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Topic: Surgery Issues

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rvsoest
rvsoest
New - Hippocampal transection of left temporal lobe
Created by rvsoestat2/1/10 - 12:17 pm|13 Views|1 Comment
Posted To: Surgery Issues
Hi I'm having epilepsy for 23 yrs. now, and my neurologist wants to try a new kind of operating on me called: Hippocampal transection of the left temporal lobe. Has anybody heard of this? What is does is instead removing the left temporal lobe, it is...
quirky
quirky
New - Left Parietal Lobe - surgery
Created by quirkyat4/12/08 - 9:22 am|38 Views|4 Comments
Posted To: Surgery Issues
Hi, I have parietal lobe epilepsy and have just found out yesterday that I got the green light for surgery. I hav yet to meet the neurosurgon and discuss how successful it could be and the risks involvoed if I still want to go through with it. The...
Xander...
Xander...
New - Help! Seizures following Focal Cortical Resection
Created by Xander...at2/6/10 - 1:21 am|3 Views
Posted To: Surgery Issues
yvonne...
yvonne...
New - Can U recommend a good VNS surgeon?
Created by yvonne...at3/6/09 - 5:52 pm|46 Views|5 Comments
Posted To: Surgery Issues
Hi. I am looking for the best VNS surgeon I can find. If you or someone you know had a great experience with a very experienced surgeon, would you please email me at 2879@sbcglobal.net. Thanks
JLinz911
JLinz911
New - Sister has Seizure 6 weeks after surgery
Created by JLinz911at2/1/10 - 7:15 am|30 Views
Posted To: Surgery Issues
beaner...
beaner...
New - Temporal Lobe Epilepsie - bening tumor surgery
Created by beaner...at1/27/10 - 11:45 am|14 Views|1 Comment
Posted To: Surgery Issues
        Hello to anyone reading this.        I am currently 24 years old and have been suffering from undiagnosed gran-mal epilepsie for 5 years.        Recently (Jan 12th), I probably had one of my worst experiences...
mommy2...
mommy2...
New - Looking into a corpus collostomy ....
Created by mommy2...at10/11/07 - 10:05 am|223 Views|4 Comments
Posted To: Surgery Issues
I am looking for anyone who has had a corpus collostomy. We are looking into this for my 2 year old son who has many drop seizures everyday. Any info would be greatly appreciated....
jdurrua
jdurrua
New - right temporal lobectomy
Created by jdurruaat2/1/05 - 6:38 am|5106 Views|88 Comments
Posted To: Surgery Issues
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
Angie87
Angie87
New - Depression after surgery
Created by Angie87at9/21/09 - 8:55 pm|56 Views|3 Comments
Posted To: Surgery Issues
Hello,
s_a_n_j_u
s_a_n_j_u
New - Anybody underwent Occipital Lobe Epilepsy Surgery?
Created by s_a_n_j_uat4/19/09 - 9:29 am|52 Views|9 Comments
Posted To: Surgery Issues
Need help in reading my MRI for brain surgery.Doctors have said that this is Occipital Lobe Epilepsy Surgery.The MRI can be found in http://www.esnips.com/web/sanjuv999-MRI Has anybody underwent a surgery for the same?Any advise for the same/feedback/comment...
ahardway
ahardway
New - Blood Inside your ears during post surgery recovery period?
Created by ahardwayat12/12/08 - 9:32 pm|142 Views|13 Comments
Posted To: Surgery Issues
I Had surgery done to my Left  tempral lobe this passed November 4th 2008.  It is now December 13 2008 making it 6 weeks since. All of the pain from where they cut into my brain and skull as well as the pain on the left side of my jaw line is over, but last...
jillsmom
jillsmom
New - resective surgery for infants, I'm mom and I need help!
Created by jillsmomat1/21/10 - 1:19 pm|5 Views
Posted To: Surgery Issues
My daughter is now 9 months old and has been living with daily seizures since 3 months old. She has infantile spasms and tonic seizures every day, even though she is on 3 anti convulsants. She has cortical dysplagia and is scheduled for surgery in March. How...
cass30
cass30
New - High Altitude
Created by cass30at1/21/10 - 8:14 am|6 Views
Posted To: Surgery Issues
Does anyone have any experience of after having right temperol lobe and going through a 6-8 week recovery period and then going back to live/work at high altitude of over 10,000ft. Before surgery i did live at altitude as well and didnt notice it to be any...
jaji45
jaji45
New - has anyone had this type of surgery corpus callotomy
Created by jaji45at1/20/10 - 7:22 am|9 Views|1 Comment
Posted To: Surgery Issues
my son is diagnosed with  lenox gastaut syndrome n needs to get this surgery corpus callotomy done  i am looking for anyone who has had this surgery done to let me know how their experience went with it i am a nervous reck just thinking about
jillsmom
jillsmom
New - resective surgery or gyrectomy
Created by jillsmomat1/19/10 - 2:22 pm|6 Views
Posted To: Surgery Issues
I have a 9 month old daughter who is going to have surgery for her epilepsy/cortical dysplagia next month. Does any one have experience with this surgery, especially for infants?
a_mkel...
a_mkel...
New - Temporal lobe surgery
Created by a_mkel...at7/28/09 - 12:05 am|351 Views|32 Comments
Posted To: Surgery Issues
Hello to everyone who lives with and loves a person with uncontrolled epilepsy. My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we...
babygi...
babygi...
New - VNS surgery
Created by babygi...at9/29/08 - 8:44 pm|109 Views|11 Comments
Posted To: Surgery Issues
I was diagnosed with epilepsy at 13. I lost my teenage years to trips to the ER, medication, tests, and medication side effects. After 6 years of trying to find a medication that would control all of my seizures I am running short on patience. I am so tired...
nancyjudy
nancyjudy
My sisters' nightmare with the Cyberonics vns device
Created by nancyjudyat1/10/10 - 6:08 am|31 Views
Posted To: Surgery Issues
 Several members of my family have a seizure disorder, epilepsy, whatever you choose to call it. My younger sister, 44, who was, and I repeat WAS, a registered nurse and a single mom who was in the process of purchasing her first home with the pretty good...
robin4902
robin4902
Right Temporal Lobectomy
Created by robin4902at11/19/09 - 5:02 pm|37 Views|4 Comments
Posted To: Surgery Issues
Hi all-For anybody that might be interesting in pursuing brain surgery,  I'd be happy to discuss my situation.  I had a right temporal lobectomy in December, 2008 at Tampa General Hospital (GREAT staff) and have been seizure free ever since.  Surgery was...
mark_88
mark_88
Headed for surgery today!
Created by mark_88at10/8/09 - 10:42 am|109 Views|10 Comments
Posted To: Surgery Issues
anxiously awaiting to get there....im leaving to go to london, ontario for my brain surgery (temporal lobectomy) today and ive been waiting for so many years for this day!!! 21yrs in the suffering of comlex partials and 3 grandmals throughout my life and ...
silverose
silverose
Occipital lobe epilepsy surgery?
Created by silveroseat11/14/09 - 6:01 pm|6 Views|1 Comment
Posted To: Surgery Issues
Hi I am brand new to this site and am looking for some help and perhaps a little reassurance. I have suffered with seizures since I was 10 due to a birth defect in my occipital lobe which has also left me visually disabled. I have been relatively well controlled...
psgutters
psgutters
Nocturnal seizure?
Created by psguttersat12/17/09 - 11:27 pm|20 Views
Posted To: Surgery Issues
lynanne
lynanne
right frontal lobe surgery-may have it very soon!
Created by lynanneat4/26/06 - 7:52 pm|1298 Views|21 Comments
Posted To: Surgery Issues
This ? has been asked before, but I'll try again. not much response to the last person who asked. i guess not many people have frontal lobe surgery. my 25yo daughter may be a good candidate for it. i want to know more about the effects...
suemdan
suemdan
VNS surgery and post-operative problems
Created by suemdanat8/6/09 - 4:09 pm|75 Views|6 Comments
Posted To: Surgery Issues
Hi 4 weeks ago I had a vns implanted and have had some problems since - have any of you had either of these happen?
steelr...
steelr...
VNS
Created by steelr...at6/22/09 - 8:55 pm|51 Views|4 Comments
Posted To: Surgery Issues
does any one have the VNS and if u do has it ever broke on you are do you know anyone that has it and it broke.
Angie87
Angie87
post temporal lobectomy issues
Created by Angie87at5/9/09 - 4:50 pm|95 Views|4 Comments
Posted To: Surgery Issues
Hello everyone,
vic
vic
DAILY HEAD PAIN AFTER TEMPORAL LOBECTOMY
Created by vicat11/13/09 - 1:19 pm|56 Views|3 Comments
Posted To: Surgery Issues
My daughter had a left temporal lobectomy, following placement and removal of subdural grids and depth electrodes, January 27th 2009. We went about 5 months with NO SEIZURES- YAY! Unfortunately, at right about 6 months, she began having very severe head...
chasejena
chasejena
I NEED YOUR HELP - Surgery Question
Created by chasejenaat9/28/09 - 6:36 am|94 Views|8 Comments
Posted To: Surgery Issues
This past weekend I saw, on an episode of W-Five, a story called The Brainstorm Within.  It was discussing surgery for epilepsy that is NOT well known.  My posting is to guage opinions on this and to HOPEFULLY hear from someone who has had the surgery...
gregg9130
gregg9130
AFTER SURGERY-IS THAT FEELING A SEIZURE???????
Created by gregg9130at4/8/07 - 3:05 pm|486 Views|7 Comments
Posted To: Surgery Issues
HELLO!I HAD A LEFT FRONTAL LOBE RESECTION ON MARCH 20,2007 I USED TO HAVE 1-5 SEIZURES IN MY SLEEP EVERY NIGHT .NOW NONE.BUT SOMETIMES I GET FAMILIAR FEELINGS IN MY HEAD.ITS NOT STRONG ENOUGH FOR AN AURA BUT IT FEELS LIKE ONE.I DON'T...
Fawn1981
Fawn1981
Contemplating Surgery
Created by Fawn1981at9/23/09 - 12:50 pm|85 Views|7 Comments
Posted To: Surgery Issues
trese291
trese291
Corpus Callosotomy Sugery
Created by trese291at6/20/06 - 9:39 am|775 Views|5 Comments
Posted To: Surgery Issues
My 8 yr old son has intractable epilepsy. He is severely developmentally delayed and three seizures meds plus the VNS. The latest "treatment" the doctors want to try is corpus callosotomy. I would like to hear from anyone who has...
maryhe...
maryhe...
Headaches after surgery
Created by maryhe...at1/27/07 - 11:09 am|1134 Views|16 Comments
Posted To: Surgery Issues
Anyone else have the monster headaches following surgery? I had mine done on Jan. 3rd and was doing quite well, and then about two weeks post op the headaches started. I am still working with my doctor to find the best way to deal...
JIMBOMC
JIMBOMC
Aneurysm growth
Created by JIMBOMCat11/6/09 - 8:09 am|4 Views
Posted To: Surgery Issues
I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this...
laracr...
laracr...
Vagus Nerve Stimulation
Created by laracr...at4/17/09 - 9:30 pm|50 Views|2 Comments
Posted To: Surgery Issues
Hi, I was diagnosed with epilepsy about a year ago but, my neurologist believes I had my whole life and it was not properly diagnosed due the fact that my partials were blame on ADHD. Anyway, my partials have been getting  increasingly worse and I am having...
milw.girl
milw.girl
Just had surgery
Created by milw.girlat3/29/09 - 6:38 pm|121 Views|6 Comments
Posted To: Surgery Issues
I've had partial complex seizures starting while I was in HS, in the years of the late '90's.  I used to have them well mainted and so I could drive.  Then in the mid '00's things sort of broke out of control I'll say and I began having them once a...
Emz21
Emz21
Information on left temporal lobe surgery - can anyone give me an...
Created by Emz21at4/9/08 - 3:13 pm|211 Views|8 Comments
Posted To: Surgery Issues
Hi everyone, i know this is pretty similar to a few other posts on here, but i just wanted to know if there were people that could give me some information/advice on the left temporal lobe resection that i'm having in the summer. Basically this is my situation:
davnic13
davnic13
Risk of left temporal lobe surgery
Created by davnic13at8/23/09 - 8:43 pm|54 Views|3 Comments
Posted To: Surgery Issues
I am 30 and have had epilepsy for about 7 years over that time things havent improved, they have gradually got worse. I recently went to see my neuro and i was very surprised that the first thing he mentioned was surgery. However he did say that because...
GetBac...
GetBac...
Changes in skull shape?
Created by GetBac...at10/21/09 - 10:40 pm|20 Views|3 Comments
Posted To: Surgery Issues
Hello!,     I had a temporal lobectomy a few years back and I was wondering if anyone who had the surgery can answer a couple of questions that have been bugging me.     1. The shape of my skull is more uneven than it used to be, and sometimes...
yvonne...
yvonne...
Have you had a good experience with your VNS
Created by yvonne...at3/27/09 - 4:25 pm|134 Views|10 Comments
Posted To: Surgery Issues
Do you have an VNS and have no problems with your voice or hearing the VNS go off? I have a friend who is looking at getting his VNS for depression and he would really like to talk to a few people who have minimal to no voice/sound alterations from the VNS....
cmlomax
cmlomax
VNS Surgery
Created by cmlomaxat8/4/09 - 3:11 pm|13 Views|1 Comment
Posted To: Surgery Issues
I hope someone can help me. I had VNS surgery almost 2 months ago, since the surgery I have been extremely tired. I don't have the energy to do any tasks. If I do accomplish something I usually have to take a nap afterwards (2 hours). My doctor says that it...
wellness
wellness
VNS and GI problems Please help!
Created by wellnessat10/5/09 - 4:44 pm|23 Views
Posted To: Surgery Issues
Looking for a connection between vns and gastroparesis/gi problems.I have had my VNS for 5 years now and I just had a new generator put in. However, for a number of months I have had serious GI problems. I woke up with a stomach ache during the night and have...
ghost72
ghost72
vns
Created by ghost72at9/17/09 - 10:23 am|75 Views|8 Comments
Posted To: Surgery Issues
i have had two brain surgerys one at 17 and one at 25,i might have the chance to have the vns surgery but i dont want to go threw the pain of surgery again,can anyone tell me about it and does it or did it hurt?
Godiva...
Godiva...
Surgery - How Long Is The Process?
Created by Godiva...at7/3/09 - 9:11 am|86 Views|6 Comments
Posted To: Surgery Issues
Hi, I have been stopping by and reading lots on surgery - I've also been looking at www.epilepsy.ca and London Science Center http://www.uwo.ca/cns/pages/programs/epilepsy.htm - where I'd get referred.
ValNew...
ValNew...
Surgery...How do you decide?
Created by ValNew...at9/16/08 - 6:58 am|336 Views|37 Comments
Posted To: Surgery Issues
I know opting for surgery is a personal decision, but I just want to explore other's experiences... My son, 12yrs, has partial seizures, some Simple, some Complex.  He's on two meds, both causing cognitive side effects, which of course makes learning...
vdw
vdw
Can you have surgery on both sides of your brain if you are still...
Created by vdwat8/23/09 - 6:31 pm|10 Views|1 Comment
Posted To: Surgery Issues
i need help....
Beelez...
Beelez...
Pain After Surgery
Created by Beelez...at8/19/09 - 9:00 pm|65 Views|6 Comments
Posted To: Surgery Issues
Hi, I just had surgery two weeks ago, I am still recovering & I am having alot of headaches, worse than when I was in the hospital, I am taking the required/suggested amount allowed to take to help w/ the pain.  The pain killers are supposed to last...
vic
vic
DAILY Head pain/ HEADACHE and seizures: Began 5 months after left...
Created by vicat8/19/09 - 4:30 pm|38 Views
Posted To: Surgery Issues
Hi,
saleegirl
saleegirl
Want to hear and share about others' experiences with Neurosurger...
Created by saleegirlat5/27/09 - 7:34 pm|155 Views|7 Comments
Posted To: Surgery Issues
I am a 25 year-old female with adult-onset epilepsy, which began when I was 21 years old. After a long, uphill battle trying to get my seizures under control with various types of meds, I began treatment at the Mayo Clinic in Phoenix (where I happen to live-great...
rrjhrjmap
rrjhrjmap
Right Temporal Lobe Removal
Created by rrjhrjmapat8/11/09 - 5:15 pm|19 Views
Posted To: Surgery Issues
I had most of my right temporal lobed removed in December 2009, because of tumors that caused seizures. I understand that the RTLobe controls emotions. I am being told that I will be on emotional meds and or see a shrink for the rest of my life. DOes...
bsfore...
bsfore...
Surgery twice
Created by bsfore...at1/16/09 - 9:22 pm|79 Views|4 Comments
Posted To: Surgery Issues
Has anyone here had surgery more than one time because the first time didnt work for them? I had surgery in 2006. After the first couple months I thought everything had gone well but then I started having seizures again. So, since then I have started back...

 
pennyh...
pennyh...
partial complex seizures
Created by pennyh...at7/25/04 - 1:24 pm|5262 Views|34 Comments
Posted To: Surgery Issues
Hi everyone, I'm new at all of this. I've never written in to chat rooms before but I could really use some information and advise, so I thought this probably would be a good place to start. My 25 year old son has been having Complex...
jdurrua
jdurrua
New - right temporal lobectomy
Created by jdurruaat2/1/05 - 6:38 am|5106 Views|88 Comments
Posted To: Surgery Issues
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
Deadhead
Deadhead
Right Temporal Lobe Surgery
Created by Deadheadat12/18/05 - 1:03 am|3347 Views|23 Comments
Posted To: Surgery Issues
I have been having seizures since I was 12 years old.When I was younger, my seizures although not very frequent were quite severe and I usually always went into "Status" and would always have to be brought to the hospital to be brought...
alexis00
alexis00
Temporal lobe tumor surgery questions
Created by alexis00at2/27/07 - 4:53 pm|2383 Views|11 Comments
Posted To: Surgery Issues
When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't remember anything afterwards. My heart...
sonya ...
sonya ...
My 5yr old daughter is having a functional hemispherectomy on 1/...
Created by sonya ...at1/10/06 - 4:39 pm|2278 Views|9 Comments
Posted To: Surgery Issues
Hey all! This is my first time on here. I wish that I had made this venture a while back. My five year old daughter Blakely, is having a right side, functional hemispherectomy on Jan. 26. at the Cleveland Clinic. I do know a couple...
terrij
terrij
the after life of temporal lobe sururgery
Created by terrijat1/8/06 - 12:31 pm|2264 Views|20 Comments
Posted To: Surgery Issues
I had my right temporal removed in Sept of 1994 I actually was aginniy pig for ateaching hospital in Gainesville,fl.I dont know about the rest of you, but my first two years after surgery where HELL! I was amentel case,I had to betaught...
fairyl...
fairyl...
surgery at 40
Created by fairyl...at12/6/04 - 10:55 pm|2240 Views|50 Comments
Posted To: Surgery Issues
I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for me...I have been seizure free for almost...
shanno...
shanno...
Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Created by shanno...at8/9/06 - 8:52 pm|2193 Views|23 Comments
Posted To: Surgery Issues
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed...
alexa
alexa
should i have surgery?
Created by alexaat2/2/05 - 1:08 pm|2190 Views|29 Comments
Posted To: Surgery Issues
could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth it. pleasesend comments on whether...
suten
suten
VNS(Experiences)
Created by sutenat6/11/05 - 1:54 pm|2064 Views|36 Comments
Posted To: Surgery Issues
Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?...
ackling17
ackling17
Surgery Results
Created by ackling17at7/24/06 - 9:58 am|2024 Views|21 Comments
Posted To: Surgery Issues
i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one dosage i have a all out seizure within...
Matt P...
Matt P...
Anyone have Lobectomy on Left Frontal Lobe?
Created by Matt P...at3/15/07 - 10:47 pm|2002 Views|18 Comments
Posted To: Surgery Issues
My son has been advised to consider having surgery. My concern is the area that his seizures seem to originate. I can't seem to find any info on surgery in this area of the brain, most of the comments I'm finding are from people...
rburford
rburford
Vagus Nerve Stimulation Therapy
Created by rburfordat1/31/05 - 9:45 pm|1982 Views|38 Comments
Posted To: Surgery Issues
I am looking for some one that has had the VNS implant procedure done.  My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure done and would be willing...
BAU
BAU
Surgery for left temporal lobectomy
Created by BAUat1/19/06 - 2:56 pm|1849 Views|12 Comments
Posted To: Surgery Issues
I would like to chat with someone who has undergone surgery recently for a left temporal lobe seizure disorder....
pixiedust
pixiedust
Head staples
Created by pixiedustat2/8/07 - 4:15 pm|1831 Views|6 Comments
Posted To: Surgery Issues
Well, I finally had my head staples removed. It wasnt a pleasant experience, but Im glad theyre out. No matter how much of that numbing stuff he put on my head, it still kinda hurt when he pulled them out with a plyer. Ew. Yeah....anyone...
Nylrad
Nylrad
Anyone had surgery on left temporal lobe?
Created by Nylradat4/10/07 - 8:28 am|1816 Views|27 Comments
Posted To: Surgery Issues
I am considering having a left temporal lobectomy and would very much like to hear from others who have undergone this testing and surgery. And, since you have undergone this surgery and experienced it all, I would like to ask you...
ladybug
ladybug
Seizure after surgery..............
Created by ladybugat10/19/06 - 5:32 am|1801 Views|12 Comments
Posted To: Surgery Issues
Good morning, I had my surgery on August 28, 2006. Basically almost 2 months ago. Last night, I had my first seizure since the operation. I was wondering how many of you all experienced this? Also, does this mean that my seizures...
mulleca
mulleca
seizure surgury
Created by mullecaat11/30/06 - 10:38 am|1800 Views|15 Comments
Posted To: Surgery Issues
I am going to have left temporal lobe surgury in Jan. or Feb. and they are talking about possible removal of my left hippocampus. Has anyone had this removed. If so, how are you doing, what can I expect? I have had a wada, and pet...
shelly...
shelly...
Questions on the left temporal lobectomy
Created by shelly...at2/23/07 - 3:59 pm|1740 Views|16 Comments
Posted To: Surgery Issues
I am scheduled to have my surgery on the 17th of April. At this point I am trying to get my affairs in order. I have a couple of questions for everyone. My first questions is how many of those who had surgery had to have their heads...
ladybug
ladybug
Left Temporal Lobectomy and Brain Mapping
Created by ladybugat7/21/06 - 10:02 am|1690 Views|24 Comments
Posted To: Surgery Issues
Hey all, Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th. I've read all the material out there about surgery AND brain mapping. What I'm wanting to know is...what...
pinkan...
pinkan...
Left Temporal Lobectomy Surgery
Created by pinkan...at3/28/06 - 12:05 pm|1689 Views|20 Comments
Posted To: Surgery Issues
Hello As some of you already know I had my Wada Test done last week and I have been told now that I am a candidate for surgery. I just seem to have so many thoughts whizzing through my head at the moment of whether to take this...
dmh
dmh
LTL Surgery February 21
Created by dmhat1/26/07 - 1:05 pm|1617 Views|18 Comments
Posted To: Surgery Issues
Hi everybody. To my friends out there I wanted to let you know that I have finally finished all of the testing and they are going to perform the surgery next month to remove part of my hippocampus in my left temporal lobe. The neurosurgeon...
pennyh...
pennyh...
Bald spots from long term EEG?
Created by pennyh...at11/22/04 - 7:17 pm|1567 Views|1 Comment
Posted To: Surgery Issues
Hi everyone,I got so much help before when I posted, I have another  question for you. I wonder if someone else has ever had this problem. Bald spots from long term EEG?  When my son was in...
sdbright
sdbright
Right Frontal Lobectomy
Created by sdbrightat9/12/06 - 11:26 am|1548 Views|6 Comments
Posted To: Surgery Issues
My 6 year old son had a right frontal lobectomy on September 23, 2005 for intractable seizures. He didn't start having seizures until Sept. 1, 2005 so I didn't get to learn a lot before surgery. I was hoping to get some input from...
nana
nana
"Brain Surgery Gone Bad"
Created by nanaat3/16/06 - 5:29 am|1465 Views|5 Comments
Posted To: Surgery Issues
I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...

 
nana
nana
"Brain Surgery Gone Bad"
Created by nanaat3/16/06 - 5:29 am|1465 Views|5 Comments
Posted To: Surgery Issues
I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...
corgilady
corgilady
1 Year Anniversary Date of Surgery Comming Soon!
Created by corgiladyat6/14/07 - 2:40 pm|368 Views|1 Comment
Posted To: Surgery Issues
Hello to all of you. I have been silent just reading posts most of the time. Yes it will be a year on 7-7-07!! What a set of numbers!! As of the date posted I will be seizure free for one year. I got a drivers lisence for the...
tcamargo
tcamargo
14 yr old son has VNS
Created by tcamargoat6/23/07 - 12:25 pm|186 Views
Posted To: Surgery Issues
Share your benefits/complication stories about the VNS. ...
apinsley
apinsley
15 Years Seizure Free
Created by apinsleyat5/28/07 - 3:38 am|386 Views|3 Comments
Posted To: Surgery Issues
In January of 1991 I had successful surgery to my right temporal lobe. I had been having seizures since the age of 14 months old after a febrile seizure. My surgery was performed at Yale-New Haven University by a top neurosurgeon...
MichaelK
MichaelK
2 rounds of seizure medicine fail and then surgery?
Created by MichaelKat10/31/08 - 9:29 am|38 Views|4 Comments
Posted To: Surgery Issues
Is it normal to have surgery for epilepsy after two types of seizure medicine fail? What has been other people's experiences been? I have had both Zonegran and Depakote fail alone and need additional medications. Now my neurologist is recommending surgery.
shelfish
shelfish
2 years post surgery and NOW siezures
Created by shelfishat8/2/07 - 1:08 pm|398 Views|4 Comments
Posted To: Surgery Issues
I have had epilepsy since i was 4yrs old and finally properly diagnosed at the age of 25. Finally after 7 yrs of docs, meds and finally surgery. I had been 2 yrs siezure free, but no longer. I had complex partial frontal loeb intereactive...
janeart
janeart
3yr old may need surgery - please help
Created by janeartat8/22/06 - 9:23 am|445 Views|1 Comment
Posted To: Surgery Issues
Hi, Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no history). I've read that often in cases of...
Kelly G.
Kelly G.
5 weeks b4 surgery and NY State wants to discontinue my insurance...
Created by Kelly G.at8/26/06 - 4:56 am|301 Views|4 Comments
Posted To: Surgery Issues
I am ready to choke the people who work for the state and don't seem to care about anyone else. I finally have my surgery planned to help stop my seizures, on Sept 27th at Albany Medical Center and the state says I make too much money...
quirky
quirky
6 months free of seizures :-)
Created by quirkyat11/20/08 - 5:41 am|33 Views|2 Comments
Posted To: Surgery Issues
Hi all,   It's actually been a while since I have been on the site. It's been a busy year for me. I had brain surgery last May 22nd to remove a lesion in my left pariatel lobe that was causing my seizures. That all went well until a few...
kajjms
kajjms
? low grade glioma
Created by kajjmsat11/3/07 - 7:12 am|244 Views|1 Comment
Posted To: Surgery Issues
I have been possibly diagnosed with a low grad glioma but cannot get an accurate diagnosis due to the poor location of the 1.5 cm lesion in the left occipital lobe. I started having seizures and have been having problems with speech...
babzy
babzy
?surgery,,is it worth the trama
Created by babzyat10/5/07 - 10:31 pm|762 Views|24 Comments
Posted To: Surgery Issues
hi everyone, i've reached the point of trying 7 drugs to control my seizures which are auras to simple to complex partial..my activity is in the left temporal lobe. can anyone shed light on the recovery of surgery.. i...
Darrel
Darrel
A New Trial Surgery
Created by Darrelat1/31/06 - 6:13 pm|1088 Views|7 Comments
Posted To: Surgery Issues
There is a brand new surgery that is still in the trial stage of production, that I was wanting to discuss and possibly get some opinions on it. This is the surgery of: Interceptâ„¢ Epilepsy Control System. This is similar to...
redcro
redcro
after brain surgery
Created by redcroat5/12/09 - 12:04 pm|40 Views
Posted To: Surgery Issues
i fell from 5 meters 2 months ago on my head, had 2 skull fractures and 2 hematomas, they were both removed, now i survived. i wanted to know, can drinking 1 beer or smoking a joint cause epilepsy ( i dont have it at the moment). thank you
Amber28
Amber28
After surgery issue....
Created by Amber28at9/2/08 - 3:29 pm|77 Views|2 Comments
Posted To: Surgery Issues
vincen...
vincen...
After surgery side effects query
Created by vincen...at5/23/08 - 10:30 am|50 Views|2 Comments
Posted To: Surgery Issues
Hey to all  
gregg9130
gregg9130
AFTER SURGERY-IS THAT FEELING A SEIZURE???????
Created by gregg9130at4/8/07 - 3:05 pm|486 Views|7 Comments
Posted To: Surgery Issues
HELLO!I HAD A LEFT FRONTAL LOBE RESECTION ON MARCH 20,2007 I USED TO HAVE 1-5 SEIZURES IN MY SLEEP EVERY NIGHT .NOW NONE.BUT SOMETIMES I GET FAMILIAR FEELINGS IN MY HEAD.ITS NOT STRONG ENOUGH FOR AN AURA BUT IT FEELS LIKE ONE.I DON'T...
kimberlyw
kimberlyw
age consideration for surgery
Created by kimberlywat1/28/04 - 11:28 am|500 Views|3 Comments
Posted To: Surgery Issues
My son is eleven and we have been considering surgery for his seizures. We are wondering if it would be beneficial to wait till he's alittle older or would we get a better recovery now as far as the brain's ability to remap itself....
Rob J
Rob J
Amygdalahippocampectomy in 10 days
Created by Rob Jat6/23/07 - 12:12 pm|585 Views|6 Comments
Posted To: Surgery Issues
My amygdalahippocampectomy happens in tens and I am getting to that soul searching point. I have over analyzed, over stressed, over emotionalized both the pros and cons of doing the surgery. Medication has never worked effectively...
atu276
atu276
amygdalohippocampectomy
Created by atu276at7/5/08 - 10:57 pm|29 Views|1 Comment
Posted To: Surgery Issues
Needing support and ideas on dealing with my upcoming surgery (amygdalohippocampectomy).  What are some of the things I can expect when I go to my room after the surgery , I'm more worried about my husband and mother then me.  If There is someone out there...
KR
KR
amygdalohippocampectomy of left TL....help/advice from anyone gre...
Created by KRat7/13/07 - 12:02 pm|346 Views|2 Comments
Posted To: Surgery Issues
I am 27 and have had seizures for 12 years. I have complex partial seizures and secondary generalized seizures which all originate from my left temporal lobe which, according to the MRI, has some type of lesion which winds around...
JIMBOMC
JIMBOMC
Aneurysm growth
Created by JIMBOMCat11/6/09 - 8:09 am|4 Views
Posted To: Surgery Issues
I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this...
compos...
compos...
Answers to Brain surgery questions.
Created by compos...at4/12/08 - 8:12 pm|119 Views|3 Comments
Posted To: Surgery Issues
Hello everyone, "What was it like? Do you still have any? How long did it take for you to recover? Were you scared?" These are just a few of the questions that are asked to me on a daily basis. I am an individual who had a lobotomy...
Amber28
Amber28
Any ideas???
Created by Amber28at9/11/08 - 12:06 pm|16 Views
Posted To: Surgery Issues
This might sound like a really silly question but here goes.  So I had the temporal lobectomy about 41/2 years ago and I have had this problem with my skull ever since.  If I touch it wrong, or maybe rollover on it there is a spot that will pop.  It is...
jboyd
jboyd
any one now what the worst is to VNS
Created by jboydat12/29/05 - 9:42 pm|515 Views|2 Comments
Posted To: Surgery Issues
Hi ive had sezuries all my life and am 30 me and my nuroligist says im a canidate for VNS and i now alot about it from cyberonics web site and it sounds pretty easy surgerie and like its better then haveing sezuries and the bad effects...
s_a_n_j_u
s_a_n_j_u
New - Anybody underwent Occipital Lobe Epilepsy Surgery?
Created by s_a_n_j_uat4/19/09 - 9:29 am|52 Views|9 Comments
Posted To: Surgery Issues
Need help in reading my MRI for brain surgery.Doctors have said that this is Occipital Lobe Epilepsy Surgery.The MRI can be found in http://www.esnips.com/web/sanjuv999-MRI Has anybody underwent a surgery for the same?Any advise for the same/feedback/comment...