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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Creative Corner
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 admin |
 victor... Depression, Sleep and Epilepsy - To Drown The Monstrous I
A poem which attempts to describe the depression that so often goes hand in hand with epilepsy.
To Drown The Monstrous I
Free, but rarely registering,
The land, the sky the sea,
My world’s within; a maelstrom of misery.
Replicated deep within...
|
 vande_... A Poem
The following poem I, Greg Van De Moortele wrote for both new and long term patients to inspire them to not give up hope, and fight the battle with epilepsy to the end.
The Fighter
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victor... The Birds Will Soar
A poem I wrote a while ago; before the anti-convulsants dampened my creativity...it's based on the landscape near to my home in England.
The birds will soar
Long after you and I
Have left this life,
Long after the Cuckmere sea
Has...
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 nick71... |
 musicw... A New Rock Band Idea. Who's In?
Hello there,
We are a group of promoters currently negotiating partnerships with a few record labels to sign on a new band, and we are in the process of auditioning musicians for it. And while, this might sound like any other band,...
|
lilcrumb3 My website
I've recently come to a creative block with my art. I've recently had a seizure and for reasons I can't explain, I have become scared to draw. It's wierd I know. But I've created this website and put my creations on it. I feel like I worked hard on it and...
|
 Bedge Hidden and Dark
Hidden and Dark
I have never divulged the darkness of my mind.
It’s like a deep dark secret,
A secret I didn’t dare define.
‘Are you suicidal?’
I was asked so many times.
‘Most defiantly not!’ I would reply.
I have never contemplated...
|
 Jessie90 |
Jessie90 New
Hello folks,
Im a little new to the site.I seen it had a "Showcase 0f Creativity" and Poetry corner.Which was pretty interesting to me because,I love to draw and write poetry.The only thing I had were two questions on the corner.Here are...
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 Allina A Shared Metaphor...
A stairwell.
It was not the beach wood, or the way sand was ground in some areas, shells within others that had intrigued me so. It was not the way the wood changed as the stairs went higher, from beach, to oak, to birch, to cherry, the shapes of bird...
|
 EpiBot Personal EEG machine
I think it would be cool to have my own EEG machine so I could monitor my brainwaves at home. Of course I would still see a doctor, but I think a personal EEG could be helpful for me. I have TLE and sometimes my seizures cause intense anxiety and I always...
|
iforgot FDA DR & MEDICATION LIES!!!!!!!!!!!!!!!!!!!!!!!
If your new to Epilepsy be careful about the treatment you get & who your getting it from.
Show this document to your doctors if you can understand it after reading
here's the link
http://www.fda.gov/ohrms/dockets/ac/99/slides/3547s1i.pdf
You can...
|
ritama... Making art about epilepsy
Hi everyone!
My name is Rita Marcalo and I've suffered from epilepsy since a young age (I'm now 38).
I am also an artist/choreographer/dancer, and I have been making work about my condition for a few years now.
In 2009 I staged 'Involuntary...
|
mamasan |
Bedge It Wasn't My Life
My first stab at 'writing', if you can call it that!
It wasn’t my life.
It didn’t belong to me.
My mind and the world,
Were so foreign to me.
It wasn’t my life.
To live in fear.
For every daily...
|
 sophia... sophia hill's poem....."I have epilepsy!!!!"
I have epilepsy, what does
that mean?
Does it mean I’m a retard;
a spastic?
Does it mean it come and
goes as it pleases?
|
 epi_help Share your creativity!
We have many very creative users who post poems or other writings in their blogs or other threads. Upon request of a user, I started this thread to let people more easily share their work with the community. If you want to share other...
|
Bedge Me & E Makes Three
Me and E makes three.
There’s me, there’s E and someone else in-between.
That’s three.
Once there was just me.
And then there was E.
So who is this person in-between?
It’s not really me.
But it’s not...
|
epi_help Removed Epilepsy Jokes
Hi everyone,
While I appreciate good humor, making jokes about a person's health and well-being in my mind is not considered good humor, or even humor at all. Some people may find that it helps to make 'light' or laugh during tough times, but...
|
 Kristi... Poem: An Epileptic State (in the style of a Shakespearian sonnet)
Here is a piece I wrote about a year ago, putting my seizures into poetic perspective.
|
suzieqs My poem about me experiencing a partial seizure
Frozen In Time
I cannot speak, I cannot move
I can only watch and listen
While others 'round me frantically
fear the worst to me has happened
Please! I scream within my mind
I'm right here don't panic so.
I might appear absent here,
just look...
|
snowwoman You Know YOU have Epilepsy When...
I saw this on the internet, in a blog called E. is for Epilepsy, by Paula Apodaca (http://epilepsy-paula.blogspot.com/). Just had to share this!
The post on this actual subject: http://epilepsy-paula.blogspot.com/2009/05/you-know-you-have-e-when.html
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 rocket... Paganini, and Tchaikovsky, they both are alleged to have had epil...
There are several classical composers, including the ones mentioned in the title. My question is where is the proof that they did indeed have epilepsy, and is there any proof as to whether or not their epilepsy had an influence on their music? Discuss.
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Conting A poem i found i had written 4 yeards ago when i first found out ...
I found this poem from when i first found out I had epilepsy. I was diagnosed freshman year of highschool and now i just finished my first year of college. its amazing how my opinion has changed so much. tell me what you think of it
I'm...
|
 plopdan |
 BrandonL A cool tattoo to represent my support for epilepsy and my fight.
Hey..
I'm considering getting a tattoo. I want to get something to show my support, or symbolize my fight with epilepsy. I don't want any words, just images or symbols or something. Does anyone already have one, or have any ideas for one.
Thanks...
|
 staygo... Brain On Fire
I just recently started experiencing seizures at the age of 25. I will turn 27 March 3rd. I know my grandpa has turret's syndrome and epilepsy as well. I don't know if being genetically predisposed to it had anything to do with the onset or not.
However,...
|
sophia... |
kimvdr My son has had his last 3 seizures on 3 Thrusdays in a row
Hi... I'm a mom of a 14year old. He had his first seizure June 5 in the evening playing a laptop game...
He has had 6 more seizures over the summer. The 3 have been the last 3 thursdays... today, last thursday and the thursday before... and actually...
|
gogirl Women With Epilepsy
Hello Ladies!
I need women to email me and tell me their epilepsy story, esp. if you have had surgery. And if you had Dr. Devinsky and Dr. Doyle and surgery, that would be even better. I'm currently writing a screenplay about women with epilepsy and...
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Tanikkab |
 gherkin Please Read, beautiful tear jerker
A drunk man in an Oldsmobile
They said had run the light
That caused the six-car pileup
On 109 that night.
When broken bodies lay about
And blood was everywhere,
The sirens screamed out eulogies,
For death was in the air.
A mother, trapped inside...
|
gherkin Epilepsy and Me
My first seizure occurred, I was sixteen years old, They said it could be Epilepsy, i felt so very cold. Seizures came fast and not far between, So ashamed, never wanted to be seen, Very hard to hide because i'd often fall down, Always making me feel a bit...
|
 teener Short story
I tried to find the words in my mind, but I could not seem to write them on the stone. I looked at you, but I saw nothing.
|
 StaceyM Poet with Seizure disorder SUDEP
Hi, all.
This story was in my local on-line newspaper. A young poet passed away after she stopped taking her meds -- they interfered with her ability to concentrate on her writing.
I thought the story was worth sharing, but also, given her experience...
|
teener |
Future13 A Poem
Hi, I'm new to this site overall. After reading some of the poems I decided I'd post one of my own. It's short, but I like it. So, here it goes.
The Sound of Epilepsy
CAT MRI EEG
These are a few of my most hated of things
|
Future13 Poem
Hi, I'm new to this whole site. I wrote a poem the other day, and just thought I'd post it up here after reading some of the others. It's short, but I think it works.
The Sound of Epilepsy
CAT MRI EEG
These...
|
Future13 Poem
Hi, I'm new to this whole site. I wrote a poem the other day, and just thought I'd post it up here after reading some of the others. It's short, but I think it works.
The Sound of Epilepsy
CAT MRI EEG
These...
|
Future13 Poem
Hi, I'm new to this whole site. I wrote a poem the other day, and just thought I'd post it up here after reading some of the others. It's short, but I think it works.
The Sound of Epilepsy
CAT MRI EEG
These...
|
 crashl... Quilting
I finally found this place! Some people have asked what my quilts look like so I'll post some pictures. Quilting is so much cheaper than therapy and keeps me sane. I haven't finished this one yet as I'm working a design for the dark blue squares. ...
|
 phidippus There Are Things Inside My Brain
Just a little song I wrote about my brain imbalances:
http://www.imeem.com/esness/music/M89sKnm9/geche_with_es_there_are_things_inside_my_brain/
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 jderry |
jderry Apollo 8
It's been 40 yrs ago that Apollo 8 was the first crew to orbit the moon. I'll never forget the TV broadcast of the blue & white earth raising above the grey and lifeless moon from the spaceship on christmas eve. The crew chose to read from the bible...
|
sophia... my english homework... finished ... not for the faint hearted!
The girl who was secretly
Born broken!
“Or look how cute she is?”
“She’s adorable and so
tiny too!”
“Bless.”
|
sophia... The confuzzled girl. @:(.......
Is it me or am i going mad?
Is it me or am i going crazy?
Is it me that made myself like this?
i'm Sophia and i'm 18. I'm not faking who i am or kidding the kidder, i'm just me but i don't know who me is anymore!! I am confuzzled by the...
|
 stephs... Untitled Poem
This poem just came to me - for the life of me I can't think of a title, though. I was going to leave the poem at the first stanza, but it seemed like it needed a conclusion. So there it be!
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 lorelama The 2 Halves of Me
I was able to do a piece for the EFMN.org Brainstorms Exhibit - here it is - it is sheet metal, copper mesh/sheet, plexi, and other assorted add ins, the mask is gold leaf.
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 MissysMom Poem by me about my daughter...
My Daughter…
Kellie Vaughn
April 28, 2005
My daughter…
Is a beautiful baby…
Is a girl after her daddy’s heart…
Is a future basketball player in disguise…
My daughter…
Takes after her...
|
epi_help Share your creativity!
We have many very creative users who post poems or other writings in their blogs or other threads. Upon request of a user, I started this thread to let people more easily share their work with the community. If you want to share other...
|
 andy m Photobucket Link
Here's the link to my Photobucket albums
http://s164.photobucket.com/albums/u19/moorsman/
I'm adding more and more as time allows. At the moment there are 3 albums, to find the other 2 click on the sub album titles within the albums....
|
epi_help Removed Epilepsy Jokes
Hi everyone,
While I appreciate good humor, making jokes about a person's health and well-being in my mind is not considered good humor, or even humor at all. Some people may find that it helps to make 'light' or laugh during tough times, but...
|
musicw... A New Rock Band Idea. Who's In?
Hello there,
We are a group of promoters currently negotiating partnerships with a few record labels to sign on a new band, and we are in the process of auditioning musicians for it. And while, this might sound like any other band,...
|
epi_help add your creativity again
Hi everyone!
I don't know what happened, we have lost some threads that had latest pieces that people shared. I think whoever started the thread must have deleted it, hopefully by mistake. If you can re-enter your work, please...
|
pgd |
jderry |
 bernar... epilepsy haiku
I wrote a bunch of haiku poems about epilepsy some time ago. I hope you enjoy them. ...
|
crashl... Quilting
I finally found this place! Some people have asked what my quilts look like so I'll post some pictures. Quilting is so much cheaper than therapy and keeps me sane. I haven't finished this one yet as I'm working a design for the dark blue squares. ...
|
sophia... |
sophia... my english homework... finished ... not for the faint hearted!
The girl who was secretly
Born broken!
“Or look how cute she is?”
“She’s adorable and so
tiny too!”
“Bless.”
|
plopdan |
sophia... sophia hill's poem....."I have epilepsy!!!!"
I have epilepsy, what does
that mean?
Does it mean I’m a retard;
a spastic?
Does it mean it come and
goes as it pleases?
|
Bedge It Wasn't My Life
My first stab at 'writing', if you can call it that!
It wasn’t my life.
It didn’t belong to me.
My mind and the world,
Were so foreign to me.
It wasn’t my life.
To live in fear.
For every daily...
|
Kristi... Poem: An Epileptic State (in the style of a Shakespearian sonnet)
Here is a piece I wrote about a year ago, putting my seizures into poetic perspective.
|
EpiBot Personal EEG machine
I think it would be cool to have my own EEG machine so I could monitor my brainwaves at home. Of course I would still see a doctor, but I think a personal EEG could be helpful for me. I have TLE and sometimes my seizures cause intense anxiety and I always...
|
victor... Depression, Sleep and Epilepsy - To Drown The Monstrous I
A poem which attempts to describe the depression that so often goes hand in hand with epilepsy.
To Drown The Monstrous I
Free, but rarely registering,
The land, the sky the sea,
My world’s within; a maelstrom of misery.
Replicated deep within...
|
BrandonL A cool tattoo to represent my support for epilepsy and my fight.
Hey..
I'm considering getting a tattoo. I want to get something to show my support, or symbolize my fight with epilepsy. I don't want any words, just images or symbols or something. Does anyone already have one, or have any ideas for one.
Thanks...
|
kimvdr My son has had his last 3 seizures on 3 Thrusdays in a row
Hi... I'm a mom of a 14year old. He had his first seizure June 5 in the evening playing a laptop game...
He has had 6 more seizures over the summer. The 3 have been the last 3 thursdays... today, last thursday and the thursday before... and actually...
|
Bedge Hidden and Dark
Hidden and Dark
I have never divulged the darkness of my mind.
It’s like a deep dark secret,
A secret I didn’t dare define.
‘Are you suicidal?’
I was asked so many times.
‘Most defiantly not!’ I would reply.
I have never contemplated...
|
gherkin Please Read, beautiful tear jerker
A drunk man in an Oldsmobile
They said had run the light
That caused the six-car pileup
On 109 that night.
When broken bodies lay about
And blood was everywhere,
The sirens screamed out eulogies,
For death was in the air.
A mother, trapped inside...
|
suzieqs My poem about me experiencing a partial seizure
Frozen In Time
I cannot speak, I cannot move
I can only watch and listen
While others 'round me frantically
fear the worst to me has happened
Please! I scream within my mind
I'm right here don't panic so.
I might appear absent here,
just look...
|
gherkin Epilepsy and Me
My first seizure occurred, I was sixteen years old, They said it could be Epilepsy, i felt so very cold. Seizures came fast and not far between, So ashamed, never wanted to be seen, Very hard to hide because i'd often fall down, Always making me feel a bit...
|
teener Short story
I tried to find the words in my mind, but I could not seem to write them on the stone. I looked at you, but I saw nothing.
|
Jessie90 |
sophia... sophia hill's poem....."I have epilepsy!!!!"
I have epilepsy, what does
that mean?
Does it mean I’m a retard;
a spastic?
Does it mean it come and
goes as it pleases?
|
BrandonL A cool tattoo to represent my support for epilepsy and my fight.
Hey..
I'm considering getting a tattoo. I want to get something to show my support, or symbolize my fight with epilepsy. I don't want any words, just images or symbols or something. Does anyone already have one, or have any ideas for one.
Thanks...
|
musicw... A New Rock Band Idea. Who's In?
Hello there,
We are a group of promoters currently negotiating partnerships with a few record labels to sign on a new band, and we are in the process of auditioning musicians for it. And while, this might sound like any other band,...
|
Future13 A Poem
Hi, I'm new to this site overall. After reading some of the poems I decided I'd post one of my own. It's short, but I like it. So, here it goes.
The Sound of Epilepsy
CAT MRI EEG
These are a few of my most hated of things
|
vande_... A Poem
The following poem I, Greg Van De Moortele wrote for both new and long term patients to inspire them to not give up hope, and fight the battle with epilepsy to the end.
The Fighter
|
Conting A poem i found i had written 4 yeards ago when i first found out ...
I found this poem from when i first found out I had epilepsy. I was diagnosed freshman year of highschool and now i just finished my first year of college. its amazing how my opinion has changed so much. tell me what you think of it
I'm...
|
Allina A Shared Metaphor...
A stairwell.
It was not the beach wood, or the way sand was ground in some areas, shells within others that had intrigued me so. It was not the way the wood changed as the stairs went higher, from beach, to oak, to birch, to cherry, the shapes of bird...
|
epi_help add your creativity again
Hi everyone!
I don't know what happened, we have lost some threads that had latest pieces that people shared. I think whoever started the thread must have deleted it, hopefully by mistake. If you can re-enter your work, please...
|
jderry Apollo 8
It's been 40 yrs ago that Apollo 8 was the first crew to orbit the moon. I'll never forget the TV broadcast of the blue & white earth raising above the grey and lifeless moon from the spaceship on christmas eve. The crew chose to read from the bible...
|
staygo... Brain On Fire
I just recently started experiencing seizures at the age of 25. I will turn 27 March 3rd. I know my grandpa has turret's syndrome and epilepsy as well. I don't know if being genetically predisposed to it had anything to do with the onset or not.
However,...
|
jderry |
victor... Depression, Sleep and Epilepsy - To Drown The Monstrous I
A poem which attempts to describe the depression that so often goes hand in hand with epilepsy.
To Drown The Monstrous I
Free, but rarely registering,
The land, the sky the sea,
My world’s within; a maelstrom of misery.
Replicated deep within...
|
gherkin Epilepsy and Me
My first seizure occurred, I was sixteen years old, They said it could be Epilepsy, i felt so very cold. Seizures came fast and not far between, So ashamed, never wanted to be seen, Very hard to hide because i'd often fall down, Always making me feel a bit...
|
Jessie90 |
bernar... epilepsy haiku
I wrote a bunch of haiku poems about epilepsy some time ago. I hope you enjoy them. ...
|
admin |
iforgot FDA DR & MEDICATION LIES!!!!!!!!!!!!!!!!!!!!!!!
If your new to Epilepsy be careful about the treatment you get & who your getting it from.
Show this document to your doctors if you can understand it after reading
here's the link
http://www.fda.gov/ohrms/dockets/ac/99/slides/3547s1i.pdf
You can...
|
Bedge Hidden and Dark
Hidden and Dark
I have never divulged the darkness of my mind.
It’s like a deep dark secret,
A secret I didn’t dare define.
‘Are you suicidal?’
I was asked so many times.
‘Most defiantly not!’ I would reply.
I have never contemplated...
|
Bedge It Wasn't My Life
My first stab at 'writing', if you can call it that!
It wasn’t my life.
It didn’t belong to me.
My mind and the world,
Were so foreign to me.
It wasn’t my life.
To live in fear.
For every daily...
|
ritama... Making art about epilepsy
Hi everyone!
My name is Rita Marcalo and I've suffered from epilepsy since a young age (I'm now 38).
I am also an artist/choreographer/dancer, and I have been making work about my condition for a few years now.
In 2009 I staged 'Involuntary...
|
Bedge Me & E Makes Three
Me and E makes three.
There’s me, there’s E and someone else in-between.
That’s three.
Once there was just me.
And then there was E.
So who is this person in-between?
It’s not really me.
But it’s not...
|
sophia... my english homework... finished ... not for the faint hearted!
The girl who was secretly
Born broken!
“Or look how cute she is?”
“She’s adorable and so
tiny too!”
“Bless.”
|
suzieqs My poem about me experiencing a partial seizure
Frozen In Time
I cannot speak, I cannot move
I can only watch and listen
While others 'round me frantically
fear the worst to me has happened
Please! I scream within my mind
I'm right here don't panic so.
I might appear absent here,
just look...
|
sophia... |
kimvdr My son has had his last 3 seizures on 3 Thrusdays in a row
Hi... I'm a mom of a 14year old. He had his first seizure June 5 in the evening playing a laptop game...
He has had 6 more seizures over the summer. The 3 have been the last 3 thursdays... today, last thursday and the thursday before... and actually...
|