Hello Everybody!
My name is Nick, I am 26 and was diagnosed with epilepsy when I was 19 even though I have had the complex partials since I was 10... Anyways, I have controlled epilepsy when medicated. I take 600mg of lamictal xr and vimpat 100mg...
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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Surgery Issues
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 nick71... New - Surgery for a fairly well controlled condition?
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 suebear New - Question for VNS patients: Should I be concerned?
Hello everyone, I've had my VNS surgery on October 15th so I'm not sure how to look at this. On one hand I'm feeling really good but on another I have been loosing a bit of energy. The pain is subsiding like they said it would and...
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 triggeree New - surgery
my dr has been trying to get me to operate but with all the adverse reaction i will wait until it they have it for sure you will not have all those possibilities .
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 smokingun New - Swelling & Pain - Questions following right temporal lobe removal....
My now 21 yr old son suffered a TBI 4 yrs ago... Following the last yrs medicinally uncontrollable seizures, he opted to have his RTL removed.. Test's confirmed it was inactive - for most everything but producing seizure activity..
This was surgery...
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triggeree New - surgery
my dr has been trying to get me to operate but with all the adverse reaction i will wait until it they have it for sure you will not have all those possibilities .
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 shanno... New - Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed...
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brydy23 New - 22 year old nervous about brain surgery
Hi, this is my first post
I'm 22 and have had partial complex seizures my whole life. I've recently been looking into surgery now that I've graduated college and want to live out on my own and can't drive. Over the past 6 months I've had a variety...
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meinmo New - Affects of surgery on personality, abilities, etc.
My husband has had seizures since he was 18-months-old. He has been told that all his seizures are coming from a scar on his left temporal lobe. He has been on many medications that have not entirely controlled the seizures. He mainly has absence and partial...
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maria08 |
 MichaelK |
 admin |
 jdurrua right temporal lobectomy
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
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bobtan |
savm Dr suggesting VNS anyone had this procedure in 2010 really need i...
I am having many side effects from meds, lack of seizure control and running out of ideas. Dr suggested VNS and would like some feedback from people that considered or had this done. All input welcome.
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 pfincher |
mbrown... vns therapy
I have generalized epilepsy and my doctor is wanting meto consider vns, because I'veranout of medications to try. Has anyone else had the surgery with all over the brain seizure activity? What were your side effects, and would...
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 rrjhrjmap Right Temporal Lobe Removal
I had most of my right temporal lobed removed in December 2009, because of tumors that caused seizures.
I understand that the RTLobe controls emotions. I am being told that I will be on emotional meds and or see a shrink for the rest of my life.
DOes...
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peyton... |
Beeba I would like to talk to people who have also had surgery
Hi everyone,
I had left temporal surgery 3 years ago when I was 24, and just wondered if anyone else has got depresssed since having the surgery, and self conscious about the scar?.
I've never met anyone who has had epilepsy surgery,...
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 r0xmyf... Long Term Pain After Tumor Removal? Neuralgia?
Hello all!
I had a golf ball sized benign tumor removed from my right temporal lobe in June of 2010. It has been quite some time, but I still experience pain near the incision site. This pain does not seem to be related to weather pressure.
It can be sharp...
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a_mkel... Temporal lobe surgery
Hello to everyone who lives with and loves a person with uncontrolled epilepsy.
My beautiful 9 year old daughter is due to have surgery on the 29th of Sept 2009. Whilst we are excitied about the prospect of, 70% chance of becoming seizure free - we...
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 dashaday |
crusse... Left Temporal Lobectomy
I had my first seizure February 2010. I was away at college in my apartment talking to my mom on the phone then the next thing I knew I was at the hospital. My mom said I started crying saying I was scared then she heard the phone moving around and me gurgling....
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Darcey12 |
Rking3 Has anyone had surgery?
Hello all,
I was just wondering if anyone has had some type of surgery for their epilepsy? I'm 21 and am currently undergoing the testing required to possible have a temporal lobectomy, and I am absolutely terrified.
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Kaylin Different types of seizures post surgery?!?!
My son had surgery for complex partial seizures, to remove scar tissue in his parietal lobe that was triggering seizures, 2 months ago. The scar tissue was located on the Left side of the brain, and was therefore causing seizures on the Right side of...
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 deep c Left Temporal Lobe Surgery in July - I'm ready
I just got back from seeing my neurologist regarding the results of a depth electrode EEG a couple weeks ago.
I will be going ahead with surgery in July. I have damage in the temporal lobe on both sides, but during the depth electrode EEG none of the seizures...
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 happygirl Reduction in medicine post surgery
It is nearly a year since my surgery and aside 2 seizures, periods of lapses in concentration, and ability to comprehend basic tasks at times all seems to be going good.
My question is should you reduce your medication or keep things as they are? Doctors...
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pfincher Reviews of Neurosurgeon Dr. Fernando Vale
Hi,
I am preparing to soon have Left Temporal Lobe Surgery to be performed by Dr. Fernando Vale in Tampa, Fl. Everything I have read and know about him and the Tampa General Hospital Epilepsy Center has been very positive. Has anyone here had him do...
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pfincher |
 s10sle... How has the Neuropace RNS worked for you?
Having epilepsy my whole life and starting medication around 1993, with very little luck from the neurologists, I was finally sent to an epileptologist around 2007. They tried another combination of meds and decided to run me through some testing to see if...
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 Jenny.... Home Aftercare from surgery
I went in for my right temp lob surgery on Sept 14th. The pain has reduced drastically, I haven't noticed any changes in my brain functions just yet and my energy level is so low. I sleep all the time.
My question to everyone is did everyone needed help...
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 Godiva... |
 rosegirl Deep Brain Stimulation
I know it's relatively new but if I would get surgery, I think that would be the first one I'd try. Is there anyone in here who has had that surgery or is considering it as well?
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judith1 memory loss
Am all ready to be scheduled for a left anterior temporal lobectomy and trying to understand the memory loss I will have and how it will affect my everyday life. Do you just have trouble recalling details,names,etc. on command ? How much of the actual content...
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Kaylin Recovery from epilepsy surgery?
My 11 year old son had epilepsy surgery 4 weeks ago, following partial complex seizures that were being triggered by scar tissue in the parietal lobe. Specifically a parietal lob resection. I know that recovery times vary, and recoveries vary in general.
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wkm4818 seizures after brain surgery
Hi....my wife had a brain tumor removed 7 years ago and since then has suffered from seizures. She has had simple partial as well as at least one episode of Grand Mal seizures. She takes Topomax and Keppra. Most of the time she is fine but occassionally...
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melayton Benign brain tumor and Obsessive Compulsive Disorder together? An...
Our 16 year old son has a benign tumor in his left temporal lobe. We have been through a barrage of tests (FMRI's, EEG's Video monitoring, etc etc) to identify seizure activity and location etc and to prepare for surgery. We are waiting to meet with surgeons...
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Straig... Surgey or No Surgey?
I have had problems controlling my seizures since senior year of high school after being taken off Dilantin and they've been getting worse everytime I've been transferred to another doctor who has either upped my does on a medication or put me on a new one.Due...
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msuldan NYU Epilepsy Center
Does anyone have a particular physician to recommend at NYU' s Epilepsy Center? I am looking for a second opinion with a neurologist, for a discussion about surgery.
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 mzholley |
 alexis00 Temporal lobe tumor surgery questions
When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I
would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't remember
anything afterwards. My heart...
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rofler |
 FDAslave VNS
I'm considering the VNS implant and was curious about how much strength training would be possible with the device in place? Would bench-pressing to enlarge pectoral muscles make the implant start to surface for example? Any info would be helpful. Thx!
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 Rob J Amygdalahippocampectomy in 10 days
My amygdalahippocampectomy happens in tens and I am getting to that soul searching point. I have over analyzed, over stressed, over emotionalized both the pros and cons of doing the surgery. Medication has never worked effectively...
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bonner11 Should I have surgery?
Hi! All! My doctor is suggesting that I should have surgery. I'm undecided though because about 14yrs ago I was put in the hospital to see if I was a canidate for brain surgery. Except the doctors told me I wasn't because my sz came for different directions...
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 phylis... New Breakthrough Epilepsy Surgery!
Revolutionary laser surgery — a safer, less invasive alternative to brain surgery as we know it — has slowly been achieving success with brain tumor patients.
Instead of the more traditional craniotomy, in which a bone flap is removed from the skull,...
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deep c Home after Surgery; great results
Hi all- I haven't been on long, it's been five days in the hospital with the surgery, and I just got home this evening. I had Left Temporal lobectomy on wednesday last week. Recovery has not been fun, staying on pain killers as needed are important I was...
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happygirl One year today
Hi there,
Firstly - I am so happy it is not 12th July, 2010 as that was the date that I had my TLE surgery. I have had a couple of seizures since then but nothing major.
My problem is my memory, cognative skills, conceptual skills are still...
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niffer04 VNS
Hi everyone. I wanted to hear from those of you who have had VNS and the success or failures that you may have experienced. I have a 12 year old son who has been having seizures since the age of 7. Mostly partial complex but many do tend do generalize. ...
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jdurrua right temporal lobectomy
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John...
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 pennyh... partial complex seizures
Hi everyone, I'm new at all of this. I've never written in to chat rooms before but I could really use some information and advise, so I thought this probably would be a good place to start. My 25 year old son has been having Complex...
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 Deadhead Right Temporal Lobe Surgery
I have been having seizures since I was 12 years old.When I was younger, my seizures although not very frequent were quite severe and I usually always went into "Status" and would always have to be brought to the hospital to be brought...
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alexis00 Temporal lobe tumor surgery questions
When I was in high school, I thought I was loosing my mind. I started having reoccuring instances when I
would feel an intense deja vu and experience hallucinations, hear voices, but wouldn't remember
anything afterwards. My heart...
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 sonya ... My 5yr old daughter is having a functional hemispherectomy on 1/...
Hey all! This is my first time on here. I wish that I had made this venture a while back. My five year old daughter Blakely, is having a right side, functional hemispherectomy on Jan. 26. at the Cleveland Clinic. I do know a couple...
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terrij the after life of temporal lobe sururgery
I had my right temporal removed in Sept of 1994
I actually was aginniy pig for ateaching hospital in Gainesville,fl.I dont know about the rest of you, but my first two years after surgery where HELL! I was amentel case,I had to betaught...
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 fairyl... surgery at 40
I was diagnosed with grand mal seizures at the age of 13. I was really scared about the hole situation at hand, i have heard that there are surgerys that can help, but not sure if it is right for me...I have been seizure free for almost...
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shanno... New - Experience with Cortext Dysplasia/Cortical Dysplasia & Surgery?
Does anyone have any knowledge or experience with cortext dysplasia or cortical dysplasia? This is what my 10 yr old son has now been diagnosed with pending an mri - he recently had a pet scan that the drs feel shows this. He was diagnosed...
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 alexa should i have surgery?
could someone please tell me what experiences they had when they had surgery for epilepsy? i'm debating it once again, am scared to death of the thought of surgery and i don't know if it is worth it. pleasesend comments on whether...
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 suten VNS(Experiences)
Doctor suggested my using VNS and I hate idea. I need to know you if you've used it?...
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ackling17 Surgery Results
i have had complex partial seizures since i was 8. they r controled but not very well, i take lamicatl 200am 200pm and sometimes i get double vision and feel sick from it. also if i miss one dosage i have a all out seizure within...
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 Matt P... Anyone have Lobectomy on Left Frontal Lobe?
My son has been advised to consider having surgery. My concern is the area that his seizures seem to originate. I can't seem to find any info on surgery in this area of the brain, most of the comments I'm finding are from people...
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rburford Vagus Nerve Stimulation Therapy
I am looking for some one that has had the VNS implant procedure done. My family is considering the procedure for my brother and we would like to speak with someone that has had the procedure done and would be willing...
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 BAU Surgery for left temporal lobectomy
I would like to chat with someone who has undergone surgery recently for a left temporal lobe seizure disorder....
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 Nylrad Anyone had surgery on left temporal lobe?
I am considering having a left temporal lobectomy and would very much like to hear from others who have undergone this testing and surgery. And, since you have undergone this surgery and experienced it all, I would like to ask you...
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pixiedust Head staples
Well, I finally had my head staples removed. It wasnt a pleasant experience, but Im glad theyre out. No matter how much of that numbing stuff he put on my head, it still kinda hurt when he pulled them out with a plyer. Ew.
Yeah....anyone...
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ladybug Seizure after surgery..............
Good morning,
I had my surgery on August 28, 2006. Basically almost 2 months ago. Last night, I had my first seizure since the operation. I was wondering how many of you all experienced this? Also, does this mean that my seizures...
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 mulleca seizure surgury
I am going to have left temporal lobe surgury in Jan. or Feb. and they are talking about possible removal of my left hippocampus. Has anyone had this removed. If so, how are you doing, what can I expect? I have had a wada, and pet...
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 shelly... Questions on the left temporal lobectomy
I am scheduled to have my surgery on the 17th of April. At this point I am trying to get my affairs in order. I have a couple of questions for everyone. My first questions is how many of those who had surgery had to have their heads...
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 pinkan... Left Temporal Lobectomy Surgery
Hello
As some of you already know I had my Wada Test done last week and I have been told now that I am a candidate for surgery. I just seem to have so many thoughts whizzing through my head at the moment of whether to take this...
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ladybug Left Temporal Lobectomy and Brain Mapping
Hey all,
Well, I have my surgery scheduled. I go in on the 21st of August for brain mapping and have the surgery on the 25th.
I've read all the material out there about surgery AND brain mapping. What I'm wanting to know is...what...
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dmh LTL Surgery February 21
Hi everybody. To my friends out there I wanted to let you know that I have finally finished all of the testing and they are going to perform the surgery next month to remove part of my hippocampus in my left temporal lobe. The neurosurgeon...
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pennyh... Bald spots from long term EEG?
Hi everyone,I got so much help before when I posted, I have another question for you. I wonder if someone else has ever had this problem. Bald spots from long term EEG? When my son was in...
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sdbright Right Frontal Lobectomy
My 6 year old son had a right frontal lobectomy on September 23, 2005 for intractable seizures. He didn't start having seizures until Sept. 1, 2005 so I didn't get to learn a lot before surgery. I was hoping to get some input from...
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 nana "Brain Surgery Gone Bad"
I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...
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maria08 |
 cannas no normal eegs,TLE , had week in EMU
Dull week in general, no seizures, although my veeg throughout the week was again abnormal. Took me off my meds and remembered what I used to feel like (I respond very well to meds but I guess not well enough). But no seizure.
I hate the side-effects of...
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ccalvache vission issues after right temporal lobectomy
Hello everyone. My name is Camilo
My dad had a right temporal lobectomy in october 28 2010 (6 days ago) it was quite scarry because a couple of hours after the surgery he had to be operated again because he developed a hematoma, but after some scarry hours...
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nana "Brain Surgery Gone Bad"
I was scheduled for a bain surgery in decemeber of 2001 well for some odd reason i was somewhat excited because i thought i was finally going to be siezure free. Well lucky me my doctors decided to change the date to March of 2002!...
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 tiffinaz *Has anyone had their Right Hippocampus removed??
I was wandering if anyone has had their Right Hippocampus removed? If so what were the outcomes after surgery? Do you have any permanent side effects? I am having mine removed in 2 weeks as I have bilateral periventriclar nodular heterotopia and I am just...
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 corgilady 1 Year Anniversary Date of Surgery Comming Soon!
Hello to all of you. I have been silent just reading posts most of the time.
Yes it will be a year on 7-7-07!! What a set of numbers!!
As of the date posted I will be seizure free for one year. I got a drivers lisence for the...
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tcamargo |
apinsley 15 Years Seizure Free
In January of 1991 I had successful surgery to my right temporal lobe. I had been having seizures since the age of 14 months old after a febrile seizure. My surgery was performed at Yale-New Haven University by a top neurosurgeon...
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MichaelK 2 rounds of seizure medicine fail and then surgery?
Is it normal to have surgery for epilepsy after two types of seizure medicine fail? What has been other people's experiences been? I have had both Zonegran and Depakote fail alone and need additional medications. Now my neurologist is recommending surgery.
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shelfish 2 years post surgery and NOW siezures
I have had epilepsy since i was 4yrs old and finally properly diagnosed at the age of 25. Finally after 7 yrs of docs, meds and finally surgery. I had been 2 yrs siezure free, but no longer. I had complex partial frontal loeb intereactive...
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brydy23 New - 22 year old nervous about brain surgery
Hi, this is my first post
I'm 22 and have had partial complex seizures my whole life. I've recently been looking into surgery now that I've graduated college and want to live out on my own and can't drive. Over the past 6 months I've had a variety...
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 janeart 3yr old may need surgery - please help
Hi,
Our neurologists are suggesting we look into surgery for our three year old. She has quite a bit of brain damage on the rt side possibly from stroke (we adopted at 12 mos & have no history). I've read that often in cases of...
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 Kelly G. 5 weeks b4 surgery and NY State wants to discontinue my insurance...
I am ready to choke the people who work for the state and don't seem to care about anyone else. I finally have my surgery planned to help stop my seizures, on Sept 27th at Albany Medical Center and the state says I make too much money...
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 quirky 6 months free of seizures :-)
Hi all,
It's actually been a while since I have been on the site.
It's been a busy year for me. I had brain surgery last May 22nd to remove a lesion in my left pariatel lobe that was causing my seizures. That all went well until a few...
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 kajjms ? low grade glioma
I have been possibly diagnosed with a low grad glioma but cannot get an accurate diagnosis due to the poor location of the 1.5 cm lesion in the left occipital lobe. I started having seizures and have been having problems with speech...
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babzy ?surgery,,is it worth the trama
hi everyone,
i've reached the point of trying 7 drugs to control my seizures which are auras to simple to complex partial..my activity is in the left temporal lobe.
can anyone shed light on the recovery of surgery.. i...
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Darrel A New Trial Surgery
There is a brand new surgery that is still in the trial stage of production, that I was wanting to discuss and possibly get some opinions on it. This is the surgery of: Interceptâ„¢ Epilepsy Control System. This is similar to...
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 Spike. ABC Nightline - Baby Has Half of His Brain Removed to Treat Seizures
While watching ABC news this evening (Thursday, December 30, 2010) the news anchor gave some brief information about a baby that had half of his brain removed to treat seizures. And at the end of this one news story the news anchor mentioned that more...
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rose25 advice on surgery decision
My one year old daughter is on her second medication and the seizures are still not controlled. Our doctor wants to do surgery to remove the abnormal area of her brain that is causing the seizures, but I am really nervous about this. She has no developmental...
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meinmo New - Affects of surgery on personality, abilities, etc.
My husband has had seizures since he was 18-months-old. He has been told that all his seizures are coming from a scar on his left temporal lobe. He has been on many medications that have not entirely controlled the seizures. He mainly has absence and partial...
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redcro after brain surgery
i fell from 5 meters 2 months ago on my head, had 2 skull fractures and 2 hematomas, they were both removed, now i survived. i wanted to know, can drinking 1 beer or smoking a joint cause epilepsy ( i dont have it at the moment).
thank you
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happygirl After effects from Surgery
Hi All,
I had left temporal lobe surgery on the 12th July this year. The first month was great - nothing really to complain about and I spent most of my days going for walks and then relaxing at home.
I then started working (11 August)...
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cass30 After right temperol lobe surgery
I am close to 3 months post op after having right temperol lobe surgery and initial recovery went well with the first 4 weeks pretty tough and painful but good progress after that each day/week. However after the 8 weeks i went back to work and felt really...
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cass30 |
happygirl After Surgery
Hi All,
Sorry I have a few questions post surgery that I hope you can help with.
1. What does the post MRI do.
2. Seems I am very anxious (don't recall this being as huge a problem until I went on medicine). Can medicine case anxiety side...
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