Epilepsy & vaccination In 1998, federal public health officials at the National Vaccine Injury Compensation Program, Public Health Service (Pediatrics; March 1998) found that a causal relationship exists between live measles vaccine...

We are new to epilepsy. Our daughter had a seizure lasting about 17 minutes back in June. She presented with a fever, but a month later had another one with out a fever. Since then she has had about 8 more always with sickness or lack of sleep. All her...

My daughter is almost 5  and has had seizures all her life. Since infancy she has been dianosed with complex particial and they have been under contol with Keppra and B-6. This past fall she started what we now know as a new seizure. They involved legs and...

I have searched everywhere trying to find any parent that has had a child with febrile seizures over the age that most children outgrow them....to no avail.  My son has had complex febrile seizures since he was 13 months old, he is now 12 and half years old.

My son is 8 months old and started Phenobarbital for simple partial seizures (30+ a day) a month ago. He had an intraventricular hemorrhage in utero and has a shunt. The doctors increased the Phenobarbital dosage several times since it wasn't controlling...

Hi, My 18 month old has been on Keppra for a week. We're gradually increasing his dose. He was on 125 mg in the evening for a week and this morning he started on 125mg in the morning.  I'm very frightened to have him on this drug because of some...

 

My 11 yr old daughter has absence seizures and was given generic keppra over the Christmas break. Her seizures returned after the first dose. She had a migraine that started on a Friday and would not go away. (Migraines are her main problem from the absence...

I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.

My 3 year old son was recently diagnosed with epilepsy.  He has had four tonic clonic seizures lasting about 2 min.  The other night he woke up and called me.  I wen to lay with him and he fell back asleep.  He been put on clonazepam to control the...

Hello everyone, I'm back.  I posted a while back about my 4 year old daughter, Hailey.  Since then, she has been to the neurologist and diagnosed with epilepsy with complex partial seizures.  She is taking Trileptal and doing well.

TrialReach is a search engine for clinical trials that is especially dedicated to patients and their loved-ones. We explain each study in plain English, with pictures, videoclips, and maps that make the information much easier to understand. Patients...

Hello,

My son is almost 3 months old and he has epilepsy.He has Absense ,Grandmal and Seizures where he quits Breatheing.When he was born he was perfectly fine until the next day he would quit breathing on me. They did some tests and said...

  I'm new to this website and am looking for advice! My very healthy, straight A student, 13 year old daughter just had her 2nd partial seizure in 3.5 months and U of Michigan pediatric neurologists want to start her on trileptol.Her EEG was normal...

Hello, My 12 year old has just been to the neuro, and was prescribed Sodium Valproate (Epilim) for his absence seizures. I know that all medications affect each person differently, but any 'heads-up' on this med. would be helpful. Will probably...

ok here's the deal. My son is 9 months old, and he has been having seizures but I don not know what type they are.  when he starts his eyes track to the right and then roll back. his head follows backwords untill he is in the prone position and he goes...

Hello, My 2-yr-old began having seizures at 2mos old.  I'm wondering what other parents do for record keeping; keeping track of doctors, notes/records of appointments, recording seizures, etc.  Do you have copies of your child's medical records? ...

Hello Everyone! 

My son is 4 years old and has had 3 complex partial (temporal lobe) seizures.  After the first seizure we took him for an eeg which was normal.  The second seizure happened at my mother in laws while my son was sleeping over (so was probably caused from...

Hi all,   My 3-year-old daughter was diagnosed with epilepsy at three months of age, along with diagnoses of Septo-Optic Dysplasia, hypothalamic dysfunction and paroxysmal autonomic instability. She has had several types of seizures,...

Hi everyone

The FDA has recently denied Emfit approval for their nighttime seizure alarm. I have sent an e-mail to the FDA demanding to know why it was denied, they have yet to get back to me. This device has been available in Europe, Asia, Australia and Scandanavia for...

Hello everyone.

I have a 2 year old son with severe epilepsy. We haven't been able to control seizures with medication. The doctor wants him to have a corpus callostomy.Has anyone got information about this type of surgery?  Especially in children.

My 12 month old son spend 3 days in the hospital in December and sent home with a diagnosis of Complex Febrile Seizures -  No Temperature, had 5 in one day, and a normal EEG and MRI. 

My 5 year old was recently diagnosed with Panayiotopolous Syndrom/Benign Occipital Epilepsy. For anyone else with the same diagnosis, have your seizures ever appeared during the day? My daughter's have only surfaced during the night...

Just a few days ago my 5 year old son had his 3rd episode in just under one year of seizure-like activity. He starts off just dizzy, disoriented, and sick looking. His face becomes flushed and his eyes are deviated to the right. He is conscious and sometimes...

Hello Everyone.

Hello, I just wanted to post my experiences with my son's new diagnosed epilesy and see what people thought.  No one's ever accused me of being brief. So please forgive me as I want to give all the details I can and see if anyone's had a similar experience...

Hi everyone, I am new here and wanted to tell our story and ask if anyone has any advice or similar experiences they could share.

Hi everyone! So I just got a referrall to the St. Louis Childrens Hospital! I'm so excited! We finally have the chance to get a second opinion and deal with a hospital who specializes in seizures! I'm just curious if anyone on...

My 5 1/2 year old daughter was just diagnosed with having absence seizures.  She doensn't have many, so I really don't want to put her on Zarontin, like the doctor is suggesting.  I've seen many people say that fish oil or omega 3 helps reduce  the number...

My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack knife" seizures where his head would...

Hello all, my name is Kimberley.  I new to this, but writing in hopes of getting insight, opinions and peace of mind for my 4 year old daughter, Hailey.  Also, maybe our story could help someone else. 

Sorry I am new at this so I dont know if I have it posted in the right spots.  I have some questions regarding Panayiotopoulos Syndrome, schooling issues, and Keppra.  My daughter was diagnosed April 2008 with this.  She has been on the Trileptal before...

Can anyone tell me information about my child's first EEG? My husband had one for something unrelated a few months ago and could only sleep for 4 hours... I can't imagine doing that with a child!! Thanks. S

my 81/2 month old son had his 1st siezure about 3 months ago, he has been on keppra for 2 months now. all of he test come back normal....normal eeg, catscan, mri, blood tests etc. We thought we were doing good until this morning he had his 1st sz in 20 days?...

My son is newly diagnosed with absence seizures. He is on Zarontin.  He is only 5 years old and up to 6 ml in the a.m. and 6 ml in the p.m.  He is still having about 1-2 per day.  I'm not sure how much higher they will increase it too. I am surprised...

So we believe that my son has had a least 3 seizures while sleeping- first one 12/09. He bit his mouth open REALLY bad, and slept through it. I have been taping him at night, hoping to catch something for the neurologist. It is really hard to review 8 hours...

My son is 10 and has only had 2 seizures that we know about (5 years apart). He was diagnosed after the 2nd on with Temporal lobe epilepsy (last seizure started in the right temporal lobe). The last seizure was three years ago now, but in the last two or...

I am new to epilepsy.com. Our son was dx 7 mo. ago with myoclonic epilepsy, had two mo. of seizures until we got a med. right, then almost 4 mo. of sz. freedom. Worse again and now on two medications. Considering dairy free and/or gluten free diet. Any...

My 4 1/2 year old son, Austin is being reviewed for a corpus callosotomy. He was diagnosed at 6 months with Infantile Spasms/West Syndrome and has now graduated to Lennox-Gastaut Syndrome. Despite a brief month during a run on the Keto Diet, he has had...

My six year old son was recently diagnosed with Epilepsy. He is a cancer survivor, having had Non-Hodgkins Lymphoma at age 2 1/2. He was on chemotherapy for two years and has now been off treatment for two years. He also has global developmental delays...

Hi All. So I submitted this in New to Epilepsy.com as well , if thats against the rules I'm sincerely sorry, just trying to get as much feedback/opinions as possible!   I guess I can say my daughter has seizures? She is 2 and a half years old.