 cheryl...
New - DepakoteCreated by cheryl...at1/13/10 - 8:36 am|12 Views|1 Comment
Posted To: Men With Epilepsy
My son started having seisures at age 20. He is now 29. He was on dilantin which controlled his seisures. He started having seisures 3 months ago about one a month. He will lose his job if he has too many more seisures at work. His Dr. put him...
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 jackfo...
New - male loss of libido - Keppra Created by jackfo...at2/23/09 - 5:43 pm|58 Views|7 Comments
Posted To: Men With Epilepsy
My partner has been having seizures for about 2 years. He is currently taking Keppra twice a day. He is 23 and has a marked decrease in sex. It's hard to gauge what a 'normal' sex drive should be, but we have sex roughly once a month and he masturbates infrequently....
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 cdcg19
New - what to do EPilepsy and ADHDCreated by cdcg19at11/8/09 - 7:48 pm|17 Views|1 Comment
Posted To: Men With Epilepsy
I have had epilepsy since i was 2 years old . It all started with a high fever. also since a child I had ADHD. since 2000 I haven't had a convulsion, most of my seizures were absence seizures, and they usually happen when I'm sleeping. I never had one in...
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 Nick911
ear flutteringCreated by Nick911at12/27/09 - 7:48 pm|35 Views|3 Comments
Posted To: Men With Epilepsy
i am a 36 year old male, who began having seizures when i was approximately 24 years old. They were grand mal seizures and happened about once every 3 months. i finally started taking dilantin and the seizures stopped. about a year ago the seizures started...
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 grego
employment & epilepsyCreated by gregoat12/12/06 - 5:10 pm|1206 Views|9 Comments
Posted To: Men With Epilepsy
HI I've had epilepsy 42 of my 53 years of life/ I have had surgery which have curtailed the seizues greatly. I am currently under employed, yet have my drivers license. feel that the medical profession trys to "down play " a person's...
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 shatinaw
My husband has seizures at nightCreated by shatinawat12/2/09 - 5:09 pm|11 Views
Posted To: Men With Epilepsy
My husband is 28.He had his first seizure Jan 09.He had tests done and they saw nothing but a little seizure activity on the left side of his brain.They put him on Dilantin 3 times a day.In April or May he stopped taking the medicine b/c he thought he...
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 dan_leeds
If I know Im going to have a fit, should I call 999?Created by dan_leedsat11/21/09 - 1:10 pm|34 Views|1 Comment
Posted To: Men With Epilepsy
Hi
Im new to this site but had epilepsy for about 7-8 years, it started out of the blue following a 'heavy night out'
I always get an aura which is a bit like a 'hang over' and palputations, a funny taste in my mouth and my vision going a bit...
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 Anie
Low sperm count...anybody?Created by Anieat3/20/07 - 11:17 am|929 Views|19 Comments
Posted To: Men With Epilepsy
Hi.
I read on this website that AED,specially carbamazepine and phenytoin, affects sperm count,sperm mobility,fertility etc.
Has this affected any of you or anybody you know?
What did you do about it?
I need advice.
Thank...
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 blockeisu
Nocturnal Seizure SymptomsCreated by blockeisuat2/24/09 - 8:42 am|102 Views|11 Comments
Posted To: Men With Epilepsy
I have been diagnosed with epilepsy since I was 13, but I have never had nocturnal seizure before. I typically have them after stressful activities or when I am physically working hard.
Over the weekend, I woke up to my tongue feeling like I bit it...
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 kevinmo99
life and how it sucksCreated by kevinmo99at6/25/08 - 8:35 pm|129 Views|9 Comments
Posted To: Men With Epilepsy
It is a wonderful thing when you work all your life to do the right things. And all the world does is poop all over you. I have tried to do the right things i got a 4.0 grade average in school and cannot get a job because the state does not know what to do....
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 KCHARA
Help. My new boyfriend has seizures after having sex. Does he hav...Created by KCHARAat10/16/09 - 5:45 am|13 Views
Posted To: Men With Epilepsy
Please help me by giving me advice.
My new boyfriend has a seizure straight after intercourse when he climaxes. He tells me it happens every time he climaxes and since his childhood (he is 32 years old now), and that he thinks and believes it is a...
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 Punkito
Where ARE all the guys???Created by Punkitoat6/1/06 - 10:02 am|2816 Views|41 Comments
Posted To: Men With Epilepsy
I surf all over this site(and others) and it seems(to me) that it's mostly the women who are speaking out. I know there's more than the 5 or 6 guys Iv'e talked with with E. Where are they? Yeah, sexual issues seem to get us talking,...
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 one4gimp
Seizures after SexCreated by one4gimpat5/27/08 - 1:27 pm|120 Views|19 Comments
Posted To: Men With Epilepsy
I've had seizures since I was 9 and am 36 now needless to say that means through out my entire sex life and 15 years of marriage. But, last night for the first time ever I had a partial complex seizure after sex with my wife and wondered if this had happened...
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 George R
Sexual Side EffectsCreated by George Rat3/29/06 - 11:24 am|13109 Views|93 Comments
Posted To: Men With Epilepsy
Why do you suppose that more neurologists and epileptoloists do not mention that a majority of anti-seizure pills do often make "normal" sexual performance for men difficult--if not sometimes impossible when it comes to erections?...
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 kevinmo99
nervesCreated by kevinmo99at9/16/09 - 5:43 pm|3 Views
Posted To: Men With Epilepsy
Been real nervous last couple days .have suffered from nerves due to a bad childhood .Epilepsy makes it worse some times. Know that this is not good for epilepsy. Just need some encourgement from others like me out there. THANKS
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 ananda
Looking for some inputCreated by anandaat9/4/09 - 5:43 pm|17 Views|1 Comment
Posted To: Men With Epilepsy
If you have temporal lobe epilepsy could this be affect the brain stem and/or hypothalmus, and thus explain very slow and sometimes erratic pulse, low body temp and hypo thyroid symptoms despite a TSH of 2.2?
With increasing motor automatims, could...
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 derek3...
Diet Coke Aspartame Seizure Link?Created by derek3...at8/24/09 - 2:12 pm|57 Views|7 Comments
Posted To: Men With Epilepsy
Hi,
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 Beelez...
Migranes after surgeryCreated by Beelez...at8/19/09 - 10:09 pm|11 Views
Posted To: Men With Epilepsy
Hi, I just had surgery two weeks ago, I am still recovering & am having alot of headaches, worse than when I was in the hospital, I am taking the required/suggested amount allowed to take to help w/ the pain. The pain killers are supposed to last four...
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 kennylcf
Epilepsy, Seizures and ExerciseCreated by kennylcfat8/18/09 - 7:17 pm|10 Views
Posted To: Men With Epilepsy
hi,
I am 37 years old and having epilepsy for 21 years, medication taken now is lamictal and dilantin. It seems like not much changes (healing) after trying many types of medicine and still having grand-mal's episode.
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 jeliot06
Possible epilepsy symptoms? Simple partial seizure?Created by jeliot06at8/13/09 - 8:50 am|31 Views|2 Comments
Posted To: Men With Epilepsy
I'm a 21-year-old college student and just considered that these seldom "spells" I've been having for several years are possibly mild seizures. Here is a description of what happens:
-The onset of the symptoms comes as gradually as a rush...
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 Ghebre
AFTER 9 YEARS OF SEIZURES, AM I QUALIFIED FOR DISABILITY-SSI?Created by Ghebreat4/25/07 - 2:54 pm|1084 Views|19 Comments
Posted To: Men With Epilepsy
After trying all kind of prescrition drugs, I'm waiting for brain surgery, due to uncontroled grad-mal epileptic seizures.
What if I lost my job because of my persistent seizures?
What if I became homeless because of my persistent...
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 tsering
cureCreated by tseringat7/19/09 - 3:12 am|13 Views
Posted To: Men With Epilepsy
I would like to know if there's any immediate cure of such disease.
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 kau
Medication dilantin vs topamaxCreated by kauat6/17/09 - 8:30 am|31 Views|3 Comments
Posted To: Men With Epilepsy
hey guys...I have a quastion..I have been on Dilantin(200mg a day) since last five years, never had a sz in
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 wic0929
Working out and SeizuresCreated by wic0929at6/18/08 - 5:29 pm|89 Views|4 Comments
Posted To: Men With Epilepsy
Hi,
I was wondering if anybody had a problem like me where they only really have seizures when working out, and usually not that often. I have several test with several doctors but nothing has come up, just wanted to know if anyone esle was getting...
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 jackfo...
male loss of libido - Keppra Created by jackfo...at2/23/09 - 5:42 pm|38 Views|5 Comments
Posted To: Men With Epilepsy
My partner has been having seizures for about 2 years. He is currently taking Keppra twice a day. He is 23 and has a marked decrease in sex. It's hard to gauge what a 'normal' sex drive should be, but we have sex roughly once a month and he masturbates infrequently....
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 3Hours...
Dr. Svoboda's Feature Articles on Childhood EpilepsyCreated by 3Hours...at6/14/09 - 4:20 pm|33 Views|3 Comments
Posted To: Men With Epilepsy
Dr. Svoboda has many excellent articles about the challenges of epilepsy on this very website in the
Resources Section. One example is:
http://www.epilepsy.com/articles/ar_1064603177
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 eagle
temporal lobe epilepsyCreated by eagleat12/21/06 - 6:48 am|864 Views|7 Comments
Posted To: Men With Epilepsy
does any one have sleep problem because of their
epilepsy...
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 sturgsox2
VNS THERAPY - HOW DO I KEEP THE MAGNET ON - I ONLY NEED IT ON WHE...Created by sturgsox2at6/4/09 - 1:00 pm|24 Views|1 Comment
Posted To: Men With Epilepsy
ALL OF MY SIEZURES ARE NOCTURNAL SO I CAN SHUT OFF MY VNS WHEN I AM AWAKE.
WHAT IS THE EASIEST WAY FOR A MAN TO KEEP THE MAGNET ON THE VNS GENERATOR SO IT STAYS IN PLACE WHEN I AM MOVING AROUND?
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 Darool
epilepsy & Social LifeCreated by Daroolat10/4/08 - 7:07 am|87 Views|5 Comments
Posted To: Men With Epilepsy
g'day everyone
My name is darryl, 26 and am a major epileptic since I was 18 months old. From what I have been told from doctors, er records and family is that I had a febrile convulsion when I was a baby caused by a high temperature or fever. This...
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 sydzman
Need Urgent HelpCreated by sydzmanat5/20/09 - 6:17 am|20 Views
Posted To: Men With Epilepsy
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 Richd1868
Carbatrol XRCreated by Richd1868at1/14/09 - 11:36 am|21 Views|2 Comments
Posted To: Men With Epilepsy
Hello. I have been on Dilantin for 10 years and I'm just realizing it's not for me. i started low on Dilantin and now i'm up to 400 MG and it made me drowsy, sick and stupid so the DOC thought it was time for a change. I tried Keppra for a week,...
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 Sue B.
seizuresCreated by Sue B.at1/26/08 - 6:00 am|70 Views|8 Comments
Posted To: Men With Epilepsy
I want to ask the men, how do you girlfriends/wives cope with your seizures? I don't sleep in the same bed with my hubby because he has nighttime grand mals, and it scares me and I can't get any proper rest.
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 xgi
Does your wife/gf get upset with your sez's?Created by xgiat5/21/07 - 12:20 pm|507 Views|7 Comments
Posted To: Men With Epilepsy
How does your spouse deal with your sez's? a while back we had issues with my wife and I over the sez's but she has gotten a bit better. Sometimes she still gets mad at me when I have little ones but I just try to go with the flow....
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 sidshi...
do i have legitimate epilepsy or did i just party too much?Created by sidshi...at10/17/06 - 7:26 pm|933 Views|10 Comments
Posted To: Men With Epilepsy
or maybe i'm in denial.
but, the two times i've had a seizure i was partying a lot at the time. from what i've read they don't directly corrolate cocaine use and seizures, though lack of sleep seems to bring them about... so, if...
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 irvkay
temporal lobe epilepsy and auditory hallucinationsCreated by irvkayat3/31/09 - 3:25 pm|15 Views|1 Comment
Posted To: Men With Epilepsy
I have been somewhat puzzled over these past six months and especially on March 16th. I have heard off and on the nursery rhymes of Hey Diddle Diddle, Mary had a Little Lamb, Little Miss Muffett, etc. out of nowhere. In fact, on 3/16/09 getting up at 4:00...
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 jamie ...
looking for an epitologistCreated by jamie ...at1/25/07 - 6:33 pm|1160 Views|8 Comments
Posted To: Men With Epilepsy
i am 43 years (young) i have had epilepsy my whole life. As i look more and more on this site i hear about many people who have had more luck with an epitologist than their neurologist. It alwayys seems that
the neurologist can...
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 little...
Marijuana usage and EpilCreated by little...at8/30/08 - 10:09 am|253 Views|24 Comments
Posted To: Men With Epilepsy
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 chew
Dateless2Created by chewat6/6/07 - 1:25 am|546 Views|14 Comments
Posted To: Men With Epilepsy
Im a 38 single black male from SC .I suffer from E.When I tell women I have E and I dont drive they either think the worst or run away before getting to me.My friends tell that I tell them too soon.I just like letting them know what...
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 hippi2009
first time with epilepsyCreated by hippi2009at2/19/09 - 9:33 pm|10 Views|1 Comment
Posted To: Men With Epilepsy
0Had my first sezure on 12/22/08 which happened to be my birthday . Had now idea about them . Plz if someone can give some advice on thins would be appreaiated. No longer have DL but need to work> Plz help with some sugestins on ho to sope with this
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 1never...
Auras...Created by 1never...at7/23/08 - 5:20 pm|149 Views|9 Comments
Posted To: Men With Epilepsy
Well this forum is to discuss the auras I experience either right before or a day before I have a seizure. I had my first seizure when I was 17. I was out mowing my lawn when I was suddenly hit with a very vivid hallucination of the world being completly...
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 Andrew...
outgrowing epilepsyCreated by Andrew...at12/25/08 - 2:22 pm|37 Views|3 Comments
Posted To: Men With Epilepsy
hello, first time post to this forum
so by way of introduction
24 year old self employed mechanic diagnosed with having petit mal (absence?) seizures and some grand mal seizures
seizures started when i was 15-16 went to see a neurologist...
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 Br0
First seizure in 2 years, Now Battling depression.Created by Br0at9/5/07 - 9:05 am|289 Views|9 Comments
Posted To: Men With Epilepsy
Hey guys, I just had my first seizure in two years. I have been epileptic all my life, but early in my life, 5-8 I had Abcense seizures. After a while, they vanished. fast forward to age 17 after an all night gaming session with some...
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 ravenn74
Just a shake / Jerk on Hand? what is itCreated by ravenn74at9/22/08 - 4:01 am|35 Views|4 Comments
Posted To: Men With Epilepsy
Dear Friends,I am from India, and my brother has epileptic and we have been giving medicine for the last 10 years and he doesn't have any problem for the last 7 years ( I mean no major attacks) and he is only getting bit shake on his left hand and may be we c
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 Muneeb
is this CurableCreated by Muneebat8/13/08 - 1:34 pm|44 Views|3 Comments
Posted To: Men With Epilepsy
hi its Muneeb from Pakistan
i want to ask a question
that
is this disease is curable...??
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 wteahcg
Acute Repetitive Seizures/ Cluster SeizuresCreated by wteahcgat10/31/08 - 9:57 am|11 Views
Posted To: Men With Epilepsy
If you're in the Los Angeles area and suffer from acute repetitive seizures, or is a caregiver for someone with acute repetitive seizures, you should check out this opportunity (www.epilepsyresearch.net). Healthcare Communications Group is reaching out to...
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 bilbos...
Different Voice when comming out of seizureCreated by bilbos...at6/12/08 - 12:57 pm|32 Views|3 Comments
Posted To: Men With Epilepsy
Hello there,
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 DavidLM
AED problems...sound familiar?Created by DavidLMat8/7/08 - 12:10 pm|15 Views
Posted To: Men With Epilepsy
Greetings to all. I have not logged on this Web in a while and I thought I'd give it a try. I was just wondering if anyone else is suffers from this type of problem.
To make a long story short, I recently had VNS Surgery done 4 months ago for the focal...
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 kevinmo99
lack of supportCreated by kevinmo99at11/22/07 - 4:46 pm|136 Views|2 Comments
Posted To: Men With Epilepsy
I went to school for medical billing and graduated with a 4.0 grade average . I have applied for almost 570 jobs on my own . I am supposed to recieve help from the school i went to no help . This is after they made me a priority. Any suggestions for other...
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 Punkito
AED's and (libido) are not the problem,but.....Created by Punkitoat5/23/06 - 9:58 am|1276 Views|5 Comments
Posted To: Men With Epilepsy
I am only 35yrs old and even with the AED's I take, I have never had trouble with erections. My problem is achieving the "male" orgazim. Physicly, my Doc says every thing I need is there and its all in working order. I discussed...
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 HelenB
Volunteers for quality of life in epilepsy research questionnaireCreated by HelenBat10/28/07 - 3:14 am|143 Views|1 Comment
Posted To: Men With Epilepsy
As a result of a head injury 24 years ago, I now have temporal lobe epilepsy. I am about to launch the pilot survey for my doctorate (PhD research) on quality of life in epilepsy. I need as many volunteers as possible to test the designed...
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