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Group Blogs

spiz
spiz
Cool....My own blog!!!!
Created by spizat09/01/2005 - 5:14pm|11095 Views
Blog Posted To: Spiz's Blog
This will take some getting used to...but I think it will be fun! I'm having a bad headache which isn't unusual(just ask my husband). But what is unusual is that my cheekbone and behind my eye...right side...has the same numbing...
epi_help
epi_help
Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|4936 Views
Blog Posted To: epi_help's blog
Hi everyone, I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place! So let me tell...
rootbe...
rootbe...
I am confused
Created by rootbe...at10/16/2005 - 2:07pm|18840 Views
Blog Posted To: rootbeergirl16's blog
my daughter is 9 and just been diagnosed epiletic for sezures in 2 and half years her last one was 35 min long anyway they just prescribed lamictal and i am trying to sort out the good bad and ugly of it all and i am seeking some advice....
Colina
Colina
My family has never seen me on the computer so often!
Created by Colinaat11/10/2005 - 10:05am|9349 Views
Blog Posted To: Colina's blog
Hi everbody. I'm very new to this site with the exception of finding the best place for information. I have always been very shy and apprehencive about joining any chat rooms or stuff, but I have found this to be the best thing...
mommy2...
mommy2...
have u been there?
Created by mommy2...at06/27/2006 - 4:48am|3499 Views
Blog Posted To: mommy2kyra's blog
It seems that I keep finding out that my sz's began even earlier than I'd thought. Originally, I had a nocturnal grand mal (almost age 26) and it took a couple of years for me to figure out that I'd been having cp's, not panic attacks...
kathyc
kathyc
Replacing Dilantin w/Lamictral
Created by kathycat09/16/2006 - 1:17am|4949 Views
Blog Posted To: kathyc's blog
My husband has been on Dilantin 500mg nitely for 34 years and his neurologist is now replacing it w/Lamictral. He is increasingly shaky-trembles all the time. Next week he will start decreasing his dilantin dosage 100mg every 5 days...
banffgirl
banffgirl
Newbie
Created by banffgirlat03/23/2007 - 10:07pm|26266 Views
Blog Posted To: banffgirl's blog
Well everyone out there I don't know how you do it. I decided to join after getting this newsletter for at least 3 or 4 years. I entered a chat room last night but couldn't keep up. About 4 years ago my seizures went from pretty...
ROCKNROLL
ROCKNROLL
EPILEPSY, NON EPILECTIC SEIZURES, HORMORNES, NOT HORMONES
Created by ROCKNROLLat07/12/2007 - 9:31pm|36471 Views
Blog Posted To: DERAILED, GETTING BACK ON THE TRACK
BOY, IT WOULD HAVE BEEN A LOT EASIER IF I HADN'T UNENROLLED AND ENROLLED AGAIN. SEIZURES ARE GETTING WORSE AND MORE FREQUENT. JUST BACK FROM DIAGNOSTIC LAB TODAY AND HAVE TO WAIT A MONTH?????? TO GET THE RESULTS AND FIND OUT WHAT...
dayna
dayna
The eyes
Created by daynaat07/23/2007 - 9:00pm|5016 Views
Blog Posted To: dayna's blog
If the eyes are the window to the soul...why do they look at me like that? Can they see inside the dark? No one can see in there...If I am not looking out, they shouldn't look in. What are they looking for? Don't they understand...
reba
reba
Fears before surgery. now happiness after.
Created by rebaat09/06/2007 - 10:47am|2081 Views
Blog Posted To: reba's blog
i am 37 yrs old, married and the mother of 3 beautiful kids. I just recently had right temporal lobe surgery on August 22. after just staying in the hospital 5 days, i was able to come home. it is now september 5, and i am recovering...
crashl...
crashl...
Crash is Back
Created by crashl...at09/25/2007 - 12:23pm|21759 Views
Blog Posted To: Crashllama's Blog
I tried to give up the "Crashllama" nickname but it just won't go away. EVERYONE calls me Crash or Llama. I guess it fits me somehow. Sigh. I apologize for deleting my account as other things had come up. I had a really bad...
ValNew...
ValNew...
My Jake's Story...In a Nutshell
Created by ValNew...at03/16/2008 - 8:04am|3084 Views
Blog Posted To: Val's Blog
In the Summer of 2006, my extremely healthy, active, smart, 10 year old boy, Jake, got a mosquito bite, which lead to Viral Encephalitis.  I woke to find him in Status Epilepticus.  My husband and I came very close to losing our son in the ER that...
lorelama
lorelama
My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|3159 Views
Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal. My teen...
Lizust
Lizust
New at this need your help, also need help on not being embarrassed about having seizures
Created by Lizustat04/03/2008 - 11:26am|1723 Views
Blog Posted To: Lizust's blog
If any one reads this, I'm not sure what to expect.  I have different kinds of seizures and am stuggling on explaining epilepsy to friends and family.  Many times I have to try and "justify" my disability to others and it gets very frustrating. ...
Colie_...
Colie_...
Colie's blog
Created by Colie_...at08/13/2008 - 7:59am|2433 Views
Blog Posted To: Colie_byrd's blog

dizzygal
dizzygal

Eagle965
Eagle965

maliki
maliki

Colie_...
Colie_byrd

i am a 24 year old woman living with epilepsy. i have gran mal seizures,...

GAmom3
GAmom3

I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...

gjsamuels
gjsamuels

There's a lot about me, e.g., level of education, politics, music....

kathyc
kathyc

Altho I do not have epilepsy, I am a person living with it. My husband...

Patty F.
Patty F.

Im on Zonisamide and Carbatrol Sr. Every since I've been put on Zonisamide...

banffgirl
banffgirl

endles...
endlessfilms

Documentary Filmaker



banffgirl
banffgirl

Colie_...
Colie_byrd

i am a 24 year old woman living with epilepsy. i have gran mal seizures,...

Colina
Colina

Hello hello I'm 43,married and have 3 kids. Currently I do not work...

crashl...
crashllama

danitax
danitax

dayna
dayna

oh my, do you really want to know? OK, Here goes. I am Married. Have...

dizzygal
dizzygal

Eagle965
Eagle965

endles...
endlessfilms

Documentary Filmaker

epi_help
epi_help

Hi, I'm here with my.epilepsy.com as a resource, to help wherever...

GAmom3
GAmom3

I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...

gjsamuels
gjsamuels

There's a lot about me, e.g., level of education, politics, music....

kathyc
kathyc

Altho I do not have epilepsy, I am a person living with it. My husband...

Lizust
Lizust

lorelama
lorelama

I have been diagnosed with epilepsy for 30 years, temporal lobe epilepsy...

maliki
maliki

mommy2...
mommy2kyra

Patty F.
Patty F.

Im on Zonisamide and Carbatrol Sr. Every since I've been put on Zonisamide...

Peaches78
Peaches78

Ranger
Ranger

Surgery on 11/12/2007 epilepsy improving because of it.

reba
reba

ROCKNROLL
ROCKNROLL

I HAVE ABSENCE,SIMPLE,PARTIAL,COMPLEX PARTIALS,ATONIC?NOT SURE ABOUT...

rootbe...
rootbeergirl16

0

sdeas
sdeas

Mommy to a beautiful 8 yo Lhasa apso named Chloe :P

spiz
spiz

toner12
toner12

ValNew...
ValNewLife

Please see "My Jake's Story...In a Nutshell" in People Stories, or...



Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
Epilepsy and marijuana  
cjad234
Sexual Side Effects  
George R
How exactly do aura's feel  
WendyBendy
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
View all Forums

Title Posted
Frustrated and Confused  
KrayonsRmine
Need help and guidance  
djvanks
Cancer and Epilepsy  
horseman
Heck of a day  
4mygirl2
The Last Voice  
cindy thacher
Ugg boots  
shirts
UGG lays its charm  
shirts
UGG lays its charm  
shirts
29 years old, had seizures since I was 8.  
dkalra
Stroll for Epilepsy Awareness  
bookworm03
View all Blogs

Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
Feeling Sick  
JBJ1984
How can you tell if a sleep seizure happens?  
epl_controller
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
View all Blogs

Title Posted
Project Uplift  
tamliniscute
SEIZURE FREE  
gracie9933
EPILEPSY SUPPORT GROUP NORTH CAROLINA  
Roxanne D
Community Feedback on Proposed New epilepsy.com Feature  
kdredske
Parent with Child with Epilepsy,Dystonia, and Autism  
TashaCole
RX outreach Program  
mw
Fun and Games  
phylisfjohnson
Epilepsy and Memory Loss??  
lindseygthatsme
Epileptic Postictal Psychosis  
Bravedefender
Northern California Volunteers  
cannemo73
View all Groups

Title Posted
My Mother suffers from absence seizures  
baubua24
My Meningioma Story  
Maria7
My First time  
SteveDaw
My Epilepsy  
amberbrady5384
The crazy spiritual journey that is a seizure.  
zeus1223
29 years old; epilepsy since I was 8.  
dkalra
my experience with epilepsy  
Sabia
Family with Epilepsy  
thunley
My Story Of How I Was Diagnosed With Epilepsy.  
bass_babyx
Lorrelei71  
Lorrelei71
View all Stories