Just a few days ago my 5 year old son had his 3rd episode in just under one year of seizure-like activity. He starts off just dizzy, disoriented, and sick looking. His face becomes flushed and his eyes are deviated to the right. He is conscious and sometimes...

Hello Everyone.

Hello, I just wanted to post my experiences with my son's new diagnosed epilesy and see what people thought.  No one's ever accused me of being brief. So please forgive me as I want to give all the details I can and see if anyone's had a similar experience...

Hi everyone, I am new here and wanted to tell our story and ask if anyone has any advice or similar experiences they could share.

My son is 4 years old and has had 3 complex partial (temporal lobe) seizures.  After the first seizure we took him for an eeg which was normal.  The second seizure happened at my mother in laws while my son was sleeping over (so was probably caused from...

Hi everyone! So I just got a referrall to the St. Louis Childrens Hospital! I'm so excited! We finally have the chance to get a second opinion and deal with a hospital who specializes in seizures! I'm just curious if anyone on...

My 5 1/2 year old daughter was just diagnosed with having absence seizures.  She doensn't have many, so I really don't want to put her on Zarontin, like the doctor is suggesting.  I've seen many people say that fish oil or omega 3 helps reduce  the number...

My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack knife" seizures where his head would...

Hello all, my name is Kimberley.  I new to this, but writing in hopes of getting insight, opinions and peace of mind for my 4 year old daughter, Hailey.  Also, maybe our story could help someone else. 

Sorry I am new at this so I dont know if I have it posted in the right spots.  I have some questions regarding Panayiotopoulos Syndrome, schooling issues, and Keppra.  My daughter was diagnosed April 2008 with this.  She has been on the Trileptal before...

Can anyone tell me information about my child's first EEG? My husband had one for something unrelated a few months ago and could only sleep for 4 hours... I can't imagine doing that with a child!! Thanks. S

I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.

my 81/2 month old son had his 1st siezure about 3 months ago, he has been on keppra for 2 months now. all of he test come back normal....normal eeg, catscan, mri, blood tests etc. We thought we were doing good until this morning he had his 1st sz in 20 days?...

My son is newly diagnosed with absence seizures. He is on Zarontin.  He is only 5 years old and up to 6 ml in the a.m. and 6 ml in the p.m.  He is still having about 1-2 per day.  I'm not sure how much higher they will increase it too. I am surprised...

So we believe that my son has had a least 3 seizures while sleeping- first one 12/09. He bit his mouth open REALLY bad, and slept through it. I have been taping him at night, hoping to catch something for the neurologist. It is really hard to review 8 hours...

My son is 10 and has only had 2 seizures that we know about (5 years apart). He was diagnosed after the 2nd on with Temporal lobe epilepsy (last seizure started in the right temporal lobe). The last seizure was three years ago now, but in the last two or...

Hello, My 2-yr-old began having seizures at 2mos old.  I'm wondering what other parents do for record keeping; keeping track of doctors, notes/records of appointments, recording seizures, etc.  Do you have copies of your child's medical records? ...

Epilepsy & vaccination In 1998, federal public health officials at the National Vaccine Injury Compensation Program, Public Health Service (Pediatrics; March 1998) found that a causal relationship exists between live measles vaccine...

I am new to epilepsy.com. Our son was dx 7 mo. ago with myoclonic epilepsy, had two mo. of seizures until we got a med. right, then almost 4 mo. of sz. freedom. Worse again and now on two medications. Considering dairy free and/or gluten free diet. Any...

My 4 1/2 year old son, Austin is being reviewed for a corpus callosotomy. He was diagnosed at 6 months with Infantile Spasms/West Syndrome and has now graduated to Lennox-Gastaut Syndrome. Despite a brief month during a run on the Keto Diet, he has had...

My six year old son was recently diagnosed with Epilepsy. He is a cancer survivor, having had Non-Hodgkins Lymphoma at age 2 1/2. He was on chemotherapy for two years and has now been off treatment for two years. He also has global developmental delays...

Hi All. So I submitted this in New to Epilepsy.com as well , if thats against the rules I'm sincerely sorry, just trying to get as much feedback/opinions as possible!   I guess I can say my daughter has seizures? She is 2 and a half years old.

 

I have 22 month old twin boys who both have epilepsy. Jeremy's eyes start to roll back or to the side often at night (probably during the day too, but I am a working mom, so I have to check this wkend). I usually try to get his attention and he's ok. I don't...

Hello, My son's seizures begin with a cry followed by rigid, tonic posturing, bluish colour, then limpness followed by a fencing posture. Does this sound familar to anyone? If so, I'd be very grateful to hear about your experience, if any meds worked, etc.

I am Mark, father to Lizzy, 3 1/2----Do you know of anyone who had focal seizures with/without fever and then one day out of the blue had more full-body fever seizures?--reason I ask is this morning it happened to Lizzy--high fever, so that triggered it--but...

I am new to the website and have really learned a lot in just a few days. My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand mal seizures a day. We are currently on...

I'm new here, and am hopeful for some advice/answers to my many questions.  My son is almost 3.  He has had 9 complex (prolonged?) seizures since he was 13 months old.  They usually last about 30 minutes.  He does not convulse; rather, he is very still,...

My son is 19.  He was diagnosed with complex partial epilepsy with secondary generalized seizures at the age of 12.  After two years on medication, he was taken off and has been fine since.  Nine months ago, he began with nausea which has continued daily...

Hello I have a 9 year old daughter with complex partial seizures that only only happen when she is sleeping per the EEG.

Hello I was researching on the web re: Carnitine supplements for use with Depakote/Epilim (Sodium Valproate) and I was wondering if anyone has given this a go with their kids, or any other info on this at all. Michele

Hello, Very new 2 this, doctors want to put my 6yr old son on Keppra, anyone using this on their children? Thanks upanama...

My daughter will be 2 at the end of the month and she has been on phenobarb since she was nine days old. She started a drug called topamax about 2 months ago and she started doing so good that the docs started to decrease her phenobarb....

Hi, My 18 month old has been on Keppra for a week. We're gradually increasing his dose. He was on 125 mg in the evening for a week and this morning he started on 125mg in the morning.  I'm very frightened to have him on this drug because of some...

Hi everyone

I am trying to figure out if my child has Lennox-Gastaut Syndrome.

My daughter is 7 and was just diagnoised with Occipital Epilepsy.  I have tried to do as much research as possible but not finding much.  Her first seizure that we were aware of was in April.  She had started vomiting while she was at my parents house. ...

I need some help and insight. I think my 8 year old son Max had a seizure on Christmas eve night. He woke up at about 7 am covered in blood. His mouth was bleeding heavily from a bite to the cheek, his bed was COVERED in dried blood. His face was...

Hi, My 8 year old daughter has just had her second seizure in 4 months ( not sure what it is called but she has the full on body shaking type) she didn't have any type of seizure previously, she has been started on Epilim as a precaution. I know absolutly...

I admit, my son sleeps in his toddler bed in our master bedroom.  I can't sleep not knowing what he's doing while he's sleeping.   His seizures are so subtle I don't pick them up on a baby monitor.    What have other people figured out?

Hello, My name is Sheila aka Roger's mom! He is 19 and was diagnosed with epilepsy in June of 08. We still do not have the seizures under control. He averages two to three gran mal seizures a month. Sometimes it just becomes overwhelming....... Probably...

Hi, My daughter (2yrs) had a seizure after throwing up and having diarrhea for 3 days. She has never had a seizure before this so I freaked out and called 911. The hospital tested her salt level and determined that it was not...