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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Living With Epilepsy - Youth Issues
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 jdw1343 |
jdw1343 |
soundwav New - Epilepsy changing your lifestyle
Hi, so I have had epilepsy for five years in June and was diagnosed when twelve, so that makes me 18 soon :)
I am changing medications against my wishes to Topamax soon and so much stuff has happened and epilepsy has changed my life, with obstacles...
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 alexb |
 butter... New - SEEING ANOTHER HAVE A FIT
Hi guys!
Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as butterfly 17 I cried because I new how he felt. secord and alone. Any advice if this...
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 onemarvy New - Epileptic Seizure Monitor Alarm System
Hello everyone,
Our daughter's seizure have been occurring during the time when she first falls asleep (she's had 2 and they both happened during that time.) Since she had her first one (August '07), she has been sleeping with us in our room and her...
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 alexia... New - topamax and weight loss
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
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I-hate... New - Why do I have more seizures in the morning than at night? (Petit mal).
I am curious about this, why do I have more seizures in the MORNING than at night. I wake up sometimes and have none but other times a good few. And this drives me freakin nuts. It's mostly right after I wake up say about 10-15 minute range when I'm getting...
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portialee New - please tell me about your experiences with epilepsy and your education
Hi guys,
So I also have epilepsy (grand & petit mal although luckily i've been seizure free for almost 5 years now) and am currently doing my training to become a secondary school teacher.
I am finishing up in a few weeks and on the 27th...
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Archangel New - Starting a Book
Right, so I'm starting a book about Seizures/Epilepsy, and I was wondering if anyone would like to share their stories about their Epilepsy/Seizures so I can put it in a book? If you do decide you want to be a part of my book, you have to leave your first...
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 admin |
 crisgr... Is anyone on this website 17 and or on the way to college???
Im just really wondering if there is someone on this website girl or guy that is fresh out of high school-(seems to me its just worried parents-no offence to the parents) ???And if theres anyone on the track to college, just want to talk to someone other than...
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AllieC |
butter... SEEING ANOTHER HAVE A FIT
Hi guys!
Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as butterfly 17 I cried because I new how he felt. secord and alone. Any advice if this...
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butter... SEEING ANOTHER HAVE A FIT
Hi guys!
Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as butterfly 17 I cried because I new how he felt. secord and...
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butter... SEEING ANOTHER HAVE A FIT
Hi guys!
Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as butterfly 17 I cried because I new how he felt. secord and...
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Archangel School
Here's my story :
When I was about 18 months old, I started having seizures, and the doctor's never knew why I was having them, and as time went on, I started getting head - aches that usually had me in the nurses office mostly everyday until the...
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maria1903 |
 Jamie-... Does Epilepsy = Memory loss?
I'm 19 years old and a sophmore in college. I was diagnosed with JME when I was 14. I'm on 3 different kinds of medication. I used to have a good memory, but now and lately it has gotten worse. I can't remember things we just covered in class and it is hard...
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jimmieD epilepsy effecting school either inclass or anything related 2 school?
hey there ive recently started going back 2 school an was wondering if epilepsy has effected anybody in school, besides seizures, wheather it be attention span, retaing info, memory or homework. i was diagnosed with epilepsy over a year ago, yet i remember...
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scanny11 Please help!
I am hoping someone can help my family figure out what is going on with our 4.5 year old daughter. She started having eye twitches at age 1. She gets a strange look on her face and then her right eye starts twitching. For most of the year she is fine-...
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southy Suffocating Dreams
I have these dreams repeatedly where I am trapped in an enclosed space and trying to escape but it's filling up with...something. I've never figured out what, but it expands like mousse and it feels like it is slowly squishing me. And when I wake up my...
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234kelkel Starting My Life....HELP!!
Hello...well I am 19 and I have just graduated high school this past year. I'm planning on going to a community college. I am a proud owner of a drivers license (finally after turning 18) and I have taken control over my epilepsy. The trouble is now my parents...
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I-hate... I'm 15 with petit mal, will it go away?
Okay, I'm 15 with peit mal seizures aka absence seizures. And I'm at the point where I'm sick of them, I want them out of my head forever! I'm going to be 16 in Feburary and I want to drive but can't if I'm uncousious for 2 seconds or 3 seconds. And it's truly annoying.
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 shanno... Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...
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cutty Smoking marijuana and drinking
I was just reading on this website all of the forums about drinking and smoking cigarettes and how bad they are for you. It didnt say anything about weed and I smoke weed maybe once a week or once every two weeks and is it bad for having seizures? Also if...
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Jordan... Does Epilepsy have an affect on a childs behavior or personality??
My three year old daughter was recently diagnosed with Epilepsy and started on Levetiracetam, and I am wondering if anyone else has a child on this med. that has noticed any changes or increase in the behavior or personality of their child?... It seems to...
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 Nicole... uncontrolled tonic seizures
My 5 year old son is suffering uncontrolled drop seizures after recovering from brain cancer, the cancer is gone but now we have to find a way to control the seizures.
He was on keppra and clobazam and they were controlled for months and then they...
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bchjan65 BENIGN ROLANDIC EPILEPSY
Just wanted to share my story, my daughter was diagnosed with Benign Rolandic Epilepsy almost two years ago. She has had probably 12 seizures since then, all in her bed all at night after falling asleep. We decided against medication because...
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jforce Keppra and Marijuana
My 15 yr old son was just diagnosed with epilepsy. He is on Keppra and smokes marijuana. Are there any serious side effects of smoking while on Keppra. Anyone out there smoke and take Keppra? He just started Keppra today. 2 doses. 1 in the morning and 1...
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CaliGi... Secondhand smoke and children with absence seizures triggered by ...
My son has absence seizurestriggered by hyperventilation and has been taking Zarontin (15ml) for a few months now. Last night, he had a spell of five seizures in a 20-30 minute time span. I have been racking my brain trying to think of what could have triggered...
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triple... |
hickman1 |
Brando... Seizures When Taking Certain Medicines/Drugs
Hi, I just created an account here and I'm going to start of by saying that I think it's great that there is a place for people to talk about epilepsy. Now.. I just turned 16. I had my first seizure in 2009 I believe. All of the seizures I've had have been...
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 darafaye |
alyssa18 VNS
My Daughter had the VNS since she was 2 1/2 years old, this will be her 2nd replacement.
She has grand mal and petite, and is mentally delayed due to her seizures.
One good thing is that her seizures are less with the...
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PLGW 4-year-0ld diagnosed with benign rolandic and tonic-clonic, pleas...
In November, I saw my daughter having a seizure in her sleep (arms and legs jerking, foaming at the mouth, etc). Since then, her older sister has seen her have two more. I have felt her have seizures that were different (more like shaking and tremors) when...
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mom_of... Dizzy Spells
My son is 15 years old. He had a Gran mal seizure almost a week ago today it was different than the last one he had. This time after the seziure the after effect did not go away here it is almost a week later and he is still dizzy and disoriented. I have been...
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jody3978 |
Kutter... |
mystic... Changes with age - worsening it seems - Seemed like Seizure yeste...
My son has a seizure disorder - no one is calling it Epilepsy - though I guess it is.
He is 14 autistic. He has never experiences convulsions. but has staring episodes and changes ingait and other behaviors related towhat they say are "frequesnt...
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nichol... 6 year old boy with LGS and ESES
My son is 6 years old with LGS and ESES. His EEG is so active both awake and asleep. In sleep he has continious spike waves from the minute he closes his eyes. Awake it spikes between 2-5 sec's. We have tried keppra, Banzel, and Zonegran. He...
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mohamm... i have JVM but latley something differnt is happening can someone...
Iv been diagnosed for 4 years and nothing like this is been happening, recently when I try to say something my mouth stays opening and I can't talk I have no control over it also whenn I was praying I was standing up right and just fell straight into the...
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rbarr110 New diagnosis for 10 yr old son - Benign Rolandic Epilepsy - Need...
A few months back my son had what appeared to be a stroke. He had been asleep for about 30-60 min when he was suddenly awake and had complete paralysis of his left side. He could not move his left leg, left arm, and the left side of his face was drooping...
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ladtbug5 I would like to have other people to talk to that are like me
I am about to be 9 and I have epilepsy. I was diagnosed with it about 5 months ago, I have only had a few seizures once I got on the medicine. I am afraid that I am going to have to stop gymnastics because of the heat, I get worried that I am going to...
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 hearin... New sensations. Grand mal on it´s way?
Hey guys,
Lately, during seizures parts of my body have been going numb (my legs, my arms, my face) and my fingers sometimes curl up, which I found odd when it first happen because my hands don´t normally go numb. They just shake a lot. Also, three...
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jessic... Anyone get really tired with absence epilepsy?
I was diagnosed with absence epilepsy like a month ago, but I've been tired all the time for a yearish now. I am on medication now, and I'm just wondering if maybe it's something to do with my medication or still with my absences. Or just let me know if you...
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I-hate... How long does lamotrigine take to work?
Okay, I've been on Clobazim for a year and half ish and it hasn't worked for my petit mal seizures. I was wondering, how long does it take to work? I'm going to get the medication soon (after stupid forms and stuff get signed) but how long does it take to...
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 Seeker21 13 yr old son with epilepsy and OCD
About 6 weeks ago I found my 13 yr old son unconscious in the middle of a major seizure (grand mal). Until that day I didn't know he was epileptic. He had only seized once before when he was 7 yrs old during a very high fever. We thought...
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jenai64 Does 11 febrile seizures under 2years old call for daily meds?
I have 3 children. All 3 have had multiple febrile seizures. My oldest is 7 now. Her first febrile seizure was at 11 months old. They are the very typical seizures, in terms of looks.. Eyes rolled back, blueish around the lips and convulsions both sides of...
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alexia... New - topamax and weight loss
Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...
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 oh6512 AMITRIPTYLIN
hi every one
do you know this med AMITRIPTYLIN treat for wat? i have bad headaches and numb , tingling my foot and ams my doc neo. just gave me this i realy don't know he treat me for wat? i just want my headaches like migraine...
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 rylwlf Absence Seizures in Toddlers
Just wanted to some insight into others experiences with Absense seizures in toddlers. I have a son who is almost 3 years old. Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...
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 moffatkj Vagus Nerve Stimulation
I am trying to find out information on side effects in children. My daughter is 9 years old, d we are considering this operation. Anyone that can help? She has absence seizures....
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shanno... Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...
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 grammyksj WHAT KIND OF SEIZURE////
hi, im grammy my grandson has seizures he dosent convulse his leg and or legs go numb and he cant stand up he also complains with a headache and stomach ache hes on keppa but still having them he always knows when he is about to have...
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 Aimee788 Are there any teens here?
From what i've seen, there's only adults here. I'm 17 and i'd like to find someone near my age to look around for. ...
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 Michae... Juvenile Myoclonic Epilepsy
Hello,
Please excuse me if I sound like I don't know what I'm talking about. I don't. The possibility of epilepsy in our family has just very recently been brought up. Specifically -- juvenile myoclonic epilepsy. Perhaps...
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 Healer "feeling" others siezures
I am blessed to have certain gifts and one that I found by accident is the ability to tell when the little girl I am an Aide for has a siezure coming.
It may sound strange but I can be near her and feel her aura start, look at her...
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 wendym... Epilepsy and Stuttering and/or speech problems.
Hi, my 4 year old son was diagnosed with Epilepsy about 3 months ago. When he was 2 1/2 years old the doctors were concerned because he didn't talk much at all and what he did say was difficult to understand, so they reccomended...
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Cin2u7 need info on benign rolandic epilepsy
My daughter was diagnosed with benign rolandic epilepsy at the age of 7. She went seizure free for 18 months and then had clusters of seizures for about 3months totalling 8 in all.
She was on carbatrol for 2 years from the age of...
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 boychi... How to get my child to take this serious.
Travis is 15, almost 16 had a GM sz Monday. I'm concerned about talking to him, but now scaring him, just getting the info to him....
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amycle... complex partial seizures in the parietal and occipital lobes
My 2 1/2 year has Complex partial seizures with the focal points being on the left parietal and occipital lobes of the brain. I have found very little info on what he might experience. The only thing I have found was he could lose...
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drivera Need someone to talk with my 12yr old daughter
My daughter is 12 in the 6th grade she has seizures at night when she is sleeping. I want her to know someone either her age or a little older that is going through what she is so she won't feel like she is the only one. Please....
Thank...
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 abonnier 19 months old and onto a 5th medicine
My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...
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 creepm... |
 DZ Puberty Seizures?
My daughter was diagnosed with complex partial seizures when she was 6 years old. By the age of 8 1/2 she was finally seizure free and off all medications. She has not had any seizures until now age 12. She has just started her period....
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 r menashe Benign Rolandic Epilep.
Was wondering if anyone here had a child diagnosed with this type that outgrew by puberty like they say. My daughter is 8 and was wondering if this will really be a reality?...
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 Lisaan... Lamictal
my daughter is 4 she has had epilepsy for about 2 years last week she had a seizure it was only 2 1/2 min. but it was differnt than any others she normally goes stiff as a board eyes roll back in her head and she wets her pants this...
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 Soccer... Not telling people
Ok well my sister and her boyfriend have motorcycles and one of my sisters friends yelled at me for not telling him that i have epilepsy... i think that it was the right thing to do becuase i havent had one in 1 year and i was doing...
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r menashe trileptal-side effects
Side effects of trileptal at bedtime for Benign Rolandic Epilepsy
My daughter was just put on trileptal at bedtime after suffering 6 seizure this past month. Her first episode was in august and she was free until this past month....
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mamaof... status epilepticus in 5 year old - any info appreciated
Hello eveyone. My five year old daughter was just discharged from the hopital after a two day stay. She had her second seizure (that we have witnessed) the other night. Like her first seizure, she had just fallen asleep on the living...
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bradser My sons absense symptoms
i have a 5 year old son who is in the process of been diagnosed with absense seizures. he will shortly be put on medication. his symptoms are cramps in his stomach,staring and drooling and when he has a really bad one he slurs his...
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 Becki020 Petit Mal Epilepsy
Hi there i am now 16, and i have had petit mal epilepsy for 11 nearly 12 years. i find it quite hard to cope with especially the fact i wont be able to start driving in 4 months and many of my friends will.
I dont really know how...
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mom_of... absance seizures and emotional changes in 6 year old
Hello,
I didn't see another thread similar to this one, so here goes:
My 6 year old son was diagnosed with absance seizures in January (we had noticed eye rolling that seemed to get "stuck" and asked the doctor at his 6 yr appt....
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sask1 seizure type
My daughter has had seizures for almost 2 years following encephalitis. She is currently one 3 different meds and they aren't doing anything. She is on clobazam, trileptal and topamax. She usually would always have an aura before her seizures but know...
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MichaelK Wife doesn't think small seizures are important.
I suffer from several types of seizures, including simple partial, atonic, tonic-clonic, and complex partial. I have had E for over 27 years, but for the past 2 years I have had an abnormally high number of seizures. Tonight I had a simple partial seizure...
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 Mrepil... |
Healer "feeling" others siezures
I am blessed to have certain gifts and one that I found by accident is the ability to tell when the little girl I am an Aide for has a siezure coming.
It may sound strange but I can be near her and feel her aura start, look at her...
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help4m... *HELP* Anyone Else? Son (11yr) w/ absence(quick eye roll), myoclo...
My son was diagnosed 7 months ago. His seizures are very quick eye rolls. He can talk & walk during them. If they progress, he has myoclonic seizures (quick twitches in foot, arm, or a shiver). These are easily missed. We believe...
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judesm... ----- UPDATE----- Please! Please read and help me!
Please take time to read this and tell me what you know. I am desperate for answers.
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tak 10 y.o. like 'drunken sailor'; doesn't eat
Our son is nearly 10. For three years now he has been taking medication to control fits. This is after an initial grand mal that alerted us to his problem. An EEG showed that he was having almost continous absence seizures and petit...
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pgd 10 year old child - short attention span - changes four times a minute
Is a short attention span which changes four times a minute in a ten year old child more closely associated with ADHD or epilepsy?
...
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Gracie... 11 mon old with myoclonic and tonic, help please, advise
I am new to this site. My 11 month old, Gracie has myoclonic and atonic seizures. She was diagnosed with myoclonic in January, treated with Kepra which stopped the myoclonic episodes but then the "head drop" seizures became more prevelant....
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terryg... 12 year old with frontal right lobe seizures and no answers yet
I have a 12 year old son who just started having seizures in March 2010. He has had MRI's and Petscan and they came up clean. The EEG showed activity on the frontal right lobe. Nobody can tell me why he is having the seizures and we are at the end on...
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Kecia 13 year old son diagnosed before 6th grade
I have a 13 year old boy in 7th grade. Right before he began 6th grade he was diagnosed with Absence seizures. He was always an honor student in Elementary school making A's with an occasional B. He was in the AIG program.
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Seeker21 13 yr old son with epilepsy and OCD
About 6 weeks ago I found my 13 yr old son unconscious in the middle of a major seizure (grand mal). Until that day I didn't know he was epileptic. He had only seized once before when he was 7 yrs old during a very high fever. We thought...
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hickman1 |
schuffert 14 Month Old Seizure Disorder-Monthly seizures
My daughter began having seizures at 6.5 months of age. They are partial complex seizures, sometimes secondary generalized. They have all been status epilepticus, ranging in time from 20 mins to 3 hours, all requiring Diastat to stop....
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kelley... |
Fam 16 years old and all of them with seizures.
Allright, so, I don't really know how this works since I just made this account like ten minutes ago and I am really just going to go with this.
I've had what my many doctors like to call "incontinence" seizures ever since I can remember,...
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AnyasMom 19 month old with seizure history
My 19 month old daughter has had 4 seizures in the last year - all afebrile - all tonic clonic. All test have come back normal and we are not able to pinpoint a cause or trigger. The last seizure was on Saturday (ironically 1 year...
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abonnier 19 months old and onto a 5th medicine
My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...
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1981Lisa |
Blaine |
brando... 20 and lost in life......
I have been having inractible gran mal seizures since I was 16. My grandparents raised me and they immediately took me to the hospital and got me steady on a regimend of seizure medications. I didn't like the medications, they made...
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 crabrams 20 month old just started on Keppra
Hi everyone,
About 3 months ago my 20 month old started having seizure like motions. Once when she was sitting on me, her eyes rolled to the back of her head for about 10 seconds. Then when she was eating in her high chair, her left eye moved...
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Jamieusmc 20+ FS in 7months & possible afebrile partial seizure
My 19mo had had over 20 FS in 7months all complex all either focal long or recurring. She just had an MRI yesterday and I'm waiting to hear the results.. Why would they do MRI if FS are not suppose to be harmful? She has had 8 within 4hrs and the first week...
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Jennif... 21 month old with 2 normal EEGs - possible atonic seizures
I was wondering if anyone can relate to my case. I have a 21 month old that has passed out 6 times. It only happens about once every 2 months. The episodes last 1 minute and he gets so pale
and his lips turn blue. He is totally...
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epilep... 22nd Annual Family Camp Fun & Friendship
The Epilepsy Foundation of Greater Los Angeles is pleased to announce its 22nd Annual Camp Family Fun & Friendship on September 15-17, 2006, in Malibu/Calabasas, California. This Camp is for children with epilepsy between the ages...
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