What kind of community support can help me?

Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone. Or you’re a parent or spouse of a person with epilepsy and you are just hearing about seizures for the first time. You feel like you’re the only one. The good news is - you're not alone! Chances are there is a community of people in your area going through the same challenges that you are.

  • Look for a support groups.
  • Ask your doctor or other health care professionals for help.
  • Look for a local Epilepsy Foundation.
  • Check with the nearest epilepsy center. Maybe they have a support group, educational sessions, or can connect you with other families.
  • Yet maybe you’re shy or not yet ready to talk in person. You found your way here and now you can talk to people online!

Wherever you are, one of the most important things to help you live with epilepsy is to find a support network - a community of people you can talk to, share the good times and the bad. Get help when you need it and give help when you can do that too.

Talking about it can help in other ways too. Each time someone with epilepsy or a family member shares their story, they are teaching others about epilepsy. One person or one fact at a time.

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