My daughter has had 2 seizures now, about 6 weeks apart.  They were 15 and 25 minutes long, partial seizures affecting her whole right side.  After reading about the side-effects you all have reported, and since she is too young...

Hi I've been taking Carbamazepine for more than 20 years. I started with 900 mg / day. Now I take 400 mg. / day. A friend of mine who also has epilepsy tells me she became immune to Carbamazepine. I was wondering if anyone has ever developed an immunity...

Does anyone know of a Plan D Medicare RX plan that includes the generic form of Keppra in its formulary?  I got some Levetiracetam at my local CVS the other day but can find no formulary that covers it.  Keppra is my most expensive med and when I hit the...

Hi, I have been on Tegretol for many years. Lately I have not been feeling good at all. My white count is below normal, I'm dizzy, headaches and migraines, body aches and chest pains. I am always so tired. I saw my primary who did some blood work and wondered...

I have been on Keppra XR and Lamictal since October and I have had great results and I have been seizure free. I was just curious to see how this combo is working on anyone else? Thanx ~Danielle

Hello,  Today over coffee I was discussing different experiences of deja vu with my workmateswhen it occured to me I couldn't think of the last time I had it even though I used to get quite vivid episodes. The conversation turned to sleep starts (hypnic...

Hello everyone. Thanks to everyone for all their great input and for making this such an informative site!

Hi, Is it normal for the side effects of medication to worsen after time rather than get better. I have currently been placed on Keppra 500 mg 2x a day and for the first 3 weeks everything was great, but this last week I have been like a raving...

Hello,

HI - our daughter was diagnosed over the summer with Absence Seizures. Her pediatric neurologist has recommended starting her on Ethosuximide. She has assured us that the side effects are primarily "upset stomach" and that can remedied by taking...

Has anyone tried this drug & appeared to be "stoned" 24/7? It has plenty of poor side effects. I don't wanta ed up  w/ a wasted 6 month episode as I had while on Pheno.  I need 6-8 .5 valium to stop a sz. It doesn't cause me to sleep,...

I am brand new here. My 8 year old daughter was diagnosed several months ago with absence seizures. She has no other issues, and no convulsions. The seizures were going on for several months and getting worse before we went to the doctor. Symptoms were...

I take Lamictal, trileptal and Keppra and sometimes I get awful Ataxia where I can barely stand up straight. Also I get awful double and scrolling vision which often affects my driving....mostly it happens in the morning and night...but I cant figure out which...

I've been on Tegretol for over 25 years and have been taking lamictal as well for my biplar II disorder. I'm tapering off over a 6 week period, and increasing the lamictal to a therapeutic level for seizure control at the same time.  I have chosen to taper...

Keppra's generic version came out sometime in November. I went to refill my subscription and without my O.K. I was given the generic, (some word I can't pronounce). I noticed it and assumed it was exactly the same. I had a Tonic-Clonic on the 1st of Dec. then...

I started lamictal nearly a year ago and had very few problems when I first went on it. I was first on depakote but due to the idea that I may go away for college I had at the time, I went on lamical. For the a good few months I felt fine and like my old self....

I take Lamictal, trileptal and Keppra and sometimes I get awful Ataxia where I can barely stand up straight. Also I get awful double and scrolling vision which often affects my driving....mostly it happens in the morning and night...but I cant figure out which...

My name is Jamie and I am a 23 year old female with Epilepsy since I was 10 years old. I have been seizure free for almost 3 years now, the last two years I have been taking Keppra(1250 mg/day). Prior to Keppra I was taking Tegretol but decided to switch...

I'm currently not on medication for my seizures (they're simple partial, not much more then aura's) and don't particularly want to be. The seizures are mild and infrequent, and don't interfere with my life at all. The problem is that I think I'm

My name is Evan and I am a 25 year old who was just switched from Keppra to Lamictal for GM seizures. I only have my seizures while I am asleep, so I do not have an aura or any other symptoms that manifest themselves to me. I have recently noticed that my...

I began taking Topamax for partial seizures in January, 2005. I have since lost 25 pounds (I am 5' 2" and am down to 102 lbs.). I just really have no appetite most of the time. I am wondering if others have lost weight like this...

hello,

My 9yr old daughter has had epilepsy since she was 5. Since then she has been on a combination of Keppra and Carbatrol. 2ml Keppra twice a day and 300mg Carbatrol twice a day. She hasn't suffered a seizure since Oct 2008! My question is, if anyone else is...

I am overly concerned and would like answers.  Why are there so many posts of people having to switch from name brand Dilantin to Phenytoin and having seizure.  I have been seizure free on Dilantin and when my insurance company United Health Care decided...

Hello; I would like to know if there are any online users that have used or know the drug Keppra for epilepsy. If so, have you heard of or wittinessed the side effect of hair loss? I have seen it written up somewhere in the merck...

I don't know how to help my 15 month old

Hello I am currently taking Tegratol and Topamax for my Complex Partial Seizures and neither medication is helping in that I am still having a seizure every couple of months. I am hoping to move across to a new medication but am petrified of weight...

Hi. I was on topamax a few months ago, i started having some sucide thoughts, and i felt that wasn't my thoguhts, but now they have switch me to lamictal and i'm gaining weight like crazy. I'm going to tell my doctor to switch me back to topamax, but have...

I know of no studies but have read accounts of generic medications from different manufacturers having different effectiveness in seizure prevention and different side effects. Any user reports of seizure type, manufacturer, dosage, effectiveness, and side...

Hi, I'm 27 and had two grand mal seizures in the past month. I don't remember anything and am pretty much out cold for 30 min afterwards, and disoriented for the remainder of the day. All my tests have come back negative and my doc...

Hey I am currently taking Trileptal (1 1/2 in the morning and 1 1/2 at night) and I use to smoke marijuana until I was told I had epilepsy after my second seizure. I believe my epilepsy is called chronic epilepsy. Ive had a total of 3 seizures (1 before...

Just come back from seeing my doctor (not 100% happy with how the appointment went, and was basically told despite my last EEG being 13 years ago, which they have lost the results to, it's gonna be hard to get me another one because of restrictions put on...

I take lamotrigine (generic Lamictal), 200mg twice daily. I buy 60 pills monthly. I recently lost insurance coverage and so I checked prices more carefully. Here is what I found. Walgreens Pharmacy $484.00 name brand Lamictal from GlaxoSmithKline $294.00...

Hi.  I've been here before freaking about my hair.  I was certain it was the Keppra that was making my hair fall out and be able to be swept up everyday.  Now I've tapered off of it to the minimum amount and I am now going up on Zonegran.  My hair is worse! ...

I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...

For those who have suffered the stupamax stupor...How long before the cognitive fog lifts? or dare I ask, does it?...

When my Fiance had his first seizure i was told he was injected with something in the ambulance to "bring him out of it". Does anyone know what that injection could have been?

I am concerned about my son, aged 22.  He developed tonic/clonics when he was 15 and was on medication until he went to uni at 18, at which time he took himself off all his meds.  He was ok until March this year, when the seizures returned worse than before...

 

Anyones out there start taking Topamax for migraines and then begin to have seizures, with no prior history of seizures?  thanks   Julie

Hi everyone, I was just wondering if anyone has experienced some hair lossor knows of a connection between hair loss and Lamictal? As i recently increased my dosage of Lamictal to 500mg a day, and i'm finding that i'm losing...

My 4 year old daughter has been on Liquid Suspension Topamax for the past year for seizures.  A couple of weeks ago I decided to put her on a Gluten and Casein Free diet to help her with her digestive issues and constipation along with her Autism.  Her...

I am trying to find a different seizure medication with fewer side effects. I can't take Dilantin or Keppra, for some reason my body won't  tolerate them. I am on Topamax 100mg daily (50/50). I have lost lots of hair.  ...Enough to make 2 wigs. I am lucky...

I'm hoping someone has had a similar experience, I feel so lost!  I had a grand mal seizure 3 years ago while pregnant with my 3rd child (never had been diagnosed with epilepsy before that).  The circumstances during the 3 weeks prior to the seizure occuring...

Hi everybody! I was told I had TLE 2 yrs ago and it was confirmed this year after 2 days of video EEG. My MRI shows an ischaemic area on left temporal lobe from an infection when I was young.

Has anyone experienced a rash while taking Levetiracetam (generic Keppra)?  Following a year of being on Keppra with no side affects and considerably increased seizure control, my insurance company sent Levetiracetam.  The difference in costs were significant...