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Topic: Surgery Issues

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nick71...
nick71...
New - Surgery for a fairly well controlled condition?
Created by nick71...at1/30/12 - 3:36 pm|37 Views|5 Comments
Posted To: Surgery Issues
Hello Everybody!  My name is Nick, I am 26 and was diagnosed with epilepsy when I was 19 even though I have had the complex partials since I was 10... Anyways, I have controlled epilepsy when medicated. I take 600mg of lamictal xr and vimpat 100mg...
suebear
suebear
New - Question for VNS patients: Should I be concerned?
Created by suebearat10/27/07 - 1:16 pm|598 Views|22 Comments
Posted To: Surgery Issues
Hello everyone, I've had my VNS surgery on October 15th so I'm not sure how to look at this. On one hand I'm feeling really good but on another I have been loosing a bit of energy. The pain is subsiding like they said it would and...
triggeree
triggeree
New - surgery
Created by triggereeat1/28/12 - 9:02 am|10 Views|1 Comment
Posted To: Surgery Issues
my dr has been trying to get me to operate but with all the adverse reaction i will wait until it they have it for sure you will not have all those possibilities .
smokingun
smokingun
New - Swelling & Pain - Questions following right temporal lobe removal....
Created by smokingunat1/28/12 - 10:53 am|16 Views
Posted To: Surgery Issues
My now 21 yr old son suffered a TBI 4 yrs ago... Following the last yrs medicinally uncontrollable seizures, he opted to have his RTL removed.. Test's confirmed it was inactive - for most everything but producing seizure activity.. This was surgery...
triggeree
triggeree
New - surgery
Created by triggereeat1/28/12 - 9:02 am|3 Views
Posted To: Surgery Issues
my dr has been trying to get me to operate but with all the adverse reaction i will wait until it they have it for sure you will not have all those possibilities .
shanno...
shanno...
New - Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Created by shanno...at8/9/06 - 8:52 pm|2244 Views|28 Comments
Posted To: Surgery Issues
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed...
brydy23
brydy23
New - 22 year old nervous about brain surgery
Created by brydy23at9/27/11 - 8:38 am|142 Views|12 Comments
Posted To: Surgery Issues
Hi, this is my first post I'm 22 and have had partial complex seizures my whole life. I've recently been looking into surgery now that I've graduated college and want to live out on my own and can't drive. Over the past 6 months I've had a variety...
meinmo
meinmo
New - Affects of surgery on personality, abilities, etc.
Created by meinmoat8/5/11 - 2:22 pm|49 Views|4 Comments
Posted To: Surgery Issues
My husband has had seizures since he was 18-months-old. He has been told that all his seizures are coming from a scar on his left temporal lobe. He has been on many medications that have not entirely controlled the seizures. He mainly has absence and partial...
maria08
maria08
New - Has anyone had left temporal surgery and been told it might affe...
Created by maria08at11/2/11 - 12:38 pm|117 Views|10 Comments
Posted To: Surgery Issues
MichaelK
MichaelK
New - Please tell me about your experiences with VNS surgery
Created by MichaelKat1/9/12 - 9:16 pm|4 Views
Posted To: Surgery Issues
Hi everyone!
admin
admin
Epilepsy Therapy Project - Family Day Feb 4th
Created by adminat1/4/12 - 7:10 am|2 Views
Posted To: Surgery Issues
jdurrua
jdurrua
right temporal lobectomy
Created by jdurruaat2/1/05 - 6:38 am|5484 Views|105 Comments
Posted To: Surgery Issues
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
bobtan
bobtan
The HET telescope's main mirror has employed the splicing technology
Created by bobtanat12/29/11 - 8:03 pm|1 View
Posted To: Surgery Issues
savm
savm
Dr suggesting VNS anyone had this procedure in 2010 really need i...
Created by savmat12/17/10 - 10:41 am|12 Views|1 Comment
Posted To: Surgery Issues
I am having many side effects from meds, lack of seizure control and running out of ideas.  Dr suggested VNS and would like some feedback from people that considered or had this done. All input welcome. 
pfincher
pfincher
Looking for best Surgical facilities
Created by pfincherat12/15/11 - 8:10 am|123 Views|22 Comments
Posted To: Surgery Issues
Hi All,
mbrown...
mbrown...
vns therapy
Created by mbrown...at12/19/11 - 12:00 pm|8 Views
Posted To: Surgery Issues
I have generalized epilepsy and my doctor is wanting meto consider vns, because I'veranout of medications to try.       Has anyone else had the surgery with all  over the brain seizure activity?         What were your side effects, and would...
rrjhrjmap
rrjhrjmap
Right Temporal Lobe Removal
Created by rrjhrjmapat8/11/09 - 5:15 pm|45 Views|2 Comments
Posted To: Surgery Issues
I had most of my right temporal lobed removed in December 2009, because of tumors that caused seizures. I understand that the RTLobe controls emotions. I am being told that I will be on emotional meds and or see a shrink for the rest of my life. DOes...
peyton...
peyton...
Brain Surgery Done - Now What?
Created by peyton...at4/23/11 - 1:21 pm|174 Views|18 Comments
Posted To: Surgery Issues
Beeba
Beeba
I would like to talk to people who have also had surgery
Created by Beebaat11/1/11 - 5:11 am|62 Views|6 Comments
Posted To: Surgery Issues
  Hi everyone, I had left temporal surgery 3 years ago when I was 24, and just wondered if anyone else has got depresssed since having the surgery, and self conscious about the scar?.   I've never met anyone who has had epilepsy surgery,...
r0xmyf...
r0xmyf...
Long Term Pain After Tumor Removal? Neuralgia?
Created by r0xmyf...at11/18/11 - 1:00 pm|3 Views
Posted To: Surgery Issues
Hello all! I had a golf ball sized benign tumor removed from my right temporal lobe in June of 2010. It has been quite some time, but I still experience pain near the incision site. This pain does not seem to be related to weather pressure. It can be sharp...
a_mkel...
a_mkel...
Temporal lobe surgery
Created by a_mkel...at7/28/09 - 12:05 am|986 Views|70 Comments
Posted To: Surgery Issues
Hello to everyone who lives with and loves a person with uncontrolled epilepsy. My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we...
dashaday
dashaday
Selective Amygdalohippocampectomy
Created by dashadayat11/7/11 - 8:48 pm|39 Views|3 Comments
Posted To: Surgery Issues
Hello,
crusse...
crusse...
Left Temporal Lobectomy
Created by crusse...at11/8/11 - 6:24 pm|27 Views|1 Comment
Posted To: Surgery Issues
I had my first seizure February 2010. I was away at college in my apartment talking to my mom on the phone then the next thing I knew I was at the hospital. My mom said I started crying saying I was scared then she heard the phone moving around and me gurgling....
Darcey12
Darcey12
right temporal lobectomy
Created by Darcey12at6/18/10 - 2:36 pm|186 Views|16 Comments
Posted To: Surgery Issues
Rking3
Rking3
Has anyone had surgery?
Created by Rking3at6/4/10 - 9:22 am|215 Views|16 Comments
Posted To: Surgery Issues
Hello all, I was just wondering if anyone has had some type of surgery for their epilepsy?  I'm 21 and am currently undergoing the testing required to possible have a temporal lobectomy, and I am absolutely terrified.
Kaylin
Kaylin
Different types of seizures post surgery?!?!
Created by Kaylinat10/14/10 - 4:02 pm|58 Views|8 Comments
Posted To: Surgery Issues
My son had surgery for complex partial seizures, to remove  scar tissue in his parietal lobe that was triggering seizures,  2 months ago. The scar tissue was located on the Left side of the brain, and was therefore causing seizures on the Right side of...
deep c
deep c
Left Temporal Lobe Surgery in July - I'm ready
Created by deep cat6/6/11 - 3:51 pm|116 Views|9 Comments
Posted To: Surgery Issues
I just got back from seeing my neurologist regarding the results of a depth electrode EEG a couple weeks ago. I will be going ahead with surgery in July. I have damage in the temporal lobe on both sides, but during the depth electrode EEG none of the seizures...
happygirl
happygirl
Reduction in medicine post surgery
Created by happygirlat6/9/11 - 1:23 am|67 Views|4 Comments
Posted To: Surgery Issues
It is nearly a year since my surgery and aside 2 seizures, periods of lapses in concentration, and ability to comprehend basic tasks at times all seems to be going good. My question is should you reduce your medication or keep things as they are? Doctors...
pfincher
pfincher
Reviews of Neurosurgeon Dr. Fernando Vale
Created by pfincherat10/13/11 - 12:22 pm|11 Views
Posted To: Surgery Issues
Hi, I am preparing to soon have Left Temporal Lobe Surgery to be performed by Dr. Fernando Vale in Tampa, Fl. Everything I have read and know about him and the Tampa General Hospital Epilepsy Center has been very positive. Has anyone here had him do...
pfincher
pfincher
Surgery outcomes due to seizures caused by Schizencephaly
Created by pfincherat10/13/11 - 10:42 am|7 Views
Posted To: Surgery Issues
Hi,
s10sle...
s10sle...
How has the Neuropace RNS worked for you?
Created by s10sle...at10/6/11 - 7:08 pm|8 Views
Posted To: Surgery Issues
Having epilepsy my whole life and starting medication around 1993, with very little luck from the neurologists, I was finally sent to an epileptologist around 2007. They tried another combination of meds and decided to run me through some testing to see if...
Jenny....
Jenny....
Home Aftercare from surgery
Created by Jenny....at9/27/11 - 7:56 pm|38 Views|2 Comments
Posted To: Surgery Issues
I went in for my right temp lob surgery on Sept 14th. The pain has reduced drastically, I haven't noticed any changes in my brain functions just yet and my energy level is so low. I sleep all the time. My question to everyone is did everyone needed help...
Godiva...
Godiva...
As someone in a positive recovery from neurosurgery, here are som...
Created by Godiva...at9/25/11 - 5:57 pm|21 Views
Posted To: Surgery Issues
Hi There,
rosegirl
rosegirl
Deep Brain Stimulation
Created by rosegirlat4/14/10 - 12:01 am|67 Views|5 Comments
Posted To: Surgery Issues
I know it's relatively new but if I would get surgery, I think that would be the first one I'd try. Is there anyone in here who has had that surgery or is considering it as well?
judith1
judith1
memory loss
Created by judith1at9/18/11 - 2:01 pm|10 Views
Posted To: Surgery Issues
Am all ready to be scheduled for a left anterior temporal lobectomy and trying to understand the memory loss I will have and how it will affect my everyday life. Do you just have trouble recalling details,names,etc. on command ? How much of the actual content...
Kaylin
Kaylin
Recovery from epilepsy surgery?
Created by Kaylinat8/22/10 - 1:11 pm|100 Views|8 Comments
Posted To: Surgery Issues
My 11 year old son had epilepsy surgery 4 weeks ago, following partial complex seizures that were being triggered by scar tissue in the parietal lobe.  Specifically a parietal lob resection. I know that recovery times vary, and recoveries vary in general.
wkm4818
wkm4818
seizures after brain surgery
Created by wkm4818at3/9/08 - 5:03 am|164 Views|12 Comments
Posted To: Surgery Issues
Hi....my wife had a brain tumor removed 7 years ago and since then has suffered from seizures.  She has had simple partial as well as at least one episode of Grand Mal seizures.  She takes Topomax and Keppra.  Most of the time she is fine but occassionally...
melayton
melayton
Benign brain tumor and Obsessive Compulsive Disorder together? An...
Created by melaytonat10/10/10 - 9:05 pm|88 Views|12 Comments
Posted To: Surgery Issues
 Our 16 year old son has a benign tumor in his left temporal lobe. We have been through a barrage of tests (FMRI's, EEG's Video monitoring, etc etc) to identify seizure activity and location etc and to prepare for surgery. We are waiting to meet with surgeons...
Straig...
Straig...
Surgey or No Surgey?
Created by Straig...at8/27/11 - 8:39 am|16 Views
Posted To: Surgery Issues
I have had problems controlling my seizures since senior year of high school after being taken off Dilantin and they've been getting worse everytime I've been transferred to another doctor who has either upped my does on a medication or put me on a new one.Due...
msuldan
msuldan
NYU Epilepsy Center
Created by msuldanat3/7/11 - 11:48 am|55 Views|5 Comments
Posted To: Surgery Issues
Does anyone have a particular physician to recommend at NYU' s Epilepsy Center? I am looking for a second opinion with a neurologist, for a discussion about surgery.
mzholley
mzholley
Seizures after major back surgery
Created by mzholleyat7/27/10 - 9:05 am|40 Views|3 Comments
Posted To: Surgery Issues
alexis00
alexis00
Temporal lobe tumor surgery questions
Created by alexis00at2/27/07 - 4:53 pm|2452 Views|14 Comments
Posted To: Surgery Issues
When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't remember anything afterwards. My heart...
rofler
rofler
Right Temporal Surgery Best Surgery team in California
Created by roflerat4/11/10 - 1:25 pm|42 Views|2 Comments
Posted To: Surgery Issues
FDAslave
FDAslave
VNS
Created by FDAslaveat7/26/11 - 5:25 pm|5 Views
Posted To: Surgery Issues
I'm considering the VNS implant and was curious about how much strength training would be possible with the device in place? Would bench-pressing to enlarge pectoral muscles make the implant start to surface for example? Any info would be helpful. Thx!
Rob J
Rob J
Amygdalahippocampectomy in 10 days
Created by Rob Jat6/23/07 - 12:12 pm|604 Views|7 Comments
Posted To: Surgery Issues
My amygdalahippocampectomy happens in tens and I am getting to that soul searching point. I have over analyzed, over stressed, over emotionalized both the pros and cons of doing the surgery. Medication has never worked effectively...
bonner11
bonner11
Should I have surgery?
Created by bonner11at6/17/11 - 7:06 pm|100 Views|8 Comments
Posted To: Surgery Issues
Hi! All! My doctor is suggesting that I should have surgery. I'm undecided though because about 14yrs ago I was put in the hospital to see if I was a canidate for brain surgery. Except the doctors told me I wasn't because my sz came for different directions...
phylis...
phylis...
New Breakthrough Epilepsy Surgery!
Created by phylis...at7/19/11 - 2:06 pm|28 Views|1 Comment
Posted To: Surgery Issues
Revolutionary laser surgery — a safer, less invasive alternative to brain surgery as we know it — has slowly been achieving success with brain tumor patients. Instead of the more traditional craniotomy, in which a bone flap is removed from the skull,...
deep c
deep c
Home after Surgery; great results
Created by deep cat7/18/11 - 12:34 am|30 Views
Posted To: Surgery Issues
Hi all- I haven't been on long, it's been five days in the hospital with the surgery, and I just got home this evening. I had Left Temporal lobectomy on wednesday last week. Recovery has not been fun, staying on pain killers as needed are important I was...
happygirl
happygirl
One year today
Created by happygirlat7/12/11 - 1:45 am|7 Views
Posted To: Surgery Issues
Hi there, Firstly - I am so happy it is not 12th July, 2010 as that was the date that I had my TLE surgery. I have had a couple of seizures since then but nothing major. My problem is my memory, cognative skills, conceptual skills are still...
niffer04
niffer04
VNS
Created by niffer04at6/23/11 - 9:38 am|34 Views|4 Comments
Posted To: Surgery Issues
Hi everyone.  I wanted to hear from those of you who have had VNS and the success or failures that you may have experienced.  I have a 12 year old son who has been having seizures since the age of 7.  Mostly partial complex but many do tend do generalize. ...

 
jdurrua
jdurrua
right temporal lobectomy
Created by jdurruaat2/1/05 - 6:38 am|5484 Views|105 Comments
Posted To: Surgery Issues
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
pennyh...
pennyh...
partial complex seizures
Created by pennyh...at7/25/04 - 1:24 pm|5281 Views|34 Comments
Posted To: Surgery Issues
Hi everyone, I'm new at all of this. I've never written in to chat rooms before but I could really use some information and advise, so I thought this probably would be a good place to start. My 25 year old son has been having Complex...
Deadhead
Deadhead
Right Temporal Lobe Surgery
Created by Deadheadat12/18/05 - 1:03 am|3432 Views|25 Comments
Posted To: Surgery Issues
I have been having seizures since I was 12 years old.When I was younger, my seizures although not very frequent were quite severe and I usually always went into "Status" and would always have to be brought to the hospital to be brought...
alexis00
alexis00
Temporal lobe tumor surgery questions
Created by alexis00at2/27/07 - 4:53 pm|2452 Views|14 Comments
Posted To: Surgery Issues
When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't remember anything afterwards. My heart...
sonya ...
sonya ...
My 5yr old daughter is having a functional hemispherectomy on 1/...
Created by sonya ...at1/10/06 - 4:39 pm|2283 Views|9 Comments
Posted To: Surgery Issues
Hey all! This is my first time on here. I wish that I had made this venture a while back. My five year old daughter Blakely, is having a right side, functional hemispherectomy on Jan. 26. at the Cleveland Clinic. I do know a couple...
terrij
terrij
the after life of temporal lobe sururgery
Created by terrijat1/8/06 - 12:31 pm|2280 Views|20 Comments
Posted To: Surgery Issues
I had my right temporal removed in Sept of 1994 I actually was aginniy pig for ateaching hospital in Gainesville,fl.I dont know about the rest of you, but my first two years after surgery where HELL! I was amentel case,I had to betaught...
fairyl...
fairyl...
surgery at 40
Created by fairyl...at12/6/04 - 10:55 pm|2252 Views|50 Comments
Posted To: Surgery Issues
I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for me...I have been seizure free for almost...
shanno...
shanno...
New - Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Created by shanno...at8/9/06 - 8:52 pm|2244 Views|28 Comments
Posted To: Surgery Issues
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed...
alexa
alexa
should i have surgery?
Created by alexaat2/2/05 - 1:08 pm|2198 Views|29 Comments
Posted To: Surgery Issues
could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth it. pleasesend comments on whether...
suten
suten
VNS(Experiences)
Created by sutenat6/11/05 - 1:54 pm|2065 Views|36 Comments
Posted To: Surgery Issues
Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?...
ackling17
ackling17
Surgery Results
Created by ackling17at7/24/06 - 9:58 am|2027 Views|21 Comments
Posted To: Surgery Issues
i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one dosage i have a all out seizure within...
Matt P...
Matt P...
Anyone have Lobectomy on Left Frontal Lobe?
Created by Matt P...at3/15/07 - 10:47 pm|2010 Views|18 Comments
Posted To: Surgery Issues
My son has been advised to consider having surgery. My concern is the area that his seizures seem to originate. I can't seem to find any info on surgery in this area of the brain, most of the comments I'm finding are from people...
rburford
rburford
Vagus Nerve Stimulation Therapy
Created by rburfordat1/31/05 - 9:45 pm|1998 Views|39 Comments
Posted To: Surgery Issues
I am looking for some one that has had the VNS implant procedure done.  My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure done and would be willing...
BAU
BAU
Surgery for left temporal lobectomy
Created by BAUat1/19/06 - 2:56 pm|1853 Views|12 Comments
Posted To: Surgery Issues
I would like to chat with someone who has undergone surgery recently for a left temporal lobe seizure disorder....
Nylrad
Nylrad
Anyone had surgery on left temporal lobe?
Created by Nylradat4/10/07 - 8:28 am|1835 Views|27 Comments
Posted To: Surgery Issues
I am considering having a left temporal lobectomy and would very much like to hear from others who have undergone this testing and surgery. And, since you have undergone this surgery and experienced it all, I would like to ask you...
pixiedust
pixiedust
Head staples
Created by pixiedustat2/8/07 - 4:15 pm|1833 Views|6 Comments
Posted To: Surgery Issues
Well, I finally had my head staples removed. It wasnt a pleasant experience, but Im glad theyre out. No matter how much of that numbing stuff he put on my head, it still kinda hurt when he pulled them out with a plyer. Ew. Yeah....anyone...
ladybug
ladybug
Seizure after surgery..............
Created by ladybugat10/19/06 - 5:32 am|1805 Views|12 Comments
Posted To: Surgery Issues
Good morning, I had my surgery on August 28, 2006. Basically almost 2 months ago. Last night, I had my first seizure since the operation. I was wondering how many of you all experienced this? Also, does this mean that my seizures...
mulleca
mulleca
seizure surgury
Created by mullecaat11/30/06 - 10:38 am|1802 Views|15 Comments
Posted To: Surgery Issues
I am going to have left temporal lobe surgury in Jan. or Feb. and they are talking about possible removal of my left hippocampus. Has anyone had this removed. If so, how are you doing, what can I expect? I have had a wada, and pet...
shelly...
shelly...
Questions on the left temporal lobectomy
Created by shelly...at2/23/07 - 3:59 pm|1754 Views|16 Comments
Posted To: Surgery Issues
I am scheduled to have my surgery on the 17th of April. At this point I am trying to get my affairs in order. I have a couple of questions for everyone. My first questions is how many of those who had surgery had to have their heads...
pinkan...
pinkan...
Left Temporal Lobectomy Surgery
Created by pinkan...at3/28/06 - 12:05 pm|1704 Views|20 Comments
Posted To: Surgery Issues
Hello As some of you already know I had my Wada Test done last week and I have been told now that I am a candidate for surgery. I just seem to have so many thoughts whizzing through my head at the moment of whether to take this...
ladybug
ladybug
Left Temporal Lobectomy and Brain Mapping
Created by ladybugat7/21/06 - 10:02 am|1694 Views|24 Comments
Posted To: Surgery Issues
Hey all, Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th. I've read all the material out there about surgery AND brain mapping. What I'm wanting to know is...what...
dmh
dmh
LTL Surgery February 21
Created by dmhat1/26/07 - 1:05 pm|1617 Views|18 Comments
Posted To: Surgery Issues
Hi everybody. To my friends out there I wanted to let you know that I have finally finished all of the testing and they are going to perform the surgery next month to remove part of my hippocampus in my left temporal lobe. The neurosurgeon...
pennyh...
pennyh...
Bald spots from long term EEG?
Created by pennyh...at11/22/04 - 7:17 pm|1567 Views|1 Comment
Posted To: Surgery Issues
Hi everyone,I got so much help before when I posted, I have another  question for you. I wonder if someone else has ever had this problem. Bald spots from long term EEG?  When my son was in...
sdbright
sdbright
Right Frontal Lobectomy
Created by sdbrightat9/12/06 - 11:26 am|1559 Views|6 Comments
Posted To: Surgery Issues
My 6 year old son had a right frontal lobectomy on September 23, 2005 for intractable seizures. He didn't start having seizures until Sept. 1, 2005 so I didn't get to learn a lot before surgery. I was hoping to get some input from...
nana
nana
"Brain Surgery Gone Bad"
Created by nanaat3/16/06 - 5:29 am|1472 Views|5 Comments
Posted To: Surgery Issues
I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...

 
maria08
maria08
New - Has anyone had left temporal surgery and been told it might affe...
Created by maria08at11/2/11 - 12:38 pm|117 Views|10 Comments
Posted To: Surgery Issues
cannas
cannas
no normal eegs,TLE , had week in EMU
Created by cannasat4/15/11 - 1:40 pm|33 Views|2 Comments
Posted To: Surgery Issues
Dull week in general, no seizures, although my veeg throughout the week was again abnormal. Took me off my meds and remembered what I used to feel like (I respond very well to meds but I guess not well enough). But no seizure. I hate the side-effects of...
ccalvache
ccalvache
vission issues after right temporal lobectomy
Created by ccalvacheat11/2/10 - 3:02 pm|11 Views
Posted To: Surgery Issues
Hello everyone. My name is Camilo My dad had a right temporal lobectomy in october 28 2010 (6 days ago) it was quite scarry because a couple of hours after the surgery he had to be operated again because he developed a hematoma, but after some scarry hours...
nana
nana
"Brain Surgery Gone Bad"
Created by nanaat3/16/06 - 5:29 am|1472 Views|5 Comments
Posted To: Surgery Issues
I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...
tiffinaz
tiffinaz
*Has anyone had their Right Hippocampus removed??
Created by tiffinazat5/26/10 - 10:46 pm|32 Views
Posted To: Surgery Issues
I was wandering if anyone has had their Right Hippocampus removed? If so what were the outcomes after surgery? Do you have any permanent side effects? I am having mine removed in 2 weeks as I have bilateral periventriclar nodular heterotopia and I am just...
corgilady
corgilady
1 Year Anniversary Date of Surgery Comming Soon!
Created by corgiladyat6/14/07 - 2:40 pm|374 Views|1 Comment
Posted To: Surgery Issues
Hello to all of you. I have been silent just reading posts most of the time. Yes it will be a year on 7-7-07!! What a set of numbers!! As of the date posted I will be seizure free for one year. I got a drivers lisence for the...
tcamargo
tcamargo
14 yr old son has VNS
Created by tcamargoat6/23/07 - 12:25 pm|188 Views
Posted To: Surgery Issues
Share your benefits/complication stories about the VNS. ...
apinsley
apinsley
15 Years Seizure Free
Created by apinsleyat5/28/07 - 3:38 am|390 Views|3 Comments
Posted To: Surgery Issues
In January of 1991 I had successful surgery to my right temporal lobe. I had been having seizures since the age of 14 months old after a febrile seizure. My surgery was performed at Yale-New Haven University by a top neurosurgeon...
MichaelK
MichaelK
2 rounds of seizure medicine fail and then surgery?
Created by MichaelKat10/31/08 - 9:29 am|42 Views|4 Comments
Posted To: Surgery Issues
Is it normal to have surgery for epilepsy after two types of seizure medicine fail? What has been other people's experiences been? I have had both Zonegran and Depakote fail alone and need additional medications. Now my neurologist is recommending surgery.
shelfish
shelfish
2 years post surgery and NOW siezures
Created by shelfishat8/2/07 - 1:08 pm|400 Views|4 Comments
Posted To: Surgery Issues
I have had epilepsy since i was 4yrs old and finally properly diagnosed at the age of 25. Finally after 7 yrs of docs, meds and finally surgery. I had been 2 yrs siezure free, but no longer. I had complex partial frontal loeb intereactive...
brydy23
brydy23
New - 22 year old nervous about brain surgery
Created by brydy23at9/27/11 - 8:38 am|142 Views|12 Comments
Posted To: Surgery Issues
Hi, this is my first post I'm 22 and have had partial complex seizures my whole life. I've recently been looking into surgery now that I've graduated college and want to live out on my own and can't drive. Over the past 6 months I've had a variety...
janeart
janeart
3yr old may need surgery - please help
Created by janeartat8/22/06 - 9:23 am|448 Views|1 Comment
Posted To: Surgery Issues
Hi, Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no history). I've read that often in cases of...
Kelly G.
Kelly G.
5 weeks b4 surgery and NY State wants to discontinue my insurance...
Created by Kelly G.at8/26/06 - 4:56 am|305 Views|4 Comments
Posted To: Surgery Issues
I am ready to choke the people who work for the state and don't seem to care about anyone else. I finally have my surgery planned to help stop my seizures, on Sept 27th at Albany Medical Center and the state says I make too much money...
quirky
quirky
6 months free of seizures :-)
Created by quirkyat11/20/08 - 5:41 am|36 Views|2 Comments
Posted To: Surgery Issues
Hi all,   It's actually been a while since I have been on the site. It's been a busy year for me. I had brain surgery last May 22nd to remove a lesion in my left pariatel lobe that was causing my seizures. That all went well until a few...
kajjms
kajjms
? low grade glioma
Created by kajjmsat11/3/07 - 7:12 am|249 Views|1 Comment
Posted To: Surgery Issues
I have been possibly diagnosed with a low grad glioma but cannot get an accurate diagnosis due to the poor location of the 1.5 cm lesion in the left occipital lobe. I started having seizures and have been having problems with speech...
babzy
babzy
?surgery,,is it worth the trama
Created by babzyat10/5/07 - 10:31 pm|767 Views|24 Comments
Posted To: Surgery Issues
hi everyone, i've reached the point of trying 7 drugs to control my seizures which are auras to simple to complex partial..my activity is in the left temporal lobe. can anyone shed light on the recovery of surgery.. i...
Darrel
Darrel
A New Trial Surgery
Created by Darrelat1/31/06 - 6:13 pm|1090 Views|7 Comments
Posted To: Surgery Issues
There is a brand new surgery that is still in the trial stage of production, that I was wanting to discuss and possibly get some opinions on it. This is the surgery of: Interceptâ„¢ Epilepsy Control System. This is similar to...
Spike.
Spike.
ABC Nightline - Baby Has Half of His Brain Removed to Treat Seizures
Created by Spike.at12/30/10 - 4:39 pm|18 Views
Posted To: Surgery Issues
While watching ABC news this evening (Thursday, December 30, 2010) the news anchor gave some brief information about a baby that had half of his brain removed to treat seizures. And at the end of this one news story the news anchor mentioned that more...
rose25
rose25
advice on surgery decision
Created by rose25at1/11/11 - 7:26 pm|25 Views|4 Comments
Posted To: Surgery Issues
My one year old daughter is on her second medication and the seizures are still not controlled.  Our doctor wants to do surgery to remove the abnormal area of her brain that is causing the seizures, but I am really nervous about this.  She has no developmental...
meinmo
meinmo
New - Affects of surgery on personality, abilities, etc.
Created by meinmoat8/5/11 - 2:22 pm|49 Views|4 Comments
Posted To: Surgery Issues
My husband has had seizures since he was 18-months-old. He has been told that all his seizures are coming from a scar on his left temporal lobe. He has been on many medications that have not entirely controlled the seizures. He mainly has absence and partial...
redcro
redcro
after brain surgery
Created by redcroat5/12/09 - 12:04 pm|49 Views
Posted To: Surgery Issues
i fell from 5 meters 2 months ago on my head, had 2 skull fractures and 2 hematomas, they were both removed, now i survived. i wanted to know, can drinking 1 beer or smoking a joint cause epilepsy ( i dont have it at the moment). thank you
happygirl
happygirl
After effects from Surgery
Created by happygirlat9/1/10 - 11:05 pm|85 Views|10 Comments
Posted To: Surgery Issues
  Hi All, I had left temporal lobe surgery on the 12th July this year.  The first month was great - nothing really to complain about and I spent most of my days going for walks and then relaxing at home. I then started working (11 August)...
cass30
cass30
After right temperol lobe surgery
Created by cass30at2/27/10 - 4:49 pm|39 Views|5 Comments
Posted To: Surgery Issues
I am close to 3 months post op after having right temperol lobe surgery and initial recovery went well with the first 4 weeks pretty tough and painful but good progress after that each day/week. However after the 8 weeks i went back to work and felt really...
cass30
cass30
After right temperol lobe surgery
Created by cass30at5/14/10 - 5:25 pm|56 Views|3 Comments
Posted To: Surgery Issues
Hi there
happygirl
happygirl
After Surgery
Created by happygirlat11/12/10 - 3:31 pm|66 Views|9 Comments
Posted To: Surgery Issues
Hi All, Sorry I have a few questions post surgery that I hope you can help with. 1. What does the post MRI do. 2. Seems I am very anxious (don't recall this being as huge a problem until I went on medicine).  Can medicine case anxiety side...