Topic: Products, Resources, Helpful Links


karyliin6 New - Epilepsy Alert Dog Created by karyliin6at5/23/10 - 8:32 pm\|45 Views\|5 Comments Posted To: Products, Resources, Helpful Links Hey, What do you guys think about those seizure alert dogs? Anyone have one? Idk what someone would need to qualify. Just lookin for some info. -Karylin
admin Epilepsy Therapy Project - Family Day Feb 4th Created by adminat1/4/12 - 7:16 am\|1 View Posted To: Products, Resources, Helpful Links
epi_help Transportation resource Created by epi_helpat11/13/11 - 3:45 pm\|7 Views Posted To: Products, Resources, Helpful Links Hi everyone, Found an interesting link to info about air travel and security. It's a common question lot of people have. http://www.tsa.gov/travelers/airtravel/specialneeds/editorial_1374.shtm.
Sedz Emfit Seizure alarm sensor pad - newly found product Created by Sedzat6/27/07 - 6:23 am\|574 Views\|5 Comments Posted To: Products, Resources, Helpful Links Just wanted to share this with everyone - my son has just turned 16 and has Complex partial epilepsy but depending on the circumstances of the day (overtiredness, illness etc)he also has Tonic Clonic seizures. As he's a young adult...
ClanOf... Container for Diastat? Created by ClanOf...at4/9/10 - 7:05 pm\|11 Views\|1 Comment Posted To: Products, Resources, Helpful Links Hi!
burm80 Posting Created by burm80at8/29/11 - 3:45 pm\|29 Views\|2 Comments Posted To: Products, Resources, Helpful Links Has anyone determined why we are not able to comment on postings?
Son of... Tongue Bitting Created by Son of...at10/6/06 - 3:31 pm\|1714 Views\|16 Comments Posted To: Products, Resources, Helpful Links During my last seizure I bite my tongue. It has been hurting now for a couple days now. Does anyone know a good treatment for a bitten tongue?...
phylis... 2011-12 Top Psychiatric Hospitals in the U.S. Created by phylis...at8/22/11 - 7:24 am\|2 Views Posted To: Products, Resources, Helpful Links The U.S. News & World Report’s annual hospital survey is valued for it’s integrity, its impartiality and the method by each hospital is rated. Criteria for the survey is: hospital reputation and satisfaction …details of the services provided…plus...
phylis... Found: Epilepsy Mouth Guards Created by phylis...at4/10/10 - 7:09 am\|51 Views\|4 Comments Posted To: Products, Resources, Helpful Links Here are some links for mouth guards, although I admit, some of the resources are relatively strange... :-) http://www.shockdoctor.com/products/mouthguards.aspx
barn619 Vehicle that could allow people with epilepsy to take the wheel a... Created by barn619at7/17/11 - 11:53 am\|24 Views\|3 Comments Posted To: Products, Resources, Helpful Links A company is developing a car that could someday allow blind people to drive. It uses a sensor to measure acceleration, cameras to detect the lanes of the road, and laser range finders. Drivers are fitted with special gloves with vibrating elements...
gsehgal Reiki cured my epilepsy!! Created by gsehgalat6/15/11 - 2:44 am\|15 Views Posted To: Products, Resources, Helpful Links The Subject says it all, no catches, no nothing. I am now apparently free from the chains of epilepsy!! Dear All, I am writing this to you very excitedly and bursting with this information that I want to share with you.
Spike. Culturally Preprogrammed Created by Spike.at4/6/10 - 10:06 am\|44 Views\|4 Comments Posted To: Products, Resources, Helpful Links
phylis... Attractive Epilepsy Alert Jewelry Created by phylis...at11/22/09 - 7:40 am\|203 Views\|9 Comments Posted To: Products, Resources, Helpful Links
Lovebug Epilepsy Bracelet Created by Lovebugat4/20/09 - 10:31 am\|83 Views\|8 Comments Posted To: Products, Resources, Helpful Links I want to have an emergency bracelet made but not the ones I see on the internet. I found a place in the mall that engraves bracelets and necklaces. What should I have printed on it? I don't want to have my medication put on it because they are changed...
phylis... Newly Updated Comprehensive List of GOOD Neurologists…Epileptolog... Created by phylis...at5/3/11 - 3:07 pm\|14 Views Posted To: Products, Resources, Helpful Links Attached is a compilation by website forum members who have had positive experiences with docs over the years. This list is based on personal recommendations and, of course is purely subjective. But I thought it might be helpful for anyone looking for a good...
sandra... Epilepsy Created by sandra...at3/29/11 - 1:39 am\|6 Views Posted To: Products, Resources, Helpful Links Here is one resource, where you can find all the medications that are used for treating epilepsy. http://www.internationaldrugmart.com/drug-category/epilepsy.html
iforgot FDA DR & MEDICATION LIES!!!!!!!!!!!!!!!!!!!!!!! Created by iforgotat3/9/11 - 9:47 pm\|1 View Posted To: Products, Resources, Helpful Links If your new to Epilepsy be careful about the treatment you get & who your getting it from. Show this document to your doctors if you can understand it after reading here's the link http://www.fda.gov/ohrms/dockets/ac/99/slides/3547s1i.pdf You can...
olddam... Adult/Senior helmet Created by olddam...at10/1/09 - 6:24 am\|10 Views\|2 Comments Posted To: Products, Resources, Helpful Links Hello all. I am new, but not to internet support groups. They have been my consolation when no one I know is in my boat!
poppy1677 Reviews-Filters for Fluorescent Lights Created by poppy1677at6/23/10 - 12:44 pm\|31 Views\|4 Comments Posted To: Products, Resources, Helpful Links Hi all,
bad kitty NEW Life Line Product That You Will Still Wear Around Your Neck Created by bad kittyat12/13/10 - 11:25 am\|6 Views Posted To: Products, Resources, Helpful Links Hi There - I am very new to this posting thing but I feel it's very important for people to be aware of a new "Life Line" device you wear around your neck. It's made by the same manufacturers of Life Line...
alys1234 seizure assistance dogs Created by alys1234at11/21/10 - 9:18 am\|18 Views\|2 Comments Posted To: Products, Resources, Helpful Links I am trying to get a seizure assistance dog for my uncle. I am hoping it will be a great help for him but I don't want him to be on a waiting list for too long. any suggestions?
Artour Seizure Threshold Is Controlled by Breathing Pattern and Blood Gases Created by Artourat10/25/10 - 6:41 am\|23 Views\|1 Comment Posted To: Products, Resources, Helpful Links (Web page from http://www.normalbreathing.com/d-seizure-threshold.php - page links removed)
phylis... Favorite docs, please? Created by phylis...at10/18/10 - 3:50 am\|24 Views\|1 Comment Posted To: Products, Resources, Helpful Links Do you have a favorite Neurologist...Epileptologist...Neurosurgeon...or Pediatric Doctor that you'd like to recommend? If so, please write down their name, specialty, hospital affiliation (if you know it), city and state. It will be added to the...
Winston epilepsy specific scholarships? Created by Winstonat3/1/07 - 2:50 pm\|1159 Views\|5 Comments Posted To: Products, Resources, Helpful Links Hi! I'm applying for the fall to get my masters degree in social work and am searching for scholarships. Does anyone know of any scholarships out there that are specifically for individuals with epilepsy? I already know of the keppra...
phylis... FREE Legal Resources Created by phylis...at9/18/10 - 1:17 pm\|10 Views Posted To: Products, Resources, Helpful Links I think that pro bono legal aid is perhaps more difficult to find than almost anything else in this country, except perhaps, FREE medical care. But here are six resources where you can find FREE legal aid and assistance. It’s tricky, because each state...
Eric Todd "The Making of Mike" an inspirational story of a man's life with ... Created by Eric Toddat9/16/10 - 3:24 pm\|16 Views Posted To: Products, Resources, Helpful Links Hi-I just wanted to make you all aware of a new book that has been published. It is called "The Making of Mike" and it is my dad's journey through life with epilepsy. I grew up with the man, and I really had my eyes openedby this book. It...
wjane Should I wear a medical ID? Created by wjaneat6/27/10 - 6:29 pm\|144 Views\|9 Comments Posted To: Products, Resources, Helpful Links Hello, I know there have been past discussions about this, but I am curious to see everyone's feedback about whether or not/when to wear an ID bracelet. I am 23 years old and typically only have simple partial seizures that are not noticable...
bluehe... Link for Free Medical ID Cards Print at Home Created by bluehe...at7/14/07 - 9:59 am\|400 Views\|4 Comments Posted To: Products, Resources, Helpful Links Hello. I just wanted to share a great site I found. It offers free medical ID cards that you can fill out and print at home. My daughters medications are constantly changing, so we have never been able to engrave them into her Medic...
Kumail Looking for Vitiligo Treatment ??? Created by Kumailat8/23/10 - 2:14 am\|3 Views Posted To: Products, Resources, Helpful Links Vitiligo is a fairly common condition that causes pale, white patches to develop on the skin. This is because that particular area of skin has little or none of a type of pigment called melanin. Any area of the skin can be affected by vitiligo, but it...
wjodi Our VNS Story Created by wjodiat3/3/10 - 6:23 pm\|47 Views\|4 Comments Posted To: Products, Resources, Helpful Links My husband had a Vagus Nerve Stimulator placed two weeks ago. While researching this procedure, we noticed that there are not a lot of useful personal experiences readily available on the internet. We have started a blog to document his experience...
jojupi01 Looking for a Seizure Monitor Created by jojupi01at8/12/10 - 8:56 am\|17 Views\|1 Comment Posted To: Products, Resources, Helpful Links I have been looking for a seizure monitor for my husband. He has to go to another state because of his project and i am not in a position to accompany him. I was looking around for some seizure monitor that would alert me or someone close by when he...
shammo... EEG Glue stuck in hair I found the SECRET!! Created by shammo...at2/18/10 - 9:30 pm\|23 Views\|1 Comment Posted To: Products, Resources, Helpful Links My son began having seizures last year. He had his first EEG and they said baby oil would remove all the residue. They were wrong. I had avon skin so soft for removing sap when we go camping so I massaged it in my son's hair and went through it with a lice...
pinbuster Seizure alert Dogs Created by pinbusterat7/31/10 - 1:27 pm\|19 Views\|2 Comments Posted To: Products, Resources, Helpful Links Does anyone know where you Can get a seizure alert dog in New jersey?
spirit... Stopping Epileptic Seizures Using Omega-3, Vitamin E, diet, and More Created by spirit...at12/20/08 - 11:40 am\|191 Views\|6 Comments Posted To: Products, Resources, Helpful Links I run a website, ozville.org (major focus on epilepsy awareness). Recently I've been reading a lot about natural cures, health, nutrition.... and I have a few articles and resources I really want to share here. I lost someone dear to me, who was on seizure...
sandra... Generic Medications for Epilepsy Created by sandra...at7/23/10 - 2:47 am\|8 Views\|1 Comment Posted To: Products, Resources, Helpful Links You can find generic medications used for epilepsy at low cost from International Drug Mart. There is also one offer going on .. with which you can avail $10 discount when you order above $70 and 10% discount when you order less than $70 - Only at International...
dree23 Psoriasis Herbal Treatment Created by dree23at7/16/10 - 9:04 am\|1 View Posted To: Products, Resources, Helpful Links
dree23 Psoriasis Herbal Treatment Created by dree23at7/16/10 - 5:37 am\|6 Views Posted To: Products, Resources, Helpful Links
bizarr... Any Computer Techies Who Could Help a Student Figure Out Which Co... Created by bizarr...at7/15/10 - 1:46 pm\|5 Views Posted To: Products, Resources, Helpful Links Hi Everybody, I am a lifelong epileptic who has returned to school, again. I am using a 10-year-old desktop computer with old programs, monitor, and memory that is not able to keep up with my studies. I am hoping someone who...
omgjack Please watch - Autism and epilepsy... Created by omgjackat6/24/10 - 10:27 pm\|36 Views Posted To: Products, Resources, Helpful Links I think this is a must watch talk for everyone. Up to 50% of people diagnosed autistic may actually have a misdiagnosed epileptic disorder. http://www.ted.com/talks/aditi_shankardass_a_second_opinion_on_learning_disorders.html
lindsie81 any subs for depakote?/new to page Created by lindsie81at6/21/10 - 7:01 pm\|4 Views Posted To: Products, Resources, Helpful Links i am trying to get off of depakote. i still have jerks though when i reduce myself. i have been on it since i was 10 years old and i am now 29. my body is so used to the meds i have to take it by liquid form because the pill wont digest. i am also on lamectil...
craigith Gaining information from a hospital Created by craigithat6/2/10 - 3:48 pm\|17 Views\|2 Comments Posted To: Products, Resources, Helpful Links I had my first seizure over 3 years ago resulting in a car accident. I stayed in a hospital for a few days (I don't remember how long exactly) and had many tests done that I don't remember the name of. I don't remember what it was that the doctor told...
phylis... A warm alternative to cold, hard helmets... Created by phylis...at5/28/10 - 12:37 pm\|10 Views Posted To: Products, Resources, Helpful Links Say good-bye to big, clunky helmets and say hello to a protective hat that’s good-looking too. A friend of mine just introduced me to this innovative new product called the Humpty Hat. (An unfortunate name, I agree. Who wants to be reminded of Humpty...
Sunflo... Pretty Pill box Key chain? Created by Sunflo...at10/23/07 - 10:00 am\|256 Views\|4 Comments Posted To: Products, Resources, Helpful Links Can anyone find some pretty pill box key chains? I've found some pill box key chains at Rite Aid but they are ugly metal things. I want something cute and discrete like a lady bug shaped pill box that I can attach to my key chain. Any ideas? ...
Mary G. Care Medical ID Bracelet Created by Mary G.at5/4/10 - 7:30 am\|15 Views Posted To: Products, Resources, Helpful Links Hello to all!
mmagnani Input requested for new Automated Electronic Seizure Diary Created by mmagnaniat4/27/10 - 1:06 pm\|22 Views Posted To: Products, Resources, Helpful Links Ladies and Gentlemen,
wildfl... Would you consider Epilepsy a Disability? Created by wildfl...at4/16/10 - 7:35 am\|28 Views\|1 Comment Posted To: Products, Resources, Helpful Links Hello, I am new to this site but have a question that I hope someone can answer for me. I was diagnosed with an AVM in 1983 when I had my first nocturnal seizure. Had the AVM removed in 1990 but now have daytime seizures which are controlled somewhat...
phylis... Updated list of GOOD Neurologists… Epileptologists… Neurosurgeons... Created by phylis...at4/14/10 - 1:34 pm\|94 Views Posted To: Products, Resources, Helpful Links
jonstrong Disability Tax Credit Created by jonstrongat4/9/10 - 8:17 pm\|19 Views Posted To: Products, Resources, Helpful Links Hello, is it too late to apply for disability tax credit? I have done some research on the process, and found to be complex, it must be done through an accountant? I have also stumbled upon a company, Canadian Disability Corporation, they say they can simply...
RevDrJ... Helmet for indigent adult with seizure disorder Created by RevDrJ...at4/5/10 - 9:40 pm\|30 Views\|4 Comments Posted To: Products, Resources, Helpful Links I am trying to find a durable helmet for an adult with a seizure disorder that can not afford $100 for a hockey helmet with a full face cage (he needs full head coverage, and I am basing the price on what I have seen on eBay, and $140 MSRP). ...
spirit... Auction to raise funds for epilepsy awareness campaign! Ends 4/4/10 Created by spirit...at3/28/10 - 6:04 pm\|9 Views Posted To: Products, Resources, Helpful Links


spiz Over 40 Different Types Of Seizures....... Created by spizat5/6/06 - 8:47 pm\|21893 Views\|74 Comments Posted To: Products, Resources, Helpful Links It has been said repeatedly that there are over 40 different types of seizures with more or less only the most 'popular' listed. Let's see if we can locate the ones that aren't. These types of seizures affect someone and I feel need to be noted. I'm curious...
spiz Over 40 Different Types Of Seizures - Revised Created by spizat3/25/07 - 12:04 am\|10405 Views\|22 Comments Posted To: Products, Resources, Helpful Links It has been said repeatedly that there are over 40 different types of seizures with more or less only the most 'popular' listed. Let's see if we can locate the ones that aren't. These types of seizures affect someone and I feel need to be noted. I'm curious...
Anonymous Source for Nicer Medical Alert Items & Special Pill Boxes Created by Anonymousat9/14/05 - 8:55 pm\|3093 Views\|17 Comments Posted To: Products, Resources, Helpful Links Something for everyone. Just a few days ago on another online support group I just recently joined, someone came up with a question pertaining to medical alert bracelets. Here is a portion of the individual's posted question, "Do...
angel_lts Epilepsy Approach Support Group Created by angel_ltsat1/13/06 - 3:44 am\|2870 Views\|16 Comments Posted To: Products, Resources, Helpful Links Please come join us to see, about treatments of ALL kinds. Medical, Surgical, and even Natural to help epilepsy. thanks, Lisa http://health.groups.yahoo.com/group/epilepsyapproach/ ...
Handyman Vagas Nerve Stimulation Created by Handymanat3/26/06 - 9:44 am\|2004 Views\|2 Comments Posted To: Products, Resources, Helpful Links Has anyone had or know of bad side effects from the vagas nerve stimulation devices?...
Son of... Tongue Bitting Created by Son of...at10/6/06 - 3:31 pm\|1714 Views\|16 Comments Posted To: Products, Resources, Helpful Links During my last seizure I bite my tongue. It has been hurting now for a couple days now. Does anyone know a good treatment for a bitten tongue?...
2space... a place where i recieved a list of epileptologists Created by 2space...at8/16/06 - 9:30 am\|1502 Views\|2 Comments Posted To: Products, Resources, Helpful Links hey, everyone. i've just come from visiting this site. it was a link for me to go to. i hope by giving you the address to this site, you will be able to visit there also. cuz i'm not sure how to send you an actual link. you can...
epi_help Triggers and Prevention of Seizures Created by epi_helpat2/12/07 - 7:30 am\|1361 Views\|6 Comments Posted To: Products, Resources, Helpful Links I frequently get emails or read threads from people about things that can trigger seizures - or make them more likely to occur, as well as factors or products that may improve seizures. I'd like to invite people to share their stories...
EllieW We Have a Celebrity! Created by EllieWat10/10/06 - 1:25 pm\|1311 Views\|5 Comments Posted To: Products, Resources, Helpful Links I know that on other communtities , many were kind of bummed that Elton John had not done much for Epilepsy Awareness. Considering he has Epilepsy, I've found many to have been somewhat insulted about it. However, after being given...
Winston epilepsy specific scholarships? Created by Winstonat3/1/07 - 2:50 pm\|1159 Views\|5 Comments Posted To: Products, Resources, Helpful Links Hi! I'm applying for the fall to get my masters degree in social work and am searching for scholarships. Does anyone know of any scholarships out there that are specifically for individuals with epilepsy? I already know of the keppra...
epi_help Social Security Link Created by epi_helpat11/21/06 - 4:21 am\|1129 Views\|5 Comments Posted To: Products, Resources, Helpful Links Just found a helpful resource on Social Security Administration's website - a Disability Planner to help figure out if people are eligible for social security disability and even apply online. Their definitions are given and lots of...
angel_lts Free Medication and discounts Created by angel_ltsat1/14/06 - 5:23 am\|1056 Views Posted To: Products, Resources, Helpful Links Destination RX Discounts for Medications http://www.destinationrx.com Free Medication Foundation http://www.freemedicinefoundation.com/ Needy Medications http://www.needymeds.com/ Partnership for Assistance Perscription-PPARX...
sonicboom computer filters Created by sonicboomat3/1/07 - 4:54 am\|1039 Views\|15 Comments Posted To: Products, Resources, Helpful Links hi i was wondering if anyone knew what the best type of computer filter screen was to get for an epileptic to stop the comp affecting me so much??? emily :o) x x x...
spiz Misdiagnosis of Epilepsy Created by spizat3/18/06 - 8:15 pm\|1026 Views\|13 Comments Posted To: Products, Resources, Helpful Links ...
epi_help Add your thoughts here! Created by epi_helpat3/11/06 - 3:47 am\|948 Views\|2 Comments Posted To: Products, Resources, Helpful Links This thread is beign 'amended' to give users a place to list ideas for equipment, products, resources or helpful links that they would like to share with others. Please feel free to list these in other posts, but copy to here so you...
angel_lts Anti-Suffocation Pillows Created by angel_ltsat1/11/07 - 4:26 pm\|938 Views\|2 Comments Posted To: Products, Resources, Helpful Links Anti-Suffocation Pillows Discount web site http://www.sleep-safe.co.uk/id90.htm These anti-suffocation pillows are made from a pharmacist in the UK who had a son who had epilepsy. There is 2,700,000 people in the U. S....
jmom Seize a cure Created by jmomat8/6/06 - 8:57 pm\|932 Views\|3 Comments Posted To: Products, Resources, Helpful Links Has anyone seen the epilepsy awareness bracelets that say "Seize A Cure". I have heard of them, but do not know where to find them. My son is 11 and has epilepsy and would like to have some of them. Thanks, Jonna-Matthew's Mom...
epi_help Seizure Calendars and observation tips Created by epi_helpat9/18/06 - 6:42 am\|914 Views\|3 Comments Posted To: Products, Resources, Helpful Links Hi everyone, Epilepsy.com is doing a series of articles with Exceptional Parent on different topics about epilepsy and teens. While teens are the target audience, much of the content applies to people of all ages. With each article,...
d00r Neurological Meds website Created by d00rat8/16/06 - 9:26 am\|871 Views\|3 Comments Posted To: Products, Resources, Helpful Links I found this site: http://www.crazymeds.org/ It has a listing of medications that have a lot of information in lay-mans terms. No doctor speak. It's humorous and informational, with a lot of information compiled from different...
terrij support arm bands Created by terrijat1/12/06 - 11:21 am\|864 Views\|1 Comment Posted To: Products, Resources, Helpful Links At my local Epilepsy support group meeting for a donation I got ared and blue support band that says Epilepsy Fondation on it,but I want a magnet ribbon (if there is one)for my car. terrij ...
PAOLOM... tryptophan, serotonin and epilespy. A new approch to control seizures Created by PAOLOM...at2/2/07 - 1:09 am\|855 Views\|2 Comments Posted To: Products, Resources, Helpful Links Hello, Iâ€™m Paolo Mainardi, Iâ€™m a chemistry and I work on epilepsy in the Neurological Clinic of University of Genoa since 1982. I had a lot of experience on amino acids and peptides in plasma and CSF in different neurological...
aquila316 New York Times Article on 2-20-07 Created by aquila316at2/21/07 - 7:50 am\|693 Views\|4 Comments Posted To: Products, Resources, Helpful Links I don't know if anyone saw this, but there was a GREAT article in the New York Times yesterday. It was entitled "Battling Epilepsy, and It's Stigma" and describes a young girl with Epilepsy. Unforunately, it also goes into detail...
juperee Clinical trial for new implant looking for participants Created by jupereeat9/16/06 - 10:22 am\|650 Views\|3 Comments Posted To: Products, Resources, Helpful Links Hey folks! As I noted in my blog, I started working at Medtronic where I design pacemakers and other cardio devices. But Medtronic also makes neurological devices, including the brand new "Intercept" that will be used to treat epilepsy...
Godiva... A cool website. Created by Godiva...at8/16/06 - 6:32 am\|635 Views Posted To: Products, Resources, Helpful Links OK, I didn't have a tonn of time to check this out, but for those in the USA - especially Florida, this looks kinda cool. I work in Marketing & was looking up a company called "Dunne, William M. and Associates"....This epilepsy doctor's...
tnpeach My Miracle.... Created by tnpeachat4/26/06 - 2:27 pm\|629 Views Posted To: Products, Resources, Helpful Links Hi, I posted in another forum as well because this has been so life changing for me I want to share it with as many people as I can. I am not trying to "sell" you on anything, I sincerely want to share with you what has helped me....


Eric Todd "The Making of Mike" an inspirational story of a man's life with ... Created by Eric Toddat9/16/10 - 3:24 pm\|16 Views Posted To: Products, Resources, Helpful Links Hi-I just wanted to make you all aware of a new book that has been published. It is called "The Making of Mike" and it is my dad's journey through life with epilepsy. I grew up with the man, and I really had my eyes openedby this book. It...
phylis... 2011-12 Top Psychiatric Hospitals in the U.S. Created by phylis...at8/22/11 - 7:24 am\|2 Views Posted To: Products, Resources, Helpful Links The U.S. News & World Report’s annual hospital survey is valued for it’s integrity, its impartiality and the method by each hospital is rated. Criteria for the survey is: hospital reputation and satisfaction …details of the services provided…plus...
Godiva... A cool website. Created by Godiva...at8/16/06 - 6:32 am\|635 Views Posted To: Products, Resources, Helpful Links OK, I didn't have a tonn of time to check this out, but for those in the USA - especially Florida, this looks kinda cool. I work in Marketing & was looking up a company called "Dunne, William M. and Associates"....This epilepsy doctor's...
2space... a place where i recieved a list of epileptologists Created by 2space...at8/16/06 - 9:30 am\|1502 Views\|2 Comments Posted To: Products, Resources, Helpful Links hey, everyone. i've just come from visiting this site. it was a link for me to go to. i hope by giving you the address to this site, you will be able to visit there also. cuz i'm not sure how to send you an actual link. you can...
JulieH A site about clinical trials, especially dedicated to patients an... Created by JulieHat3/3/10 - 12:08 pm\|10 Views Posted To: Products, Resources, Helpful Links TrialReach is a search engine for clinical trials that is especially dedicated to patients and their loved-ones. We explain each study in plain English, with pictures, videoclips, and maps that make the information much easier to understand. Patients...
phylis... A warm alternative to cold, hard helmets... Created by phylis...at5/28/10 - 12:37 pm\|10 Views Posted To: Products, Resources, Helpful Links Say good-bye to big, clunky helmets and say hello to a protective hat that’s good-looking too. A friend of mine just introduced me to this innovative new product called the Humpty Hat. (An unfortunate name, I agree. Who wants to be reminded of Humpty...
pgd Acquired Brain Injury, Inattention, ADHD, related topics Created by pgdat7/9/07 - 11:06 am\|217 Views Posted To: Products, Resources, Helpful Links Mild TBI, ABI, Inattention, Distractibility, ADHD, Learning Disabilities, related topics http://www.biausa.org http://health.groups.yahoo.com/group/ADHD_Bulletin_Board/ http://www.headinjury.com...
epi_help Add your thoughts here! Created by epi_helpat3/11/06 - 3:47 am\|948 Views\|2 Comments Posted To: Products, Resources, Helpful Links This thread is beign 'amended' to give users a place to list ideas for equipment, products, resources or helpful links that they would like to share with others. Please feel free to list these in other posts, but copy to here so you...
olddam... Adult/Senior helmet Created by olddam...at10/1/09 - 6:24 am\|10 Views\|2 Comments Posted To: Products, Resources, Helpful Links Hello all. I am new, but not to internet support groups. They have been my consolation when no one I know is in my boat!
angel_lts Anti-Suffocation Pillows Created by angel_ltsat1/11/07 - 4:26 pm\|938 Views\|2 Comments Posted To: Products, Resources, Helpful Links Anti-Suffocation Pillows Discount web site http://www.sleep-safe.co.uk/id90.htm These anti-suffocation pillows are made from a pharmacist in the UK who had a son who had epilepsy. There is 2,700,000 people in the U. S....
bizarr... Any Computer Techies Who Could Help a Student Figure Out Which Co... Created by bizarr...at7/15/10 - 1:46 pm\|5 Views Posted To: Products, Resources, Helpful Links Hi Everybody, I am a lifelong epileptic who has returned to school, again. I am using a 10-year-old desktop computer with old programs, monitor, and memory that is not able to keep up with my studies. I am hoping someone who...
lindsie81 any subs for depakote?/new to page Created by lindsie81at6/21/10 - 7:01 pm\|4 Views Posted To: Products, Resources, Helpful Links i am trying to get off of depakote. i still have jerks though when i reduce myself. i have been on it since i was 10 years old and i am now 29. my body is so used to the meds i have to take it by liquid form because the pill wont digest. i am also on lamectil...
epi_help articles on energy drinks and seizures Created by epi_helpat1/9/09 - 7:05 pm\|28 Views Posted To: Products, Resources, Helpful Links Hi everyone.. here are 2 articles about energy drinks and seizures.. we were talking about these in chat tonight..I took the following information from Pub Med Central. 1-Epilepsy Beh. 2007 May;10(3):504-8. Epub 2007 Mar 8.
phylis... Attractive Epilepsy Alert Jewelry Created by phylis...at11/22/09 - 7:40 am\|203 Views\|9 Comments Posted To: Products, Resources, Helpful Links
spirit... Auction to raise funds for epilepsy awareness campaign! Ends 4/4/10 Created by spirit...at3/28/10 - 6:04 pm\|9 Views Posted To: Products, Resources, Helpful Links
phylis... Canine Partners for Life Created by phylis...at9/1/09 - 8:01 am\|23 Views Posted To: Products, Resources, Helpful Links I was recently introduced to an organization called Canine Partners for Life. http://www.k94life.org/html/seizure_alert.htm These seizure alert dogs are able to predict seizure activity anywhere from several minutes to an hour before the seizure occurs. ...
Mary G. Care Medical ID Bracelet Created by Mary G.at5/4/10 - 7:30 am\|15 Views Posted To: Products, Resources, Helpful Links Hello to all!
cdkl5mum CDKL5 disorders Created by cdkl5mumat10/11/08 - 3:46 am\|18 Views\|1 Comment Posted To: Products, Resources, Helpful Links Two of my children had Infantile Spasms / West Syndrome. They have subsequently been found to have a CDKL5 disorder. This is a newly discovered gene that is not yet widely known about. Please send a link to your medical practitioner for http://www.cdkl5.com...
Childr... Children's Hospital Boston's epilepsy-related information Created by Childr...at10/27/09 - 10:30 am\|22 Views Posted To: Products, Resources, Helpful Links Hello, The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://childrenshospitalblog.org/ The series will touch upon a wide range of epilepsy-related topics - from the epilepsy...
juperee Clinical trial for new implant looking for participants Created by jupereeat9/16/06 - 10:22 am\|650 Views\|3 Comments Posted To: Products, Resources, Helpful Links Hey folks! As I noted in my blog, I started working at Medtronic where I design pacemakers and other cardio devices. But Medtronic also makes neurological devices, including the brand new "Intercept" that will be used to treat epilepsy...
sana comments plz... Created by sanaat2/19/07 - 12:54 am\|513 Views\|1 Comment Posted To: Products, Resources, Helpful Links Hi, next week my younger brother is going to celebrate his 3rd b'day and I am looking for a nice present. I thought mylittlechild.com is good in kiddy products. Do you guys know anything about them?...
sonicboom computer filters Created by sonicboomat3/1/07 - 4:54 am\|1039 Views\|15 Comments Posted To: Products, Resources, Helpful Links hi i was wondering if anyone knew what the best type of computer filter screen was to get for an epileptic to stop the comp affecting me so much??? emily :o) x x x...
ClanOf... Container for Diastat? Created by ClanOf...at4/9/10 - 7:05 pm\|11 Views\|1 Comment Posted To: Products, Resources, Helpful Links Hi!
CDmom Cortical Dysplasia Website Created by CDmomat11/4/08 - 8:26 pm\|56 Views\|1 Comment Posted To: Products, Resources, Helpful Links Hi,
kljagain Cover Story of Newsweek: Epilepsy Created by kljagainat4/14/09 - 9:39 am\|19 Views Posted To: Products, Resources, Helpful Links April 2009 Newsweek Cover Story: "The Mystery of Epilepsy - Why we must find a cure" http://www.newsweek.com/id/193586

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