My boyfriend and I have recently been talking about getting married and having a child. Since I have epilepsy I simply cannot have an unplanned pregnancy if I want my baby to be healthy. I know the risks of birth defects are higher in women with epilepsy....
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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Women With Epilepsy
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 annege... New - Chances of our future children having epilepsy? I have epilepsy a...
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 gardenia |
seokizaki New - 3rd Trimester Pregnant and Epileptic.
I have just started my 3rd trimester of pregnancy and would like to share my blog with other women who have epilepsy and are pregnant, or are interested in becoming a parent. Hopefully my experiences can help those of you who struggled with this decision...
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 mrsray New - New Pregnancy on Topamax 200mg
Hi Everyone,
I have had two nocturnal seizures 4/05 & 6/05 and was placed on topamax. I just found out that I am pregnant. Does anyone have any information about the risks of taking or not taking topamax or any other seizure medication...
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adritu... New - should I switch from topamax before getting pregnant?
Hi everyone,
this is my first post-- I'd really appreciate whatever feedback you can give me. I had an EEG the other day in hopes of getting off AEDs all together, but no dice, still spikes and my neurologist still said I should stay on.
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annege... New - Chances of our future children having epilepsy? I have epilepsy a...
My boyfriend and I have recently been talking about getting married and having a child. Since I have epilepsy I simply cannot have an unplanned pregnancy if I want my baby to be healthy. I know the risks of birth defects are higher in women with epilepsy....
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 butter... New - WORK AND EPIPLEPSY
Hi ya guys,
I had about 10 or more auras today @ work... I have work tomro, do u think i should go in or not ?
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butter... New - WORK AND EPIPLEPSY
Hi ya guys,
I had about 10 or more auras today @ work... I have work tomro, do u think i should go in or not ?
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butter... New - WORK AND EPIPLEPSY
Hi ya guys,
I had about 10 or more auras today @ work... I have work tomro, do u think i should go in or not ?
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gardenia New - Me,Myself and I.
Hi there,
I've been taking it one day at a time. I can't explain in my own words but this poem can.
"Always be yourself, express yourself, have faith in yourself, do not go out and look for a successful
personality and duplicate it." ...
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 Terri N. New - Epilepsy and Memory Loss
I'm brand new to this forum. Looking it over, I don't see my major problem & don't have much info about it. I have lost alot of my memory & it supposedly is because of seizures. I have been on Neurontin since I had some blackouts,...
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sierra12 New - Cavernous Malformation&Pregnancy
Hi I'm new to this,just hoping to find some clarity and not be worried. I am 10weeks pregnant and just switched medication from Topamax to Trileptal. Its working but I am worried i'll pass my seizures to my little one. I get seizures because of a cavernous...
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 monjanse New - hallusinating by seeing things, only in about 3-4 sec.
is this seisures? i have epileptic activity in my brain.
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quarky10 New - Strained Marriage due to side effects of meds
I really need some help. I have had seizures for 24 yrs now. I have parital complex seizures that are getting worse every day. I am currently on 6 differnt medications.
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butter... New - EPILEPSY @ WORK
hi guys I had 2 big aures @ work tonight it felt so real I thought it was a seizure..... I was secordbut I had ppl around me. What do I do ifi ever have a fit?
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krc90 New - Nervous and Scared about Epilepsy
Hello..
I am writing to you all today because I am very nervous about something. It may seem funny, or stupid, or crazy, I don't know. But I feel like I can't ever find an answer that will ease my mind.
I am a Canadian 19 year-old female, in a competitive...
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 alexis00 New - Anyone pregnant and on a high dose of Lamictal - over 900mg?
I am 31 years old and 4 and half months along and taking 900 mg of Lamictal once in the morning. When I first found out I was pregnant I was on 800 mg of Lamictal XR and 150mg of Effexor. I dropped the Effexor cold-turkey the minute I found out (only a month...
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butter... |
 Rose2 New - sleep jerk
My mother had a second stroke a week ago along with epilepsy. She is 77 years old. I am giving her medications. My question is when she sleeps her arms jerks like she is dreaming or something. Is this normal?
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gardenia New - Me,Myself and I.
Hi there,
I'm not much into talking right now! I was in the hospital last night to check about my heart end up having grand mals/status and the doctors gave me a high dose of Adavian and Lorazapam. Because of missed meds and no sleep I'm still out of...
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 Black.... |
butter... New - EPLIPESY AND PREGNACEY
Hi guys
I had a baby 11 years go this Jan and I was a lot younger then, my worrries are if I have another baby how do I cope with my epilpesy when i'm carrying again? ANY ADVICE PEOPLE........
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 admin |
basima So hard be smart always alone...:-(
Hi my name is Nigor, I am 29 years old... I live with epilepsy during 10 years... I have two children, daughter and son... I work as operator of call center in mobile company... More than 3 years ago farther of my children leave us and he live far from us......
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gardenia Me,Myself and I.
Hi there,
I've been not myself at all! I miscarried my unborn child of six months and I still need more time to grieve it's been hard! I won't chat too much because I'm still emotional it happened two weeks ago. I removed the second IUD that I didn't...
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basima So hard be smart always alone...:-(
Hi my name is Nigor, I am 29 years old... I live with epilepsy during 10 years... I have two children, daughter and son... I work as operator of call center in mobile company... More than 3 years ago farther of my children leave us and he live far from us......
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butter... EPLIPESY AND PREGNACEY
Hi guys
I had a baby 11 years go this Jan and I was a lot younger then, my worrries are if I have another baby how do I cope with my epilpesy when i'm carrying again? ANY ADVICE PEOPLE........
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KerriB Can seizures be caused by birth control?
Now, I know some of you may think this is strange, but here goes:
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Shakey... Hysterectomy reduce seizures??
Good morning ladies...
I like, many of you, have catamenial epilepsy. My seizures are completely controlled except for 1-7 days before I start my period. I have been on several different meds and several different combonations of meds for several...
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ellesm... Is my epilepsy back?
Hello....my name is Erika I was diagnosed with epilepsy at a young age...around 7 maybe. I had the type of seizures where I'd daydream or kind of be off for some seconds to a minute or so then I'd come to. The older I got the more they started to go away....
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Lukes_... Catamenial epilepsy and perimenopause - will they stop once this ...
I have just found this site which has been very helpful. My first seizure happened in mid-august. the first few included some serious sleepwalking episodes, totally freaking out my whole family; those seemed to ease off to just small convulsions until...
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rose1883 Zonegran and Pregnancy?
Hi Everyone, I'm new and am hoping someone else is in the same boat that I'm in. I was diagnosed with JME at 21 after having 6 months of jerks and then finally a seizure. I had approx 6 more while they were trying to figure out my meds and after lots of...
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 Lizbeth lamictal & estrogen levels
I have been on estrogen for 6+ years now because I was having hot flashes, night sweats, etc... and my blood level showed a very low level of estrogen. (I have PCOS.) Now that I have started lamictal, it seems those old symptoms are...
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chadfran |
butter... DO YOU UNDERSTAND ME, OR I AM I ALONE?
Hi ya I hate it, I feel am alone when it comes down to my epilepsy... Can you help?
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butter... epilepsy review
Hi ya guys,
Have you ever had an review of epilepsy before? I am having my one next year
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butter... epilepsy review
Hi ya guys,
Have you ever had an review of epilepsy before? I am having my one next year
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butter... epilepsy review
Hi ya guys,
Have you ever had an review of epilepsy before? I am having my one next year
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butter... epilepsy review
Hi ya guys,
Have you ever had an review of epilepsy before? I am having my one next year
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julesm... Tricky birth control problem
Since 2003 I've been on a combination of Lamictal (currently 400 mg/day) and Ortho Cyclen (for both BC and as treatment for debilitating endometriosis). Last time I went to Planned Parenthood to pick up a new pack of pills they told me that my Blood Pressure...
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gardenia |
Azari Weird aura and odd things.
Hey guys,
On Friday I had a seizure after being seizure-free for three years. However, the day before my seizure things...weren't quite right. It's rather odd to try to describe it, but things were off, you know? I was afraid to open my door in the...
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rjgibb... Allergic to Lamictal- what else can I take during pregnancy?
I just started Lamictal in order to prepare for pregnancy. I have been taking phenobarbital for 30 years (since I was 12). After two weeks of increasing the dosage (to eventually ween off the pheno) I come to find out I am allergic. I am 42, never-before pregnant....
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megsec... zonegran and pregnancy
Has anyone taken zonegran while pregnant? I am on zonegran and keppra and my dr assures me they are fine, but I would like to hear it from a woman who was pregnant and taking it. I am on 400 mg a day and it's paired with Keppra, 2000mg a day. Thanks!
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maedlam 16 Weeks Pregnant
In October of 2005, at age 25, I had my first seizures. My MO is to have a grand mal, pass out, wake up and have another. This happened in October and then again in November. They seemed to align with my menstrual cycles, so there was a hormonal component....
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gardenia Me, Myself, and I.
Hi there,
"Faced with what is right, to leave it undone shows a lack of courage." Confucius
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sjduncan catamenial epilepsy
Hi ladies!! Okay, so this is my first posting. I just joined, so hopefully I am doing this right. I can be somewhat computer illiterate. Ha! So this is my dilemma. Bare with me.
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megsec... Keppra and Zonisamide in 4th pregnancy
Hi, I am wondering if anyone has ever taken zonisamide and keppra in pregnancy?
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Joyful... Falling down and clumsy
I take Lamictal in addition to Keppra and have for the last three to
four years. I've had a very minimal amount of seizures in that time,
about one or two a year. Since then, I have been prone to clumsiness.
This is something that I had discussed...
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minnym Stroke or seizure?
I was recently admitted to the ER for what seemed like a stroke or a really weird seizure. I usually DO NOT UNDER ANY CIRCUMSTANCE go to the doctor for my seizures, as basically all they can do is shoot me full of some adivan if I get there in time. So since...
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 aspepath pregnancy and keppra
Hello everyone
I am 28 years old, female, with JME. My doctor has switched me from Depakote to Lamictal and now Keppra. I take Keppra 1000mg a day. Is there anyone, who is on Keppra, who is pregnant or who has had a baby. There is...
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 rosegirl sex drive
Anyone notice that it practically disappears? I certainly have. I know that it's probably because of the meds but it would be nice to have it back. ...
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mrsray New - New Pregnancy on Topamax 200mg
Hi Everyone,
I have had two nocturnal seizures 4/05 & 6/05 and was placed on topamax. I just found out that I am pregnant. Does anyone have any information about the risks of taking or not taking topamax or any other seizure medication...
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bo_bos Memory and Epilepsy
I don't know if anyone is experiencing what I am but I can't seem to retain conversations, what I said or the other person said only moments before, my grammer is the pits and most irritating of all I seem to have a...
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 Summer... Newly pregnant and taking Lamictal
Hey There,
I'm new to this site...so HELLO....Hope everyone is doing well! I just recently..actually 2 days ago found out i was pregnant..Yay! I'm currently taking lamictal for my seizures. I love it and have found that it has...
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 PeggyS Anyone taking Keppra?
Hi Everyone!
My name is Peggy and I've had epilepsy for about 27 years. They started when I was almost 16 and I'm 43, now. I have complex partial seizures from the temporal lobe region. My seizures basically occur right before,...
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 KyliesMom Gran Mal Seizures
Hello its been a while since i been in here but right now i am so very fustrated. I know i take my meds like i am suppose to i may mis a dose once in a great while. Well last week wednesday i had a seizure and when i have my seizures...
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 bugsbunny |
Terri N. New - Epilepsy and Memory Loss
I'm brand new to this forum. Looking it over, I don't see my major problem & don't have much info about it. I have lost alot of my memory & it supposedly is because of seizures. I have been on Neurontin since I had some blackouts,...
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 canuck... Seizures and Menstral Cycle
I've been having seizures since I was 12. Oddly enough when I started having my period. My first 2 seizures were around my period. Also if I have ever forget to take my meds (Ooops!) around my period I would have a seizure...if I'd...
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 katiel seizures with periods
Had a few questions and didn't know if anyone could help. Back in March I began taking Dexatrim diet pills. I was fine for about 10 days and when I got my period, I had my first 2 seizures. The first one happened...
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 recioev Lamictal and birth control pills
I was just wondering if anyone was on brith control as well as Lamictal. My neurologist said that there is no interaction, but I came across 2 studies on the interaction that stated that it decreased Lamictal concentration by almost...
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 starbu... Pseudo Seizures
Hi there,
Im hoping someone out there can help me out.
I have just returned from the A & E Department of my local Hospital after being sent their by my GP due to my having 2-3 seizures a day and having a real bad headache down...
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 poochini Can seizures cause orgasms?
I know there have been discussions of orgasm or sexual activity causing seizures. But can seizures cause orgasms? I have on numerous occasions had a spontaneous orgasm in my sleep --without any physical stimulation. ...
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 momof1 Sex Drive
Does anyone else have limited sexual interest due to their seizure disorder? I have just read that temporal lobe epilepsy can cause affect the sex drive. I personally have no interest in intercourse. I now wonder if this could...
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 Wildly... Topamax and Acne
Has anyone experienced severe acne breakouts related to Topamax? Right now I have a huge zit (like 3 or 4 zits in one) on my chin. I was reading up and noticed that a side effect of the medication can be acne like this. What can be...
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 quirky Am I pregnant or is it the topamax? Please help!
Hi everyone,
I am on my 4th week of taking topamax, now on 100mg per day, working my way up to 200mg per day. I also take tegretol retard and keppra. I am new with the topamax but only recently I have noticed that I have not been...
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mrsray Breastfeeding & Medication
Hello everyone.
Has anyone successfully breastfed while on seizure medication? I have not received a clear answer from any of my dtrs. in regards to this issue - they give a 50/50 response.
Thanks....
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 robin Depakote to Lamictal for Pregnancy
My daughter is now 26 and will be thinking of getting pregnant next year. She has been on Depakote for 9 years now and has been seizure free every since. Her OB-GYN was upset about her Neur. having her on the...
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seizur... Question on dating with E.
My cousins down here have been texting me on my cell phone telling me that I have passed another birthday and I should get a boyfriend now and get married. But, here's my question.....how do you trust a man to date when you have epilepsy?...
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seizur... Question to all seizure patients
Ok something happened to me today at work. The strangest thing. I've mentioned many times that I'm on the new med Topamax so am not sure if this is the cause for it or not. So, here goes...I was sitting at the table giving my student...
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KyliesMom Aura but didnt pass out/ i am lost ?
Ok i when i have seizure there gran mal or whatever they call them now. Well i had one last week and well when i have seizures i have a aura before hand and unless you have one its hard to explain. Well last night me and fiancee...
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 Gina M... Medications and hairloss
I figured this would be the better place for this because men losing their hair, well, perhaps it's a prejudice thought but I figured women would understand me freaking out about it more.
Have you ever had your meds cause hairloss?...
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 Donnajoy Tegretol and Weight Gain
I have been on tegratol for almost 1 year now and have put on about 15 pds, mostly in my mid-section. Very upsetting as i cannot seem to do anything to get it off. Has anyone had any success losing weight while on tegratol- how did...
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jmaubert Need Neurologist in New York City
I just moved to the New York city area and I am looking for a new neurologist. I was diagnosed with JME 11 years ago and put on Depakote and now have been seizure free since my first Grand Mal. My husband and I are planning on having...
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lamict... Absence seizures or NES?
I have had absences since I was an adolescent. For years it went undiagnosed and defined as a "tick". 3 years ago, at the age of 22, I had 2 grand mal seizures and was finally diagnosed as having generalized epilepsy. Still, no mention of absences....
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Kasifaith 10 years later???
Hey.. Ok heres a bit of backstory.. I had my first seizure when I was 4 years old.. my last (until recently) was in 1999.... they started as petit mal when I was 4... and the last put me into a coma for a little over a week, I was 19... then, nothing... I...
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Amazon 14 years of epilepsy but new to everything.
Hi to everyone out there.
Am new to forums. have had epilepsy for about 14 years now, though was not very active in my therapy. i.e. my sis, who is a doctor used to consult with my neurologist and i just used to take the medicines they prescribed....
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maedlam 16 Weeks Pregnant
In October of 2005, at age 25, I had my first seizures. My MO is to have a grand mal, pass out, wake up and have another. This happened in October and then again in November. They seemed to align with my menstrual cycles, so there was a hormonal component....
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 amsuss 2 questions: pills & a good gynecologist?
Hi,
So, I've got two questions. For those of you on birth control and AEDs, what are you taking? How's it working? I'm about to change my meds for the first time in over 5 years - big upheaval- and I find out not from the doctor,...
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 emma1985 21 years old, pregnant and on tegretol carbamezapine
hi, my name is emma, i am 21 years old and have had 2 grand mal epileptic seizures at the age of 12, and 1 at the age of 13. i got put on EPILIM which made me gain stones of weight so go changed to carbamezapine at the age of 15.
A...
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anknee 22 yr old daughter is pregnant
Hi,
My daughter and boyfriend just informed us yesterday that she is pregnant. I am very concerned for a variety of reasons, most of all the drugs she takes for epilepsy and the effect they might have on the unborn child (carbatrol and topomax). I am...
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meliss... 2nd pregnancy while on tegretol
I have a new 6 month old little girl and I just found out that I am pregnant again. This pregnancy was not planned like my little girl was. I was terrified thoughout my first pregnancy because of being on Tegretol and all the problems it could cause. ...
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KyliesMom 3 Pregnancys 2 miscarriages/progesterone shots with last pregnanc...
Ok this is how it is lol i am 22 years old i had 3 pregnancys 2 were miscarriages the 3 one i had progesterone shots and developed epilepsy my daughter is now 2 years old i no longer took the shots after 3 months of my pregnancy and...
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barb 37 yr old Pregnancy with JME
I'm posting this in the hope that it will help someone else on the site.My husband and I waited to have a family mainly concerned about side effects from several of the AEDs that I've been on. I've been on 200mg/daily...
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 Shelti... 39 Pregnant and on Lamictal
I am a new member to this website and my first posting. This actually is my 2nd pregnancy (1st was a miscarriage). I am 4 months and I am scared to death. I switched in 2005 from Depakote to Lamictal. It took several months to get...
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seokizaki New - 3rd Trimester Pregnant and Epileptic.
I have just started my 3rd trimester of pregnancy and would like to share my blog with other women who have epilepsy and are pregnant, or are interested in becoming a parent. Hopefully my experiences can help those of you who struggled with this decision...
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bsktse... 55 years old and recently diagnosed with epilepsy???? Never have...
Hi, My name is Ann Marie, I'm 55 years old. Last year I started having weird deja vu episodes that progressed to having strange smell and tastes that I could never identify. This happened about 12 times with full awareness. Truthfully, it felt like someone,...
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 morganj_k 6 Weeks til delivery
Hello,
I am brand new to this site and glad that I found it. I will be having my little boy in 6 weeks and scared to death about breastfeeding...until today. While I was looking through the blogs on this site there was one from an...
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shakygrrl A mom-to-be here, worried about Grand Mal sz.
Hi all, I'm also a new member. Great board.
A brief snapshot of me: We're adopting a baby girl in the next couple of months. The wait has been over 2 years, and I cannot wait to be a Mom. After briefly considering bio children,...
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 Xianni... A WADA test
I recently had to have a WADA test and found it VERY painful but I'm still having some twinges down my leg. Has anyone ever had this test? How long do the twinges and occassional numbness last?...
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 stacey... A Woman in Control: Author Stacey Chillemi gives others with epil...
A Woman in Control: Author Stacey Chillemi gives others with epilepsy area A WOMAN IN CONTROL: Author Stacey Chillemi gives others with epilepsy a reason to stay strong
For Manalapan author Stacey Chillemi, the first moment of clarity arrived in college....
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Angie6380 |
 sgritchie Absence Seizures (Generalised)
Hi,
I'd like to know if anyone suffers from Absence Seizures (Generalised) e.g. Petit Mal and Grand Mal, either from early childhood through to adulthood and whether you have found success or seizure control with any one drug or...
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epilep... absent seizures affecting memory
im 17-yeas-old. my memory had become the biggest problem in the world. I cannot function in school, and it has gotten extremely harder for me within the past couple years. not even in school, but in ordinary day events. my friends make fun of me, and nobody...
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 Keitilen Accusations of Suicide
Hello. My name is Kaitlin and I am 17 years old. I was diagnosed with epilepsy in the fall of 2006 and was put on Keppra. Keppra made me sick so I stopped taking it without telling my Mother -- bad idea, I know. One night I went...
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wteahcg Acute Repetitive Seizures/ Cluster Seizures
If you're in the Los Angeles area and suffer from acute repetitive seizures, or is a caregiver for someone with acute repetitive seizures, you should check out this opportunity (www.epilepsyresearch.net). Healthcare Communications Group is reaching out to...
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twil |
Curlca... Advice on pregnancy/delivery; vaginal vs. c-section births
All,
I am a 39 y.o. woman; I've had complex partial seizures since I was about 3, with very occasional grand mals throughout the years. I take 750 mg of Lamictal and 1000 mg of Keppra per day.
I am currently about 12 1/2 weeks...
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Masterjen AEDs and natural progesterone
Hi, does anyone out there take AEDs as well as natural progesterone for their seizures?
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