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TOGETHER WE CAN MAKE A DIFFERENCE!
JOIN THIS GROUP to discuss many epilepsy-related topics and/or to contribute information for the main web site: http://www.epilepsyfriends.com
Epilepsy
Friends is a group focused on sharing information about epilepsy to
better educate and help individuals who are affected by or curious
about epilepsy. Facebook @ http://www.facebook.com/group.php?g
phylis... |
msokhan2 Epilepsy get rod off without medicins
Created by msokhan2at7/10/10 - 1:22 am|2 Views Please tell me how to get rid off epilepsy without med. really iam getting bore of my life , a stree comes I definetly got fit.......I am in UAE i am Pakistani.... working here... please guide me what to do.........i little bit feeling that i have memory loss...
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sunsta... need a neurologist/epileptologist in IA
Created by sunsta...at10/29/09 - 7:26 am|12 Views|1 Comment
does anyone know of a decent neuro/epileptologist in iowa city, IA that accepts iowacare patients? i'm looking for a neuro who isn't judgemental, who listens to what u say, doesn't argue w/ u, isn't abrasive, etc. any potentially helpful info is much appreciated....
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phylis... How long have you gone without a seizure?
Created by phylis...at12/3/09 - 1:08 pm|38 Views|4 Comments
Or did you think you were seizure free? Well that was me...
I had epilepsy for 22 years. Then another 22 years rolled by without anoher seizure. Home free, right?
WRONG.
15 months ago, I had a drug related seizure that was the mother of all...
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George R Caffeine Bother You?
Created by George Rat4/30/10 - 3:03 pm|9 Views|1 Comment After having dealt with my neurological system's unique "personality" for 40 years, I can see that many things within me and around me can get it all "irritated, short of temper, fighting back." And one of those is caffeine. As much as...
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Susumarie |
Jonath... Discrimination
Created by Jonath...at5/9/09 - 7:50 pm|40 Views|4 Comments People often put all epileptics into one single category. That category
includes having a high frequency of seizures, not being able to hold a
full time job, not being able to drive, having to work in a safe
environment, and the list goes on. The bottom...
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Jonath... Epilepsy Friends .com Oprah Talk About Epilepsy .com Sites
Created by Jonath...at10/26/09 - 11:02 am|10 Views
I urge everyone to join our Facebook group if you haven't already done so. Here's the URL: http://www.facebook.com/group.php?gid=51759117066 I also urge everyone to join the Facebook group Oprah Talk About Epilepsy .com. Here's the URL: http://www.facebook.com/group.php?gid=156464861079...
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phylis... Epilepsy Bill Of Rights
Created by phylis...at10/14/09 - 8:45 am|14 Views
The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.
If you don’t know...
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phylis... Katie Couric discusses Epilepsy on 60 Minutes 10/25
Created by phylis...at10/13/09 - 3:02 pm|14 Views |
George R Hats Off to "MEC"
Created by George Rat02/22/2006 - 6:54pm|4939 Views Blog Posted To: Life's Worthwhile Challenges I realize I'm a new member of this well-run, informative channel aimed at contemporary people of all ages who just happen to have the challenge of living with epilepsy. I'm one of the 2.5 million Americans with it, and have had it...
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Roxanne D Livin' on the Edge
Created by Roxanne Dat07/28/2007 - 6:03am|2687 Views Blog Posted To: EPILEPSY CAN BUILD YOUR STRENGTH, WISDOM, FAITH, AND HOPE I had my first at 8 yrs old. I didn't again until I was 22. I have complex partial petit mals. Right when I was going back to a new neuro doc to try new meds, I was pregnant. After I had Kristina, I tried new meds that did not help.
So,...
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danies... Epilepsy
Created by danies...at12/30/2008 - 5:03pm|2846 Views Blog Posted To: daniesbrwneyes's blog I was dignosed with epilepsy at the age of seven years old. The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread through the yrs. As Well as they think...
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Angela71 I am tired of explaining, no one person understands do you?
Created by Angela71at05/12/2009 - 11:21am|2705 Views Blog Posted To: Angela71's blog Since I was 12, I have had many different seizures. And answer many questions. It,s been 26 yrs now and some things have realy changed. It realy has me concerned. Right now my hands jerk while I type at one time I could not sighn my on name....
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alwhite er
Created by alwhiteat06/03/2009 - 7:05am|2129 Views Blog Posted To: alwhite's blog I just got back from the ER where they found that my trileptal was makeing my sodium level go down. I metabilize it so fast that the simtoms mask themselves like my siezures. It is not very common in young people so watch your sodium levels.
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sugarc... is lookin to talk to someone
Created by sugarc...at06/11/2009 - 8:58pm|1928 Views Blog Posted To: sugarcookies's blog Hi, Im hannah, i am twenty three years old. I have light brown hair and dark brown eyes. I am lookin to talk to someone. If you wanna talk let me know.
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Jensey84 |
FIGURE... PRAYING THAT SOMEONE OUT THERE THAT CAN HELP ME
Created by FIGURE...at08/07/2009 - 7:08pm|1142 Views Blog Posted To: FIGURESKATER85's blog
I WANTED TO KNOW IF ANYONE OUT THERE KNOWS ABOUT GETTING A SEZURIE ALERT DOG PLEASE LET ME KNOW LIKE A.S.A.P. THAT WOULD BE A VERY GRATEFUL THING TO ME AND A VERY VERY BIG BLESSING TOO ME SO YOU ALL KEEP IN TOUCH YOU HERE
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sunsta... the unknown
Created by sunsta...at09/17/2009 - 6:36am|1029 Views Blog Posted To: sunstarr_429's blog on labor day my older brother had a tonic- clonic seizure (his 2nd seizure). it happened in the car shortly after my family & i started to head home after a wkend in st louis. it was the 1st time i had seen a seizure (usually i'm the one having them),...
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RenaGr... Anyone Had The Wada Test?
Created by RenaGr...at10/23/2009 - 1:09pm|829 Views Blog Posted To: RenaGrl808's blog Hi, My name Is Rena. I have complex partial seizures and they are not well controlled. I've decided to have the surgery to control my seizures. Now I need to take a few tests before that happens. My neurologist will schedule the Wada Test in a few weeks. I...
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Samoa89 Sleep???
Created by Samoa89at12/10/2009 - 10:05am|983 Views Blog Posted To: Samoa89's blog
Lately, I have been having some problems sleeping...
I don't know what my problem is, but whenever I start to fall asleep, I feel like my heartbeat picks up and like I am "leaving myself". It is such a weird feeling that makes me jolt awake.
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cmh29 Please read my story and respond
Created by cmh29at01/20/2010 - 3:52am|909 Views Blog Posted To: cmh29's blog Hello. My son is 4 years old and just had his 4th seizure today. The first started last august (2009) and then he had one in nov, dec, and jan. He wakes up (all 4 times between 5-6am) gagging/coughing then becomes slowly unresponsive, staring upward...
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earthq... Earthquake's blog
Created by earthq...at02/05/2010 - 7:41pm|2787 Views Blog Posted To: earthquake78's blog
Hello everybody , Having a litl trouble getting on the chat room but if anybody wants to get ahold of me send an Email Jones.jimbob1@gmail .com
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dantheman a "NEW LIFE"
Created by danthemanat08/04/2010 - 10:09am|53 Views Blog Posted To: dantheman's blog
Ø I am a highly Epileptic that was born with Epilepsy. I had 10+ spells or Seizures per day.
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Name: Epilepsy Friends .com
Since: Apr 28, 2009
About the Group:
Epilepsy Friends is a group focused on sharing information about epilepsy to better educate and help individuals who are affected by or curious about epilepsy.
Hi, Im 27 and i have had seizures since i was 16 yrs old. Im from ont canada.
I have epilepsy since I was 9. I was on several diffirent AED's and...
I have had epilepsy since I was twelve years old. I am now a mother...
Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...
I love to crochet, I have 4 teens, A new grandbaby. I don,t go out...
My boyfriend was diagnosed with epilepsy at the age of 16. We started...
Hi There,How are you today? I hope well, I'm a person living with...
I'm a single parent of two kids, ages 11 and 15. My 15 year old daughter...
I have a 4 year old son who has had 3 complex partial seizures. I...
I was diagnosed with simple partial seizures at 31 after years of...
I am a web developer / graphic designer and photographer that began...
Im a 30 year old who has had E since I was about 3yrs old.I have Grand...
I've had various forms of epilepsy for 35 years, experiencing my first...
I am from BC Canada. Was officially diagnosed with Epilepsy in March...
I was only diagnosed with epilepsy when i was about 14, i used to...
I have epilepsy since I was 9. I was on several diffirent AED's and...
hi my names lindsay im 21 and i was diagnosed with temporal lobe epilepsy...
Phylis Feiner Johnson has been a professional direct response copywriter...
Hi, Im 27 and i have had seizures since i was 16 yrs old. Im from ont canada.
I am a student who is attending a community college going for an associates...
I STARTED HAVING PETIT MAL SEIZURES WHEN I WAS 22, NOW I AM 37. I...
My name is Aquiona Russell. I am 20 and living with epilepsy. I...
I am A Stay at home Mom tryting to deal with Menopause and Epilepsy
THANK GOD #1 AND ALSO TO MY LOVING AND CARING FAMILY. IT IS SO NICE...
Well a little bit about me. My name is Ashley, Im 19 years old and...
I am a 46 year male. I would like to meet other individuals with Epilepsy...
I'm a married logger, crab fisherman, and abalone diver in Humboldt...
Hi, my name is Hannah, i am twenty three years old. I have light brown...
started having tonic-clonic seizures (have them in my sleep or 2-3...
I have been epileptic since birth. I have been through 4 surgeries...
| Title | Posted | |
|---|---|---|
| After effects from Surgery | Sep 8, 2010 | |
| happygirl | ||
| Epilepsy and Celiac Disease | Sep 8, 2010 | |
| IloveHistory | ||
| Jobs and Seizures | Sep 8, 2010 | |
| lionandthelamb | ||
| EEG Glue | Sep 8, 2010 | |
| Buffy | ||
| "Electric" Dreams | Sep 8, 2010 | |
| karina1481 | ||
| Any body taking keprra for partiol complex and tonic clonic seizures and having success? My 17 yr. old son is now on 3500mg | Sep 8, 2010 | |
| maria08 | ||
| I can't believe this happened | Sep 8, 2010 | |
| Kathy781 | ||
| EEG questions and problems | Sep 8, 2010 | |
| greenhazel | ||
| Should people with intractable TLE just kill themselves? | Sep 8, 2010 | |
| jfoster57 | ||
| Driving: Does your doctor tell you if they report your seizures to take your licence? | Sep 8, 2010 | |
| snowwoman | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,500 | |
| epi_help | ||
| topamax and weight loss | 19,076 | |
| alexia mom | ||
| kepra | 19,007 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,970 | |
| pdl1 | ||
| How exactly do aura's feel | 13,368 | |
| WendyBendy | ||
| Sexual Side Effects | 13,235 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 11,766 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,160 | |
| spiz | ||
| electrical shock in head? | 9,563 | |
| Maggie | ||
| Weight Gain and Depakote | 8,946 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| IF YOU KNEW ME, THIS BLOG WOULD SURPRISE YOU.........NOTHING GOOD TO SAY, I THINK | Sep 8, 2010 | |
| ROCKNROLL | ||
| first post: explaining the name of my blog | Sep 8, 2010 | |
| DavidCramer | ||
| history of iphone | Sep 8, 2010 | |
| nikoyoung | ||
| Lab Rat | Sep 8, 2010 | |
| MichaelK | ||
| Buddies | Sep 8, 2010 | |
| Adz | ||
| Days are getting longer | Sep 8, 2010 | |
| manwithepilepsy | ||
| The Tuffship Crew | Sep 8, 2010 | |
| chandagunn | ||
| Why Do I Have Epilepsey when no one else in my family does? | Sep 8, 2010 | |
| Angie W | ||
| A string makes a sweater | Sep 7, 2010 | |
| cbogdewi | ||
| Nocturnal Seizures and Dreams | Sep 7, 2010 | |
| dcb | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 8,029 | |
| Butterflygrl | ||
| my partial complex seizures | 3,915 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,694 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,478 | |
| JudiS | ||
| side effects of phenobarb. | 3,101 | |
| pksmom | ||
| How can you tell if a sleep seizure happens? | 3,048 | |
| epl_controller | ||
| Feeling Sick | 3,002 | |
| JBJ1984 | ||
| Tegretol XR and ANXIETY meds | 2,843 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,769 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,620 | |
| teft | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Coping threw Life | Sep 4, 2010 | |
| Angie W | ||
| My Epilepsy Diary | Aug 26, 2010 | |
| epi_help | ||
| Controlled adult in Colorado Springs | Jul 31, 2010 | |
| marhank49 | ||
| Chicago Illinois support group and awareness | Jul 25, 2010 | |
| catfish4 | ||
| at work with side effects | Jul 24, 2010 | |
| chezallyn | ||
| epliepsy and how it effects my sex drive | Jul 18, 2010 | |
| melza | ||
| Alaskan Adults Who have Epilepsy | Jul 11, 2010 | |
| akewbc | ||
| Mskhan | Jul 10, 2010 | |
| msokhan2 | ||
| Students who have or think they have epilepsy OR Health Care Professionals | Jul 9, 2010 | |
| flames.above | ||
| Spouses of Epileptics | Jul 8, 2010 | |
| davejohn | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Lex's daily life | Sep 8, 2010 | |
| worriedmommy26 | ||
| Creating a "NEW NORMAL" for our family | Sep 8, 2010 | |
| jackrichardkelly | ||
| Aspartame caused my Simple Partial Seizures | Sep 6, 2010 | |
| kjr443 | ||
| i dont understand why my simple seizures arent controlled | Sep 5, 2010 | |
| Carrie Stroup | ||
| Spells and Auguries | Sep 5, 2010 | |
| John W. Morgan | ||
| Living with an unseen enemy within myself | Sep 4, 2010 | |
| Angie W | ||
| From Breast cancer at 32 to epilepsy what next | Sep 3, 2010 | |
| cldubsokind | ||
| Get ciphone c4 before iphone 4, sounds really worth | Sep 2, 2010 | |
| vkamobi | ||
| Epilepsy with showers and baths | Sep 1, 2010 | |
| sftbllcutie4lft | ||
| Angelia(baby girl)MY LIFE | Sep 1, 2010 | |
| angie1261 | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,332 | |
| kroiz | ||
| (TLE) seizures, insurance company denies me for health care due to epilepsy | 911 | |
| wenko | ||
| my story | 488 | |
| snoby | ||
| Always Have On Clean Underwear | 466 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 439 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 424 | |
| banffgirl | ||
| Temporal Lobe Epilepsy | 395 | |
| What My Seizures Are Like...... | 393 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 359 | |
| karalyeva | ||
| Life......... | 350 | |
| dizzygal | ||
| View all Stories | ||

