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Topic: Women With Epilepsy

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kimtwin82
kimtwin82
New - How to tell friends and people you may have a possible relationsh...
Created by kimtwin82at6/1/09 - 8:28 pm|15 Views|3 Comments
Posted To: Women With Epilepsy
I'm a 26 year old woman who started having seizures about a year and a half ago.  My issue is telling people, coworkers and men who I may start a relationship with. It's an odd topic to discuss because I feel it's like I"m telling people I"m sick...
rose0527
rose0527
New - On Keppra, Baby on the Way
Created by rose0527at2/1/08 - 4:06 pm|435 Views|53 Comments
Posted To: Women With Epilepsy
skyesmom
skyesmom
New - Keppra Questions for Pregnant Folks...
Created by skyesmomat5/1/09 - 3:20 pm|68 Views|15 Comments
Posted To: Women With Epilepsy
Hey everyone!  I'm a first timer to this site and this experience.  I am 31 and 14 weeks pregnant with my second child.  Ten years ago, when I had my first child, I had never had a seizure a day in my life.  All the sudden on a hot summer day almost 4...
crishuez
crishuez
New - Anyone have a horrifying aura with Occipital Lobe epilepsy?
Created by crishuezat6/29/09 - 11:04 am|6 Views
Posted To: Women With Epilepsy
Hello! I am new here and I really need help. My seizures start out with a tiny flashing dot in my vision that spreads to include an arc (scintillating scotoma). This sometimes disappears and I just get a migraine. However, recently I have started having...
kimber...
kimber...
New - Hormones and seizures
Created by kimber...at6/28/09 - 7:27 pm|9 Views|1 Comment
Posted To: Women With Epilepsy
Hi everyone,  I have been having a lot of seizures lately and don't know realy why.  I have been having them since I was in the eigth grade.   I am now 42.  I was just wondering if anyone had any thoughts about hormone imbalance causing seizures.  I...
suttsd2
suttsd2
New - Does anyone take Yaz or any other BC pill and it doesn't interfer...
Created by suttsd2at9/29/08 - 7:46 am|24 Views|4 Comments
Posted To: Women With Epilepsy
I'm 34 and was just dx last year with complex partial szs.  I have only had one within a year, but have auras about a week before I start my period.  I was wanting to get back on the pill, haven't taken it since the sz a year ago and was worried about...
sarah123
sarah123
New - Pregnant on Topamax
Created by sarah123at6/16/09 - 12:51 pm|10 Views|1 Comment
Posted To: Women With Epilepsy
I thought I would start a discussion on being pregnant on topamax. If any women are currently pregnant on this med please tell stories. I am now about 1 month I think. I will share all my stories for others that are wanting to get pregnant on this med and...
cathyw...
cathyw...
New - Menopause and Epilepsy
Created by cathyw...at2/9/08 - 11:12 pm|18 Views|2 Comments
Posted To: Women With Epilepsy
  Entering the menopausal stage and experiencing significant changes in seizure frequency, I wondered what others are experiencing including any treatments that may help you with better seizure control.  Thanks so much. 
libann
libann
New - Menopause and seizures
Created by libannat6/28/05 - 8:13 am|1708 Views|34 Comments
Posted To: Women With Epilepsy
Hello to all,Just wanted to ask if anyone if going thru Menopause and have sieuzres.  Recently I had 2-gand mals, which I have not had for a long time.  This weekend I had...
acmourits
acmourits
New - Does the world spin everyday and you feel like you are constantly...
Created by acmouritsat6/25/09 - 12:38 am|22 Views|2 Comments
Posted To: Women With Epilepsy
 I have just been diagnosed with complex partial seizures. I was wandering if anyone else has the same feeling everyday – me seem to clock on at 11am to 4pm. I feel my head and body is constantly moving like a jack in the box. I find it hard to focus...
Amber
Amber
New - Worried about Keppra and pregnancy
Created by Amberat8/10/06 - 11:58 pm|680 Views|7 Comments
Posted To: Women With Epilepsy
I'm new here, My husband & I are wanting to to try for baby number 2 With our first child I was on Epilim and lamictal and everything turned out fine. Though now I'm on Keppra 1000mg and Lamictal 500mg per day and I have complex partial...
chloech
chloech
New - seizures during pregnancy any side effect?
Created by chloechat5/12/09 - 5:04 am|33 Views|7 Comments
Posted To: Women With Epilepsy
Hi,
kmworden
kmworden
New - Switching from Keppra XR to Zonergan- tossing& turning
Created by kmwordenat6/10/09 - 7:48 am|7 Views|1 Comment
Posted To: Women With Epilepsy
I have been on Keppra and then Keppra XR for a little over a year.  Seizures started to get progressively worse post-pregnancy so I am switching to Zonegran.  I also take Klonopin which seemed to be helpful in working with the Keppra to manage my seizures. ...
KerriB
KerriB
New - Can seizures be caused by birth control?
Created by KerriBat2/22/08 - 2:02 pm|154 Views|25 Comments
Posted To: Women With Epilepsy
Now, I know some of you may think this is strange, but here goes:
Eva16
Eva16
New - Depakote/Epilim and pregnancy - URGENT ned of advice
Created by Eva16at2/1/09 - 10:59 am|26 Views|5 Comments
Posted To: Women With Epilepsy
Hi,
rosegirl
rosegirl
New - sex drive
Created by rosegirlat10/9/06 - 11:15 pm|4949 Views|54 Comments
Posted To: Women With Epilepsy
Anyone notice that it practically disappears? I certainly have. I know that it's probably because of the meds but it would be nice to have it back. ...
KerriB
KerriB
New - Can seizures be caused by birth control?
Created by KerriBat2/22/08 - 2:02 pm|37 Views|2 Comments
Posted To: Women With Epilepsy
Now, I know some of you may think this is strange, but here goes:
Black....
Black....
New - Birth control pill and meds
Created by Black....at3/30/09 - 8:40 am|31 Views|5 Comments
Posted To: Women With Epilepsy
hi everyone!   i'm getting married in a few months so i'm considering going on "the pill" and i was wondering how would that work with my meds? i'm on both Keppra and Topamax for my epilepsy so i was wondering if anyone was on that...
canuck...
canuck...
New - Successful pregnancies on Valproic Acid
Created by canuck...at2/17/08 - 10:43 am|146 Views|18 Comments
Posted To: Women With Epilepsy
I've got a question for the women who've had pregnancies on AEDs.  A little while back, I'd posted asking about taking Lamictal during prenancy.  I just saw a new neuro, and he thinks that my seizures may be JME that's gone undiagnosed.  He's chosen to...
Black....
Black....
New - Epilepsy triggers?
Created by Black....at3/18/08 - 11:11 am|775 Views|48 Comments
Posted To: Women With Epilepsy
hi
snic
snic
New - pregnancy and breastfeeding on AEDs - HELP!!!!!!!
Created by snicat12/14/08 - 1:34 pm|30 Views|4 Comments
Posted To: Women With Epilepsy
Hi everyone!!!!  
aidadj...
aidadj...
New - Lamictal Keppra & Trileptal -pregnancy?
Created by aidadj...at6/13/09 - 6:10 pm|24 Views|3 Comments
Posted To: Women With Epilepsy
Hi, my name is Aida and I have had epilepsy for 10 years now. I do want to get pregnant (maybe sometime soon, who knows), so I am a little concerned about all of the meds I am taking. I am on a very high dose of Trileptal and Keppra, and still taking Lacmictal....
7462Nessa
7462Nessa
New - does anyone suffer from memory loss?
Created by 7462Nessaat6/2/09 - 12:48 pm|20 Views|4 Comments
Posted To: Women With Epilepsy
Hello everyone, im 18 years old Im epileptic and I have been having seizures since I was 10 years old. I think I  have had about 7 since they have started.My most recent one was about a month ago,It was A grandmal seizure and I  was home alone... It was...
7462Nessa
7462Nessa
New - does anyone suffer from memory loss?
Created by 7462Nessaat6/2/09 - 12:49 pm|129 Views|20 Comments
Posted To: Women With Epilepsy
Hello everyone, im 18 years old Im epileptic and I have been having seizures since I was 10 years old. I think I  have had about 7 since they have started.My most recent one was about a month ago,It was A grandmal seizure and I  was home alone... It was...
casper80
casper80
New - Weight Loss
Created by casper80at11/1/08 - 5:02 pm|48 Views|5 Comments
Posted To: Women With Epilepsy
  I would like to know if anyone else has had trouble lossing weight on Keppra. I have been on it for four years now and I have gained 10 kgs. I have tried everything to lose weight. I now eat a healthy diet, and walk daily min 40 minnutes. Does...
Shabbu
Shabbu
New - Switching meds for pregnancy
Created by Shabbuat6/8/09 - 1:57 pm|3 Views
Posted To: Women With Epilepsy
Hello, I've been on Dilantin since 2000. Planning on starting a family but when I discussed it with my family doctor, he advised me to also take phenobarbital before getting pregnant. Has anyone taken both dilantin and phenobarbital for pregnancy? Reading...
mcamaya
mcamaya
New - Is any one taking Lamotrigine?
Created by mcamayaat1/24/09 - 11:29 am|58 Views|6 Comments
Posted To: Women With Epilepsy
I just starting taking Lamotrigine, today! For the next 2 weeks I will stil continue to take Oxcarbazepine, with Lamotrigine.  This will be the Third time I switch meds! I am getting seziures at night, and I am very depressed. My doctor...
PeggyS
PeggyS
New - Anyone taking Keppra?
Created by PeggySat4/15/06 - 2:05 pm|4371 Views|56 Comments
Posted To: Women With Epilepsy
Hi Everyone! My name is Peggy and I've had epilepsy for about 27 years. They started when I was almost 16 and I'm 43, now. I have complex partial seizures from the temporal lobe region. My seizures basically occur right before,...
elord85
elord85
Post-intercourse seizure symptoms.
Created by elord85at6/2/09 - 8:20 pm|26 Views|1 Comment
Posted To: Women With Epilepsy
First off, let me say that I nor my girlfriend are epileptics...at least, I don't think she is.  We were in the middle of having sex, about 30-45 minutes through, and she started to curl up in a fetal position. She thought it was just really good and...
korenat
korenat
Seizure before, during or after sleep or suddenly being sleepy!
Created by korenatat10/24/08 - 10:04 am|28 Views|1 Comment
Posted To: Women With Epilepsy
Fairy319
Fairy319
JME and mother to a toddler
Created by Fairy319at5/14/09 - 2:50 pm|7 Views|1 Comment
Posted To: Women With Epilepsy
Hoping someone out there can relate.  I have been searching all over this site(it is amazing) but haven't found any info/advice on how to safeguard your children when you have a seizure.  I was diagnosed with JME(juvenile myoclonic epilepsy) in summer...
cameo2
cameo2
Clonzepam Tegretol xr and pregnancy
Created by cameo2at5/31/09 - 2:38 pm|1 View
Posted To: Women With Epilepsy
I am 20 weeks pregnant with my 3rd child.  I take .25 mg of Clonozepam a day, and also 800 mg of Tegretol xr a day.  During my first two pregnancies, I took  only 400 mg of Tegretol xr, and both babies - now teenagers - came out healthy with no problems. I...
sonjac...
sonjac...
Epilepsy, pregnancy and giving birth
Created by sonjac...at1/21/08 - 7:14 am|218 Views|16 Comments
Posted To: Women With Epilepsy
Good morning, I am very curious to hear the experience of women while they were pregnant, and during labor & birth of a child.  How did the pain, stress affect your epilepsy, and was it easy to manage seazures? I am trying to figure out how...
cobalt...
cobalt...
Want a baby, TERRIFIED of what might happen
Created by cobalt...at4/18/08 - 3:16 pm|112 Views|10 Comments
Posted To: Women With Epilepsy
I'm not sure I really belong here but this was the only website I could find that people seemed friendly and gave lots of feed back and advice.  I do not have epilepsy but I am on lamictal to treat bipolar.  My doctor has advised me to stay on it but I'm...
uberzw...
uberzw...
Catamenial Siezures
Created by uberzw...at10/13/08 - 1:34 pm|61 Views|3 Comments
Posted To: Women With Epilepsy
CCS334
CCS334
MY SEIZURES STARTED BACK AFTER I GOT OFF DEPO PERVERA
Created by CCS334at7/23/08 - 5:27 am|10 Views|1 Comment
Posted To: Women With Epilepsy
I HAVE BEEN HAVING SEIZURES OFF AND ON SCENCE I WAS ABOUT 11.IM KNOW 26 AND IVE HAD ABOUT 7 MY ENTIRE LIFE 3 OF WHICH I HAD AFTER CHILDBIRTH 2 TO3 DAYS LATER REMAINED SEIZURE FREE FOR 4 1/2 YEARS  WITHOUT MEDS UNTIL I GOT OFF DEPO PERVERA 3 MONTHS LATER...
aspepath
aspepath
pregnancy and keppra
Created by aspepathat12/27/05 - 10:01 am|5079 Views|48 Comments
Posted To: Women With Epilepsy
Hello everyone I am 28 years old, female, with JME. My doctor has switched me from Depakote to Lamictal and now Keppra. I take Keppra 1000mg a day. Is there anyone, who is on Keppra, who is pregnant or who has had a baby. There is...
sprtgrl99
sprtgrl99
Carbatrol and Perimenapause
Created by sprtgrl99at5/20/09 - 1:38 pm|2 Views
Posted To: Women With Epilepsy
  Hi everybody, It appears that I am perimenpausal (47 years old) with night sweats, hot flashes, essentially if you can think of it, I have it. I am also on Carbatrol (2000 mg.) I am controlled to a point (1 to 2 complexs and 3 simples a...
sjmack...
sjmack...
Trileptal during pregnancy?
Created by sjmack...at8/21/06 - 8:54 am|759 Views|6 Comments
Posted To: Women With Epilepsy
I am about four months pregnant with my first child. Ever since my pregnancy started, I have been having many, many more seizures (mostly in the morning). My doctor keeps increasing my dose of Trileptal. I'm up to 3000 mg a day, but...
ginnyire
ginnyire
Keppra and birth control
Created by ginnyireat5/20/09 - 6:16 am|5 Views
Posted To: Women With Epilepsy
Do I really need a backup of birth control while taking Keppra and birth control? My Dr, says I do, but reading online it seems there are some conflicting articles. It's just a pain in the butt to take birth control and use a back up.
agwalt
agwalt
Changing AEDs while pregnant?
Created by agwaltat2/26/08 - 10:21 pm|70 Views|7 Comments
Posted To: Women With Epilepsy
Hi,
bo_bos
bo_bos
Memory and Epilepsy
Created by bo_bosat5/10/05 - 1:16 pm|4581 Views|84 Comments
Posted To: Women With Epilepsy
I don't know if anyone is experiencing what I am but I can't seem to retain conversations, what I said or the other person said only moments before, my grammer is the pits and most irritating of all I seem to have  a...
queent...
queent...
Want to get pregnant while on Lamictal
Created by queent...at4/7/09 - 1:27 pm|47 Views|7 Comments
Posted To: Women With Epilepsy
debora...
debora...
keppra vs. topamax
Created by debora...at12/23/07 - 12:06 pm|398 Views|32 Comments
Posted To: Women With Epilepsy
i'm a 28 year old woman diagnosed with juvenile myoclonic epilepsy when i was 16 - and have been on depakote since. my doctor has, of course, always told me that i should let him know when i'm thinking about getting pregnant. well, it's now within a couple...
Dalia
Dalia
Topamax and losing hair?
Created by Daliaat4/22/06 - 3:36 am|1506 Views|12 Comments
Posted To: Women With Epilepsy
hello, im not new here but mostly im reading. I have a question if this happen with some of u. Im on Topamax - taking 150 mg par day and from few months i start to lost very badly my hair. Before i was on Lamictal and i never had...
janricks
janricks
zonegran during pregnancy....HELP
Created by janricksat4/8/08 - 6:10 pm|8 Views|1 Comment
Posted To: Women With Epilepsy
absenc...
absenc...
Pregnancy on Zonegran-Ok?
Created by absenc...at7/24/08 - 5:06 am|30 Views|2 Comments
Posted To: Women With Epilepsy
Hi, I am a 29 year old female getting ready to start planning a family and am currently taking 3 meds to control petit mal seizures (topamax, zonegran and klonopin) My neuro thought with the new info out about birth defects related to topomax-it...
carrieb
carrieb
Pregnancy and Zonegran
Created by carriebat11/27/07 - 9:46 am|101 Views|2 Comments
Posted To: Women With Epilepsy
Just found out 2 weeks ago that I'm pregnant with my 4th child - totally unexpected! Should be about 5-6 weeks along. With my 2nd and 3rd, I took Lamictal and both were born perfect (they're 7 and 8 right now). My doctor added Zonegran (200mg once a day)...
kay69
kay69
hormones and getting older
Created by kay69at1/10/09 - 5:56 pm|38 Views|2 Comments
Posted To: Women With Epilepsy
About 2 years ago I started getting a TC in the 24 hours before my period and worked out from my sezire diary I was sometimes getting a TC mid-cycle. I've been taking clobazam (frisium) for 4 nights every month around my period and that has stopped that...
twil
twil
Adult women with Lennox-Gaustaut
Created by twilat5/5/09 - 6:45 am|7 Views
Posted To: Women With Epilepsy

 
aspepath
aspepath
pregnancy and keppra
Created by aspepathat12/27/05 - 10:01 am|5079 Views|48 Comments
Posted To: Women With Epilepsy
Hello everyone I am 28 years old, female, with JME. My doctor has switched me from Depakote to Lamictal and now Keppra. I take Keppra 1000mg a day. Is there anyone, who is on Keppra, who is pregnant or who has had a baby. There is...
rosegirl
rosegirl
New - sex drive
Created by rosegirlat10/9/06 - 11:15 pm|4949 Views|54 Comments
Posted To: Women With Epilepsy
Anyone notice that it practically disappears? I certainly have. I know that it's probably because of the meds but it would be nice to have it back. ...
mrsray
mrsray
New Pregnancy on Topamax 200mg
Created by mrsrayat12/29/05 - 11:26 am|4835 Views|32 Comments
Posted To: Women With Epilepsy
Hi Everyone, I have had two nocturnal seizures 4/05 & 6/05 and was placed on topamax. I just found out that I am pregnant. Does anyone have any information about the risks of taking or not taking topamax or any other seizure medication...
bo_bos
bo_bos
Memory and Epilepsy
Created by bo_bosat5/10/05 - 1:16 pm|4581 Views|84 Comments
Posted To: Women With Epilepsy
I don't know if anyone is experiencing what I am but I can't seem to retain conversations, what I said or the other person said only moments before, my grammer is the pits and most irritating of all I seem to have  a...
Summer...
Summer...
Newly pregnant and taking Lamictal
Created by Summer...at11/13/06 - 1:28 pm|4574 Views|26 Comments
Posted To: Women With Epilepsy
Hey There, I'm new to this site...so HELLO....Hope everyone is doing well! I just recently..actually 2 days ago found out i was pregnant..Yay! I'm currently taking lamictal for my seizures. I love it and have found that it has...
PeggyS
PeggyS
New - Anyone taking Keppra?
Created by PeggySat4/15/06 - 2:05 pm|4371 Views|56 Comments
Posted To: Women With Epilepsy
Hi Everyone! My name is Peggy and I've had epilepsy for about 27 years. They started when I was almost 16 and I'm 43, now. I have complex partial seizures from the temporal lobe region. My seizures basically occur right before,...
KyliesMom
KyliesMom
Gran Mal Seizures
Created by KyliesMomat5/16/06 - 4:13 pm|3784 Views|15 Comments
Posted To: Women With Epilepsy
Hello its been a while since i been in here but right now i am so very fustrated. I know i take my meds like i am suppose to i may mis a dose once in a great while. Well last week wednesday i had a seizure and when i have my seizures...
bugsbunny
bugsbunny
Lamictal and pregnancy
Created by bugsbunnyat2/7/05 - 5:43 pm|3743 Views|39 Comments
Posted To: Women With Epilepsy
Hi everybodyI have juvenile myoclonic epilepsy. I am currently...
Terri N.
Terri N.
Epilepsy and Memory Loss
Created by Terri N.at10/8/06 - 4:36 pm|3555 Views|26 Comments
Posted To: Women With Epilepsy
I'm brand new to this forum. Looking it over, I don't see my major problem & don't have much info about it. I have lost alot of my memory & it supposedly is because of seizures. I have been on Neurontin since I had some blackouts,...
canuck...
canuck...
Seizures and Menstral Cycle
Created by canuck...at9/21/06 - 9:37 am|3295 Views|25 Comments
Posted To: Women With Epilepsy
I've been having seizures since I was 12. Oddly enough when I started having my period. My first 2 seizures were around my period. Also if I have ever forget to take my meds (Ooops!) around my period I would have a seizure...if I'd...
katiel
katiel
seizures with periods
Created by katielat8/16/05 - 5:08 am|3103 Views|43 Comments
Posted To: Women With Epilepsy
Had a few questions and didn't know if anyone could help.  Back in March I began taking Dexatrim diet pills.  I was fine for about 10 days and when I got my period, I had my first 2 seizures.  The first one happened...
recioev
recioev
Lamictal and birth control pills
Created by recioevat3/20/06 - 7:38 pm|2950 Views|13 Comments
Posted To: Women With Epilepsy
I was just wondering if anyone was on brith control as well as Lamictal. My neurologist said that there is no interaction, but I came across 2 studies on the interaction that stated that it decreased Lamictal concentration by almost...
starbu...
starbu...
Pseudo Seizures
Created by starbu...at1/20/06 - 10:47 am|2821 Views|15 Comments
Posted To: Women With Epilepsy
Hi there, Im hoping someone out there can help me out. I have just returned from the A & E Department of my local Hospital after being sent their by my GP due to my having 2-3 seizures a day and having a real bad headache down...
poochini
poochini
Can seizures cause orgasms?
Created by poochiniat4/26/05 - 6:02 am|2793 Views|30 Comments
Posted To: Women With Epilepsy
I know there have been discussions of orgasm or sexual activity causing seizures.  But can seizures cause orgasms?  I have on numerous occasions had a spontaneous orgasm in my sleep --without any physical stimulation. ...
momof1
momof1
Sex Drive
Created by momof1at9/13/04 - 4:47 pm|2754 Views|48 Comments
Posted To: Women With Epilepsy
Does anyone else have limited sexual interest due to their seizure disorder? I have just read that temporal lobe epilepsy can cause affect the sex drive. I personally have no interest in intercourse. I now wonder if this could...
quirky
quirky
Am I pregnant or is it the topamax? Please help!
Created by quirkyat6/15/06 - 4:41 am|2728 Views|18 Comments
Posted To: Women With Epilepsy
Hi everyone, I am on my 4th week of taking topamax, now on 100mg per day, working my way up to 200mg per day. I also take tegretol retard and keppra. I am new with the topamax but only recently I have noticed that I have not been...
Wildly...
Wildly...
Topamax and Acne
Created by Wildly...at1/5/06 - 5:40 am|2698 Views|16 Comments
Posted To: Women With Epilepsy
Has anyone experienced severe acne breakouts related to Topamax? Right now I have a huge zit (like 3 or 4 zits in one) on my chin. I was reading up and noticed that a side effect of the medication can be acne like this. What can be...
mrsray
mrsray
Breastfeeding & Medication
Created by mrsrayat6/9/06 - 2:12 pm|2363 Views|17 Comments
Posted To: Women With Epilepsy
Hello everyone. Has anyone successfully breastfed while on seizure medication? I have not received a clear answer from any of my dtrs. in regards to this issue - they give a 50/50 response. Thanks....
robin
robin
Depakote to Lamictal for Pregnancy
Created by robinat2/7/05 - 6:52 am|2201 Views|17 Comments
Posted To: Women With Epilepsy
My daughter is now 26 and will be thinking of getting pregnant next year.  She has been on Depakote for 9 years now and has been seizure free every since.  Her OB-GYN was upset about  her Neur. having her on  the...
seizur...
seizur...
Question on dating with E.
Created by seizur...at9/29/06 - 1:56 am|2159 Views|22 Comments
Posted To: Women With Epilepsy
My cousins down here have been texting me on my cell phone telling me that I have passed another birthday and I should get a boyfriend now and get married. But, here's my question.....how do you trust a man to date when you have epilepsy?...
seizur...
seizur...
Question to all seizure patients
Created by seizur...at10/10/06 - 2:56 am|2148 Views|15 Comments
Posted To: Women With Epilepsy
Ok something happened to me today at work. The strangest thing. I've mentioned many times that I'm on the new med Topamax so am not sure if this is the cause for it or not. So, here goes...I was sitting at the table giving my student...
KyliesMom
KyliesMom
Aura but didnt pass out/ i am lost ?
Created by KyliesMomat5/18/06 - 11:08 am|2055 Views|12 Comments
Posted To: Women With Epilepsy
Ok i when i have seizure there gran mal or whatever they call them now. Well i had one last week and well when i have seizures i have a aura before hand and unless you have one its hard to explain. Well last night me and fiancee...
Gina M...
Gina M...
Medications and hairloss
Created by Gina M...at11/30/06 - 12:42 pm|2011 Views|24 Comments
Posted To: Women With Epilepsy
I figured this would be the better place for this because men losing their hair, well, perhaps it's a prejudice thought but I figured women would understand me freaking out about it more. Have you ever had your meds cause hairloss?...
Donnajoy
Donnajoy
Tegretol and Weight Gain
Created by Donnajoyat6/27/06 - 6:07 am|1985 Views|13 Comments
Posted To: Women With Epilepsy
I have been on tegratol for almost 1 year now and have put on about 15 pds, mostly in my mid-section. Very upsetting as i cannot seem to do anything to get it off. Has anyone had any success losing weight while on tegratol- how did...
jmaubert
jmaubert
Need Neurologist in New York City
Created by jmaubertat1/16/07 - 12:58 pm|1962 Views|11 Comments
Posted To: Women With Epilepsy
I just moved to the New York city area and I am looking for a new neurologist. I was diagnosed with JME 11 years ago and put on Depakote and now have been seizure free since my first Grand Mal. My husband and I are planning on having...

 
lamict...
lamict...
Absence seizures or NES?
Created by lamict...at12/7/08 - 10:46 pm|6 Views
Posted To: Women With Epilepsy
I have had absences since I was an adolescent. For years it went undiagnosed and defined as a "tick". 3 years ago, at the age of 22, I had 2 grand mal seizures and was finally diagnosed as having generalized epilepsy. Still, no mention of absences....
Amazon
Amazon
14 years of epilepsy but new to everything.
Created by Amazonat3/25/09 - 7:55 am|12 Views|2 Comments
Posted To: Women With Epilepsy
Hi to everyone out there. Am new to forums. have had epilepsy for about 14 years now, though was not very active in my therapy. i.e. my sis, who is a doctor used to consult with my neurologist and i just used to take the medicines they prescribed....
amsuss
amsuss
2 questions: pills & a good gynecologist?
Created by amsussat5/8/07 - 6:50 am|266 Views
Posted To: Women With Epilepsy
Hi, So, I've got two questions. For those of you on birth control and AEDs, what are you taking? How's it working? I'm about to change my meds for the first time in over 5 years - big upheaval- and I find out not from the doctor,...
emma1985
emma1985
21 years old, pregnant and on tegretol carbamezapine
Created by emma1985at12/23/06 - 10:15 am|1197 Views|7 Comments
Posted To: Women With Epilepsy
hi, my name is emma, i am 21 years old and have had 2 grand mal epileptic seizures at the age of 12, and 1 at the age of 13. i got put on EPILIM which made me gain stones of weight so go changed to carbamezapine at the age of 15. A...
meliss...
meliss...
2nd pregnancy while on tegretol
Created by meliss...at7/10/08 - 8:44 pm|62 Views|6 Comments
Posted To: Women With Epilepsy
I have a new 6 month old little girl and I just found out that I am pregnant again.  This pregnancy was not planned like my little girl was.  I was terrified thoughout my first pregnancy because of being on Tegretol and all the problems it could cause. ...
KyliesMom
KyliesMom
3 Pregnancys 2 miscarriages/progesterone shots with last pregnanc...
Created by KyliesMomat4/17/06 - 6:36 pm|900 Views|2 Comments
Posted To: Women With Epilepsy
Ok this is how it is lol i am 22 years old i had 3 pregnancys 2 were miscarriages the 3 one i had progesterone shots and developed epilepsy my daughter is now 2 years old i no longer took the shots after 3 months of my pregnancy and...
barb
barb
37 yr old Pregnancy with JME
Created by barbat3/11/05 - 2:02 pm|959 Views|3 Comments
Posted To: Women With Epilepsy
I'm posting this in the hope that it will help someone else on the site.My husband and I waited to have a family mainly concerned about side effects from several of the AEDs that I've been on.  I've been on 200mg/daily...
Shelti...
Shelti...
39 Pregnant and on Lamictal
Created by Shelti...at7/8/07 - 4:15 pm|428 Views|2 Comments
Posted To: Women With Epilepsy
I am a new member to this website and my first posting. This actually is my 2nd pregnancy (1st was a miscarriage). I am 4 months and I am scared to death. I switched in 2005 from Depakote to Lamictal. It took several months to get...
morganj_k
morganj_k
6 Weeks til delivery
Created by morganj_kat6/26/07 - 1:38 pm|205 Views
Posted To: Women With Epilepsy
Hello, I am brand new to this site and glad that I found it. I will be having my little boy in 6 weeks and scared to death about breastfeeding...until today. While I was looking through the blogs on this site there was one from an...
shakygrrl
shakygrrl
A mom-to-be here, worried about Grand Mal sz.
Created by shakygrrlat12/30/06 - 4:55 pm|1353 Views|11 Comments
Posted To: Women With Epilepsy
Hi all, I'm also a new member. Great board. A brief snapshot of me: We're adopting a baby girl in the next couple of months. The wait has been over 2 years, and I cannot wait to be a Mom. After briefly considering bio children,...
Xianni...
Xianni...
A WADA test
Created by Xianni...at5/18/06 - 5:37 am|682 Views|5 Comments
Posted To: Women With Epilepsy
I recently had to have a WADA test and found it VERY painful but I'm still having some twinges down my leg. Has anyone ever had this test? How long do the twinges and occassional numbness last?...
stacey...
stacey...
A Woman in Control: Author Stacey Chillemi gives others with epil...
Created by stacey...at7/5/06 - 7:16 am|343 Views
Posted To: Women With Epilepsy
A Woman in Control: Author Stacey Chillemi gives others with epilepsy area A WOMAN IN CONTROL: Author Stacey Chillemi gives others with epilepsy a reason to stay strong For Manalapan author Stacey Chillemi, the first moment of clarity arrived in college....
Angie6380
Angie6380
Absence Seizures
Created by Angie6380at5/23/08 - 6:46 am|73 Views|3 Comments
Posted To: Women With Epilepsy
Hello Everyone,
sgritchie
sgritchie
Absence Seizures (Generalised)
Created by sgritchieat8/27/06 - 6:37 pm|1102 Views|7 Comments
Posted To: Women With Epilepsy
Hi, I'd like to know if anyone suffers from Absence Seizures (Generalised) e.g. Petit Mal and Grand Mal, either from early childhood through to adulthood and whether you have found success or seizure control with any one drug or...
Keitilen
Keitilen
Accusations of Suicide
Created by Keitilenat3/7/07 - 6:57 am|853 Views|2 Comments
Posted To: Women With Epilepsy
Hello. My name is Kaitlin and I am 17 years old. I was diagnosed with epilepsy in the fall of 2006 and was put on Keppra. Keppra made me sick so I stopped taking it without telling my Mother -- bad idea, I know. One night I went...
wteahcg
wteahcg
Acute Repetitive Seizures/ Cluster Seizures
Created by wteahcgat10/31/08 - 9:56 am|3 Views
Posted To: Women With Epilepsy
If you're in the Los Angeles area and suffer from acute repetitive seizures, or is a caregiver for someone with acute repetitive seizures, you should check out this opportunity (www.epilepsyresearch.net). Healthcare Communications Group is reaching out to...
twil
twil
Adult women with Lennox-Gaustaut
Created by twilat5/5/09 - 6:45 am|7 Views
Posted To: Women With Epilepsy
Curlca...
Curlca...
Advice on pregnancy/delivery; vaginal vs. c-section births
Created by Curlca...at7/13/06 - 12:27 pm|804 Views|10 Comments
Posted To: Women With Epilepsy
All, I am a 39 y.o. woman; I've had complex partial seizures since I was about 3, with very occasional grand mals throughout the years. I take 750 mg of Lamictal and 1000 mg of Keppra per day. I am currently about 12 1/2 weeks...
Kylien...
Kylien...
Agh i hate being epileptic and these dam seizures! Oh and i had m...
Created by Kylien...at7/24/07 - 6:32 am|391 Views|4 Comments
Posted To: Women With Epilepsy
Ok well first i should say i got a new handle i was kyliesmom so some of you may know me. Well i had my other baby girl her name is Abbigail and she is 7 weeks old i had her a mont early, i had her on june 7th and nothing was wrong...
Greenw...
Greenw...
Ahem! Shooting Silvery Spots - Turned to shooting headaches
Created by Greenw...at6/3/08 - 3:45 am|36 Views|4 Comments
Posted To: Women With Epilepsy
16th June: Now I'm getting terrible headaches. SHort shooting pain that totally stops all thought and all actions...it happened 4 times over 3 weeks.
fzMousie
fzMousie
Alesse and seizures
Created by fzMousieat4/26/06 - 11:27 am|416 Views
Posted To: Women With Epilepsy
Has anyone used Alesse? I am not on seizures meds, just antidepressants at the moment. I refuse to take any more medication until they start running tests to begin ruling out other possibilities. The doctor just slapped me...
grifgr...
grifgr...
Alone with kids and had a seizure...
Created by grifgr...at4/24/06 - 3:19 pm|745 Views|5 Comments
Posted To: Women With Epilepsy
Hi everyone, I'm new to this forum and thought it might be time for me to find someone to talk to who can understand how I'm feeling. I'm a 36 yr old sahm of a 6 yr old girl and 8 yr old boy. I've been taking Dilantin since I was...
LucaKe...
LucaKe...
Am I having a seizure while I sleep?
Created by LucaKe...at2/2/09 - 2:01 pm|19 Views|2 Comments
Posted To: Women With Epilepsy
Hello.   I have not been diagnosed with any form of epilepsy, but recently I have started to notice some odd things while I sleep.  
quirky
quirky
Am I pregnant or is it the topamax? Please help!
Created by quirkyat6/15/06 - 4:41 am|2728 Views|18 Comments
Posted To: Women With Epilepsy
Hi everyone, I am on my 4th week of taking topamax, now on 100mg per day, working my way up to 200mg per day. I also take tegretol retard and keppra. I am new with the topamax but only recently I have noticed that I have not been...
emma_nz
emma_nz
Amount of folic acid to take before conceiving??? (and during pre...
Created by emma_nzat6/6/07 - 7:42 pm|371 Views|3 Comments
Posted To: Women With Epilepsy
Hi everyone, My name is Emma & I'm new to this forum (so glad I found it). Anyway I had a baby girl last October - after being seizure free since 1997, however in about April I began waking up having bitten my tongue really badly,...