 darina
New - REAL?? Fake?? HELP MEECreated by darinaat11/4/09 - 6:43 am|53 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
HI im now 18 i started having seizures on the 5th may 2006 my first was in school i was on a bench i was really cold and it was near the end of the first break i remember going to sit on the bench thats about it. whilst sitting on the bench i passed out...
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 lisab
New - Deja vuCreated by lisabat4/5/05 - 5:00 am|2975 Views|66 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi, my name is Lisa and this is my first time posting. I am 39 years and a mother of two daughters. About 18 months ago, I had two experiences of deja vu. After the deju vu feeling passed, I had a strange feeling...
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 millac...
New - Lesions in the brainCreated by millac...at10/5/09 - 6:12 pm|26 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
Almost a year ago my boyfriend had several massive seizures in his sleep WHILE taking his depakote. He went into the doctors to be observed, they did a cat scan, and found a lesion in his brain. We've gone through test after test, seen many different doctors,...
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 zyn
New - I have a QuestionCreated by zynat11/4/09 - 5:56 pm|40 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
Hello Everyone,
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 Maxkat
New - Seizures caused by abdominal pain? Created by Maxkatat11/4/09 - 5:08 pm|1 View
Posted To: Diagnostic Dilemmas and Testing
Has anybody else every experienced a seizure caused by intense abdominal cramping?
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 jc-32
New - "Not Normal" Strange Symptoms, but dr still call it seizuresCreated by jc-32at11/3/09 - 11:14 am|11 Views
Posted To: Diagnostic Dilemmas and Testing
I'm a teacher for students with disabilities and My "seizures" started a couple of years ago but are differant from any of my students. They all have the absent or grand mal seizures and are pretty unconcious where i tend to stay pretty aware...
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 elly
New - Myoclonic jerks occuring in the evening?Created by ellyat11/1/07 - 10:10 am|481 Views|24 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi, I have never posted on here before but I am a bit freaked out and everyone seems to know so much I was hoping someone could help me!
I was diagnosed with Juvenile myoclonic epilepsy almost 3 years ago (I am 23 now). I had been...
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 ao_kiddo
New - Normal vEEG-what next?Created by ao_kiddoat10/29/09 - 7:09 pm|31 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi! My name is Ashley and I just joined. I have some questions regarding a vEEG I had.
Initally, I had a MRI and EEG done, both came back normal when I started having what they thought were possibly absent seizures. Frustrated, the
doctor I followed...
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 redb0ne
New - EEG impression differs from docs notesCreated by redb0neat10/26/09 - 3:21 pm|23 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
I've run into a bit of a dilemma with my medical records.
I was diagnosed with some form of childhood epilepsy when I was a kid. I've now been off medication for over 10 years and am attempting to obtain some information on my childhood condition.
My...
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 jessica25
New - NON-EPILEPTIC SEIZURESCreated by jessica25at5/10/05 - 3:39 pm|754 Views|25 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi Everyone,I know this is a touchy subject but I need more info on it if anyone has experience of this. The docs have told me they think my 'episodes' are non-epileptic because I had one on EEg and it showed no abnormality...
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 mp
New - diagnosis epilepsy/anxiety/depression/bipolar ?? how do you know ...Created by mpat10/26/09 - 3:09 pm|10 Views
Posted To: Diagnostic Dilemmas and Testing
black out/seizure/ anxiety/depression/bipolar/PTSD ???????????
I first had a blackout/seizure when I was 16, I had just walked past a group of lads who were calling for me and my friend to talk to them, we went into a chipshop and that is where I...
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 stepha...
New - How do you get diagnosed with epilepsy?Created by stepha...at10/23/09 - 8:54 am|37 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
In May of this year my 14 yr old daughter got hit in the face with a dodgeball at school and ended up having a mild concussion. Since that time she's had pretty severe headaches. After about a month of school she started having these "episodes" where...
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 amuffet
New - Could seizures be psychosomatic?Created by amuffetat4/26/07 - 3:10 pm|777 Views|8 Comments
Posted To: Diagnostic Dilemmas and Testing
I have had epilepsy for eleven years now. God, it sounds like so long when I say that. Anyway as with most people's seizures my doctor can give me very few answers about the cause of my seizures. I sure get a lot of "I don't knows"...
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 16nessa
New - NORMAL EEG BUT STILL HAVE SEIZURES??????Created by 16nessaat10/25/09 - 4:34 pm|27 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
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 Rakun
New - Uncommon epilepsy (need diagnostic)Created by Rakunat10/25/09 - 4:04 pm|9 Views
Posted To: Diagnostic Dilemmas and Testing
First, sorry for my bad English
my story starts like this
as 17 years old "boy" my friend acidently shot me in the head (yes I'm talking about gun)
after successful surgery doctor subscribe me to take phenobarbital for 5 years
now...
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 Mikey4
New - Deja vu and EpilepsyCreated by Mikey4at9/6/08 - 4:09 pm|224 Views|15 Comments
Posted To: Diagnostic Dilemmas and Testing
Ok I'm going to give a short version and a long version, as the long one might be too long for many...
SHORT:
-I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny...
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 Essie
New - Please help with SCIO (Quantum Energy) diagnosis and Miracle prom...Created by Essieat10/19/06 - 2:33 am|1870 Views|10 Comments
Posted To: Diagnostic Dilemmas and Testing
We took my son (5), to a neuro therapyst who uses the SCIO machine. It uses bio energy to diagnose thousands of problems in the body. It can heal as well. The machine diagnosed my son with epilepsy due to chromosome 6 abnormalities....
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 Stanstedy
New - Frustration with NeuroCreated by Stanstedyat10/16/09 - 8:32 am|20 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
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 mikebr...
New - Afraid to loose my License. Please some input on thisCreated by mikebr...at10/14/09 - 5:06 pm|23 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
I am afraid to loose my Driver's License. Nobody I live with understand what I could be going through. My dad is actually kicking me out of the house. My mom suffers from severe depression. Enough self-pity, but I really don't know what to do. Here are my...
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 ohbrustin
New - Does this happen to anyone else?Created by ohbrustinat10/10/09 - 5:44 pm|23 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
Does this happen to others?
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 Greywolf
New - EEG patternsCreated by Greywolfat10/3/09 - 1:49 pm|34 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
I am seeing a Neuro who seems to know nothing about epilepsy, , my partner - who has epilepsy - has heard him say many things that are incorrect about epilepsy. The Neuro sent me for an EEG and the nurse conducting the EEG turned round and asked me if...
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 ycmom
Do you agree or disagree?Created by ycmomat11/30/07 - 9:50 pm|136 Views|6 Comments
Posted To: Diagnostic Dilemmas and Testing
My daughter is 15 yrs old and has recently seen a pediatric neurologist specialist. The have done a sleep deprived EEG and it came back normal. I know that this is common and most say that unless you are having a seizure at time of EEG then it will not show...
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 silvia...
Are these seizures?Created by silvia...at4/10/09 - 12:45 pm|35 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi I am suspecting that my boyfriend is having seizures, but I am
not sure if he is. He has no history of epilepsy or any other seizure
disorder. However, I noticed a peculiar pattern in his behavior.
Every so often (at a distance of several...
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 cependell
Jerks when falling asleepCreated by cependellat9/19/09 - 4:47 pm|27 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
Hello! I am not new to epilepsy (I've had tonic clonic seizures for like 8 years), however, this is puzzling me. My boyfriend has had full or partial body jerks as he's falling asleep now for most of his adult life and it's never really bothered him so he's...
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 johnho...
Recent VEEG testingCreated by johnho...at10/3/09 - 6:35 am|16 Views
Posted To: Diagnostic Dilemmas and Testing
I returned home the other day from three days of VEEG (video eeg) monitoring. Having done this several times in the past, with no success, I finally had great results. I am writing this to stress the need for good neurologists. My former neuro would...
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 ecperkins
new diagnosis, but unsure if it fitsCreated by ecperkinsat9/26/09 - 7:28 pm|29 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
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 orygun
Cardiac SymptomsCreated by orygunat9/27/09 - 12:24 am|9 Views
Posted To: Diagnostic Dilemmas and Testing
Hello everyone,
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 kimshere
Seizures During SleepCreated by kimshereat8/17/09 - 5:43 pm|21 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
Hello...
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 Mama-Mia
Feedback for veeg, seizure monitoring!! Please share your experie...Created by Mama-Miaat11/15/08 - 9:03 am|104 Views|9 Comments
Posted To: Diagnostic Dilemmas and Testing
Hello,
I am a patient volunteering at my hospital on a team striving to
improve the safety in the seizure monitoring unit. Our work is
published at the AES annual meeting. The information gathered helps
hospitals all over the world make the VEEG...
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 Little...
24 hour EEG w 2 year oldCreated by Little...at7/2/08 - 2:45 pm|19 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
Has anyone done a 24 hour EEG with a young kid? How did it work? Our last experience with a short EEG was such a nightmare (Owen flipped when she put the electrodes on his head and she made me pin him down, which made it worse and he pulled them all...
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 wldhrt13
inpatient VEEG testCreated by wldhrt13at9/16/09 - 2:37 pm|17 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
how many events/seizures do they make you have while you're in there before they let you go home btw? is one enough? or do they make you have em over and over?
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 galaxymel
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 pewter
Seen by new Neuro, don't have seizuresCreated by pewterat9/16/09 - 2:21 pm|15 Views
Posted To: Diagnostic Dilemmas and Testing
was seen by a new neuro
ran down my symptoms
discussed that I was having some "altered awareness" symptoms that were bothering me and that perhaps the Topamax wasn't working so well though the loss of consciousness was gone.
he,...
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 wargrass
Panayiotopoulos Syndrome Diagnosis (Long)Created by wargrassat10/8/07 - 6:43 pm|215 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
I am so unbelievably frustrated by how long it takes to get the healthcare system moving. My dd is 6 and September 13th she had her first seizure. She has had 7 since then. It is hereditary, as I had seizures from 8 to 14.
We got...
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 Jensey84
Simple Partial Sensory SeizuresCreated by Jensey84at9/10/09 - 6:53 pm|26 Views
Posted To: Diagnostic Dilemmas and Testing
Hi I was diagnosed with Epilepsy back in March of this year. Took about 5 months before I accepted it. I was always under the impression that a seizure is whenyou drop to the ground and shake. I had a AVM rupture in 1998. Was started on epileptic drugs,...
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 Boo2008
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 stephs...
I gotta seize - help me pleeze!Created by stephs...at2/20/09 - 2:04 pm|54 Views|7 Comments
Posted To: Diagnostic Dilemmas and Testing
Help! In a week and a half I'm having a sleep study done to try to catch one of my nighttime "spells" while I'm hooked up to machines. Long story short, I've been pinballed around with doctors (NOT my choice - personel change, etc.) and my new...
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 paigeg
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 nasim002
DiagnosticCreated by nasim002at9/1/09 - 1:00 am|4 Views
Posted To: Diagnostic Dilemmas and Testing
Polymyalgia rheumatica is a clinical syndrome of proximal muscle pain in older patients that often presents a diagnostic challenge because of the large differential diagnosis, lack of definitive diagnostic criteria, and relatively frequent "atypical"...
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 emdani...
lamictal hair lossCreated by emdani...at8/31/09 - 11:49 pm|2 Views
Posted To: Diagnostic Dilemmas and Testing
hi everyone..
i am taking 300 mg of lamictal daily and hairing hair loss. but my seizures are under control. has anyone had any luck with selenium, biotin. zinc and centrum silver i have read that people have if so does anyone know how long it takes till...
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 destro...
Why do they think I have epilepsy?Created by destro...at8/25/09 - 11:25 am|56 Views|6 Comments
Posted To: Diagnostic Dilemmas and Testing
I have suffered from depression and anxiety for 10 years (I am 22) and, after several antidepressant medications didn't help or made me worse, I was sent for a psychiatric assessment for bipolar disorder (manic depression). Although the psychiatrist diagnosed...
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 rokchik1
Temporal Lobe Epilepsy: what does it feel like?Created by rokchik1at6/6/09 - 10:00 am|148 Views|8 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi Everyone!
This is my first time on this site and I am glad to have found you all! I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the...
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 katfaerie
VEEG monday, 3-5 day hospitalization!Created by katfaerieat8/8/09 - 8:55 am|34 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
i'm a ball of anxiety. does anybody have an advice? i've had eeg's before but never a video one.... what should i bring, what can i do, how will i ever get the glue out of my hair?? i have long long long thick hair. my friend offered to braid my...
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 speechie
Late onset stutteringCreated by speechieat4/18/05 - 8:37 am|1087 Views|10 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi,I am a Speech Pathologist in Australia. I have recently assessed a 9yr old boy who has started stuttering in the past 6-9months. Should I be concerned about epilepsy? I would be interested to hear from anybody with late-onset...
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 dwayne...
True epilepsy---9 yr. old boyCreated by dwayne...at8/18/09 - 7:28 pm|27 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
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 missy_hp
Does anyone have rapid heartbeats before a seizure??Created by missy_hpat11/15/05 - 6:33 am|1792 Views|18 Comments
Posted To: Diagnostic Dilemmas and Testing
I am a 26 year old female and have had seizures for the about
6 years now. The cause is unknown. Every month or so I go
through "episodes" of rapid heartbeats. After a day or two they
stop and don't start again for another month....
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 bread
how to tell the diff in PMA or siezure aurasCreated by breadat8/15/09 - 8:02 pm|14 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
How can you tell the difference between an aura from PMA-persistant migraine aura (without infarction) and an aura from a real seizure? The symptoms are almost the same!
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 Lovebug
Is it epilepsy or not?Created by Lovebugat8/5/09 - 9:31 am|50 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
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 hlogan911
What in the world is happening to me?Created by hlogan911at8/14/09 - 5:30 am|30 Views
Posted To: Diagnostic Dilemmas and Testing
Update - Finally got my PCP to refer me to Neuro. They've done assessment, and an MRI of the brain which came back completely normal. Started taking Keppra, and have been terribly grumpy and agitated. Does anyone else take Keppra? What are your...
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 lb34
ASPARTAME ANYONE???Created by lb34at5/29/07 - 9:24 pm|1063 Views|36 Comments
Posted To: Diagnostic Dilemmas and Testing
Wondering if Aspartame also known as nutrasweet, (common sweetener in sugar free sodas and sugar free gum) is a trigger for anyone?...
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