Divers with epilepsy
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Fri, 2/3/2012
Take control of your epilepsy and seizures. Seizure management has never been easier.
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To find a group or topic of interest, enter a username or keyword in the box below.
To find a group or topic of interest, enter a username or keyword in the box below.
Get and stay connected with other epilepsy.com community members who share your interests, concerns and passions. Create a virtual meeting place and deepen your connections using the Community Event Calendars, Group Discussions and Shared Member Blogs. Below, you can see the most recent Groups, and the latest activity within the Group Discussions. Browse around and if you don't see a Group you are looking for, log-in and click "Start a New Group." Your Group can be open to the public or private (by invitation only). There is no limit to the size of your Groups or what topics your Groups are based on! If you are not logged in, register now! Learn more about joining and participating in Groups in our Groups Help Section.
Group Index
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 | 0 | 2 | ||
New - Moms of epileptic toddlers
Designed to explore the lives of other mothers w/small children experiencing all types of seizres. Hopefully sharing can deepen our understanding.
 | 0 | 5 | ||
| 0 | 3 | ||
| 1 | 4 | ||
 | 1 | 7 | ||
| 0 | 1 | ||
| 1 | 6 | ||
| 1 | 6 | ||
Lamotrogine....Severe feelings of detachment, with fear of dying or going insane?
Extreme and sudden detached feelings, fear of death/insanity?
| 1 | 7 | ||
 epileptics with a new vns implant so a new lease on life
people who have suffered from seizures despite medication. But just got the vns and are looking forward to a better life
| 0 | 4 | ||
| 1 | 3 | ||
 | 0 | 1 | ||
 Epilepsy And Learning Disabilities
This is a group for members who have both epilepsy and learning disabilities,know someone who does,or has any questions that could relate to either one of them or both of them.
| 0 | 5 | ||
 | 1 | 14 | ||
 | 0 | 1 | ||
half awake cant move terrified, told just a dream..i know ..u tell me more
since i was 4 years old I suffered waking from my sleep,couldnt move couldnt cry X
| 0 | 1 | ||
| 0 | 5 | ||
| 2 | 22 | ||
| 0 | 1 | ||
The Storm Within
For anyone that has epilepsy to share problems they face day to day and also those who need emotinal support
| 1 | 11 | ||
Epilepsy and miscarriage
This group is for all women any age that have had a miscarriage and is looking for support.
| 0 | 2 | ||
| 1 | 13 | ||
Depakote and Pregnancy
This group is for everyone who is thinking about starting a family and wondering about the possible effect that Depakote may have on the pregnancy and other possible medications
| 1 | 1 | ||
For parents with Multiple Children with Epilepsy
A group for parents dealing with more than one child having epilepsy
| 2 | 5 | ||
 | 0 | 1 | ||
TEENAGERS WITH EPILEPSY
general discussions of growing up as a teen with epilepsy of any sort, parties, getting your licence, school work.
| 5 | 27 | ||
Does anyone else have "Auras?"
I have been having “auras” and/or “mini-seizures” since I had a brain injury when I was 12. I am not epileptic, but have met others who are and have auras too. I would like to know how others feel when they have them, what they feel triggers them,...
| 0 | 20 | ||
| 1 | 18 | ||
 | 0 | 18 | ||
| 0 | 18 | ||
Moms of Special Needs Kids with Seizures
A group of moms discussing the effects of complex and simple partial siezures
| 1 | 8 | ||
| 0 | 1 | ||
Atlantans Living with Epilepsy
Looking for adults in the Atlanta metro area to compare notes on doctors, groups, trials, etc.
| 1 | 3 | ||
 Non epileptic seizures
Please share your comments, views and personal experiences about non eplieptic attack disorder.
| 4 | 12 | ||
Pregnant after a temporal lobectomy
A group for people who have had surgery for their epilepsy who are now pregnant
| 0 | 1 | ||
 | 0 | 11 | ||
 | 1 | 27 | ||
| 20 | 47 | ||
| 0 | 3 | ||
| 0 | 11 | ||
| 0 | 1 | ||
| 0 | 30 | ||
| 1 | 8 | ||
| 0 | 4 | ||
Mothers with Absence Seizures
What are your seizures like during pregnancy? How do you deal with raising a child and your seizures?
| 1 | 5 | ||
Living with someone who has Epilepsy ( trying to understand)
this is a group designed to help others that live with someone with epilepsy , and help each other understand the condition better from the REAL perspective
| 6 | 32 | ||
 Horses and their Healing Powers
this is for those people, who've had horses/ponies in their lives, & those horses/ponies have helped them cope with their epilepsy--have helped them to "heal"
| 1 | 5 | ||
| 2 | 23 | ||
| 1 | 7 | ||
 | 0 | 5 |
Group Activity
 bellas... New - hi people
so i was wondering what type of meds people are on because I get headaches from my keppra.
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 briann... New - Getting your drivers licence with epilepsy
I don't know about anyone else, but getting my learners driver permit in WA was the hardest obstacle yet that I have had to deal with my epilepsy so far. It was a great hassle. I had to get a doctors document that stated I was safe as long as I stayed on my...
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BinkyR... New - Im 15 years old, & i think my medication causes me to be depressed
I am Bianca, I am 15 years old from USA Kentucky. So, i have to take Keppra (generic) for Epilepsy. The side effects are getting to me by day. When i stand up everything turns white and i fall or i stumble. I told my doctor, but he told me the blood wasnt...
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stmom New - Lamotrigne and feeling crazy
Hi Dessie; I have just come off of lamotrigne because it wasnt working for my partials any more.
I found while taking it that I had some mental changes. I had no sense of humour what so ever. I was a published author and I can no longer write. ...
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Ltahma... |
garcra... New - absence seizures and loss of bladder control
My 13 year old daughter was diagnosed with absence epilepsy when she was 7. Her latest medication is Zonegran, 350 mg. daily. For about the last 2 years, she has suffered with nighttime and daytime incontinence, which her neurologist thinks is happening...
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 chris.... New - VNS (Vagus nerve stumlator)questions
Hi, my name is Christine and I'm currently looking for other therapies outside my current medication. I was looking up other therapies and I came across VNS. But I couldn't find my most important question.
Does it work on Non-Epileptic Seizures? I've...
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 joanninez New - I hate taking my meds...
I don't know, maybe i'm just weird but I really do hate taking my meds. I mean I am only 18, I shouldn't have to take three pills twice a day. And I am constantly thinking about it too, did I remember to take them? did i take all of them? I just hate it. I...
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 socopearl |
 Angeli... New - New to it all.
Hello!
I just joined the forum and group as I needed support. My son (3.5) had his second seizure yesterday (the first was in Nov.) and he is now on medication and will be seeing a neurologist soon. This is all new to us. When he had the first seizure, they...
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chrisr New here...and question about my son's meds
Hi there...I'm new to this group and hoping to find some people who are in similar situations...especially with my son's anti-seizure meds. My son is 15 months old and started having seizures at 11 months old. He was born with a rare AV Malformation (Vein...
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 prince... Being the gunia Pig
I am 22 years old and am waiting for a call about surgery that is for parkinsons that they want to do to help my epilepsy. There have been studies done in the states that have proven it helps with seizures. I hope that they find something because I am tired of waiting.
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ephyk Introducing myself
Hello! I've had complex partial seizures since babyhood, and have worked as an accountant and tax preparer for several years. I've also worn hats as a high school teacher, legal assistant, restaurant manager and prep cook over the years.
I never...
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 Theresia PMT / PMS and seizures
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
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sandy40 Introducing My Son and I
Hello! Let me introduce my self! My name is Sandy, I'm a stay at home mom with 3 children, a husband and a dog! My youngest son Brandan, age 11, was just recently diagnosed with epilepsy. He has generalized tonic clonic so far no known cause. He was a 27 week...
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prince... Someone else is speaking up too!
I am 22 and have had epilepsy since I was 6 weeks old. I am afraid to socialize with people because of acceptance. When I am accepted well I wouldnt say that they are the wrong people...but I have 1 of 2 problems, they cant cope with my medical issues or...
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 spiz Never-Ending Sentence
I'll start a sentence then the next person makes the first word or two of their sentence finish mine while making an unfinished sentence of their own to be finished and added to by the next person, etc. Let's make it fun!
-Spiz
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 Ollie2011 14 weeks old and diagnosed with epilepsy.
My son is 4 1/2 months old. I'm not sure if this will help you or if you've already got answers, and maybe you can help me?
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kgrant Pregnancy and getting pregnant
Hi All
I am a 33 years old and have been Epileptic since i was 14. It took a long time to get my seizures under control and only when i went onto Lamictal did i manage to control both the absences and tonic-clonic seizures i have. Two years ago my husband...
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nshewey need a neurologist
I've been searching pretty much everywhere on the internet looking for help. I am on topiramate right now and was told by 2 neurologists that I should just give up the idea of getting pregnant at all since I cannot be off it. I need a third opinion since...
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 scared... scared to have a baby
I am 29 years old. I found out that I was epileptic when I was 16. It is well under control. I have only had 5 grand-mal seizures.
However, right now I am at the point in my life that I am itching to start a family. I am on topamax 400mg. I went to...
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 kittie... Pregnant with my 3rd child. The second was a miscarriage.
This is my first time on here. My name is Pam, I'm 25 and I'm pregnant with my 3rd child. My first child is 5yrs old and I miscarriaged at 6 weeks with my second child while on tegretol 3 times a day, 200mg each. This time I'm pretty sure I'm doing things...
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 mustan... Lamictal: Effects on Seizures & Mood
Hello. I just got put on Lamictal about 2 months ago for seizures and bipolar disorder. I have to say I like it pretty well. I display symptoms of what doctors think are about 8-10 different types of seizures. They have been very difficult to control with...
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 RobinLynn Am I having a partial seizure?
I have been having some "Blackout spells" and beginning to get a little concerned. The first couple times I hear a loud roaring and then things go black and I wake up on the floor. only last a few seconds. The last one I had when I was coming...
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gardenia Me, Myself, and I.
Hi there,
"When it is obvious that the goals cannot be reached, don't adjust the goals, adjust the action steps." Confucius
These quotes seem to hit the mark! Enough said!
gardenia
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Chrissyml Recipes
I made this chili the other night. I find meatless chilis don't usually taste very good, I was surprised at how good this is.
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 sunsta... could this be an aura?
i don't normally have auras, i just have a seizure w/o any warning. but lately i have occassionally been getting the sensation of intense anxiety, kind of like the feeling you get when something really bad has just happened (?- does that make sense; its...
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denawe School Accommodations for Absence Epilepsy?
My 8 year old son was diagnosed with Absence Epilepsy two months ago, and while we've seen a reduction in the number of epsiodes with Zarontin (ethouximide), the seizures continue. We've had a terrible time getting any help from our neurologist - we have...
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 moparb... Modeling
Hi!
I learned to use art as an expression to let go of the stressors of Epilepsy when I was in High School. I have wanted to model since I was 12, now 10 years later I really am. It is so much fun! and a great way to release and let your feelings...
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 bluema... perceptual oddities
Hello ~ I would like to hear from others who have the perceptual symptoms of temproal lobe epilepsy. The complex partial seizures have come under control from taking 300 mg Lamictal, but I continue to live with the odd sensations - out of body, deja and...
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Mom09 My 2 yr old boy has been descripbed keppra
Hi, I am new to this website, so hoping someone will contact and respond.
My now 2yr old boy has been prescribed keppra, i am concern about the side effects, mainly restlessness at night, and i know lack of sleep triggers for another episode of seizure...
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yabes My daughter is free from medications with virtually no seizures now!!
I would like to share my experience with an acupuncturist who is located in Torrance, CA. First my daughter Lisa started seizures (infantlie spasm, which is one of the most difficult to be treated) since she was 7 month old. (now 4) Years of struggles...
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yabes My daughter is free from all medications with almost no seizures!!
I would like to share my experience with an acupuncturist who is located in Torrance, CA. First my daughter Lisa started seizures (infantlie spasm, which is one of the most difficult to be treated) since she was 7 month old. (now 4) Years of struggles...
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yabes God answered my prayer of healing!
I would like to share my experience with an acupuncturist who is located in Torrance, CA. First my daughter Lisa started seizures (infantlie spasm, which is one of the most difficult to be treated) since she was 7 month old. (now 4) Years of struggles...
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yabes The best cure worked like close to a miracle
I would like to share my experience with an acupuncturist who is located in Torrance, CA. First my daughter Lisa started seizures (infantlie spasm, which is one of the most difficult to be treated) since she was 7 month old. (now 4) Years of struggles...
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 kay69 another kiwi
Hi, just saw this page. Yeah it's hard to meet others locally, joys of a small population and the difficulties of going public. There's a few support groups in some parts of the country try www.epilepsy.org.nz if you haven't already, see what's going.
kay
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persevere Any alternative to Emory's neurology clinic??
I've had a ton of problems with Emory. Perhaps it's just too big and well known. Does anyone have a neurologist they can recommend (especially north of the city)?
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melza hey anna
Hey Anna ,
Trust me when i say i know how you feel. my names Melissa and im 25 , i have had a couple of bf's in my time and each one had excepted me for who i am and my seixures, but i have found around the 2 years mark it seems to get to them. ive...
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 babygi... blackouts
about a month ago i was at work when my vision suddenly went black. im not quite sure what caused it. but when i just looked it up its caused by epilepsy. what can i do to keep them from happening???
each day i hope to be "normal" again....
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 epi_help |
MegM Fear of Depakote
Do you have to medicate absence seizures?
My son, 5.5, was diagnosed with Childhood Absence Epilepsy this summer. Reluctantly, I gave him Zarontin. Eleven days later, he had a drug reaction (rash). Now the ped-neuro wants me to give him Depakote. But...
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 jay wa... Thinking about epilepsy
This is something I have always kind of wondered, how often do you guys think about epilepsy? To get it started for as long as I can remember I think about it almost all the time, because I am constantly worried that I will have a seizure. If I am sitting...
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jay wa... |
gardenia Me,Myself and I.
"Friends have all things in common" Plato
"Courage is knowing what not to fear" Plato
gardenia
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 Megsca... Feeling lost
No other friends have or can imagine what we go through with our children. You begin to feel lost and lonely. Never felt alone like this before. Family has been wonderful, but I just feel like this is a bad dream. I want our 4 year old to have a non...
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bellas... |
sandra... Check if you are epileptic
You can check if you are epileptic by looking at the article at http://www.internationaldrugmart.com/drug-category/epilepsy.html
If you have symptoms please checdk with your doctor on the same.
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 lisam1... RNS surgery (responsive neurostimulator system)
I'd like to hear from anyone who has undergone either the Medtronics or NeuroPace RNS device to control their seizures.
Lisa-Marie
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suzy01 left in dark
hi im new had epilepsy 28 yrs then i had surgery 3 yrs ago but after witnessing a bad accicdent i now have nes i was only told 2 weeks ago but know nothing about it.i have just been left to find out myself it can be hard sometimes
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cet Looking for a Face-To-Face Support Group of Caregivers in the Boston Metro Area
Hello,
I am a husband to a wife with generalized epilepsy. I am currently looking to network with other husbands with wives with epilepsy in order to better cope with my wife's condition.
I am glad to have found e-networks, however, I would prefer to...
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