 Nancy A.J
New - epilepsy and high blood pressure .... its urgent Created by Nancy A.Jat11/10/09 - 5:39 am|34 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
hi
i have epilepsy since 5-6 years and i'm on depakine lately i was feeling very tired and i went to doctors they told me that i have to monitor my blood pressure for a while as i might have high blood pressure ... plz help me ... give me any advice...
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 Nerak95
New - Might Calcium Disorders Cause Seizures?Created by Nerak95at11/7/09 - 5:53 pm|18 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
I was looking up some stuff online and inadvertently came across this. I didn't read the article thoroughly but I found my fast skimming interesting.
http://www.healthresearch.com/myoclonic.htm
~Karen
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 Blaine
New - Help! My 2 year old had a 90 min. seizure? She almost died and we...Created by Blaineat11/15/09 - 9:43 pm|92 Views|13 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi our daughter is two years old and had a 90 minute seizure. We live in a very rural area and it took that long for an emergency airplane to get to us and stop her seizure. She also aspirated on her vomit, then stopped breathing so they put in a breathing...
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 cam an...
New - Behavior issues and epilepsyCreated by cam an...at11/18/09 - 6:17 pm|20 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi
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 Awtum
New - Does anyone have JME? I have a question.Created by Awtumat7/20/08 - 12:38 pm|62 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
I've had Epilepsy for pretty much five years now and I've grown more photosensitive and have recently been diagnosed with JME (Juvenile Myoclonic Epliepsy) but I don't have the jerks. I have everything else on the symptoms list but the jerks.
Does anyone...
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 Hamdig
New - Sports Release FormCreated by Hamdigat10/14/09 - 9:10 am|19 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
I'm having a problem getting a medical release form signed for my son, Steven, who wants to participate on his high school swim team.
Steven developed partial seizures (about 1 every two months on average) at age eight and had surgery 18 months ago...
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 angels...
New - anyone?Created by angels...at7/5/09 - 5:04 am|32 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
hi, im new here! 18, TLE. is there anyone similar to speak to? would love to hear fom you!
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 wilyjo...
New - Epilepsy Aura?Created by wilyjo...at10/13/09 - 2:49 pm|35 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi everyone, i am 19 and have been having seizures for a couple years now. Doctors have not been able to find out if i have an aura yet, i want to know what exactly happens to you guys so that maybe i can find some relations.
Thanks, Liam
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 Nerak95
New - Program for Caregivers of LGS PatientsCreated by Nerak95at11/10/09 - 4:54 pm|2 Views
Posted To: Living With Epilepsy - Youth Issues
FYI,
http://finance.yahoo.com/news/Eisai-Launches-New-iw-3742076881.html?x=0&.v=1
~Karen
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 ozmomm...
New - What to expect.. 3day Video EEG for 4 month oldCreated by ozmomm...at8/19/09 - 10:43 pm|25 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 4 month old son is scheduled for a 3 Day Video EEG on Friday. Can anyone tell me what to expect from an Infant stand point?
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 daisyc...
New - DRIVING [Medical Review Board sucks]Created by daisyc...at12/14/08 - 5:13 pm|145 Views|21 Comments
Posted To: Living With Epilepsy - Youth Issues
Yeah, so pretty much I have been seizure free for a little over a year now. I am a pretty good driver (been practicing with my learner's permit) and I am READY to get my regular license.
In the state of FL, if you have had a seizure in less than 24 mo., you...
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 stephof3
New - Hi they want to take my daughter off her meds. not sure what to doCreated by stephof3at11/5/09 - 12:39 pm|11 Views
Posted To: Living With Epilepsy - Youth Issues
Hi I am new to this but my daughter is going to be 18 soon and the doctor wants to take her off of her meds, She has petit mal seizures so they ask if she has had any and I really don't know. She also has learning delays so sometimes she may not tell me...
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 tinamb
New - depakoteCreated by tinambat11/4/09 - 3:00 pm|10 Views
Posted To: Living With Epilepsy - Youth Issues
My daughter was diaganosed with photo generalized compulsive epilepsy. We tried the lamictal deal. My daughter broke out in a rash, and developed a blister on her lip... Immediately removed her from drug.. She is now on Depakote 250mg 2 pills twice a day.......
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 mamaje...
New - teen complianceCreated by mamaje...at10/4/09 - 6:08 pm|45 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
hi. My 16 yo son has epilepsy and was diagnosed 2 yrs ago. He has gran mal, absence, and myoclonic seizures. He also has Asperger's syndrome. He has never been seizure free for longer than 6 months. A lot of the reason for this is his noncompliance. ...
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 Cali06
New - Medic ID bracelets for toddlersCreated by Cali06at10/4/09 - 1:09 am|8 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
HI I my 3 year old has partial complex seizures that have gotten worse since first being diagnosed in January. Im afraid her seizures are going to develop into tonic clonic's. Her neck is starting to be like a noodle during her seizures and she can't hold...
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 Keagan
New - Not sure where the connection is...= /Created by Keaganat10/23/09 - 5:23 pm|30 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hi, my name is Sebastian, I'll be 17 in about 10 days =)
To get to the point, I've had these weird little 'episodes' since Grade 8 that were so confusing, and I had no idea why they started. Basically, I would get this feeling like I need to use the...
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 elm1401
New - False memories?Created by elm1401at10/13/09 - 1:41 pm|28 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
My child is "remembering" something that did not happen to her. The way I know this, is because I was there when she says this happened, and it simply did NOT happen the way she is remembering. She has been seen by a physician, and their findings...
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 emmale...
New - getting the right medsCreated by emmale...at8/30/09 - 11:27 am|40 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
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 epilep...
New - teen suffering from memory loss... Created by epilep...at9/28/09 - 8:02 pm|40 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
I am 17 years old, and i suffer from memory loss.
for about the past 5 years (has gotten ESPECIALLY bad within the past 2), my memory has been suffering. I can recall long term stuff, but short term is really bad.
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 magpie60
New med. started todayCreated by magpie60at10/21/09 - 3:43 pm|1 View
Posted To: Living With Epilepsy - Youth Issues
Hi everyone,
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 ssoban
absence seizures memoryCreated by ssobanat11/13/08 - 10:35 am|151 Views|12 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter is 11 and was diagnosed a year ago with absence seizures. For the past maybe 6 months I have noticed her memory is terrible. She will know her math facts and then all of a sudden something switches and she no longer remembers them. I have...
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 krisni...
4yr. complex febrile but just had 2 seizures w/out fever please help!Created by krisni...at7/22/09 - 4:36 pm|39 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
I am in desperate need to find answers for my soon to be 4yr old daughter. She had her 1st febrile seizure when she was 5mths. it lasted 55mins. she was put on phenobarbatol but found to be allergic & switched to keppra & giving diastat to give at the onset...
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 robfong
Keppra HeadachesCreated by robfongat9/22/09 - 9:47 pm|24 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter, age 6, has been on Keppra for 18 months. The Keppra controls the seizures pretty well.
All summer she has been complaining of headaches. The headaches are getting worse, and she is also complaining of body aches/cramps.
Has anyone...
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 anna2
behavior specialistCreated by anna2at10/3/09 - 3:48 pm|22 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
As I wrote in my blog, my daughter has absent seizures and she has started school. The teacher has recommended a speech therapist which was no surprise. To my amazement she recommended a behavorial specialist. Now she is 5 and can be a little "WHINEY"...
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 wyboemail
Medication (keppra) dosagesCreated by wyboemailat9/26/08 - 7:10 am|81 Views|10 Comments
Posted To: Living With Epilepsy - Youth Issues
I have posted on here it seems like a million times and I always get good advise. My 10 year old son was seizure free for nine months and now this month he has had three more seizures. Same thing occured last September so that makes me think is there something...
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 Tracy Ann
Vagus Nerve Stimulator - Causing SeizuresCreated by Tracy Annat10/7/09 - 2:12 pm|10 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My daughter had her VNS turned on in July. We had it increased two weeks ago and in the last week she has had a small seizure almost every night during her sleep. I think the VNS is causing them. Before the increase, she would have seizure every...
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 Tracy Ann
Trileptol and BanzelCreated by Tracy Annat10/7/09 - 2:08 pm|5 Views
Posted To: Living With Epilepsy - Youth Issues
My daughter is currently taking Zonegran and Keppra and has the vns. Her seizure activity has increased and her Doctor has offered her to switch the Zonegran for either the Trileptol or Banzel. She has partial complex seizures. Can anyone offer me...
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 nativeli
JME or something else?Created by nativeliat5/30/09 - 10:19 am|23 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi there. I'm a teen living in Central Florida and I was diagnosed with JME almost two years ago now. I was put on the standard Depakote (500mg daily) for the massive myoclonic seizures (I would fall down, drop/throw things etc) but right before I started...
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 rylwlf
Absence Seizures in ToddlersCreated by rylwlfat2/26/05 - 10:22 am|4203 Views|22 Comments
Posted To: Living With Epilepsy - Youth Issues
Just wanted to some insight into others experiences with Absense seizures in toddlers. I have a son who is almost 3 years old. Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...
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 Abbygirl
What goes on during a seizure? Do you remember anything/does it hurt?Created by Abbygirlat4/13/07 - 7:35 pm|1115 Views|8 Comments
Posted To: Living With Epilepsy - Youth Issues
My six year old has generalized Tonic clonic, Drop attack, Myoclonic...Seizures. I just want to know what she is going through. I hurts terribly to see her have seizures but her neuro says they don't hurt and she doesn't remember anything....
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 wyboemail
Vitamins, Supplements that help control seizures. 5 HTP and vitamin ECreated by wyboemailat9/11/08 - 11:07 am|76 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Just looking for people that may have tried 5 HTP and vitamin E in help controlling there seizures. My 10 year old son is taking coromega fish oil, vitamin b complex, magnesium / zink along with his keppra. Just wondering if you had success with anything....
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 Daniella
who am i?Created by Daniellaat2/1/08 - 4:38 am|327 Views|33 Comments
Posted To: Living With Epilepsy - Youth Issues
i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...
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 alexia...
topamax and weight lossCreated by alexia...at9/15/06 - 6:59 pm|18947 Views|59 Comments
Posted To: Living With Epilepsy - Youth Issues
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
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 firefi...
keppraCreated by firefi...at9/23/09 - 8:49 am|6 Views
Posted To: Living With Epilepsy - Youth Issues
dear robfong iwas on keppra and i had arelergric reaction to it my mouth swelled up and thebest thing i would do is get off of it now tell your doctor ...
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 Larah4u
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 Seeker21
13 yr old son with epilepsy and OCDCreated by Seeker21at7/5/06 - 10:11 am|926 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
About 6 weeks ago I found my 13 yr old son unconscious in the middle of a major seizure (grand mal). Until that day I didn't know he was epileptic. He had only seized once before when he was 7 yrs old during a very high fever. We thought...
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 shanno...
Epilepsy From Premature Birth??Created by shanno...at4/27/06 - 3:48 pm|653 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 10yr old son has frontal lobe epilepsy - I met someone the other day who had childhood epilepsy and she said that her dr told her mother that it was due to her being born early (36 wks) and that her lungs had not fully developed...my...
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 breathe
Child just had Right Temporal Lobectomy/right sideCreated by breatheat9/9/09 - 11:17 am|23 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello out there
My son, 7, had a right temporal lobectomy 2 weeks ago...the day after surgery he had 4 seizures in 2 hrs. They looked the same as before (complex partial). The doctors were very concerned that they didnt "take enough out". ...
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 ldybgs79
Toddler with Seizures and Aggressive Behavior PLEASE HELP!!!!Created by ldybgs79at8/24/08 - 5:41 pm|75 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Okay so I am new here we found out earlier this year that our son who is now 2.5 is having complex partial seizures and is currently taking trileptal 2x daily.
We have noticed that he is more aggressive. He was always aggressive but ever since...
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 rodrigoyy
trileptal for a 3 year old girl....Created by rodrigoyyat8/4/08 - 6:52 pm|21 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My daughter had a seizure, she is only 3,5 years old, and was the first time,about a month ago.
Her fever went up very fast ,up to 40 degrees Celsius, and her body got stiff, and after she fainted.We went to ER, they took the liquid from her spine, and...
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 dillongeo
Pls help: is my 5m old baby having infantile epilepsy or spasm (w...Created by dillongeoat9/12/09 - 9:59 am|27 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi all,
I noticed 4 days ago that my 5 months old son sometimes shakes his head with his eyes rolling back. It occurs 7 to 9 times everyday, and lasts for 1 - 2 seconds every time. Mostly this happens when he is sleepy. Other than this abnormal behaviors,...
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 daddio76
7 year old currently taking Depakote-behavioral problemsCreated by daddio76at9/11/09 - 2:15 pm|13 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
I am in need of some feedback from some of you whom may have in the past or are currently going through this as well. I would like to first off take off my hat to those of you that have children with this disorder. Especially those that have a child that...
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 sheilat
Turning pale face and pale/bluish lips after TLE complex partials...Created by sheilatat9/10/09 - 5:55 am|17 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
This happens to my son who is 11 y.o., everytime he has a seizure (several times a day), and it is very noticeable to everyone around. They are complex partials from temporal lobe and only last 10-20 seconds. If I hold my breath for the count of 10,...
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 wyboemail
Is this a seizure or relatedCreated by wyboemailat6/10/09 - 6:02 am|18 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My 10 year old son has BRE. Last night he woke up and was confused asking for things that did not make sense. He was very anxious and agitated. When I got out of the bed he was in the kitchen and then we went to the restroom and he was very gassy and thought...
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 devmarmc
Did your child stop growing???Created by devmarmcat9/4/09 - 5:25 pm|6 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My son is 3 years old and diagnosed March of 08 when he was 18 months old. From the start he has been on Keppra and we see little of the behavioral side effects we were told to look for. What we are seeing and noticing is our son is not getting bigger (mostly...
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 devmarmc
Does anyone else experience this?Created by devmarmcat8/27/09 - 5:47 am|38 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
My 3 year old son was diagnosed at 17mo with epilepsy. He takes Keppra and th seizures are under control. what my question is to anyone out there is when your child has an infection are they more likely to have an episode?
i have noticed everytime...
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 christ...
disturbed sleepCreated by christ...at8/6/09 - 4:53 am|48 Views|8 Comments
Posted To: Living With Epilepsy - Youth Issues
Since our daugther has had her first seizures, she has been sleeping with us. My husband and I trade nights because we get so little sleep with her. She cries out in her sleep several times a night and is constantly moving around. Since we are new...
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 success
Meds causing growth delays?Created by successat7/12/09 - 4:40 pm|33 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
Have any other parents experienced growth delays in their children who have been on epilepsy meds? My child was on Depakote, then switched to Lamictal, and he has experienced delay in his growth with advanced bone age.
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 twinma...
forceful blinking-possible seizure activity?Created by twinma...at7/29/09 - 6:09 pm|23 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi everyone,
I have 8 year old twins that both have epilepsy. They both have had seizures since they were 10 months old. They are both on lamictal. Last week, one of them started blinking his eyes excessively. I was concerned because it was similar...
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 Superi...
Research Participants Urgently NeededCreated by Superi...at8/21/09 - 7:01 am|6 Views
Posted To: Living With Epilepsy - Youth Issues
Leading Marketing Research Company in the Atlanta Georgia Area is
looking for Patients and Caregivers who would be willing to participate
in an interview on September 1st or 2nd concerning Epilepsy Issues.
Participants who qualify will be compensated...
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