 Kaboom
New - Anyone with a similar story?Created by Kaboomat2/2/12 - 2:36 pm|10 Views
Posted To: Parent Group
Hi, my daughter had a seizure back on November. Her back arched her eyes glazed over and she was making a strange repetitive sound this went on for about 10 min then she went limp and started twitching on her left side. First just her cheek but then her whole...
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 msmall02
New - Diet and Development... Could a poor diet trigger seizures? Can ...Created by msmall02at3/24/09 - 6:27 am|235 Views|12 Comments
Posted To: Parent Group
My 5 year old has refused to eat breakfast for the past 3 years. He would make himself vomit if he was forced to eat a healthy breakfast ( pancakes, cereal, toast, eggs,bacon, etc..) and lunch and dinner.But on the upside he will eat a salad...
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 Angeli...
New - Chewing, sign of seizure?Created by Angeli...at1/28/12 - 7:26 am|30 Views|2 Comments
Posted To: Parent Group
A couple of days ago my 3 year old (that has had at least 2 seizures that we've witnessed) was on the couch for "quiet time." I was in my older son's room talking to him about his day at school (a few minutes at the most). When we came out of the room it was...
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 Mom of...
New - Pediatric epilepsy specialist in Ohio? Created by Mom of...at1/25/12 - 2:43 pm|12 Views|3 Comments
Posted To: Parent Group
Hello,
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 Bills_Mom
New - Absence EpilepsyCreated by Bills_Momat1/25/12 - 7:18 pm|27 Views|3 Comments
Posted To: Parent Group
Hello, I am new here and just NEED to write something in order to let out my frustrations with people that have been there and done that; sometimes I think people just don't want to hear it anymore and our doctor(s) just don't know what to do anymore. Yes...
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 calueck
New - BRE-how do you know they have outgrown the seizures? Created by calueckat11/3/11 - 4:22 pm|17 Views|3 Comments
Posted To: Parent Group
Hi -
I have an 8 year old daughter who was diagnosed with Benign Rolandic Epilepsy in January 2009. Its almost been a year since she has had a seizure.
Does that possibly mean she has outgrown the diagnosis? I know the neurologist said she...
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 mikean...
New - Zarontin and NO Absence seizures???Created by mikean...at4/6/10 - 12:08 pm|37 Views|1 Comment
Posted To: Parent Group
My nearly 8 year old has had absence seizures since December. She is now up to 2 teaspoons of Zarontin with little side effect (some tiredness at night). BUT she is still having 1-2 absence seizures. So here's the question.... I'm thinking the goal is...
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 echo
New - Children with Benign Rolandic Epilepsy (BRE) and problems with l...Created by echoat10/6/11 - 10:26 am|81 Views|9 Comments
Posted To: Parent Group
I am interested in sharing information and stories with other parents whose children have (or had BRE) and have experienced learning or attention problems at school.
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 Cboysmom
New - BRE - Son just diagnosed...what can I expect?Created by Cboysmomat1/14/12 - 5:59 pm|4 Views
Posted To: Parent Group
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 admin
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 EchoRains
Looking for support, undiagnosed. My 3 year old is having seizures. Created by EchoRainsat1/4/12 - 12:26 am|15 Views
Posted To: Parent Group
I know many of you have been diagnosed or have had children diagnosed. I'm here mainly looking for support.
Here is my story.
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 ruthcp...
Trying to figure out new seizures in daugther (4years old)Created by ruthcp...at1/2/12 - 10:06 am|21 Views|2 Comments
Posted To: Parent Group
Hi there,
I am new here, my name is Ruth and my daughter is Faith. She is 4 years old and has been diagnosed with epilepsy since she was 1. She also has an acquired brain injury from birth and many developmental delays and autistic tendencies......
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 Little...
Juvenile myoclonic epilepsy and behavior/mood problemsCreated by Little...at1/2/12 - 3:38 pm|5 Views
Posted To: Parent Group
Hi, my son is recently diagnosed with and being treated for Juvenile Myoclonic Epilepsy. He has started on Depakote ERIC three weeks ago. The seizures cause some problems with depression. Also the seizures are not under complete control yet we are still working...
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 caandahl
advise please..I dont know what to do./autism and night seizuresCreated by caandahlat12/29/11 - 8:38 am|17 Views|2 Comments
Posted To: Parent Group
Hi people,
My son is 9 and was dx'd w/"severe
autism"(non-verbal),DD,hypotonia,"MR",SPD etc etc when he was 2.He was
dx'd w/type 1 diabetes about a year ago.
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 kzumsteg
Help! Not sure where to turnCreated by kzumstegat5/19/11 - 1:45 pm|59 Views|10 Comments
Posted To: Parent Group
First let me apologize, this may be a long post. My 8 year old son was diagnosed with complex partial seizures last July. His seizures are more staring episodes, but they are not the absence siezures. We never would have noticed them if not for the school...
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 megnn286
EEG Abnormal ResultsCreated by megnn286at8/23/11 - 6:49 pm|14 Views|1 Comment
Posted To: Parent Group
Hello all, about 3 months ago my 4 year
old experienced a partial seizure on the right side of his body. His arm and
leg stiffened up and he could not move it for a couple of seconds. He has 2 EEG
done and bother of the results were abnormal in the...
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 murray780
Cortical Dysplasia SurgeryCreated by murray780at12/13/11 - 11:40 am|2 Views
Posted To: Parent Group
I am looking for any advice from parents who have children that have gone trought epilepsy surgery. My eight year old daughter was diagnosed with epilepsy four years ago. She continues to have daily seizures while on four medications and has failed multiple...
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 Baby Sam
ClobazamCreated by Baby Samat12/14/07 - 6:18 pm|234 Views|14 Comments
Posted To: Parent Group
I was wondering if anyone has tried Clobazam. If so, what are your experiences with the drug? We are going to start this next week.
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 Kes
daughter with seizuresCreated by Kesat12/1/11 - 9:29 pm|10 Views|1 Comment
Posted To: Parent Group
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 Jessie S
school bus calls 911 in non-emergencies--we're just the parents a...Created by Jessie Sat6/14/11 - 4:43 am|32 Views|3 Comments
Posted To: Parent Group
How to stop unnecessary 911 calls by the school bus company? My 18 year old daughter goes to a special ed school approx 40 miles from home and is transported there every day by van. Although her CPS began a few years ago, her first one on the van was in January....
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 Zebulo...
A Mom of a 6 year old that was dignosed last year and we are expe...Created by Zebulo...at9/30/11 - 5:42 pm|18 Views|2 Comments
Posted To: Parent Group
Ok this is my first time on this website and I need some help on what I should feel and do about some situations that have came up with my son. I may ramble but i just want some help.
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 mwilso...
Gelastic (laughing) seizuresCreated by mwilso...at2/17/10 - 3:09 pm|20 Views|1 Comment
Posted To: Parent Group
Hi all,
My 3-year-old daughter was diagnosed with epilepsy at three months of age, along with diagnoses of Septo-Optic Dysplasia, hypothalamic dysfunction and paroxysmal autonomic instability.
She has had several types of seizures,...
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 Lumen
6 year old diagnosed few days ago-HELPCreated by Lumenat11/6/11 - 1:05 am|54 Views|2 Comments
Posted To: Parent Group
Epi
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 pmgsmom
Seizures & The Effects of Season Change & Daylight Savings TimeCreated by pmgsmomat9/6/06 - 5:27 am|558 Views|4 Comments
Posted To: Parent Group
My son was diagnosed two years ago with epilepsy. He is now 8 years old. I was wondering if anyone else has experienced the seizures to be brought on by change of season or with daylight savings time. My son has had two grand mal...
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 lisabdcat
DiscouragedCreated by lisabdcatat1/24/07 - 1:02 pm|386 Views|1 Comment
Posted To: Parent Group
My 18 year old daughter was put on an experimental trial of natural progesterone because her seizures frequently followed her menstral cycle. She has intractable generalized E and has grand mals frequently. She is also on topamax,...
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 lrs1407
Trileptal or puberty?Created by lrs1407at11/8/10 - 12:30 pm|35 Views|6 Comments
Posted To: Parent Group
I am brand new here. My 11-yr-old daughter was diagnosed approx 6 mos ago with partial complex seizures. She's always had a temper, but this morning was a nightmare and I'm starting to suspect it's the meds.
Major symptoms:
Mood swings
Trouble...
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 thomas...
cant take any more need help for my son PLEASECreated by thomas...at10/6/11 - 10:35 am|40 Views|2 Comments
Posted To: Parent Group
my son started doing sreames at night would get flush goosebumps eather go on himself or have bad gas and would have suden epesodes of vomiting.He will do this every 1-2 mon. it is now getting worse when it last for many hr. off and on he has gotten a fever...
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 ekoorb
Panayiotopolous Syndrome/Benign Occipital EpilepsyCreated by ekoorbat4/13/06 - 1:40 pm|675 Views|17 Comments
Posted To: Parent Group
My 5 year old was recently diagnosed with Panayiotopolous Syndrom/Benign Occipital Epilepsy. For anyone else with the same diagnosis, have your seizures ever appeared during the day? My daughter's have only surfaced during the night...
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 sleepy
T1D & EpilepsyCreated by sleepyat10/10/11 - 12:38 pm|5 Views
Posted To: Parent Group
Are there any other parents out there dealing with both Type 1 diabetes & epilepsy?
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 mamajess
allergies and seizuresCreated by mamajessat6/29/07 - 9:49 am|325 Views|6 Comments
Posted To: Parent Group
I was wondering if anyone else has noticed a link between their child's seizure activity and allergy season. We went quading along the alphalpha feilds the other day and my son's eyes totally swelled up into jelly balls. He was so...
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 jannob
Suspected Seizures in Infant with AchondroplasiaCreated by jannobat3/24/07 - 10:27 pm|282 Views|3 Comments
Posted To: Parent Group
Hi, my name is Tonya and my son, Knoah is 4 months old and we suspect he is having seizures. He was just a few weeks old when we noticed staring episodes. Then at 7 weeks old, I awoke to him to him extremely pale, turing blue, staring....
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 purple...
Should I seek a second opinionCreated by purple...at9/22/11 - 11:30 am|19 Views|2 Comments
Posted To: Parent Group
Hello,
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 munkey07
Does anyone know? Information needed.Created by munkey07at9/20/11 - 5:34 am|20 Views|2 Comments
Posted To: Parent Group
Can anyone help me with any resources or information that I can receive/access whilst waiting for doctors and referrals? My son had complex partial seizures when he was younger. He is now four. He could do things that he now has alot of trouble doing. He could...
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 rainkinz
20 Partial Seizures per hourCreated by rainkinzat9/1/11 - 7:41 am|39 Views|4 Comments
Posted To: Parent Group
Hi,
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 doncar
21mth old with suspected Absence seizures Created by doncarat9/18/11 - 10:50 am|33 Views
Posted To: Parent Group
Hello
My 21mth old son is to have an eeg on wednesday as he is having suspected absence seizures he had a nap this afternoon and woke 15minutes into sleep screaming his cry was then like he was in pain I took videos his left big toe hyperextended and left...
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 dwayne...
Psychogenic Seizures, Really ?Created by dwayne...at8/16/09 - 6:16 pm|59 Views|2 Comments
Posted To: Parent Group
Hi everyone,
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 flutte...
What kind of seizure is my son having?Created by flutte...at9/12/11 - 11:49 am|15 Views
Posted To: Parent Group
Hi Everyone,
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 munkey07
Can anyone help shed light?Created by munkey07at9/9/11 - 4:15 am|19 Views
Posted To: Parent Group
Can someone please help shed some light for me?
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 lesevo...
12 year old with complex febrile seizuresCreated by lesevo...at9/9/09 - 6:25 am|145 Views|21 Comments
Posted To: Parent Group
I have searched everywhere trying to find any parent that has had a child with febrile seizures over the age that most children outgrow them....to no avail. My son has had complex febrile seizures since he was 13 months old, he is now 12 and half years old.
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 slapfo...
10 year old w/BRE started sleeping with eyes open--anyone know if...Created by slapfo...at8/19/11 - 6:26 pm|2 Views
Posted To: Parent Group
hi, my son is ten and has had bre for two years, pretty well controlled on zonegran. the past two nights, he's started sleeping with his eyes open and has seemed kind of clammy. could this be related to his epilepsy? has anyone experienced this?? please advise. thanks.
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 ambrba...
Our first seizure...Please help us not freak totally out!!Created by ambrba...at8/18/11 - 12:10 pm|23 Views|1 Comment
Posted To: Parent Group
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 shani973
son with BRE wetting bedCreated by shani973at6/4/11 - 7:28 am|13 Views|2 Comments
Posted To: Parent Group
I have a 6 yr old son who has BRE..has has started wetting the bed at night and i am worried this might be a sign of him having seizure..he has never wet the bed before and has been potty trained since the age of 2..thoughts???
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 sahm1223
Childhood absence epilepsyCreated by sahm1223at8/10/11 - 12:04 pm|11 Views
Posted To: Parent Group
My 5 1/2 year old daughter was just diagnosed with childhood absence epilepsy. I had never heard of this condition before so I am trying to do as much research as I can, but that can become overwhelming. I have so many fears. Will my daughter respond well...
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 Jess_sMom
Lafora DiseaseCreated by Jess_sMomat4/6/11 - 8:06 pm|49 Views|4 Comments
Posted To: Parent Group
Hello everyone...
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 paigeg
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 RorysM...
vaccines cause epilepsy?Created by RorysM...at1/31/07 - 1:04 pm|1410 Views|21 Comments
Posted To: Parent Group
Epilepsy & vaccination
In 1998, federal public health officials at the National Vaccine Injury Compensation Program, Public Health Service (Pediatrics; March 1998) found that a causal relationship exists between live measles vaccine...
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 seizet...
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 LDIEGU...
New Here... 4 yr old with Absence SeizuresCreated by LDIEGU...at10/15/08 - 1:20 pm|48 Views|6 Comments
Posted To: Parent Group
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 melwal3
New, nervous and ?? about meds for daughter....Created by melwal3at7/23/11 - 9:30 am|18 Views|2 Comments
Posted To: Parent Group
Hi I am new to all of this and am very cofused with seizures. My 4.5 was just diagnosed yesterday after her VEEG and was started on Keppra. He said that she has generalized seizures. Not really sure what that means? She zones out a lot, and when...
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 jolieweng
Grow out of seizures???Created by joliewengat5/21/06 - 6:52 pm|1368 Views|28 Comments
Posted To: Parent Group
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test,...
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