Hello to all,   Hoping to gain information on x-linked periventricular heterotopia . If anyone could help me it would be greatly appreciated. Thank you, Carol    

  Hello there. I just wanted to know if there is anyone that is living with pnes... My sister has been told she has this and it is very confusing. I have done some research on this condition..but would like to hear from anyone who has this.  I just have...

I'm Interested talking to any other Adults on the Ketogenic Diet or Atkins Modified Diet. My Nurologist is not very supportive of Alternative medicines. I have been Trying to do it on my own for about 3 weeks but i'm not sure if i'm on the right track. I...

hi

I'm new to this website, and I am seeking feedback from anyone who's won the battle in regards to insurance coverage.  My daughter is 19, diagnosed at 7.  She cannot currently drive, works part-time, and is a full-time on-line student at our local technical...

Hi, I have had epilepsy for a couple of years now. We are still  trying to discover triggers and symptoms of my Seizures. My wife keeps commenting on me having bloodshot eyes the last few days and I know she has commented on it in the past but I am not...

Hello to all i started getting symptoms while playing videogames about 5 months ago i just turned 35 and i also have gad/and panic disorder iam thinking maybe its the anxiety but it only happenns when playing videogames i come over like faint...

hi everyone.. i am taking 300 mg of lamictal daily and hairing hair loss. but my seizures are under control. has anyone had any luck with selenium, biotin. zinc and centrum silver i have read that people have if so does anyone know how long it takes till...

 So there I was at ten o’clock on a Wednesday night running my usual 6 mile course on the treadmill. I must admit, I did start off a little faster that night but not my maximum potential speed. I started off with 6.5-6.6.

I just had a really long aura that lasted 30seconds. I saw flashing lights and thats what I usually see before i have a grand mal.  I have a big headache now and feel dizzy and tired. why would i not have had the tonic clonic seizure after the aura? is...

Hi everyone! I'd like you all to help me welcome two new mentors to my.epilepsy.com - Sassy and KrayonsRmine. Both have been users of the chat and the ecom site for quite a while and willing to volunteer their time and help to others. Visit the...

 Since i was about 15 i started smoking marijuana im 26 now but i stop as soon as i found out i had epilepsy... i dont know if marijuana leads to a seizure or it triggers it ! if anybody has any infor please let me know ! also if i smoke now after 3yrs that...

can people with epilepsy drive? and Im wondering since they can have a siezure and might cuase a wreck

I'm 24 and I have had epilepsy for about 5 years now. All my seizures have been pain related but ive never heard anybody else having them through pain!

Hi everyone, Tomorrow we will be launching revisions to the seizure diary to correct some bugs and make using the diary a lot easier. This is NOT the final version. We are working on other updates to make recording of side effects easier and to create...

I have a VNS, but really do not know much about it.  My vagus nerve goes to my brain stem, but what parts of the brain are affected by its electrical impulses???  Can anyone tell me more about the VNS & the brain??? thanks, 1of3of6

Ever since I was young (probably around grade 3), I have been experiencing these werid episodes. I am not sure if they are seizures. When I looked at the info on this site, I see that what I am experiencing is very similar to a simple partial seizure. Although...

Hello everyone, I'm completely lost and hoping to find answers to a condition that I've been suffering for 7 years. I'm a healthy 33 year old man and I don't have any other problems, and no heredity problems of any sorts. Description:

Hi everyone, Sorry I couldn't join the Ask Epi chat last thursday... I was traveling and the hotel I was in wasn't giving me good internet access. I'll be in this Thursday, from 8 to 9 pm east coast time. This will be a time to ask questions about epilepsy,...

Hi does anyone know what you go to to change your username. I went to manage my account but only saw where to change password, not userame. thanks gs.

Hi All I have been having epilex chrono for the last 4-5 years and lately realise that I am facing a erection dysfunction. before going to the doctor and sort it out for me i wanted some help regarding the side effects of epilex chrono 300mg...

Im brand new to this forum so i will appoligise if there was another thread stared about the same thing.  I underwent Gastric Bypass surgery 19 months ago.  After one year and two months out I had a series of severe seizures all in one day.  I was hosptialized...

I hope you do not mind my intruding into the central parts of the site but on the page of info re drug interactions Phenytoin is listed as being a drug that increases levels of Lamotrigine when taken concurrently.  I beg to differ, not least from personal...

My son is 17 and has mental retardation and severe epilepsy.  He is a mild mannered young man who is very easy going.  Lately he has severe behavior outburst in the morning.  This morning he hit and kicked at me pulling my back out of place.  He doesn't...

I wasn't diagnoised with epilepsy until I was 20 and I'm only 21 now. Before I had my first and only seizure I use to experiment with different halluncinogens like acid and shrooms. Since I have been diagnoised I have tried shrooms again and had no problem...

ineed help i want to go off meds  my doctor does not talk much win i go to see him should i change doctores

I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works.  if any body has had this please let me know.  I am scared

I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works.  if any body has had this please let me know.  I am scared

I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works.  if any body has had this please let me know.  I am scared

Hi everyone! I'd like to introduce everyone to our new mentor, pick61. She has graciously agreed to be a mentor and help out in the surgery chat hour with Sassy. Pick has gone through surgery herself and been around epilepsy.com for a few years. She...

Does anyone out there disagree with the Ads on tv about epilepsy? I am trying to find a job currently and if I were an employer or a coworker and heard this ad I would think twice before hiring a person with epilepsy or if I were that coworker it would scare...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

Hi, I am trying to sort some things out. I had an event while driving a few years ago. I was suddenly paralysed and could not move or speak. I knew I was paralysed and wanted to yell to my children to hold on, but I was unable to do anything. I saw the...

Hi everyone! As I speak I am sitting in a hospital bed having a 5 day eeg. I haven't had a siezure yet and I was wondering if anyone had any advice on how to make one happen. I have been sleep deprived for 3 nights and still nothing. I can't leave here not...

I want to know why i am feeling really dizzy by now everyday as i wake up everymorning.  I told my doctor but that was not helping him to say something. 

My dauther is 9 and presents with several different seizures, drop, clonic. myoclonic and etc.  She's been on several different meds and presently is on Keppra, Zonogram, and clonpine AND on the Ketogenic diet.  She is so lethargic, she can no longer sit...

Hello,  I was recently diagnosed with TLE, and am learning more and more about these kinds of seizures. My main symptom which lead to testing for epilepsy was memory issues. I would go through "spurts" where I'd have terrible short term...

ok if you read my story it is at the very end.... The other day i was sitting with my next door neighbor and my husband, i was getting a type of aura but different, i smelt this rotten egg smell and was feeling very offbalenced and than i went completley numb...