Hi, I am going into hospital for a video telemetry at the end of the month.  I have been told that I have to HAVE someone sit with 24/7 to monitor if I have any seizures and thereafter alert staff.  I have absense seizures, simply zone out for a...

Hi everyone!

Hi,  I just joined this thing, so i'm not sure how this all works, but here goes...

I'm originally from Maryland and I was diagnoised with a brain tumor a year ago. At that time I was living with my dad while I was attending a trade school. After this happened I went down to live with the rest of my family, my sister and my mother, but...

Hello everyone, I hope everybody had a great christmas/new year! I had a question about Sleep Apnea causing epi. on the day after christmas I had another tonic clonic which was so violent that I dislocated my right arm, anyway,...

I just heard about a new method of diagnosing seizures when EEGs fail and was curious if anyone has tried it. You can read more about it at this website: http://www.sciencedaily.com/videos/2007/0312-pinpointing_problems_in_the_brain.htm   I'm...

Truly, can someone undergo EEGs and they be "normal" and still have epilepsy? I've been on Topamax since September, at a low dose cause I can't tolerate high dosages, and I've been seizure free (as far as I am aware) since November.  So,...

Update - Finally got my PCP to refer me to Neuro.  They've done assessment, and an MRI of the brain which came back completely normal.  Started taking Keppra, and have been terribly grumpy and agitated.  Does anyone else take Keppra?  What are your...

Has anybody else every experienced a seizure caused by intense abdominal cramping?

I am new to seizures.  It is amazing how events in your life change what you read about, research and study, and what websites you join.  I am almost 31 years old, and I had my first seizure about two weeks ago.  Actually, I had two seizures the same...

Hi, My name is Mari(Mary) I am new to this forum. I just had my first appointment with my Neuro on Tues. Am scheduled for EEG on the 15th. Here is my story. On Oct. 17 at around 6:00am, I was starting to make our bed. All of...

I was diagnosed with Epilepsy when I was about 13 or 14. I am 32 now. My siezures have always been about the same. I have had two Grand Mal siezures. My siezures occur on the right side of my body and I am aware of everything around...

Hi everyone,

HI im now 18 i started having seizures on the 5th may 2006 my first was in school i was on a bench i was really cold and it was near the end of the first break i remember going to sit on the bench thats about it. whilst sitting on the bench i passed out...

Hi, my name is Lisa and this is my first time posting.  I am 39 years and a mother of two daughters.  About 18 months ago, I had two experiences of deja vu.  After the deju vu feeling passed, I had a strange feeling...

Almost a year ago my boyfriend had several massive seizures in his sleep WHILE taking his depakote. He went into the doctors to be observed, they did a cat scan, and found a lesion in his brain. We've gone through test after test, seen many different doctors,...

Hello Everyone,  

I'm a teacher for students with disabilities and My "seizures" started a couple of years ago but are differant from any of my students. They all have the absent or grand mal seizures and are pretty unconcious where i tend to stay pretty aware...

Hi, I have never posted on here before but I am a bit freaked out and everyone seems to know so much I was hoping someone could help me! I was diagnosed with Juvenile myoclonic epilepsy almost 3 years ago (I am 23 now). I had been...

Hi! My name is Ashley and I just joined. I have some questions regarding a vEEG I had. Initally, I had a MRI and EEG done, both came back normal when I started having what they thought were possibly absent seizures. Frustrated, the doctor I followed...

I've run into a bit of a dilemma with my medical records. I was diagnosed with some form of childhood epilepsy when I was a kid. I've now been off medication for over 10 years and am attempting to obtain some information on my childhood condition. My...

Hi Everyone,I know this is a touchy subject but I need more info on it if anyone has experience of this. The docs have told me they think my 'episodes' are non-epileptic because I had one on EEg and it showed no abnormality...

black out/seizure/ anxiety/depression/bipolar/PTSD ??????????? I first had a blackout/seizure when I was 16, I had just walked past a group of lads who were calling for me and my friend to talk to them, we went into a chipshop and that is where I...

In May of this year my 14 yr old daughter got hit in the face with a dodgeball at school and ended up having a mild concussion. Since that time she's had pretty severe headaches. After about a month of school she started having these "episodes" where...

I have had epilepsy for eleven years now. God, it sounds like so long when I say that. Anyway as with most people's seizures my doctor can give me very few answers about the cause of my seizures. I sure get a lot of "I don't knows"...

First, sorry for my bad English my story starts like this as 17 years old "boy" my friend acidently shot me in the head (yes I'm talking about gun) after successful surgery doctor subscribe me to take phenobarbital for 5 years now...

Ok I'm going to give a short version and a long version, as the long one might be too long for many... SHORT: -I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny...

We took my son (5), to a neuro therapyst who uses the SCIO machine. It uses bio energy to diagnose thousands of problems in the body. It can heal as well. The machine diagnosed my son with epilepsy due to chromosome 6 abnormalities....

I am afraid to loose my Driver's License. Nobody I live with understand what I could be going through. My dad is actually kicking me out of the house. My mom suffers from severe depression. Enough self-pity, but I really don't know what to do. Here are my...

Does this happen to others?

I am seeing a Neuro who seems to know nothing about epilepsy, , my partner - who has epilepsy - has heard him say many things that are incorrect about epilepsy.  The Neuro sent me for an EEG and the nurse conducting the EEG turned round and asked me if...

My daughter is 15 yrs old and has recently seen a pediatric neurologist specialist. The have done a sleep deprived EEG and it came back normal. I know that this is common and most say that unless you are having a seizure at time of EEG then it will not show...

Hi I am suspecting that my boyfriend is having seizures, but I am not sure if he is. He has no history of epilepsy or any other seizure disorder. However, I noticed a peculiar pattern in his behavior. Every so often (at a distance of several...

Hello! I am not new to epilepsy (I've had tonic clonic seizures for like 8 years), however, this is puzzling me. My boyfriend has had full or partial body jerks as he's falling asleep now for most of his adult life and it's never really bothered him so he's...

I returned home the other day from three days of VEEG (video eeg) monitoring.  Having done this several times in the past, with no success, I finally had great results.  I am writing this to stress the need for good neurologists.  My former neuro would...

Hello everyone,

Hello...

Hello, I am a patient volunteering at my hospital on a team striving to improve the safety in the seizure monitoring unit.  Our work is published at the AES annual meeting.  The information gathered helps hospitals all over the world make the VEEG...

Has anyone done a 24 hour EEG with a young kid?  How did it work?  Our last experience with a short EEG was such a nightmare (Owen flipped when she put the electrodes on his head and she made me pin him down, which made it worse and he pulled them all...

how many events/seizures do they make you have while you're in there before they let you go home btw? is one enough? or do they make you have em over and over?

was seen by a new neuro ran down my symptoms discussed that I was having some "altered awareness" symptoms that were bothering me and that perhaps the Topamax wasn't working so well though the loss of consciousness was gone. he,...

I am so unbelievably frustrated by how long it takes to get the healthcare system moving. My dd is 6 and September 13th she had her first seizure. She has had 7 since then. It is hereditary, as I had seizures from 8 to 14. We got...

Hi I was diagnosed with Epilepsy back in March of this year. Took about 5 months before I accepted it. I was always under the impression that a seizure is whenyou drop to the ground and shake.  I had a AVM rupture in 1998. Was started on epileptic drugs,...

Help! In a week and a half I'm having a sleep study done to try to catch one of my nighttime "spells" while I'm hooked up to machines. Long story short, I've been pinballed around with doctors (NOT my choice - personel change, etc.) and my new...