Hello,
First off, I have Complex Partial seizures. I have had eplipsy for 10 years.
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dav1dh New - Left Temporal Lobe surgery
Created by dav1dhat3/10/10 - 10:02 pm|8 Views Posted To: Surgery Issues
Hello,
First off, I have Complex Partial seizures. I have had eplipsy for 10 years.
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cass30 New - Auras after surgery
Created by cass30at3/9/10 - 2:30 pm|9 Views|1 Comment Posted To: Surgery Issues Has anyone started to have auras 3 months after right temperol lobe surgery more frequently than the initial 3 months. I had surgery at start of december but I have been feeling a sense of anxiety of late nearly like each day auras were so much a part of my...
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cass30 New - After right temperol lobe surgery
Created by cass30at2/27/10 - 4:49 pm|30 Views|5 Comments Posted To: Surgery Issues I am close to 3 months post op after having right temperol lobe surgery and initial recovery went well with the first 4 weeks pretty tough and painful but good progress after that each day/week. However after the 8 weeks i went back to work and felt really...
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moinke... New - Sitting on the fence about surgery is it worth it? Esp. Memory loss...
Created by moinke...at3/3/10 - 12:38 am|24 Views|1 Comment Posted To: Surgery Issues Hi Everyone,
This is largely what registered for, hoping to find some people who have had these surgeries and can speak of their success or results, to give me an idea of what I'd be signing on for.
A brief sum before getting to the surgery, i had my...
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Spike. New - [News] VNS & Depression Investagation
Created by Spike.at3/2/10 - 1:54 pm|4 Views Posted To: Surgery Issues http://www.kxan.com/dpp/news/in_depth/depression-treatment-controversy
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quirky New - Left Parietal Lobe - surgery
Created by quirkyat4/12/08 - 9:22 am|84 Views|11 Comments Posted To: Surgery Issues
Hi,
I have parietal lobe epilepsy and have just found out yesterday that I got the green light for surgery.
I hav yet to meet the neurosurgon and discuss how successful it could be and the risks involvoed if I still want to go through with it.
The...
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akewbc New - Appointment for surgery
Created by akewbcat2/20/10 - 11:11 am|106 Views|8 Comments Posted To: Surgery Issues
Anyone been through the process of a pre-evaluation for surgery?
I'm headed to the Mayo in a few weeks and want to know what you had to go through.
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Xander... New - Help! Seizures following Focal Cortical Resection
Created by Xander...at2/6/10 - 1:21 am|13 Views|1 Comment Posted To: Surgery Issues |
Adrian956 New - Has Anyone Been Re-Evaluated for a Temporal Lobectomy?
Created by Adrian956at2/20/10 - 9:01 am|18 Views Posted To: Surgery Issues
Back in the mid 1990's I went through the full testing process to see if we could do a temporal lobectomy on my right hemisphere but when we got down to the subdural grid exam, there were problems. The grids only gave a 60% certainty they found the seizure...
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robin4902 New - Right Temporal Lobectomy
Created by robin4902at2/13/10 - 5:28 pm|22 Views Posted To: Surgery Issues
If you need any advice on brain surgery, let me know. I had surgery December, 2008 and have been seizure free for over a year.
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jdurrua New - right temporal lobectomy
Created by jdurruaat2/1/05 - 6:38 am|5144 Views|89 Comments Posted To: Surgery Issues Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
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rvsoest Hippocampal transection of left temporal lobe
Created by rvsoestat2/1/10 - 12:17 pm|21 Views|2 Comments Posted To: Surgery Issues Hi
I'm having epilepsy for 23 yrs. now, and my neurologist wants to try a new kind of operating on me called: Hippocampal transection of the left temporal lobe.
Has anybody heard of this?
What is does is instead removing the left temporal lobe, it is...
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yvonne... Can U recommend a good VNS surgeon?
Created by yvonne...at3/6/09 - 5:52 pm|47 Views|5 Comments Posted To: Surgery Issues Hi. I am looking for the best VNS surgeon I can find. If you or someone you know had a great experience with a very experienced surgeon, would you please email me at 2879@sbcglobal.net. Thanks
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JLinz911 Sister has Seizure 6 weeks after surgery
Created by JLinz911at2/1/10 - 7:15 am|32 Views Posted To: Surgery Issues |
beaner... Temporal Lobe Epilepsie - bening tumor surgery
Created by beaner...at1/27/10 - 11:45 am|15 Views|1 Comment Posted To: Surgery Issues
Hello to anyone reading this.
I am currently 24 years old and have been suffering from undiagnosed gran-mal epilepsie for 5 years.
Recently (Jan 12th), I probably had one of my worst experiences...
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mommy2... Looking into a corpus collostomy ....
Created by mommy2...at10/11/07 - 10:05 am|223 Views|4 Comments Posted To: Surgery Issues I am looking for anyone who has had a corpus collostomy. We are looking into this for my 2 year old son who has many drop seizures everyday. Any info would be greatly appreciated....
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Angie87 Depression after surgery
Created by Angie87at9/21/09 - 8:55 pm|63 Views|3 Comments Posted To: Surgery Issues Hello,
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s_a_n_j_u Anybody underwent Occipital Lobe Epilepsy Surgery?
Created by s_a_n_j_uat4/19/09 - 9:29 am|55 Views|9 Comments Posted To: Surgery Issues Need help in reading my MRI for brain surgery.Doctors have said that this is Occipital Lobe Epilepsy Surgery.The MRI can be found in http://www.esnips.com/web/sanjuv999-MRI
Has anybody underwent a surgery for the same?Any advise for the same/feedback/comment...
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ahardway Blood Inside your ears during post surgery recovery period?
Created by ahardwayat12/12/08 - 9:32 pm|143 Views|13 Comments Posted To: Surgery Issues I Had surgery done to my Left tempral lobe this passed November 4th 2008. It is now December 13 2008 making it 6 weeks since. All of the pain from where they cut into my brain and skull as well as the pain on the left side of my jaw line is over, but last...
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jillsmom resective surgery for infants, I'm mom and I need help!
Created by jillsmomat1/21/10 - 1:19 pm|7 Views Posted To: Surgery Issues My daughter is now 9 months old and has been living with daily seizures since 3 months old. She has infantile spasms and tonic seizures every day, even though she is on 3 anti convulsants. She has cortical dysplagia and is scheduled for surgery in March. How...
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cass30 High Altitude
Created by cass30at1/21/10 - 8:14 am|8 Views Posted To: Surgery Issues Does anyone have any experience of after having right temperol lobe and going through a 6-8 week recovery period and then going back to live/work at high altitude of over 10,000ft. Before surgery i did live at altitude as well and didnt notice it to be any...
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jaji45 has anyone had this type of surgery corpus callotomy
Created by jaji45at1/20/10 - 7:22 am|9 Views|1 Comment Posted To: Surgery Issues
my son is diagnosed with lenox gastaut syndrome n needs to get this surgery corpus callotomy done
i am looking for anyone who has had this surgery done to let me know how their experience went with it i am a nervous reck just thinking about
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jillsmom resective surgery or gyrectomy
Created by jillsmomat1/19/10 - 2:22 pm|9 Views Posted To: Surgery Issues I have a 9 month old daughter who is going to have surgery for her epilepsy/cortical dysplagia next month. Does any one have experience with this surgery, especially for infants?
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a_mkel... Temporal lobe surgery
Created by a_mkel...at7/28/09 - 12:05 am|368 Views|32 Comments Posted To: Surgery Issues
Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we...
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babygi... VNS surgery
Created by babygi...at9/29/08 - 8:44 pm|111 Views|11 Comments Posted To: Surgery Issues
I was diagnosed with epilepsy at 13. I lost my teenage years to trips to the ER, medication, tests, and medication side effects. After 6 years of trying to find a medication that would control all of my seizures I am running short on patience. I am so tired...
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nancyjudy My sisters' nightmare with the Cyberonics vns device
Created by nancyjudyat1/10/10 - 6:08 am|37 Views Posted To: Surgery Issues Several members of my family have a seizure disorder, epilepsy, whatever you choose to call it. My younger sister, 44, who was, and I repeat WAS, a registered nurse and a single mom who was in the process of purchasing her first home with the pretty good...
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robin4902 Right Temporal Lobectomy
Created by robin4902at11/19/09 - 5:02 pm|39 Views|4 Comments Posted To: Surgery Issues Hi all-For anybody that might be interesting in pursuing brain surgery, I'd be happy to discuss my situation. I had a right temporal lobectomy in December, 2008 at Tampa General Hospital (GREAT staff) and have been seizure free ever since. Surgery was...
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mark_88 Headed for surgery today!
Created by mark_88at10/8/09 - 10:42 am|115 Views|10 Comments Posted To: Surgery Issues anxiously awaiting to get there....im leaving to go to london, ontario for my brain surgery (temporal lobectomy) today and ive been waiting for so many years for this day!!! 21yrs in the suffering of comlex partials and 3 grandmals throughout my life and ...
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silverose Occipital lobe epilepsy surgery?
Created by silveroseat11/14/09 - 6:01 pm|6 Views|1 Comment Posted To: Surgery Issues Hi I am brand new to this site and am looking for some help and perhaps a little reassurance. I have suffered with seizures since I was 10 due to a birth defect in my occipital lobe which has also left me visually disabled. I have been relatively well controlled...
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psgutters |
lynanne right frontal lobe surgery-may have it very soon!
Created by lynanneat4/26/06 - 7:52 pm|1299 Views|21 Comments Posted To: Surgery Issues This ? has been asked before, but I'll try again. not much response to the last person who asked. i guess not many people have frontal lobe surgery. my 25yo daughter may be a good candidate for it. i want to know more about the effects...
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suemdan VNS surgery and post-operative problems
Created by suemdanat8/6/09 - 4:09 pm|97 Views|6 Comments Posted To: Surgery Issues
Hi
4 weeks ago I had a vns implanted and have had some problems since - have any of you had either of these happen?
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steelr... VNS
Created by steelr...at6/22/09 - 8:55 pm|51 Views|4 Comments Posted To: Surgery Issues
does any one have the VNS and if u do has it ever broke on you are do you know anyone that has it and it broke.
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Angie87 post temporal lobectomy issues
Created by Angie87at5/9/09 - 4:50 pm|101 Views|4 Comments Posted To: Surgery Issues Hello everyone,
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vic DAILY HEAD PAIN AFTER TEMPORAL LOBECTOMY
Created by vicat11/13/09 - 1:19 pm|57 Views|3 Comments Posted To: Surgery Issues
My daughter had a left temporal lobectomy, following placement and
removal of subdural grids and depth electrodes, January 27th 2009. We
went about 5 months with NO SEIZURES- YAY! Unfortunately, at right
about 6 months, she began having very severe head...
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chasejena I NEED YOUR HELP - Surgery Question
Created by chasejenaat9/28/09 - 6:36 am|96 Views|8 Comments Posted To: Surgery Issues
This past weekend I saw, on an episode of W-Five, a story called The Brainstorm Within. It was discussing surgery for epilepsy that is NOT well known. My posting is to guage opinions on this and to HOPEFULLY hear from someone who has had the surgery...
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gregg9130 AFTER SURGERY-IS THAT FEELING A SEIZURE???????
Created by gregg9130at4/8/07 - 3:05 pm|486 Views|7 Comments Posted To: Surgery Issues HELLO!I HAD A LEFT FRONTAL LOBE RESECTION ON MARCH 20,2007
I USED TO HAVE 1-5 SEIZURES IN MY SLEEP EVERY NIGHT .NOW NONE.BUT SOMETIMES I GET FAMILIAR FEELINGS IN MY HEAD.ITS NOT STRONG ENOUGH FOR AN AURA BUT IT FEELS LIKE ONE.I DON'T...
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Fawn1981 Contemplating Surgery
Created by Fawn1981at9/23/09 - 12:50 pm|91 Views|7 Comments Posted To: Surgery Issues |
trese291 Corpus Callosotomy Sugery
Created by trese291at6/20/06 - 9:39 am|775 Views|5 Comments Posted To: Surgery Issues My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I would like to hear from anyone who has...
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maryhe... Headaches after surgery
Created by maryhe...at1/27/07 - 11:09 am|1134 Views|16 Comments Posted To: Surgery Issues Anyone else have the monster headaches following surgery? I had mine done on Jan. 3rd and was doing quite well, and then about two weeks post op the headaches started. I am still working with my doctor to find the best way to deal...
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JIMBOMC Aneurysm growth
Created by JIMBOMCat11/6/09 - 8:09 am|4 Views Posted To: Surgery Issues
I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this...
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laracr... Vagus Nerve Stimulation
Created by laracr...at4/17/09 - 9:30 pm|50 Views|2 Comments Posted To: Surgery Issues Hi, I was diagnosed with epilepsy about a year ago but, my neurologist believes I had my whole life and it was not properly diagnosed due the fact that my partials were blame on ADHD. Anyway, my partials have been getting increasingly worse and I am having...
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milw.girl Just had surgery
Created by milw.girlat3/29/09 - 6:38 pm|126 Views|6 Comments Posted To: Surgery Issues
I've had partial complex seizures starting while I was in HS, in the
years of the late '90's. I used to have them well mainted and so I
could drive. Then in the mid '00's things sort of broke out of control
I'll say and I began having them once a...
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Emz21 Information on left temporal lobe surgery - can anyone give me an...
Created by Emz21at4/9/08 - 3:13 pm|212 Views|8 Comments Posted To: Surgery Issues
Hi everyone,
i know this is pretty similar to a few other posts on here, but i just wanted to know if there were people that could give me some information/advice on the left temporal lobe resection that i'm having in the summer. Basically this is my situation:
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davnic13 Risk of left temporal lobe surgery
Created by davnic13at8/23/09 - 8:43 pm|64 Views|3 Comments Posted To: Surgery Issues
I am 30 and have had epilepsy for about 7 years over that time things havent improved, they have gradually got worse. I recently went to see my neuro and i was very surprised that the first thing he mentioned was surgery. However he did say that because...
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GetBac... Changes in skull shape?
Created by GetBac...at10/21/09 - 10:40 pm|21 Views|3 Comments Posted To: Surgery Issues
Hello!,
I had a temporal lobectomy a few years back and I was wondering if anyone who had the surgery can answer a couple of questions that have been bugging me.
1. The shape of my skull is more uneven than it used to be, and sometimes...
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yvonne... Have you had a good experience with your VNS
Created by yvonne...at3/27/09 - 4:25 pm|140 Views|10 Comments Posted To: Surgery Issues Do you have an VNS and have no problems with your voice or hearing the VNS go off? I have a friend who is looking at getting his VNS for depression and he would really like to talk to a few people who have minimal to no voice/sound alterations from the VNS....
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cmlomax VNS Surgery
Created by cmlomaxat8/4/09 - 3:11 pm|15 Views|1 Comment Posted To: Surgery Issues I hope someone can help me. I had VNS surgery almost 2 months ago, since the surgery I have been extremely tired. I don't have the energy to do any tasks. If I do accomplish something I usually have to take a nap afterwards (2 hours). My doctor says that it...
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wellness VNS and GI problems Please help!
Created by wellnessat10/5/09 - 4:44 pm|23 Views Posted To: Surgery Issues Looking for a connection between vns and gastroparesis/gi problems.I have had my VNS for 5 years now and I just had a new generator put in. However, for a number of months I have had serious GI problems. I woke up with a stomach ache during the night and have...
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ghost72 vns
Created by ghost72at9/17/09 - 10:23 am|75 Views|8 Comments Posted To: Surgery Issues i have had two brain surgerys one at 17 and one at 25,i might have the chance to have the vns surgery but i dont want to go threw the pain of surgery again,can anyone tell me about it and does it or did it hurt?
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pennyh... partial complex seizures
Created by pennyh...at7/25/04 - 1:24 pm|5262 Views|34 Comments Posted To: Surgery Issues Hi everyone, I'm new at all of this. I've never written in to chat rooms before but I could really use some information and advise, so I thought this probably would be a good place to start. My 25 year old son has been having Complex...
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jdurrua New - right temporal lobectomy
Created by jdurruaat2/1/05 - 6:38 am|5144 Views|89 Comments Posted To: Surgery Issues Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
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Deadhead Right Temporal Lobe Surgery
Created by Deadheadat12/18/05 - 1:03 am|3347 Views|23 Comments Posted To: Surgery Issues I have been having seizures since I was 12 years old.When I was younger, my seizures although not very frequent were quite severe and I usually always went into "Status" and would always have to be brought to the hospital to be brought...
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alexis00 Temporal lobe tumor surgery questions
Created by alexis00at2/27/07 - 4:53 pm|2384 Views|11 Comments Posted To: Surgery Issues When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I
would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't remember
anything afterwards. My heart...
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sonya ... My 5yr old daughter is having a functional hemispherectomy on 1/...
Created by sonya ...at1/10/06 - 4:39 pm|2278 Views|9 Comments Posted To: Surgery Issues Hey all! This is my first time on here. I wish that I had made this venture a while back. My five year old daughter Blakely, is having a right side, functional hemispherectomy on Jan. 26. at the Cleveland Clinic. I do know a couple...
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terrij the after life of temporal lobe sururgery
Created by terrijat1/8/06 - 12:31 pm|2264 Views|20 Comments Posted To: Surgery Issues I had my right temporal removed in Sept of 1994
I actually was aginniy pig for ateaching hospital in Gainesville,fl.I dont know about the rest of you, but my first two years after surgery where HELL! I was amentel case,I had to betaught...
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fairyl... surgery at 40
Created by fairyl...at12/6/04 - 10:55 pm|2240 Views|50 Comments Posted To: Surgery Issues I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for me...I have been seizure free for almost...
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shanno... Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Created by shanno...at8/9/06 - 8:52 pm|2196 Views|23 Comments Posted To: Surgery Issues Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed...
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alexa should i have surgery?
Created by alexaat2/2/05 - 1:08 pm|2190 Views|29 Comments Posted To: Surgery Issues could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth it. pleasesend comments on whether...
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suten VNS(Experiences)
Created by sutenat6/11/05 - 1:54 pm|2064 Views|36 Comments Posted To: Surgery Issues Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?...
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ackling17 Surgery Results
Created by ackling17at7/24/06 - 9:58 am|2024 Views|21 Comments Posted To: Surgery Issues i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one dosage i have a all out seizure within...
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Matt P... Anyone have Lobectomy on Left Frontal Lobe?
Created by Matt P...at3/15/07 - 10:47 pm|2002 Views|18 Comments Posted To: Surgery Issues My son has been advised to consider having surgery. My concern is the area that his seizures seem to originate. I can't seem to find any info on surgery in this area of the brain, most of the comments I'm finding are from people...
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rburford Vagus Nerve Stimulation Therapy
Created by rburfordat1/31/05 - 9:45 pm|1982 Views|38 Comments Posted To: Surgery Issues I am looking for some one that has had the VNS implant procedure done. My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure done and would be willing...
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BAU Surgery for left temporal lobectomy
Created by BAUat1/19/06 - 2:56 pm|1850 Views|12 Comments Posted To: Surgery Issues I would like to chat with someone who has undergone surgery recently for a left temporal lobe seizure disorder....
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pixiedust Head staples
Created by pixiedustat2/8/07 - 4:15 pm|1831 Views|6 Comments Posted To: Surgery Issues Well, I finally had my head staples removed. It wasnt a pleasant experience, but Im glad theyre out. No matter how much of that numbing stuff he put on my head, it still kinda hurt when he pulled them out with a plyer. Ew.
Yeah....anyone...
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Nylrad Anyone had surgery on left temporal lobe?
Created by Nylradat4/10/07 - 8:28 am|1816 Views|27 Comments Posted To: Surgery Issues I am considering having a left temporal lobectomy and would very much like to hear from others who have undergone this testing and surgery. And, since you have undergone this surgery and experienced it all, I would like to ask you...
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ladybug Seizure after surgery..............
Created by ladybugat10/19/06 - 5:32 am|1802 Views|12 Comments Posted To: Surgery Issues Good morning,
I had my surgery on August 28, 2006. Basically almost 2 months ago. Last night, I had my first seizure since the operation. I was wondering how many of you all experienced this? Also, does this mean that my seizures...
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mulleca seizure surgury
Created by mullecaat11/30/06 - 10:38 am|1800 Views|15 Comments Posted To: Surgery Issues I am going to have left temporal lobe surgury in Jan. or Feb. and they are talking about possible removal of my left hippocampus. Has anyone had this removed. If so, how are you doing, what can I expect? I have had a wada, and pet...
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shelly... Questions on the left temporal lobectomy
Created by shelly...at2/23/07 - 3:59 pm|1740 Views|16 Comments Posted To: Surgery Issues I am scheduled to have my surgery on the 17th of April. At this point I am trying to get my affairs in order. I have a couple of questions for everyone. My first questions is how many of those who had surgery had to have their heads...
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ladybug Left Temporal Lobectomy and Brain Mapping
Created by ladybugat7/21/06 - 10:02 am|1690 Views|24 Comments Posted To: Surgery Issues Hey all,
Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th.
I've read all the material out there about surgery AND brain mapping. What I'm wanting to know is...what...
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pinkan... Left Temporal Lobectomy Surgery
Created by pinkan...at3/28/06 - 12:05 pm|1690 Views|20 Comments Posted To: Surgery Issues Hello
As some of you already know I had my Wada Test done last week and I have been told now that I am a candidate for surgery. I just seem to have so many thoughts whizzing through my head at the moment of whether to take this...
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dmh LTL Surgery February 21
Created by dmhat1/26/07 - 1:05 pm|1617 Views|18 Comments Posted To: Surgery Issues Hi everybody. To my friends out there I wanted to let you know that I have finally finished all of the testing and they are going to perform the surgery next month to remove part of my hippocampus in my left temporal lobe. The neurosurgeon...
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pennyh... Bald spots from long term EEG?
Created by pennyh...at11/22/04 - 7:17 pm|1567 Views|1 Comment Posted To: Surgery Issues Hi everyone,I got so much help before when I posted, I have another question for you. I wonder if someone else has ever had this problem. Bald spots from long term EEG? When my son was in...
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sdbright Right Frontal Lobectomy
Created by sdbrightat9/12/06 - 11:26 am|1548 Views|6 Comments Posted To: Surgery Issues My 6 year old son had a right frontal lobectomy on September 23, 2005 for intractable seizures. He didn't start having seizures until Sept. 1, 2005 so I didn't get to learn a lot before surgery. I was hoping to get some input from...
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nana "Brain Surgery Gone Bad"
Created by nanaat3/16/06 - 5:29 am|1465 Views|5 Comments Posted To: Surgery Issues I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...
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nana "Brain Surgery Gone Bad"
Created by nanaat3/16/06 - 5:29 am|1465 Views|5 Comments Posted To: Surgery Issues I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...
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corgilady 1 Year Anniversary Date of Surgery Comming Soon!
Created by corgiladyat6/14/07 - 2:40 pm|369 Views|1 Comment Posted To: Surgery Issues Hello to all of you. I have been silent just reading posts most of the time.
Yes it will be a year on 7-7-07!! What a set of numbers!!
As of the date posted I will be seizure free for one year. I got a drivers lisence for the...
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tcamargo 14 yr old son has VNS
Created by tcamargoat6/23/07 - 12:25 pm|186 Views Posted To: Surgery Issues Share your benefits/complication stories about the VNS. ...
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apinsley 15 Years Seizure Free
Created by apinsleyat5/28/07 - 3:38 am|386 Views|3 Comments Posted To: Surgery Issues In January of 1991 I had successful surgery to my right temporal lobe. I had been having seizures since the age of 14 months old after a febrile seizure. My surgery was performed at Yale-New Haven University by a top neurosurgeon...
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MichaelK 2 rounds of seizure medicine fail and then surgery?
Created by MichaelKat10/31/08 - 9:29 am|38 Views|4 Comments Posted To: Surgery Issues Is it normal to have surgery for epilepsy after two types of seizure medicine fail? What has been other people's experiences been? I have had both Zonegran and Depakote fail alone and need additional medications. Now my neurologist is recommending surgery.
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shelfish 2 years post surgery and NOW siezures
Created by shelfishat8/2/07 - 1:08 pm|398 Views|4 Comments Posted To: Surgery Issues I have had epilepsy since i was 4yrs old and finally properly diagnosed at the age of 25. Finally after 7 yrs of docs, meds and finally surgery. I had been 2 yrs siezure free, but no longer. I had complex partial frontal loeb intereactive...
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janeart 3yr old may need surgery - please help
Created by janeartat8/22/06 - 9:23 am|445 Views|1 Comment Posted To: Surgery Issues Hi,
Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no history). I've read that often in cases of...
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Kelly G. 5 weeks b4 surgery and NY State wants to discontinue my insurance...
Created by Kelly G.at8/26/06 - 4:56 am|301 Views|4 Comments Posted To: Surgery Issues I am ready to choke the people who work for the state and don't seem to care about anyone else. I finally have my surgery planned to help stop my seizures, on Sept 27th at Albany Medical Center and the state says I make too much money...
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quirky 6 months free of seizures :-)
Created by quirkyat11/20/08 - 5:41 am|33 Views|2 Comments Posted To: Surgery Issues
Hi all,
It's actually been a while since I have been on the site.
It's been a busy year for me. I had brain surgery last May 22nd to remove a lesion in my left pariatel lobe that was causing my seizures. That all went well until a few...
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kajjms ? low grade glioma
Created by kajjmsat11/3/07 - 7:12 am|244 Views|1 Comment Posted To: Surgery Issues I have been possibly diagnosed with a low grad glioma but cannot get an accurate diagnosis due to the poor location of the 1.5 cm lesion in the left occipital lobe. I started having seizures and have been having problems with speech...
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babzy ?surgery,,is it worth the trama
Created by babzyat10/5/07 - 10:31 pm|762 Views|24 Comments Posted To: Surgery Issues hi everyone,
i've reached the point of trying 7 drugs to control my seizures which are auras to simple to complex partial..my activity is in the left temporal lobe.
can anyone shed light on the recovery of surgery.. i...
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Darrel A New Trial Surgery
Created by Darrelat1/31/06 - 6:13 pm|1088 Views|7 Comments Posted To: Surgery Issues There is a brand new surgery that is still in the trial stage of production, that I was wanting to discuss and possibly get some opinions on it. This is the surgery of: Interceptâ„¢ Epilepsy Control System. This is similar to...
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redcro after brain surgery
Created by redcroat5/12/09 - 12:04 pm|40 Views Posted To: Surgery Issues
i fell from 5 meters 2 months ago on my head, had 2 skull fractures and 2 hematomas, they were both removed, now i survived. i wanted to know, can drinking 1 beer or smoking a joint cause epilepsy ( i dont have it at the moment).
thank you
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cass30 New - After right temperol lobe surgery
Created by cass30at2/27/10 - 4:49 pm|30 Views|5 Comments Posted To: Surgery Issues I am close to 3 months post op after having right temperol lobe surgery and initial recovery went well with the first 4 weeks pretty tough and painful but good progress after that each day/week. However after the 8 weeks i went back to work and felt really...
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Amber28 After surgery issue....
Created by Amber28at9/2/08 - 3:29 pm|77 Views|2 Comments Posted To: Surgery Issues |
vincen... After surgery side effects query
Created by vincen...at5/23/08 - 10:30 am|50 Views|2 Comments Posted To: Surgery Issues
Hey to all
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gregg9130 AFTER SURGERY-IS THAT FEELING A SEIZURE???????
Created by gregg9130at4/8/07 - 3:05 pm|486 Views|7 Comments Posted To: Surgery Issues HELLO!I HAD A LEFT FRONTAL LOBE RESECTION ON MARCH 20,2007
I USED TO HAVE 1-5 SEIZURES IN MY SLEEP EVERY NIGHT .NOW NONE.BUT SOMETIMES I GET FAMILIAR FEELINGS IN MY HEAD.ITS NOT STRONG ENOUGH FOR AN AURA BUT IT FEELS LIKE ONE.I DON'T...
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kimberlyw age consideration for surgery
Created by kimberlywat1/28/04 - 11:28 am|500 Views|3 Comments Posted To: Surgery Issues My son is eleven and we have been considering surgery for his seizures. We are wondering if it would be beneficial to wait till he's alittle older or would we get a better recovery now as far as the brain's ability to remap itself....
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Rob J Amygdalahippocampectomy in 10 days
Created by Rob Jat6/23/07 - 12:12 pm|585 Views|6 Comments Posted To: Surgery Issues My amygdalahippocampectomy happens in tens and I am getting to that soul searching point. I have over analyzed, over stressed, over emotionalized both the pros and cons of doing the surgery. Medication has never worked effectively...
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atu276 amygdalohippocampectomy
Created by atu276at7/5/08 - 10:57 pm|29 Views|1 Comment Posted To: Surgery Issues Needing support and ideas on dealing with my upcoming surgery (amygdalohippocampectomy). What are some of the things I can expect when I go to my room after the surgery , I'm more worried about my husband and mother then me. If There is someone out there...
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KR amygdalohippocampectomy of left TL....help/advice from anyone gre...
Created by KRat7/13/07 - 12:02 pm|346 Views|2 Comments Posted To: Surgery Issues I am 27 and have had seizures for 12 years. I have complex partial seizures and secondary generalized seizures which all originate from my left temporal lobe which, according to the MRI, has some type of lesion which winds around...
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JIMBOMC Aneurysm growth
Created by JIMBOMCat11/6/09 - 8:09 am|4 Views Posted To: Surgery Issues
I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this...
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compos... Answers to Brain surgery questions.
Created by compos...at4/12/08 - 8:12 pm|119 Views|3 Comments Posted To: Surgery Issues
Hello everyone,
"What was it like? Do you still have any? How long did it take for you to recover? Were you scared?" These are just a few of the questions that are asked to me on a daily basis.
I am an individual who had a lobotomy...
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Amber28 Any ideas???
Created by Amber28at9/11/08 - 12:06 pm|16 Views Posted To: Surgery Issues This might sound like a really silly question but here goes. So I had the temporal lobectomy about 41/2 years ago and I have had this problem with my skull ever since. If I touch it wrong, or maybe rollover on it there is a spot that will pop. It is...
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jboyd any one now what the worst is to VNS
Created by jboydat12/29/05 - 9:42 pm|515 Views|2 Comments Posted To: Surgery Issues Hi ive had sezuries all my life and am 30 me and my nuroligist says im a canidate for VNS and i now alot about it from cyberonics web site and it sounds pretty easy surgerie and like its better then haveing sezuries and the bad effects...
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