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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Medication Issues
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 eviesm... |
maticusw New - Do Aus and Abu Dhabi have many special rules regarding drugs
Hey, I live in the Uk and Im going to Aus for the first time in the summer whilst stopping off in Abu Dhabi. I take 125mg Zonisamide and 300mg Lamotrigine twice daily. Does anybody know about any special rules and all the problems Im going to run into regarding...
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mickma... New - Thoughts on Wrong Medication
Hello, I am 46 and had my Epilepsy under control until January 2010 when being treated for another condition the Doctor gave me Amatriptaline medication. I took it for three days, within the first two days my seizures had started again so we stopped the medication...
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eviesm... New - Keppra treatment-12 year old son
I googled my question and was SO pleased to get more than I bargained for when I found this website! I have to say this has been one of the scariest and most challenging year of our lives, and I have felt as a mother at times like I'm on a deserted island,...
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christ... New - Dilantin to Lamictal (and why the he l l is the price so high??!!)
Hi,
I visited a new neurologist yesterday (a good one from my experience so far), and she suggested I get off Dilantin and switch to Lamictal.
A few questions:
1. Any experience with Lamictal (good or bad?) Side effects?
The neurologist told me...
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daj New - Vimpat
Has anyone tried Vimpat yet? If so, will you share your experiences with it (good and bad), decision to take it or not, etc.? My doctor wants me to switch to it. Thanks so much!
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vinaypuri New - Carbamazepine to Keppra
I have has seizure disorder since I was 13. I have had about 8 seizures all my life and in the past it was controlled well with Carbamazepine and Valproate. From last 6 years I have been on Carbamazepine CR - 200 mg - 2 times a day(total of 400 Mg a day)....
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 lyndi New - adderall and seizures
I recently/reluctantly put my daughter on ADHD medicine adderall due to her having problems with attention and staying in her seat, listening, so on and so on.
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 becca9... |
psycic... New - How do I tell my doctor that medical marijuana works for me?
I live in Maryland. The law here states that a doctor can give a "recommendation" for marijuana, but it's up to the patient to aquire it. If you have an oz or less you can bring up an "affirmative defense" in court and have all the...
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 gmc1004 New - patients on onfi
Hi, I want to know if anyone out there is taking the medication onfi. My doctor says they have been having good results in Europe with it but it is new to the USA. I was reading up on it and the side effects sound pretty bad- clumsy, drooling, slurred...
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 RGbrai... New - Lamictal - switch to generic lamotrigine?
Hi, everybody. I just joined this site yesterday. I saw a forum where a few people were discussing transitioning to generic lamotrigine (just released) from Lamictol. But now I can't seem to find the forum. I'm considering the generic switch and am wondering...
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 rchiecuto New - just started keppra...
I started Keppra like 2 weeks ago, and it's making me super hungry! and not even for healthy things. i've eaten 2 oatmeal packets, 3 corn dogs, ice cream, capri suns, chocolate milk and top ramen.
has this happened to anyone else? :(
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 lilcrumb3 New - Trileptal and feeling "fuzzy"?
Hi! I suffer from Complex Partial Seizures and I take Trileptal 600mg twice a day. I had a question regarding if anyone had this problem. Sometimes a little bit after I take my meds I get a feeling of "fuzziness" in my head. To be more specific,...
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 brenda29 New - Keppra and Epival is this associated with memory loss??
Hello All,
I am 29 and have been taking Keppra (750 mg,2x per day)and Epival (500mg, 2x per day) now for around 10 years. I have had the odd seizure (once a year or so)I dont know if its small or big because I just black out and later wake up with headaches...
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 kattat... New - Memory Loss & Lamictal
Hi everyone.
I'm Kat, I've been active on this board for a while but mostly in the Women With Epilepsy forum. I was going to post this in there but I feel like it should be more open to everyone since it's not focusing on women only issues.
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Turtle... |
egp New - Keppra-- Weight Gain?
I was wondering if anyone else has experienced weight gain while being on Keppra (Levetiracetam)? I have been on it for a year and a half now and have gained about 25lbs while playing a D-1 sport training 5-6 days a week with dieting. I have been training...
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keaze New - Meds discontinuation and memory
Does memory ever come back after discontinuation of Tegretol (or lamictal, or any other memory-affecting anti convulsion med)?
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milalani New - medication dosage change
Why is it that all of a sudden the dosage is not working and I have seizures. They up the dose and it works for about month then once again seizures. Is everyone like this and why does it work for this short time?
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pdl1 New - Possible cure for absence seizures
I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...
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 motie |
 amyoon |
 pbugbee New - Lamictal 6 month discount
Recently while online doing some research I discovered that the Lamictal website was offering a discount on their product to people that were using it. I entered the information to prove I was a prescriber and they sent me 6 $10 coupons to be used over the...
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columb... New - Participate in a University Study to Help Others Like Yourselves!
Hey everyone,
I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of their health. Our goal is to provide an opportunity for people...
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 chris.... New - Can't stop sleeping
Hi everyone,
I started Lyrica about 7-8 months ago. It didn't really affect me at first, not that I noticed, until 2 months ago. I noticed that while I don't have seizures anymore, my muscles jerk irregularly and I start shaking randomly. I'm always...
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cdcg19 New - Topamax and suicide thoughts
Hi. I was on topamax a few months ago, i started having some sucide thoughts, and i felt that wasn't my thoguhts, but now they have switch me to lamictal and i'm gaining weight like crazy. I'm going to tell my doctor to switch me back to topamax, but have...
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 Black.... New - Topamax Side Effects
i've been on Topamax for two months now 50mg a day.. first month was great(no seizures YAY) and no side effects.. this second month though i've been having really bad side pains, constipation this whole month, back pain, and abdominal pain constantly..
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 bonny New - Lamictal and Hair Loss
Hi everyone, I was just wondering if anyone has experienced some hair lossor knows of a connection between hair loss and Lamictal? As i recently increased my dosage of Lamictal to 500mg a day, and i'm finding that i'm losing...
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 pinkan... New - keppra withdrawal
Hi
I am in the process of withdrawing keppra and nothing to introduce. I am just curious if there is anyone on this site who has already done been through it and what sort of side effects did they have during the process?
All...
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linzys... |
David2012 New - Nebulized Propofol ??
I've read a couple articles about promising research with Nebulized Propofol, but they're at least a year old. Anyone know if there is news on this exciting treatment option?
(Meds would be delivered via an inhaler on an as-needed basis)
Thanks!...
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 suzmom New - numbness
Since having seizures (complex partial), I have experienced facial numbness - like novicaine - and it is very irritating - it comes and goes - is this something others have experienced?Is it something related to seizures...
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danp26 New - Side Effects of Epilim (Sodium Valproate)
Hello allI am 27 from London and have Nocturnal Epilepsy.When first diagnosed with Epilepsy I was given Epilim (Sodium Valproate) to control my seizures but the side effects were very bad.
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 hkhoyt Keppra XR - Generic Version
I just took some prescriptions to be refilled, including one for Keppra XR. My pharmacist informed me that a new generic version of Keppra XR just came out. Normally, my neurologist only wants me to use the brand due to differences in fillers that have...
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 admin |
Getachew My Mam Suffered by epilipsy...i think
Hi everyone,
My mam, 75years old...fell down two years before while confused by the act of her grand son...since then she was fine....... 3months before fell down again two times a day..this happened for one day only..took her to hospital for treatment...
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 prince... Secrets of Topomax
I am on the drug topomax, have basically been on it since I was 17 and I will be 23 in a couple of weeks.
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alabel... Non medication thoughts for absence seizures
My son has had absence seizures for 1 year. I am interested in connecting with those who have tried alternative options or no medication for children with Absence Seizures. I am interested in connecting with Christians who are finding hope and wisdom...
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alabel... Non medication thoughts for absence seizures
My son has had absence seizures for 1 year. I am interested in connecting with those who have tried alternative options or no medication for children with Absence Seizures. I am interested in connecting with Christians who are finding hope and wisdom...
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efullam Any information for a child on Depakote?
Hi
My daughter is 3 yrs old and is currently on three meds. We lowered her lamictal and added depakote. She is also on Keppra.
I believe her depakote is a fairly low dose based on what I have read on the site. She takes 150 mg in morning...
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mrwille11 Weaning off Keppra...Scary or not?
Sick and Tired of being Sick and Tired...
Hi all, Ok where to begin?
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epilep... Divalproex
I am newly diagnosed with Epilepsy and been given "Divalproex" 500mg. Does anybody else take this or know about it?????
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janronk Mebaral
Meabaral has been discontinued by the manufacturer. my doctor or pharma never recieved a letter. this medication keeps me seizure free. there is no generic. they stopped making it last january but informed the fda in july. will the new law just passed...
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Kade77 Droopy eyes for weaning off Keppra
I am in the second week of weaning my son off keppra. This week his right eyelid started drooping and the eye is floating some. Docs have yet to find an answer. Has anyone else had this experience and will it clear itself up?
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 s10sle... Medication side effects, are they worth it
A few years ago my seizures came back after being seizure free for a few years. The medication that I was on then was Depakote and Gabitril. I went back to a neurologist, who took me off of Gabitril and put me on Keppra and Trileptal with the Depakote. ...
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crystal1 Pain Medications
Recently diagnosed. Am wondering if anyone know if it is safe to take motrin while on keppra?
Crystal1
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snowwoman Vibrating Vision, Flashing Lights
Wondering if anyone has a similar experience or knows what this is.
I started having my vision tremble horribly every now and then about a year ago. It was like my eyeballs were trembling from side-to-side violently. Even when I shut my eyes, and squeeze...
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dawnita side effects of Lamictal
Has anyone ever experienced light sensitivity/headache with lamictal? Thank you for your help.
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theran... meds
Ok so I am 15 and I thought this would be the best forum about this
So I'm still in stage 4 up top I thought something was wrong like they
were tubler so I got checked out they said I was find so I looke up my
meds and lemictal cuases low estrogen...
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pdl1 New - Possible cure for absence seizures
I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...
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 stevo side effects of tegratol
second time on the site ,and newly diag with ep.Does or has any one had side effects while on tegratol any maybe while dinking? stevo...
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Kaya579 Why am I always cold?
I am on Trileptal and Topomax. And i'm always freezing. Even when i'm warm to the touch, i'm shivering inside. I know the meds thin out the blood, but this is crazy. Is the hormonal seizures and the screwed up hormones every single...
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jeanmo... Topamax and Weight Loss
I began taking Topamax for partial seizures in January, 2005. I have since lost 25 pounds (I am 5' 2" and am down to 102 lbs.). I just really have no appetite most of the time. I am wondering if others have lost weight like this...
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 matta25 Difference between Tegratol and Carbamazepine
Hello All,
I have been taking Tegratol for about 15-18 years now. Do to my health insurance i have to pay full price for Tegratol or get Carbamazepine for $25.00. My question is, Is there any difference between these two medication?...
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 mrtigre Keppra 500mg
Hello;
I would like to know if there are any online users that have used or know the drug Keppra for epilepsy. If so, have you heard of or wittinessed the side effect of hair loss? I have seen it written up somewhere in the merck...
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rc6002 Anyone have good results with Lamictal
Gosh seems like a lot of folks have not had good results with Lamictal. My son is changing from Tegritol to Lamictal (a long process). He is currently at 300 mg a day Lamictal and will have a blood test this...
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 dollly trileptal
Hi, my son is taking trileptal for about 2 months. We have seen a change in his school work. He is 14 years old and in his first year of high school. Does anyone know if this medicine has been known to have this side effect ? ...
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EHamma... Side effects of Lamictal
I was wondering if anyone has heard of anyone on Lamictal getting Hypoglycemia or having the effects of Hypoglycemia?A couple of times since I been on this medication, I felt dizzy and was wondering if this is a side effect of the...
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kelpetru TAKING LAMICTOL-READ ABOUT DRUG REACTION
THIS IS LONG, BUT IF YOU OR YOUR CHILD ARE TAKING LAMICTOL PLEASE READ!! I DO NOT WANT TO SCARE ANY TAKING LAMICTOL B/C IT CAN A WONDERFUL DRUG....BUT THIS IS REGARDING A SKIN REACTION TO LAMICTOL, POSSIBLY DUE TO DEPAKOT INTTERACTION---WOULD...
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 steven... Lamictal
I know that there is plenty of information on the net concerning this med, but I would like to hear from some real people who have taken it, or more specifically, have children on Lamictal. Our 14 yrold son has been on it, solid,...
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 1never... |
 elizleigh Lamictal side effects/weight changes? Or Tegretol?
Hi everyone,
For anyone who is or has been on lamictal, what has been your experience as far as weight changes or any other side effects with lamictal? I tend to gain weight very very easily and am looking for another med to try....
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 dfriedman Sex drive and seizure medications
Hello everyone,I was wondering if ANYONE has advice on what to do about the loss of sex drive from these dammed seizure meds.I am 44, have had a hysterectomy and on Carbitrol. I have NO sex drive at all. ...
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pinkan... New - keppra withdrawal
Hi
I am in the process of withdrawing keppra and nothing to introduce. I am just curious if there is anyone on this site who has already done been through it and what sort of side effects did they have during the process?
All...
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 natalya Lamictal side effects.
Hi,
I am really in trouble regarding the medicine. I took Depakote ER for my generalized seizures and been controled by it for about 5 years. In March 2004 I had a child who was born with Fetal Valproate Syndrome-syndrome caused...
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stonerock lamictal for complex partial seizures
Dr. just suggested me to switch from trileptal to lamictal after 2 months of trial on trileptal, which seems doesn't work for me. Does anyone have well control of complex partial seizures using lamictal? Thanks....
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 chubbers Is Anyone Taking Topamax
I'm 27 & I have been on on epival for 11 years. Just as I was getting comfortable with my life & getting used to epival my doctor recently made me change my medication due to my migraines. My doctor didnt want to increase my intake...
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bonny New - Lamictal and Hair Loss
Hi everyone, I was just wondering if anyone has experienced some hair lossor knows of a connection between hair loss and Lamictal? As i recently increased my dosage of Lamictal to 500mg a day, and i'm finding that i'm losing...
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 chewy Topomax and Weight Loss
I am quite worried at this point. We moved to Nevada about 6 months ago. My wife has been trying to get into a neurologist for 2 1/2 to 3 months. She has been diagnosed with JME since 1996 (took 3 years to diagnose, previous doctors...
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leesa alcohol and epilepsy
ur probably thinking im really stupid for even considering this... but im a 17 yr old girl and im currently on tegretol and lamictal... im getting off the tegretol and switching over... and i used to be able to drink in the beginning...
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momof1 facial ticks.
I am currently taking Dilantin. I don't know if this is related, but now my one eye is starting to "flicker" (may not be the right word) The bottom part of my eye moves all...
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kamit24 |
 mlisa73 Depakote--How long does it take?
I will be starting my 8-year-old daughter on Depakote tomorrow (she was diagnosed with absence ep. Wednesday). I was just wondering if anyone can tell me about how many days it takes for this drug...
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 Maggie Tegretol
Hi, just wondering if anyone has taken Tegretol?I was put on it about 2wks.ago for my seizures,but it does not seem to be helping.Has anyone else had this problem? Thanx, maggie...
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Joanne J Dilantin 30 Mg capsules
Has anyone else changed from the older Dilantin Kapseals ( white with band in middle) to the newer Dilantin capsules, either the 100 mg or 30 mg capsule? Did you have any side effects or increase in seizures after the change? Did you take precautions...
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linniec American, Canadian, or European Manufacturers of specific generics
Who are the American, Canadian, or European Manufacturers of
Levetiracetam (Keppra) and Oxcarbazepine (Trileptal) ?
Linnie
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 gypsyg GYPSYG
I'VE BEEN SUFFERING WITH EPILEPSY SINCE I WAS A TEENAGER. HERE I AM NOW 32 YEARS OLD NOW AND
TAKING 8 DIFFERNT MEDICINCES EVERY DAY. I'VE HAD THE BRAIN SURGERY IN 1999, THE VNS IN 2003.
NOTHING SEEMS TO WORKING. I HAVEN'T HAD TOO...
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tonialpha Has anyone taken a large dose of medication to control seizures?
When the Epileptologist prescribes a dose of Vimpat, I first was having the symptoms,memory, sleepines and other symptoms. My seizures were under control...Yea! I was also taking Keppra 2000 mg. I took liquid valium when I would starting having Clusters. ...
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cheyen... I take topomax Keppra Dilantin Trileptal Provigil Vns implan...
i guess at 52 im getting a little tired of having seizures.But I have to thank God for my wife who has been right there when I had My seizure.Who knows maybe they will come up with something to help aall epileptics. Stay strong strong everyone
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cheyen... I take topomax Keppra Dilantin Trileptal Provigil Vns implan...
i guess at 52 im getting a little tired of having seizures.But I have to thank God for my wife who has been right there when I had My seizure.Who knows maybe they will come up with something to help aall epileptics. Stay strong everyone
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 wldhrt13 "Stupamax" aka Topamax
For those who have suffered the stupamax stupor...How long before the cognitive fog lifts?
or dare I ask, does it?...
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 Steph618 "Who has had Insomnia w/ Keppra & Dilantin?"
Hi,everyone I'm new to this website but I started to take Keppra and Dilantin for my Generalized Tonic-Clonic Seizures. I've had Insomnia for 2 weeks and it's killing me, when I don't get enough sleep I tend to be cranky!!!! THANKS...
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Phoebe580 # of meds before you hit the right one
hi, i was wondering how many meds you have tried before you found the one that was right for you. i have tried tegratol, dilantin, mysoline, depakote, zonisamide, topamax and am now taking lamictal.
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Phoebe580 # of meds before you hit the right one
hi, i was wondering how many meds you have tried before you found the one that was right for you. i have tried tegratol, dilantin, mysoline, depakote, zonisamide, topamax and am now taking lamictal.
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 cindy ... $$$$$$$ & Pharmaceuticals
FDA panel sees suicide risks with epilepsy drugs
Published Wednesday July 16th, 2008
THE ASSOCIATED PRESS
STUMBLE UPON
WASHINGTON - Drugs used by millions of Americans to treat epileptic seizures can cause increased risks of suicide, a government...
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 erikalin (*revised) Lamictal (brand) to Lamotrigine (Generic) symptoms - h...
Preface: My questions are first. Longer story, for anyone interested, follows.
Questions
1. Have you ever had a "headache" (as a descirbe below) - sudden onset, severe pain, large area of front of the head, accompanied by all-over-the-body,...
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derric... |
 ajramey |
 kylasmom 10 year old daughter on Keppra..
My daughter just turned 10 years old this month. She was diagnosed with epilepsy last October after a small episode and placed on keppra. As, her weight increased her dosage went up as well. This school year is in the 5th week and she is doing so bad...
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pitados 11 Year old son has had 3 seizures in one year, has been prescrib...
Hi,
My son has had 3 unexpected seizures in 1 year. They've done many tests and after the second seizure, was given a clean bill of health. The doctor stated that it was unexplainable and that it could be from his brain changing from growing....
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cndjo |
Mum an... |
sunwelch 15 month old has screaming "fits" and I don't know if they are re...
I don't know how to help my 15 month old
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ches1982 |
tinah 16 y/o son--On Lamictal but having TC's--What's next?
Hi---new to the forum.
At 13-15 years old Nick had absence seizures (undiagnosed as doc's wouldn't listen to me). Very mild---and only every 3-5 mos.
Formally diagnosed at 16. Started on Lamictal (now taking 350 mg 2x/day). Side-effect...
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jackieg |
 shirln... 2 YEAR OLD SON I NEED HELP
HELLO I HAVE A 2 YEAR OLD SON THATS HAS DX (INFANTILE SPASMS ) MONOCLOYIC SEIZURES AND I NEED SOME INFORMATION ON MEDS AND VNS. MY SON BJ HAS HAD SEIZURES FOR 8 MONTHS AND HE IS ON KEPPRA, KLONIAPEN, AND ZONOGRAN. HE WAS ON...
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spfaff 2 year old started on topamax for unusual episodes
hello everyone, I am new to the site. My now 2 year old daughter has
taken her first dose of topamax this morning for her "spells". It is a
long story. I'll start from the beginning. When my daughter was about
6 months old she would...
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indyfan 2 years on meds, time to get off?
I've been taking Lamictal and Depakote since I had my brain surgery for a benign tumor
Ive only had one gran mal incident, which happened a week after my surgery. After that, I've been having absence seizures one day out of 2-4 weeks
Its...
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