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Wed, 5/16/2012

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Epilepsy Friends .com

TOGETHER WE CAN MAKE A DIFFERENCE!
JOIN THIS GROUP to discuss many epilepsy-related topics and/or to contribute information for the main web site: http://www.epilepsyfriends.com
Epilepsy Friends is a group focused on sharing information about epilepsy to better educate and help individuals who are affected by or curious about epilepsy. Facebook @ http://www.facebook.com/group.php?gRead More

Group Content

View All Member Blogs
George R
George R
Hats Off to "MEC"
Created by George Rat02/22/2006 - 6:54pm|7894 Views
Blog Posted To: Life's Worthwhile Challenges
I realize I'm a new member of this well-run, informative channel aimed at contemporary people of all ages who just happen to have the challenge of living with epilepsy. I'm one of the 2.5 million Americans with it, and have had it...
Roxanne D
Roxanne D
Livin' on the Edge
Created by Roxanne Dat07/28/2007 - 6:03am|3968 Views
Blog Posted To: EPILEPSY CAN BUILD YOUR STRENGTH, WISDOM, FAITH, AND HOPE
I had my first at 8 yrs old. I didn't again until I was 22. I have complex partial petit mals. Right when I was going back to a new neuro doc to try new meds, I was pregnant. After I had Kristina, I tried new meds that did not help. So,...
danies...
danies...
Epilepsy
Created by danies...at12/30/2008 - 5:03pm|4079 Views
Blog Posted To: daniesbrwneyes's blog
     I was dignosed with epilepsy at the age of seven years old.   The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread  through the yrs.  As Well as  they think...
Angela71
Angela71
I am tired of explaining, no one person understands do you?
Created by Angela71at05/12/2009 - 11:21am|4098 Views
Blog Posted To: Angela71's blog
       Since I was 12, I have had many different seizures.  And answer many questions. It,s been 26 yrs now and some things have realy changed. It realy has me concerned. Right now my hands  jerk while I type at one time I could not sighn my on name....
alwhite
alwhite
er
Created by alwhiteat06/03/2009 - 7:05am|4742 Views
Blog Posted To: alwhite's blog
I just got back from the ER where they found that my trileptal was makeing my sodium level go down.  I metabilize it so fast that the simtoms mask themselves like my siezures.  It is not very common in young people so watch your sodium levels.
sugarc...
sugarc...
is lookin to talk to someone
Created by sugarc...at06/11/2009 - 8:58pm|3064 Views
Blog Posted To: sugarcookies's blog
Hi, Im hannah, i am twenty three years old. I have light brown hair and dark brown eyes. I am lookin to talk to someone. If you wanna talk let me know.
Jensey84
Jensey84
Weird huh?
Created by Jensey84at08/06/2009 - 7:01am|2194 Views
Blog Posted To: Jensey84's blog
FIGURE...
FIGURE...
PRAYING THAT SOMEONE OUT THERE THAT CAN HELP ME
Created by FIGURE...at08/07/2009 - 7:08pm|2323 Views
Blog Posted To: FIGURESKATER85's blog
          I WANTED TO KNOW IF ANYONE OUT THERE KNOWS ABOUT GETTING A SEZURIE ALERT DOG  PLEASE LET ME KNOW LIKE A.S.A.P. THAT WOULD BE A VERY GRATEFUL THING TO ME AND A VERY VERY BIG BLESSING TOO ME SO YOU ALL KEEP IN TOUCH YOU HERE
sunsta...
sunsta...
the unknown
Created by sunsta...at09/17/2009 - 6:36am|2259 Views
Blog Posted To: sunstarr_429's blog
on labor day my older brother had a tonic- clonic seizure (his 2nd seizure). it happened in the car shortly after my family & i started to head home after a wkend in st louis. it was the 1st time i had seen a seizure (usually i'm the one having them),...
RenaGr...
RenaGr...
Anyone Had The Wada Test?
Created by RenaGr...at10/23/2009 - 1:09pm|2024 Views
Blog Posted To: RenaGrl808's blog
Hi, My name Is Rena. I have complex partial seizures and they are not well controlled. I've decided to have the surgery to control my seizures. Now I need to take a few tests before that happens. My neurologist will schedule the Wada Test in a few weeks.  I...
Samoa89
Samoa89
Sleep???
Created by Samoa89at12/10/2009 - 10:05am|2101 Views
Blog Posted To: Samoa89's blog
Lately, I have been having some problems sleeping... I don't know what my problem is, but whenever I start to fall asleep, I feel like my heartbeat picks up and like I am "leaving myself".  It is such a weird feeling that makes me jolt awake. 
cmh29
cmh29
Please read my story and respond
Created by cmh29at01/20/2010 - 3:52am|2107 Views
Blog Posted To: cmh29's blog
Hello.  My son is 4 years old and just had his 4th seizure today.  The first started last august (2009) and then he had one in nov, dec, and jan.  He wakes up (all 4 times between 5-6am) gagging/coughing then becomes slowly unresponsive, staring upward...
earthq...
earthq...
Earthquake's blog
Created by earthq...at02/05/2010 - 7:41pm|4005 Views
Blog Posted To: earthquake78's blog
Hello everybody , Having a litl trouble getting on the chat room but if anybody wants to get ahold of me send  an Email     Jones.jimbob1@gmail .com  
dantheman
dantheman
a "NEW LIFE"
Created by danthemanat08/04/2010 - 10:09am|282 Views
Blog Posted To: dantheman's blog
Ø I am a highly Epileptic that was born with Epilepsy. I had 10+ spells or Seizures per day.
dashaday
dashaday
Selective Amigdalohippocampectomy
Created by dashadayat11/07/2011 - 1:19pm|538 Views
Blog Posted To: dashaday's blog
Hello,

Nicolle
Nicolle

lilyap...
lilyaphrodite

eeyore909
eeyore909

mrs al...
mrs alicia

Chrissyml
Chrissyml

My hockey team is the Vancouver Canucks. I enjoy reading and am currently...

rikki0969
rikki0969

I have had epilepsy since the age of 13 and have tried lamactal, topamax,...

dantheman
dantheman

msokhan2
msokhan2

catfish4
catfish4

danies...
daniesbrwneyes



ADJ4936
ADJ4936

I have had epilepsy since I was twelve years old. I am now a mother...

Allyson L
Allyson L

alwhite
alwhite

Amazon
Amazon

Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...

Angela71
Angela71

I love to crochet, I have 4 teens, A new grandbaby. I don,t go out...

audi2902
audi2902

babydo...
babydoll27

brandi57
brandi57

Bri_Ch...
Bri_Christine

My boyfriend was diagnosed with epilepsy at the age of 16. We started...

BrownB87
BrownB87

bunnykins
bunnykins

Hi There,How are you today? I hope well, I'm a person living with...

calueck
calueck

catfish4
catfish4

Chrissyml
Chrissyml

My hockey team is the Vancouver Canucks. I enjoy reading and am currently...

christ...
christinekenya

Cindi74
Cindi74

I'm a single parent of two kids, ages 11 and 15. My 15 year old daughter...

cmh29
cmh29

I have a 4 year old son who has had 3 complex partial seizures. I...

Cyneah
Cyneah

I was diagnosed with simple partial seizures at 31 after years of...

danies...
daniesbrwneyes

dantheman
dantheman

dashaday
dashaday

I am a web developer / graphic designer and photographer that began...

Deacon
Deacon

Donnie
Donnie

dwayne...
dwayne01262000

earthq...
earthquake78

Im a 30 year old who has had E since I was about 3yrs old.I have Grand...

eeyore909
eeyore909

Erinst...
Erinstar123

FIGURE...
FIGURESKATER85

George R
George R

I've had various forms of epilepsy for 35 years, experiencing my first...

greene...
greeneyes2609

janaei...
janaeipock

Jensey84
Jensey84

I am from BC Canada. Was officially diagnosed with Epilepsy in March...

Jessic...
Jessicadc02

Jonath...
Jonathan Woods

kaffs
kaffs

I was only diagnosed with epilepsy when i was about 14, i used to...

Koekas
Koekas

I have epilepsy since I was 9. I was on several diffirent AED's and...

lilyap...
lilyaphrodite

lizdak21
lizdak21

hi my names lindsay im 21 and i was diagnosed with temporal lobe epilepsy...

luv_ni...
luv_night_life

I started having seizures when I was 15. I had my first one when my...

michej...
michejoffre0129

millsyjr
millsyjr

mixwizard
mixwizard

mrs al...
mrs alicia

msokhan2
msokhan2

Nicolle
Nicolle

northp...
northperth

PETER
PETER

phylis...
phylisfjohnson

Phylis Feiner Johnson has been a professional direct response copywriter...

pinegal23
pinegal23

Hi, Im 27 and i have had seizures since i was 16 yrs old. Im from ont canada.

Prince...
Princess18

I am a student who is attending a community college going for an associates...

RenaGr...
RenaGrl808

rikki0969
rikki0969

I have had epilepsy since the age of 13 and have tried lamactal, topamax,...

rob41
rob41

rottie...
rottielover

Roxanne D
Roxanne D

I STARTED HAVING PETIT MAL SEIZURES WHEN I WAS 22, NOW I AM 37. I...

Samoa89
Samoa89

My name is Aquiona Russell. I am 20 and living with epilepsy. I...

shunda
shunda

shyalude
shyalude

I am A Stay at home Mom tryting to deal with Menopause and Epilepsy

sidney...
sidneygirl

THANK GOD #1 AND ALSO TO MY LOVING AND CARING FAMILY. IT IS SO NICE...

soccer101
soccer101

Spearm...
Spearman08

Well a little bit about me. My name is Ashley, Im 19 years old and...

spike65
spike65

I am a 46 year male. I would like to meet other individuals with Epilepsy...

Steven...
StevenSalo

April, 2010 I'm a married logger, crab fisherman, and abalone diver...

sugarc...
sugarcookies

Hi, my name is Hannah, i am twenty three years old. I have light brown...

sunsta...
sunstarr_429

started having tonic-clonic seizures (have them in my sleep or 2-3...

Susumarie
Susumarie

tarani...
taranicole

tnlb1819
tnlb1819

vlroy
vlroy

I have been epileptic since birth. I have been through 4 surgeries...

yevette
yevette



Title Posted
Life After Left Temporal Lobe Surgery - Desperate for Input  
vitasg
Epilepsy and School  
New2Epilepsy
lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding  
reikihealer
Lamictal and pregnancy  
bugsbunny
How Do You Cope?  
rosanna1980
Do meds exacerbate moodiness during menstrual cycle?  
scubagirl
Complex Partial Seizures-Suddenly there is no aura, no warning of any kind  
cmesmile32
Faked seizures  
dfarrell
Is this a very bad neurogist please??  
patrish
KEPPRA TOXICITY  
informedmom
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
View all Forums

Title Posted
Police officer with adult onset epilepsy  
matt b
Complex like none other  
Cristopher.Rodriguez
Teenager & Stay Positive  
SophieWinifred
HI GINA MARIE!!! I MISS YOU! SEIZURES.........AND WHAT HAPPENS AFTER THE SEIZURES......THE POSTICTAL COMSUMER  
ROCKNROLL
Hi Again  
ajmtightwrite@bis.midco.net
Some people are just complete A-holes....  
arsen77
Does epilepsy define ME  
fivelove
Lets keep it real.  
Adz
Coming out?  
fashionlove45
My story  
fashionlove45
View all Blogs

Title Page Views
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
side effects of phenobarb.  
pksmom
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
newborn seizure  
Sunny_80
View all Blogs

Title Posted
Cooper my 3 year old amazing son  
supercooper
I want to get better  
EsmeraldaAguilar
Seizures under control  
panteradee
Dizziness with topiramate/Diamox  
girl4him
pregnancy and lamictal and mysoline  
ckonstas
Cole  
MommaofMia3
seizure while sleeping  
Fireball101
Neuro says it's not epilepsy but......  
lotusbri
Nocturnal Seizures  
kristy_1985
Marijuana helps seizures?  
lanaleal77
View all Stories