 |
|
|
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Epilepsy.com Help
Register to Participate
 admin |
 angiedp discouraged
I was diagnosed with epilepsy 2007 possibly from Lyme Disease and multiple head injuries. Started on depakote which caused excessive weight gain so switched to Keppra and trileptal which did fine on. Do to loosing medical card have had to switch, have tried...
|
 Spike. Frustrations with the Community Forums Comment Boxes
Folks, I have reached the point where I just can't hold something in anymore. So I'm going to let out one major frustration because I have become so fed up with a particular problem in the community forum, and that is trying to create postings and replies...
|
 dizzy deb myoclonic (jerks) drops
i started out having absence seizure's when i was a kid then when i was 7 i had my first grand mal. they went on well kind of still are.then when i was in high school i started to have myoclonic (jerks) drops. i went almost 3 years without having a grand mal....
|
 epi_help Ask Epi Chat
Hi everyone,
I want to apologize for not being available for Ask Epi Chats past few weeks. My schedule has been changing. What do you think if we tried Ask Epi Chats on Thursdays at 8 pm instead of 9 pm, then on a Sunday? Let me know what you'd like!
Epi_help
|
 scorpio spam filter
All my recent attempts to post messages have triggered spam filters. Is there anything I can do about this?
Chris
|
 jenmcc Help
I am a 30 year old female that has been having symptoms of siezure activity for about 11/2 year now. I have been to a neurologist who after explaining to him all my symptoms, from the arm going numb, hearing mumbling and seeing black...
|
Kateknuc Lost little girl. Its impossible to know what to do lost little g...
Thanks for reading and for your time. I was diagnosed with "a siezure disorder due to brain damage" which i have no idea where that couldve stemed from other than my birth development. I had my first siezure when i was 17 in my friends...
|
Spike. Your submission has triggered the installed spam filter and will ...
I am really getting fed up with how this "spam filter" operates. Why is it okay for other members who've been here for a while, and new members (forum spammers) posting links to advertisement websites, are able to get what they have created posted,...
|
Spike. Technical details on the new website
The column located on the left-hand side of the screen that contains a list of 'Users Online', 'My Buddies', etc. followed by a member's username, 'Manage My Account', by clicking on any of these choices listed along the left column, the window that is being...
|
 kay69 how do I unsubscribe??
I want to totally unsubscibe from this site, ie close my account. I can't find any way to do this. Can someone please tell me how to do this??
|
epi_help my.epilepsy.com Updates
Welcome to my.epilepsy.com!
Your forum to connect, share, relax and learn!
As a new visitor, look around and you'll see lots of ways to connect with other people. To join in on discussions, create your online blog or journal, and chat, become a member...
|
85anne Jerks on awakening...
I know someone who sometimes has jerks on awakening. The jerks are invisible but she feels them only inside the arms/shoulders. Sometimes in the legs.
If the light from the sun are strong and it blows outside and the light is shining sharply on the tabel...
|
Morgan... Electric shock feeling in my head...
Ever since I was little, I've gotten this like sharp lightning bolt of pain in my head, and it makes my tongue curl and my whole head kind of numb. It only lasts a second and it feels like a shock, but it only happens like every other month or so. Is there...
|
TRobin5 Sleep Deprivation
I have a 12 yr old who has complex partial seizures which have now become tonic clonic. She takes Lamictal 100mg q.i.d & Vimpat 50mg q.i.d. Her main problem is sleep. She has much difficulty trying to get to sleep. I am told it is because of the Lamictal....
|
scorpio |
 Chrissyml |
Spike. Problems Posting #2 [continued]
Everyone, I don't know the facts as for what's causing the technical problems on this and other websites, but due to what took place along the East Coast on Tuesday, August 23, 2011, might have had something to do with these technical problems.
|
 3Hours... Problems Posting #2
Hi Chrissyml,
I cannot add any first comments either.
I wonder if this is going to be like what happened to epilepsyfoundation-dot-org too!!!
It was really wrecked over the last few weeks. Most of the journal archives are now
directly unavailable...
|
Chrissyml Problems Posting
I have been having problems with this site lately. I click on "Add comment" nothing happens! I can't post! It doesn't matter if I am using Google Chrome or Internet Explorer. I'm shocked when I click on "Add comment" and I can actually my comment.
|
 webmaster Have your voice heard! New Survey Opportunity
TEAM EPILEPSY is dedicated to bringing people with epilepsy together with clinical research trials, and the advancement of treatment options for epilepsy. This survey is completely confidential and your responses will be used to help a team of medical researchers...
|
epi_help New email notification
New Feature!
Hi everyone! Hope this finds you all well today... Just an fyi of a new feature starting any day now - email notification of blogs, community threads and tags of your choice! You'll be able to 'subscribe' to...
|
edie PNES- NON EPILEPTIC SEIZURES
Hello there. I just wanted to know if there is anyone that is living with pnes... My sister has been told she has this and it is very confusing. I have done some research on this condition..but would like to hear from anyone who has this. I just have...
|
aylaba... hello i'm was wondering if anyone may know this
okay my boyfriend had a seizure this morning and know one knows what type of seizure. for the first time when he came back from the hospital i got papers from my bf saying he has BIBA SEIZURES. I didn't go so idk and i checked out what biba seizures mean...
|
kdralst Why do Dr's do EEG while the patient is on med
My son had a seizure for the first time a few days ago. He's having an EEG tomorrow and the doctor wants him to take his Dilantin. I don't see how they're going to find much if he's on medication to prevent seizures. Can anyone explain this to me?
|
 DorisE... Nocturnal Seizures
Suggestions or experiences regarding nocturnal seizures would be appreciated. Post left temporal, almost 10 years ago, my seizures changed from day only to nocturnal only. I am still on drugs, presently Lamictal, and would value...
|
Spike. To the webmaster: Spam filter
For several weeks now I have been trying to post replies that do include links to various websites, with most of the websites being connected to this website itself. I was somewhat aware of a few changes being done to this website and decided to wait a while...
|
 EKlair... I have tried everything..please help!!!
I have tried everything to get into a chatroom. I even had my husband who is a computer programmer try and figure it out for me, but we still can not get it to work. Everytime I press the begin chat button it does nothing but turn...
|
Naomi ... VNS IMPLANT
Hi my daughrt has just had a VNS implant put in 4 weeks ago and is doing well. She is main stream school and get good grades It has took a long time from being dignoised to having inplant put in .In total from 6-7 yrs old to being 14 yrs old this year .
|
socmom |
norama... EEG Result...Seizure!!!!!
Hello Evryone,
Please help me explain the EEG result of my friend
ABNORMAL, Localized sharp wave activity was noted in the left temporal lobe area, this is consistent with an epileptiform lesion.
Kindly please explain to me about the...
|
breath... |
perth COULD THIS BE ATONIC EPILEPSY OR SOME OTHER TYPE OF EPILEPSY?
HI I AM WRITING FROM AUSTRALIA. OUR 11 YEAR OLD SON HAS BEEN HAVING DAILY FALLS (21 ONE DAY). FOR ABOUT 4 MONTHS.SINCE HIS FIRST FALL HE HAS HAD ALMOST DAILY NAUSEA, A LOT OF DIZZY SPELLS AND HIS APPETITE HAS NEVER BEEN THE SAME. THESE FALLS ARE PRECEDED BY...
|
 stacey... |
SJMVarner Question about new possible seizure episode
Hello! I was wondering if anyone in here has ever experienced a strange new “symptom” of a seizure.
|
 jojo256 |
jojo256 |
 avfc08uk does anyone else suffer with epilepsy caused by pain? ....or is i...
I'm 24 and I have had epilepsy for about 5 years now. All my seizures have been pain related but ive never heard anybody else having them through pain!
|
pudder69 why head turnes one way all the time seizure happens,
is there a name for the turning of the head to one side, i just noticed he always turns to the right
|
 Godiva... How do I delete stuff?
Hi,
Originally all I was trying to do in one topic was look to a positive not a negative, and people don't see things the same way. How do I delete anything I have on that post. I really shouldn't have to defend trying to look on the bright side, but people...
|
 emdani... lamictal hair loss
hi everyone..
i am taking 300 mg of lamictal daily and hairing hair loss. but my seizures are under control. has anyone had any luck with selenium, biotin. zinc and centrum silver i have read that people have if so does anyone know how long it takes till...
|
 OlgaLowe |
coy heterotopic periventricular grey matter
my son is 12 when he was 3 he had a nasal dermoid cyst removed..since been 6 or 7 he has had very bad migraine..that can last for days he also so has very bad memory loss and as to be remined all the time about what he was sent to get or do sometime he doesnt...
|
scorpio Gobbldegook
Seem to have made a mess of an entry I have just put in to the forum. I copied/pasted comment written on a Word document and much else seems to have come with it!
Whoops!
Chris
|
traveler3 How to gain permanent residency with Epilepsy
I have recently gotten together information on living in another country. Many countries require a medical exam in order to gain permanent residency. Many countries have Epilepsy listed as a "Severe Mental Condition", Now...
|
 mamommy possible seziures
hey everybody this HAPPENED at least 4 times. it first started in december 2009 i really didnt think anything of i really thought it was nothing i was kinda awake but my eyes was closed and was lying down on the floor and i keep moving left hand and leg...
|
tatiana Tripping Acid
I wasn't diagnoised with epilepsy until I was 20 and I'm only 21 now. Before I had my first and only seizure I use to experiment with different halluncinogens like acid and shrooms. Since I have been diagnoised I have tried shrooms again and had no problem...
|
oba4 Looking for teaching strategies that help children with seizures ...
I am a special education teacher searching for ways to help one of my students learn to read. He is in third grade and has diagnosed Children Absence Epilepsy and ADHD.
|
 Mostre... Could salvia possibly cause siezures?
I'm 26 years old with no history of epilepsy or seizures, and in mid- november of 2008 i tried salvia for the firsttime, it was really strange, you lose your sense of self. Everything was ok until december, when i had my first siezure ever. It was very...
|
dreame... blackout?
I was at the store yesterday and the last thing I remember was looking at clothing, the next thing I know I'm in my car driving home, about a mile away from the store. I don't remember at all, i mean nothing, about how long I was in the store, leaving, finding...
|
epi_help my.epilepsy.com Updates
Welcome to my.epilepsy.com!
Your forum to connect, share, relax and learn!
As a new visitor, look around and you'll see lots of ways to connect with other people. To join in on discussions, create your online blog or journal, and chat, become a member...
|
 TAH50 Medicine: Lyrica
I'm new to the website. I've been on Lyrica now for 6 months now and am experiencing lots of anxiety and emotional problems. I feel its tearing my marriage of 25 years apart. I don't see my doctor until late August. Do you think I...
|
 Bedge Blog listing?
Hi Ya,
I created my blog today. I think its called "My worst enemy, my brain" hahah. But I can't see it on the side bar list where everyones blogs are listed. Can you guys check for me? Should it be there? Or maybe it is called...
|
 mcdonaja Post does not belong here!
There is a post in the Advocate for Epilepsy forum that in my opinion does not belong in this website at all.
It is a post by Dundee on the 17DEC06 about NYPD. After reading this post a couple of times I fail to see any connection...
|
FlaGirl Do animals help alerting people with epilepsy?
One day i had a Grand Mal seizure and if most people know it knocked me unconscience...well my aunt said that Lucy (The dog) alerted her, but i was never sure because maybe the dog actually had to go to the bathroom and if they actually...
|
 mick02 New Tools: "Subscribe via RSS"
Epilepsy.com is pleased to launch new features to the Blogs! You can now "Subscribe via RSS" to keep track of your favorite blogs and stay up to date on topics important to you. Please note, however, that this technology does not...
|
Anonymous New Content Indicator - little diamond icons
Everyone,When I joined this group many months back under the user name of batman aka Bruce, I had the feature of receiveing e-mail when I wanted to be notified that someone posted a reply to whatever I posted. This took place...
|
epi_help iGoogle Gadgets
Hi everyone,
Get your own my.epilepsy.com igoogle gadget now! Visit the following link and add my.epilepsy.com blogs to your Google homepage. These will help you stay up-to-date with the latest blog entries...
|
 elsea Having seizures After using the computer
I have been using the computer a lot more lately during the day and in the evening or during the night (when I am the most prone for getting them) I have been having mini-seizures. Do you think there could be a connection? I have...
|
epi_help New Content - Seizure Preparedness
In an effort to keep everyone updated on coming changes, here's an fyi on new content...
Generic Substitution News- lots of people ask what the rules are for when a pharmacy can substitute generic medication for brand....
|
epi_help Pictures and avatars
Hi everyone!
Many of you have asked for the ability to add pictures or avatars to your names on the site. Well, the time has come! On 8/28 the pictures/avatars were added to the site and display on all Blog and Community...
|
 rayhammi Am I having nocturnal seizures??
Lately I have been having these "attacks" in my sleep. They only last about a second, just long enough to "jar" me out of my sleep. They feel like a big zap of electrcity going through my head. Sometimes they are way more violent then...
|
 awells222 amnesia after seizure
I am 76 yo female.Had seizures for 13 years.Started with 2 gran mal now have partial complex.My question is about having seizure,then acting normal but no memory of it or actions after seizure.Anyone else do that/May last an hour where...
|
 dmh |
 Maggie epi_help...
Hi,last night we e-mailed each other about why I cannot chat.You told me let you know today if anything helped.Well nothing I tried helped.PLEASE help me get into the chatroom.I have developed other health issues that I would like...
|
DorisE... Nocturnal Seizures
Suggestions or experiences regarding nocturnal seizures would be appreciated. Post left temporal, almost 10 years ago, my seizures changed from day only to nocturnal only. I am still on drugs, presently Lamictal, and would value...
|
 jellouli Clobazam help
Hi all,
I am the father of a child that has EIEE (Early Infantile Epileptic Encephalopathy), with myoclonic seizures, the doctor tried several drugs, none has fully worked so far, he prescribed CLOBAZAM lately, but unfortunately,...
|
mrnoggin |
epi_help Join the National Walk for Epilepsy
Hi Everyone!
I'd like to challenge everyone on my.epilepsy.com to join the Epilepsy TDP team for the National Walk for Epilepsy! If you can't be there in person, you can be a virtual member of the team and sign up online....
|
epi_help New Tools - Blog and Community Forum Tagging
Hi everyone - Want to tag?
There's a new feature on my.epilepsy.com called TAGGING. In case you're like me and don't know what tags are, here's a brief intro.
Tags are keywords that help summarize the main idea...
|
elsea Ambulatory EEG - Stop medicine beforehand? What if inconclusive?
Dr. scheduling me for Ambulatory EEG. I forgot to ask if I need to stop taking the medicine beforehand - I take Tegretol to control symptoms. Also, he sounded like if this test came out negative he was going to say I don't have simple...
|
epi_help Info we'd like to see more of
Hi everyone,
I'm staring this thread for people to add topics or questions that they would like to see more info on. For example, I responded to thread on jasmine/aromatherapy just now, and struck me that we need more info on this...
|
 Unique um hi
um hi ,im not very old im only 13 and i have just bin diagnosed with epilepsy and no one has explained to me about it or how my life will be ,im actually really scared, and im worried of how other people will treat me please can someone help ....
|
dmh Missing Work-Legal Issues
I have been missing quite a bit of work this year between all of my pre-surgical testing and from being ill with so many seizures also. We all know it is impossible to pre-schedule your days off from work as far as when these are...
|
 pamjs53 My EEG Results
I need some help understanding my EEG. The results state: "The record was characterized by a well develped, symmetric 9-10 Hz posterior dominant rythym that attenuted equally with eye-opening and alerting procedures. Generalized...
|
scorpio |
Bedge (SUDEP) on home page
Hi,
This is a bit nit picky I think .... I digress ... haha
I get a bit upset seeing 'On My Mind: Sudden Unexplained Death in Epilepsy (SUDEP)' post on the home page each time I log in. I know its an issue, I know it needs to be discussed, I know...
|
 ambrakay |
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
DKaylin 9-year-old daughter only twitching on the right side of her body ...
My 9-year-old daughter who over the past 2 1/2 years has only had a handful of focal seizures and over the past 3-4 weeks has actually started twitching/shaking only on the right side of her body. She is also for the first time ever having nocturnal seizures...
|
 darkrose ?????help!
ok if you read my story it is at the very end.... The other day i was sitting with my next door neighbor and my husband, i was getting a type of aura but different, i smelt this rotten egg smell and was feeling very offbalenced and than i went completley numb...
|
 kimaling ACTH injections and Landau Kleffner
Dear All:
My son was recently diagnosed with what his pediatric neurologist thinks is Landau Kleffner. After a lot of research and discussion both with our son's pediatric neurologist and amongst ourselves, we decided to have ACTH...
|
epi_help Add A Prayer
There are many people going through challenging or scarey times that need our support and prayers. Feel free to add a prayer, remembrance or concern for someone here, a family member, friend or colleague. Let the power of support work...
|
mom2be... Advice needed for triggering temporal lobe seizures
Hi everyone! As I speak I am sitting in a hospital bed having a 5 day eeg. I haven't had a siezure yet and I was wondering if anyone had any advice on how to make one happen. I have been sleep deprived for 3 nights and still nothing. I can't leave here not...
|
 lorelama |
lucky88 airport metal detectors and VNS
Im going on my first plane trip since i got the Vagus nerve stimulator and i was wondering if anyone had problems going through the metal detectors the VNS?
|
 dickey890 alternate surgery
Years ago I was told by my doctor the future EP surguries will go through your nose instead of cutting your skull open. I paid no attention to it, but when they came out with "brain radiation" for cancer, a light came on.
They place...
|
callpaul ALTERNATIVE CURE FOR EPILEPSY.
my name is paul frombaltimore ...Ive been epileptic since my childhood and it had caused me so much embarassment, so much pain, it even happened a few times when driving.. i tried all solutions ...spent thousands of dollars with no visible result , and my...
|
rayhammi Am I having nocturnal seizures??
Lately I have been having these "attacks" in my sleep. They only last about a second, just long enough to "jar" me out of my sleep. They feel like a big zap of electrcity going through my head. Sometimes they are way more violent then...
|
elsea Ambulatory EEG - Stop medicine beforehand? What if inconclusive?
Dr. scheduling me for Ambulatory EEG. I forgot to ask if I need to stop taking the medicine beforehand - I take Tegretol to control symptoms. Also, he sounded like if this test came out negative he was going to say I don't have simple...
|
awells222 amnesia after seizure
I am 76 yo female.Had seizures for 13 years.Started with 2 gran mal now have partial complex.My question is about having seizure,then acting normal but no memory of it or actions after seizure.Anyone else do that/May last an hour where...
|
Maggie anyone else having.....
Anyone else having problems with the new chat room?For some reason I can't get on a chat.The names to the right are not highlighted so I cannot click on them.I tried writing a message and then pressing SAY,but it won't go up on the...
|
Anonymous Anyone Having Computer Problems When Visiting This Website?
With what I've experienced for some time now and after reading newly posted replies in the thread (Leaving Forum Due to Comp Probs), is the sole reason why I’m starting up this new subject thread. So I ask everyone to please provide feedback and an explanation...
|
 Stingr... Anyone out there??
Hi, I'm a 16 year old and experiencing mysterous "Spells. I have them about 17 times a day on average and they last about 10-12 min. I have been to several doctors, but nobody can explain them. I have made 4 20-hour trips to the Mayo...
|