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Topic: Living With Epilepsy - Youth Issues

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Nancy A.J
Nancy A.J
New - epilepsy and high blood pressure .... its urgent
Created by Nancy A.Jat11/10/09 - 5:39 am|34 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
hi i have epilepsy since 5-6 years and i'm on depakine lately i was feeling very tired and i went to doctors they told me that i have to monitor my blood pressure for a while as i might have high blood pressure ... plz help me ... give me any advice...
Nerak95
Nerak95
New - Might Calcium Disorders Cause Seizures?
Created by Nerak95at11/7/09 - 5:53 pm|18 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
  I was looking up some stuff online and inadvertently came across this. I didn't read the article thoroughly but I found my fast skimming interesting. http://www.healthresearch.com/myoclonic.htm ~Karen
Blaine
Blaine
New - Help! My 2 year old had a 90 min. seizure? She almost died and we...
Created by Blaineat11/15/09 - 9:43 pm|92 Views|13 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi our daughter is two years old and had a 90 minute seizure. We live in a very rural area and it took that long for an emergency airplane to get to us and stop her seizure. She also aspirated on her vomit, then stopped breathing so they put in a breathing...
cam an...
cam an...
New - Behavior issues and epilepsy
Created by cam an...at11/18/09 - 6:17 pm|20 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi
Awtum
Awtum
New - Does anyone have JME? I have a question.
Created by Awtumat7/20/08 - 12:38 pm|62 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
I've had Epilepsy for pretty much five years now and I've grown more photosensitive and have recently been diagnosed with JME (Juvenile Myoclonic Epliepsy) but I don't have the jerks. I have everything else on the symptoms list but the jerks. Does anyone...
Hamdig
Hamdig
New - Sports Release Form
Created by Hamdigat10/14/09 - 9:10 am|19 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
I'm having a problem getting a medical release form signed for my son, Steven, who wants to participate on his high school swim team. Steven developed partial seizures (about 1 every two months on average) at age eight and had surgery 18 months ago...
angels...
angels...
New - anyone?
Created by angels...at7/5/09 - 5:04 am|32 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
hi, im new here! 18, TLE. is there anyone similar to speak to? would love to hear fom you!
wilyjo...
wilyjo...
New - Epilepsy Aura?
Created by wilyjo...at10/13/09 - 2:49 pm|35 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi everyone, i am 19 and have been having seizures for a couple years now. Doctors have not been able to find out if i have an aura yet, i want to know what exactly happens to you guys so that maybe i can find some relations. Thanks, Liam
Nerak95
Nerak95
New - Program for Caregivers of LGS Patients
Created by Nerak95at11/10/09 - 4:54 pm|2 Views
Posted To: Living With Epilepsy - Youth Issues
FYI, http://finance.yahoo.com/news/Eisai-Launches-New-iw-3742076881.html?x=0&.v=1 ~Karen
ozmomm...
ozmomm...
New - What to expect.. 3day Video EEG for 4 month old
Created by ozmomm...at8/19/09 - 10:43 pm|25 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 4 month old son is scheduled for a 3 Day Video EEG on Friday. Can anyone tell me what to expect from an Infant stand point?
daisyc...
daisyc...
New - DRIVING [Medical Review Board sucks]
Created by daisyc...at12/14/08 - 5:13 pm|145 Views|21 Comments
Posted To: Living With Epilepsy - Youth Issues
Yeah, so pretty much I have been seizure free for a little over a year now. I am a pretty good driver (been practicing with my learner's permit) and I am READY to get my regular license. In the state of FL, if you have had a seizure in less than 24 mo., you...
stephof3
stephof3
New - Hi they want to take my daughter off her meds. not sure what to do
Created by stephof3at11/5/09 - 12:39 pm|11 Views
Posted To: Living With Epilepsy - Youth Issues
Hi I am new to this but my daughter is going to be 18 soon and the doctor wants to take her off of her meds,  She has petit mal seizures so they ask if she has had any and I really don't know.  She also has learning delays so sometimes she may not tell me...
tinamb
tinamb
New - depakote
Created by tinambat11/4/09 - 3:00 pm|10 Views
Posted To: Living With Epilepsy - Youth Issues
My daughter was diaganosed with photo generalized compulsive epilepsy. We tried the lamictal deal. My daughter broke out in a rash, and developed a blister on her lip... Immediately removed her from drug.. She is now on Depakote 250mg 2 pills twice a day.......
mamaje...
mamaje...
New - teen compliance
Created by mamaje...at10/4/09 - 6:08 pm|45 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
hi.  My 16 yo son has epilepsy and was diagnosed 2 yrs ago.  He has gran mal, absence, and myoclonic seizures.  He also has Asperger's syndrome.  He has never been seizure free for longer than 6 months.  A lot of the reason for this is his noncompliance. ...
Cali06
Cali06
New - Medic ID bracelets for toddlers
Created by Cali06at10/4/09 - 1:09 am|8 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
HI I my 3 year old has partial complex seizures that have gotten worse since first being diagnosed in January. Im afraid her seizures are going to develop into tonic clonic's. Her neck is starting to be like a noodle during her seizures and she can't hold...
Keagan
Keagan
New - Not sure where the connection is...= /
Created by Keaganat10/23/09 - 5:23 pm|30 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hi, my name is Sebastian, I'll be 17 in about 10 days =) To get to the point, I've had these weird little 'episodes' since Grade 8 that were so confusing, and I had no idea why they started. Basically, I would get this feeling like I need to use the...
elm1401
elm1401
New - False memories?
Created by elm1401at10/13/09 - 1:41 pm|28 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
My child is "remembering" something that did not happen to her.  The way I know this, is because I was there when she says this happened, and it simply did NOT happen the way she is remembering.  She has been seen by a physician, and their findings...
emmale...
emmale...
New - getting the right meds
Created by emmale...at8/30/09 - 11:27 am|40 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
epilep...
epilep...
New - teen suffering from memory loss...
Created by epilep...at9/28/09 - 8:02 pm|40 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
I am 17 years old, and i suffer from memory loss. for about the past 5 years (has gotten ESPECIALLY bad within the past 2), my memory has been suffering. I can recall long term stuff, but short term is really bad.
magpie60
magpie60
New med. started today
Created by magpie60at10/21/09 - 3:43 pm|1 View
Posted To: Living With Epilepsy - Youth Issues
Hi everyone,
ssoban
ssoban
absence seizures memory
Created by ssobanat11/13/08 - 10:35 am|151 Views|12 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter is 11 and was diagnosed a year ago with absence seizures.  For the past maybe 6 months I have noticed her memory is terrible.  She will know her math facts and then all of a sudden something switches and she no longer remembers them.  I have...
krisni...
krisni...
4yr. complex febrile but just had 2 seizures w/out fever please help!
Created by krisni...at7/22/09 - 4:36 pm|39 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
I am in desperate need to find answers for my soon to be 4yr old daughter. She had her 1st febrile seizure when she was 5mths. it lasted 55mins. she was put on phenobarbatol but found to be allergic & switched to keppra & giving diastat to give at the onset...
robfong
robfong
Keppra Headaches
Created by robfongat9/22/09 - 9:47 pm|24 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter, age 6, has been on Keppra for 18 months.  The Keppra controls the seizures pretty well. All summer she has been complaining of headaches. The headaches are getting worse, and she is also complaining of body aches/cramps. Has anyone...
anna2
anna2
behavior specialist
Created by anna2at10/3/09 - 3:48 pm|22 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
As  I wrote in my blog, my daughter has absent seizures and she has started school.  The teacher has recommended a speech therapist which was no surprise. To my amazement she recommended a behavorial specialist. Now she is 5 and can be a little "WHINEY"...
wyboemail
wyboemail
Medication (keppra) dosages
Created by wyboemailat9/26/08 - 7:10 am|81 Views|10 Comments
Posted To: Living With Epilepsy - Youth Issues
I have posted on here it seems like a million times and I always get good advise. My 10 year old son was seizure free for nine months and now this month he has had three more seizures. Same thing occured last September so that makes me think is there something...
Tracy Ann
Tracy Ann
Vagus Nerve Stimulator - Causing Seizures
Created by Tracy Annat10/7/09 - 2:12 pm|10 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My daughter had her VNS turned on in July.  We had it increased two weeks ago and in the last week she has had a small seizure almost every night during her sleep.   I think the VNS is causing them.  Before the increase, she would have seizure every...
Tracy Ann
Tracy Ann
Trileptol and Banzel
Created by Tracy Annat10/7/09 - 2:08 pm|5 Views
Posted To: Living With Epilepsy - Youth Issues
My daughter is currently taking Zonegran and Keppra and has the vns.  Her seizure activity has increased and her Doctor has offered her to switch the Zonegran for either the Trileptol or Banzel.   She has partial complex seizures.  Can anyone offer me...
nativeli
nativeli
JME or something else?
Created by nativeliat5/30/09 - 10:19 am|23 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi there. I'm a teen living in Central Florida and I was diagnosed with JME almost two years ago now. I was put on the standard Depakote (500mg daily) for the massive myoclonic seizures (I would fall down, drop/throw things etc) but right before I started...
rylwlf
rylwlf
Absence Seizures in Toddlers
Created by rylwlfat2/26/05 - 10:22 am|4203 Views|22 Comments
Posted To: Living With Epilepsy - Youth Issues
Just wanted to some insight into others experiences with Absense seizures in toddlers.  I have a son who is almost 3 years old.  Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...
Abbygirl
Abbygirl
What goes on during a seizure? Do you remember anything/does it hurt?
Created by Abbygirlat4/13/07 - 7:35 pm|1115 Views|8 Comments
Posted To: Living With Epilepsy - Youth Issues
My six year old has generalized Tonic clonic, Drop attack, Myoclonic...Seizures. I just want to know what she is going through. I hurts terribly to see her have seizures but her neuro says they don't hurt and she doesn't remember anything....
wyboemail
wyboemail
Vitamins, Supplements that help control seizures. 5 HTP and vitamin E
Created by wyboemailat9/11/08 - 11:07 am|76 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Just looking for people that may have tried 5 HTP and vitamin E in help controlling there seizures. My 10 year old son is taking coromega fish oil, vitamin b complex, magnesium / zink along with his keppra. Just wondering if you had success with anything....
Daniella
Daniella
who am i?
Created by Daniellaat2/1/08 - 4:38 am|327 Views|33 Comments
Posted To: Living With Epilepsy - Youth Issues
i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...
alexia...
alexia...
topamax and weight loss
Created by alexia...at9/15/06 - 6:59 pm|18947 Views|59 Comments
Posted To: Living With Epilepsy - Youth Issues
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
firefi...
firefi...
keppra
Created by firefi...at9/23/09 - 8:49 am|6 Views
Posted To: Living With Epilepsy - Youth Issues
dear robfong iwas on keppra and i had arelergric reaction to it my mouth swelled up      and        thebest thing       i would do is get off of it now   tell your doctor                                                                        ...
Larah4u
Larah4u
New and scared for my 5 year old son!
Created by Larah4uat9/21/09 - 2:48 pm|30 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Seeker21
Seeker21
13 yr old son with epilepsy and OCD
Created by Seeker21at7/5/06 - 10:11 am|926 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
About 6 weeks ago I found my 13 yr old son unconscious in the middle of a major seizure (grand mal). Until that day I didn't know he was epileptic. He had only seized once before when he was 7 yrs old during a very high fever. We thought...
shanno...
shanno...
Epilepsy From Premature Birth??
Created by shanno...at4/27/06 - 3:48 pm|653 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 10yr old son has frontal lobe epilepsy - I met someone the other day who had childhood epilepsy and she said that her dr told her mother that it was due to her being born early (36 wks) and that her lungs had not fully developed...my...
breathe
breathe
Child just had Right Temporal Lobectomy/right side
Created by breatheat9/9/09 - 11:17 am|23 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello out there My son, 7, had a right temporal lobectomy 2 weeks ago...the day after surgery he had 4 seizures in 2 hrs.  They looked the same as before (complex partial).  The doctors were very concerned that they didnt "take enough out". ...
ldybgs79
ldybgs79
Toddler with Seizures and Aggressive Behavior PLEASE HELP!!!!
Created by ldybgs79at8/24/08 - 5:41 pm|75 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Okay so I am new here we found out earlier this year that our son who is now 2.5 is having complex partial seizures and is currently taking trileptal 2x daily.  We have noticed that he is more aggressive.  He was always aggressive but ever since...
rodrigoyy
rodrigoyy
trileptal for a 3 year old girl....
Created by rodrigoyyat8/4/08 - 6:52 pm|21 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My daughter had a seizure, she is only 3,5 years old, and was the first time,about a month ago. Her fever went up very fast ,up to 40 degrees Celsius, and her body got stiff, and after she fainted.We went to ER, they took the liquid from her spine, and...
dillongeo
dillongeo
Pls help: is my 5m old baby having infantile epilepsy or spasm (w...
Created by dillongeoat9/12/09 - 9:59 am|27 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi all,  I noticed 4 days ago that my 5 months old son sometimes shakes his head with his eyes rolling back. It occurs 7 to 9 times everyday, and lasts for 1 - 2 seconds every time. Mostly this happens when he is sleepy. Other than this abnormal behaviors,...
daddio76
daddio76
7 year old currently taking Depakote-behavioral problems
Created by daddio76at9/11/09 - 2:15 pm|13 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
I am in need of some feedback from some of you whom may have in the past or are currently going through this as well. I would like to first off take off my hat to those of you that have children with this disorder. Especially those that have a child that...
sheilat
sheilat
Turning pale face and pale/bluish lips after TLE complex partials...
Created by sheilatat9/10/09 - 5:55 am|17 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
This happens to my son who is 11 y.o., everytime he has a seizure (several times a day), and it is very noticeable to everyone around.  They are complex partials from temporal lobe and only last 10-20 seconds.  If I hold my breath for the count of 10,...
wyboemail
wyboemail
Is this a seizure or related
Created by wyboemailat6/10/09 - 6:02 am|18 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My 10 year old son has BRE. Last night he woke up and was confused asking for things that did not make sense. He was very anxious and agitated. When I got out of the bed he was in the kitchen and then we went to the restroom and he was very gassy and thought...
devmarmc
devmarmc
Did your child stop growing???
Created by devmarmcat9/4/09 - 5:25 pm|6 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My son is 3 years old and diagnosed March of 08 when he was 18 months old. From the start he has been on Keppra and we see little of the behavioral side effects we were told to look for. What we are seeing and noticing is our son is not getting bigger (mostly...
devmarmc
devmarmc
Does anyone else experience this?
Created by devmarmcat8/27/09 - 5:47 am|38 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
My 3 year old son was diagnosed at 17mo with epilepsy. He takes Keppra and th seizures are under control. what my question is to anyone out there is when your child has an infection are they more likely to have an episode? i have noticed everytime...
christ...
christ...
disturbed sleep
Created by christ...at8/6/09 - 4:53 am|48 Views|8 Comments
Posted To: Living With Epilepsy - Youth Issues
Since our daugther has had her first seizures, she has been sleeping with us.  My husband and I trade nights because we get so little sleep with her.  She cries out in her sleep several times a night and is constantly moving around.  Since we are new...
success
success
Meds causing growth delays?
Created by successat7/12/09 - 4:40 pm|33 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
Have any other parents experienced growth delays in their children who have been on epilepsy meds? My child was on Depakote, then switched to Lamictal, and he has experienced delay in his growth with advanced bone age.
twinma...
twinma...
forceful blinking-possible seizure activity?
Created by twinma...at7/29/09 - 6:09 pm|23 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi everyone, I have 8 year old twins that both have epilepsy.  They both have had seizures since they were 10 months old. They are both on lamictal. Last week, one of them started blinking his eyes excessively. I was concerned because it was similar...
Superi...
Superi...
Research Participants Urgently Needed
Created by Superi...at8/21/09 - 7:01 am|6 Views
Posted To: Living With Epilepsy - Youth Issues
Leading Marketing Research Company in the Atlanta Georgia Area is looking for Patients and Caregivers who would be willing to participate in an interview on September 1st or 2nd concerning Epilepsy Issues. Participants who qualify will be compensated...

 
alexia...
alexia...
topamax and weight loss
Created by alexia...at9/15/06 - 6:59 pm|18947 Views|59 Comments
Posted To: Living With Epilepsy - Youth Issues
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
oh6512
oh6512
AMITRIPTYLIN
Created by oh6512at1/9/07 - 8:23 pm|4277 Views|12 Comments
Posted To: Living With Epilepsy - Youth Issues
hi every one do you know this med AMITRIPTYLIN treat for wat? i have bad headaches and numb , tingling my foot and ams my doc neo. just gave me this i realy don't know he treat me for wat? i just want my headaches like migraine...
rylwlf
rylwlf
Absence Seizures in Toddlers
Created by rylwlfat2/26/05 - 10:22 am|4203 Views|22 Comments
Posted To: Living With Epilepsy - Youth Issues
Just wanted to some insight into others experiences with Absense seizures in toddlers.  I have a son who is almost 3 years old.  Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...
moffatkj
moffatkj
Vagus Nerve Stimulation
Created by moffatkjat2/4/05 - 3:30 pm|2909 Views|31 Comments
Posted To: Living With Epilepsy - Youth Issues
I am trying to find out information on side effects in children. My daughter is 9 years old, d we are considering this operation. Anyone that can help? She has absence seizures....
shanno...
shanno...
Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
Created by shanno...at9/7/06 - 4:54 pm|2331 Views|26 Comments
Posted To: Living With Epilepsy - Youth Issues
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...
grammyksj
grammyksj
WHAT KIND OF SEIZURE////
Created by grammyksjat1/5/06 - 5:17 am|2285 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
hi, im grammy my grandson has seizures he dosent convulse his leg and or legs go numb and he cant stand up he also complains with a headache and stomach ache hes on keppa but still having them he always knows when he is about to have...
Aimee788
Aimee788
Are there any teens here?
Created by Aimee788at4/18/06 - 12:48 pm|2210 Views|22 Comments
Posted To: Living With Epilepsy - Youth Issues
From what i've seen, there's only adults here. I'm 17 and i'd like to find someone near my age to look around for. ...
Michae...
Michae...
Juvenile Myoclonic Epilepsy
Created by Michae...at3/20/06 - 9:45 am|2150 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello, Please excuse me if I sound like I don't know what I'm talking about. I don't. The possibility of epilepsy in our family has just very recently been brought up. Specifically -- juvenile myoclonic epilepsy. Perhaps...
Healer
Healer
"feeling" others siezures
Created by Healerat6/22/06 - 3:27 am|2096 Views|31 Comments
Posted To: Living With Epilepsy - Youth Issues
I am blessed to have certain gifts and one that I found by accident is the ability to tell when the little girl I am an Aide for has a siezure coming. It may sound strange but I can be near her and feel her aura start, look at her...
wendym...
wendym...
Epilepsy and Stuttering and/or speech problems.
Created by wendym...at1/17/05 - 6:59 pm|1959 Views|18 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi, my 4 year old son was diagnosed with Epilepsy about 3 months ago.  When he was 2 1/2 years old the doctors were concerned because he didn't talk much at all and what he did say was difficult to understand, so they reccomended...
boychi...
boychi...
How to get my child to take this serious.
Created by boychi...at12/29/05 - 7:58 pm|1943 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
Travis is 15, almost 16 had a GM sz Monday. I'm concerned about talking to him, but now scaring him, just getting the info to him....
Cin2u7
Cin2u7
need info on benign rolandic epilepsy
Created by Cin2u7at4/25/06 - 8:20 am|1906 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter was diagnosed with benign rolandic epilepsy at the age of 7. She went seizure free for 18 months and then had clusters of seizures for about 3months totalling 8 in all. She was on carbatrol for 2 years from the age of...
amycle...
amycle...
complex partial seizures in the parietal and occipital lobes
Created by amycle...at1/12/05 - 4:21 am|1671 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 2 1/2 year has Complex partial seizures with the focal points being on the left parietal and occipital lobes of the brain. I have found very little info on what he might experience. The only thing I have found was he could lose...
drivera
drivera
Need someone to talk with my 12yr old daughter
Created by driveraat5/18/06 - 6:00 am|1625 Views|21 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter is 12 in the 6th grade she has seizures at night when she is sleeping. I want her to know someone either her age or a little older that is going through what she is so she won't feel like she is the only one. Please.... Thank...
abonnier
abonnier
19 months old and onto a 5th medicine
Created by abonnierat2/18/06 - 1:57 am|1600 Views|11 Comments
Posted To: Living With Epilepsy - Youth Issues
My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...
creepm...
creepm...
Red Bull
Created by creepm...at1/7/06 - 6:45 pm|1456 Views|14 Comments
Posted To: Living With Epilepsy - Youth Issues
I am a student obviously and i drink a lot of Red Bull can that affect me and my meds?...
DZ
DZ
Puberty Seizures?
Created by DZat4/4/07 - 6:10 pm|1428 Views|21 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter was diagnosed with complex partial seizures when she was 6 years old. By the age of 8 1/2 she was finally seizure free and off all medications. She has not had any seizures until now age 12. She has just started her period....
r menashe
r menashe
Benign Rolandic Epilep.
Created by r menasheat2/24/07 - 2:09 pm|1414 Views|10 Comments
Posted To: Living With Epilepsy - Youth Issues
Was wondering if anyone here had a child diagnosed with this type that outgrew by puberty like they say. My daughter is 8 and was wondering if this will really be a reality?...
Lisaan...
Lisaan...
Lamictal
Created by Lisaan...at2/11/07 - 3:51 pm|1388 Views|13 Comments
Posted To: Living With Epilepsy - Youth Issues
my daughter is 4 she has had epilepsy for about 2 years last week she had a seizure it was only 2 1/2 min. but it was differnt than any others she normally goes stiff as a board eyes roll back in her head and she wets her pants this...
Soccer...
Soccer...
Not telling people
Created by Soccer...at10/4/06 - 7:26 pm|1383 Views|15 Comments
Posted To: Living With Epilepsy - Youth Issues
Ok well my sister and her boyfriend have motorcycles and one of my sisters friends yelled at me for not telling him that i have epilepsy... i think that it was the right thing to do becuase i havent had one in 1 year and i was doing...
r menashe
r menashe
trileptal-side effects
Created by r menasheat2/17/07 - 8:01 pm|1360 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
Side effects of trileptal at bedtime for Benign Rolandic Epilepsy My daughter was just put on trileptal at bedtime after suffering 6 seizure this past month. Her first episode was in august and she was free until this past month....
mamaof...
mamaof...
status epilepticus in 5 year old - any info appreciated
Created by mamaof...at5/10/06 - 4:05 am|1320 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello eveyone. My five year old daughter was just discharged from the hopital after a two day stay. She had her second seizure (that we have witnessed) the other night. Like her first seizure, she had just fallen asleep on the living...
bradser
bradser
My sons absense symptoms
Created by bradserat2/10/06 - 1:48 am|1277 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
i have a 5 year old son who is in the process of been diagnosed with absense seizures. he will shortly be put on medication. his symptoms are cramps in his stomach,staring and drooling and when he has a really bad one he slurs his...
Becki020
Becki020
Petit Mal Epilepsy
Created by Becki020at6/5/06 - 8:19 am|1190 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi there i am now 16, and i have had petit mal epilepsy for 11 nearly 12 years. i find it quite hard to cope with especially the fact i wont be able to start driving in 4 months and many of my friends will. I dont really know how...
caballis
caballis
seizures and mood problems
Created by caballisat1/8/05 - 6:52 am|1190 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi I'm new here we have a 8yr. boy who last april had a seizure in his sleep. later he had a eeg done it showed he had alot of miss firing of the brian. Befor all that he has been being treated and testing for adhd and put on adderall...

 
MichaelK
MichaelK
Wife doesn't think small seizures are important.
Created by MichaelKat6/30/09 - 7:21 am|29 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
I suffer from several types of seizures, including simple partial, atonic, tonic-clonic, and complex partial. I have had E for over 27 years, but for the past 2 years I have had an abnormally high number of seizures. Tonight I had a simple partial seizure...
Healer
Healer
"feeling" others siezures
Created by Healerat6/22/06 - 3:27 am|2096 Views|31 Comments
Posted To: Living With Epilepsy - Youth Issues
I am blessed to have certain gifts and one that I found by accident is the ability to tell when the little girl I am an Aide for has a siezure coming. It may sound strange but I can be near her and feel her aura start, look at her...
help4m...
help4m...
*HELP* Anyone Else? Son (11yr) w/ absence(quick eye roll), myoclo...
Created by help4m...at5/11/07 - 5:20 pm|300 Views
Posted To: Living With Epilepsy - Youth Issues
My son was diagnosed 7 months ago. His seizures are very quick eye rolls. He can talk & walk during them. If they progress, he has myoclonic seizures (quick twitches in foot, arm, or a shiver). These are easily missed. We believe...
tak
tak
10 y.o. like 'drunken sailor'; doesn't eat
Created by takat8/25/06 - 8:25 pm|496 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Our son is nearly 10. For three years now he has been taking medication to control fits. This is after an initial grand mal that alerted us to his problem. An EEG showed that he was having almost continous absence seizures and petit...
pgd
pgd
10 year old child - short attention span - changes four times a minute
Created by pgdat7/22/07 - 3:24 pm|273 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Is a short attention span which changes four times a minute in a ten year old child more closely associated with ADHD or epilepsy? ...
Gracie...
Gracie...
11 mon old with myoclonic and tonic, help please, advise
Created by Gracie...at4/23/07 - 8:21 pm|687 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
I am new to this site. My 11 month old, Gracie has myoclonic and atonic seizures. She was diagnosed with myoclonic in January, treated with Kepra which stopped the myoclonic episodes but then the "head drop" seizures became more prevelant....
Seeker21
Seeker21
13 yr old son with epilepsy and OCD
Created by Seeker21at7/5/06 - 10:11 am|926 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
About 6 weeks ago I found my 13 yr old son unconscious in the middle of a major seizure (grand mal). Until that day I didn't know he was epileptic. He had only seized once before when he was 7 yrs old during a very high fever. We thought...
schuffert
schuffert
14 Month Old Seizure Disorder-Monthly seizures
Created by schuffertat8/1/06 - 9:14 pm|544 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My daughter began having seizures at 6.5 months of age. They are partial complex seizures, sometimes secondary generalized. They have all been status epilepticus, ranging in time from 20 mins to 3 hours, all requiring Diastat to stop....
AnyasMom
AnyasMom
19 month old with seizure history
Created by AnyasMomat6/11/06 - 5:15 pm|551 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
My 19 month old daughter has had 4 seizures in the last year - all afebrile - all tonic clonic. All test have come back normal and we are not able to pinpoint a cause or trigger. The last seizure was on Saturday (ironically 1 year...
abonnier
abonnier
19 months old and onto a 5th medicine
Created by abonnierat2/18/06 - 1:57 am|1600 Views|11 Comments
Posted To: Living With Epilepsy - Youth Issues
My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...
1981Lisa
1981Lisa
2 hour seizure after no seizures for 2 yrs
Created by 1981Lisaat12/18/07 - 8:00 pm|78 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
brando...
brando...
20 and lost in life......
Created by brando...at9/6/07 - 7:59 pm|297 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
I have been having inractible gran mal seizures since I was 16. My grandparents raised me and they immediately took me to the hospital and got me steady on a regimend of seizure medications. I didn't like the medications, they made...
Jennif...
Jennif...
21 month old with 2 normal EEGs - possible atonic seizures
Created by Jennif...at1/17/07 - 11:36 am|743 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
I was wondering if anyone can relate to my case. I have a 21 month old that has passed out 6 times. It only happens about once every 2 months. The episodes last 1 minute and he gets so pale and his lips turn blue. He is totally...
epilep...
epilep...
22nd Annual Family Camp Fun & Friendship
Created by epilep...at9/6/06 - 6:38 pm|274 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
The Epilepsy Foundation of Greater Los Angeles is pleased to announce its 22nd Annual Camp Family Fun & Friendship on September 15-17, 2006, in Malibu/Calabasas, California. This Camp is for children with epilepsy between the ages...
Shell2
Shell2
2nd child just started on seizure meds
Created by Shell2at3/8/07 - 4:28 pm|452 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
HI, I have two children my first is 11 years old. She had her first grand mal at age 6 weeks then nothing until she was 13 months old with the second grand mal and the start of an endless cycle of no answers. She had had many eeg's...
Stefan...
Stefan...
3 year old on Keppra
Created by Stefan...at4/23/08 - 6:06 pm|78 Views|13 Comments
Posted To: Living With Epilepsy - Youth Issues
My 3 year old has been on Keppra for over a year and it seems like her outburst get worse!  I don't know if it is her being her 3 year old INDEPENDENT self or maybe the Keppra.  I am not one to use her medication as a crutch and I just think it is just...
rebelm...
rebelm...
3 year old with intractable epilepsy
Created by rebelm...at5/14/07 - 8:14 pm|653 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
my daughter is 3 yrs old and has been diagnosed with intractable epilepsy. There has not been much luck with medication. She has been on Lamictal, Trileptal and is currently on Topamax. All of the meds have messed with her emotions...
rebelm...
rebelm...
3 year old with intractable epilepsy
Created by rebelm...at5/14/07 - 8:14 pm|351 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
my daughter is 3 yrs old and has been diagnosed with intractable epilepsy. There has not been much luck with medication. She has been on Lamictal, Trileptal and is currently on Topamax. All of the meds have messed with her emotions...
lillia...
lillia...
3 yr old having Migraines and on Triplital
Created by lillia...at12/3/07 - 8:46 am|82 Views
Posted To: Living With Epilepsy - Youth Issues
My 3 yr old is being weaned off her meds to see If she has outgrown her seizures or not. We are in the process now. Before we starting weaning she started complaining about sudden headaches. Took her to doc and they thought it might be migraines. If it...
efullam
efullam
3 yr old with uncontrolled seizures
Created by efullamat11/25/07 - 7:27 pm|150 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
My child is currently 3 years old. Her first seizure was at 14 months. We have been through several medications including phenobarbital, trileptic, lamictal combined with Keppra. None seem to be working. We have initial success and after a few months,...
jenhow...
jenhow...
4th medicine in 8 months
Created by jenhow...at6/11/08 - 1:27 pm|19 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
kbabcock
kbabcock
4yo Diagnosed with Seizure Disorder
Created by kbabcockat5/25/08 - 4:56 am|37 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Our four year old son was diagnosed with seizure disorder on 5/7/08 by a neurologist. He was prescribed lamictal by the neurologist (5mg twice a day ramping to 75mg per day). Here is his History:
krisni...
krisni...
4yr. complex febrile but just had 2 seizures w/out fever please help!
Created by krisni...at7/22/09 - 4:36 pm|39 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
I am in desperate need to find answers for my soon to be 4yr old daughter. She had her 1st febrile seizure when she was 5mths. it lasted 55mins. she was put on phenobarbatol but found to be allergic & switched to keppra & giving diastat to give at the onset...
Natarsha
Natarsha
5 year old Step Sister, school, home life etc
Created by Natarshaat3/20/07 - 7:03 pm|435 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Even before my step sister was diagnosed with a tendency to epilepsy, she has had behavior problems, can't concentrate, isn't interested in learning anything, limited speech range, dependent upon carrying a toy around everywhere for...
jdye505
jdye505
5 yo with seizures - thoughts?
Created by jdye505at12/18/07 - 7:33 pm|71 Views
Posted To: Living With Epilepsy - Youth Issues
Hi, I'm brand new here and haven't yet had time to look through too much of the site. So far, I'm still feeling pretty lost.