Place Your Advertisement Here
All ad revenues support the mission of the Epilepsy Therapy Project
 

  • Epilepsy First Aid
  • Seizure Medication
  • Videos
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project

Topic: Living With Epilepsy - Youth Issues

Register to Participate
 
rodand...
rodand...
New - My son has BRE and also has jerking and twitching day and night
Created by rodand...at7/4/09 - 3:53 am|3 Views
Posted To: Living With Epilepsy - Youth Issues
My son is nearly 8 years old, and was diagnosed in Dec 2008 with BRE after an EEG.  He has mainly had his seizures in the evening in bed before falling asleep.  He also has partial seizures which just involve his tongue and face, which scare him as they...
ljh
ljh
New - Allergic Reactions to all medication!! Help!
Created by ljhat6/12/09 - 8:37 am|11 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hello, I am the foster mother of a 13 year old boy and have been for over 2 years.  He was diagnosed with epilepsy at the age of 8 and when he came to live with us at age 11 his epilepsy was well controlled on Tegretol and had been since the age of 8. ...
MichaelK
MichaelK
New - Wife doesn't think small seizures are important.
Created by MichaelKat6/30/09 - 7:21 am|23 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
I suffer from several types of seizures, including simple partial, atonic, tonic-clonic, and complex partial. I have had E for over 27 years, but for the past 2 years I have had an abnormally high number of seizures. Tonight I had a simple partial seizure...
wyboemail
wyboemail
New - Dreams / Nightmares leading to seizures or related??
Created by wyboemailat6/30/09 - 8:41 am|7 Views
Posted To: Living With Epilepsy - Youth Issues
odey8
odey8
New - epilepsy and physical activity
Created by odey8at11/17/07 - 8:37 am|211 Views|11 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi everybody! I'm a graduate student in Boston working on a project for one of my classes. I am designing an exercise program for a teenage boy with epilepsy. I would love to hear your feedback to the following questions about physical activity - it would...
ny2ga67
ny2ga67
New - My childs story
Created by ny2ga67at6/27/09 - 11:18 am|5 Views
Posted To: Living With Epilepsy - Youth Issues
My 9 year old son has generalized epilespy, juvenile Myoclonic Epilespy.  He has been on 7 different meds and has bad side effects from them.  He is currently taking 3 different meds now that are tolerable, but still gets 3-7 seizures daily.  When we try...
naivep...
naivep...
New - A Writer's Research: Voices and Epilepsy
Created by naivep...at6/25/09 - 12:37 pm|5 Views
Posted To: Living With Epilepsy - Youth Issues
I'm a young writer intending to write a piece featuring a teenaged boy with epilepsy. I'm in the early stages of development. My character is around sixteen years old. His epilepsy is a recent diagnosis. I intend for it to be like the "absence seizures"...
daisyc...
daisyc...
New - DRIVING [Medical Review Board sucks]
Created by daisyc...at12/14/08 - 5:13 pm|124 Views|19 Comments
Posted To: Living With Epilepsy - Youth Issues
Yeah, so pretty much I have been seizure free for a little over a year now. I am a pretty good driver (been practicing with my learner's permit) and I am READY to get my regular license. In the state of FL, if you have had a seizure in less than 24 mo., you...
rileymom
rileymom
New - special needs bed
Created by rileymomat6/10/07 - 12:18 pm|597 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter is 5 and 42" tall. Riley is developmentally delayed and has some autistic characteristics. She is outgrowing her crib and crib tent set up. I need another type of bed that will be safe and secure for her to sleep in....
rylwlf
rylwlf
New - Absence Seizures in Toddlers
Created by rylwlfat2/26/05 - 10:22 am|4180 Views|18 Comments
Posted To: Living With Epilepsy - Youth Issues
Just wanted to some insight into others experiences with Absense seizures in toddlers.  I have a son who is almost 3 years old.  Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...
yourba...
yourba...
New - Computer screens at school..
Created by yourba...at5/26/09 - 3:45 pm|39 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
annmar...
annmar...
New - school and grades
Created by annmar...at5/23/09 - 10:39 am|40 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
my daughter is having sz in school not falling to the ground but just not able to focus.  Her grades have really gone down hill.  I feel the teachers don't get it. Does anyone have a suggestions.
Cin2u7
Cin2u7
New - need info on benign rolandic epilepsy
Created by Cin2u7at4/25/06 - 8:20 am|1899 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter was diagnosed with benign rolandic epilepsy at the age of 7. She went seizure free for 18 months and then had clusters of seizures for about 3months totalling 8 in all. She was on carbatrol for 2 years from the age of...
Daniella
Daniella
New - who am i?
Created by Daniellaat2/1/08 - 4:38 am|231 Views|22 Comments
Posted To: Living With Epilepsy - Youth Issues
i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...
onemarvy
onemarvy
New - Epileptic Seizure Monitor Alarm System
Created by onemarvyat2/18/08 - 10:46 pm|201 Views|10 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello everyone, Our daughter's seizure have been occurring during the time when she first falls asleep (she's had 2 and they both happened during that time.)  Since she had her first one (August '07), she has been sleeping with us in our room and her...
wyboemail
wyboemail
New - Is this a seizure or related
Created by wyboemailat6/10/09 - 6:02 am|6 Views
Posted To: Living With Epilepsy - Youth Issues
My 10 year old son has BRE. Last night he woke up and was confused asking for things that did not make sense. He was very anxious and agitated. When I got out of the bed he was in the kitchen and then we went to the restroom and he was very gassy and thought...
HallMc...
HallMc...
New - 5-month old losing sucking instinct?
Created by HallMc...at4/16/09 - 11:28 pm|18 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hi: Our five month old daughter was diagnosed with tuberous sclerosis last month. She was having seizures and infantile spasms. She's currently taking Depakote, Zonisamide, and Sabril. Her seizures and spasms are pretty much controlled at this point....
nativeli
nativeli
JME or something else?
Created by nativeliat5/30/09 - 10:19 am|9 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hi there. I'm a teen living in Central Florida and I was diagnosed with JME almost two years ago now. I was put on the standard Depakote (500mg daily) for the massive myoclonic seizures (I would fall down, drop/throw things etc) but right before I started...
ny2ga67
ny2ga67
can someone help shed some light on this?
Created by ny2ga67at5/24/09 - 12:29 pm|37 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi my son Dylan has Juvnile Myoclonic Epilepsy.  He has absence, myoclonic, tonic Clonic, clusters and Status Epilepsy.  Lately I have been noticing a pattern with him.  Whenever he has a overstimulating day that night he will lose control of his bladder....
khend
khend
Did meds during pregnancy cause my daughters seizure disorder?
Created by khendat4/7/09 - 9:43 am|15 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
I have a daughter who is almost 6.  She had her first seizure almost a year and a half ago.  Her second seizure occurred last week.  I took the antidepressant Celexa while I was pregnant with her.  Are there any other moms out there who also took Celexa...
ROC-D
ROC-D
This Is How I Feel ?
Created by ROC-Dat4/23/09 - 6:05 pm|62 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
alexia...
alexia...
topamax and weight loss
Created by alexia...at9/15/06 - 6:59 pm|18924 Views|57 Comments
Posted To: Living With Epilepsy - Youth Issues
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
w1ll
w1ll
7 year old boy desperately in need of help
Created by w1llat5/24/09 - 6:57 am|11 Views
Posted To: Living With Epilepsy - Youth Issues
Dear Angels out there in the world, I really in need of help by anyone who can help to cure or at least ease the pain of a 7 year old boy. My friend's son is boy who has been suffering with an unknown disease however few doctor diagnose him as an epilepsy/meningoencephalitis/encephalitis....
JanineW
JanineW
Side effects in Toddlers on Lamictal?
Created by JanineWat10/8/08 - 10:57 am|19 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My son Eric is 2 years and 8 months old. He began having and was diagnosed with Infantile Spasms at 9 months. He has been seizure free fror 18 months and is being weaned off vigabatrin and starting Lamictal for precautionary measures as his eeg is still not normal.
mclayn...
mclayn...
To medicate or not to medicate my 10 year old with simple partial...
Created by mclayn...at5/18/09 - 7:45 am|38 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
My 10 year old was diagnosed 2 years ago with simple partial seizures.  They have been so infrequent and the meds we tried originally made him moody and mean.  (which he has never been)  So we chose not to medicate.  He has 3-4 seizures during a 3-6...
shanno...
shanno...
Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
Created by shanno...at9/7/06 - 4:54 pm|2317 Views|26 Comments
Posted To: Living With Epilepsy - Youth Issues
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...
Kutter...
Kutter...
Seizures & Thyroid or Metabolic Syndrome
Created by Kutter...at12/30/08 - 11:55 am|30 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
cutty
cutty
Smoking marijuana and drinking
Created by cuttyat2/6/08 - 10:51 pm|805 Views|68 Comments
Posted To: Living With Epilepsy - Youth Issues
I was just reading on this website all of the forums about drinking and smoking cigarettes and how bad they are for you. It didnt say anything about weed and I smoke weed maybe once a week or once every two weeks and is it bad for having seizures? Also if...
creepm...
creepm...
Red Bull
Created by creepm...at1/7/06 - 6:45 pm|1455 Views|14 Comments
Posted To: Living With Epilepsy - Youth Issues
I am a student obviously and i drink a lot of Red Bull can that affect me and my meds?...
Nerak95
Nerak95
Updated Information on the Latest VNS
Created by Nerak95at4/30/09 - 8:49 pm|27 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
I belong to another epilepsy board and there was a recent update about the newest VNS.  Below is the post. ~Karen
rebelm...
rebelm...
3 year old with intractable epilepsy
Created by rebelm...at5/14/07 - 8:14 pm|634 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
my daughter is 3 yrs old and has been diagnosed with intractable epilepsy. There has not been much luck with medication. She has been on Lamictal, Trileptal and is currently on Topamax. All of the meds have messed with her emotions...
SammieJo
SammieJo
Should a 13 year old be left alone?
Created by SammieJoat3/3/09 - 9:00 am|55 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
A 13 year old girl has epilepsy.  She is slightly mentally challenged also, but would be able to stay by herself for 3-4 hours if you do not consider the epilepsy.  She is on medication for epilepsy and it controls it 'pretty well'.  She'll do fine...
cksnow13
cksnow13
seizures memory loss and the school district
Created by cksnow13at4/28/09 - 8:51 am|10 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
wyboemail
wyboemail
Weird happenings
Created by wyboemailat4/23/09 - 5:54 am|36 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
stevie...
stevie...
seizures when sleeping
Created by stevie...at10/5/06 - 2:14 am|726 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
my 4yr old has had 2 Seizures that we have seen both on holiday to turkey a year apart and both happened when he was sleeping and after he came to he was really sick and really groggy for hours after,now after it happened the 2nd time...
samwiseca
samwiseca
What are we dealing with?
Created by samwisecaat4/21/09 - 11:16 am|12 Views
Posted To: Living With Epilepsy - Youth Issues
My son had his first seizure while I was holding him, at 2 weeks old. Absence seizure, I guess, eyes rolled back (and rolled around), body went limp, slept for hours after. After much debate and EEGs he was put on Phenobarbartol. His break though happened...
dainty
dainty
Just FYI YouTube epilepsy and me video
Created by daintyat4/7/09 - 4:41 pm|37 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
...
blonde...
blonde...
My parents dont care...I feel soooo alone!
Created by blonde...at3/21/08 - 1:02 am|352 Views|25 Comments
Posted To: Living With Epilepsy - Youth Issues
My names Bree and im 19 years old....I had my first siezure when i was 17 on December 5 2005. It happened at my friends house...out of no where. She had had previous experiances with siezures so she called 911... I dont really remember much of what happened...
wyboemail
wyboemail
Hypnosis
Created by wyboemailat4/20/09 - 12:39 pm|9 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Just wondering if anyone, young and old has ever tried using hypnosis to help control your epilepsy or tics. I am thinking about it for my 11 year old son. email me at curtis.wybourn@us.qbe.com Thanks, Curt
Becki020
Becki020
Petit Mal Epilepsy
Created by Becki020at6/5/06 - 8:19 am|1190 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi there i am now 16, and i have had petit mal epilepsy for 11 nearly 12 years. i find it quite hard to cope with especially the fact i wont be able to start driving in 4 months and many of my friends will. I dont really know how...
donnaas
donnaas
Need help...desperate!!
Created by donnaasat4/15/09 - 9:46 am|50 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
My son began having gran mal (complex) seizures in September and is increasing in frequency, magnitude, length, and regression of skills.  He has Autism too and I feel that we are facing the stigma that if he was typical developing the neurologist would...
claire...
claire...
Carbmazapine Side effects in a 7 year old.
Created by claire...at4/6/09 - 8:49 am|8 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
My 7 year old daughter has been on tegratol for 3 weeks now after having no success with Lamacil. She is complaining of a headache and also is covered in what can be described as a prickly heat rash. Are these side effects and if so should I be worried?
Cooper...
Cooper...
Can anone tell me more about absence seizures?
Created by Cooper...at1/20/09 - 6:19 pm|95 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
My son had a grand mal seizure when he was 4 (Oct 2007) with a slight fever from a possible ear infection. It was chalked up to a febrile seizure. This New Year's Day he had a grand mal shortly after waking up and playing for a while. There was no fever...
ssoban
ssoban
absence seizures memory
Created by ssobanat11/13/08 - 10:35 am|75 Views|8 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter is 11 and was diagnosed a year ago with absence seizures.  For the past maybe 6 months I have noticed her memory is terrible.  She will know her math facts and then all of a sudden something switches and she no longer remembers them.  I have...
jchiu
jchiu
Epileptic War
Created by jchiuat4/12/09 - 5:47 pm|8 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Hi, I have been having epilepsy since I was 10 years old and now I am 17 years old. I started having complex partial seizures when I was in Grade 5 and took four different medications to find the right one to control my epilepsy. Trileptal was the final...
jchiu
jchiu
Epileptic War
Created by jchiuat4/12/09 - 5:48 pm|7 Views
Posted To: Living With Epilepsy - Youth Issues
Hi, I have been having epilepsy since I was 10 years old and now I am 17 years old. I started having complex partial seizures when I was in Grade 5 and took four different medications to find the right one to control my epilepsy. Trileptal was the final...
dainty
dainty
YouTube Video Epilepsy and me
Created by daintyat4/7/09 - 1:04 pm|4 Views
Posted To: Living With Epilepsy - Youth Issues
My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at  youtube.com/watch?v=Pa1wWCzhoiI ...
dainty
dainty
YouTube Video Epilepsy and me
Created by daintyat4/7/09 - 1:04 pm
Posted To: Living With Epilepsy - Youth Issues
My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at  youtube.com/watch?v=Pa1wWCzhoiI ...
dainty
dainty
YouTube Video Epilepsy and me
Created by daintyat4/7/09 - 1:00 pm
Posted To: Living With Epilepsy - Youth Issues
My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at       ...
dainty
dainty
YouTube Video Epilepsy and me
Created by daintyat4/7/09 - 12:54 pm|13 Views
Posted To: Living With Epilepsy - Youth Issues
My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at       ...

 
alexia...
alexia...
topamax and weight loss
Created by alexia...at9/15/06 - 6:59 pm|18924 Views|57 Comments
Posted To: Living With Epilepsy - Youth Issues
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
oh6512
oh6512
AMITRIPTYLIN
Created by oh6512at1/9/07 - 8:23 pm|4277 Views|12 Comments
Posted To: Living With Epilepsy - Youth Issues
hi every one do you know this med AMITRIPTYLIN treat for wat? i have bad headaches and numb , tingling my foot and ams my doc neo. just gave me this i realy don't know he treat me for wat? i just want my headaches like migraine...
rylwlf
rylwlf
New - Absence Seizures in Toddlers
Created by rylwlfat2/26/05 - 10:22 am|4180 Views|18 Comments
Posted To: Living With Epilepsy - Youth Issues
Just wanted to some insight into others experiences with Absense seizures in toddlers.  I have a son who is almost 3 years old.  Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...
moffatkj
moffatkj
Vagus Nerve Stimulation
Created by moffatkjat2/4/05 - 3:30 pm|2909 Views|31 Comments
Posted To: Living With Epilepsy - Youth Issues
I am trying to find out information on side effects in children. My daughter is 9 years old, d we are considering this operation. Anyone that can help? She has absence seizures....
shanno...
shanno...
Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
Created by shanno...at9/7/06 - 4:54 pm|2317 Views|26 Comments
Posted To: Living With Epilepsy - Youth Issues
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...
grammyksj
grammyksj
WHAT KIND OF SEIZURE////
Created by grammyksjat1/5/06 - 5:17 am|2285 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
hi, im grammy my grandson has seizures he dosent convulse his leg and or legs go numb and he cant stand up he also complains with a headache and stomach ache hes on keppa but still having them he always knows when he is about to have...
Aimee788
Aimee788
Are there any teens here?
Created by Aimee788at4/18/06 - 12:48 pm|2208 Views|22 Comments
Posted To: Living With Epilepsy - Youth Issues
From what i've seen, there's only adults here. I'm 17 and i'd like to find someone near my age to look around for. ...
Michae...
Michae...
Juvenile Myoclonic Epilepsy
Created by Michae...at3/20/06 - 9:45 am|2147 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello, Please excuse me if I sound like I don't know what I'm talking about. I don't. The possibility of epilepsy in our family has just very recently been brought up. Specifically -- juvenile myoclonic epilepsy. Perhaps...
Healer
Healer
"feeling" others siezures
Created by Healerat6/22/06 - 3:27 am|2095 Views|31 Comments
Posted To: Living With Epilepsy - Youth Issues
I am blessed to have certain gifts and one that I found by accident is the ability to tell when the little girl I am an Aide for has a siezure coming. It may sound strange but I can be near her and feel her aura start, look at her...
wendym...
wendym...
Epilepsy and Stuttering and/or speech problems.
Created by wendym...at1/17/05 - 6:59 pm|1955 Views|18 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi, my 4 year old son was diagnosed with Epilepsy about 3 months ago.  When he was 2 1/2 years old the doctors were concerned because he didn't talk much at all and what he did say was difficult to understand, so they reccomended...
boychi...
boychi...
How to get my child to take this serious.
Created by boychi...at12/29/05 - 7:58 pm|1943 Views|7 Comments
Posted To: Living With Epilepsy - Youth Issues
Travis is 15, almost 16 had a GM sz Monday. I'm concerned about talking to him, but now scaring him, just getting the info to him....
Cin2u7
Cin2u7
New - need info on benign rolandic epilepsy
Created by Cin2u7at4/25/06 - 8:20 am|1899 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter was diagnosed with benign rolandic epilepsy at the age of 7. She went seizure free for 18 months and then had clusters of seizures for about 3months totalling 8 in all. She was on carbatrol for 2 years from the age of...
amycle...
amycle...
complex partial seizures in the parietal and occipital lobes
Created by amycle...at1/12/05 - 4:21 am|1669 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 2 1/2 year has Complex partial seizures with the focal points being on the left parietal and occipital lobes of the brain. I have found very little info on what he might experience. The only thing I have found was he could lose...
drivera
drivera
Need someone to talk with my 12yr old daughter
Created by driveraat5/18/06 - 6:00 am|1625 Views|21 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter is 12 in the 6th grade she has seizures at night when she is sleeping. I want her to know someone either her age or a little older that is going through what she is so she won't feel like she is the only one. Please.... Thank...
abonnier
abonnier
19 months old and onto a 5th medicine
Created by abonnierat2/18/06 - 1:57 am|1599 Views|11 Comments
Posted To: Living With Epilepsy - Youth Issues
My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...
creepm...
creepm...
Red Bull
Created by creepm...at1/7/06 - 6:45 pm|1455 Views|14 Comments
Posted To: Living With Epilepsy - Youth Issues
I am a student obviously and i drink a lot of Red Bull can that affect me and my meds?...
r menashe
r menashe
Benign Rolandic Epilep.
Created by r menasheat2/24/07 - 2:09 pm|1410 Views|10 Comments
Posted To: Living With Epilepsy - Youth Issues
Was wondering if anyone here had a child diagnosed with this type that outgrew by puberty like they say. My daughter is 8 and was wondering if this will really be a reality?...
DZ
DZ
Puberty Seizures?
Created by DZat4/4/07 - 6:10 pm|1409 Views|20 Comments
Posted To: Living With Epilepsy - Youth Issues
My daughter was diagnosed with complex partial seizures when she was 6 years old. By the age of 8 1/2 she was finally seizure free and off all medications. She has not had any seizures until now age 12. She has just started her period....
Lisaan...
Lisaan...
Lamictal
Created by Lisaan...at2/11/07 - 3:51 pm|1388 Views|13 Comments
Posted To: Living With Epilepsy - Youth Issues
my daughter is 4 she has had epilepsy for about 2 years last week she had a seizure it was only 2 1/2 min. but it was differnt than any others she normally goes stiff as a board eyes roll back in her head and she wets her pants this...
Soccer...
Soccer...
Not telling people
Created by Soccer...at10/4/06 - 7:26 pm|1382 Views|15 Comments
Posted To: Living With Epilepsy - Youth Issues
Ok well my sister and her boyfriend have motorcycles and one of my sisters friends yelled at me for not telling him that i have epilepsy... i think that it was the right thing to do becuase i havent had one in 1 year and i was doing...
r menashe
r menashe
trileptal-side effects
Created by r menasheat2/17/07 - 8:01 pm|1359 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
Side effects of trileptal at bedtime for Benign Rolandic Epilepsy My daughter was just put on trileptal at bedtime after suffering 6 seizure this past month. Her first episode was in august and she was free until this past month....
mamaof...
mamaof...
status epilepticus in 5 year old - any info appreciated
Created by mamaof...at5/10/06 - 4:05 am|1320 Views|9 Comments
Posted To: Living With Epilepsy - Youth Issues
Hello eveyone. My five year old daughter was just discharged from the hopital after a two day stay. She had her second seizure (that we have witnessed) the other night. Like her first seizure, she had just fallen asleep on the living...
bradser
bradser
My sons absense symptoms
Created by bradserat2/10/06 - 1:48 am|1277 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
i have a 5 year old son who is in the process of been diagnosed with absense seizures. he will shortly be put on medication. his symptoms are cramps in his stomach,staring and drooling and when he has a really bad one he slurs his...
Becki020
Becki020
Petit Mal Epilepsy
Created by Becki020at6/5/06 - 8:19 am|1190 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi there i am now 16, and i have had petit mal epilepsy for 11 nearly 12 years. i find it quite hard to cope with especially the fact i wont be able to start driving in 4 months and many of my friends will. I dont really know how...
caballis
caballis
seizures and mood problems
Created by caballisat1/8/05 - 6:52 am|1189 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Hi I'm new here we have a 8yr. boy who last april had a seizure in his sleep. later he had a eeg done it showed he had alot of miss firing of the brian. Befor all that he has been being treated and testing for adhd and put on adderall...

 
MichaelK
MichaelK
New - Wife doesn't think small seizures are important.
Created by MichaelKat6/30/09 - 7:21 am|23 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
I suffer from several types of seizures, including simple partial, atonic, tonic-clonic, and complex partial. I have had E for over 27 years, but for the past 2 years I have had an abnormally high number of seizures. Tonight I had a simple partial seizure...
Healer
Healer
"feeling" others siezures
Created by Healerat6/22/06 - 3:27 am|2095 Views|31 Comments
Posted To: Living With Epilepsy - Youth Issues
I am blessed to have certain gifts and one that I found by accident is the ability to tell when the little girl I am an Aide for has a siezure coming. It may sound strange but I can be near her and feel her aura start, look at her...
help4m...
help4m...
*HELP* Anyone Else? Son (11yr) w/ absence(quick eye roll), myoclo...
Created by help4m...at5/11/07 - 5:20 pm|297 Views
Posted To: Living With Epilepsy - Youth Issues
My son was diagnosed 7 months ago. His seizures are very quick eye rolls. He can talk & walk during them. If they progress, he has myoclonic seizures (quick twitches in foot, arm, or a shiver). These are easily missed. We believe...
tak
tak
10 y.o. like 'drunken sailor'; doesn't eat
Created by takat8/25/06 - 8:25 pm|496 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Our son is nearly 10. For three years now he has been taking medication to control fits. This is after an initial grand mal that alerted us to his problem. An EEG showed that he was having almost continous absence seizures and petit...
pgd
pgd
10 year old child - short attention span - changes four times a minute
Created by pgdat7/22/07 - 3:24 pm|273 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Is a short attention span which changes four times a minute in a ten year old child more closely associated with ADHD or epilepsy? ...
Gracie...
Gracie...
11 mon old with myoclonic and tonic, help please, advise
Created by Gracie...at4/23/07 - 8:21 pm|687 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
I am new to this site. My 11 month old, Gracie has myoclonic and atonic seizures. She was diagnosed with myoclonic in January, treated with Kepra which stopped the myoclonic episodes but then the "head drop" seizures became more prevelant....
Seeker21
Seeker21
13 yr old son with epilepsy and OCD
Created by Seeker21at7/5/06 - 10:11 am|913 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
About 6 weeks ago I found my 13 yr old son unconscious in the middle of a major seizure (grand mal). Until that day I didn't know he was epileptic. He had only seized once before when he was 7 yrs old during a very high fever. We thought...
schuffert
schuffert
14 Month Old Seizure Disorder-Monthly seizures
Created by schuffertat8/1/06 - 9:14 pm|544 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My daughter began having seizures at 6.5 months of age. They are partial complex seizures, sometimes secondary generalized. They have all been status epilepticus, ranging in time from 20 mins to 3 hours, all requiring Diastat to stop....
AnyasMom
AnyasMom
19 month old with seizure history
Created by AnyasMomat6/11/06 - 5:15 pm|551 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
My 19 month old daughter has had 4 seizures in the last year - all afebrile - all tonic clonic. All test have come back normal and we are not able to pinpoint a cause or trigger. The last seizure was on Saturday (ironically 1 year...
abonnier
abonnier
19 months old and onto a 5th medicine
Created by abonnierat2/18/06 - 1:57 am|1599 Views|11 Comments
Posted To: Living With Epilepsy - Youth Issues
My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...
1981Lisa
1981Lisa
2 hour seizure after no seizures for 2 yrs
Created by 1981Lisaat12/18/07 - 8:00 pm|76 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
brando...
brando...
20 and lost in life......
Created by brando...at9/6/07 - 7:59 pm|297 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
I have been having inractible gran mal seizures since I was 16. My grandparents raised me and they immediately took me to the hospital and got me steady on a regimend of seizure medications. I didn't like the medications, they made...
Jennif...
Jennif...
21 month old with 2 normal EEGs - possible atonic seizures
Created by Jennif...at1/17/07 - 11:36 am|741 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
I was wondering if anyone can relate to my case. I have a 21 month old that has passed out 6 times. It only happens about once every 2 months. The episodes last 1 minute and he gets so pale and his lips turn blue. He is totally...
epilep...
epilep...
22nd Annual Family Camp Fun & Friendship
Created by epilep...at9/6/06 - 6:38 pm|273 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
The Epilepsy Foundation of Greater Los Angeles is pleased to announce its 22nd Annual Camp Family Fun & Friendship on September 15-17, 2006, in Malibu/Calabasas, California. This Camp is for children with epilepsy between the ages...
Shell2
Shell2
2nd child just started on seizure meds
Created by Shell2at3/8/07 - 4:28 pm|452 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
HI, I have two children my first is 11 years old. She had her first grand mal at age 6 weeks then nothing until she was 13 months old with the second grand mal and the start of an endless cycle of no answers. She had had many eeg's...
Stefan...
Stefan...
3 year old on Keppra
Created by Stefan...at4/23/08 - 6:06 pm|77 Views|13 Comments
Posted To: Living With Epilepsy - Youth Issues
My 3 year old has been on Keppra for over a year and it seems like her outburst get worse!  I don't know if it is her being her 3 year old INDEPENDENT self or maybe the Keppra.  I am not one to use her medication as a crutch and I just think it is just...
rebelm...
rebelm...
3 year old with intractable epilepsy
Created by rebelm...at5/14/07 - 8:14 pm|634 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
my daughter is 3 yrs old and has been diagnosed with intractable epilepsy. There has not been much luck with medication. She has been on Lamictal, Trileptal and is currently on Topamax. All of the meds have messed with her emotions...
rebelm...
rebelm...
3 year old with intractable epilepsy
Created by rebelm...at5/14/07 - 8:14 pm|350 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
my daughter is 3 yrs old and has been diagnosed with intractable epilepsy. There has not been much luck with medication. She has been on Lamictal, Trileptal and is currently on Topamax. All of the meds have messed with her emotions...
lillia...
lillia...
3 yr old having Migraines and on Triplital
Created by lillia...at12/3/07 - 8:46 am|81 Views
Posted To: Living With Epilepsy - Youth Issues
My 3 yr old is being weaned off her meds to see If she has outgrown her seizures or not. We are in the process now. Before we starting weaning she started complaining about sudden headaches. Took her to doc and they thought it might be migraines. If it...
efullam
efullam
3 yr old with uncontrolled seizures
Created by efullamat11/25/07 - 7:27 pm|150 Views|6 Comments
Posted To: Living With Epilepsy - Youth Issues
My child is currently 3 years old. Her first seizure was at 14 months. We have been through several medications including phenobarbital, trileptic, lamictal combined with Keppra. None seem to be working. We have initial success and after a few months,...
jenhow...
jenhow...
4th medicine in 8 months
Created by jenhow...at6/11/08 - 1:27 pm|19 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
kbabcock
kbabcock
4yo Diagnosed with Seizure Disorder
Created by kbabcockat5/25/08 - 4:56 am|37 Views|4 Comments
Posted To: Living With Epilepsy - Youth Issues
Our four year old son was diagnosed with seizure disorder on 5/7/08 by a neurologist. He was prescribed lamictal by the neurologist (5mg twice a day ramping to 75mg per day). Here is his History:
Natarsha
Natarsha
5 year old Step Sister, school, home life etc
Created by Natarshaat3/20/07 - 7:03 pm|435 Views|2 Comments
Posted To: Living With Epilepsy - Youth Issues
Even before my step sister was diagnosed with a tendency to epilepsy, she has had behavior problems, can't concentrate, isn't interested in learning anything, limited speech range, dependent upon carrying a toy around everywhere for...
jdye505
jdye505
5 yo with seizures - thoughts?
Created by jdye505at12/18/07 - 7:33 pm|71 Views
Posted To: Living With Epilepsy - Youth Issues
Hi, I'm brand new here and haven't yet had time to look through too much of the site. So far, I'm still feeling pretty lost.
Noahsm...
Noahsm...
5 yr old turns blue with seizures, anyone else?
Created by Noahsm...at10/13/07 - 7:43 pm|210 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
Our son had small short seizures but they only last 30 sec to 2 min. and on Sunday we took him to the ER because he had 5 of the short ones. We had taken him off Trileptal back in July because we thought Trileptal was causing really...