 rayraykay
New - Hallucinations and delusionsCreated by rayraykayat7/25/08 - 10:37 pm|47 Views|4 Comments
Posted To: New to Epilepsy.com
Hi, I'm a concerned family member trying to get some info. I'm wondering if anyone has had hallucinations and delusions while taking any certain epilepsy medication. My sister in law has epilepsy and has recently said she has the gift of talking to dead relatives,...
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 chrylbltn
New - Epilepsy/Seizure Caused Hallucinations?Created by chrylbltnat9/10/08 - 11:58 am|56 Views|3 Comments
Posted To: New to Epilepsy.com
I have been reading about the different types of seizures and epilepsy and am pretty sure I have temporal lobe epilepsy (my neuro won't put a name on it yet). I just have a question. I spent a week in a neuro unit going from being just confused to almost a...
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 kwety
New - thinking about surgeryCreated by kwetyat5/24/07 - 8:35 am|3829 Views|61 Comments
Posted To: New to Epilepsy.com
Hi
I'm 29 years old and have a congenit mal formation in my brain. I've had seizures(grand mal until I was 5, then none for 6 years then partial and absence until the age of 20.
Then things got a lot worse I had dozens of partial...
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 Skater...
New - Please give me your input on my 9 year old son's symptomsCreated by Skater...at11/4/09 - 5:10 pm|28 Views|6 Comments
Posted To: New to Epilepsy.com
My 9 year old son has Asperger's. His doctor tells me that this elevates his risks of comorbidity which could include seizures. Last year his teacher's noticed he was having many staring spells during school. I noticed them at home as well. A teacher thought...
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 monkyh...
New - Epilepsy or anxiety - how do I know and what do I do?Created by monkyh...at11/4/09 - 5:00 am|40 Views|5 Comments
Posted To: New to Epilepsy.com
Hi there.
I am new to this forum, and unsure whether I actually have epilepsy or not. I am hoping someone will be able to read my story, and tell me if they experience their attacks in a similar way or not.
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 FS
New - New to epilepsy- Anyone wonder if you have non-epileptic seizures?Created by FSat11/6/09 - 2:47 am|6 Views
Posted To: New to Epilepsy.com
Hi everyone!
I was diagnosed with epilepsy about 2 years ago (I'm 31 now). My first few attacks were night seizures, the only indication i had was that i had wet the bed both times. Soon after, i had 4-5 seizures in succession in the span of 1 day and have...
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 myluck...
New - keppra and burningand or itching in the headCreated by myluck...at1/22/09 - 9:28 am|8 Views|1 Comment
Posted To: New to Epilepsy.com
has anyone who has ever taken keppra experienced burning or itching in the head?? not the scalp
also i can not seem to tolerate the generic very well. are the fillers in the medication different? i take 500 mg
1/2 tablet 2 times a day . any...
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 restez
New - SZ grunts and loud screamCreated by restezat11/3/09 - 8:58 pm|7 Views
Posted To: New to Epilepsy.com
I have a daughter 14 does any parents out there avoid any public activities in fear of your child having a SZ that draws attention because it is a loud grunt and scream type for the sake of having your child be stared at or feel embarrassed which they...
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 ao_kiddo
New - Frustrated, Confused and Scared-Any advice is much appreciatedCreated by ao_kiddoat10/29/09 - 7:02 pm|29 Views|3 Comments
Posted To: New to Epilepsy.com
Hello!
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 simply...
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 emkudek
New - Scared and confused about symptomsCreated by emkudekat10/28/09 - 7:38 pm|32 Views|3 Comments
Posted To: New to Epilepsy.com
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 verycozy
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 kylies...
New - New here and scared to deathCreated by kylies...at11/2/09 - 7:06 pm|31 Views|3 Comments
Posted To: New to Epilepsy.com
I am new here, my daughter was diagnosed with JME back in Sept. She had been experiencing twitches and ticks (I call them) for awhile. I had told our doctor about it and he reduced her ADD medicine. Still the same symptoms. She normally takes naps...
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 trace2
New - new here could this be a seizure?Created by trace2at11/2/09 - 11:12 am|16 Views
Posted To: New to Epilepsy.com
i went to bed had a really bad headache could not drop off for ages ,
not sure i did but i got a funny taste in my mouth then i heard wispers
in my left hear very loud and my body went stiff more aware about my
fingers stiff and shaking i could move my...
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 forge
New - nocturnal seizuresCreated by forgeat10/30/09 - 5:20 pm|13 Views|1 Comment
Posted To: New to Epilepsy.com
so, my problem. begins with a seizure when asleep, had a MRI, CT scan, EEG, blood work, holter monitor, tested for cancer, tumors, MS, MD, you name it and nothing found. Then 3.5 years later i had another and tested again and nothing. was put on divalproax...
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 the_li...
New - Anyone else have brain cancer?Created by the_li...at10/25/09 - 5:54 pm|9 Views|1 Comment
Posted To: New to Epilepsy.com
Are there other people out there using this site who have seizures caused by a brain tumor? I am interested in comparing stories and finding out what has happened with your seizures after surgery, chemotherapy, and/or radiation.
Thanks!
Liz
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 adam dada
New - Autism, partial onset epilepsy & skills regressionCreated by adam dadaat5/6/09 - 1:59 am|12 Views|1 Comment
Posted To: New to Epilepsy.com
My 10 year old son has a type of autism, PDD-NOS, and is having abscence seizures. He is showing skills regression in his sociol, cognitive skills. Does any one know anything?
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 alldente
New - Two new seizures both while drivingCreated by alldenteat10/21/09 - 4:31 pm|56 Views|7 Comments
Posted To: New to Epilepsy.com
Im 46 and had my first seizure 30 days ago while driving. This seizure was not a grand mal. Then 2 days ago I had a grand mal while driving with my son. He called an ambulance and I was transported to the hospital. I have an appointment with neoro on Monday....
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 tay
New - Dreaming during a seizure? (I would really appreciate someone who...Created by tayat10/12/09 - 11:20 am|39 Views|3 Comments
Posted To: New to Epilepsy.com
thanks to shitty canadian health i still havnt been able to speak with a neuroligist, so i'm not 100 % sure what i have been having are seizures or that i have epilepsy. for the longest time i have tried to believe that these episodes were just me fainting,...
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 Christ...
New - Mom needing adviceCreated by Christ...at10/21/09 - 8:26 pm|60 Views|11 Comments
Posted To: New to Epilepsy.com
My son is 15, was diagnosed with Juvenile Myoclonic Epilepsy and was waiting for dr. appointment when he had a grand mal seizure. He was terrified, I was terrified, the whole family is scared.This is our first experience with seizures like this. He's only...
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 acarsten
New - Catamenial seizuresCreated by acarstenat10/27/09 - 9:35 am|9 Views|1 Comment
Posted To: New to Epilepsy.com
Hello,
I have been living with these "seizures" for about 5 years now. I have been to several doctors and tried several different things but nothing is working. I can't seem to find a doctor that knows anything about catamenial seizures or...
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 dainty
New - Modified Atkins Diet & JME & Myoclonics Created by daintyat10/28/09 - 5:34 am|1 View
Posted To: New to Epilepsy.com
My 16 yo daughter, after getting worse on meds, has been on the MAD diet since June 09. She has reduced her meds to only 1 and that at minimial dosage. MAD will NOT cure epilepsy, BUT it does help ALOT of people. My daughter went from 1,000s of myoclonics...
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 We tried
New - I'm new to this as of an hr. ago I don't know where to go and wh...Created by We triedat10/25/09 - 11:15 pm|25 Views|2 Comments
Posted To: New to Epilepsy.com
As often I'm confused. Years ago I was a member of a chat group which became a very supportive as well as informational group. The group is no longer here. I don't remember my ID name back then so if any of the past members are here I wish I could know but...
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 dsimpson
New - Hello, new to site and epilepsyCreated by dsimpsonat10/25/09 - 1:00 pm|13 Views
Posted To: New to Epilepsy.com
Hello everyone,
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 stacey...
New - DRINKING AND EPILEPSYCreated by stacey...at10/20/09 - 7:44 am|27 Views|2 Comments
Posted To: New to Epilepsy.com
Hello Everyone,
I am a 26 year old female and have epilipsy. I had a seizure at age 20 after a heavy night of drinking. I didn't want to believe it was because of the drinking because I had been drinking before for like 3 years and never had one. ...
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 onemarvy
New - Positive Stories OnlyCreated by onemarvyat2/22/08 - 10:04 am|733 Views|66 Comments
Posted To: New to Epilepsy.com
Hello everyone,
We went to see my daughter's neurologist yesterday and she was officially diagnosed with Epilepsy. She was also prescribed Keppra and has since started taking 250mg twice a day. We were told this was the lowest dose possible, so...
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 intofl...
New - 2 years old and having seizuresCreated by intofl...at10/21/09 - 8:09 pm|5 Views
Posted To: New to Epilepsy.com
Hi,
My daughter started having morning seizures three months ago. She has had six that I have observed. Two today. This morning it lasted about 7 minutes followed by 1.5 hrs of sleep. My wife was with her for the second one around 5:30 p.m. ...
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 Apple101
New - KEPPRA 500MG EFFECTSCreated by Apple101at4/15/07 - 11:36 am|1618 Views|17 Comments
Posted To: New to Epilepsy.com
HELLO,
LIKE ANY EPELEPSY, MINE STARTED WITH SHAKING IN THE MORNINGS AND FAINTINGS. I HAD JUVINILE MYOCLONIC EPELEPSY. I'M 15 YEARS OLD AND FEMALE. I WAS PUT ON KEPPRA 500MG. AT FIRST IT WAS JUST DIZZINESS AND NOW IT'S BEEN AROUND...
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 magpie60
New - 11 year old unstableCreated by magpie60at10/18/09 - 7:09 pm|43 Views|5 Comments
Posted To: New to Epilepsy.com
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 evanda...
New - TLE or bipolar II? simple partials onlyCreated by evanda...at9/22/09 - 10:33 am|37 Views|5 Comments
Posted To: New to Epilepsy.com
Hi all,
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 julian
New - Marijuana and SeizuresCreated by julianat10/9/09 - 2:15 pm|24 Views|2 Comments
Posted To: New to Epilepsy.com
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 BiggT
New - Not sure whats going on with me?Created by BiggTat10/17/09 - 4:43 pm|25 Views|2 Comments
Posted To: New to Epilepsy.com
Hi,
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 shllyp...
New - EPICLINICCreated by shllyp...at10/18/09 - 10:54 am|14 Views
Posted To: New to Epilepsy.com
Does anybody know more about the Epiclinic in South Africa??? Has anyone been to the clinic??
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 Pancake
New - Frustrated and confusedCreated by Pancakeat6/4/09 - 8:06 pm|27 Views|2 Comments
Posted To: New to Epilepsy.com
I am 27 years old and was diagnosed with psychogenic seizures 10 months ago. I see a psychitrist on a regular basis and things got better. I went from having 8-10 a day to 1-2 a week. Then out of the blue the started again and were really bad. ...
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 kattat...
New - New, Scared & In Need Of SupportCreated by kattat...at7/8/09 - 7:57 am|127 Views|14 Comments
Posted To: New to Epilepsy.com
Hello everyone.
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 kimber...
New - Is my Epilepsy from the American Measles?Created by kimber...at10/14/09 - 7:17 pm|10 Views
Posted To: New to Epilepsy.com
Hello all.
I recently learned that when I was a young child (27 yr old female now) I had a very serious case of the American Measles. During my research I have learned that measles/mumps can cause epilepsy but that is all I am able to...
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 JohnDe...
New - Me to The Site and Want a friend or friends to talk to b/c i don'...Created by JohnDe...at10/14/09 - 2:15 am|18 Views|1 Comment
Posted To: New to Epilepsy.com
Well this is my first time EVER blogging, and i thought what a better place than here with fellow ppl that are or have gone through what I am going through now. He's a brief history of my epilepsy condition
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 Texas
New - BRE/mild apnea and inconsistent school workCreated by Texasat10/12/09 - 2:22 pm|6 Views
Posted To: New to Epilepsy.com
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 chipco...
New - What is happening to me?Created by chipco...at10/11/09 - 3:55 pm|8 Views
Posted To: New to Epilepsy.com
I have had these episodes about once a month for years where all of a sudden I am in a cloud, experience deja vu and some sort of test of if I can say something, but they last only about 10 seconds and afterward leave me groggy and spacey. My eyes are...
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 Jshear
New - Complex Partial Seizure - Keppra and LupusCreated by Jshearat9/19/09 - 7:14 pm|44 Views|7 Comments
Posted To: New to Epilepsy.com
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 Black....
New - Is this Epilepsy?Created by Black....at3/17/08 - 11:54 am|324 Views|15 Comments
Posted To: New to Epilepsy.com
hi i'm new to this website
i was recently diagnosed with Epilepsy and i have a lot of questions so heres a sorry in advanced for writing to much lol
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 j5freye1
New - New, scared, with Medication QuestionsCreated by j5freye1at10/8/09 - 6:41 pm|23 Views|2 Comments
Posted To: New to Epilepsy.com
Hi all,
Looks like a great website here! I'm 22 years old and just had my MRI and sleep deprived EEG for what my neuro is very convinced are complex partial seizures. I began having them when I came to college, and had what I'd say was my "worst"...
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 kristi...
New - Hello! New Here! Complex Partial Seizures, Taking Keppra & CarbotrolCreated by kristi...at10/7/09 - 12:01 pm|23 Views|2 Comments
Posted To: New to Epilepsy.com
Hello Everyone!
I saw this as I was googling on the internet and wanted to join! :)
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 hodder.b
New - Hello, Brandon Hodder....20 yrs oldCreated by hodder.bat10/8/09 - 6:10 pm|19 Views|2 Comments
Posted To: New to Epilepsy.com
Hi guys my name is Brandon and I am new to the epilepsy.com forums....I just thought I would share my story....maybe to see that I am not alone with what I have.
Around 3 years ago I had my first grand mal seizure while I was at school playing a game...
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 shelldog1
dealing with epilepsyCreated by shelldog1at10/8/09 - 9:35 am|28 Views|2 Comments
Posted To: New to Epilepsy.com
my daughter is 14 now she was diagnosed with epilepsy when she was 12. we have been through so many medicines i have lost count. and this week changed to another one. so she now takes topomax and lamictal. her seizures have so far not been controlled. we are...
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 Sausha
abnormal to normal eegCreated by Saushaat10/6/09 - 10:49 pm|18 Views|2 Comments
Posted To: New to Epilepsy.com
8 years ago I started having seizures. the neurologist ran an eeg which came back abnormal. tempral lobe epilepsy was the diagnosis. she would have me hyperventilate and I would have a seizure every time. problem is I'm trying to start up with a new...
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 ghostl...
vns therapyCreated by ghostl...at9/12/09 - 5:22 pm|16 Views|1 Comment
Posted To: New to Epilepsy.com
just to let u know that it was me that asked about the vns therapy. I created my own account so i wouldn't have to keep explaing that i was the mom and not my son asking questions. he found this when i was looking up info on vns & i would much rather...
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 Vermil...
Marijuana-Induced SeizureCreated by Vermil...at10/6/09 - 5:47 pm|10 Views|1 Comment
Posted To: New to Epilepsy.com
I'm brand new here and I've read a bunch of other posts on it, but I'm freaking out about what happened to me the other day.
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 seminole
ConfusedCreated by seminoleat10/5/09 - 9:54 pm|18 Views|1 Comment
Posted To: New to Epilepsy.com
Hello Everyone, I am new here and to be honest a bit confused by epilepsy as it is a new thing to me. About six months ago my boyfriend started experiencing seizures for an unknown reason and he was ultimately diagnosed with epilepsy. I don't remember what...
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 rmh-hbg
Hallucination, religious experienceCreated by rmh-hbgat8/15/09 - 1:11 pm|71 Views|4 Comments
Posted To: New to Epilepsy.com
Hello All, I'm new to Epilepsy.com and come to it hoping that somebody can shed some light on an experience I had 10 months ago. As briefly as I can: I awoke after a couple hours of normal sleep and spent the next 4-5 hours fully concsious and mostly coherent, i.e.
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