My 18 year old daughter has had seizures since having a large cycst removed from her brain. Most occur when she is sleeping. Consequently, there are times when she is afraid to sleep - even though she has been assured that it is not dangerous. Naturally...

Anti-Suffocation Pillows Discount web site http://www.sleep-safe.co.uk/id90.htm These anti-suffocation pillows are made from a pharmacist in the UK who had a son who had epilepsy. There is 2,700,000 people in the U. S....

Hello, The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://childrenshospitalblog.org/ The series will touch upon a wide range of epilepsy-related topics - from the epilepsy...

During my last seizure I bite my tongue. It has been hurting now for a couple days now. Does anyone know a good treatment for a bitten tongue?...

I run a website, ozville.org (major focus on epilepsy awareness). Recently I've been reading a lot about natural cures, health, nutrition.... and I have a few articles and resources I really want to share here. I lost someone dear to me, who was on seizure...

Hello all.  I am new, but not to internet support groups.  They have been my consolation when no one I know is in my boat!

I am really worried about the medications of many people use... thats the reason because show that theme to you... The Drugs like the VICODIN the most important things about vicodin [b][url=http://www.crdrx.com]Vicodin[/url][/b]...

We have reason to believe seizures can be predicted prior to onset using a non-invasive technology, but it has been extremely difficult to find volunteers to assist with sample collection.  Unfortunately, without volunteers, this promising idea will never...

I was recently introduced to an organization called Canine Partners for Life. http://www.k94life.org/html/seizure_alert.htm  These seizure alert dogs are able to predict seizure activity anywhere from several minutes to an hour before the seizure occurs. ...

A Place where you can get all side effects and various drugs that interact with any of the epilepsy medication is at International Drug Mart http://www.internationaldrugmart.com/

www.seizurestraighttalk.com is a grassroots effort to share information that my husband and I have gathered over 4.5 years of searching for answers on how to stop our daughter, Kennedy's, seizures.  Kennedy has suffered with seizures since she was 2 and...

Hello, I’m Paolo Mainardi, I’m a chemistry and I work on epilepsy in the Neurological Clinic of University of Genoa since 1982. I had a lot of experience on amino acids and peptides in plasma and CSF in different neurological...

  I am currently involved in research that, if successful, would make it possible to predict seizures prior to onset. It is in the preliminary stage and we are at a point where we are looking for volunteers to test a non invasive device to be worn...

Our 3 1/2 year old son was just diagnosed.  Not only was that hard to accept, (he has other issues too), but then when I went to get the meds filled (lamictal) I was told the copay after insurance was $985/mo.  We can't even pay our bills right now, not...

I am a recent college graduate of the Milwaukee Institute of Art & Design. For my senior project I designed an epilepsy helmet. The product is currently only a concept. I am pursing grants to further my research and get a prototype under way. Please see my...

Does anyone know when the walk is going to be in 2010? Also, if we go to the 2009 walk page and register, will that register us for the 2010 walk an allow us to have a website for fundraising?

I want to have an emergency bracelet made but not the ones I see on the internet.  I found a place in the mall that engraves bracelets and necklaces.  What should I have printed on it?  I don't want to have my medication put on it because they are changed...

This is not a sales pitch guys, I'm just sharring something new I have tried. My nephew (he is 6) has had a lot of problems, socially, physically, mentally. He can not talk. He has had every test there is, has about 8 doctors, and nothing seems to be...

Is there a newsletter regarding Epilepsy/Seizure Disorders that can be mailed to my home. Any help is appreciated..    -  Unleashed

April 2009 Newsweek Cover Story: "The Mystery of Epilepsy - Why we must find a cure" http://www.newsweek.com/id/193586

Hi,

Just by hearing the highlights of this new story this morning on ABC's 'Good Morning America', I decided to keep my TV on in order to watch the full story. And at the moment of this posting, the news story along with the video of the story can be found at...

Does anyone know anything about the new device called the neuropace? I know it is like a pacemaker of the heart; it shocks your brain when it sees the abnormal brain waves. But other than that, does anyone know anything else on it?...

Hi, My 3 yr old son was diagnosed with epilepsy last week. His seizures began while he was sleeping. I heard that there is a special pillow for that will help him should he have a seizure while sleeping again. Does anyone have any information about...

Hello there,

Hi, I am new to this. My 3 year old son was diagnosed with epilepsy last week. I heard there is a special pillow for those who have epilepsy. Can anyone tell me where I can find it, and how much it cost. Also, if you have any other resources, tools,...

Hi, I am new to this. I am so glad to have found this website. My son is 3 yrs old. He had his first seizure while sleeping, and he vomited afterwards. I heard that there are some special pillows for people with Epilepsy. Does anyone know what they are called,...

Hello, We wanted to share our find we have  found this monitor system that is made in uk and you can order through bedseizurealarm.com , Its a monitor that lets you know if your child is having a seizure while they are sleeping, its real easy to...

Hi everyone.. here are 2 articles about energy drinks and seizures.. we were talking about these in chat tonight..I took the following information from Pub Med Central. 1-Epilepsy Beh. 2007 May;10(3):504-8. Epub 2007 Mar 8.

Hi! I'm applying for the fall to get my masters degree in social work and am searching for scholarships. Does anyone know of any scholarships out there that are specifically for individuals with epilepsy? I already know of the keppra...

does anyone know where i can find the top 100 list? i have googled it and can't find anything. my son is in desperate need of a doctor who knows what the heck they are talking about. i don't care where i have to go....

I have another information about Andrographis which I want to share with you guys. (Suggested Use for Andrographis: Take 1 capsule two times daily with food or water. Andrographis Extract is standardized to 10% andrographolides to support healthy immunity.)...

  Two of my children had Infantile Spasms / West Syndrome. They have subsequently been found to have a CDKL5 disorder. This is a newly discovered gene that is not yet widely known about.  Please send a link to your medical practitioner for  http://www.cdkl5.com...

I have been looking for specific jewelry, such as a bracelet, that I could buy to benefit ongoing research for epilepsy.  I don't seem to be able to find anything and I would love to attach my med alert charm for epilepsy onto such a bracelet.  I figure,...

Making a difference in the lives of epilepsy patients is easy when you use Firstgiving! What is Firstgiving? Firstgiving.com allows you to be creative in designing an individual fundraising page for your favorite charity. (See our $5 Campaign.) You can...

http://communityforum.epilepsysupportgroup.com/index.php

please, i dont know what to do anymore.  we spent our last dollar last night and have no way of obtaining money fo the rest of the month.  i have never begged a day in my life but i know nothing about this disorder and my kids are hungry. please someone...

I am about to have my 7 yr old daughter's ARD at school.  She is attending a new school this year and I'd like to hand the staff that will be working with her something they can watch on seizure aid.  Hannah just had a 2 1/2 hour status seizure last week. ...

I hope this helps somebody.   I know these kinds of posts spread like wildfire, so he may already be taken.  I hope he can find a home where he can put his skills to work.

I know that on other communtities , many were kind of bummed that Elton John had not done much for Epilepsy Awareness. Considering he has Epilepsy, I've found many to have been somewhat insulted about it. However, after being given...

I hope this helps somebody.   I know these kinds of posts spread like wildfire, so he may already be taken.  I hope he can find a home where he can put his skills to work.

Hello. I just wanted to share a great site I found. It offers free medical ID cards that you can fill out and print at home. My daughters medications are constantly changing, so we have never been able to engrave them into her Medic...

It has been said repeatedly that there are over 40 different types of seizures with more or less only the most 'popular' listed. Let's see if we can locate the ones that aren't. These types of seizures affect someone and I feel need to be noted. I'm curious...

So I was looking up info on the relationship between the thyroid and epilepsy or thyroid issues vs epilepsy and came across this very interesting study that talks about people who consumed larger amounts of goitrogenic substances found naturally in plants...

World of Possibilities! disAbilities, Healthy Aging, and Independent Living Expo May 2nd-3rd, 2008 - Gaithersburg, MD Montgomery County Fair Grounds - $3 Admission

hi i was wondering if anyone knew what the best type of computer filter screen was to get for an epileptic to stop the comp affecting me so much??? emily :o) x x x...

Can anyone find some pretty pill box key chains? I've found some pill box key chains at Rite Aid but they are ugly metal things. I want something cute and discrete like a lady bug shaped pill box that I can attach to my key chain. Any ideas? ...

Hi everyone, Epilepsy.com is doing a series of articles with Exceptional Parent on different topics about epilepsy and teens. While teens are the target audience, much of the content applies to people of all ages. With each article,...

Just waned to let everybody know that Trileptal is available in a GENERIC version FDA site http://www.fda.gov/bbs/topics/NEWS/2007/NEW01721.html pass the news on - it will save me a lot of $$$$ ...

Hi, We have a 23 year old daughter who has CP and seizure disorder, we would like very much to purchase a Cycle Tote so that we can all go bikeriding as a family. She is 4'7" and weighs 78lbs, we bought an X-large bike trailer, but...