Good afternoon!  For those of you using vitamin B6 or have children using it, I wanted to ask this question. Do you take it in one large lump or do you spread it out over the course of the day? Eg. 150 mg in the am or 50 mg breakfast, lunch, and dinner. I...

Hello...I am new to this site...my son may have petite mal seizures....since finding out that this may be true, we have been noticing a few things recently....the one I have that is most standing out is Vomiting....when sleeping he...

Our 4 y.o. was diagnosed with BRE. He has had 3 seizures, 2 in June (on the same day) and one in July. Both times he was extremly tired and riding in the car. He was about 30 min. in to his sleep with each seizure. The first two in June were about 30 sec....

Hi all- I also posted this in the welcome area....

I think my son might have Benign Occipital Childhood Epilepsy. I don't know because I am not a doctor and our Pediatric Neurologist told us this morning that he was in over his head with my son. SO now we are taking matters in our...

My 4 year old had an eeg done back in november because I pushed for a referral.  Genetic epilepsy runs in the males on his dad's side and he was doing little things that bothered me...ALOT.    The child who knew his alphabet for MONTHS started forgetting...

My son complains of headaches a lot.  At first I thought he was just repeating what I said, but now I am wondering if he really has headaches.  He will say this on a day he has a seizure, or say it during a period when he has had many seizures.  The thing...

It's been a LONG time since I have posted on here, some might not even know me or remember me... so I will give some background information...

Does anyone else have a child with just absence seizures and no other neurological problems. I am trying to find someone who can support/relate to what we are going thru.  I know compared to others, having just absence seizures, seems less problematic, but...

Hi, My son was recently diagnosed with ADHD. He is six years old and has been on depakote for partial complex seizures since he was four. His doctor just prescribed focalin for the ADHD and I am scared to death to start him on...

I am new to the website and have really learned a lot in just a few days. My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand mal seizures a day. We are currently on...

Hye, my daughter is 11 mths old and is not able to sit. She has neonatal seizures and on different medicines now since we r trying which one is going to work. I am concerned about her motor skills and wanted to get some advise on physical therapy. should I...

It seems like as soon as we reach a state of having my son't seizures under control (about one a month)...it starts all over again and he starts having several every week with no warning.  Then we have to increase his med and try to plateau again.  His...

my daughter's speech is GREATLY affected by her epilepsy (due to where the seizures are taking place in her brain.)  we have gone to ASL with her although she is still in speech once a week.  this has greatly helped her communicate - praise God!  we...

My 18 month old daughter had a 20 minute siezure about 2 months ago which left a lesion and eventual scarring in the hippocampus of the brain. After fllow up MRI and EEG our doctor is now sure she will have furhter seizures due to...

I have searched everywhere trying to find any parent that has had a child with febrile seizures over the age that most children outgrow them....to no avail.  My son has had complex febrile seizures since he was 13 months old, he is now 12 and half years old.

Hi, my daughter is 9 and was diagnosed with Benign Rolandic Epilespy in May.  She has only had 2 seizures that we know of both were grand mal.  Well overall she has been fine.  However in the past month she had a really bad cough (Sept 27th) that ended...

My almost 2 yr.old son has been weaning off topomax for the past month and a half and now that he's been completely off for almost a week he's been crying when he wakes up, sweating a lot and i've just been wondering when this will stop and what other symptoms...

My six year old son was recently diagnosed with Epilepsy. He is a cancer survivor, having had Non-Hodgkins Lymphoma at age 2 1/2. He was on chemotherapy for two years and has now been off treatment for two years. He also has global developmental delays...

http://abclocal.go.com/kfsn/story?section=news/local&id=7065162

Hello all, Today I had a mini meeting with my daughter's principal & school psychologist. It was the first meeting with the psycho (;-) and to say the least, I am disturbed. It was rushed, because she only had about ten minutes,...

Hello!

My son was diagnosed as having absence seizures when he was 4 years old.  We suspect that they began when he was 2 1/2 - 3 years old, we just didn't realize what his "eye rolling" was all about for a very long time.  He was on several different...

My daughter is struggling in school.  She is on 2000mg of Keppra and I dont know if that has something to do with it or not.  Does anyone have any suggestions about how I can help her?  She struggles with memory a lot.  I posted in more detail a few...

i am a guy with epilepsy and it is now controlled very well with keppra.  i was wondering if anyone knew what to do about conceiving?  is the meds bad for sperm?  will the baby have epilepsy?  should i stop taking the meds before i try to conceive? what...

My 9 year old daughter has been on Lamictal, Topamax, Zonagran & Kepra for 3 years now, she had been on a variety of medications and many combinations since for 7 years now.  Her doctor does not do blood tests on her and I'm just wondering what all this...

Hello, It has been a while since I have visited this site. I need to know if anyone is having the same systoms as my son is been having. He is 4 yrs old and has been having siezures for 2 yrs now. All of them have been in his sleep. From what I hve...

Dear all, I am new to this forum. My daughter (9 yrs old) was diagnosed with Epilepsy last year after two major seizures. Her EEG summary is " left hemispherical epileptogenic focus" MRI summary is "Nodular Heterotopia involving the subependymal lining...

Ok, so I am new to all this. My daughter, Amelia (age 4) was just dx with Atypical Generalized Absence  Seizure on Friday. She has more of the characteristics of complex partial but instead of a focal point her serziures affect the entire brain (based on the EEG).

My son is 8 months old and started Phenobarbital for simple partial seizures (30+ a day) a month ago. He had an intraventricular hemorrhage in utero and has a shunt. The doctors increased the Phenobarbital dosage several times since it wasn't controlling...

My 6 year old has recently changed meds from tegretol to zarontin, as the most recent EEG showed she suffered from absence seizures. Since starting the Zarontin, she has suffered from many of the side effects (vomiting, loss of appetite mood swings) but recently...

My daughter has had seizures of this type since birth. She cannot walk, talk, sit up, or do anything for herself. She is eight years of age and I am very concerned for her. She is so sweet and only makes noises when interacting with us. She takes Tegretol,...

I have recently read that there have been patients with epilepsy that have had good success in decreasing their siezures by using the Modified Atkins Diet of 10 grams of carbs/day. (Obtaining similar results to the more difficult to follow Keto diet.)...

My 1 year old had experienced many myoclonic seizures and was put on Zonegran.  She was seizure free for 1 1/2 year and we began a 14 week weaning process.  She had been off medication for 1 month when she experienced her first tonic clonic seizure. ...

Hello Everyone.

My son is newly diagnosed with absence seizures. He is on Zarontin.  He is only 5 years old and up to 6 ml in the a.m. and 6 ml in the p.m.  He is still having about 1-2 per day.  I'm not sure how much higher they will increase it too. I am surprised...

Can anyone relate or share their story regarding complex partials of left temporal lobe, that is uncontrolled?  What is it like?  What can I do to further help my son?  Meds (Keppra) is not working, tests come back as normal except for 1 EEG which is...

I am hoping someone can help me figure out about these episodes my son is having. He is 20 months old and started having febrile seizures when he was 10 months. He had about 10 over the next 8 months but hasn't had one since April. The first EEG he had after...

I am fostering a dog for someone who wants the comfort of a loving, attentive dog who may be able to be trained as a seizure alert dog. Dog is currently receiving professional training with lifetime warranty from a leading national organization and is...

My daughter is 7 and was just diagnoised with Occipital Epilepsy.  I have tried to do as much research as possible but not finding much.  Her first seizure that we were aware of was in April.  She had started vomiting while she was at my parents house. ...

 

First time here! One of my 15 month old twins had her first seizure 2 months ago and her second this week. (Maybe has had more at night, we are not sure) Abnormal EEG, normal MRI. Doc said it was "some sort of genetic disorder"...

Hello, I just wanted to post my experiences with my son's new diagnosed epilesy and see what people thought.  No one's ever accused me of being brief. So please forgive me as I want to give all the details I can and see if anyone's had a similar experience...

My son is 19.  He was diagnosed with complex partial epilepsy with secondary generalized seizures at the age of 12.  After two years on medication, he was taken off and has been fine since.  Nine months ago, he began with nausea which has continued daily...