My daughter is 5 and 42" tall. Riley is developmentally delayed and has some autistic characteristics. She is outgrowing her crib and crib tent set up. I need another type of bed that will be safe and secure for her to sleep in....

Hi :) last May at the age of 13 i had my first tonic-clonic seizure i went to Cook Children's Hospital and they preformed alot of testing a week later i was told i had Rolandic Epilepsy and that i will most likely grow out of it but that they would like to...

I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont...

My daughter is 14 and has been on zonisamide for a few months and still has problems with her appetite. While on depakote she practically ate us out of house and home! Since that med wasn't working we had to switch her over to the zonisamide. At first we had...

Hello I have a daughter that is 16! Myranda has been diagnosed with severe epilepsy since 07! She has taken a total of 5 different meds! she is currently max out on Topamax & Lyrica plus she had the VNS installed in sept 09! we still have not been able...

I was wondering what types of pain relievers you give your child for headaches, etc if they have epilepsy? Our pedatrician said to give my son tylenol but I just read that the Acetaminophen in tylenol can cause seizures or the lower the threshold. Is ibufrofin...

  I was diagnosed with epilepsy, encephalitis at the age of 9 and have been living with it for approximately 5 years ( I am now 14), having spent 4 months in Hospital and having to frequently return in the first year as I kept on getting sick.

My son has had over ten febrile seizures since he's been two years old.  Recently he has been getting seizures without fevers, so the doctor put him on Topomax.  He's been through EEG's, MRI's, Catscans, Xrays and bloodwork and they still haven't determined...

My 7 year old daughter was diagnosed with complex partial seizures in Dec '08.  She has been on Keppra since then.  She has trouble controlling her bladder, we thought it was directly related to the seizures, but they are now under control.  She has multiple...

If a 12 year old child displays fleeting attention and an imperfect memory consistently yet multiple EEGs are read as completely normal, what could it be if it's not a type of epilepsy?    

I am here to try to find out what route I should be on to help my daughter.  She has had seizures since she was 5 months old.  She turned 2 in November and we are still fighting the seizures.  Last November she had a genetic test done that said that the...

HI I my 3 year old has partial complex seizures that have gotten worse since first being diagnosed in January. Im afraid her seizures are going to develop into tonic clonic's. Her neck is starting to be like a noodle during her seizures and she can't hold...

Okay so I am new here we found out earlier this year that our son who is now 2.5 is having complex partial seizures and is currently taking trileptal 2x daily.  We have noticed that he is more aggressive.  He was always aggressive but ever since...

Hello everyone, Our daughter's seizure have been occurring during the time when she first falls asleep (she's had 2 and they both happened during that time.)  Since she had her first one (August '07), she has been sleeping with us in our room and her...

My 6 yr old son had a series of 3 seizures in less then 24 hrs 2 weeks ago, the last was the worst and presented with new symptom, his lips turned blue and his eyes dilated and constricted in and out during the seizure. It happened while he was a school and...

Wish for 2010 is that people will understand that children with disabilities do not have a disease; children with disabilities are not looking for a cure but ACCEPTANCE........93% of people won't copy and paste this, WILL...YOU be one of the 7% that does...

Hi everyone, i am 19 and have been having seizures for a couple years now. Doctors have not been able to find out if i have an aura yet, i want to know what exactly happens to you guys so that maybe i can find some relations. Thanks, Liam

My 7 week old son was recently diagnosed with seizures. Even before he was born I took my son to have an EEG done after a few episodes he had that I thought were strange. He would be playing or doing something and all of a sudden he would start crying like...

My newborn son who is now 7 weeks old was diagnosed with seizures a week after he was born...My other son, who is 2 years old has all of a sudden started doing something very strange and I'm worried he might have seizures too. There are times when he is playing...

My 16 year old daugther who was dx with seizures 4 years ago and currently takes Topamax 100mg twice a day is experiencing problems with her feet. If she stands or sits for long periods of time her feet will turn purple. She is small...

Symptoms such as involuntary distractibility and involuntary short attention span.  Your experiences with Absence (petit mal) epilepsy vs ADHD Inattentive type?

My 5 yr old was diagnosed with Absence Seizures a year ago this past Christmas.  I have noticed recenlty that when he has an episode, its like he loses control of his bladder and ends up having an accident.  We have had problems potty training him anyways,...

I had posted this story about my daughter on a different website a while back.  We have since started the drug ACTH, and for the last month, she has been seizure and spasms free.  We hope we can get some more answers here on this bigger and more well-known...

I have had Epilepsy practically all my life and they believe my son now, who is 17, has it too, after having a seizure last week and a few "staring spells" that have happened over the last year that he just told us about.  What are the chances...

My daughter is 11 and was diagnosed a year ago with absence seizures.  For the past maybe 6 months I have noticed her memory is terrible.  She will know her math facts and then all of a sudden something switches and she no longer remembers them.  I have...

My 19th month old son was diagnosed with epilepsy at two weeks of age. We have no family history, there is no known source for the seizures (idiopathic) and we now are on a 4th medicine that doesn't work. All of the medicines have...

I have an 11 month old who suffers from 0-8 seizures per day.  We've tried 6 medications that have all failed and are now on The Ketogenic Diet.  The diet has been amazing at reducing the frequency and intensity of his seizures.  However, I want them...

Hi, just located your site while trying to educated myself on seizure disorders.  We just went through the emotional trainwreck of having my 18 mo.

PROBLEM:

Every time I find something out that truly upsets me or get in an argument with someone my entire body shakes and twitches and tremors visibly from my finger tips to my head to my toes and I feel completely conscious but like two seconds after the argument...

My daughter was diaganosed with photo generalized compulsive epilepsy. We tried the lamictal deal. My daughter broke out in a rash, and developed a blister on her lip... Immediately removed her from drug.. She is now on Depakote 250mg 2 pills twice a day.......

I have a 7 year old who had a tumor removed from his temporal lobe in 2006. My question is how do you teach a child that young (and who is high functioning autistic) about seizures?

My child is "remembering" something that did not happen to her.  The way I know this, is because I was there when she says this happened, and it simply did NOT happen the way she is remembering.  She has been seen by a physician, and their findings...

Dear All, My daughter age is 10 years now, while birth she was 1.75Kg and got some Seizures. she was in Incubator for 2 weeks for the treatment. from that day onwards she has been suffering from Seizres, we have been continuing the treament to...

I am interested in knowing if anyone has had any luck with using Epsom Salt for controlling partial complex seizures.   I am trying to find an alternative to medicines in controlling my daughters night seizures and read somewhere that Epsom Salt may benefit. 

i'm 21 now i had two siezures in my life and since then (1/8/2004) i've started taking Depakine 500 and my sizures were controlled though my EEGs are not normal yet and doctors ideas are different some says that i have to stop my meds while others says that...

Was wondering if anyone here had a child diagnosed with this type that outgrew by puberty like they say. My daughter is 8 and was wondering if this will really be a reality?...

Has anyone heard of adrenaline as a trigger for tonic clonic and simple and complex partial seizures? 

My son experienced his first seizure at 15 months of age (February 08).  This seizure was Febrile, occurring while battling a bad case of Influenza Type B.  After that brief episode, he would have Febrile seizures occasionally, always preceding an illness. ...

My 3 year old has been on Keppra for over a year and it seems like her outburst get worse!  I don't know if it is her being her 3 year old INDEPENDENT self or maybe the Keppra.  I am not one to use her medication as a crutch and I just think it is just...

Hi I am new to this but my daughter is going to be 18 soon and the doctor wants to take her off of her meds,  She has petit mal seizures so they ask if she has had any and I really don't know.  She also has learning delays so sometimes she may not tell me...

I experince this a lot. It's not serious or anything, at least what I think, but I get tired of my mom saying 'You're not normal! Stop pacing and Running!' my family gets bothered and restless with me because of this habit.  Is this something related to...

I've had Epilepsy for pretty much five years now and I've grown more photosensitive and have recently been diagnosed with JME (Juvenile Myoclonic Epliepsy) but I don't have the jerks. I have everything else on the symptoms list but the jerks. Does anyone...

Hi

I'm having a problem getting a medical release form signed for my son, Steven, who wants to participate on his high school swim team. Steven developed partial seizures (about 1 every two months on average) at age eight and had surgery 18 months ago...

Hi our daughter is two years old and had a 90 minute seizure. We live in a very rural area and it took that long for an emergency airplane to get to us and stop her seizure. She also aspirated on her vomit, then stopped breathing so they put in a breathing...