Hello there. I just wanted to know if there is anyone that is living with pnes... My sister has been told she has this and it is very confusing. I have done some research on this condition..but would like to hear from anyone who has this.  I just have...

Hi everyone, Tomorrow we will be launching revisions to the seizure diary to correct some bugs and make using the diary a lot easier. This is NOT the final version. We are working on other updates to make recording of side effects easier and to create...

I have a VNS, but really do not know much about it.  My vagus nerve goes to my brain stem, but what parts of the brain are affected by its electrical impulses???  Can anyone tell me more about the VNS & the brain??? thanks, 1of3of6

Ever since I was young (probably around grade 3), I have been experiencing these werid episodes. I am not sure if they are seizures. When I looked at the info on this site, I see that what I am experiencing is very similar to a simple partial seizure. Although...

Hello everyone, I'm completely lost and hoping to find answers to a condition that I've been suffering for 7 years. I'm a healthy 33 year old man and I don't have any other problems, and no heredity problems of any sorts. Description:

Hi everyone, Sorry I couldn't join the Ask Epi chat last thursday... I was traveling and the hotel I was in wasn't giving me good internet access. I'll be in this Thursday, from 8 to 9 pm east coast time. This will be a time to ask questions about epilepsy,...

Hi does anyone know what you go to to change your username. I went to manage my account but only saw where to change password, not userame. thanks gs.

Hey everyone!  I wanted to see what everyone does for health insurance.  My story in a nutshell: 24 (diagnosed with epilepsy 5 yrs ago), in business for myself, COBRA insurance is up at the end of June and no agency wants to take me on because of my "pre...

Hi All I have been having epilex chrono for the last 4-5 years and lately realise that I am facing a erection dysfunction. before going to the doctor and sort it out for me i wanted some help regarding the side effects of epilex chrono 300mg...

Im brand new to this forum so i will appoligise if there was another thread stared about the same thing.  I underwent Gastric Bypass surgery 19 months ago.  After one year and two months out I had a series of severe seizures all in one day.  I was hosptialized...

I hope you do not mind my intruding into the central parts of the site but on the page of info re drug interactions Phenytoin is listed as being a drug that increases levels of Lamotrigine when taken concurrently.  I beg to differ, not least from personal...

My son is 17 and has mental retardation and severe epilepsy.  He is a mild mannered young man who is very easy going.  Lately he has severe behavior outburst in the morning.  This morning he hit and kicked at me pulling my back out of place.  He doesn't...

I wasn't diagnoised with epilepsy until I was 20 and I'm only 21 now. Before I had my first and only seizure I use to experiment with different halluncinogens like acid and shrooms. Since I have been diagnoised I have tried shrooms again and had no problem...

ineed help i want to go off meds  my doctor does not talk much win i go to see him should i change doctores

I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works.  if any body has had this please let me know.  I am scared

I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works.  if any body has had this please let me know.  I am scared

I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works.  if any body has had this please let me know.  I am scared

Hi everyone! I'd like to introduce everyone to our new mentor, pick61. She has graciously agreed to be a mentor and help out in the surgery chat hour with Sassy. Pick has gone through surgery herself and been around epilepsy.com for a few years. She...

Does anyone out there disagree with the Ads on tv about epilepsy? I am trying to find a job currently and if I were an employer or a coworker and heard this ad I would think twice before hiring a person with epilepsy or if I were that coworker it would scare...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...

Hi, I am trying to sort some things out. I had an event while driving a few years ago. I was suddenly paralysed and could not move or speak. I knew I was paralysed and wanted to yell to my children to hold on, but I was unable to do anything. I saw the...

I'm 24 and I have had epilepsy for about 5 years now. All my seizures have been pain related but ive never heard anybody else having them through pain!

Hi everyone! As I speak I am sitting in a hospital bed having a 5 day eeg. I haven't had a siezure yet and I was wondering if anyone had any advice on how to make one happen. I have been sleep deprived for 3 nights and still nothing. I can't leave here not...

I want to know why i am feeling really dizzy by now everyday as i wake up everymorning.  I told my doctor but that was not helping him to say something. 

My dauther is 9 and presents with several different seizures, drop, clonic. myoclonic and etc.  She's been on several different meds and presently is on Keppra, Zonogram, and clonpine AND on the Ketogenic diet.  She is so lethargic, she can no longer sit...

Hello,  I was recently diagnosed with TLE, and am learning more and more about these kinds of seizures. My main symptom which lead to testing for epilepsy was memory issues. I would go through "spurts" where I'd have terrible short term...

ok if you read my story it is at the very end.... The other day i was sitting with my next door neighbor and my husband, i was getting a type of aura but different, i smelt this rotten egg smell and was feeling very offbalenced and than i went completley numb...

can people with epilepsy drive? and Im wondering since they can have a siezure and might cuase a wreck

Please note that placing the same post in multiple places, including different blogs and community forum threads, is not appropriate use of the site. Not only does it waste space in the forum, the posts waste people's time trying to find new information...

Help, My daughters been havin partial seizures  for 2 months, started on Carbamazpine 100mg/5ml having 15mls aday, hospital decided to up dose to 20mls aday, doctor made a mistake with perscription and gave her 500mg/5mls and told me to give her 20mls aday...

Hi everyone.  I'm new here and really could use some advice and compare notes with others who might have had the same situation.  I am a 38 yr old male who woke up March 13, 2005 with left side numbness.  After it...

The percentages associated with this poll add up to more than 100%.  The total percentages seem to vary from a summation of 135 and 144.

If you could make one change to epilepsy.com, what would it be?

Hi all, I am the father of a child that has EIEE (Early Infantile Epileptic Encephalopathy), with myoclonic seizures, the doctor tried several drugs, none has fully worked so far, he prescribed CLOBAZAM lately, but unfortunately,...

Hi I was diagnosed with E, 2 year ago and am still trying to control my seizures.   I am not sure how many I am having, but guess approx 2 a month but not sure since I am on my own the majority of the time.  My neurologist is trying to control these...

i have a 12 yr old son that has been taking homeopathic medication for night terrors. he wakes screaming, sweating heart racing pupils fixed yet recalls nothing afterwards. i caught him once just about to jump out of his bedroom window, the medication he...

I have had epilepsy my entire life.  For the past 25 years I have been almost 100% controlled with the exception of a few complex partial seizures.  However, 3 years ago I began having the most unbelievable experiences that still have not been completely...

Hi everyone! I'd like you all to help me welcome two new mentors to my.epilepsy.com - Sassy and KrayonsRmine. Both have been users of the chat and the ecom site for quite a while and willing to volunteer their time and help to others. Visit the...

Dear community members, For quite a while we have heard concerns about chat rooms and the site in general. While a variety of helpful comments have been received, one of the take home messages is to make sure the chat remains a safe supportive environment...

I have been on Topamax for 3 years with good seizure control. Recently, I have had an increase in auras, though no full-blown seizures. I also seem to have trouble catching my breath. I have had some hypoglycemia, and my thyroid is probably out of whack....

I have had epilepsy my entire life.  For the past 25 years I have been almost 100% controlled with the exception of a few complex partial seizures.  However, 3 years ago I began having the most unbelievable experiences that still have not been completely...

I have had epilepsy my entire life.  For the past 25 years I have been almost 100% controlled with the exception of a few complex partial seizures.  However, 3 years ago I began having the most unbelievable experiences that still have not been completely...