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JOIN THIS GROUP to discuss many epilepsy-related topics and/or to contribute information for the main web site: http://www.epilepsyfriends.com
Epilepsy
Friends is a group focused on sharing information about epilepsy to
better educate and help individuals who are affected by or curious
about epilepsy. Facebook @ http://www.facebook.com/group.php?g
phylis... Comprehensive list of GOOD Neurologists, Epileptologists, Neurosurgeons, Pediatric Docs
Created by phylis...at10/13/09 - 11:56 am|309 Views|5 Comments |
phylis... Epilepsy Hall of Fame
Created by phylis...at9/15/09 - 7:52 am|234 Views|1 Comment Since the dawn of time, epilepsy has affected millions of people -- from beggars to kings. It’s one of the oldest conditions and also one of the most misunderstood, although legions of accomplished people have shared the stigma.
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phylis... How long have you gone without a seizure?
Created by phylis...at12/3/09 - 1:08 pm|54 Views|5 Comments
Or did you think you were seizure free? Well that was me...
I had epilepsy for 22 years. Then another 22 years rolled by without anoher seizure. Home free, right?
WRONG.
15 months ago, I had a drug related seizure that was the mother of all...
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phylis... |
msokhan2 Epilepsy get rod off without medicins
Created by msokhan2at7/10/10 - 1:22 am|2 Views Please tell me how to get rid off epilepsy without med. really iam getting bore of my life , a stree comes I definetly got fit.......I am in UAE i am Pakistani.... working here... please guide me what to do.........i little bit feeling that i have memory loss...
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sunsta... need a neurologist/epileptologist in IA
Created by sunsta...at10/29/09 - 7:26 am|13 Views|1 Comment
does anyone know of a decent neuro/epileptologist in iowa city, IA that accepts iowacare patients? i'm looking for a neuro who isn't judgemental, who listens to what u say, doesn't argue w/ u, isn't abrasive, etc. any potentially helpful info is much appreciated....
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George R Caffeine Bother You?
Created by George Rat4/30/10 - 3:03 pm|16 Views|1 Comment After having dealt with my neurological system's unique "personality" for 40 years, I can see that many things within me and around me can get it all "irritated, short of temper, fighting back." And one of those is caffeine. As much as...
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Susumarie |
Jonath... Discrimination
Created by Jonath...at5/9/09 - 7:50 pm|41 Views|4 Comments People often put all epileptics into one single category. That category
includes having a high frequency of seizures, not being able to hold a
full time job, not being able to drive, having to work in a safe
environment, and the list goes on. The bottom...
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Jonath... Epilepsy Friends .com Oprah Talk About Epilepsy .com Sites
Created by Jonath...at10/26/09 - 11:02 am|11 Views
I urge everyone to join our Facebook group if you haven't already done so. Here's the URL: http://www.facebook.com/group.php?gid=51759117066 I also urge everyone to join the Facebook group Oprah Talk About Epilepsy .com. Here's the URL: http://www.facebook.com/group.php?gid=156464861079...
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George R Hats Off to "MEC"
Created by George Rat02/22/2006 - 6:54pm|7894 Views Blog Posted To: Life's Worthwhile Challenges I realize I'm a new member of this well-run, informative channel aimed at contemporary people of all ages who just happen to have the challenge of living with epilepsy. I'm one of the 2.5 million Americans with it, and have had it...
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Roxanne D Livin' on the Edge
Created by Roxanne Dat07/28/2007 - 6:03am|3968 Views Blog Posted To: EPILEPSY CAN BUILD YOUR STRENGTH, WISDOM, FAITH, AND HOPE I had my first at 8 yrs old. I didn't again until I was 22. I have complex partial petit mals. Right when I was going back to a new neuro doc to try new meds, I was pregnant. After I had Kristina, I tried new meds that did not help.
So,...
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danies... Epilepsy
Created by danies...at12/30/2008 - 5:03pm|4079 Views Blog Posted To: daniesbrwneyes's blog I was dignosed with epilepsy at the age of seven years old. The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread through the yrs. As Well as they think...
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Angela71 I am tired of explaining, no one person understands do you?
Created by Angela71at05/12/2009 - 11:21am|4098 Views Blog Posted To: Angela71's blog Since I was 12, I have had many different seizures. And answer many questions. It,s been 26 yrs now and some things have realy changed. It realy has me concerned. Right now my hands jerk while I type at one time I could not sighn my on name....
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alwhite er
Created by alwhiteat06/03/2009 - 7:05am|4742 Views Blog Posted To: alwhite's blog I just got back from the ER where they found that my trileptal was makeing my sodium level go down. I metabilize it so fast that the simtoms mask themselves like my siezures. It is not very common in young people so watch your sodium levels.
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sugarc... is lookin to talk to someone
Created by sugarc...at06/11/2009 - 8:58pm|3064 Views Blog Posted To: sugarcookies's blog Hi, Im hannah, i am twenty three years old. I have light brown hair and dark brown eyes. I am lookin to talk to someone. If you wanna talk let me know.
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Jensey84 |
FIGURE... PRAYING THAT SOMEONE OUT THERE THAT CAN HELP ME
Created by FIGURE...at08/07/2009 - 7:08pm|2323 Views Blog Posted To: FIGURESKATER85's blog
I WANTED TO KNOW IF ANYONE OUT THERE KNOWS ABOUT GETTING A SEZURIE ALERT DOG PLEASE LET ME KNOW LIKE A.S.A.P. THAT WOULD BE A VERY GRATEFUL THING TO ME AND A VERY VERY BIG BLESSING TOO ME SO YOU ALL KEEP IN TOUCH YOU HERE
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sunsta... the unknown
Created by sunsta...at09/17/2009 - 6:36am|2259 Views Blog Posted To: sunstarr_429's blog on labor day my older brother had a tonic- clonic seizure (his 2nd seizure). it happened in the car shortly after my family & i started to head home after a wkend in st louis. it was the 1st time i had seen a seizure (usually i'm the one having them),...
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RenaGr... Anyone Had The Wada Test?
Created by RenaGr...at10/23/2009 - 1:09pm|2024 Views Blog Posted To: RenaGrl808's blog Hi, My name Is Rena. I have complex partial seizures and they are not well controlled. I've decided to have the surgery to control my seizures. Now I need to take a few tests before that happens. My neurologist will schedule the Wada Test in a few weeks. I...
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Samoa89 Sleep???
Created by Samoa89at12/10/2009 - 10:05am|2101 Views Blog Posted To: Samoa89's blog
Lately, I have been having some problems sleeping...
I don't know what my problem is, but whenever I start to fall asleep, I feel like my heartbeat picks up and like I am "leaving myself". It is such a weird feeling that makes me jolt awake.
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cmh29 Please read my story and respond
Created by cmh29at01/20/2010 - 3:52am|2107 Views Blog Posted To: cmh29's blog Hello. My son is 4 years old and just had his 4th seizure today. The first started last august (2009) and then he had one in nov, dec, and jan. He wakes up (all 4 times between 5-6am) gagging/coughing then becomes slowly unresponsive, staring upward...
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earthq... Earthquake's blog
Created by earthq...at02/05/2010 - 7:41pm|4005 Views Blog Posted To: earthquake78's blog
Hello everybody , Having a litl trouble getting on the chat room but if anybody wants to get ahold of me send an Email Jones.jimbob1@gmail .com
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dantheman a "NEW LIFE"
Created by danthemanat08/04/2010 - 10:09am|282 Views Blog Posted To: dantheman's blog
Ø I am a highly Epileptic that was born with Epilepsy. I had 10+ spells or Seizures per day.
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dashaday Selective Amigdalohippocampectomy
Created by dashadayat11/07/2011 - 1:19pm|538 Views Blog Posted To: dashaday's blog
Hello,
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My hockey team is the Vancouver Canucks. I enjoy reading and am currently...
I have had epilepsy since the age of 13 and have tried lamactal, topamax,...
I have had epilepsy since I was twelve years old. I am now a mother...
Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...
I love to crochet, I have 4 teens, A new grandbaby. I don,t go out...
My boyfriend was diagnosed with epilepsy at the age of 16. We started...
Hi There,How are you today? I hope well, I'm a person living with...
My hockey team is the Vancouver Canucks. I enjoy reading and am currently...
I'm a single parent of two kids, ages 11 and 15. My 15 year old daughter...
I have a 4 year old son who has had 3 complex partial seizures. I...
I was diagnosed with simple partial seizures at 31 after years of...
I am a web developer / graphic designer and photographer that began...
Im a 30 year old who has had E since I was about 3yrs old.I have Grand...
I've had various forms of epilepsy for 35 years, experiencing my first...
I am from BC Canada. Was officially diagnosed with Epilepsy in March...
I was only diagnosed with epilepsy when i was about 14, i used to...
I have epilepsy since I was 9. I was on several diffirent AED's and...
hi my names lindsay im 21 and i was diagnosed with temporal lobe epilepsy...
I started having seizures when I was 15. I had my first one when my...
Phylis Feiner Johnson has been a professional direct response copywriter...
Hi, Im 27 and i have had seizures since i was 16 yrs old. Im from ont canada.
I am a student who is attending a community college going for an associates...
I have had epilepsy since the age of 13 and have tried lamactal, topamax,...
I STARTED HAVING PETIT MAL SEIZURES WHEN I WAS 22, NOW I AM 37. I...
My name is Aquiona Russell. I am 20 and living with epilepsy. I...
I am A Stay at home Mom tryting to deal with Menopause and Epilepsy
THANK GOD #1 AND ALSO TO MY LOVING AND CARING FAMILY. IT IS SO NICE...
Well a little bit about me. My name is Ashley, Im 19 years old and...
I am a 46 year male. I would like to meet other individuals with Epilepsy...
April, 2010 I'm a married logger, crab fisherman, and abalone diver...
Hi, my name is Hannah, i am twenty three years old. I have light brown...
started having tonic-clonic seizures (have them in my sleep or 2-3...
I have been epileptic since birth. I have been through 4 surgeries...
| Title | Posted | |
|---|---|---|
| Life After Left Temporal Lobe Surgery - Desperate for Input | May 16, 2012 | |
| vitasg | ||
| Epilepsy and School | May 16, 2012 | |
| New2Epilepsy | ||
| lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding | May 16, 2012 | |
| reikihealer | ||
| Lamictal and pregnancy | May 16, 2012 | |
| bugsbunny | ||
| How Do You Cope? | May 16, 2012 | |
| rosanna1980 | ||
| Do meds exacerbate moodiness during menstrual cycle? | May 16, 2012 | |
| scubagirl | ||
| Complex Partial Seizures-Suddenly there is no aura, no warning of any kind | May 15, 2012 | |
| cmesmile32 | ||
| Faked seizures | May 15, 2012 | |
| dfarrell | ||
| Is this a very bad neurogist please?? | May 15, 2012 | |
| patrish | ||
| KEPPRA TOXICITY | May 15, 2012 | |
| informedmom | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,240 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,387 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,442 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Police officer with adult onset epilepsy | May 15, 2012 | |
| matt b | ||
| Complex like none other | May 15, 2012 | |
| Cristopher.Rodriguez | ||
| Teenager & Stay Positive | May 15, 2012 | |
| SophieWinifred | ||
| HI GINA MARIE!!! I MISS YOU! SEIZURES.........AND WHAT HAPPENS AFTER THE SEIZURES......THE POSTICTAL COMSUMER | May 15, 2012 | |
| ROCKNROLL | ||
| Hi Again | May 15, 2012 | |
| ajmtightwrite@bis.midco.net | ||
| Some people are just complete A-holes.... | May 15, 2012 | |
| arsen77 | ||
| Does epilepsy define ME | May 15, 2012 | |
| fivelove | ||
| Lets keep it real. | May 15, 2012 | |
| Adz | ||
| Coming out? | May 14, 2012 | |
| fashionlove45 | ||
| My story | May 11, 2012 | |
| fashionlove45 | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,786 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,834 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| Seizures under control | May 14, 2012 | |
| panteradee | ||
| Dizziness with topiramate/Diamox | May 14, 2012 | |
| girl4him | ||
| pregnancy and lamictal and mysoline | May 14, 2012 | |
| ckonstas | ||
| Cole | May 12, 2012 | |
| MommaofMia3 | ||
| seizure while sleeping | May 11, 2012 | |
| Fireball101 | ||
| Neuro says it's not epilepsy but...... | May 10, 2012 | |
| lotusbri | ||
| Nocturnal Seizures | May 10, 2012 | |
| kristy_1985 | ||
| Marijuana helps seizures? | May 10, 2012 | |
| lanaleal77 | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 556 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
Name: Epilepsy Friends .com
Since: Apr 28, 2009
About the Group:
Epilepsy Friends is a group focused on sharing information about epilepsy to better educate and help individuals who are affected by or curious about epilepsy.

