 edie
New - PNES- NON EPILEPTIC SEIZURESCreated by edieat11/12/08 - 2:45 pm|61 Views|7 Comments
Posted To: Epilepsy.com Help
Hello there. I just wanted to know if there is anyone that is living with pnes... My sister has been told she has this and it is very confusing. I have done some research on this condition..but would like to hear from anyone who has this. I just have...
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 epi_help
New - Updates to Seizure DiaryCreated by epi_helpat3/26/08 - 9:33 pm|33 Views|2 Comments
Posted To: Epilepsy.com Help
Hi everyone,
Tomorrow we will be launching revisions to the seizure diary to correct some bugs and make using the diary a lot easier. This is NOT the final version. We are working on other updates to make recording of side effects easier and to create...
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 1of3of6
New - Vagus Nerve StimulatorCreated by 1of3of6at6/26/09 - 11:33 am|6 Views|1 Comment
Posted To: Epilepsy.com Help
I have a VNS, but really do not know much about it. My vagus nerve goes to my brain stem, but what parts of the brain are affected by its electrical impulses??? Can anyone tell me more about the VNS & the brain???
thanks,
1of3of6
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 joanne...
New - Could I have epilepsy??Created by joanne...at6/25/09 - 8:18 am|26 Views|4 Comments
Posted To: Epilepsy.com Help
Ever since I was young (probably around grade 3), I have been experiencing these werid episodes. I am not sure if they are seizures. When I looked at the info on this site, I see that what I am experiencing is very similar to a simple partial seizure. Although...
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 bsdfan
New - Could it be epilepsy?Created by bsdfanat6/23/09 - 11:02 am|27 Views|4 Comments
Posted To: Epilepsy.com Help
Hello everyone,
I'm completely lost and hoping to find answers to a condition that
I've been suffering for 7 years. I'm a healthy 33 year old man and I
don't have any other problems, and no heredity problems of any sorts.
Description:
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 epi_help
New - Ask Epi ChatCreated by epi_helpat6/23/09 - 6:52 pm|5 Views
Posted To: Epilepsy.com Help
Hi everyone,
Sorry I couldn't join the Ask Epi chat last thursday... I was traveling and the hotel I was in wasn't giving me good internet access. I'll be in this Thursday, from 8 to 9 pm east coast time. This will be a time to ask questions about epilepsy,...
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 coolcat47
New - change usernameCreated by coolcat47at5/19/09 - 5:07 pm|17 Views|2 Comments
Posted To: Epilepsy.com Help
Hi does anyone know what you go to to change your username. I went to manage my account but only saw where to change password, not userame. thanks gs.
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 mkfree01
Health InsuranceCreated by mkfree01at4/14/09 - 11:22 am|30 Views|1 Comment
Posted To: Epilepsy.com Help
Hey everyone! I wanted to see what everyone does for health insurance. My story in a nutshell: 24 (diagnosed with epilepsy 5 yrs ago), in business for myself, COBRA insurance is up at the end of June and no agency wants to take me on because of my "pre...
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 chetandu
Epilex Chrono side effectsCreated by chetanduat5/19/09 - 3:24 pm|3 Views
Posted To: Epilepsy.com Help
Hi All
I have been having epilex chrono for the last 4-5 years and lately realise that I am facing a erection dysfunction.
before going to the doctor and sort it out for me i wanted some help regarding the side effects of epilex chrono 300mg...
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 MsVickie
Could having Gastric Bypass Surgery trigger seizures later on?Created by MsVickieat5/15/09 - 4:31 pm|6 Views
Posted To: Epilepsy.com Help
Im brand new to this forum so i will appoligise if there was another thread stared about the same thing. I underwent Gastric Bypass surgery 19 months ago. After one year and two months out I had a series of severe seizures all in one day. I was hosptialized...
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 scorpio
Phenytoin interactions with other AEDsCreated by scorpioat5/6/09 - 1:52 am|6 Views|1 Comment
Posted To: Epilepsy.com Help
I hope you do not mind my intruding into the central parts of the site but on the page of info re drug interactions Phenytoin is listed as being a drug that increases levels of Lamotrigine when taken concurrently. I beg to differ, not least from personal...
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 joan83
behavior outburstCreated by joan83at4/20/09 - 12:42 pm|4 Views
Posted To: Epilepsy.com Help
My son is 17 and has mental retardation and severe epilepsy. He is a mild mannered young man who is very easy going. Lately he has severe behavior outburst in the morning. This morning he hit and kicked at me pulling my back out of place. He doesn't...
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 tatiana
Tripping AcidCreated by tatianaat8/22/08 - 3:49 pm|100 Views|13 Comments
Posted To: Epilepsy.com Help
I wasn't diagnoised with epilepsy until I was 20 and I'm only 21 now. Before I had my first and only seizure I use to experiment with different halluncinogens like acid and shrooms. Since I have been diagnoised I have tried shrooms again and had no problem...
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 jess1
has any been lucky and got to go off meds i am31 and had first ...Created by jess1at4/14/09 - 3:01 pm|11 Views|1 Comment
Posted To: Epilepsy.com Help
ineed help i want to go off meds my doctor does not talk much win i go to see him should i change doctores
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 grumpy...
changed from one type to anotherCreated by grumpy...at4/3/09 - 3:35 am|1 View
Posted To: Epilepsy.com Help
I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works. if any body has had this please let me know. I am scared
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 grumpy...
changed from one type to anotherCreated by grumpy...at4/3/09 - 3:35 am|1 View
Posted To: Epilepsy.com Help
I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works. if any body has had this please let me know. I am scared
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 grumpy...
changed from one type to anotherCreated by grumpy...at4/3/09 - 3:35 am
Posted To: Epilepsy.com Help
I have changed from one type to another over the past month, nobody knows why, i am taking 15 pills a day to try and control them. nothing works. if any body has had this please let me know. I am scared
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 epi_help
Welcome to our new Mentor!Created by epi_helpat2/23/09 - 2:22 pm|66 Views|7 Comments
Posted To: Epilepsy.com Help
Hi everyone!
I'd like to introduce everyone to our new mentor, pick61. She has graciously agreed to be a mentor and help out in the surgery chat hour with Sassy. Pick has gone through surgery herself and been around epilepsy.com for a few years. She...
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 Mimi145
Epilepsy Ads Using Scare To Educate "It's Wrong"Created by Mimi145at3/4/09 - 6:48 am|55 Views|9 Comments
Posted To: Epilepsy.com Help
Does anyone out there disagree with the Ads on tv about epilepsy? I am trying to find a job currently and if I were an employer or a coworker and heard this ad I would think twice before hiring a person with epilepsy or if I were that coworker it would scare...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:50 am|13 Views|2 Comments
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:56 am
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:56 am|1 View
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:56 am
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:54 am|2 Views
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:52 am
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:52 am
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 DKaylin
9-year-old daughter only twitching on the right side of her body ...Created by DKaylinat2/26/09 - 11:50 am|2 Views
Posted To: Epilepsy.com Help
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
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 wendygirl
help* is this a seizure? paralysisCreated by wendygirlat2/20/09 - 7:27 pm|1 View
Posted To: Epilepsy.com Help
Hi, I am trying to sort some things out. I had an event while driving a few years ago. I was suddenly paralysed and could not move or speak. I knew I was paralysed and wanted to yell to my children to hold on, but I was unable to do anything. I saw the...
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 avfc08uk
does anyone else suffer with epilepsy caused by pain? ....or is i...Created by avfc08ukat2/18/09 - 5:51 pm|13 Views|2 Comments
Posted To: Epilepsy.com Help
I'm 24 and I have had epilepsy for about 5 years now. All my seizures have been pain related but ive never heard anybody else having them through pain!
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 mom2be...
Advice needed for triggering temporal lobe seizuresCreated by mom2be...at2/12/09 - 1:46 am|50 Views|4 Comments
Posted To: Epilepsy.com Help
Hi everyone! As I speak I am sitting in a hospital bed having a 5 day eeg. I haven't had a siezure yet and I was wondering if anyone had any advice on how to make one happen. I have been sleep deprived for 3 nights and still nothing. I can't leave here not...
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 Yav
help to knowCreated by Yavat1/29/09 - 2:03 am|14 Views|1 Comment
Posted To: Epilepsy.com Help
I want to know why i am feeling really dizzy by now everyday as i wake up everymorning. I told my doctor but that was not helping him to say something.
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 Rett-p...
Uncontrollable seizures - any experience of ACTH therapy for olde...Created by Rett-p...at4/6/08 - 8:22 pm|47 Views|4 Comments
Posted To: Epilepsy.com Help
My dauther is 9 and presents with several different seizures, drop, clonic. myoclonic and etc. She's been on several different meds and presently is on Keppra, Zonogram, and clonpine AND on the Ketogenic diet. She is so lethargic, she can no longer sit...
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 curiou...
Tracking SeizuresCreated by curiou...at1/23/09 - 11:17 am|30 Views|3 Comments
Posted To: Epilepsy.com Help
Hello,
I was recently diagnosed with TLE, and am learning more and more about these kinds of seizures. My main symptom which lead to testing for epilepsy was memory issues. I would go through "spurts" where I'd have terrible short term...
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 darkrose
?????help!Created by darkroseat1/19/09 - 3:01 am|24 Views|2 Comments
Posted To: Epilepsy.com Help
ok if you read my story it is at the very end.... The other day i was sitting with my next door neighbor and my husband, i was getting a type of aura but different, i smelt this rotten egg smell and was feeling very offbalenced and than i went completley numb...
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 rikori...
can people with epilepsy drive?Created by rikori...at2/8/08 - 10:51 am|148 Views|13 Comments
Posted To: Epilepsy.com Help
can people with epilepsy drive? and Im wondering since they can have a siezure and might cuase a wreck
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 epi_help
Duplicated postsCreated by epi_helpat1/15/09 - 3:29 am|61 Views|2 Comments
Posted To: Epilepsy.com Help
Please note that placing the same post in multiple places, including different blogs and community forum threads, is not appropriate use of the site. Not only does it waste space in the forum, the posts waste people's time trying to find new information...
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 Bexp79
Overperscribed CarbamazepineCreated by Bexp79at1/14/09 - 5:53 am|21 Views|2 Comments
Posted To: Epilepsy.com Help
Help, My daughters been havin partial seizures for 2 months, started on Carbamazpine 100mg/5ml having 15mls aday, hospital decided to up dose to 20mls aday, doctor made a mistake with perscription and gave her 500mg/5mls and told me to give her 20mls aday...
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 tsmitha02
Pacemaker & seizures this spring at 38Created by tsmitha02at6/30/05 - 5:33 am|480 Views|5 Comments
Posted To: Epilepsy.com Help
Hi everyone. I'm new here and really could use some advice and compare notes with others who might have had the same situation. I am a 38 yr old male who woke up March 13, 2005 with left side numbness. After it...
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 Marie2
The Current "Latest Poll" is Mathematically ChallengedCreated by Marie2at1/6/09 - 1:15 pm|2 Views
Posted To: Epilepsy.com Help
The percentages associated with this poll add up to more than 100%. The total percentages seem to vary from a summation of 135 and 144.
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 kdredske
If I could change 1 thing on epilepsy.com it would be . . . Created by kdredskeat10/10/08 - 2:21 pm|266 Views|36 Comments
Posted To: Epilepsy.com Help
If you could make one change to epilepsy.com, what would it be?
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 jellouli
Clobazam helpCreated by jellouliat11/2/06 - 8:22 am|912 Views|4 Comments
Posted To: Epilepsy.com Help
Hi all,
I am the father of a child that has EIEE (Early Infantile Epileptic Encephalopathy), with myoclonic seizures, the doctor tried several drugs, none has fully worked so far, he prescribed CLOBAZAM lately, but unfortunately,...
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 justme222
DepressionCreated by justme222at4/18/08 - 12:09 am|41 Views|4 Comments
Posted To: Epilepsy.com Help
Hi
I was diagnosed with E, 2 year ago and am still trying to control my seizures. I am not sure how many I am having, but guess approx 2 a month but not sure since I am on my own the majority of the time. My neurologist is trying to control these...
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 kmc
night time epilepseyCreated by kmcat11/23/07 - 6:31 am|86 Views|3 Comments
Posted To: Epilepsy.com Help
i have a 12 yr old son that has been taking homeopathic medication for night terrors. he wakes screaming, sweating heart racing pupils fixed yet recalls nothing afterwards.
i caught him once just about to jump out of his bedroom window, the medication he...
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 renatta2
Right Temporal Lobe SurgeryCreated by renatta2at11/30/08 - 5:47 pm|10 Views
Posted To: Epilepsy.com Help
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 G
Is it a seizure?Created by Gat11/14/08 - 6:30 pm|26 Views|3 Comments
Posted To: Epilepsy.com Help
I have had epilepsy my entire life. For the past 25 years I have been almost 100% controlled with the exception of a few complex partial seizures. However, 3 years ago I began having the most unbelievable experiences that still have not been completely...
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 epi_help
Welcome to our new Mentors!Created by epi_helpat10/7/08 - 7:13 pm|88 Views|4 Comments
Posted To: Epilepsy.com Help
Hi everyone!
I'd like you all to help me welcome two new mentors to my.epilepsy.com - Sassy and KrayonsRmine. Both have been users of the chat and the ecom site for quite a while and willing to volunteer their time and help to others. Visit the...
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 epi_help
Chat Help and MentorsCreated by epi_helpat12/21/07 - 5:07 am|340 Views|18 Comments
Posted To: Epilepsy.com Help
Dear community members,
For quite a while we have heard concerns about chat rooms and the site in general. While a variety of helpful comments have been received, one of the take home messages is to make sure the chat remains a safe supportive environment...
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 sandislam
TOPAMAXCreated by sandislamat11/17/08 - 5:21 pm|6 Views
Posted To: Epilepsy.com Help
I have been on Topamax for 3 years with good seizure control. Recently,
I have had an increase in auras, though no full-blown seizures. I also
seem to have trouble catching my breath. I have had some hypoglycemia,
and my thyroid is probably out of whack....
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 G
Is it a seizure?Created by Gat11/14/08 - 6:30 pm|5 Views
Posted To: Epilepsy.com Help
I have had epilepsy my entire life. For the past 25 years I have been almost 100% controlled with the exception of a few complex partial seizures. However, 3 years ago I began having the most unbelievable experiences that still have not been completely...
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 G
Is it a seizure?Created by Gat11/14/08 - 6:30 pm|2 Views
Posted To: Epilepsy.com Help
I have had epilepsy my entire life. For the past 25 years I have been almost 100% controlled with the exception of a few complex partial seizures. However, 3 years ago I began having the most unbelievable experiences that still have not been completely...
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