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Topic: Parent Group

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geneva...
geneva...
New - 5 year old son with "episodes" that I believe are status epitlept...
Created by geneva...at2/8/10 - 6:42 pm|10 Views|1 Comment
Posted To: Parent Group
Just a few days ago my 5 year old son had his 3rd episode in just under one year of seizure-like activity. He starts off just dizzy, disoriented, and sick looking. His face becomes flushed and his eyes are deviated to the right. He is conscious and sometimes...
Jess_sMom
Jess_sMom
New - Newly diagnosed JME
Created by Jess_sMomat3/30/08 - 10:39 am|661 Views|65 Comments
Posted To: Parent Group
Hello Everyone.
ACDad
ACDad
New - Parent of 2 yr old with panayiotopoulos syndrome
Created by ACDadat9/2/09 - 12:51 pm|20 Views|2 Comments
Posted To: Parent Group
Hello, I just wanted to post my experiences with my son's new diagnosed epilesy and see what people thought.  No one's ever accused me of being brief. So please forgive me as I want to give all the details I can and see if anyone's had a similar experience...
jothebrit
jothebrit
New - DNET and temporal lobectomy for my 3 year old
Created by jothebritat4/2/08 - 6:34 pm|57 Views|5 Comments
Posted To: Parent Group
Hi everyone, I am new here and wanted to tell our story and ask if anyone has any advice or similar experiences they could share.
Jessica3
Jessica3
New - grand mal and a pcp doctors visit and no nero referral
Created by Jessica3at2/3/10 - 2:53 pm|25 Views|2 Comments
Posted To: Parent Group
aquaviti
aquaviti
New - Move up appt? Attention, behavior,learning issues
Created by aquavitiat2/4/10 - 8:01 am|22 Views
Posted To: Parent Group
cmh29
cmh29
New - Parent of a 4 year old with complex partial seizures
Created by cmh29at1/16/10 - 8:56 pm|37 Views|6 Comments
Posted To: Parent Group
My son is 4 years old and has had 3 complex partial (temporal lobe) seizures.  After the first seizure we took him for an eeg which was normal.  The second seizure happened at my mother in laws while my son was sleeping over (so was probably caused from...
kaitly...
kaitly...
New - St. Louis Epilepsy Group
Created by kaitly...at4/17/07 - 8:13 am|279 Views|4 Comments
Posted To: Parent Group
Hi everyone! So I just got a referrall to the St. Louis Childrens Hospital! I'm so excited! We finally have the chance to get a second opinion and deal with a hospital who specializes in seizures! I'm just curious if anyone on...
pbbsmom
pbbsmom
New - absence seizures
Created by pbbsmomat2/2/10 - 8:56 am|11 Views
Posted To: Parent Group
My 5 1/2 year old daughter was just diagnosed with having absence seizures.  She doensn't have many, so I really don't want to put her on Zarontin, like the doctor is suggesting.  I've seen many people say that fish oil or omega 3 helps reduce  the number...
Tommysmom
Tommysmom
New - Infantile Spasms
Created by Tommysmomat1/25/06 - 7:14 am|4307 Views|22 Comments
Posted To: Parent Group
My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack knife" seizures where his head would...
kimber...
kimber...
New - Aggravated, Scared, and Confused
Created by kimber...at1/11/10 - 6:06 pm|66 Views|5 Comments
Posted To: Parent Group
Hello all, my name is Kimberley.  I new to this, but writing in hopes of getting insight, opinions and peace of mind for my 4 year old daughter, Hailey.  Also, maybe our story could help someone else. 
4Jordie
4Jordie
New - Panayiotopoulos Syndrome/ Schooling Problems/ Keppra
Created by 4Jordieat4/20/09 - 2:21 pm|66 Views|6 Comments
Posted To: Parent Group
Sorry I am new at this so I dont know if I have it posted in the right spots.  I have some questions regarding Panayiotopoulos Syndrome, schooling issues, and Keppra.  My daughter was diagnosed April 2008 with this.  She has been on the Trileptal before...
mikean...
mikean...
New - EEG for kids
Created by mikean...at1/21/10 - 9:28 pm|30 Views|5 Comments
Posted To: Parent Group
Can anyone tell me information about my child's first EEG? My husband had one for something unrelated a few months ago and could only sleep for 4 hours... I can't imagine doing that with a child!! Thanks. S
Baby Sam
Baby Sam
New - Clobazam
Created by Baby Samat12/14/07 - 6:18 pm|133 Views|8 Comments
Posted To: Parent Group
I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.
Mrsroot
Mrsroot
New - 81/2 month old on keppra...still having seizures
Created by Mrsrootat8/5/09 - 12:48 pm|33 Views|5 Comments
Posted To: Parent Group
my 81/2 month old son had his 1st siezure about 3 months ago, he has been on keppra for 2 months now. all of he test come back normal....normal eeg, catscan, mri, blood tests etc. We thought we were doing good until this morning he had his 1st sz in 20 days?...
shu
shu
New - absence seizures and food triggers, Zarontin
Created by shuat3/6/08 - 1:09 pm|161 Views|12 Comments
Posted To: Parent Group
My son is newly diagnosed with absence seizures. He is on Zarontin.  He is only 5 years old and up to 6 ml in the a.m. and 6 ml in the p.m.  He is still having about 1-2 per day.  I'm not sure how much higher they will increase it too. I am surprised...
Starli...
Starli...
New - Is this a seizure? Video link...
Created by Starli...at1/25/10 - 6:51 pm|31 Views|3 Comments
Posted To: Parent Group
So we believe that my son has had a least 3 seizures while sleeping- first one 12/09. He bit his mouth open REALLY bad, and slept through it. I have been taping him at night, hoping to catch something for the neurologist. It is really hard to review 8 hours...
inthef...
inthef...
New - New Eye Movements. Epilepsy related?
Created by inthef...at1/23/10 - 6:27 pm|29 Views|4 Comments
Posted To: Parent Group
My son is 10 and has only had 2 seizures that we know about (5 years apart). He was diagnosed after the 2nd on with Temporal lobe epilepsy (last seizure started in the right temporal lobe). The last seizure was three years ago now, but in the last two or...
manna_sue
manna_sue
New - Record Keeping
Created by manna_sueat1/22/10 - 9:33 pm|28 Views|2 Comments
Posted To: Parent Group
Hello, My 2-yr-old began having seizures at 2mos old.  I'm wondering what other parents do for record keeping; keeping track of doctors, notes/records of appointments, recording seizures, etc.  Do you have copies of your child's medical records? ...
RorysM...
RorysM...
New - vaccines cause epilepsy?
Created by RorysM...at1/31/07 - 1:04 pm|1315 Views|16 Comments
Posted To: Parent Group
Epilepsy & vaccination In 1998, federal public health officials at the National Vaccine Injury Compensation Program, Public Health Service (Pediatrics; March 1998) found that a causal relationship exists between live measles vaccine...
anneeliz
anneeliz
New - searching for dietary help
Created by anneelizat1/19/10 - 1:48 pm|3 Views
Posted To: Parent Group
I am new to epilepsy.com. Our son was dx 7 mo. ago with myoclonic epilepsy, had two mo. of seizures until we got a med. right, then almost 4 mo. of sz. freedom. Worse again and now on two medications. Considering dairy free and/or gluten free diet. Any...
sarahu...
sarahu...
New - Corpus Callosotomy Surgery
Created by sarahu...at12/28/09 - 10:43 pm|25 Views|4 Comments
Posted To: Parent Group
My 4 1/2 year old son, Austin is being reviewed for a corpus callosotomy. He was diagnosed at 6 months with Infantile Spasms/West Syndrome and has now graduated to Lennox-Gastaut Syndrome. Despite a brief month during a run on the Keto Diet, he has had...
kimber...
kimber...
New - Could this have been another type of seizure my 4 yr. old daughte...
Created by kimber...at1/17/10 - 1:57 pm|13 Views
Posted To: Parent Group
joriej...
joriej...
New - Childhood Cancer and Epilepsy
Created by joriej...at10/15/09 - 9:57 pm|24 Views|6 Comments
Posted To: Parent Group
My six year old son was recently diagnosed with Epilepsy. He is a cancer survivor, having had Non-Hodgkins Lymphoma at age 2 1/2. He was on chemotherapy for two years and has now been off treatment for two years. He also has global developmental delays...
lujess03
lujess03
New - Yanking medications in the hospital/ketogenic diet
Created by lujess03at1/7/10 - 5:20 pm|11 Views|1 Comment
Posted To: Parent Group
Jerr04
Jerr04
New - Two Year Old Daughter, 6 seizures one day, No answers.
Created by Jerr04at1/14/10 - 3:27 pm|11 Views
Posted To: Parent Group
Hi All. So I submitted this in New to Epilepsy.com as well , if thats against the rules I'm sincerely sorry, just trying to get as much feedback/opinions as possible!   I guess I can say my daughter has seizures? She is 2 and a half years old.
abbygr...
abbygr...
New - Is this discrimination???
Created by abbygr...at7/22/09 - 9:45 pm|119 Views|17 Comments
Posted To: Parent Group
 
Lindsey9
Lindsey9
New - When my 2 yr old son is tired his eyes roll back & it looks like ...
Created by Lindsey9at1/13/10 - 11:41 am|1 View
Posted To: Parent Group
I have 22 month old twin boys who both have epilepsy. Jeremy's eyes start to roll back or to the side often at night (probably during the day too, but I am a working mom, so I have to check this wkend). I usually try to get his attention and he's ok. I don't...
LoriW
LoriW
New - Anyone experiencing this type of seizure? crying, tonic, bluish, ...
Created by LoriWat12/28/09 - 7:30 pm|34 Views|4 Comments
Posted To: Parent Group
Hello, My son's seizures begin with a cry followed by rigid, tonic posturing, bluish colour, then limpness followed by a fencing posture. Does this sound familar to anyone? If so, I'd be very grateful to hear about your experience, if any meds worked, etc.
chovey
chovey
New - Infant febrile not related to fever?
Created by choveyat1/11/10 - 8:34 pm|5 Views
Posted To: Parent Group
Bowyer...
Bowyer...
New - Should I be worried?-----Seizure pattern changed
Created by Bowyer...at1/8/10 - 10:17 am|12 Views|1 Comment
Posted To: Parent Group
I am Mark, father to Lizzy, 3 1/2----Do you know of anyone who had focal seizures with/without fever and then one day out of the blue had more full-body fever seizures?--reason I ask is this morning it happened to Lizzy--high fever, so that triggered it--but...
JBishop
JBishop
New - 3 month old with seizures
Created by JBishopat1/17/07 - 1:01 pm|1660 Views|20 Comments
Posted To: Parent Group
I am new to the website and have really learned a lot in just a few days. My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand mal seizures a day. We are currently on...
julgaby
julgaby
New - complex, non-convulsant seizures
Created by julgabyat1/6/10 - 7:07 pm|47 Views|6 Comments
Posted To: Parent Group
I'm new here, and am hopeful for some advice/answers to my many questions.  My son is almost 3.  He has had 9 complex (prolonged?) seizures since he was 13 months old.  They usually last about 30 minutes.  He does not convulse; rather, he is very still,...
braym
braym
Nausea
Created by braymat8/31/09 - 12:17 pm|35 Views|4 Comments
Posted To: Parent Group
My son is 19.  He was diagnosed with complex partial epilepsy with secondary generalized seizures at the age of 12.  After two years on medication, he was taken off and has been fine since.  Nine months ago, he began with nausea which has continued daily...
mari2008
mari2008
Is there more we should do??
Created by mari2008at1/7/10 - 8:57 am|11 Views
Posted To: Parent Group
Hello I have a 9 year old daughter with complex partial seizures that only only happen when she is sleeping per the EEG.
1oliver3
1oliver3
Anyone Tried Carnitine Supplements for Sodium Valproate (Depakote...
Created by 1oliver3at8/27/09 - 6:16 am|10 Views|1 Comment
Posted To: Parent Group
Hello I was researching on the web re: Carnitine supplements for use with Depakote/Epilim (Sodium Valproate) and I was wondering if anyone has given this a go with their kids, or any other info on this at all. Michele
upanama
upanama
Keppra for kids
Created by upanamaat3/18/06 - 8:48 pm|1581 Views|30 Comments
Posted To: Parent Group
Hello, Very new 2 this, doctors want to put my 6yr old son on Keppra, anyone using this on their children? Thanks upanama...
TSL1221
TSL1221
uncontrolled drop seizures
Created by TSL1221at8/22/08 - 10:49 am|133 Views|13 Comments
Posted To: Parent Group
Morgan...
Morgan...
has anyone noticed developmental delays with there child on pheno...
Created by Morgan...at9/5/07 - 6:58 pm|563 Views|15 Comments
Posted To: Parent Group
My daughter will be 2 at the end of the month and she has been on phenobarb since she was nine days old. She started a drug called topamax about 2 months ago and she started doing so good that the docs started to decrease her phenobarb....
LoriW
LoriW
Keppra Side Effects
Created by LoriWat12/31/09 - 10:56 am|13 Views
Posted To: Parent Group
Hi, My 18 month old has been on Keppra for a week. We're gradually increasing his dose. He was on 125 mg in the evening for a week and this morning he started on 125mg in the morning.  I'm very frightened to have him on this drug because of some...
hcarbo
hcarbo
Zarontin - bad behavior
Created by hcarboat12/28/09 - 10:01 am|11 Views|2 Comments
Posted To: Parent Group
Hi everyone
cassidy3
cassidy3
Lennix-Gastaut Syndrome
Created by cassidy3at12/27/09 - 6:56 pm|7 Views|1 Comment
Posted To: Parent Group
I am trying to figure out if my child has Lennox-Gastaut Syndrome.
4Jordie
4Jordie
My child was diagnoised with Occipital Epilepsy
Created by 4Jordieat9/22/08 - 12:20 pm|134 Views|18 Comments
Posted To: Parent Group
My daughter is 7 and was just diagnoised with Occipital Epilepsy.  I have tried to do as much research as possible but not finding much.  Her first seizure that we were aware of was in April.  She had started vomiting while she was at my parents house. ...
kcurrent
kcurrent
anyone else in Northwest Ohio?
Created by kcurrentat12/26/09 - 11:25 am|2 Views
Posted To: Parent Group
Starli...
Starli...
We think my son had a TC on Christmas Eve night- HELP
Created by Starli...at12/26/09 - 10:04 am|12 Views
Posted To: Parent Group
I need some help and insight. I think my 8 year old son Max had a seizure on Christmas eve night. He woke up at about 7 am covered in blood. His mouth was bleeding heavily from a bite to the cheek, his bed was COVERED in dried blood. His face was...
Nicola Y
Nicola Y
New to the site
Created by Nicola Yat12/12/09 - 11:27 pm|30 Views|4 Comments
Posted To: Parent Group
Hi, My 8 year old daughter has just had her second seizure in 4 months ( not sure what it is called but she has the full on body shaking type) she didn't have any type of seizure previously, she has been started on Epilim as a precaution. I know absolutly...
Hismom
Hismom
Where does your young child with nocturnal seizures sleep?
Created by Hismomat11/13/09 - 12:28 pm|24 Views|3 Comments
Posted To: Parent Group
I admit, my son sleeps in his toddler bed in our master bedroom.  I can't sleep not knowing what he's doing while he's sleeping.   His seizures are so subtle I don't pick them up on a baby monitor.    What have other people figured out?
Bellab...
Bellab...
2 year old on Keppra - finding right medication journey questions
Created by Bellab...at10/13/09 - 7:10 pm|20 Views|4 Comments
Posted To: Parent Group
Rogers...
Rogers...
Mother of an epileptic
Created by Rogers...at12/18/09 - 1:36 pm|28 Views|2 Comments
Posted To: Parent Group
Hello, My name is Sheila aka Roger's mom! He is 19 and was diagnosed with epilepsy in June of 08. We still do not have the seizures under control. He averages two to three gran mal seizures a month. Sometimes it just becomes overwhelming....... Probably...
crazy4...
crazy4...
Seizures caused by Rotavirus?
Created by crazy4...at9/15/07 - 6:21 pm|484 Views|18 Comments
Posted To: Parent Group
Hi, My daughter (2yrs) had a seizure after throwing up and having diarrhea for 3 days. She has never had a seizure before this so I freaked out and called 911. The hospital tested her salt level and determined that it was not...

 
Tommysmom
Tommysmom
New - Infantile Spasms
Created by Tommysmomat1/25/06 - 7:14 am|4307 Views|22 Comments
Posted To: Parent Group
My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack knife" seizures where his head would...
macsmom
macsmom
Absence Seizures ??????
Created by macsmomat2/8/06 - 7:52 am|3753 Views|27 Comments
Posted To: Parent Group
My daughter (9) was just recently diagnosised with absence seizures and has started taking Lamictal. Everyone I talk to looks at me like I am crazy, and has no idea what I am talking about. Just looking for someone else who might...
rhettr
rhettr
Benign Rolandic Epilepsy and chronic bed wetting
Created by rhettrat10/26/06 - 2:47 pm|3080 Views|13 Comments
Posted To: Parent Group
My 8 year old son was diagnosed with benign Rolandic epilepsy last year after 2 separate seizures during the early morning hours about a year a part. He recently had another, about nine months after the last one. He is also a...
lisavm...
lisavm...
Temporal Lobe Epilepsy - Simple partial Seizures
Created by lisavm...at6/5/06 - 2:40 am|3074 Views|14 Comments
Posted To: Parent Group
Hi, I'm new to this, my son (10years old) was diagnosed with temporal lobe epilepsy last week, i believe he has simple partial seizures although the doctor did not go into this. For the past year or so he has experienced episodes...
dhemphill
dhemphill
What are the odd? A Trileptol question...
Created by dhemphillat7/13/06 - 10:24 am|2748 Views|11 Comments
Posted To: Parent Group
My son is currently on 7 ml twice daily of Trileptol. We use the syringe that comes with the bottle and rinse it after every use. My son has had several seizures in the last week which is very unusual. My wife had a thought that...
mamato...
mamato...
post seizure Vomiting
Created by mamato...at1/1/06 - 1:02 am|2717 Views|15 Comments
Posted To: Parent Group
Hello...I am new to this site...my son may have petite mal seizures....since finding out that this may be true, we have been noticing a few things recently....the one I have that is most standing out is Vomiting....when sleeping he...
jmom
jmom
Benign Rolandic Seizures
Created by jmomat3/15/06 - 6:17 pm|2332 Views|15 Comments
Posted To: Parent Group
My son is 10 yrs old and was diagnosed with BRE in January. He had 2 seizures, had a neg. MRI. EEG showed BRE. I understand that most outgrow this? Anyone else have it, or did and outgrow it? He is on keppra and has not had a seizure...
SandiUH
SandiUH
Lennox Gastaut?
Created by SandiUHat3/16/07 - 9:47 pm|2275 Views|16 Comments
Posted To: Parent Group
Hi ... I'm searching for answers -- like we all are -- and finding none that satisfy the need to know. I guess It's the answer to "WHY" I'm still searching for. I'm finding it frustrating finding answers and even "what to expect"...
Amanda...
Amanda...
Scottish Rites Atlanta- 15 yo son for work up--HELP!!! Distressed Mom
Created by Amanda...at4/22/07 - 3:08 pm|2220 Views|4 Comments
Posted To: Parent Group
My son is 15 and has had "febrile seizures" since 10 months. Up until last year, maybe once a year with acute fever. More often as a baby as all the childhood illness usually have fevers. Now we are seizing around once a week and...
JenCA
JenCA
Seizures connected with behavior issues?
Created by JenCAat1/9/06 - 3:17 pm|2214 Views|27 Comments
Posted To: Parent Group
Hi, I'm new here and still working with a preliminary diagnosis for my 6yo son. His neurologist says he's having complex partial seizures and we're scheduled for an EEG tomorrow, and an MRI at a future time pending clearance from...
Brubah...
Brubah...
Consistent Newborn Twitching
Created by Brubah...at5/25/06 - 6:18 pm|2204 Views|2 Comments
Posted To: Parent Group
I need some help/input. My 2 week old son has been twitching at least once or twice a day for the last week or so. He does it while sleeping or awake. Usually it's just his limbs but today I noticed his tongue coming in and out...
wmott1122
wmott1122
Seizure Protocol at school
Created by wmott1122at1/8/06 - 3:26 pm|2054 Views|15 Comments
Posted To: Parent Group
Does anyone here have a teen who has tonic clonic seizures and therefore requires Diastat at school? If so, do you have a seizure protocol/plan of action on when and how to use it at school, and when and if to call an ambulance? ...
tesmar...
tesmar...
Continual hand twitching (slow) in teen with generalized epilepsy
Created by tesmar...at3/23/07 - 7:47 pm|1870 Views|7 Comments
Posted To: Parent Group
Am wondering if anyone had seen continual hand twitching (right hand, last two fingers, slow movements)? Teen was recently diagnosed with generalized epilepsy and has just started on lamictal. Neurologist seems stumped by the hand...
schuffert
schuffert
7 month old with unknown seizure disorder
Created by schuffertat12/27/05 - 7:11 pm|1856 Views|11 Comments
Posted To: Parent Group
Hi, I am looking for any advice out there. My 7 month old daughter had a full body seizure approx 1 month ago. She was taken to the children's hospital via ambulance. The seizure lasted for 19 mins, valium was given to stop it....
momyo2ac
momyo2ac
Absence seizures and wetting pants anyone else experience this?
Created by momyo2acat9/23/06 - 9:21 pm|1774 Views|9 Comments
Posted To: Parent Group
my 7 year old daughter has been diagnosed w/absence seizures for almost a year now. She recently has been wetting her pants. Has anyone had this same experience? He has never had this problem but in the last month sha has done it 3...
mar96
mar96
My 10-year-old daughter with epilepsy
Created by mar96at3/9/07 - 8:09 pm|1749 Views|19 Comments
Posted To: Parent Group
I am new here. My daughter had her first seizure at 6 yrs. She had a grand mal or tonic-clonic seizure. Seven months later she had another seizure and then was started on Clobazam. She was on Clobazam for about 6 months, but then...
mcdonaja
mcdonaja
Epilepsy. Is it or isn't it????
Created by mcdonajaat12/23/06 - 5:16 am|1741 Views|12 Comments
Posted To: Parent Group
Here is our story/frustration at having our son properly diagnosed. Winter of 2000 - Child male age 5 - No seizure history. Healthy Happy. Oldest of 4 children. No family history on either side of seizures, epilepsy, or any other...
esquiv...
esquiv...
Breakthrough Seizures
Created by esquiv...at8/20/06 - 4:51 pm|1733 Views|8 Comments
Posted To: Parent Group
Are breakthrough seizures a normal part of epilepsy or is it a sign that the medication is not right? Sheila...
sydylo
sydylo
1 mo old baby with seizures
Created by sydyloat6/30/06 - 3:27 pm|1728 Views|8 Comments
Posted To: Parent Group
Hello. My one month old baby is in the hospital with seizures, he was having them with body movement at home, jerking head back, knees up, arching back. He was admitted into the hospital and put on phenybarbitol, which controlled body...
sugarsue
sugarsue
I can't believe I'm here, but I am (Absence Seizures)
Created by sugarsueat6/26/07 - 4:39 pm|1717 Views|26 Comments
Posted To: Parent Group
My daughter has just been diagnosed with something, I don't know for sure yet but assume it's absence seizures. She's 4.5 yrs old. Right after diagnosis on Friday the neurologist went on vacation so I won't hear the actual term...
JBishop
JBishop
New - 3 month old with seizures
Created by JBishopat1/17/07 - 1:01 pm|1660 Views|20 Comments
Posted To: Parent Group
I am new to the website and have really learned a lot in just a few days. My daughter is 3 months old and was recently diagnoised with a seizure disorder. She has been having 8-15 grand mal seizures a day. We are currently on...
d00r
d00r
Absence Seizure...What does it feel like?
Created by d00rat8/17/06 - 10:53 am|1612 Views|7 Comments
Posted To: Parent Group
Hi all, My 3-1/2 year old has frequent absence seizures a day. However, she is too young to tell me what she is feeling before (and if possible during) the seizure. That is if she feels anything, or maybe it's the "memory loss"...
scaredmom
scaredmom
my daughter and school
Created by scaredmomat10/30/06 - 8:06 pm|1584 Views|14 Comments
Posted To: Parent Group
i have a few concerns with the school my 6 year old goes to.she developed epilepsy a year ago and we have now started treating it about a month and ahalf ago.Anyways when i told the teacher about it she acted like she was scared and...
upanama
upanama
Keppra for kids
Created by upanamaat3/18/06 - 8:48 pm|1581 Views|30 Comments
Posted To: Parent Group
Hello, Very new 2 this, doctors want to put my 6yr old son on Keppra, anyone using this on their children? Thanks upanama...
mama bear
mama bear
Anyone been through kid having lumbar puncture? (spinal tap)
Created by mama bearat11/23/06 - 9:21 pm|1517 Views|13 Comments
Posted To: Parent Group
Hi I am brand new first week of E with my 2 1/2 yo son. He is scheduled to have a Lumbar Puncture when he gets his MRI and additional blood tests in 2 months. All research I am doing does not link this test to epilepsy. I understand...

 
msmall02
msmall02
Could a poor diet trigger seizures? Can seizures disrupt child s...
Created by msmall02at3/24/09 - 6:28 am|32 Views|2 Comments
Posted To: Parent Group
  My 5 year old has refused to eat breakfast for the past 3 years. He would make himself vomit if he was forced to eat a healthy breakfast ( pancakes, cereal, toast, eggs,bacon, etc..) and lunch and dinner.But on the upside he will eat a salad...
Jessica3
Jessica3
New - grand mal and a pcp doctors visit and no nero referral
Created by Jessica3at2/3/10 - 2:53 pm|25 Views|2 Comments
Posted To: Parent Group
paigeg
paigeg
Help Depakote, hyper, behavior, negative (die) thoughts
Created by paigegat5/20/09 - 2:56 pm|49 Views|5 Comments
Posted To: Parent Group
caregi...
caregi...
HELP! Desperate for answers...Could my 15 yr old actually be hav...
Created by caregi...at11/29/08 - 5:58 am|38 Views|4 Comments
Posted To: Parent Group
Hello all! Im so desperate for input please help me. Sorry that this is long but I want to write all the details so maybe someone can help us. Im really going thru a tough time with my 15 1/2 year old daughter right now. Not only does my husband (her...
caregi...
caregi...
HELP! Desperate for answers...Could my 15 yr old actually be hav...
Created by caregi...at11/29/08 - 5:59 am|6 Views
Posted To: Parent Group
Hello all! Im so desperate for input please help me. Sorry that this is long but I want to write all the details so maybe someone can help us. Im really going thru a tough time with my 15 1/2 year old daughter right now. Not only does my husband (her...
caregi...
caregi...
HELP! Desperate for answers...Could my 15 yr old actually be hav...
Created by caregi...at11/29/08 - 6:00 am|29 Views|1 Comment
Posted To: Parent Group
Hello all! Im so desperate for input please help me. Sorry that this is long but I want to write all the details so maybe someone can help us. Im really going thru a tough time with my 15 1/2 year old daughter right now. Not only does my husband (her...
longni...
longni...
Long Term Success With Fish Oil or Omega3 ?
Created by longni...at7/20/08 - 2:48 am|42 Views|2 Comments
Posted To: Parent Group
I've read some short term testimonies, but has anyone had longer term success with fish oil/omega3 supplements? What sort of seizures have responded? Thanks. LN
linda ...
linda ...
'Epilepsy Scotland' open day!
Created by linda ...at10/20/06 - 8:47 am|391 Views
Posted To: Parent Group
This might be of interest to those of you in/near Glasgow. Epilepsy Scotland, Govan, Glasgow have an open day on Thursday 26th October, 5pm till 8pm....
sydylo
sydylo
1 mo old baby with seizures
Created by sydyloat6/30/06 - 3:27 pm|1728 Views|8 Comments
Posted To: Parent Group
Hello. My one month old baby is in the hospital with seizures, he was having them with body movement at home, jerking head back, knees up, arching back. He was admitted into the hospital and put on phenybarbitol, which controlled body...
meliss...
meliss...
10 Mo old Seizures Sleep Only
Created by meliss...at7/10/06 - 6:20 pm|429 Views|1 Comment
Posted To: Parent Group
My son was diagnosed with epilepsy at 4 months after a 4 hr EEG. He has partial seizures only in his sleep. His hands and legs jerk slightly and those are the only signs. He is on both Trileptal and Keppra and the amount of slight...
homaira
homaira
10 month old crying frantically during seizures
Created by homairaat8/4/09 - 1:13 pm|14 Views|2 Comments
Posted To: Parent Group
hello...my daughter is 10 months old and is on seizures since she was born.plus she has cerebral palsy.i dont know whats the type of her seizures but she cries alot during her seizures.can someone tell me what type of fits kids cry in.she takes milk through...
Lisaren
Lisaren
10 month old with Infantile Spasms
Created by Lisarenat4/26/07 - 10:57 am|527 Views|2 Comments
Posted To: Parent Group
My daughter Kali is 10 months old and was diagnosed with Infantile Spasms in November 2006. We have been on several medicines-ACTH (currently on 2nd round of ACTH) Topamax (currently on 2 try of this) Zonegran, Phenobarb, Keppra (still...
Riversmom
Riversmom
10 month old with seizures lasting over an hour
Created by Riversmomat12/16/07 - 8:07 pm|90 Views|2 Comments
Posted To: Parent Group
Hi, my son's first seizure began with his left arm, spread to his left leg, and then full body. It lasted about an hour. We were in a remote area, so it took over an hour to get to a hospital. His second seizure was the same day as his 6 months vaccines,...
momschool
momschool
10 year old son with possible seizures
Created by momschoolat10/14/06 - 5:11 pm|1020 Views|6 Comments
Posted To: Parent Group
Hi, I am so happy to find this board!! I am very confused about my son. A few weeks ago he started seeing spots coming at him as he describes it,he then falls down when they completely cover his vision. He also has many more...
Gracie...
Gracie...
11 mon old with myoclonic & atonic, scared and need advise
Created by Gracie...at4/23/07 - 8:34 pm|919 Views|7 Comments
Posted To: Parent Group
I am new to this site. My 11 month old, Gracie has myoclonic and atonic seizures. She was diagnosed with myoclonic in January, treated with Kepra which stopped the myoclonic episodes but then the "head drop" seizures became more prevelant....
yock6548
yock6548
11 month old recently diagnosed
Created by yock6548at9/2/08 - 7:52 pm|84 Views|20 Comments
Posted To: Parent Group
yock6548
yock6548
11 month old recently diagnosed
Created by yock6548at9/2/08 - 7:52 pm|52 Views|9 Comments
Posted To: Parent Group
sheilat
sheilat
11 y.o. son with complex partials of left temporal lobe....2-6 ti...
Created by sheilatat9/9/09 - 6:21 am|53 Views|5 Comments
Posted To: Parent Group
Can anyone relate or share their story regarding complex partials of left temporal lobe, that is uncontrolled?  What is it like?  What can I do to further help my son?  Meds (Keppra) is not working, tests come back as normal except for 1 EEG which is...
lesevo...
lesevo...
12 year old with complex febrile seizures
Created by lesevo...at9/9/09 - 6:25 am|82 Views|13 Comments
Posted To: Parent Group
I have searched everywhere trying to find any parent that has had a child with febrile seizures over the age that most children outgrow them....to no avail.  My son has had complex febrile seizures since he was 13 months old, he is now 12 and half years old.
cbrown...
cbrown...
12 yr old son with BRE and very scared
Created by cbrown...at1/26/07 - 2:58 pm|1114 Views|11 Comments
Posted To: Parent Group
My 12 yr old son was diagnosed with BRE 3 1/2 years ago. His EEG came out normal, but his symptons were classic for BRE. He had infrequent and mild sezuires (one side of his face would twitch, his mouth would open and close, he would...
stylzz
stylzz
13 month old...what's going on?
Created by stylzzat8/4/06 - 5:44 am|400 Views
Posted To: Parent Group
I'm started to get very scared.At first I thought it was going to all go away but now I just don't know.It started when he was 4 months old,the same day as his second round of shots.He had a seizure that night.The Dr.s had no explanation...
fsurocks
fsurocks
13 year old with odd symptoms
Created by fsurocksat3/17/09 - 6:28 pm|28 Views|7 Comments
Posted To: Parent Group
I have a 13 yr old (just), and for the last year she has had some weird symptoms, so we went to the peds. they ordered a sleep deprived EEG (only 4 hr sleep) and it was abnormal. So we went ont o Neuro and they did an ambulatory EEG and it was abnormal, but...
heather1
heather1
13 year olds sleep eeg
Created by heather1at1/6/07 - 6:28 pm|610 Views|1 Comment
Posted To: Parent Group
Hi I just took my 13 year old in for his sleep eeg... he has had a previous eeg that showed adnormal spikes...so our family dr. ordered a sleep eeg given the fact that i have epilepsly... what has me concerned is that i know that when...
stylzz
stylzz
14 month old and Keppra...anyone else?
Created by stylzzat8/24/06 - 4:14 am|917 Views|18 Comments
Posted To: Parent Group
My son recently was switched to Keppra.We are slowly lowering his dose of Phenobarbital.and working towards a 500mg dose of Keppra.I am very anxious about any side effects.HAs anyone had good/bad results with infants and Keppra? ...
Erika ...
Erika ...
14-yr old w/JAE exertion trigger
Created by Erika ...at11/2/07 - 8:20 pm|147 Views|1 Comment
Posted To: Parent Group
My son's seizures are triggered by any sports requiring exertion; does anyone else experience this? Sports were his LIFE and what a disappointment and frustration this is!...