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Topic: Medication Issues

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Gina M...
Gina M...
New - Lamictal and tremors
Created by Gina M...at12/21/08 - 9:13 am|104 Views|15 Comments
Posted To: Medication Issues
Anyone have any problems with tremors and shaking from lamictal?
1never...
1never...
New - I Have Epilepsy and I Hate My Life...
Created by 1never...at7/26/08 - 5:11 pm|1054 Views|96 Comments
Posted To: Medication Issues
Enough said.
sas46
sas46
New - lamictal vs. generic
Created by sas46at9/14/08 - 6:13 pm|117 Views|19 Comments
Posted To: Medication Issues
My daughter is 23 yrs old and has been on lamictal for 7 years and all has been perfectly fine. Recently the insurance company would not let her prescription be filled unless she had tried the generic brand name. She started taking the generic brand name Lamitrogine...
riahc3
riahc3
New - Trileptal and smoking marijuana
Created by riahc3at4/9/09 - 7:18 am|113 Views|13 Comments
Posted To: Medication Issues
Hey I am currently taking Trileptal (1 1/2 in the morning and 1 1/2 at night) and I use to smoke marijuana until I was told I had epilepsy after my second seizure. I believe my epilepsy is called chronic epilepsy. Ive had a total of 3 seizures (1 before...
amyoon
amyoon
New - HAIR LOSS with Zonegran!! Doctor Says There's No Such Side Effect
Created by amyoonat2/18/09 - 1:46 pm|37 Views|5 Comments
Posted To: Medication Issues
Hi.  I've been here before freaking about my hair.  I was certain it was the Keppra that was making my hair fall out and be able to be swept up everyday.  Now I've tapered off of it to the minimum amount and I am now going up on Zonegran.  My hair is worse! ...
alexis00
alexis00
New - How do you judge weight gain as a side effect? Also, anyone gain ...
Created by alexis00at7/1/09 - 8:45 am|16 Views|2 Comments
Posted To: Medication Issues
Strange question but how do you know you gained weight BECAUSE of a med? Do you gain a few lbs quickly and then stop or is it consistent weight gain over time until you change your meds?
Tabby
Tabby
New - Low medication tolerance
Created by Tabbyat1/24/09 - 2:56 pm|49 Views|1 Comment
Posted To: Medication Issues
Hi all! I just wanted to know if anybody else has issues tolerating any meds. I have simple and complex partial seizures, that are becoming worse day by day. I'm on trileptal 1500mg but its not enough to control my seizures. When the Neuro tried to...
henry199
henry199
New - Lamictal and mood changes???
Created by henry199at7/20/08 - 12:20 pm|162 Views|14 Comments
Posted To: Medication Issues
adamss...
adamss...
New - any good experiences with trileptal?
Created by adamss...at6/29/09 - 5:51 pm|23 Views|3 Comments
Posted To: Medication Issues
Nothing like fishing for the answer you want, huh? Anyways, I am going on this this week, barring any totally unexpected EEG results....I already KNOW it can totally be horrible for some people, the way my other anticonvulsants were for me...I've already...
rock956
rock956
New - Topamax for JME/Myoclonus
Created by rock956at6/30/09 - 11:21 am|13 Views|3 Comments
Posted To: Medication Issues
Hi Ive been taking Depakote/Epilim for the past 5 years. I am currently switching to Topamax. Is Topamax known to be successful at controlling the myoclonic jerks? Ive heard it is quite good at controlling the seizures but what about myoclonus? Thankyou
wldhrt13
wldhrt13
New - Topamax Two-fer
Created by wldhrt13at6/23/09 - 8:35 pm|7 Views|1 Comment
Posted To: Medication Issues
I started this medication 2 weeks ago and am on 50 mg.  will go up to 75 mg this Friday.  was wondering at what dose will my seizures stop?   my second question is i havent really had too many side effects yet (knock on wood) when do the side effect...
reba
reba
New - medication reduction
Created by rebaat6/30/09 - 1:48 pm|3 Views
Posted To: Medication Issues
avonla...
avonla...
New - Anti-seizure meds & speech problems
Created by avonla...at6/30/09 - 10:52 am|7 Views|2 Comments
Posted To: Medication Issues
My son had his first seizure (grand mal) at age 12, his second almost a year later, and 3 more after that before he turned 14, each being closer together.  Finally, a pediatric neurologist started him on the anti-seizure med, Depakote, which controlled his...
daj
daj
New - Vimpat
Created by dajat5/12/09 - 6:33 pm|195 Views|16 Comments
Posted To: Medication Issues
Has anyone tried Vimpat yet?  If so, will you share your experiences with it (good and bad), decision to take it or not, etc.?  My doctor wants me to switch to it.  Thanks so much!
rock956
rock956
New - Topamax for JME/Myoclonus
Created by rock956at6/30/09 - 11:08 am|2 Views
Posted To: Medication Issues
Hi Ive been on Depakote/Epilim for the last 5 years. Im switching to Topamax. Does anybody know if its known to be successful at controlling the myoclonic jerks  associated with Juvenile Myoclonic Epilepsy? I know its meant to be quite good at gettin...
ronile67
ronile67
New - has generic Keppra caused more seizures for anyone else?
Created by ronile67at1/5/09 - 10:24 am|515 Views|73 Comments
Posted To: Medication Issues
Keppra's generic version came out sometime in November. I went to refill my subscription and without my O.K. I was given the generic, (some word I can't pronounce). I noticed it and assumed it was exactly the same. I had a Tonic-Clonic on the 1st of Dec. then...
craigory8
craigory8
New - Now on Keppra
Created by craigory8at3/23/08 - 10:16 pm|77 Views|5 Comments
Posted To: Medication Issues
Hello everyone,  I'm now going to be on my third medication (Keppra.)  I was originally on Depakote ER.  However, I couldn't keep my weight down.  I counted my calories and was eating less than 2000 calories a day and always starving.  I...
miss_c...
miss_c...
New - Carbamazepine/tegretol retard - any views on this med/advice pls??!
Created by miss_c...at6/17/09 - 5:28 am|35 Views|5 Comments
Posted To: Medication Issues
katfaerie
katfaerie
New - starting gabapentin as an add-on med
Created by katfaerieat6/2/09 - 8:47 am|38 Views|5 Comments
Posted To: Medication Issues
i am 31 years old and first got my diagnosis of temporal lobe epilepsy when i was twenty.  i was angry for a long time and didn't want to face the facts.  i took my medication sporadically, if at all.  i suffered from frequent simple partial seizures...
jyhprice
jyhprice
New - Question about EEG's
Created by jyhpriceat6/26/09 - 11:16 am|23 Views|3 Comments
Posted To: Medication Issues
pdl1
pdl1
New - Possible cure for absence seizures
Created by pdl1at6/16/05 - 5:53 pm|15622 Views|105 Comments
Posted To: Medication Issues
I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...
ativan4me
ativan4me
New - banzel
Created by ativan4meat6/28/09 - 10:32 am|4 Views
Posted To: Medication Issues
It's been offered, but little is seen from those taking it about the good & bad effects. I no what the company claims, but I prefer to hear it from those taking it. On set sz's for an adult is the issue. Soon to see the Dr. & would appreciate from...
Believe
Believe
New - Tegretol XR Warning
Created by Believeat6/26/09 - 11:01 am|34 Views|4 Comments
Posted To: Medication Issues
Hi everyone.  I have been on Tegretol XR for quite a while now but always wondered about a warning that it has.  It says to avoid illness on this medication.  Okay, so none of ever plan on getting sick so I don't know how we are supposed to avoid it! ...
jholley
jholley
New - Tell me about Neurontin?
Created by jholleyat1/1/09 - 9:49 am|38 Views|6 Comments
Posted To: Medication Issues
Hi, I just transitioned off of Tegretol and am now taking Keppra by itself. Taking 1500mg of Keppra per day gave me too many side effects. I was drowsed out all day and couldn't sleep at night. My EOS count and liver enzymes were both extremely high....
justme222
justme222
New - Sleepy
Created by justme222at4/3/08 - 8:54 pm|49 Views|4 Comments
Posted To: Medication Issues
Hi My family says that the reason why I am feeling so tired is that I am not doing enough exercise and that I am not stimulated, and it is not as a result of the drugs.  In fact they are saying that it is all a pschyological thing and not the AED. Interested...
vigga6...
vigga6...
New - A question about epilepsy
Created by vigga6...at6/25/09 - 10:23 am|40 Views|5 Comments
Posted To: Medication Issues
         I want to ask if anger and stress can make your epilepsy much worse ? I feel, it is bad to have a medicine, which makes your temperament worse than before ?  I also think  it is very good for me to laugh.  If the medicine makes me...
RGbrai...
RGbrai...
New - Lamictal - switch to generic lamotrigine?
Created by RGbrai...at8/8/08 - 3:27 pm|565 Views|80 Comments
Posted To: Medication Issues
Hi, everybody. I just joined this site yesterday. I saw a forum where a few people were discussing transitioning to generic lamotrigine (just released) from Lamictol. But now I can't seem to find the forum. I'm considering the generic switch and am wondering...
bonny
bonny
New - Lamictal and Hair Loss
Created by bonnyat2/1/05 - 8:33 am|2391 Views|44 Comments
Posted To: Medication Issues
Hi everyone, I was just wondering if anyone has experienced some hair lossor knows of a connection between hair loss and Lamictal? As i recently increased my dosage of Lamictal to 500mg a day, and i'm finding that i'm losing...
amyoon
amyoon
New - losing my hair!
Created by amyoonat7/16/08 - 2:35 pm|147 Views|19 Comments
Posted To: Medication Issues
Hello, Is anyone else experiencing drastic hair loss from either keppra or lamictal?  This is stressing me out incredibly which is probably making it worse.  Does anyone have suggestions?  Help!
papeto
papeto
New - Clobazam
Created by papetoat6/25/09 - 11:43 pm|2 Views
Posted To: Medication Issues
I have a 9 years old son who has been taking valproic acid for a couple years. Lately he suffered a new seizure attack, and the doctor recomend us to start trying urbadan (clobazam). My son has had several learning problemd due to the medication that...
lsims1973
lsims1973
New - Ambien and depakote
Created by lsims1973at6/27/05 - 8:47 pm|468 Views|6 Comments
Posted To: Medication Issues
Hi everyone,     I have had seizures since I was 15, i am now 31.  I was seizure free for 8.5 years until recently had 2 in 2 months. The first one was from insomnia and stress.  My nerulogist...
davnic13
davnic13
New - Combination of lamictal and tegretol
Created by davnic13at6/23/09 - 5:51 pm|13 Views|2 Comments
Posted To: Medication Issues
Hello everyone,
tsciambra
tsciambra
New - Keppra & Depakote 10yr. old
Created by tsciambraat6/23/09 - 9:55 am|11 Views|1 Comment
Posted To: Medication Issues
My son was on Keppra and it was not controlling his seizures.  The doctor just added Depakote Sprinkles to his meds. He know takes 2tsp of Keppra twice a day and 3 Depakote Sprinkles twice a day. I was wondering if anyone else is taking this combination of...
cmonkman
cmonkman
New - Keppra
Created by cmonkmanat4/11/08 - 8:31 pm|378 Views|33 Comments
Posted To: Medication Issues
I am a 19 year old girl. I have only been diagnosed with epilepsy for about 7 months. I have taken various medications because my body did not react well to most. I am taking Keppra and Lamictal at the moment. I have been getting quite anxious, tense, and...
adamss...
adamss...
New - Some random keppra advice that helped me
Created by adamss...at5/19/09 - 10:41 am|53 Views|7 Comments
Posted To: Medication Issues
Hi! I just wanted to share a few pieces of advice that  made taking Keppra (generic) much easier for me, in case it can spare anyone the hell I had to deal with until learning these things. My story briefly, is that I was doing great on 250 mg 2X but it...
chloech
chloech
New - switching from depakote to lacmital + rashes
Created by chloechat3/1/08 - 8:10 pm|73 Views|14 Comments
Posted To: Medication Issues
Hi,
Jammin...
Jammin...
New - Too many side effecs with Keppra. What should I switch to??
Created by Jammin...at6/22/09 - 5:30 pm|25 Views|3 Comments
Posted To: Medication Issues
My name is Jamie and I am a 23 year old female with Epilepsy since I was 10 years old. I have been seizure free for almost 3 years now, the last two years I have been taking Keppra(1250 mg/day). Prior to Keppra I was taking Tegretol but decided to switch...
carbotrol
carbotrol
New - How can we encourage others on the benefits of good health both p...
Created by carbotrolat12/15/07 - 6:50 am|137 Views|10 Comments
Posted To: Medication Issues
Coming from a healthy, brave background I want to encouage epileptics to look into exercising and participating in marathons to cure their condition.  We all should know that stress is the primary cause of seizures and good health treats stress.  Do you agree?
ndbob
ndbob
New - Overcoming Fatigue
Created by ndbobat4/11/08 - 3:54 pm|58 Views|5 Comments
Posted To: Medication Issues
Hello,
cdcg19
cdcg19
New - Topamax and suicide thoughts
Created by cdcg19at10/12/08 - 6:36 pm|75 Views|8 Comments
Posted To: Medication Issues
Hi. I was on topamax a few months ago, i started having some sucide thoughts, and i felt that wasn't my thoguhts, but now they have switch me to lamictal and i'm gaining weight like crazy. I'm going to tell my doctor to switch me back to topamax, but have...
amyoon
amyoon
New - My Hair is Falling Out
Created by amyoonat8/4/08 - 12:57 pm|155 Views|13 Comments
Posted To: Medication Issues
Hi, I am taking 1500 mg a day of Keppra and 200 mg of Lamictal.  Is anyone losing their hair?  It's horrible.  It's so vain but still it's hard to see my thick black hair fall out in the sink and I have maybe a fifth of what I used to have.  Are...
jubatum
jubatum
New - confusing side effects from AEDs with common illness. I can't be ...
Created by jubatumat3/15/09 - 7:27 pm|91 Views|12 Comments
Posted To: Medication Issues
  I went and got a routine blood test for my dilantin levels.  I just started this dose 400mg a week ago and have been feeling sick since I started the med change from lamictal to dilantin... so a month,  I was on dilantin previous to the lamictal...
Tony1975
Tony1975
New - OFF-LABEL PRESCRIPTION DRUGS
Created by Tony1975at6/21/09 - 6:36 pm|4 Views
Posted To: Medication Issues
Does Anynody know about off-label prescriptions drugs (i.e. drugs other than Tegretol, Topomax etc) for temporal-lobe epilepsy?
Tina D...
Tina D...
New - Can too much medication make seizures worse?
Created by Tina D...at5/20/09 - 4:46 pm|56 Views|6 Comments
Posted To: Medication Issues
Hi I have been on Depakote for the past 5.5yrs and over the past 9mths have been suffering from horrible side effects that have never occurred before. They occur about 1-2hrs after taking my AM dose, eg: dizziness, nausea, dirrorea, increased ringing in...
Hotwir...
Hotwir...
New - Lamictal with other Medication (Hydrocortisone)
Created by Hotwir...at6/21/09 - 11:48 am|3 Views
Posted To: Medication Issues
Hello. I have a question about the mixing of different drugs. I have had a brain tumor removed in 97 and since then have been on some hormones such as hydrocortisone (generic of cortef) and synthroid. About 8 years after the surgery, around '04 , I started...
gypsyh...
gypsyh...
New - Hand Tremors with Epilepsy Drugs
Created by gypsyh...at6/20/09 - 7:01 pm|16 Views|2 Comments
Posted To: Medication Issues
So I finally found a drug that works for me, but the problem is the hand tremors so my question is: is there something I can do about the hand tremors with certain epilepsy drugs, especially since I am a vet tech, and constantly have to draw blood, among...
EHamma...
EHamma...
New - Side effects of Lamictal
Created by EHamma...at8/11/05 - 5:15 pm|5028 Views|42 Comments
Posted To: Medication Issues
I was wondering if anyone has heard of anyone on Lamictal getting Hypoglycemia or having the effects of Hypoglycemia?A couple of times since I been on this medication, I felt dizzy and was wondering if this is a side effect of the...
Bundy
Bundy
New - How does Trileptal affect you?
Created by Bundyat5/27/09 - 8:27 pm|48 Views|4 Comments
Posted To: Medication Issues
Hi there, I was hoping someone could give me some feedback on what it is like to be on Trileptal. ie Does it make you a bit groggy, tired, unbalanced, have trouble concentrating etc?
jmat06
jmat06
New - Keppra XR, Trileptal, and Crazy Costs!
Created by jmat06at6/10/09 - 10:38 am|11 Views|2 Comments
Posted To: Medication Issues
Hey folks.  New to the forums! I currently have partial seizures combined with generalized tonic clonic seizures; they don't occure often, but when they do, they hit HARD.  (By often, I have episodes maybe once to twice a year or so.)  I was on 5x300mg...
jamie ...
jamie ...
New - INSURANCE COMPANIES MAKING US TAKE GENERICS JUST BECAUSE THERE IS...
Created by jamie ...at6/18/09 - 8:14 pm|23 Views|3 Comments
Posted To: Medication Issues
DOES ANYBODY KNOW A WAY TO GET AROUND THE INSURANCE COMPANIES THAT ARE MAKING US TAKE THE GENERIC LAMICTAL OR ANY GENERIC MEDICINE JUST BECAUSE THERE IS A GENERIC AVAILABLE. THEY SAY IT IS JUST AS GOOD BUT HOW CAN IT BE JUST AS GOOD IF THEY ONLY REQUIRE...

 
pdl1
pdl1
New - Possible cure for absence seizures
Created by pdl1at6/16/05 - 5:53 pm|15622 Views|105 Comments
Posted To: Medication Issues
I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...
stevo
stevo
side effects of tegratol
Created by stevoat12/3/05 - 2:38 pm|8823 Views|13 Comments
Posted To: Medication Issues
second time on the site ,and newly diag with ep.Does or has any one had side effects while on tegratol any maybe while dinking? stevo...
Kaya579
Kaya579
Why am I always cold?
Created by Kaya579at12/20/05 - 5:28 pm|7661 Views|29 Comments
Posted To: Medication Issues
I am on Trileptal and Topomax. And i'm always freezing. Even when i'm warm to the touch, i'm shivering inside. I know the meds thin out the blood, but this is crazy. Is the hormonal seizures and the screwed up hormones every single...
jeanmo...
jeanmo...
Topamax and Weight Loss
Created by jeanmo...at4/1/05 - 6:46 pm|7228 Views|32 Comments
Posted To: Medication Issues
I began taking Topamax for partial seizures in January, 2005. I have since lost 25 pounds (I am 5' 2" and am down to 102 lbs.). I just really have no appetite most of the time. I am wondering if others have lost weight like this...
matta25
matta25
Difference between Tegratol and Carbamazepine
Created by matta25at2/7/06 - 2:23 pm|6224 Views|9 Comments
Posted To: Medication Issues
Hello All, I have been taking Tegratol for about 15-18 years now. Do to my health insurance i have to pay full price for Tegratol or get Carbamazepine for $25.00. My question is, Is there any difference between these two medication?...
mrtigre
mrtigre
New - Keppra 500mg
Created by mrtigreat1/30/06 - 6:14 pm|6017 Views|53 Comments
Posted To: Medication Issues
Hello; I would like to know if there are any online users that have used or know the drug Keppra for epilepsy. If so, have you heard of or wittinessed the side effect of hair loss? I have seen it written up somewhere in the merck...
rc6002
rc6002
Anyone have good results with Lamictal
Created by rc6002at1/24/05 - 8:30 am|5237 Views|99 Comments
Posted To: Medication Issues
Gosh seems like a lot of folks have not had good results with Lamictal.   My son is changing from Tegritol to Lamictal  (a long process).  He is currently at 300 mg a day Lamictal and will have a blood test this...
dollly
dollly
trileptal
Created by dolllyat2/5/05 - 9:22 am|5166 Views|41 Comments
Posted To: Medication Issues
Hi, my son is taking trileptal for about 2 months. We have seen a change in his school work. He is 14 years old and in his first year of high school. Does anyone know if this medicine has been known to have this side effect ? ...
EHamma...
EHamma...
New - Side effects of Lamictal
Created by EHamma...at8/11/05 - 5:15 pm|5028 Views|42 Comments
Posted To: Medication Issues
I was wondering if anyone has heard of anyone on Lamictal getting Hypoglycemia or having the effects of Hypoglycemia?A couple of times since I been on this medication, I felt dizzy and was wondering if this is a side effect of the...
kelpetru
kelpetru
TAKING LAMICTOL-READ ABOUT DRUG REACTION
Created by kelpetruat12/9/05 - 7:38 pm|4691 Views|13 Comments
Posted To: Medication Issues
THIS IS LONG, BUT IF YOU OR YOUR CHILD ARE TAKING LAMICTOL PLEASE READ!! I DO NOT WANT TO SCARE ANY TAKING LAMICTOL B/C IT CAN A WONDERFUL DRUG....BUT THIS IS REGARDING A SKIN REACTION TO LAMICTOL, POSSIBLY DUE TO DEPAKOT INTTERACTION---WOULD...
steven...
steven...
Lamictal
Created by steven...at1/9/05 - 7:48 am|4443 Views|48 Comments
Posted To: Medication Issues
I know that there is plenty of information on the net concerning this med, but I would like to hear from some real people who have taken it, or more specifically, have children on Lamictal. Our 14 yrold son has been on it, solid,...
elizleigh
elizleigh
Lamictal side effects/weight changes? Or Tegretol?
Created by elizleighat8/13/07 - 10:19 am|3468 Views|35 Comments
Posted To: Medication Issues
Hi everyone, For anyone who is or has been on lamictal, what has been your experience as far as weight changes or any other side effects with lamictal? I tend to gain weight very very easily and am looking for another med to try....
dfriedman
dfriedman
Sex drive and seizure medications
Created by dfriedmanat5/24/05 - 10:49 am|3252 Views|45 Comments
Posted To: Medication Issues
Hello everyone,I was wondering if ANYONE has advice on what to do about the loss of sex drive from these dammed seizure meds.I am 44, have had a hysterectomy and on Carbitrol.  I have NO sex drive at all. ...
pinkan...
pinkan...
keppra withdrawal
Created by pinkan...at4/30/06 - 5:48 am|3242 Views|41 Comments
Posted To: Medication Issues
Hi I am in the process of withdrawing keppra and nothing to introduce. I am just curious if there is anyone on this site who has already done been through it and what sort of side effects did they have during the process? All...
natalya
natalya
Lamictal side effects.
Created by natalyaat2/27/06 - 5:49 pm|3212 Views|28 Comments
Posted To: Medication Issues
Hi, I am really in trouble regarding the medicine. I took Depakote ER for my generalized seizures and been controled by it for about 5 years. In March 2004 I had a child who was born with Fetal Valproate Syndrome-syndrome caused...
stonerock
stonerock
lamictal for complex partial seizures
Created by stonerockat5/12/05 - 11:26 am|2905 Views|38 Comments
Posted To: Medication Issues
Dr. just suggested me to switch from trileptal to lamictal after 2 months of trial on trileptal, which seems doesn't work for me. Does anyone have well control of complex partial seizures using lamictal? Thanks....
chubbers
chubbers
Is Anyone Taking Topamax
Created by chubbersat2/9/05 - 2:40 pm|2885 Views|59 Comments
Posted To: Medication Issues
I'm 27 & I have been on on epival for 11 years. Just as I was getting comfortable with my life & getting used to epival my doctor recently made me change my medication due to my migraines. My doctor didnt want to increase my intake...
chewy
chewy
Topomax and Weight Loss
Created by chewyat2/2/05 - 6:24 pm|2631 Views|14 Comments
Posted To: Medication Issues
I am quite worried at this point. We moved to Nevada about 6 months ago. My wife has been trying to get into a neurologist for 2 1/2 to 3 months. She has been diagnosed with JME since 1996 (took 3 years to diagnose, previous doctors...
leesa
leesa
alcohol and epilepsy
Created by leesaat1/26/05 - 10:22 pm|2588 Views|25 Comments
Posted To: Medication Issues
ur probably thinking im really stupid for even considering this... but im a 17 yr old girl and im currently on tegretol and lamictal... im getting off the tegretol and switching over... and i used to be able to drink in the beginning...
kamit24
kamit24
side effects of tegritol
Created by kamit24at1/15/06 - 8:10 pm|2559 Views|6 Comments
Posted To: Medication Issues
could anyone please tell me the side effects of tegritol...
momof1
momof1
facial ticks.
Created by momof1at8/8/04 - 7:24 am|2556 Views|4 Comments
Posted To: Medication Issues
 I am currently taking Dilantin. I don't know if this is related, but now my one eye is starting to "flicker"  (may not be the right word) The bottom part of my eye moves all...
Maggie
Maggie
Tegretol
Created by Maggieat6/13/05 - 7:26 pm|2505 Views|39 Comments
Posted To: Medication Issues
Hi, just wondering if anyone has taken Tegretol?I was put on it about 2wks.ago for my seizures,but it does not seem to be helping.Has anyone else had this problem?  Thanx, maggie...
mlisa73
mlisa73
Depakote--How long does it take?
Created by mlisa73at7/29/05 - 8:37 pm|2492 Views|21 Comments
Posted To: Medication Issues
I will be starting my 8-year-old daughter on Depakote tomorrow (she was diagnosed with absence ep. Wednesday).  I was just wondering if anyone can tell me about how many days it takes for this drug...
bonny
bonny
New - Lamictal and Hair Loss
Created by bonnyat2/1/05 - 8:33 am|2391 Views|44 Comments
Posted To: Medication Issues
Hi everyone, I was just wondering if anyone has experienced some hair lossor knows of a connection between hair loss and Lamictal? As i recently increased my dosage of Lamictal to 500mg a day, and i'm finding that i'm losing...
quirky
quirky
Topamax - what's it like?
Created by quirkyat5/9/06 - 5:19 am|2268 Views|36 Comments
Posted To: Medication Issues
Hi I am taking tegretol retard and keppra at the moment. Yesterday when I saw my doctor, he has prescribed me to go on topamax and when on the full dosage, I can then come off the keppra gradually. I dont know much about topamax. My...

 
gypsyg
gypsyg
GYPSYG
Created by gypsygat4/16/08 - 11:16 am|7 Views
Posted To: Medication Issues
  I'VE BEEN SUFFERING WITH EPILEPSY SINCE I WAS A TEENAGER.  HERE I AM NOW 32 YEARS OLD NOW AND TAKING 8 DIFFERNT MEDICINCES EVERY DAY.  I'VE HAD THE BRAIN SURGERY IN 1999,  THE VNS IN 2003.  NOTHING SEEMS TO WORKING.  I HAVEN'T HAD TOO...
cheyen...
cheyen...
I take topomax Keppra Dilantin Trileptal Provigil Vns implan...
Created by cheyen...at7/26/08 - 12:38 pm|1 View
Posted To: Medication Issues
 i guess at 52 im getting a little  tired of having seizures.But I have to thank God  for my wife who has been right there when I had My seizure.Who  knows  maybe  they will come up with something to help aall epileptics. Stay strong strong everyone
cheyen...
cheyen...
I take topomax Keppra Dilantin Trileptal Provigil Vns implan...
Created by cheyen...at7/26/08 - 12:38 pm|9 Views
Posted To: Medication Issues
 i guess at 52 im getting a little  tired of having seizures.But I have to thank God  for my wife who has been right there when I had My seizure.Who  knows  maybe  they will come up with something to help aall epileptics. Stay strong  everyone
wldhrt13
wldhrt13
"Stupamax" aka Topamax
Created by wldhrt13at1/18/07 - 7:16 am|988 Views|9 Comments
Posted To: Medication Issues
For those who have suffered the stupamax stupor...How long before the cognitive fog lifts? or dare I ask, does it?...
Steph618
Steph618
"Who has had Insomnia w/ Keppra & Dilantin?"
Created by Steph618at8/31/06 - 10:56 am|588 Views|4 Comments
Posted To: Medication Issues
Hi,everyone I'm new to this website but I started to take Keppra and Dilantin for my Generalized Tonic-Clonic Seizures. I've had Insomnia for 2 weeks and it's killing me, when I don't get enough sleep I tend to be cranky!!!! THANKS...
cindy ...
cindy ...
$$$$$$$ & Pharmaceuticals
Created by cindy ...at7/16/08 - 10:36 am|53 Views|7 Comments
Posted To: Medication Issues
FDA panel sees suicide risks with epilepsy drugs Published Wednesday July 16th, 2008 THE ASSOCIATED PRESS STUMBLE UPON WASHINGTON - Drugs used by millions of Americans to treat epileptic seizures can cause increased risks of suicide, a government...
ajramey
ajramey
................
Created by ajrameyat4/20/05 - 5:45 pm|362 Views
Posted To: Medication Issues
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kylasmom
kylasmom
10 year old daughter on Keppra..
Created by kylasmomat9/12/08 - 6:45 pm|27 Views|3 Comments
Posted To: Medication Issues
My daughter just turned 10 years old this month.  She was diagnosed with epilepsy last October after a small episode and placed on keppra. As, her weight increased her dosage went up as well.  This school year is in the 5th week and she is doing so bad...
Mum an...
Mum an...
14 year old just started Oxcarbazepine (Trileptal??) - Extreme Ex...
Created by Mum an...at2/23/09 - 2:23 pm|7 Views
Posted To: Medication Issues
  Hi,
ches1982
ches1982
New - 16 month old and Keppra
Created by ches1982at5/15/09 - 2:20 pm|16 Views|3 Comments
Posted To: Medication Issues
Hello Everyone,
tinah
tinah
16 y/o son--On Lamictal but having TC's--What's next?
Created by tinahat9/22/08 - 1:16 pm|8 Views
Posted To: Medication Issues
Hi---new to the forum.  At 13-15 years old Nick had absence seizures (undiagnosed as doc's wouldn't listen to me).  Very mild---and only every 3-5 mos. Formally diagnosed at 16.  Started on Lamictal (now taking 350 mg 2x/day).  Side-effect...
shirln...
shirln...
2 YEAR OLD SON I NEED HELP
Created by shirln...at7/12/05 - 2:09 pm|748 Views|7 Comments
Posted To: Medication Issues
HELLO I HAVE A 2 YEAR OLD SON THATS HAS DX (INFANTILE SPASMS ) MONOCLOYIC SEIZURES AND I NEED SOME INFORMATION ON MEDS AND VNS. MY SON BJ HAS HAD SEIZURES FOR 8 MONTHS AND HE IS ON KEPPRA, KLONIAPEN, AND ZONOGRAN. HE WAS ON...
suppor...
suppor...
2400mg daily TRILEPTAL now adding 500mg KEPPRA...anyone on these ...
Created by suppor...at7/27/07 - 5:47 pm|376 Views|8 Comments
Posted To: Medication Issues
Hubby is starting KEPPRA tonight with the TRILEPTAL. He is on the highest dose of TRILEPTAL 2400mg/daily and WAS doing well with his seizures for 4 months until Tuesday night when he had a Partial Seizure and then two more times on...
verleen
verleen
3 Months and MEdication stop working - can anyone relate
Created by verleenat5/11/09 - 10:33 pm|9 Views
Posted To: Medication Issues
Hi I have a 6 Year old son who has uncontroleable seizures from 3 months old and has never been diagnosed propley. Anything be new medication or the Ketogenic Diet works for three months and then just stops working did anyone expierence this? He is also...
keithric
keithric
3 Year Old - Advice for "Add-On-Therapy" with Zonisamide
Created by keithricat6/20/08 - 6:18 pm|11 Views|2 Comments
Posted To: Medication Issues
shiana...
shiana...
3 year old on Keppra/Her mood is changing..............
Created by shiana...at1/26/05 - 7:35 am|523 Views|12 Comments
Posted To: Medication Issues
My daughter was just put on Keppra a couple of weeks ago. The Neurologist started her out on the liquid form, gradually increasing her dosages. We and her day care center, have noticed just recently that she has been very clingy,...
EKlair...
EKlair...
3 year old weaning off of Lamictal ...HELP
Created by EKlair...at8/17/06 - 9:42 am|655 Views|3 Comments
Posted To: Medication Issues
I am new and my daughter 3 years old has been on Lamictal 175mg a day and Keppra 3ml a day for a little over a year now. They cut back on the Keppra for a little bit because she was losing weight and losing milestones well, just recently...
foakes...
foakes...
3 yr old with frontal lobe epilepsy not responding to tegretol
Created by foakes...at1/25/07 - 1:59 pm|500 Views|2 Comments
Posted To: Medication Issues
Our 3-and-a-half-year-old daughter Anna was diagnosed with frontal lobe epilepsy in November. She started having seizures when she was a baby (we now think), although we did not realize it at the time, as they always occurred at night-time,...
angelran
angelran
30lbs lost since changing meds
Created by angelranat6/3/06 - 6:11 pm|490 Views|3 Comments
Posted To: Medication Issues
I have recently mad a switch from Tegritol to Lamictal. I had been on Tegritol for over 14 years and it was becoming less and less effective. Anyway...since being on Tegritol I had gained steadily at tleast 10lb a year. NOW...I have...
savana...
savana...
4 year old daughter with Lennex Gastrou
Created by savana...at10/10/06 - 7:58 am|515 Views|2 Comments
Posted To: Medication Issues
Hi, I am new to this group and looking for some support and answers for my little angel. She is 4 and has all seizure types :( ( since 18 months) We have been on all meds allowed and nothing has helped. Currently, we are trying...
girlygrl
girlygrl
41 Taking Lacmicatal after first seizures after two years
Created by girlygrlat8/30/05 - 8:22 pm|478 Views|3 Comments
Posted To: Medication Issues
I am 41 years old, had seizures all my life since 16 year old,the started taking lamictal for bipolar disorder actual froma psychiatrist, at least that is what they told me I had, thenlater I was told it was an Epiletic mood disorder...
aodonald
aodonald
4yo w/ absence seizures and HORRIBLE behavior
Created by aodonaldat5/9/08 - 1:29 pm|31 Views|2 Comments
Posted To: Medication Issues
hello my name is Amy. I have a 4 year old son who was diagnosed with absence seizures about 3 years or so ago but i never put him on medication till about 1 year ago i just sort of hoped he would out grow his seizures and when he didn't get better or worse...
Natarsha
Natarsha
5 year old step sister on Topamax, Epilim and Lamictal
Created by Natarshaat3/22/07 - 10:48 pm|404 Views|1 Comment
Posted To: Medication Issues
I am unsure of the dosages, sorry. She is going off Lamictal soon. My Step Sister is having trouble concentrating at school, she is unable to learn, she is as of today suspended from school (Reception) until next Tuesday because...
knot1uno
knot1uno
6 years of being seizure free after baby and now brand new to Topamax
Created by knot1unoat2/9/07 - 12:45 am|862 Views|6 Comments
Posted To: Medication Issues
Hello, I am new to this site and was wanting to ask someone about Topamax. I am 35 years old and was diagnosed with complex partial seizures back in 1993 due to a car accident which involved hitting my head (temporal lobe) in just...
AprilR
AprilR
7 months old starting on Phenobarbital
Created by AprilRat2/3/06 - 5:25 pm|433 Views|2 Comments
Posted To: Medication Issues
My daughter is 7 months old and we are starting her on Phenobarbital and I am scared. I dont want her sudated , I am afraid it will cause learning problums. She had her first seizure at 4 months but I know for a fact she was having...