My son is nearly 8 years old, and was diagnosed in Dec 2008 with BRE after an EEG.  He has mainly had his seizures in the evening in bed before falling asleep.  He also has partial seizures which just involve his tongue and face, which scare him as they...

Hello, I am the foster mother of a 13 year old boy and have been for over 2 years.  He was diagnosed with epilepsy at the age of 8 and when he came to live with us at age 11 his epilepsy was well controlled on Tegretol and had been since the age of 8. ...

I suffer from several types of seizures, including simple partial, atonic, tonic-clonic, and complex partial. I have had E for over 27 years, but for the past 2 years I have had an abnormally high number of seizures. Tonight I had a simple partial seizure...

Hi everybody! I'm a graduate student in Boston working on a project for one of my classes. I am designing an exercise program for a teenage boy with epilepsy. I would love to hear your feedback to the following questions about physical activity - it would...

My 9 year old son has generalized epilespy, juvenile Myoclonic Epilespy.  He has been on 7 different meds and has bad side effects from them.  He is currently taking 3 different meds now that are tolerable, but still gets 3-7 seizures daily.  When we try...

I'm a young writer intending to write a piece featuring a teenaged boy with epilepsy. I'm in the early stages of development. My character is around sixteen years old. His epilepsy is a recent diagnosis. I intend for it to be like the "absence seizures"...

Yeah, so pretty much I have been seizure free for a little over a year now. I am a pretty good driver (been practicing with my learner's permit) and I am READY to get my regular license. In the state of FL, if you have had a seizure in less than 24 mo., you...

My daughter is 5 and 42" tall. Riley is developmentally delayed and has some autistic characteristics. She is outgrowing her crib and crib tent set up. I need another type of bed that will be safe and secure for her to sleep in....

Just wanted to some insight into others experiences with Absense seizures in toddlers.  I have a son who is almost 3 years old.  Has a very limited vocabulary, and although he babbles and makes an effort to communicate,...

my daughter is having sz in school not falling to the ground but just not able to focus.  Her grades have really gone down hill.  I feel the teachers don't get it. Does anyone have a suggestions.

My daughter was diagnosed with benign rolandic epilepsy at the age of 7. She went seizure free for 18 months and then had clusters of seizures for about 3months totalling 8 in all. She was on carbatrol for 2 years from the age of...

i'm 17, ive had epilepsy for almost 5 years and 3 major seizure within that time period. i experience almost on a daily basis jerks and blackout and memory loss is a big issue. this has all lead to depression and i still can't accept my issue or allow it...

Hello everyone, Our daughter's seizure have been occurring during the time when she first falls asleep (she's had 2 and they both happened during that time.)  Since she had her first one (August '07), she has been sleeping with us in our room and her...

My 10 year old son has BRE. Last night he woke up and was confused asking for things that did not make sense. He was very anxious and agitated. When I got out of the bed he was in the kitchen and then we went to the restroom and he was very gassy and thought...

Hi: Our five month old daughter was diagnosed with tuberous sclerosis last month. She was having seizures and infantile spasms. She's currently taking Depakote, Zonisamide, and Sabril. Her seizures and spasms are pretty much controlled at this point....

Hi there. I'm a teen living in Central Florida and I was diagnosed with JME almost two years ago now. I was put on the standard Depakote (500mg daily) for the massive myoclonic seizures (I would fall down, drop/throw things etc) but right before I started...

Hi my son Dylan has Juvnile Myoclonic Epilepsy.  He has absence, myoclonic, tonic Clonic, clusters and Status Epilepsy.  Lately I have been noticing a pattern with him.  Whenever he has a overstimulating day that night he will lose control of his bladder....

I have a daughter who is almost 6.  She had her first seizure almost a year and a half ago.  Her second seizure occurred last week.  I took the antidepressant Celexa while I was pregnant with her.  Are there any other moms out there who also took Celexa...

Has anyone or have someone that experienced that Topamax side effects include weight loss. If so, is there anything being done to gain weight. My Alexia, 16 is underweight and is being teased at school. She weighs 93 pounds (called...

Dear Angels out there in the world, I really in need of help by anyone who can help to cure or at least ease the pain of a 7 year old boy. My friend's son is boy who has been suffering with an unknown disease however few doctor diagnose him as an epilepsy/meningoencephalitis/encephalitis....

My son Eric is 2 years and 8 months old. He began having and was diagnosed with Infantile Spasms at 9 months. He has been seizure free fror 18 months and is being weaned off vigabatrin and starting Lamictal for precautionary measures as his eeg is still not normal.

My 10 year old was diagnosed 2 years ago with simple partial seizures.  They have been so infrequent and the meds we tried originally made him moody and mean.  (which he has never been)  So we chose not to medicate.  He has 3-4 seizures during a 3-6...

I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...

I was just reading on this website all of the forums about drinking and smoking cigarettes and how bad they are for you. It didnt say anything about weed and I smoke weed maybe once a week or once every two weeks and is it bad for having seizures? Also if...

I am a student obviously and i drink a lot of Red Bull can that affect me and my meds?...

I belong to another epilepsy board and there was a recent update about the newest VNS.  Below is the post. ~Karen

my daughter is 3 yrs old and has been diagnosed with intractable epilepsy. There has not been much luck with medication. She has been on Lamictal, Trileptal and is currently on Topamax. All of the meds have messed with her emotions...

A 13 year old girl has epilepsy.  She is slightly mentally challenged also, but would be able to stay by herself for 3-4 hours if you do not consider the epilepsy.  She is on medication for epilepsy and it controls it 'pretty well'.  She'll do fine...

my 4yr old has had 2 Seizures that we have seen both on holiday to turkey a year apart and both happened when he was sleeping and after he came to he was really sick and really groggy for hours after,now after it happened the 2nd time...

My son had his first seizure while I was holding him, at 2 weeks old. Absence seizure, I guess, eyes rolled back (and rolled around), body went limp, slept for hours after. After much debate and EEGs he was put on Phenobarbartol. His break though happened...

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My names Bree and im 19 years old....I had my first siezure when i was 17 on December 5 2005. It happened at my friends house...out of no where. She had had previous experiances with siezures so she called 911... I dont really remember much of what happened...

Just wondering if anyone, young and old has ever tried using hypnosis to help control your epilepsy or tics. I am thinking about it for my 11 year old son. email me at curtis.wybourn@us.qbe.com Thanks, Curt

Hi there i am now 16, and i have had petit mal epilepsy for 11 nearly 12 years. i find it quite hard to cope with especially the fact i wont be able to start driving in 4 months and many of my friends will. I dont really know how...

My son began having gran mal (complex) seizures in September and is increasing in frequency, magnitude, length, and regression of skills.  He has Autism too and I feel that we are facing the stigma that if he was typical developing the neurologist would...

My 7 year old daughter has been on tegratol for 3 weeks now after having no success with Lamacil. She is complaining of a headache and also is covered in what can be described as a prickly heat rash. Are these side effects and if so should I be worried?

My son had a grand mal seizure when he was 4 (Oct 2007) with a slight fever from a possible ear infection. It was chalked up to a febrile seizure. This New Year's Day he had a grand mal shortly after waking up and playing for a while. There was no fever...

My daughter is 11 and was diagnosed a year ago with absence seizures.  For the past maybe 6 months I have noticed her memory is terrible.  She will know her math facts and then all of a sudden something switches and she no longer remembers them.  I have...

Hi, I have been having epilepsy since I was 10 years old and now I am 17 years old. I started having complex partial seizures when I was in Grade 5 and took four different medications to find the right one to control my epilepsy. Trileptal was the final...

Hi, I have been having epilepsy since I was 10 years old and now I am 17 years old. I started having complex partial seizures when I was in Grade 5 and took four different medications to find the right one to control my epilepsy. Trileptal was the final...

My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at  youtube.com/watch?v=Pa1wWCzhoiI ...

My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at  youtube.com/watch?v=Pa1wWCzhoiI ...

My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at       ...

My 16 yo daughter posted a video on youtube. Shes discussing her dealing with E. Its not an academy award winner but I thought it funny, sad and Im just glad she did it. Its called Epilepsy and me If you watch youtube, you can find it at       ...