through the yrs. As Well as they think...
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 Angela71 I am tired of explaining, no one person understands do you?
Created by Angela71at05/12/2009 - 11:21am|4051 Views Blog Posted To: Angela71's blog Since I was 12, I have had many different seizures. And answer many questions. It,s been 26 yrs now and some things have realy changed. It realy has me concerned. Right now my hands jerk while I type at one time I could not sighn my on name....
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 alwhite er
Created by alwhiteat06/03/2009 - 7:05am|4591 Views Blog Posted To: alwhite's blog I just got back from the ER where they found that my trileptal was makeing my sodium level go down. I metabilize it so fast that the simtoms mask themselves like my siezures. It is not very common in young people so watch your sodium levels.
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 sugarc... is lookin to talk to someone
Created by sugarc...at06/11/2009 - 8:58pm|3045 Views Blog Posted To: sugarcookies's blog Hi, Im hannah, i am twenty three years old. I have light brown hair and dark brown eyes. I am lookin to talk to someone. If you wanna talk let me know.
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 Jensey84 |
FIGURE... PRAYING THAT SOMEONE OUT THERE THAT CAN HELP ME
Created by FIGURE...at08/07/2009 - 7:08pm|2297 Views Blog Posted To: FIGURESKATER85's blog
I WANTED TO KNOW IF ANYONE OUT THERE KNOWS ABOUT GETTING A SEZURIE ALERT DOG PLEASE LET ME KNOW LIKE A.S.A.P. THAT WOULD BE A VERY GRATEFUL THING TO ME AND A VERY VERY BIG BLESSING TOO ME SO YOU ALL KEEP IN TOUCH YOU HERE
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 sunsta... the unknown
Created by sunsta...at09/17/2009 - 6:36am|2214 Views Blog Posted To: sunstarr_429's blog on labor day my older brother had a tonic- clonic seizure (his 2nd seizure). it happened in the car shortly after my family & i started to head home after a wkend in st louis. it was the 1st time i had seen a seizure (usually i'm the one having them),...
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 RenaGr... Anyone Had The Wada Test?
Created by RenaGr...at10/23/2009 - 1:09pm|1981 Views Blog Posted To: RenaGrl808's blog Hi, My name Is Rena. I have complex partial seizures and they are not well controlled. I've decided to have the surgery to control my seizures. Now I need to take a few tests before that happens. My neurologist will schedule the Wada Test in a few weeks. I...
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Samoa89 Sleep???
Created by Samoa89at12/10/2009 - 10:05am|2078 Views Blog Posted To: Samoa89's blog
Lately, I have been having some problems sleeping...
I don't know what my problem is, but whenever I start to fall asleep, I feel like my heartbeat picks up and like I am "leaving myself". It is such a weird feeling that makes me jolt awake.
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cmh29 Please read my story and respond
Created by cmh29at01/20/2010 - 3:52am|2066 Views Blog Posted To: cmh29's blog Hello. My son is 4 years old and just had his 4th seizure today. The first started last august (2009) and then he had one in nov, dec, and jan. He wakes up (all 4 times between 5-6am) gagging/coughing then becomes slowly unresponsive, staring upward...
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 earthq... Earthquake's blog
Created by earthq...at02/05/2010 - 7:41pm|3973 Views Blog Posted To: earthquake78's blog
Hello everybody , Having a litl trouble getting on the chat room but if anybody wants to get ahold of me send an Email Jones.jimbob1@gmail .com
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 dantheman a "NEW LIFE"
Created by danthemanat08/04/2010 - 10:09am|252 Views Blog Posted To: dantheman's blog
Ø I am a highly Epileptic that was born with Epilepsy. I had 10+ spells or Seizures per day.
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 dashaday Selective Amigdalohippocampectomy
Created by dashadayat11/07/2011 - 1:19pm|215 Views Blog Posted To: dashaday's blog
Hello,
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My hockey team is the Vancouver Canucks. I enjoy reading and am currently...
I have had epilepsy since the age of 13 and have tried lamactal, topamax,...
I have had epilepsy since I was twelve years old. I am now a mother...
Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...
I love to crochet, I have 4 teens, A new grandbaby. I don,t go out...
My boyfriend was diagnosed with epilepsy at the age of 16. We started...
Hi There,How are you today? I hope well, I'm a person living with...
My hockey team is the Vancouver Canucks. I enjoy reading and am currently...
I'm a single parent of two kids, ages 11 and 15. My 15 year old daughter...
I have a 4 year old son who has had 3 complex partial seizures. I...
I was diagnosed with simple partial seizures at 31 after years of...
I am a web developer / graphic designer and photographer that began...
Im a 30 year old who has had E since I was about 3yrs old.I have Grand...
I've had various forms of epilepsy for 35 years, experiencing my first...
I am from BC Canada. Was officially diagnosed with Epilepsy in March...
I was only diagnosed with epilepsy when i was about 14, i used to...
I have epilepsy since I was 9. I was on several diffirent AED's and...
hi my names lindsay im 21 and i was diagnosed with temporal lobe epilepsy...
I started having seizures when I was 15. I had my first one when my...
Phylis Feiner Johnson has been a professional direct response copywriter...
Hi, Im 27 and i have had seizures since i was 16 yrs old. Im from ont canada.
I am a student who is attending a community college going for an associates...
I have had epilepsy since the age of 13 and have tried lamactal, topamax,...
I STARTED HAVING PETIT MAL SEIZURES WHEN I WAS 22, NOW I AM 37. I...
My name is Aquiona Russell. I am 20 and living with epilepsy. I...
I am A Stay at home Mom tryting to deal with Menopause and Epilepsy
THANK GOD #1 AND ALSO TO MY LOVING AND CARING FAMILY. IT IS SO NICE...
Well a little bit about me. My name is Ashley, Im 19 years old and...
I am a 46 year male. I would like to meet other individuals with Epilepsy...
April, 2010 I'm a married logger, crab fisherman, and abalone diver...
Hi, my name is Hannah, i am twenty three years old. I have light brown...
started having tonic-clonic seizures (have them in my sleep or 2-3...
I have been epileptic since birth. I have been through 4 surgeries...
| Title | Posted | |
|---|---|---|
| Epileptic Seizure Monitor Alarm System | Feb 9, 2012 | |
| onemarvy | ||
| Are these normal migraine symptoms or is there something more to it? | Feb 8, 2012 | |
| xtheotherside | ||
| 5 year old worsening seizures. Pls help??? | Feb 8, 2012 | |
| TIM_C28 | ||
| Trileptal dosage | Feb 8, 2012 | |
| myejk | ||
| SEN and epilepsy | Feb 8, 2012 | |
| Kim Norris | ||
| possible non convulsive epilepticus? | Feb 7, 2012 | |
| rayraykay | ||
| Fight with the sidewalk | Feb 7, 2012 | |
| jasssmit | ||
| Focal activity followed by generalized activity but no epilepsy | Feb 7, 2012 | |
| BendyPianist | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Feeling Like a Human Guinea Pig | Feb 7, 2012 | |
| christopherpaul | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,610 | |
| epi_help | ||
| topamax and weight loss | 19,311 | |
| alexia mom | ||
| kepra | 19,197 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,342 | |
| pdl1 | ||
| How exactly do aura's feel | 13,990 | |
| WendyBendy | ||
| Sexual Side Effects | 13,513 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,428 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,405 | |
| spiz | ||
| electrical shock in head? | 10,072 | |
| Maggie | ||
| Weight Gain and Depakote | 9,005 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| The way I see my child now. | Feb 9, 2012 | |
| BowlofMush | ||
| Epilepsy Pipeline Update Conference | Feb 8, 2012 | |
| bryan_farley | ||
| my partial complex seizures | Feb 8, 2012 | |
| Zanna1211 | ||
| The Sunday Dreads | Feb 8, 2012 | |
| johnverling | ||
| Giant Stuffed Animals For The Toddlers | Feb 8, 2012 | |
| zacharysmith | ||
| Frederick's of Hollywood Announces the "Hollywood Love Story Contest" Valentine's Day | Feb 7, 2012 | |
| cn-lightings | ||
| Seizures and medical marijuana | Feb 7, 2012 | |
| seizureprone134 | ||
| From muscle problems to seizures in 6 weeks or less | Feb 7, 2012 | |
| ArizonaAbby | ||
| Speech at Epilepsy Pipeline Update Conference -2012 | Feb 7, 2012 | |
| dayna | ||
| The Doors. | Feb 7, 2012 | |
| BowlofMush | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,402 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,780 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,579 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,537 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,211 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,903 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,831 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,710 | |
| teft | ||
| newborn seizure | 2,254 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| Moms of epileptic toddlers | Jan 24, 2012 | |
| Xaviersmom2 | ||
| Autism | Jan 15, 2012 | |
| Aaron Chan | ||
| brain surgery | Dec 26, 2011 | |
| jen020309 | ||
| People in their 20's with epilepsy | Dec 7, 2011 | |
| Mandy911 | ||
| TEAM ETP | Nov 28, 2011 | |
| krisj | ||
| 24yr old male | Sep 21, 2011 | |
| Dave24 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| My Story - Still Don't Know What it Means | Feb 8, 2012 | |
| arobertshaw85 | ||
| Help me plz. I can't go on like this | Feb 6, 2012 | |
| Lindsea | ||
| For my daughter | Feb 6, 2012 | |
| britni1780 | ||
| Why can't I find out what is going on with me? | Feb 5, 2012 | |
| dgreer27 | ||
| nightime seizure | Feb 5, 2012 | |
| ishaq | ||
| my grandchild with possible panayiotopolous syndrome | Feb 5, 2012 | |
| krys | ||
| Please Read and Help | Feb 4, 2012 | |
| WALLIGAT0R | ||
| Hello. I'm new to the forum | Feb 3, 2012 | |
| Tom S. | ||
| Maxx | Feb 3, 2012 | |
| MDS2006 | ||
| Lyme Disease as a cause for seizures | Feb 1, 2012 | |
| ssidah | ||
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| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,412 | |
| kroiz | ||
| my story | 553 | |
| snoby | ||
| Temporal Lobe Epilepsy | 536 | |
| Always Have On Clean Underwear | 499 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 470 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 467 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 418 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 389 | |
| karalyeva | ||
| Life......... | 371 | |
| dizzygal | ||
| My Daily Philosophy..... | 364 | |
| KatieFerguson88 | ||
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Name: Epilepsy Friends .com
Since: Apr 28, 2009
About the Group:
Epilepsy Friends is a group focused on sharing information about epilepsy to better educate and help individuals who are affected by or curious about epilepsy.
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