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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Living With Epilepsy - Adult Issues
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 colama... |
 happygirl New - Reduction in Keppra
Hi There,
I am very, very slowly coming off my Keppra (my doctor said to do it over 6 months, I am doing it over 12)
In the last week, I have noticed that I have had more problems from a work perspective in that I am getting the most basic things...
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ameyers6 New - Question about dilantin
i take 300mg of dilantin a day have been seizure free for 14 years
but recently i have been worried about seizures obsessivly and making myself dizzy and sick
my levels for 14 years have always been low like 4.7 and 3.7
my last ER visit 3 days ago...
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kimbas... New - new type of night seizure
Hi, I have a question on a new issue I had. I few nights in a row I started like "clamping" down on my tongue when I was half asleep, but that was it. Then the next night I just started talking in my sleep (not actually sleeping but just rambling...
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klhatch New - Seizure identification help? Always lucid, no memory impairment!
Hello, I do not know for sure how long I have been having seizures, possibly since I was a child, but I have only been having the more obvious ones at least for under a year now (I am 29), and am starting Lamictal for them tonight, as they happen nearly every...
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 jasssmit New - Fired from Job
On November 7th I started a job on a one month trial basis. At the end of that month they were to evaluate it I should be hired for a full time, salaried, permanent position. The reason for the trial period was because I have limited programming skills--I'm...
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jmoore New - Help with understanding my own experience
Hi,
Since I was a young boy, I have been having the following symptoms:
1)Visions (always the same scenes, never triggered by anything external that I am aware of). Once the visions are over, I can hardly remember them, but I know that I have...
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 Kat21 New - finding a new job is so hard, i dont know what to look for
I recently quit my job, i had been put under pressure too many times and it caused me to have many seizures, now i dont know what to kind of jobs to look for that will be safe for me
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 wldhrt13 New - Can Seizures Cause a Stroke?
I understand that having a stroke can leave a person with scars and that those scars from oxygen deprivation can in turn cause a person to end up with a seizure disorder.
But can is the converse true?
Can a person with...
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sigep1982 |
clayma... New - Marijuana and personal diary of treatment for Epilepsy.
Does anybody have any experience with high CBD marijuana for treating their Epilepsy?a
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cocoho... New - Smart meters and seizures???
I was at a party when a doctor friend began telling me that a patient began having break through seizures right after a smart meter was placed at her residence. 2 days later, a smart meter was placed on our gas meter. My 11 y-o, epileptic son began experiencing...
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keaze New - Medication and losing friends
Hey guys. I'm 24 years old. I've been
diagnosed with epilepsy about 7 years ago. I've been taking tegretol
generic since then. I used to flourish when i was younger and have an
exciting life, with great friends by the dozen. Over the years, i've...
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Ma Wen... New - More alcohol anyone?
Hello Everyone
Although I drink only "here, and there" I am wondering if a have a few bottles of beer, and increase anti-seizure medicine for a couple days, would it would reduce the chances of having a seizure?
Also, if I drink with food...
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Tammyc New - Seizures after taking the Depo-provera shot
Hi I took 1 Depo-provera shot and did not get my period for a year. Then when I finally got my period I also started having seizures. Has anyone else had same or similar problems?
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 phylis... New - The Isolation of Epilepsy
You’re reluctant to go out. Because having a seizure can be so unpredictable and embarrassing. You think: “What if I have a seizure? What will people do? What will they think of me?” Those and many other self doubting questions run through...
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 Kells621 New - can VNS cause depression?
Is it possible for my VNS to cause depression by being turned off? I have the VNS for my epilepsy, and depression was never a real issue for me before I had it. I got the VNS in 2006. My neurologist turned it off about 6 months ago (it doesn't help my seizures)...
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tigere... New - Maybe myoclonic not sure
Hi
My seizures are changing and am now getting nocturnal complex partials
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psycic... New - Marijuana saved me from Epilpesy
Well I've had epilepsy since I was 16. I know how the meds ruin your life with all their side effects. I know how the seizures ruin your life as well. Both socially, mentally, emotionally, spiritually, and physically destroy a person.
It's a long...
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GottaJ... New - Epilepsy/Meds are Ruining my LIFE!!!!
Hi, I am 20 years old and I have had epilepsy for the last 4 1/2 years. I just got an MRI and my brain scans are off the chart. Apparently I am having mini-seizures in my brain. The most recent drug that I was on was Topomax. This drug literally made me stupid!....
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Masterjen New - Residual . . . seizures??
The major full-body seizures are under far better control, and when I do have them they are much less severe. I am having something else going on sometimes, which I don't understand. It involves activity in just my left arm or just my left foot, which are...
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duckie New - Weird feelings - as if you forget where you are
Hi,
I am a female 21 years old and got diagnosed with epilepsy when I was 16. It has mostly been controlled by lamotrigine tablets but occasionally I still have odd things happen. I'm not particularly concerned as it's mostly under control but just...
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 butter... New - THANKS TO THIS SITE
Thanks to this site, I have over come, some truths, about my epilepsy..... I learned to deal with it much better
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jasssmit New - Fight with the sidewalk
I've had many nocturnal szs and several daytime partial szs, but until last week I had only had 1 daytime sz in which I collapsed to the ground for a bit (tc). I'm wondering how many others of you have fallen and hurt yourself and how did you hurt yourself...
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dgunm |
 aluck12 |
 Rose2 New - Mom epilepsy and stroke
My mother had a second stroke and epilepsy 2 weeks ago. She is 77 years old. She is keep talking. When I try to make her take her medication she refuses and yells. Same thing as eating. She don't want to eat and take medication she yells like we are poisoning...
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snowwoman New - epilepsy in the workplace and some good experience + resource
I just thought I'd share an experience and a resource that some might not know of, although I realize not everyone will have access to it or have the same circumstances.
When I was interviewing, I told my interviewer (now supervisor) that I had epilepsy....
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bbookie24 New - Epilepsy, Keppra, and Hearing heightening
Hey everyone! I was just recently diagnosed with Juvenile Myoclonic Epilepsy in October 2011, when I experienced a grand mal seizure. I have noticed for the past few weeks that my hearing has been intensified; however, my parents have noticed it since the...
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 brian ... |
 MichaelK New - Can exercise induce seizures?
All the doctors disagree with me because of the research out there but I gave up running last June because I had a seizure while running. I suddenly collapsed, right before I was going to cross a busy street.
The doctors argue that aerobic exercise is especially...
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 kimber... New - Adult with no support, on parents' insurance ending soon
Question:
How do I go about buying health insurance with epilepsy that has so far (obviously) cost a lot of money to me and the insurance company? Will I be able to buy affordable health insurance?
Background information:
I have had epilepsy since I was...
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phylis... New - The Scandal of Aspartame
You probably already know that aspartame is a no-no. But just in case you weren’t sure why, here are the reasons and the scandal…
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jriggl... New - Cortical Dysplasia, Vagal Nerve Stimulation Therapy
Now I have been living with epilepsy since the age of 11 and have been dealing with the confusion my nuerologists have been giving me. But finally I've been getting some answers. It seems that there is a spot on the top of my brain, which if I'm not...
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 Tiffany K |
Sheri ... New - heart palpitations. does anyone else go through this.
My heart does strange things. My cardiologist says I am ok and my Neuro said it is all in my head. He said it was SPS and CP at first and he has now taken me off meds and changed the diagnosis to PNES. I am so confused. He will no longer listen to me and will...
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Bugbear New - Hallucinations with temporal lobe epilepsy
I used to hallucinate at night. I would wake.up my family and let them know that there were spiders everywhere. Then I was diagnosed with temporal lobe epilepsy / complex partial seizures. My neurologist said that these hallucinations were seizures. It took...
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gina22 New - Finding work
Hi,
Does anyone here their seizures under control, but still fear having a seizure? I want to go back to work, but I worry about having a seizure at work (it can be triggered by stress and lack of sleep).
I'd rather try to keep my seizures...
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sprtgrl99 New - Keeping a Career/Changing medication- Difficult combination
I am trying to maintain a career in health policy and for the first time in twelve years, I am considering changing medications.
Why?
I am on 2200 mg of Carbatrol each day and fighting to keep my sodium levels high enough. Carbatrol...
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 Maggie New - eye problems/seizures?
Hi,I would like to know if anyone else has problems with their eyes before a seizure?The problem I have is that before a seizure,my eyes feel very heavy and if I am awoke from it then I see double for just a short time.I remember everything...
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 volcom... New - Deja-Vu's?
I had a seizure in my sleep on June 30th, 2011... 2 weeks after my son was born. I didn't remember anything and woke up in the hospital room on a bed with my whole family there.
No issues since, they have me on Carbamazapine taking two 200 mg tablets...
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Ma Wen... New - Transient blindness upon waking and epilespy
Hello
Do anyone know is epilepsy can cause transient blindness upon waking. I just saw brighness, and some colour patterns. I have suffered from grand mals but they are fully controlled with divalproex.
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mjense... |
 angela... |
wd123 New - Therapy ever helped?
Has going to therapy ever helped you thus far. Any thoughts on the value of good therapists?
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Florid... New - Xanax?
I have always been very very anxious in social situations unless drinking. I have always tried to avoid social situations with people I do not know without boos. I tense up, sweat, and feel like passing out.
3 years ago I started have nocturnal seizures...
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bmhall... |
ctrswe... New - i bit my tongue up
about 4 days ago i had a GM seizure and i fell of my school desk when i did it, now my tongue is bit up bad and has soars under it, i cant eat and it hurts alot to talk, i cant even sleep because it wakes me up. Please help i am so tired and hungry.
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butter... New - LIVING WITH EPILPESY CAN BE A PAIN, BUT YOUR NOT ALONE
Hi ya Tottally understand how you feel, I feel out of contal
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columb... New - Participate in a University Study to Help Others Like Yourselves!
Hey everyone,
I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of their health. Our goal is to provide an opportunity for people...
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brian ... |
 WendyB... How exactly do aura's feel
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....
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Maggie electrical shock in head?
Last night I was laying in bed with my eyes closed and all of a sudden on the left side of my brain it felt just like an electrical shock.I jumped and there was a tingling sensation down my right arm.Didn't last very long.A few seconds...
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 Peaches78 personality change
I was just wondering if anyone who started having seizures later felt that they weren't the same person anymore. I started having seizures almost two years ago, right after I turned 27. Inside I feel like a different person. As if...
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elsea Losing a driver's license w/ simple partial epilepsy?
I may have simple partial epilepsy. Has anyone who has this lost your driver's license?
The dr. suggested I have a VEEG test in the hospital. But if I get a dx, then what happens?
I already take Tegretol so it is pretty under...
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 victor... Ecstatic Seizures
Hi
Has anyone experienced "ecstatic" seizures? I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life! I'm not religious or "spiritual"...
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 expoiser Something everyone should know!
Evening/morning all, for long ive been quiet on the forum.. And now, well... time to break the habbit.
This dicussion thread is not gonna be nice in direction to the people refered to. This whole thread is simply about what have...
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 sweetie NC DMV PROBLEM
this is my problem i had an accident while driving that did not involve me having a seizure however i was knocked out by the impact i told the paramedics when they arrived i had a seizure disorder and they let the emergency room doctor...
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jopeart Sleep Deprivation Grand Mal Seizures?
I suffered a grand mal seizure a year ago, and following all the tests over the next six months, was diagnosed not...
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 Bedge Where did I leave my memory?
Ok ... I've noticed a few weird things latley.
For example: My boyfriend and I will be watching telly, when he gets up during the add breaks he asks me to call out to him when the show starts again. I always COMPLETLY forget. And...
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 poetry... Why have my seizures gotten worse?
I was diagnosed with epilepsy when I was almost 5 years old, in other words, early 1988. My epilepsy was kept under control for so many years. My epilepsy was kept under control until 2003. So that is what? That is fifteen years. I...
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Butter... Smoking cigarettes and seizures....
I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non-smokers who even may know....Does...
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 brgnshpr1 Bump on back of head
I have developed a bump on the back of my head, at the base of my skull on my right side. I noticed it this morning while washing my hair. It is a little tender to the touch. It is about the size of a quarter. I am currently on...
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 gretchen1 Muscle twitches?
I am plagued by muscle twitching. Last night as I was falling asleep it was especially bad, so I decided to start a thread.
I didn't have this right after I was diagnosed. I had an open head injury in the first year after I...
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bassde... I've had the big E for years, but still can't cope...
OK, people prepare yourself. I apologize in advance to anyone I might offend in this, but nobody else seems to know what I'm going through here, and I found this site, so maybe someone can listen and understand. I'm just so tired of...
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 heidi weird seizure triggers?
Hello, I am new to the forum. I have been having symptoms which lead my neurologist to believe I'm having simple and complex partial seizures; he has tentatively diagnosed me with TLE and I've been on 500mg of Keppra twice a day for...
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 zealot My Life With Epilepsy or Should I Say No Life?
I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help.
That was the biggest mistake in my life. The rest is...
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 benji nocturnal epilepsey only need advice anyone else have this ?
my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost...
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doksda... does anyone have any problems w/ allergies?
Does anyone have problems with allergies interfering with your epilepsy?...
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jenny_74 Someone answer my question!!!!!!!!!!!!!!!!!Please!
my seisures started when ı was 19 i had memory loss and i kept on asking my friends who i was and where i was so i was sent to england where i was born (ı am from cyprus)The doctor there told me without EEGs to take 200mg of...
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tiff_25 Anyone experience memory loss?
I have read a lot of stories on here, and havent seen anyone mention having memory loss since being diagnosed with epilepsy. I feel as though my memory has become much worse since being diagnosed in Jan 2009. I have been on Lamictal/Lamotigrine since, increased my...
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 lrshaw Eye Twitching
For as long as I can remember I get the occasional twitch in my eyes. Nothing big, just occasionally the muscles jump. But ever since my first "episode" (Nov '06, still undergoing testing, the dr. is thinking either complex partial...
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Butter... What is that ticking noise?
Every now and then, when it's quiet, I hear a "tick tick tick" in my ear. Such a light sound, in fact that if music was playing I wouldn't even hear it.When I say "light" - I mean LIGHT! It's not a loud ticking sound like a clock....
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bigjef... night time siezures
I have those too but the only way I know is if my family tells me I had them. So far I am on Keppra 5mg three tablets two times a day, Neurotin 300mg capsules daily, diilantin100mg 5 times daily. I wake up feeling totally exhusted,...
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 A Day Been told not to tell anyone about seizures or Epilepsy...
I am still new to all of this...still goinng through tests and Dr's appointments. My SPS's or aura's are affecting my professional life alot latley. I haven't said a word to anyone but my mother, my husband, my best girlfriend (3000...
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 Belinda Back problems because of going down on y...
Yes because of all the years I've gone down on my back because of seizures it's now put me in really bad pain.
I did something to my disc and the test didn't tell the story.
The disco gram I had where they stuck needles in my back was suppose tell...
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 Bret absence seizures
Do any of you recall what you were thinking after coming out of an absence seizure, when someone else present informs you of it happening. It's like when this happens, I realize that I can recall where I was in my mind- in another life where there was a perfect...
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cotton 55 Any Advice..Memory, Emotions, Concentration, My Poor Husband
I first wrote on here when my hubby was diognosed with partial seizures nearly 2 years ago. He takes 300 Trileptal twice a day. He is lucky, the seizures stopped completely and he has not had any since. However, he is a changed Man, he used to be the life...
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wldhrt13 DARK thoughts w/ TLE?
I am struggling with lots of deja- vu, horrible tastes in my mouth, ringing in my ears, and feeling like i am watching myself perform tasks in a detached way. All annoying but tolerable. I have been experiencing ohter symptoms which are pretty freaky...
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NikiPa... |
twitch |
cooper... |
claire81 j uvenile myclonic epilepsy ,mood swings,aggression, feeling lik...
Hi im 29 and have had epilepcy since i was 19 and basically just lived with it , i just had 2 out of the blue one day and ended up in hospital. I seem to have them every 4 yrs dont know why but?? exactly every 4 years ive had a seizure sometimes to the...
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austin... license suspension
I was wondering if anyone had completed and submitted the paperwork required by the state in order to plead your case to keep your license after an accident? I had my neurologist to complete the paperwork last week, but am waiting on a response from the...
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ncmdermo Lucid dreaming during epileptic seizures - A must-read
Hi,
I've had sleep epilepsy for 15 years (I'm 28 now).
Whenever I have a seizure, I lucid dream.
I think it's my brain's way of coping with the fact that I'm having a seizure.
So, this is how it goes:
-wake up, think: "I'm about to have a seizure"
-can't...
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lisela... marijuana for people with epilepsy
hey there
what sort of experiences have others had using Marijuana to control their seizures?
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 mia m |
 srchtt3 migraine and simple partial epilepsy
I just saw this topic for the epilepsy.com online journal:
Differentiating between migraine and simple partial epilepsy
Is this true? I had no idea!! My doctors have never even hinted at it! I have migraines off and on. A lot of times they will...
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c-17srt questions about having seizures after being seizure free for 20yrs
I had a head injury when I was 12yrs old, had a granmal seizure 3wks later and was diagnosed with epilepsy. I took meds for about a year and then no meds or any treatment since then and had been seizure free for 20yrs. At 32 yrs old out of the blue I had...
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bethsy... Start support group La habra / Whittier area ,social networking,...
9/6/10
Hi,
My blog at epilepsy.com is : bethesydney
My name is Beth, I have partial complex epilepsy. I live in the
La Habra / Whittier area.
My immediate goal is finding help to see if folks can start an
epilepsy...
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phylis... "Accelerating Research in the Epilepsies.”
Cure announces a groundbreaking new focus on funding and collaboration in epilepsy research. Simply click here, to find out more: http://cure.convio.net/site/MessageViewer?em_id=1301.0&dlv_id=6521
phylisfeinerjohnson
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REl3EL "Dizzy Spells"
Hi...
I'm new to epilepsy.com and I was just posting this on here to see if anyone else out there had the same thing I do.
I'm 21 and have remembered having "dizzy spells" since I was 4. I have never had what people consider an actual...
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karina... "Electric" Dreams
Hello,
I'm wondering if I can get some insight or if anyone has experienced the same thing. My husband who is 30 years old has had epilepsy since he was around 8 or 9 years old. He has not had a seizure since about the age 14-15, and has been on dilantin.
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phylis... "Fighting for a Cure" on DVD
The 60 minutes "Fight for a Cure" segment willl be made available from Amazon soon. To reserve yours, simply click on www.amazon.com/60minutes. The segment will be the first one on your left.
Sorry, they didn't list the price.
__________________
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Bedge "Forced Thinking"
Does anyone have any experience with forced thinking?
I started to experience it a while back. Didn't know what it was, the only words I could put to it was 'its as if my thoughts are being forced' so I googled forced thinking, and it only comes up...
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stxchick "grand mal" seizures on eeg, but no outward symptoms
As a kid I had grand mal seizures, having my first in a spelling bee in 2nd grade. At 15 I no longer had seizures and at 18 I was told I could stop my meds.
Almost 30 years after stopping my meds, I went to a neuro for something else, he did an eeg...
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 hope 0s |
 stacey... "Live Learn and Be Happy with Epilepsyâ€
The book that Stacey Chillemi has written is Available NOW!
This book has the most in depth-coverage of important development topics found anywhere on epilepsy, called "Live Learn and Be Happy with Epilepsy.†The author...
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RitKid742 "Post-ictal" confusion
Hey all,
Most of you don't know me, but, as I stated in my introductory thread, I'm new to all of this (Holy pleonasm, Batman!).
The first time I ever witnessed a seizure was during my video EEG in November. Naturally, I saw quite a number...
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wldhrt13 "Seized" by Eve LaPlant
I have just finished reading this book. Anyone else read it? and if so, what do you make of the Temporal Lobe Epilepsy "personality" which includes:
hyper-religiousity, hypergraphia, hyposexuality, viscosity/stickiness. I have...
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