 |
|
|
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Diagnostic Dilemmas and Testing
Register to Participate
 aj85 |
Nedlog New - No More Options - SCN1A Mutation
This is my first time writing on this website, and i'm hoping to get some feedback and opinions from people.
First, a little background...
My son had his first febrile seizure a week after his first birthday. Shortly after that, he started having non-febrile...
|
414NZA New - R.E. Marijuana Causes Seizures
I was reading an old forum from '08 about someone having seizures from smoking marijuana. A lot of people seemed to believe that weed stops seizures, so I thought I'd join and post a forum based on my experiences. I, for one, quit marijuana, after I started...
|
SanjayY New - Unusual Seizure Cycles
My son is 14 nonverbal, Autistic. He has had grandmal seizures since the age of 4. We have yet to get an explanation for the unusual pattern of his seizures. We have yet to get control on his seizures in 10 yrs.
|
Jodie ... New - Not responding to meds? Is it celiac disease?
If you have been just diagnosed, eeg's and other tests are all normal, not responding to medications, have extreme fatigue, digestive issues that cannot be explained, joint pain, and other symptoms have your doctor test for celiac. I was diagnosed with...
|
 BamaNaren New - MRI results - what does this mean?
My daughter has temporal lobe epilepsy. She went in today for the results of a routine check-up MRI.
|
columb... New - Help Others with Epilepsy!
Hey everyone,
I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of their health. Our goal is to provide an opportunity for people...
|
Dori New - Tell me about your experieces with a pre surgical grid
My 13 year old daughter is a candidate for surgery. She has complex partial seizures that at times generalize into hours long status seizures that are life threatening. She's already undergone quite a bit of testing and her seizure focus and speech center...
|
 caandahl New - left temporal and excess beta range activity in EEG
I went to the records department at childrens and got a copy,I called the developmental pediatrician and she is going to consult w/neuro.
it said he had frequent discharges that increased during sleep but was more significant on the left hemisphere in the...
|
krc90 New - Nervous and Scared about Epilepsy
Hello..
I am writing to you all today because I am very nervous about something. It may seem funny, or stupid, or crazy, I don't know. But I feel like I can't ever find an answer that will ease my mind.
I am a Canadian 19 year-old female, in a competitive...
|
topbanana New - Phase reversal - what is is?
Hi,
I am just wondering what "phase reversal" means on my child's abnormal EEGs. She has complex partial seizures always with spikes and sharp waves and phase reversal over P2-P4. I know it's the parietal lobe location but I cannot understand...
|
rokchik1 New - Temporal Lobe Epilepsy: what does it feel like?
Hi Everyone!
This is my first time on this site and I am glad to have found you all! I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the...
|
 allegr... New - Autism and Epilepsy???
Okay, so I recently got diagnosed with the autism spectrum disorder, Aspergers. I already have epilepsy but I'm trying to more understand the link between epilepsy and autism. Could you please give more information? Thanks :)
|
 rosema... New - New to this
Hi, I don't know if anyone can help me but here goes. In August of last year I woke up with a headach on the right side of my head. I went and got myself a glass of juice and when I finished it my eyesight was like looking through a funhouse effect. ...
|
Motsy802 New - New here. Can someone help me in interpreting my son's EEG?
Hi, I'm new to this website, and I could really use some insight if you don't mind. My son is 4 years old, and two years ago he had a febrile seizure. It was a grand mal, and he had been running a fever most of the day. When we go to the hospital they discovered...
|
 admin |
crysta... my 10 year old
i have a 10 year old .we now live in montana but to months before we moved here she started telling me she felt funny . we didnt think much about it .well we moved to montana things got worse . we now call them episodes .she will drop whats in her hands ,she...
|
rkapoor94 Sister had a seizure
Hello,
My sister recently had a seizure. She is 13. She just fell unconscious and she made these weird breathing sounds. I think mucus was coming out of her nose and mouth. She bit her tongue and she was seizing on the floor. It lasted for about 15...
|
djneogi |
destro... Why do they think I have epilepsy?
I have suffered from depression and anxiety for 10 years (I am 22) and, after several antidepressant medications didn't help or made me worse, I was sent for a psychiatric assessment for bipolar disorder (manic depression). Although the psychiatrist diagnosed...
|
flgal2011 |
 Dutchee EEG with Nasopharyngeal Electrodes
Hi!!
Did anyone have a EEG with Nasopharyngeal Electrodes inserted?? I'm going to have one here in the Netherlands, but can't find anyone here who had one yet to tell me what it is like and if some epileptical activity was found. So please do respond if you...
|
bwinter is this a simple partial seizure?
I am a 19 year old female, since I was about 14/15 I have been suffering from something a bit strange and difficult to describe.
The episodes come on completely randomly - yesterday I had just sat down to do some work at my desk when it came on.
|
 kristi... Not epilepsy but seizure activity...?
Alright. I saw my neuro the other day, and he said there was definitely seizure activity in my brain, but he can't diagnose me with epilepsy and he wouldn't because I haven't had another seizure. We talked about my migraines and he gave me Vimpat for them....
|
bjansson 8 month old baby stops breathing while crying and then has a seizure
Natalie is a very advanced 8 month old baby girl with no developmental delays, no trauma, good attitude and is actually coming along at an advanced rate. She is very strong, held her head up remarkably well by 2 weeks of age, has other children to play...
|
jenruns Seizures or Headaches
I hope someone can help....Im a 30 year old female and have been
dealing with these episodes for four years now and looking for some
answers. They usually happen in the morning and sometimes at night. I
become very tired, feel shaky inside, cant...
|
Mikey4 Deja vu and Epilepsy
Ok I'm going to give a short version and a long version, as the long one might be too long for many...
SHORT:
-I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny...
|
AlexG First Siezure
Last week thursday i aparently had a siezure at college walking towards the classroom door i fell to the ground classmates say i turned purple and blue and started shaking. I have no memory of this at all. I remember walking towards the door...
|
donnaas Well Water & seizures
Looking for any and all info in regards to seizures connected w/ well water. Or possible changes in mineral composition in a persons body that has evoked or increased seizures. Any info in regards to certain med that deplete minerals? (Specific info...
|
 malnwa... Petit Mal Seizures or something else?
I am in a strange situation with doctors. I have been seeing my Neurologist for almost 2 years now and we have conducted batteries of tests to rule out diseases such as Multiple Sclerosis, Myasthenia Gravis, Epilepsy, Lamber-Eaton Syndrome, Sjogren's Disease....
|
djraymx Dravet Syndrome Help please.
anyone that can help me out with any information about Dravet Syndrome alternative ways of treating would be greatly appreciate it. 7 Years old daughter just got diagnosed. she has been on all the meds already and none have helped. about to try Stiripentol...
|
Masterjen sleep deprived EEG nap or no nap before?
Hi, I have a sleep-deprived EEG coming up, and am told I can nap for 4 hours prior to the test. Anti-seizure medications are somewhat sleep-inducing when we're tired, so I would love the nap. HOWEVER, am I potentially blowing the test if I nap? I'm desperate...
|
Krs107 reaction to strobe lights
My son is 20 months old, and has had two grand mal seizures recently. When he was a baby (well I guess he's still kind of a baby lol) he used to have these staring spells. His eyes would open really wide and he would stare into space, not blinking or moving...
|
jenruns Not sure what to think
I hope someone can help....Im a 30 year old
female and have been dealing with these episodes for four years now and
looking for some answers. They usually happen in the morning and
sometimes at night. I become very tired, feel shaky inside, cant...
|
 pgd Does right epilepsy med improve cognition, perception a little?
Expectations - Does the right epilepsy med actually improve cognition, perception a little? (Better vision, better hearing, better communication). Your view? Or, does the right epilepsy med tend to reduce the number of seizures but have no impact...
|
callio... |
Anna M... Struggling undiagnosed 19yr old
Hi everyone,
this is my first time ever on this site but i saw other peoples posts and was hoping someone on here has gone through what I'm suffering with. Sorry for the length.
|
85anne Jerks on awakening...
I know someone who sometimes has jerks on awakening. The jerks are invisible but she feels them only inside the arms/shoulders. Sometimes in the legs.
If the light from the sun are strong and it blows outside and the light is shining sharply on the tabel...
|
Thea319 Advice
Hello everyone! Let me start off by obviously I am not making any decisions without speaking with a neurologist, however I would just like some advice/opinions by people who are living this.
|
 gacomeau Lamotrigine affects EEG results, right?
I recently saw a new neurologist because I've moved to a new city. My first impression is mixed, although I want to give him the benefit of the doubt.
Amongst other things, he openly questioned my former neurologist, which I was quite pleased with. ...
|
SiyBear Electrical Shock in Head
I was unable to respond to the intitial post on Electric shock in Head so I started another one so that I could respond. I too have had the feeling of the electric shock in the left side of my brain. At first I was unable to describe the feeling. I...
|
kiki_m... need help feeling so lonely
hi my 8 yr old girl has been having seizures for 3 yrs now. She can go months without having any and then have 2 or 3 in the space of 3 weeks. She has had 2 EEGs and ECG and also a sleep deparavtion one ( sorry about the spelling) which has all came back...
|
 bandcher seizures and low heart rate
Hi, I was at the doctors in Feb. for an EEG , and as usual they had me hooked up to a heart monitor. They had the monitor set for 60 beats. I am a 23 yr. old female, and they would say to me that my rate should be from...
|
natzter What's wrong, was it a panic attack?
Hello there. I am new to this but would like to ask a question, so please excuse me if I use the wrong terms etc.
|
pgd Symptoms which may look somewhat like epilepsy but are not
Symptoms which may look somewhat like a type of epilepsy but are not include: ADHD Inattentive, central auditory processing disorder, Tourette, paroxysmal dyskinesias; some symptoms of brain injuries such as concussions / sports concussions; nystagmus,...
|
 lisab Deja vu
Hi, my name is Lisa and this is my first time posting. I am 39 years and a mother of two daughters. About 18 months ago, I had two experiences of deja vu. After the deju vu feeling passed, I had a strange feeling...
|
pgd Why are memory challenges often most associated with Alzheimer's,...
General discussion question - Why is the topic of memory in the USA most often associated perhaps with Alzheimer's, not the many, many epilepsies? It seems like the major association of memory challenges is with Alzheimer's, not the many epilepsies (or...
|
pgd Why is absence epilepsy not called attention deficit disorder?
General discussion question - Why is absence epilepsy - year 2011 - not called attention deficit disorder / a deficit in paying attention?
|
alw3484 Just diagnosed with Hetertopic Gray Matter
Well, first of all this is my first time on here so I hope this is right! I was recently diagnosed with Hetertopic Gray Matter. I go to see my neurologist in a few weeks but I thought that maybe I could get some insight before I go.
|
forAugust |
 bevs sleep deprivation eeg
hi every one can any one tell me what a sleep deprivation eeg is and what it entails? i know i should of asked more questions when i saw my neuro but it was one of those moments when everything goes woozy cheers bevsx...
|
james Do i have epilipsy??
hey guys
big question i know, seems like yo gotta go through a lot of scans and doctors before they can tell you for sure!!!
anyway the topic of de ja vu came up in discussion with a group of my friends in college and i said that...
|
 Donnamrk how anti depressents increase seizures cause status and lead to s...
Did you know that you can walk around for twenty five years with partial epilepsy that has not been treated and then be placed on an antidepressent and suffer psychosis. It happened to me and the mania became an obcession. I know...
|
 Peaches78 normal eegs....i feel like i'm going crazy
Ok I know this is long, but I really need some help figuring this out. I started having weird symptoms in May of last year. I thought they were panic attacks so I didn't pay them much attention, even though I knew they didn't really...
|
lisab Deja vu
Hi, my name is Lisa and this is my first time posting. I am 39 years and a mother of two daughters. About 18 months ago, I had two experiences of deja vu. After the deju vu feeling passed, I had a strange feeling...
|
 vanill... Prior to a sleep-deprived EEG (help)
Hi, I will do a sleep deprived EEG friday, I never did this. I don't know what to do thursday. Can we eat in the night before? I know we can't take caffeine, but can we take cafeine-free diet coke? My EEG is at...
|
theres... Is it possible to have seizures while remaining conscious? PLS HELP!!!
I've had these "seizure-like" episodes for 5 months now. The first one I had started while I was sitting at my desk at work and I had an aura for about an hour where I got this zig-zag line in front of my eyes and I couldn't...
|
 jj84gal Sleep Apnea causing epilepsy?!
Hello everyone,
I hope everybody had a great christmas/new year!
I had a question about Sleep Apnea causing epi.
on the day after christmas I had another tonic clonic which was so violent that I dislocated my right arm, anyway,...
|
 ianlaw How long can sensory simple partial seizures last?
Hello,
I've had epilepsy for 10 year. I had 7 seizures without warning and with direct loss of consiousness. Thanks to medication I've been free of seizures for 7 years until last week.
Unlike the earlier seizures I felt it coming...
|
 Cece55555 I Feel Like I'm Losing My Mind & I'm sick of being sick
About 2 years I was at work and feel into a Gran Maul my first seizure ever, I had 4 more that week my life has fallen apart ever since. I am on my 3rd neurologist, I've had countless EEG even the 72 hour test they do when that hook...
|
 Essie Please help with SCIO (Quantum Energy) diagnosis and Miracle prom...
We took my son (5), to a neuro therapyst who uses the SCIO machine. It uses bio energy to diagnose thousands of problems in the body. It can heal as well. The machine diagnosed my son with epilepsy due to chromosome 6 abnormalities....
|
 missy_hp Does anyone have rapid heartbeats before a seizure??
I am a 26 year old female and have had seizures for the about
6 years now. The cause is unknown. Every month or so I go
through "episodes" of rapid heartbeats. After a day or two they
stop and don't start again for another month....
|
knorto... pseudo seizures / non-epiletic seizures
I need as much information on dealing w/ pseudo seizures as well as "regular" seizures. The meds for "regular" seizures is not controlling them completely. All tests (EEG, MRI, CT Scan, blood work) shows no seizure activity. ...
|
 Christ... Different Seizure Types with JME?
Short and to the point:
I was recently diagnosed with Juvenile Myoclonic Epilepsy, something that took me by complete surprise on account of the fact that I'm twenty. Still, I took the diagnoses in stride, and decided to come out...
|
 Bedge Simple Partial Sezuires Explained?
Hi!
For those out there who have simple partials, are you able to explain how you feel to me? I am trying to understand if I am having anxiety about complex partials, or if I am having simple partials - or if its a bit of both!
I...
|
theres... Had SZRE while on EEG, results normal. need advice PLEASE :(
Tonight I went to see another neurologist for a second opinion. I explained the symptoms I have been having lately. I have seen this neuro twice before, but my symptoms have gotten a little worse lately, as I have begun...
|
 seekin... Undetectable Siezure Activity on Video EEG yet episodes experienced?
has anyone ever gone thru a 96 hr Video EEG, have "episodes" or "events" and yet nothing showed on EEG?My hubby is in Hospital all this week for 96 Hour Video EEG. He experienced an episode the other day (exactly...
|
 Avalon Very Scary Undiagnosed Symptoms-Dr.says TLE. PLEASE READ!
Hello-
I'm new to this site and found it in hopes that someone might be experiencing the same things I am.
In January or just before, I began having problems comprehending what I read or follow a lecture or story line. I'm 32...
|
vanill... Search people with Temporal lobe epilepsy ....
Hi, I am 30, and suffer from depersonalization and derealization since mt cesarean, 2 years ago. I have memory and orientation problems, as well as depression. I see a psychiatrist...
|
 Jorge ... DOOSE SYNDROME
Hi! my 5 yr daugther was diagnosed with Doose Syndrome (Myoclonic Astatic Epilepsy). Can anyone help me in getting information about this syndrome? It seems that there is not too much information or I am not looking in the correct...
|
kyliec... 48 hour sleep deprivation test & tips for staying awake
I fainted, and they are testing me for epilepsy.
Firstly the neurologist said that I will need to have a 24-hour sleep deprivation EEG. Then I had a regular EEG test which showed that I had no signs of epilepsy. He then decided that...
|
 lrshaw EEG & Tegretol
I was diagnosed as bipolar Dec '06 & my doc put me on Tegretol & Clonazepam. I'm scheduled for an EEG Jan 19-22 to (hopefully) find out if what I had was a seizure. I called my neuro to find out if either drug would interfere w/the...
|
 vtec what to do?
Hi, I am very new on here. Bear with me if my post may be too long but I am really confused.
Recently, I have been diagnosed with Social and Panic attacks. The doctor and therapist strongly believe that my anixety is the source...
|
jjbeck419 CP and EEG results.... scared to death :(
Hi all. I have a 19 MO w/ mild to moderate rt hemi CP ( effected on left side).
Her speech and language are above average for her age. And her cognitive abilities are pretty up there for her age, NO MR. It is just her left side where...
|
Bedge I think it's all over ...
Hi Guys,
I'm back. Have been a bit quite latley. Not sure if I belong here any more.
Well, I had my 5 hour VEEG and then a 5 day amulatory EEG. Results came back normal. So I am still left with my inital 20 minute EEG that came...
|
val31178 2 1/2 year old, looking for answers.
I just wanted to get some input from people here who may have some insight. Until my daughters neuro appointment next Friday where I can ask her these, I would see what others think.
|
msutrack Whats your experience with Comprehinsive Epilepsy Centers?
My husband has been referred to Duke for an initial evaluation to see if we want to go ahead with the in-house comprehinsive testing. Thing is, Duke is out of network for our ins. We are in network for Emory or Winston-Salem Univ Baptist Med Center. I am...
|
Molloyl |
tlh64 "Driving Response?"
Hi all.
There is a phrase I would like the definition of. It is "driving response". It is found in my EEG report and is in the section relating to the strobe light part of the EEG. I know that this part of the test is to determine...
|
 Steph618 "My first VEEG"
Hey it's Steph back online.I need some advice because I have to be sleep deprived FOR 2 DAYS STRAIGHT!!!!!!!!!!SEND SOME FEEDBACK PLEASE THANX :)
...
|
jc-32 "Not Normal" Strange Symptoms, but dr still call it seizures
I'm a teacher for students with disabilities and My "seizures" started a couple of years ago but are differant from any of my students. They all have the absent or grand mal seizures and are pretty unconcious where i tend to stay pretty aware...
|
Masterjen "Standard" seizure pattern??
I earlier posted a message about my seizure description not "fitting" a black-and-white" category, and that (along with a normal 30-min. EEG, during which I was medicated, not sleep deprived and did not have a seizure) my neuro. was therefore considering my...
|
AJGreyson "What's that sound?" "Who's that guy?" and other weirdness.
When I was a teenager, I had a few minor seizures, and then they stopped when my sleep hygiene improved, and 10 years later....
|
Dutchee |
Boo2008 |
 Gracie... 11 month baby girl with myoclonic and atonic, searching for help
I am new to this site. My 11 month old, Gracie has myoclonic and atonic seizures. She was diagnosed with myoclonic in January, treated with Kepra which stopped the myoclonic episodes but then the "head drop" seizures became more prevelant....
|
jmomsa 15 Month Old: Possible Atonic Seizures?
Here's the story:
Three weeks ago my otherwise healthy and normal 15 month old son dropped to his knees, turned blue, arched his back, stopped breathing, and passesd out. He came around within 30 seconds and started breathing. We rushed to the ER (actually...
|
texash... 15 year old daughter having seizures Psuedo or not Psuedo???
Hi all I am new to this site and looking for some insight. My 15 year old daughter started having seizures ( back & neck rigid and full body shaking/jerking) on April 7th. After two trips to the ER and a clear EEG I was told that they...
|
6ander... 15 Year old daughter started seizures in right temporal lobe afte...
After neurosurgery in October she has been experiencing seizures. She is on Clobozan until today they also added carbamazepine. They tell me temporal lobe seizures are difficult to control. Has anyone had experience with this?
|
ribijk122 19 years old and very scared...
Hello everyone, I am 19 years old from Ohio and the first I noticed anything weird was when I was having a panic attack, I was laying down trying to fight it as hard as I could without medication when suddenly my right index finger moved on it's own and scratched...
|
 lilith... |
FarmMom 2 year old uncertain diagnosis
I am confused about whether or not my child has epilepsy and how to proceed. Her symptoms started out with major hallucination sessions lasting up to 30 minutes saying she saw bees (she's 2). An ER visit and tox screen was negative. She continued with seeing...
|
deenacann 2 yr old - questions about causes of seizures
HI there. I have some questions for those with expeirence with absence seizures.
Last summer when my daughter was about 20 months old we noticed that she would move both eyes to a 45 degree angle, always in the same direction to the right,...
|
 sd99re... 22 yrs old. 7 seizures. NORMAL TESTS. No diagnosis? Getting in th...
I have had I think 7 seizures in the last few years. I have had an EEG, MRI, and Cat Scan..but all of those were normal.
#1- Ok...so in April of 2007 I had my first seizure. About 2 weeks before this happened I had a bloody nose, but not that bad.
|
Little... 24 hour EEG w 2 year old
Has anyone done a 24 hour EEG with a young kid? How did it work? Our last experience with a short EEG was such a nightmare (Owen flipped when she put the electrodes on his head and she made me pin him down, which made it worse and he pulled them all...
|
ghuck |
ghuck |
jenna1 3 day eeg
i have been told by the neuro that he would like to do a 3 day eeg. he didn't say but do they normally do that at home or in hospital?Thanks...
|
Melani... 3 Day EEG - Should I start dilantin beforehand?
I had what my neurologist suspects was my first simple partial seizure in March of this year. Since then, I've had one every four-six weeks, and a couple of weeks back, I had two in four days. I never lose awareness or have convulsions; I just get a weird...
|
elicia... 3 day epilepsy clinic study
I have been asked by my neurologist to think about doing a 3 day epilepsy stay at the clinic , I am very uncertain about doing this as I am not sure how this all works, I have been given conflicting reports by several neurologist about what it is they will...
|