 rvsoest
New - Hippocampal transection of left temporal lobeCreated by rvsoestat2/1/10 - 12:17 pm|13 Views|1 Comment
Posted To: Surgery Issues
Hi
I'm having epilepsy for 23 yrs. now, and my neurologist wants to try a new kind of operating on me called: Hippocampal transection of the left temporal lobe.
Has anybody heard of this?
What is does is instead removing the left temporal lobe, it is...
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 quirky
New - Left Parietal Lobe - surgeryCreated by quirkyat4/12/08 - 9:22 am|38 Views|4 Comments
Posted To: Surgery Issues
Hi,
I have parietal lobe epilepsy and have just found out yesterday that I got the green light for surgery.
I hav yet to meet the neurosurgon and discuss how successful it could be and the risks involvoed if I still want to go through with it.
The...
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 Xander...
New - Help! Seizures following Focal Cortical ResectionCreated by Xander...at2/6/10 - 1:21 am|3 Views
Posted To: Surgery Issues
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 yvonne...
New - Can U recommend a good VNS surgeon?Created by yvonne...at3/6/09 - 5:52 pm|46 Views|5 Comments
Posted To: Surgery Issues
Hi. I am looking for the best VNS surgeon I can find. If you or someone you know had a great experience with a very experienced surgeon, would you please email me at 2879@sbcglobal.net. Thanks
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 JLinz911
New - Sister has Seizure 6 weeks after surgeryCreated by JLinz911at2/1/10 - 7:15 am|30 Views
Posted To: Surgery Issues
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 beaner...
New - Temporal Lobe Epilepsie - bening tumor surgeryCreated by beaner...at1/27/10 - 11:45 am|14 Views|1 Comment
Posted To: Surgery Issues
Hello to anyone reading this.
I am currently 24 years old and have been suffering from undiagnosed gran-mal epilepsie for 5 years.
Recently (Jan 12th), I probably had one of my worst experiences...
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 mommy2...
New - Looking into a corpus collostomy ....Created by mommy2...at10/11/07 - 10:05 am|223 Views|4 Comments
Posted To: Surgery Issues
I am looking for anyone who has had a corpus collostomy. We are looking into this for my 2 year old son who has many drop seizures everyday. Any info would be greatly appreciated....
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 jdurrua
New - right temporal lobectomyCreated by jdurruaat2/1/05 - 6:38 am|5106 Views|88 Comments
Posted To: Surgery Issues
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
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 Angie87
New - Depression after surgeryCreated by Angie87at9/21/09 - 8:55 pm|56 Views|3 Comments
Posted To: Surgery Issues
Hello,
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 s_a_n_j_u
New - Anybody underwent Occipital Lobe Epilepsy Surgery?Created by s_a_n_j_uat4/19/09 - 9:29 am|52 Views|9 Comments
Posted To: Surgery Issues
Need help in reading my MRI for brain surgery.Doctors have said that this is Occipital Lobe Epilepsy Surgery.The MRI can be found in http://www.esnips.com/web/sanjuv999-MRI
Has anybody underwent a surgery for the same?Any advise for the same/feedback/comment...
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 ahardway
New - Blood Inside your ears during post surgery recovery period?Created by ahardwayat12/12/08 - 9:32 pm|142 Views|13 Comments
Posted To: Surgery Issues
I Had surgery done to my Left tempral lobe this passed November 4th 2008. It is now December 13 2008 making it 6 weeks since. All of the pain from where they cut into my brain and skull as well as the pain on the left side of my jaw line is over, but last...
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 jillsmom
New - resective surgery for infants, I'm mom and I need help!Created by jillsmomat1/21/10 - 1:19 pm|5 Views
Posted To: Surgery Issues
My daughter is now 9 months old and has been living with daily seizures since 3 months old. She has infantile spasms and tonic seizures every day, even though she is on 3 anti convulsants. She has cortical dysplagia and is scheduled for surgery in March. How...
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 cass30
New - High AltitudeCreated by cass30at1/21/10 - 8:14 am|6 Views
Posted To: Surgery Issues
Does anyone have any experience of after having right temperol lobe and going through a 6-8 week recovery period and then going back to live/work at high altitude of over 10,000ft. Before surgery i did live at altitude as well and didnt notice it to be any...
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 jaji45
New - has anyone had this type of surgery corpus callotomy Created by jaji45at1/20/10 - 7:22 am|9 Views|1 Comment
Posted To: Surgery Issues
my son is diagnosed with lenox gastaut syndrome n needs to get this surgery corpus callotomy done
i am looking for anyone who has had this surgery done to let me know how their experience went with it i am a nervous reck just thinking about
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 jillsmom
New - resective surgery or gyrectomyCreated by jillsmomat1/19/10 - 2:22 pm|6 Views
Posted To: Surgery Issues
I have a 9 month old daughter who is going to have surgery for her epilepsy/cortical dysplagia next month. Does any one have experience with this surgery, especially for infants?
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 a_mkel...
New - Temporal lobe surgeryCreated by a_mkel...at7/28/09 - 12:05 am|351 Views|32 Comments
Posted To: Surgery Issues
Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we...
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 babygi...
New - VNS surgeryCreated by babygi...at9/29/08 - 8:44 pm|109 Views|11 Comments
Posted To: Surgery Issues
I was diagnosed with epilepsy at 13. I lost my teenage years to trips to the ER, medication, tests, and medication side effects. After 6 years of trying to find a medication that would control all of my seizures I am running short on patience. I am so tired...
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 nancyjudy
My sisters' nightmare with the Cyberonics vns deviceCreated by nancyjudyat1/10/10 - 6:08 am|31 Views
Posted To: Surgery Issues
Several members of my family have a seizure disorder, epilepsy, whatever you choose to call it. My younger sister, 44, who was, and I repeat WAS, a registered nurse and a single mom who was in the process of purchasing her first home with the pretty good...
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 robin4902
Right Temporal LobectomyCreated by robin4902at11/19/09 - 5:02 pm|37 Views|4 Comments
Posted To: Surgery Issues
Hi all-For anybody that might be interesting in pursuing brain surgery, I'd be happy to discuss my situation. I had a right temporal lobectomy in December, 2008 at Tampa General Hospital (GREAT staff) and have been seizure free ever since. Surgery was...
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 mark_88
Headed for surgery today!Created by mark_88at10/8/09 - 10:42 am|109 Views|10 Comments
Posted To: Surgery Issues
anxiously awaiting to get there....im leaving to go to london, ontario for my brain surgery (temporal lobectomy) today and ive been waiting for so many years for this day!!! 21yrs in the suffering of comlex partials and 3 grandmals throughout my life and ...
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 silverose
Occipital lobe epilepsy surgery?Created by silveroseat11/14/09 - 6:01 pm|6 Views|1 Comment
Posted To: Surgery Issues
Hi I am brand new to this site and am looking for some help and perhaps a little reassurance. I have suffered with seizures since I was 10 due to a birth defect in my occipital lobe which has also left me visually disabled. I have been relatively well controlled...
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 psgutters
Nocturnal seizure?Created by psguttersat12/17/09 - 11:27 pm|20 Views
Posted To: Surgery Issues
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 lynanne
right frontal lobe surgery-may have it very soon!Created by lynanneat4/26/06 - 7:52 pm|1298 Views|21 Comments
Posted To: Surgery Issues
This ? has been asked before, but I'll try again. not much response to the last person who asked. i guess not many people have frontal lobe surgery. my 25yo daughter may be a good candidate for it. i want to know more about the effects...
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 suemdan
VNS surgery and post-operative problemsCreated by suemdanat8/6/09 - 4:09 pm|75 Views|6 Comments
Posted To: Surgery Issues
Hi
4 weeks ago I had a vns implanted and have had some problems since - have any of you had either of these happen?
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 steelr...
VNSCreated by steelr...at6/22/09 - 8:55 pm|51 Views|4 Comments
Posted To: Surgery Issues
does any one have the VNS and if u do has it ever broke on you are do you know anyone that has it and it broke.
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 Angie87
post temporal lobectomy issues Created by Angie87at5/9/09 - 4:50 pm|95 Views|4 Comments
Posted To: Surgery Issues
Hello everyone,
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 vic
DAILY HEAD PAIN AFTER TEMPORAL LOBECTOMYCreated by vicat11/13/09 - 1:19 pm|56 Views|3 Comments
Posted To: Surgery Issues
My daughter had a left temporal lobectomy, following placement and
removal of subdural grids and depth electrodes, January 27th 2009. We
went about 5 months with NO SEIZURES- YAY! Unfortunately, at right
about 6 months, she began having very severe head...
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 chasejena
I NEED YOUR HELP - Surgery QuestionCreated by chasejenaat9/28/09 - 6:36 am|94 Views|8 Comments
Posted To: Surgery Issues
This past weekend I saw, on an episode of W-Five, a story called The Brainstorm Within. It was discussing surgery for epilepsy that is NOT well known. My posting is to guage opinions on this and to HOPEFULLY hear from someone who has had the surgery...
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 gregg9130
AFTER SURGERY-IS THAT FEELING A SEIZURE???????Created by gregg9130at4/8/07 - 3:05 pm|486 Views|7 Comments
Posted To: Surgery Issues
HELLO!I HAD A LEFT FRONTAL LOBE RESECTION ON MARCH 20,2007
I USED TO HAVE 1-5 SEIZURES IN MY SLEEP EVERY NIGHT .NOW NONE.BUT SOMETIMES I GET FAMILIAR FEELINGS IN MY HEAD.ITS NOT STRONG ENOUGH FOR AN AURA BUT IT FEELS LIKE ONE.I DON'T...
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 Fawn1981
Contemplating SurgeryCreated by Fawn1981at9/23/09 - 12:50 pm|85 Views|7 Comments
Posted To: Surgery Issues
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 trese291
Corpus Callosotomy SugeryCreated by trese291at6/20/06 - 9:39 am|775 Views|5 Comments
Posted To: Surgery Issues
My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I would like to hear from anyone who has...
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 maryhe...
Headaches after surgeryCreated by maryhe...at1/27/07 - 11:09 am|1134 Views|16 Comments
Posted To: Surgery Issues
Anyone else have the monster headaches following surgery? I had mine done on Jan. 3rd and was doing quite well, and then about two weeks post op the headaches started. I am still working with my doctor to find the best way to deal...
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 JIMBOMC
Aneurysm growthCreated by JIMBOMCat11/6/09 - 8:09 am|4 Views
Posted To: Surgery Issues
I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this...
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 laracr...
Vagus Nerve StimulationCreated by laracr...at4/17/09 - 9:30 pm|50 Views|2 Comments
Posted To: Surgery Issues
Hi, I was diagnosed with epilepsy about a year ago but, my neurologist believes I had my whole life and it was not properly diagnosed due the fact that my partials were blame on ADHD. Anyway, my partials have been getting increasingly worse and I am having...
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 milw.girl
Just had surgeryCreated by milw.girlat3/29/09 - 6:38 pm|121 Views|6 Comments
Posted To: Surgery Issues
I've had partial complex seizures starting while I was in HS, in the
years of the late '90's. I used to have them well mainted and so I
could drive. Then in the mid '00's things sort of broke out of control
I'll say and I began having them once a...
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 Emz21
Information on left temporal lobe surgery - can anyone give me an...Created by Emz21at4/9/08 - 3:13 pm|211 Views|8 Comments
Posted To: Surgery Issues
Hi everyone,
i know this is pretty similar to a few other posts on here, but i just wanted to know if there were people that could give me some information/advice on the left temporal lobe resection that i'm having in the summer. Basically this is my situation:
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 davnic13
Risk of left temporal lobe surgeryCreated by davnic13at8/23/09 - 8:43 pm|54 Views|3 Comments
Posted To: Surgery Issues
I am 30 and have had epilepsy for about 7 years over that time things havent improved, they have gradually got worse. I recently went to see my neuro and i was very surprised that the first thing he mentioned was surgery. However he did say that because...
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 GetBac...
Changes in skull shape?Created by GetBac...at10/21/09 - 10:40 pm|20 Views|3 Comments
Posted To: Surgery Issues
Hello!,
I had a temporal lobectomy a few years back and I was wondering if anyone who had the surgery can answer a couple of questions that have been bugging me.
1. The shape of my skull is more uneven than it used to be, and sometimes...
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 yvonne...
Have you had a good experience with your VNSCreated by yvonne...at3/27/09 - 4:25 pm|134 Views|10 Comments
Posted To: Surgery Issues
Do you have an VNS and have no problems with your voice or hearing the VNS go off? I have a friend who is looking at getting his VNS for depression and he would really like to talk to a few people who have minimal to no voice/sound alterations from the VNS....
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 cmlomax
VNS SurgeryCreated by cmlomaxat8/4/09 - 3:11 pm|13 Views|1 Comment
Posted To: Surgery Issues
I hope someone can help me. I had VNS surgery almost 2 months ago, since the surgery I have been extremely tired. I don't have the energy to do any tasks. If I do accomplish something I usually have to take a nap afterwards (2 hours). My doctor says that it...
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 wellness
VNS and GI problems Please help!Created by wellnessat10/5/09 - 4:44 pm|23 Views
Posted To: Surgery Issues
Looking for a connection between vns and gastroparesis/gi problems.I have had my VNS for 5 years now and I just had a new generator put in. However, for a number of months I have had serious GI problems. I woke up with a stomach ache during the night and have...
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 ghost72
vnsCreated by ghost72at9/17/09 - 10:23 am|75 Views|8 Comments
Posted To: Surgery Issues
i have had two brain surgerys one at 17 and one at 25,i might have the chance to have the vns surgery but i dont want to go threw the pain of surgery again,can anyone tell me about it and does it or did it hurt?
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 Godiva...
Surgery - How Long Is The Process?Created by Godiva...at7/3/09 - 9:11 am|86 Views|6 Comments
Posted To: Surgery Issues
Hi,
I have been stopping by and reading lots on surgery - I've also been looking at www.epilepsy.ca and London Science Center http://www.uwo.ca/cns/pages/programs/epilepsy.htm - where I'd get referred.
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 ValNew...
Surgery...How do you decide?Created by ValNew...at9/16/08 - 6:58 am|336 Views|37 Comments
Posted To: Surgery Issues
I know opting for surgery is a personal decision, but I just want to explore other's experiences...
My son, 12yrs, has partial seizures, some Simple, some Complex. He's on two meds, both causing cognitive side effects, which of course makes learning...
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 vdw
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 Beelez...
Pain After SurgeryCreated by Beelez...at8/19/09 - 9:00 pm|65 Views|6 Comments
Posted To: Surgery Issues
Hi, I just had surgery two weeks ago, I am still recovering & I am having alot of headaches, worse than when I was in the hospital, I am taking the required/suggested amount allowed to take to help w/ the pain. The pain killers are supposed to last...
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 vic
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 saleegirl
Want to hear and share about others' experiences with Neurosurger...Created by saleegirlat5/27/09 - 7:34 pm|155 Views|7 Comments
Posted To: Surgery Issues
I am a 25 year-old female with adult-onset epilepsy, which began when I was 21 years old. After a long, uphill battle trying to get my seizures under control with various types of meds, I began treatment at the Mayo Clinic in Phoenix (where I happen to live-great...
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 rrjhrjmap
Right Temporal Lobe RemovalCreated by rrjhrjmapat8/11/09 - 5:15 pm|19 Views
Posted To: Surgery Issues
I had most of my right temporal lobed removed in December 2009, because of tumors that caused seizures.
I understand that the RTLobe controls emotions. I am being told that I will be on emotional meds and or see a shrink for the rest of my life.
DOes...
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 bsfore...
Surgery twiceCreated by bsfore...at1/16/09 - 9:22 pm|79 Views|4 Comments
Posted To: Surgery Issues
Has anyone here had surgery more than one time because the first time didnt work for them? I had surgery in 2006. After the first couple months I thought everything had gone well but then I started having seizures again. So, since then I have started back...
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