Hi, everyone. Newbie here - my name is Jen, and while I'm not exactly thrilled to have this crap, I am happy to find that there's a warm community of others out there who are going through the same things.
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Take control of your epilepsy and seizures. Seizure management has never been easier.
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 57Acad... New - I'm not getting any better; this sucks. (And hello.)
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lamauld New - Daughter just diagnosed
A few months ago, my daughter, 19 months, began having staring spells. Our pediatrician referred us to pediatric neurologist, who order a short EEG. Today, she told me that the EEG looked normal; however, based upon the information we had given her,...
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 Adrilu |
jmoore New - Help with understanding my own experience
Hi,
Since I was a young boy, I have been having the following symptoms:
1)Visions (always the same scenes, never triggered by anything external
that I am aware of). Once the visions are over, I can hardly remember
them, but I know that I...
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B116 New - Scared once again! :(
Hey everyone. I Dont know how this goes but im just going to start off saying that i have had siezures since i have been of the age of 3. I am now 18 years old. I have been hospitalized many times and I have been told i have up 7 or more types of epilepsy. :(
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KimberlyL |
B227 New - New, confused, and dealing for a long time
Im new to this site, and I came here in search of information regarding seizures. I have never been diagnosed with epilepsy. However my history may indicate that to be incorrect.
As a child I often would go pale, get nauseus, pass out, and the...
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tab4371 |
ssmith... New - Epilepsy in my dog
I used to have epilepsy as a child and have not had any seizures since age 14. But since that time I have had 3 dogs who have developed epilepsy. I just took my 2 year old puggle to the vet this morning because he had a seizure 3 nights ago and he also has...
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lizel New - Dog warning of seizures
Hi all
I joined this site a few weeks ago. I do not have epilepsy but was looking to gain knowledge to assist me as a member of my staff has the condition. I found the site very useful and informative.
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 Angeli... New - Hello, new to the forum and seizures in general
Hello!
I just wanted to introduce myself. My son (age 3.5 years) has complex partial seizures. He has only had two so far, so we are new to all of this. I just wanted to find a place I can talk and get answers/support/advice. I hope I'm welcome here and I...
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 caandahl New - left temporal and excess beta range activity in EEG
I went to the records department at childrens and got a copy,I called the developmental pediatrician and she is going to consult w/neuro.
it said my son(who is 9 w/"severe autism",type 1 diabetes,hypotonia,DD,etc) had frequent discharges that...
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 Displaced New - Undiagnosed, but pretty sure something isn't right.
I am new here and still undiagnosed. I am a 33 year old married mother of 2 and just now getting Dr.s to listen to me when I say I don't have Vertigo. Why is Vertigo so widely used as a diagnosis?
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jeffc762 New - Nocturnal Seizures
Hello, my name is Jeff. Late last year in 2010 I had a Grand Mal Seizure in my sleep. My wife called 911, they got me to the hospital and I was confused as can be to make a long story short. At the hospital they gave me an EEG, an MRI, a CAT Scan, a heart...
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Popcor... New - Are these migraines, seizures or both?
I am 33 years old and started having migraines around the age of 22. It took me several years to get a diagnosis because I did not seek treatment until I started having strange auras and sensations. They did an MRI, due to the nature of my auras, about 4 years...
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 Kathryn4 New - New To MyEpilepsy.Com
HI Everyone,
My name is Kathryn I am new to this website. I am 22 years old and I had my first gran mal seizure when I was 6 weeks old. I am going to do an observation within the next two months to see where my seizures are coming...
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coopdi... New - Temporal Lobe Epilepsy, Bipolar I, or something else?
Hello all and thanks for reading. I've been diagnosed for 2 years with Temporal Lobe Epilepsy (TLE) but not sure if that's really what I got. The Dr that diagnosed me a couple years ago was laid off by the government and no other dr seems to want to talk...
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heahth... New - my first seizure(?)
Hi,
well, where to begin... im a 25 year old female, living with my boyfriend. he got a call from his cousin, to go out with her for dinner and dancing, so i forced him into saying yes. we go out, get dinner, and head to a party...
Everything...
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asmend... |
Bbish900 New - Driving in pa
I had one grand mall seizur on 12/1 /2011. I went to see a neuro and she said I had many small seizures on a 48 hr EEG. I never even was aware of them??? She put me on 1500 mg of Keppra. Before I had the grand mall I was having about 5 beers of high alcoholic...
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 scorpi... New - Grey Matter Heterotopia - First Seizure? Help!
Hello. I am going to try to keep this brief. My son is ten years old.
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 nikkij... New - My Story and Struggle with Epilepsy and Anxiety!
Hi,
My name is Nikki and I am glad to be finding other people with epilepsy and who can relate to some of the crazy issues that come with it. I had my first seizure and trip to the ER at the age of 4. I am now 29. I am not a currently medicated...
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Jim an... New - first seizure in 10 years
My wife has (had) been seizure free for 10 years and had a seizure today at the grocery store. My S-I-L was with her, caught her before she hit the floor, EMS called, the whole 9 yards. She had spent the week helping her 82 yr old mom move into a new...
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 Planet New - Drinking more Water
I would like know if drinking more water , it's good to eliminate the bad effects the drugs easier , or doing that it's not good to do a good terapy !
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Peypey... New - Trying to decide if I should I try acupuncture for my daugher...
My daughter is 3 1/2 years old and has generalized myoclonic epilepsy. She has been on depakote for the last 8 months, but because of the issues with side effects she is currently being weened off depakote and onto Keppra. Her seizures are prety well controlled,...
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Y |
jdoepel New - New to complex partial seizures
Sorry this is long but I wanted to be detailed so that maybe someone could relate to us...here goes...
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 Zachkev28 New - Brand new here...autonomic seizures?
Hello! I stumbled on this place while trying to research autonomic seizures. Hoping to find some info here :)
FTR, I am an (almost) 40 y/o mom to 2 boys, was an RN prior to having kids and my brain has gone to mush since leaving the work force. But I...
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 momof1 New - Complex Partial/Night Terrors
I am new to this forum so please forgive any mistakes I may make. I am looking for different information on How Epilepsy is actually diagnosed. I was told by the Epilepsy foundation that recurring seizures is termed Epilepsy. ...
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Grandpa2 Scared Grandpa
I am new to this forum and signed up so I can ask questions and because I am really scared for my grandson.
My grandson, who is 18 months, is starting to have problems that we have no diagnosis for yet and so I thought I would ask some questions. We...
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angel39 hiya am new to this site
hiya am new to this site tonight,ave been suffering epilepsy on and off since a baby due to having a brain haemoraege when i fell from my high chair.i suffered with bad seizures whilst a child,temprol lobe.but then for some reason they seem to go away for...
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Mummy2... 21month old toddler having complex partial seizures &absence seiz...
H i, I have only just found this site and I'm so glad to have a forum of knowledge ,experience and support.
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 epi_help |
dankahn First time on site
Hi Everybody,
I had my first grand mal about 11 years ago. Turned out to be a left temporal lobe tumor. I take keppra and lamictal and have small seizures about every 3 months or so. I of course as all of you would love to be seizure free and...
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 Krissy4 New to this site, afraid and feeling alone,guilty and depressed
Hi everyone...I am new to this or any site dealing with epilepsy. I guess it simply comes down to feeling so alone and afraid and needing to know Im not special to feel that.
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 Nellsi... My past is making a little sense now!
I recently was found to have an abnormal EEG with high spike waves on both sides of the brain. The neurologist hasn't said I have epilepsy but if I have any more 'Blackouts' In the next 4 months I will be put on medication.
I have always been accused of...
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 debbie... Hypoglycemia (low blood sugar) and Seizures
Hi All
I experienced another seizure on the wsy to an job interview the other day, whereby I lost consciousness for about 5 minutes and obviously this is not very good when I am inteviewing.
I was late for the interview and now...
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Sandra... Nuerologists specializing in Epilepsy-WI or IL
I just stumbled onto this wedsite and am looking for some suggestions. I live in Madison WI and have a 14 year old who was diagnosed in MArch with Epilepsy. He has had 2 grandMal seizures and numerous small seizure since the diagnosis. Our dr keeps uping
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Ramjet Autonomic Partial Seizures - Sweating
I am new here. My
suspected autonomic or simple partial seizures involve episodes of intense sweating.
Up to 18 episodes in a 24 hour period, then nothing for about 28 days.
Been going on for 2 1/2 years. Awaiting EEG testing to confirm
diagnosis. ...
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bobtan |
bobtan |
Bbish900 Alcohol and keppra
I recently had a grand mal seizure my first. On 12/1/11. I was having a few strong beers and the next thing I knew was a ... 911 . All tests in hospital were ok sent me to a neuro who did a 48 hr.EEG . It showed I have many seizures that I don't even recall...
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Bbish900 Alcohol and keppra
I recently had a grand mal seizure my first. On 12/1/11. I was having a few strong beers and the next thing I knew was a ... 911 . All tests in hospital were ok sent me to a neuro who did a 48 hr.EEG . It showed I have many seizures that I don't even recall...
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Lorie Just diagnosed
To start with, I just had my first visit w/a neuro and my suspicions were confirmed. I have had 3 seizures(partial complex) since April 2007. I'm going for an MRI this Monday. The Dr. wants me to start on a kit of Lamictal right away. He said that by taking...
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RonS Are your seizures out of control?
My name is Ron. I was diagnosed with epilepsy over 30 years ago. My seizures where out of control. I was rediagnosed about 10 years ago with conversion disorder. I now have less than 1 percent as many seizures as I had before the rediagnosis.
I am not...
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 Knailos Newly diagnosed by the Mayo Clinic
Hello Everyone,
I just joined the group about 5 minutes ago and have just been newly diagnosed with Epilesy. It has been a LONG 9 month journey from being dianosed with vasovagal syncope and hypoglycemia. I have been checked for...
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rhonda23 |
transa... New wanting opinons
I have had Epilepsies (4 episodes) for about a year now and I am a 25 year old and very healthy male. It started when I had the flu last year, I was just walking down the hall way and bam passed out bumped my head hard on the floor my wife was there luckily,...
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bRyan1891 |
uscgrd |
Kathryn4 New - New To MyEpilepsy.Com
HI Everyone,
My name is Kathryn I am new to this website. I am 22 years old and I had my first gran mal seizure when I was 6 weeks old. I am going to do an observation within the next two months to see where my seizures are coming...
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 kwety thinking about surgery
Hi
I'm 29 years old and have a congenit mal formation in my brain. I've had seizures(grand mal until I was 5, then none for 6 years then partial and absence until the age of 20.
Then things got a lot worse I had dozens of partial...
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 ache Seizures while sleeping~
Hello everyone, I am new to this site... It is late, but I thought I would throw this question out - Anyone have grand mals only while sleeping? My...
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 lheggie74 Trileptol Side Effects
My name is Lisa and I am 32 years old. I live with Epilepsy and was taking Tegretol when my doctor switched me to Trileptol claiming that this medicine would be better on my body in the long run. I have been taking Trileptol for...
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 wldhrt13 Jamais vu Deja vu
please will someone explain to me- when these things happen are they an "aura" or are they an actual seizure?
how frequently does this occur in a non-epileptic population?...
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momof1 New - Complex Partial/Night Terrors
I am new to this forum so please forgive any mistakes I may make. I am looking for different information on How Epilepsy is actually diagnosed. I was told by the Epilepsy foundation that recurring seizures is termed Epilepsy. ...
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 ginger Had first seizure 1 month ago
Just new so not sure about this. I am a 43 year old female, thought I was in good health... workaholic. Everyone thinks that this seizure was brought on by stress? but the doc. says it cant be.. EEG showed spiking on the front temporal...
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 stilla... goose bumps & 'hidden' seizures?
Hi, this is Maddie, I'm really glad to find this site.
I still don't know for sure whether i have some kind of epilepsy. Neurology hasn't been much help, but my own dr believes i do because of a long history of strange episodes...
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 basura benign rolandic epilepsy
My son has been diagnosed with Benign Rolandic Epilepsy.
He is 8 years old. He has only had seizures in his sleep and they have all been within the 1st 20 to 30 minutes of falling asleep. He has only had 6 since Dec. 2003 but within...
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 cogswe... psychogenic nonepileptic seizures - anybody else?
My husband was just diagnosed with psychogenic nonepiletic seizures. He is 28 years old. It has only been a couple of months since the first episode. He is taking it very hard. He believes that with this diagnosis, people will think...
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 Katvwolf Seizures with psychic symptoms? Please help!!!!
Hi everyone! I am a 30 y/o woman who has been experiencing "episodes" for 13-14 years. I had two this week, which were severe enough to scare me. I just finally went to see my doc today, who feels they could very well be seizures...
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Anthon... Petit Mal or Absence Seizures Appearing in Adulthood
My Name is Anthony Andrew, and recently, at the age of 25, i have been informaly diagnosed with Absence Seizures by my family. doctor. We are still running a few extra "tests" just to make sure. I have been studying the topic of petit...
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 jh12918 We had another one
Hi,
Well here we go again. My 8 year old daughter that had had her first big seizure Nov 21 had one yesterday. It was strange because it happened about the same time as the first one. About 6:45am. This time she was getting dressed...
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 Sophist new and testing the waters
Hi, my online name is Sophist. I am 25, female, have Asperger's Syndrome and undiagnosed Neocortical Temporal Lobe Epilepsy, and am a psychology/neurology FANATIC. I am currently in undergrad getting my bachelors in Psychology and...
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brashq... Could CRT Computer Monitors Induce A Seizure?
Hi All,I'm new to this forum, and new to the world of epilepsy. First off, got to say that this is a great resource =) I'm a few months shy of being 28, and had my first definate s
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 Zara Can Myoclonus be non-epileptic?
If this is the case is there any documentation about this anywhere anywhere on this planet under some unforseen rock that I haven't turned over?
When I do a search on arms+shoulders+Seizures which is what my Doctors says I have...
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wldhrt13 Libido and Sexuality
I am 36 years old and not taking any AED's or any other medications (save for my asthma inhaler as needed). According to my OB/GYN, I am supposed to have arrived here in my mid-thirties in the prime of my sexuality. In fact, women...
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pswebster 6 years old abnormal EEG, but no seisures. Help me understand!
My 6 years old son had abnormal EEG and his neurologist told us that he does not have seisures, he just has tics.
The EEG report says he has very frequent epileptiform discharges during drowsiness and sleep from the centrotemporal...
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rebpow Unusual complex/simple partial seizures
So, I've been having seizures. I don't have
convulsions, but I slow down to the point where I
freeze up and can't move or speak for 2-10
minutes at a time. I've had this happen 15 times in
the last 7 weeks. I'm conscious and...
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 mhillqt Panic Disorder
Hello.....I am a 45 year old male, physically active(ie long distance runner, workout, etc) who was diagnosed with panic disorder 15 years ago...ie at age 30. Prior to the diagnosis I had fainting spells since I was 18......they usually...
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WendyB... Question about aura's
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....
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Jerrid... Can seizures cause a learing disabilty?
My son was just recently diagnosed with primary generalized seizures. He has been struggling in school. The teacher says he has a hard time keeping on task, remembering things etc. Right now the school is doing an IEP test on him....
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 Apple101 KEPPRA 500MG EFFECTS
HELLO,
LIKE ANY EPELEPSY, MINE STARTED WITH SHAKING IN THE MORNINGS AND FAINTINGS. I HAD JUVINILE MYOCLONIC EPELEPSY. I'M 15 YEARS OLD AND FEMALE. I WAS PUT ON KEPPRA 500MG. AT FIRST IT WAS JUST DIZZINESS AND NOW IT'S BEEN AROUND...
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 Mary A... zoloft and seizures
Hi, I was on zoloft before my brain injury, i was increased after, when diagonsed with seizure disorder I was incresed to 200 mg, at that time my seizures became "uncontrolable". In doing some research I found that zoloft should not...
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 monica... I am concious but not sure....
My name is Monica, I am 25 years old and I have nocturnal simple partial epilepsy. I have not been diagnosed, but have done my reasearch.
When I go to sleep, I am either one extream or the other (terrified or carefree).
I think...
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bobtan |
lizel New - Dog warning of seizures
Hi all
I joined this site a few weeks ago. I do not have epilepsy but was looking to gain knowledge to assist me as a member of my staff has the condition. I found the site very useful and informative.
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lizel Dog warning of seizures
Hi all
I joined this site a few weeks ago. I do not have epilepsy but was looking to gain knowledge to assist me as a member of my staff has the condition. I found the site very useful and informative.
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Anonymous |
 Rodzenjr Hello I am new here
Hello everyone, I am 21 yrs old and have had epilepsy since I was 18 months. I just thought I would join a community that could relate to me.
Jessica
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We tried I'm new to this as of an hr. ago I don't know where to go and wh...
As often I'm confused. Years ago I was a member of a chat group which became a very supportive as well as informational group. The group is no longer here. I don't remember my ID name back then so if any of the past members are here I wish I could know but...
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mzzinoz |
ron101 |
maketh... |
Rochel... |
raja71... "faked" pseudo seizures
I found a thread on this that is about 4 years, so I wanted to address this topic again. I have a 26 year nephew with cerebal palsy and mild metal retardation, he has a history of febril seizures as an infant and toddler.
about 10 years, his seizures...
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mtg_gc_08 "First time caller (and first time listener!)"
Almost 40 and just had my first seizure. ER and hospital for 3 days. MRI clear. As I think about events over the last several years I had this unexplained experience that happened occasionally (read: not frequently so 1-3x/year). Almost always while...
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 midalo... "Gazes" getting scary...
Good Morning - I had a question about my staring episodes...
Growing up I've always had the habit of my eyes getting stuck in a gaze for about 30 seconds or so. I've always remained completely aware of my surroundings during these...
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 DavidLM "Lens fogging"
This is an annoying feeling I thought I'd bring up and see if anyone else has this as well. It is a little complicated but here goes. This annoying feeling occurs just after an aura/episode
had occurred forcing me to stop...
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batman... "pushing"
does anyone think hemerroids could be a result of a seizure? Possible "pushing" muscle groups while unconcious? thoughts? experiences?
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yogagu... "seizure-like episodes" and driving.
Hi everyone. I'm new to this webpage, and I was just wondering if anyone here knows about epilepsy and short-term disability insurance from a job?
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ktremain "Shivers" / digestive problems = Simple Partial Seizures?
Hi! I am an 18-year-old female college student trying to figure out if I have chronic simple partial seizures.
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Anjeli... (¯`·.♥.·Hi We're New·.♥.·´¯)
Hi my name is Angelica and my son Giovannie is the one with epliepsy. He has been having seizure for 1yr and 4 months now. They just started out of the blue. I am joining th eforum like most of you to try and figure out why and to...
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Wynter (New to epilepsy, please help!) Are these typical characteristics...
It started like a month ago when we were camping.
Anyway, like that third night we were up there, we were sitting around the campfire playing cards, and the only thing I could possibly compare it to it as would be if someone flipped...
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Raymond27 ***What can or cant i take??
hi everyone,
i just signed up to this sight for the forum information. Six months ago i enrolled in my first bodybuilding competition and was doing a very strict low carb diet and was taking a product called ephedrine. At the end...
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 heart_... *oops* new here, posted in the wrong forum
Hey y'all,
I'm new here. I am trying to figure out what in the heck is wrong with me. Here's the background. I'm sorry it's so long, but I welcome any imput.
I had petit mal seizures from birth to age 11, at which time they stopped....
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Fraser... 10yr old in Africa
Hi, my son has been having horrible fits this week, we live in Senegal, and its difficult to get help.
2mths ago we were flown to South Africa and they did an MRI, and ECG they were normal, he had no seizures at all in South Africa...
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 kdicks... 11 year old daughter's Seizure
Could someone please help me figure out what kind of seizure my daughter had? Back in May 2006, she had her first one. She was at school and the teacher told me that she seemed to only jerk her arms a little, her eyes rolled up in...
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magpie60 |
Mabel 11-year-old Son/Undergoing Testing
My 11-year-old son has been waking up at night w/what the pediatrician calls "seizures." He will stare off into space, drool (a lot), rock back and forth, and sometimes tap the side of the bed. It lasts for maybe 40 seconds, then he drops back...
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