Hello!

Hi. My 8-year old grandson had a seizure while sleeping in my lap.  We suspect that he may have had 1 or maybe 2 more over a year ago.  He had seizures associated with fevers when a baby.  The last one was over 4 years ago.  The neurologist suggested...

My son was diagnosed as having absence seizures when he was 4 years old.  We suspect that they began when he was 2 1/2 - 3 years old, we just didn't realize what his "eye rolling" was all about for a very long time.  He was on several different...

My son is newly diagnosed with absence seizures. He is on Zarontin.  He is only 5 years old and up to 6 ml in the a.m. and 6 ml in the p.m.  He is still having about 1-2 per day.  I'm not sure how much higher they will increase it too. I am surprised...

Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test,...

Are breakthrough seizures a normal part of epilepsy or is it a sign that the medication is not right? Sheila...

My daughter is struggling in school.  She is on 2000mg of Keppra and I dont know if that has something to do with it or not.  Does anyone have any suggestions about how I can help her?  She struggles with memory a lot.  I posted in more detail a few...

Hi, I'm new here and still working with a preliminary diagnosis for my 6yo son. His neurologist says he's having complex partial seizures and we're scheduled for an EEG tomorrow, and an MRI at a future time pending clearance from...

my son had his first seizure the weekend after thanksgiving last year a week later he had 2 tonic clonic within 24 hrs. He was having what he described as a funny feeling in his legs a week before he had his first seizure. he continued to have that feeling...

Dear all, I am new to this forum. My daughter (9 yrs old) was diagnosed with Epilepsy last year after two major seizures. Her EEG summary is " left hemispherical epileptogenic focus" MRI summary is "Nodular Heterotopia involving the subependymal lining...

I am a mother of a 7 month old son - Brextin and we knew he had epilepsy at around 4 months old - we did just find out that they have increased to cluster seizures and are taking him off of phenabobital and placing him on topamax and Vitamin B. I believe the...

HI, I'm new to this site and i just had some questions and some concerns.Im going to try to make this short but my son is 6 he will be 7 in a few days.In November we started him on ritalin because of his school teacher saying he was...

I am the mother of a daughter newly diagnosed with seizures. Please forgive me in advance if I use the wrong terms-I am just learning.

Hi,

My daughter has been on Keppra for over a year now, and recently after they raised her dose, she has started to experience extreme constipation. To the point of it almost being a week between bowel movements. It happens every few weeks, and my doctor seems...

i am SO frustrated and scared....my daughter, Brenya's 1st seizure was when she was 8-mo-old, it turned out to be febrile (she ended up having roseola). since then her seizures have always been fever-related up until about the last 8 mo's or so. now her...

Hi everybody, I'm brand new here and I'm wondering if anyone has any tips on what to ask the neurologist tomorrow.  My 5 year old son, Dylan, was recently diagnosed with a seizure disorder and we found out on Friday that his MRI showed a 3 cm cyst in his...

Calling all parents of children with seizures! We are starting a chat hour just for you! A time to join with other parents to share experiences, support, and  learn from each other. Karen and Colina, two of our mentors will facilitate the group. Meet in...

Hi im Priscilla, my daughter has brain damage from delivery and had her first seizure 6 hours after she was born she spent a month in childerns hospital they got the seizures under control with phenobarb, she hed partial seizures around 1 due to shunt malfunction...

Hi - Im not sure Im supposed to be writing to this topic, since my nephew is the one with the seizure disorder, but my sister and her husband are just so overwhelmed, I thought I could start up the discussion. Their son was diagnosed in March - hes 2and a...

Hi, My son is 4yrs old and has "difficult to control" seizures. He failed several AEDs and ketogenic diet.  I would like to try some alternative treatments but don't know where to go.   I am thinking Chiropratic adjustment or Chinese...

New Mom here....my son has refractory E, with multiple sz types.  Currently on Lamictal & Zonisimide and titrating the clobazam up.  He is 17, has had an IEP since 2nd grade.  We have school emergency plan that school nurse can administer lorazepam...

Hi, My daughter (2yrs) had a seizure after throwing up and having diarrhea for 3 days. She has never had a seizure before this so I freaked out and called 911. The hospital tested her salt level and determined that it was not...

Hello Everyone.

My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack knife" seizures where his head would...

My daughter was switched from name brand Lamictal to generic when it first came out. She is eight. Every since she started generic she has had acne. Has any one else had this problem with the generic brand? I talked to her ped about it and he said to make...

Does anyone have experience with UCSF or Stanford in regards to treating pediatric epilepsy? Thanks!! Tml  

Hi. I am new to this site. My Son is 18 months old and has had about 3 seizure a week in the last 4 weeks. yesterday he had 2. It seems like they are increasing since the onset 4 weeks ago.  Seizures are partial complex . He stares straight ahead and is non...

My 3yr old started having seizures back in September. We have tried many different meds. He is currently on 2 meds 3x a day and Kepr twice a day and still having 3-10 drop attacks daily. We are getting ready to start the Ketogenic Diet in March. Any helpful...

Am wondering if anyone had seen continual hand twitching (right hand, last two fingers, slow movements)? Teen was recently diagnosed with generalized epilepsy and has just started on lamictal. Neurologist seems stumped by the hand...

Well it's been a long time since I have been on this site as it's been over 2 years since Kaitlyn was diagnosed. We are still struggling with a treatment plan for her and in the mean time, Christopher (2) has developed some behaviors that seem like seizures...

Sorry I am new at this so I dont know if I have it posted in the right spots.  I have some questions regarding Panayiotopoulos Syndrome, schooling issues, and Keppra.  My daughter was diagnosed April 2008 with this.  She has been on the Trileptal before...

Hi I am new here and have questions regarding Lamictal.  My daughter was diagnosed with absence seizures when she was 8 years old.  She was treated and controled with medication for 2.5 years and doctor backed her off the meds to see if she had outgrown...

Hello Everyone! 

My son has epilepsy, his tonic clonic seizures seem well controlled by a relatively high dose of Keppra.  He had a febrile seizure two weeks ago with bronchitis.  My son also seems to have a lanugage delay, he's just two, so I'm in the process of getting...

  My 5 year old has refused to eat breakfast for the past 3 years. He would make himself vomit if he was forced to eat a healthy breakfast ( pancakes, cereal, toast, eggs,bacon, etc..) and lunch and dinner.But on the upside he will eat a salad...

  My 5 year old has refused to eat breakfast for the past 3 years. He would make himself vomit if he was forced to eat a healthy breakfast ( pancakes, cereal, toast, eggs,bacon, etc..) and lunch and dinner.But on the upside he will eat a salad...

I am looking for "littlebug".  I have some questions for you regarding sensory seizures.  You responded to a post I put out there asking about whether sensory seizures were dangerous.  You mentioned they were hard to detect on tests.  Thanks!

I posted some questions about sensory seizures a couple of weeks ago.  I have a 10 year old son who was having what we believed to be sensory seizures.  We had a 24 hour video eeg scheduled for 5/16/09, but got in last week due a  cancellation.  Someone...

Is there a possibility of having more than one type of seizure?  My daughter has Benign Occipital Childhood Epilepsy (same as Panayiotopoulos Syndrome).  She has Complex partial seizures.  She has been having these spells of tiredness lately and they are...