 phidippus
New - They want to drill a hole in my head. Should we have a look?Created by phidippusat7/4/09 - 2:36 am|3 Views
Posted To: Diagnostic Dilemmas and Testing
After 5 years on Lithium for bipolar disorder (it helped my depression and anxiety but not my general mental weirdness), I was placed on Lamotrogine and became depressed and psychotic. When I came off the Lamotrogine, I started experiencing all sorts of...
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 jessica25
New - NON-EPILEPTIC SEIZURESCreated by jessica25at5/10/05 - 3:39 pm|691 Views|22 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi Everyone,I know this is a touchy subject but I need more info on it if anyone has experience of this. The docs have told me they think my 'episodes' are non-epileptic because I had one on EEg and it showed no abnormality...
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 Mikey4
New - Deja vu and EpilepsyCreated by Mikey4at9/6/08 - 4:09 pm|123 Views|10 Comments
Posted To: Diagnostic Dilemmas and Testing
Ok I'm going to give a short version and a long version, as the long one might be too long for many...
SHORT:
-I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny...
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 jenlee...
New - eeg results confusing meCreated by jenlee...at6/30/09 - 4:03 pm|14 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
Hello, I am new to the forum and very confused over my son's eeg. He is 13 with autism and severly mentally impaired. I just got the results to his eeg after he had a seizure last month while on vacation. It was the first seizure that we know of. The results...
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 JMJ
New - Possible Seizures Perplexed and Confused?Created by JMJat6/24/09 - 1:13 am|52 Views|6 Comments
Posted To: Diagnostic Dilemmas and Testing
Arrrgghhh, I am very irritated and perplexed after my doctor's visit
today. I'm not sure what to think or what to do, or what or whom to
trust?
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 lisab
New - Deja vuCreated by lisabat4/5/05 - 5:00 am|2907 Views|58 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi, my name is Lisa and this is my first time posting. I am 39 years and a mother of two daughters. About 18 months ago, I had two experiences of deja vu. After the deju vu feeling passed, I had a strange feeling...
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 Erik J
New - Sound like an abnormal EEG?Created by Erik Jat4/15/08 - 4:42 pm|77 Views|8 Comments
Posted To: Diagnostic Dilemmas and Testing
I really want to keep this short as my story is extremely complicated, in a nutshell i was misdiagnosed with tics and my first neuro. was the doctor from hell. I had my second EEG today, and im starting to wonder if massive facial twitches are normal...
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 rokchik1
New - Temporal Lobe Epilepsy: what does it feel like?Created by rokchik1at6/6/09 - 10:00 am|47 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi Everyone!
This is my first time on this site and I am glad to have found you all! I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the...
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 raizam
New - Confused with my new EEGCreated by raizamat6/2/09 - 4:04 pm|16 Views|2 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi, my child of two years was diagnosed with Agenesis of the corpus callosum on july 2007. Normally all of his EEG's said that he have an hypsarrhytmic pattern. But on the EEG that was due on May I do not understand what it said and also they do not include...
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 sherri07
New - I am new, had a EEG,Please, can anyone help with my resultsCreated by sherri07at5/3/09 - 1:41 pm|21 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
My first seizure I had was when I was in 5th grade. In high school I quit my meds. I knew it all,lol. I m older and have been having problems. My family doctor sent me to a nuerologist. Here are my results of my EEG, can someone please tell me what it...
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 TheTao...
New - Do I Have Epilepsy?Created by TheTao...at6/23/09 - 5:58 pm|6 Views
Posted To: Diagnostic Dilemmas and Testing
2 years ago I had a pretty scary stress induced panic attack/seizure. And though I wound up in the hospital for it I never had it diagnosed. Recently I told my sister about it and she suggested that I might have a form of epilepcy.
However...
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 elly
New - Myoclonic jerks occuring in the evening?Created by ellyat11/1/07 - 10:10 am|445 Views|18 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi, I have never posted on here before but I am a bit freaked out and everyone seems to know so much I was hoping someone could help me!
I was diagnosed with Juvenile myoclonic epilepsy almost 3 years ago (I am 23 now). I had been...
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 Bellab...
New - Strobe Light EEG - ProblemCreated by Bellab...at6/17/09 - 7:43 pm|9 Views
Posted To: Diagnostic Dilemmas and Testing
My 2 year old went in for an EEG yesterday that included a strobe light for suspected petit mal seizures. However, the strobe light really horribly, horribly effected me. Immediately, I was terribly nauseous to the point I almost asked them to stop the...
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 Bellab...
New - Strobe Light EEG - ProblemCreated by Bellab...at6/17/09 - 7:43 pm|2 Views
Posted To: Diagnostic Dilemmas and Testing
My 2 year old went in for an EEG yesterday that included a strobe light for suspected petit mal seizures. However, the strobe light really horribly, horribly effected me. Immediately, I was terribly nauseous to the point I almost asked them to stop the...
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 adamss...
New - Is this a seizure?Created by adamss...at6/16/09 - 1:16 pm|10 Views
Posted To: Diagnostic Dilemmas and Testing
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 honey0805
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 rachga...
New - Epilepsy Monitoring ClinicCreated by rachga...at6/9/09 - 7:53 pm|35 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
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 tess l...
New - How often should we undergo EEG?Created by tess l...at5/15/09 - 2:37 am|38 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi
I am new on this site. I am Tess and i have a 7 year old boy who was diagnosed to have epilepsy at age 2. He had EEG and CT Scan at that time. since then the doctor did not advise us to undergo EEG or any tests again. Now that my child is 7 years...
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 criscobr
New - Questions about partial seizures caused by heterotopia in both oc...Created by criscobrat4/6/09 - 9:07 pm|80 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
Almost 4 years ago I was diagnosed with partial non-convulsive epilepsy. As a child I was thought to have had turrets, but the turret like systems cut back at 8. The panic attacks (later found to be partials) started when I was 16 but I thought they were panic...
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 lb34
New - ASPARTAME ANYONE???Created by lb34at5/29/07 - 9:24 pm|1013 Views|31 Comments
Posted To: Diagnostic Dilemmas and Testing
Wondering if Aspartame also known as nutrasweet, (common sweetener in sugar free sodas and sugar free gum) is a trigger for anyone?...
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 morgue...
New - Just Found Out I Could Have EpilepsyCreated by morgue...at6/6/09 - 12:46 am|31 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
Yesterday i spoke to the doctor about some strange things that have been happening to me in the last few months, such as seeing things, phantom smells and having no control over my hands for little points in the day.
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 rokchik1
New - Temporal Lobe Epilepsy: what does it feel like?Created by rokchik1at6/6/09 - 10:00 am|10 Views
Posted To: Diagnostic Dilemmas and Testing
Hi Everyone!
This is my first time on this site and I am glad to have found you all! I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the...
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 pip84
New - Do you think I have epilepsy?Created by pip84at6/6/09 - 3:53 am|11 Views
Posted To: Diagnostic Dilemmas and Testing
Hi
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 pewter
Got result from last MRI - anyone know?Created by pewterat5/26/09 - 1:06 pm|36 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
So, had a strange thing happen in January. Not like my other symptoms and commented these to my Neuro in February. Neuro ordered a MRI to rule out a possible stroke and so had MRI w/or contrast on Feburary 26th.
Haven't heard a word from anyone...
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 galaxymel
Had first EEG and have questionsCreated by galaxymelat5/30/09 - 5:33 pm|20 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
Hi everyone, I was having symptoms of cognitive problems (memory issues) terrible migraines and seeing things, like shadows of people etc..
my neurologist ordered me to have an EEG and the test was abnormal. The report said it was mildy abnormal due...
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 jmomsa
15 Month Old: Possible Atonic Seizures?Created by jmomsaat4/23/09 - 7:22 pm|19 Views|4 Comments
Posted To: Diagnostic Dilemmas and Testing
Here's the story:
Three weeks ago my otherwise healthy and normal 15 month old son dropped to his knees, turned blue, arched his back, stopped breathing, and passesd out. He came around within 30 seconds and started breathing. We rushed to the ER (actually...
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 Rodion
Aura Created by Rodionat5/28/09 - 4:01 am|28 Views
Posted To: Diagnostic Dilemmas and Testing
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 srchtt3
Seizure disorder and epilepsy, what is the difference?Created by srchtt3at3/2/09 - 9:47 pm|165 Views|13 Comments
Posted To: Diagnostic Dilemmas and Testing
What is the difference between a seizure disorder and epilepsy? I had a bad wreck almost four years ago now and for the longest time the dr.s kept calling my seizures, actually the diagnosis was, seizure disorder. Now after the later video eeg they are diagnosing...
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 pRushb...
Frequency Following Response (FFR) And Photosensitive Epileptics ...Created by pRushb...at5/27/09 - 8:37 am|6 Views
Posted To: Diagnostic Dilemmas and Testing
I've been reading up on the power of the mind, like collective conscious stuff and Law Of Attraction to gain control of your life and environment, success, etc.
I want to use an accompanying CD with a book I'm reading. It gives and Epilepsy warning...
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 theres...
Is it possible to have seizures while remaining conscious? PLS HELP!!!Created by theres...at11/21/04 - 4:19 pm|1845 Views|30 Comments
Posted To: Diagnostic Dilemmas and Testing
I've had these "seizure-like" episodes for 5 months now. The first one I had started while I was sitting at my desk at work and I had an aura for about an hour where I got this zig-zag line in front of my eyes and I couldn't...
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 paigeg
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 Hobie
Should I have a Video EEG?Created by Hobieat5/3/09 - 11:37 pm|58 Views|6 Comments
Posted To: Diagnostic Dilemmas and Testing
I had my first ever grand mal in Feb of this year, at age 32, so this is all new to me. I've had MRI's, MRA, 1 hour EEG, and 24 hr take home EEG, all were normal, and now my neuro wants me to have a video eeg in the hosp for as an in-patient for...
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 shanno...
First EEG, hoping someone could help with resultsCreated by shanno...at5/20/09 - 10:48 pm|17 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
I'm waiting for an appointment to see a neurologist who specializes in epilepsy. The one I have now just gave me the results and said, "yeah, looks like you're having seizures," and put me on Lamictal. I was hoping someone might be able to shed...
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 stephi...
Second EEGCreated by stephi...at5/19/09 - 12:58 pm|11 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
I am 29 and was diagnosed with Epilepsy in November of 2007 after a prolonged EEG. Since then I have moved and am on my 3rd Neurologist in this area. I have another EEG scheduled for this week. I was told by my other two physicians that I would not have another...
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 MEDICA...
JAMAIS VU (where are you?) Created by MEDICA...at5/18/09 - 7:56 pm|12 Views
Posted To: Diagnostic Dilemmas and Testing
Jamais vous, Jamais Vu? where are you Jamais Vu?
Maybe someone out there ought to write a movie and call it that? Way too many Deja Vus out there it gets all the generic celebrity symptom press name.....like everyone out theres heard and...
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 Bedge
Simple Partial Sezuires Explained?Created by Bedgeat10/22/06 - 7:27 pm|1689 Views|11 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi!
For those out there who have simple partials, are you able to explain how you feel to me? I am trying to understand if I am having anxiety about complex partials, or if I am having simple partials - or if its a bit of both!
I...
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 tessasmom
Abnormal CCTVCreated by tessasmomat6/19/04 - 5:16 pm|1218 Views|10 Comments
Posted To: Diagnostic Dilemmas and Testing
My 7 yr old daughter just finished 48 hours of CCTV with inconclusive results. She has had Absence Epilepsy, but has been seizure/meds free for 8 months. During hyperventilation at her last office EEG, she had six varied types of...
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 barn619
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 Bedge
Smoking ..Created by Bedgeat10/5/06 - 5:06 am|1015 Views|15 Comments
Posted To: Diagnostic Dilemmas and Testing
Me again ..
I was just wondering if anyone has seen a increase of activity or severity when they stopped smoking (ciggis) or similar.
Ta! :o)...
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 Lovebug
I am afraid they will take me off my medsCreated by Lovebugat4/9/09 - 5:49 pm|46 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
I was given the diagnosis of epilepsy a year ago after a fall the lead me to go my doctors office. Before I knew it I was in the hospital with a neurologist standing over me telling me that my life was about to change and I had epilepsy. I had an EEG and...
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 Mitch
Had another seizure after one year, should I even bother to go to...Created by Mitchat5/7/09 - 7:52 pm|34 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
I'll keep it short for you all, I had 2 suspected complex partials last year, but had no witnesses so it was just an "educated guess" Well, last week, 8 hours after giving blood, my own personal hell resumed from it's remission. Anyways, I had a Complex partial...
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 Daze-o...
In hospital having VEEG nowCreated by Daze-o...at5/6/09 - 8:26 pm|60 Views|5 Comments
Posted To: Diagnostic Dilemmas and Testing
Massively bored here. I'm on Day 3. Having lots of floaty moments that the EEG will not pick up.
I made the mistake of pushing the button for one of those small partials... what a pita. SOOOO I didn't push it again until today and...
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 allie05
EEG seizure?Created by allie05at5/4/09 - 9:43 pm|5 Views
Posted To: Diagnostic Dilemmas and Testing
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 mikec
My 2.75 year old sonCreated by mikecat2/4/09 - 1:37 pm|41 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
Hi There,
I am brand new to this site, and relativley new to seizures.
My son, who is now almost 3 years old, had his first seizure in May of 08. It was deemed febrile. He was alone in a room and I heard a horrible sound, when we found...
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 JanersM
possible seizures?Created by JanersMat5/3/09 - 3:43 am|14 Views|1 Comment
Posted To: Diagnostic Dilemmas and Testing
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 Mediev...
MRI shows evidence of febrile seizures--questionCreated by Mediev...at4/29/09 - 6:20 am|22 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
My teenage daughter's MRI showed evidence of febrile seizures, but she has never had a febrile seizure. Could this sometimes be mistaken for another type of seizure and if so, which type?
She has had several seizures since she was 7 years old. ...
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 elvisl...
Non-elileptic seizuresCreated by elvisl...at4/30/09 - 3:05 pm|7 Views
Posted To: Diagnostic Dilemmas and Testing
I had an EEG a couple of years ago that identified me as
having Partial Complex Seizures. Then in October I had a 10 minute
Generalized Tonic-Clonic Seizure at a Pizza Place. In January I had
another seizure while holding on to my epileptic finacee...
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 TheHam
Undiagnosed seizures or "fake" seizures?Created by TheHamat12/4/08 - 8:15 pm|103 Views|8 Comments
Posted To: Diagnostic Dilemmas and Testing
Hello, and thanks for reading this! I feel silly asking for help, and am half expecting no response.
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 Avalon
Very Scary Undiagnosed Symptoms-Dr.says TLE. PLEASE READ!Created by Avalonat7/12/06 - 7:52 am|1565 Views|18 Comments
Posted To: Diagnostic Dilemmas and Testing
Hello-
I'm new to this site and found it in hopes that someone might be experiencing the same things I am.
In January or just before, I began having problems comprehending what I read or follow a lecture or story line. I'm 32...
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 MEDICA...
SWINE FLU's Progressive SYMPTOMS to look foward to-seizures? Created by MEDICA...at4/28/09 - 8:10 pm|9 Views
Posted To: Diagnostic Dilemmas and Testing
Will people with swine flu have their symptoms progress into seizures? Seizures related with the flu arent all that common. I suggest for more information regarding swine flu you can go to www.cdc.gov assuming that is if you can get through the thousands...
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