Hi
Has anyone experienced "ecstatic" seizures? I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life! I'm not religious or "spiritual"...
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victor... New - Ecstatic Seizures
Created by victor...at8/27/09 - 4:32 am|1882 Views|187 Comments Posted To: Living With Epilepsy - Adult Issues
Hi
Has anyone experienced "ecstatic" seizures? I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life! I'm not religious or "spiritual"...
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Maria7 New - Simple Partials Seizures-What Are Yours Like & Duration?
Created by Maria7at11/7/09 - 12:58 pm|4 Views Posted To: Living With Epilepsy - Adult Issues Hello Everyone,
I never had a problem with seizures all my life until after my Meningioma (Benign Brain Tumor) was removed via surgery. Now I get Simple Partial Seizures. I always hear of people saying they get Simple Partial seizures and when they...
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maryem New - VNS
Created by maryemat11/6/09 - 11:46 pm|17 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues After 6 years and 5 different meds in 3 or 4 different series I am looking at VNS. But how much does it cost an insursed person, in illinois with Blue cross blue shield? About how much? Or will insure even pay? Is disability easy or hard to get with...
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uberzw... New - Food-Triggered Siezures
Created by uberzw...at5/18/08 - 11:10 am|417 Views|41 Comments Posted To: Living With Epilepsy - Adult Issues So I have never found a trigger my siezures beyond them occuring around my period...but I think I might be on to something. Maybe even something that might give me the origin to my seizures- since they haven't found anything on my CT scans or MRI. I went out...
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RitKid742 New - "Post-ictal" confusion
Created by RitKid742at1/6/09 - 9:06 pm|148 Views|14 Comments Posted To: Living With Epilepsy - Adult Issues
Hey all,
Most of you don't know me, but, as I stated in my introductory thread, I'm new to all of this (Holy pleonasm, Batman!).
The first time I ever witnessed a seizure was during my video EEG in November. Naturally, I saw quite a number...
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brian ... New - kepra
Created by brian ...at1/23/06 - 5:45 am|18834 Views|83 Comments Posted To: Living With Epilepsy - Adult Issues does anyone know anything about kepra?...
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aramey New - Neurolosist Needed
Created by arameyat11/3/09 - 8:01 pm|37 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues Hi,I am 20 years old and am moving to either Parker, Colorado or Woodstock, Connecticut in April of 2010 (not sure which state yet). I was wondering is anybody could recommend a good neurologist in either of these areas as I have no idea where to start!!
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kyrissa New - Embarrassed
Created by kyrissaat11/5/09 - 10:04 am|54 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues
I know that I don't need to feel this way, but I am embarrassed to admit to others that I have seizures. I am concerned that they will "freak out" like most of society does with epilepsy due to thier lack of control on situations. I have also...
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mark_88 New - Surgery is the way to go! Slowly but surely recovering!
Created by mark_88at11/4/09 - 5:19 pm|22 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues |
sparkbird New - Gardasil, car accident, stress, PTSD, seizures?
Created by sparkbirdat8/4/09 - 8:16 am|66 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues Hi,
I finally signed up after browsing the forums here for a while and I had some questions wondering if anyone can relate to what's going on with me.
Back in 08 I started reciving the Gardasil shot. A series of 3 shots to help protect against HPV...
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Newyor... New - A dream or a seizure?
Created by Newyor...at11/5/09 - 5:11 pm|11 Views Posted To: Living With Epilepsy - Adult Issues I've had this dream for years and I had it again yesterday. Now I'm starting to think it may be a seizure. Actually, it's not the same dream, it's just that the result is always the same. I'll be out walking somewhere in a crowd or something and then suddenly...
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Zoogirl New - Is anyone driving with/during partial seizure? I am worried.
Created by Zoogirlat10/3/08 - 5:33 am|96 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues
Hi
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Lauren... New - The Reasons not to consume alcohol or smoke marijuana if you have...
Created by Lauren...at6/6/09 - 10:02 pm|480 Views|48 Comments Posted To: Living With Epilepsy - Adult Issues
It is a common question on this forum and a frequently asked one in the chat room whether or not it is "ok" to consume alcohol or smoke marijuana when you have been diagnosed with epilepsy or a seizure disorder. I am here to tell you all something...
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bleedi... New - Seizure Alert Dogs
Created by bleedi...at3/26/08 - 10:30 pm|390 Views|33 Comments Posted To: Living With Epilepsy - Adult Issues A family member asked me what is the purpose of a seizure alert dog. I don't have one and I don't need one. I basically said the dog is there to protect a person with epilepsy in the case they have a seizure in public and that it is for people who don't...
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Anonymous New - UPDATED: Can they legally fire me???
Created by Anonymousat10/4/08 - 2:33 am|420 Views|30 Comments Posted To: Living With Epilepsy - Adult Issues
Thank you to everyone who replied to my thread. I am one of the luckier ones, because as I know now, my boss just has "a way with words" and sometimes says things without thinking about how they come across.
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Shadrak New - Is this Aura???
Created by Shadrakat10/28/09 - 11:58 pm|61 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues
My name is Jordan I'm a 22 year old Male. in may or june of 2006 something happened to me that I've never forgotten. I've also neve known what it was. I'll discribe it and hopefully someone can relate:
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CoalMi... New - I thought I was doing so well!!
Created by CoalMi...at11/3/09 - 7:07 pm|11 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with Temporal Lobe Epilepsy in August after suffering a grand mal seizure in late July. For a year and a half I had been having simple and complex partial seizures each month (right around my period) but never had a clue it was actually...
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MichaelK New - Can exercise induce seizures?
Created by MichaelKat11/16/08 - 4:00 am|214 Views|20 Comments Posted To: Living With Epilepsy - Adult Issues All the doctors disagree with me because of the research out there but I gave up running last June because I had a seizure while running. I suddenly collapsed, right before I was going to cross a busy street.
The doctors argue that aerobic exercise is especially...
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borgma... New - Best Size of High-Def TV for an Epileptic?
Created by borgma...at10/19/09 - 4:45 am|19 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues
I'm planning on buying a High-Def TV in the next few months and I know that most of them have a refresh rate of 100Hz or 200Hz but I was wondering if anyone knew what would the best size of HDTV be to buy that's also suitable for use with a computer or videogame...
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daffyduck New - Lamictal
Created by daffyduckat2/1/08 - 5:59 pm|1187 Views|117 Comments Posted To: Living With Epilepsy - Adult Issues
Hello
Can you please tell me your experiences with Lamictal - especially with regards to tiredness and weight gain
Thanks
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Sofiii... New - Seizures triggered by everyday sounds?
Created by Sofiii...at10/18/09 - 6:16 am|47 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues Ok, so I've had epilepsy since I was four and there has never really been a cetain trigger that brought them on, but lately I've realized everyday sounds like a phone ringing would send me into a seizure. I was just wondering if anyone has ever experienced...
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Peaches78 New - personality change
Created by Peaches78at3/6/07 - 9:54 am|7822 Views|105 Comments Posted To: Living With Epilepsy - Adult Issues I was just wondering if anyone who started having seizures later felt that they weren't the same person anymore. I started having seizures almost two years ago, right after I turned 27. Inside I feel like a different person. As if...
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Alang New - Controlling Anxiety
Created by Alangat9/22/09 - 8:35 am|44 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues Hello my name is Aaron I'm 19 years old I was born with simple and complex partial seizures. In truth they didn't used to have too much affect on my life, I'd have several a month if I forgot to eat one night or if I was playing sports and got unlucky. But...
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wjane New - Nanny with epilepsy
Created by wjaneat9/11/09 - 8:48 pm|39 Views|6 Comments Posted To: Living With Epilepsy - Adult Issues
Hello,
I am not used to posting on here, so I apologize if I repeat anything or break any etiquette rules!
I recently graduated from college, and I babysit full time. One of the families has a 3 month old and a 3 year old, and the other...
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azdmar... New - Epilepsy And Social Security Disability < Can Anyone help me with...
Created by azdmar...at11/2/09 - 7:07 am|92 Views|10 Comments Posted To: Living With Epilepsy - Adult Issues I am looking for any help with this topic. I have been unable to work for like 3 years but I dont know if I qualifiy and if someone that is on disabily could help I would be so greatfull.
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phylis... New - WE MADE THE NEWS!
Created by phylis...at11/3/09 - 1:34 pm|13 Views Posted To: Living With Epilepsy - Adult Issues We made the news!!!
Yours truly was mentioned in a recent Philadelphia Inquirer article:http://www.philly.com/philly/business/67880727.html
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phylis... New - Suggestions for Epilepsy Awareness Month
Created by phylis...at11/3/09 - 6:11 am|13 Views Posted To: Living With Epilepsy - Adult Issues
November is Epilepsy Awareness Month
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phylis... New - The Biology of Epilepsy
Created by phylis...at11/3/09 - 5:36 am|6 Views Posted To: Living With Epilepsy - Adult Issues
Epileptic seizures are triggered by abnormal electrochemical impulses that act on other neurons, glands, and muscles to produce human thoughts, feelings, and actions.
In epilepsy, the normal pattern of neuronal activity becomes disturbed, causing strange...
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Mornin... New - Seizures During Sleep
Created by Mornin...at2/11/09 - 7:16 pm|722 Views|67 Comments Posted To: Living With Epilepsy - Adult Issues
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on...
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Dy New - Extreme Hair loss
Created by Dyat11/1/09 - 9:57 am|21 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues |
joezef7 New - Auras
Created by joezef7at11/2/09 - 6:46 pm|10 Views Posted To: Living With Epilepsy - Adult Issues
Now, I'm sure a large amount of people are familiar with these, and like myself, i'm sure you find it hard to put into words when it come to describing what exactly it feels like. for me, the closest I can get is that my bottom lip and right hand go numb,...
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wldhrt13 New - I'm VERY scared, please help
Created by wldhrt13at9/16/09 - 6:47 am|176 Views|27 Comments Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with Temporal Lobe Epilepsy twenty years too late. Mostly have had brief sensory/psychic seizures, most pleasant, some not. Alice in Wonderland stuff, deja-vu, jamai vu, weird smells and depersonalized states etc.
Also had amxiety...
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tiff_25 New - Anyone experience memory loss?
Created by tiff_25at8/2/09 - 1:17 pm|447 Views|61 Comments Posted To: Living With Epilepsy - Adult Issues
I have read a lot of stories on here, and havent seen anyone mention having memory loss since being diagnosed with epilepsy. I feel as though my memory has become much worse since being diagnosed in Jan 2009. I have been on Lamictal/Lamotigrine since, increased my...
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NoMagi... New - Epilepsy and Thyroid trouble
Created by NoMagi...at11/2/09 - 11:28 am|8 Views Posted To: Living With Epilepsy - Adult Issues
I'd like to know how many of us share living with epilepsy and living with thyroid issues, and what the interplay is.
The two are interconnected -- or, at the very least -- can be, but if you Google the subject, you'll tend to find mostly veterinary...
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kearne... New - Can you be conscious for a grand mal seizure/tonic-clonic?
Created by kearne...at7/7/09 - 4:52 pm|94 Views|11 Comments Posted To: Living With Epilepsy - Adult Issues
A few weeks ago, at the age of 22, I was diagnosed with epilepsy. I have had mainly focal epileptic seizures but recently suffered from a second tonic-clonic seizure in a month.
I was asleep and it was late at night for the first tonic-clonic seizure...
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Newyor... New - Anyone have seizures as a child and they return as an adult?
Created by Newyor...at11/1/09 - 11:47 pm|19 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues I'm just curious if any of you had seizures as a child and they returned sometime in adulthood? I think this may be happening to me. If so, what were signs you noticed?
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Newyor... New - Geschwind's Syndrome
Created by Newyor...at11/2/09 - 8:41 am|9 Views Posted To: Living With Epilepsy - Adult Issues I'm just now finding out about Geschwind's Syndrome or Epileptic personality. I was floored when I read the description b/c it fit all the things that people say I do. I even started to be more aware of the times when I just can't let things go and I try to...
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WendyB... New - How exactly do aura's feel
Created by WendyB...at5/15/06 - 8:30 am|12888 Views|132 Comments Posted To: Living With Epilepsy - Adult Issues How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....
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cooper... New - suddenly falling asleep during the day
Created by cooper...at5/26/09 - 6:53 pm|59 Views|9 Comments Posted To: Living With Epilepsy - Adult Issues
I have partial seizures that usually involve deja vu and the occasional jamais vu. Sometimes I experience depersonaliztion, but thankfully not much lately.
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phylis... New - Drugs that can trigger Steven's-Johnson Syndrome
Created by phylis...at11/2/09 - 7:08 am|3 Views Posted To: Living With Epilepsy - Adult Issues Medications are most often the cause of Stevens-Johnson Syndrome -- a rare, serious skin condition, that can sometimes be fatal.
Often, signs of Stevens-Johnson Syndrome begin with flu-like symptoms, followed by a painful red or purplish rash that spreads...
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naaksh... New - Ongoing Struggle and no answers!
Created by naaksh...at10/10/09 - 1:17 am|64 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues |
Starli... New - Seizures caused brain damage personality changes
Created by Starli...at11/24/08 - 9:15 am|93 Views|8 Comments Posted To: Living With Epilepsy - Adult Issues
Here is my background (important for the question)-
I was diagnosed with complex seizures about a 1.5 years ago. At that time I was having many per week. I was started on Lamictal which I took for about 8 months- it controlled my seizures very...
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AthenaJ New - The Eye
Created by AthenaJat10/29/09 - 9:56 am|14 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues hi,
I've had epilepsy for the last 7 yrs, with a two yr break until recently. I joined a new lab where I have to work with the light microscope and stare at my samples under that light for hours every single day. I know that flashing light is not good for...
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hubbys... New - My Husband Can't see/feel his Aura's...
Created by hubbys...at8/15/09 - 5:58 pm|27 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues |
jaylough New - my story
Created by jayloughat10/30/09 - 3:52 pm|7 Views Posted To: Living With Epilepsy - Adult Issues
ok here is my story, i will try to keep it brief but include all pertinent information. any help/advice is TREMENDOUSLY welcome.
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3Hours... New - Rap My Fast-Food Order???
Created by 3Hours...at10/30/09 - 3:37 pm|8 Views Posted To: Living With Epilepsy - Adult Issues I have a neurological speech disorder because of epilepsy. Initiation of my speech is often difficult, and at times I have to try to read off of print, in a conducive manner, what I'm trying to speak, hence, I have to first write it down, or even to start...
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therat... New - Rheumatoid, Sjogrens' and Seizures
Created by therat...at10/30/09 - 6:24 am|10 Views Posted To: Living With Epilepsy - Adult Issues
Hi:
My name is Terry. I'm a 50 year old W/F with Rheumatoid and Sjogren's--which I've had for 18 years. Three years ago, I started having auras--I see bright lights and get a "funny" feeling--these were diagnosed as partial seizures...about...
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George R New - Are You Inspiring Others?
Created by George Rat10/27/09 - 12:53 pm|24 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues Many studies show that nearly 3-million Americans are known to have epilepsy. And there probably are as many with it who are just plain afraid to "come out of the closet" about it--either to themselves or to the people around them. I know this well...
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slhmurphy New - Guess I'm nuts after all...Psychogenic Seizures
Created by slhmurphyat1/27/07 - 6:58 am|2163 Views|21 Comments Posted To: Living With Epilepsy - Adult Issues Now, to those of you reading this, please do not take my title to heart. I have a bachelors in psychology and I am being very flippant in my terminology, but I mean no disrespect to anyone.
Anyway, after a year of searching for...
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Mary G. New - Another concern my shell is cracking
Created by Mary G.at10/29/09 - 7:42 am|6 Views Posted To: Living With Epilepsy - Adult Issues
Hello,
Wait please read this and see if you can help me!
I wanted to know if anyone has some of the problems that i've been experiencing in the past year. So lets go back to 06 when I found out that the shakes I've had all my life are really...
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brian ... New - kepra
Created by brian ...at1/23/06 - 5:45 am|18834 Views|83 Comments Posted To: Living With Epilepsy - Adult Issues does anyone know anything about kepra?...
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WendyB... New - How exactly do aura's feel
Created by WendyB...at5/15/06 - 8:30 am|12888 Views|132 Comments Posted To: Living With Epilepsy - Adult Issues How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....
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Maggie electrical shock in head?
Created by Maggieat7/17/05 - 9:37 pm|9420 Views|58 Comments Posted To: Living With Epilepsy - Adult Issues Last night I was laying in bed with my eyes closed and all of a sudden on the left side of my brain it felt just like an electrical shock.I jumped and there was a tingling sensation down my right arm.Didn't last very long.A few seconds...
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Peaches78 New - personality change
Created by Peaches78at3/6/07 - 9:54 am|7822 Views|105 Comments Posted To: Living With Epilepsy - Adult Issues I was just wondering if anyone who started having seizures later felt that they weren't the same person anymore. I started having seizures almost two years ago, right after I turned 27. Inside I feel like a different person. As if...
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elsea Losing a driver's license w/ simple partial epilepsy?
Created by elseaat1/11/07 - 2:06 pm|7680 Views|37 Comments Posted To: Living With Epilepsy - Adult Issues I may have simple partial epilepsy. Has anyone who has this lost your driver's license?
The dr. suggested I have a VEEG test in the hospital. But if I get a dx, then what happens?
I already take Tegretol so it is pretty under...
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expoiser Something everyone should know!
Created by expoiserat8/5/07 - 4:14 pm|5629 Views|98 Comments Posted To: Living With Epilepsy - Adult Issues Evening/morning all, for long ive been quiet on the forum.. And now, well... time to break the habbit.
This dicussion thread is not gonna be nice in direction to the people refered to. This whole thread is simply about what have...
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sweetie NC DMV PROBLEM
Created by sweetieat10/10/06 - 7:10 pm|5609 Views|7 Comments Posted To: Living With Epilepsy - Adult Issues this is my problem i had an accident while driving that did not involve me having a seizure however i was knocked out by the impact i told the paramedics when they arrived i had a seizure disorder and they let the emergency room doctor...
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jopeart Sleep Deprivation Grand Mal Seizures?
Created by jopeartat12/13/04 - 2:56 am|4897 Views|36 Comments Posted To: Living With Epilepsy - Adult Issues I suffered a grand mal seizure a year ago, and following all the tests over the next six months, was diagnosed not...
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Bedge Where did I leave my memory?
Created by Bedgeat1/14/07 - 3:48 am|4509 Views|42 Comments Posted To: Living With Epilepsy - Adult Issues Ok ... I've noticed a few weird things latley.
For example: My boyfriend and I will be watching telly, when he gets up during the add breaks he asks me to call out to him when the show starts again. I always COMPLETLY forget. And...
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poetry... Why have my seizures gotten worse?
Created by poetry...at1/27/04 - 9:48 pm|4422 Views|16 Comments Posted To: Living With Epilepsy - Adult Issues I was diagnosed with epilepsy when I was almost 5 years old, in other words, early 1988. My epilepsy was kept under control for so many years. My epilepsy was kept under control until 2003. So that is what? That is fifteen years. I...
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Butter... Smoking cigarettes and seizures....
Created by Butter...at7/29/05 - 9:07 pm|4100 Views|51 Comments Posted To: Living With Epilepsy - Adult Issues I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non-smokers who even may know....Does...
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brgnshpr1 Bump on back of head
Created by brgnshpr1at12/18/06 - 7:08 am|3917 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues I have developed a bump on the back of my head, at the base of my skull on my right side. I noticed it this morning while washing my hair. It is a little tender to the touch. It is about the size of a quarter. I am currently on...
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gretchen1 Muscle twitches?
Created by gretchen1at6/20/06 - 1:05 pm|3770 Views|19 Comments Posted To: Living With Epilepsy - Adult Issues I am plagued by muscle twitching. Last night as I was falling asleep it was especially bad, so I decided to start a thread.
I didn't have this right after I was diagnosed. I had an open head injury in the first year after I...
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bassde... I've had the big E for years, but still can't cope...
Created by bassde...at4/15/06 - 7:27 am|3255 Views|48 Comments Posted To: Living With Epilepsy - Adult Issues OK, people prepare yourself. I apologize in advance to anyone I might offend in this, but nobody else seems to know what I'm going through here, and I found this site, so maybe someone can listen and understand. I'm just so tired of...
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benji nocturnal epilepsey only need advice anyone else have this ?
Created by benjiat1/26/06 - 11:26 am|3062 Views|42 Comments Posted To: Living With Epilepsy - Adult Issues my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost...
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doksda... does anyone have any problems w/ allergies?
Created by doksda...at4/26/05 - 2:55 am|2982 Views|38 Comments Posted To: Living With Epilepsy - Adult Issues Does anyone have problems with allergies interfering with your epilepsy?...
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jenny_74 Someone answer my question!!!!!!!!!!!!!!!!!Please!
Created by jenny_74at7/19/07 - 11:52 am|2968 Views|42 Comments Posted To: Living With Epilepsy - Adult Issues my seisures started when ı was 19 i had memory loss and i kept on asking my friends who i was and where i was so i was sent to england where i was born (ı am from cyprus)The doctor there told me without EEGs to take 200mg of...
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heidi weird seizure triggers?
Created by heidiat5/23/06 - 10:30 am|2961 Views|33 Comments Posted To: Living With Epilepsy - Adult Issues Hello, I am new to the forum. I have been having symptoms which lead my neurologist to believe I'm having simple and complex partial seizures; he has tentatively diagnosed me with TLE and I've been on 500mg of Keppra twice a day for...
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lrshaw Eye Twitching
Created by lrshawat3/15/07 - 2:54 pm|2849 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues For as long as I can remember I get the occasional twitch in my eyes. Nothing big, just occasionally the muscles jump. But ever since my first "episode" (Nov '06, still undergoing testing, the dr. is thinking either complex partial...
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Butter... What is that ticking noise?
Created by Butter...at8/18/05 - 6:15 am|2745 Views|9 Comments Posted To: Living With Epilepsy - Adult Issues Every now and then, when it's quiet, I hear a "tick tick tick" in my ear. Such a light sound, in fact that if music was playing I wouldn't even hear it.When I say "light" - I mean LIGHT! It's not a loud ticking sound like a clock....
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bigjef... night time siezures
Created by bigjef...at7/24/05 - 1:56 pm|2739 Views|7 Comments Posted To: Living With Epilepsy - Adult Issues I have those too but the only way I know is if my family tells me I had them. So far I am on Keppra 5mg three tablets two times a day, Neurotin 300mg capsules daily, diilantin100mg 5 times daily. I wake up feeling totally exhusted,...
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A Day Been told not to tell anyone about seizures or Epilepsy...
Created by A Dayat9/19/07 - 9:03 am|2709 Views|58 Comments Posted To: Living With Epilepsy - Adult Issues I am still new to all of this...still goinng through tests and Dr's appointments. My SPS's or aura's are affecting my professional life alot latley. I haven't said a word to anyone but my mother, my husband, my best girlfriend (3000...
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WVBaker I just want to give up
Created by WVBakerat1/16/07 - 4:06 pm|2691 Views|24 Comments Posted To: Living With Epilepsy - Adult Issues To anyone who will listen:
Over the past few weeks, my wife described to me “episodesâ€, which she claims I was having. I of course, have no reason to doubt her, but don’t remember them. The first ones were describe...
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sweetie NC DMV Epilipsy Dirvers License problem
Created by sweetieat10/16/06 - 6:26 pm|2438 Views|14 Comments Posted To: Living With Epilepsy - Adult Issues I recentley had a seizure in july of 2006 and recived a letter in august from the NC DMV informing me a review of my medical file indicated that i should be medically evaluated to determine if i could safley operate a motor vehicle...
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kleen Memory Loss and Loss of Coordination
Created by kleenat7/17/05 - 4:28 pm|2378 Views|11 Comments Posted To: Living With Epilepsy - Adult Issues I won't even type very much because it takes too long. I have taken dilantin for 43 years and suffered some memory loss especally when it came to remembring certain words the other stuff I coped with by makinglists and stuff. I had...
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Belinda Back problems because of going down on y...
Created by Belindaat9/11/08 - 12:13 pm|46 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues
Yes because of all the years I've gone down on my back because of seizures it's now put me in really bad pain.
I did something to my disc and the test didn't tell the story.
The disco gram I had where they stuck needles in my back was suppose tell...
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wldhrt13 DARK thoughts w/ TLE?
Created by wldhrt13at4/6/09 - 5:49 pm|62 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues
I am struggling with lots of deja- vu, horrible tastes in my mouth, ringing in my ears, and feeling like i am watching myself perform tasks in a detached way. All annoying but tolerable. I have been experiencing ohter symptoms which are pretty freaky...
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NikiPa... I don't think i reacted well.... what should i have done
Created by NikiPa...at7/3/09 - 7:14 am|80 Views|11 Comments Posted To: Living With Epilepsy - Adult Issues |
twitch i dont wake up so I wear diapers to bed now 27m seizure from hea...
Created by twitchat4/21/09 - 9:04 am|50 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues |
cooper... impossible to stay awake
Created by cooper...at7/4/08 - 10:39 pm|45 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues |
lisela... New - marijuana for people with epilepsy
Created by lisela...at10/19/09 - 11:56 am|49 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues
hey there
what sort of experiences have others had using Marijuana to control their seizures?
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mia m mia m
Created by mia mat5/27/09 - 4:10 pm|13 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues
HY i am new.
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srchtt3 migraine and simple partial epilepsy
Created by srchtt3at3/2/09 - 10:52 pm|55 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues
I just saw this topic for the epilepsy.com online journal:
Differentiating between migraine and simple partial epilepsy
Is this true? I had no idea!! My doctors have never even hinted at it! I have migraines off and on. A lot of times they will...
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REl3EL "Dizzy Spells"
Created by REl3ELat12/9/08 - 10:38 pm|58 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues
Hi...
I'm new to epilepsy.com and I was just posting this on here to see if anyone else out there had the same thing I do.
I'm 21 and have remembered having "dizzy spells" since I was 4. I have never had what people consider an actual...
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karina... New - "Electric" Dreams
Created by karina...at7/7/09 - 2:02 pm|48 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues
Hello,
I'm wondering if I can get some insight or if anyone has experienced the same thing. My husband who is 30 years old has had epilepsy since he was around 8 or 9 years old. He has not had a seizure since about the age 14-15, and has been on dilantin.
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phylis... New - "Fighting for a Cure" on DVD
Created by phylis...at10/26/09 - 4:45 am|12 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues
The 60 minutes "Fight for a Cure" segment willl be made available from Amazon soon. To reserve yours, simply click on www.amazon.com/60minutes. The segment will be the first one on your left.
Sorry, they didn't list the price.
__________________
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hope 0s "Just someone to talk with"
Created by hope 0sat1/25/08 - 7:34 pm|112 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues
Hello,
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stacey... "Live Learn and Be Happy with Epilepsyâ€
Created by stacey...at7/5/06 - 7:22 am|321 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues
The book that Stacey Chillemi has written is Available NOW!
This book has the most in depth-coverage of important development topics found anywhere on epilepsy, called "Live Learn and Be Happy with Epilepsy.†The author...
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RitKid742 New - "Post-ictal" confusion
Created by RitKid742at1/6/09 - 9:06 pm|148 Views|14 Comments Posted To: Living With Epilepsy - Adult Issues
Hey all,
Most of you don't know me, but, as I stated in my introductory thread, I'm new to all of this (Holy pleonasm, Batman!).
The first time I ever witnessed a seizure was during my video EEG in November. Naturally, I saw quite a number...
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wldhrt13 "Seized" by Eve LaPlant
Created by wldhrt13at10/9/06 - 2:51 pm|739 Views|10 Comments Posted To: Living With Epilepsy - Adult Issues I have just finished reading this book. Anyone else read it? and if so, what do you make of the Temporal Lobe Epilepsy "personality" which includes:
hyper-religiousity, hypergraphia, hyposexuality, viscosity/stickiness. I have...
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island... "Seizure Potential"
Created by island...at3/14/07 - 2:49 am|1053 Views|9 Comments Posted To: Living With Epilepsy - Adult Issues I was told my EEG showed "seizure potential" to which I responded "Doesn't everyone have seizaure potential"? My thinking was, if you have a brain, you have the potential for anything to be wrong with it...that doesn't mean there's...
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gretchen (whoops)
Created by gretchenat5/6/05 - 8:56 am|456 Views|11 Comments Posted To: Living With Epilepsy - Adult Issues I'm sorry. I posted a problem I've been having but found out from my neuro the answer so I'm removing my post.Basically I wake up often with sobbing, combativeness, wild emotions. Found out through an AEEG that I'm probably having...
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hiphop **THUMB CRAMPS**
Created by hiphopat1/27/06 - 2:22 pm|555 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues HAS ANYBODY HAD SEIZURES WHERE THE CRAMP STARTS IN THE THUMB AND THEN GETS SO PAINFUL THAT YOU ARE JUST HOPING TO PASS OUT. THIS IS HOW MINE STARTED. I HAD NO IDEA WHAT WAS HAPPENING, AND IT IS THE WORST PAIN YOU COULD EVER IMAGINE....
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ialdridge **Urgent - Help Confusion
Created by ialdridgeat9/25/07 - 6:01 am|323 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues Ok sorry I know this is going to be long but I have to ask. I have been on depakote for over a month not and have reach my theraputic levels for 2 weeks. They stay around 90. I take Depakote ER 500mg once in the morning and twice...
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mkor4 ...horrific symptoms (edited by epi_help)
Created by mkor4at1/16/08 - 10:45 am|496 Views|37 Comments Posted To: Living With Epilepsy - Adult Issues
PLEASE help me-
I feel like im going crazy but no medications have helped me-psychiatric or anticonvulsants etc and i dont iknow whats wrong with me-im living in hell and i think i wont ever get a diagnosis and working treatmwnt and that the only way...
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reneba... 19 year old female with epilespy
Created by reneba...at3/14/08 - 9:47 am|9 Views Posted To: Living With Epilepsy - Adult Issues |
reneba... 19 year old female with epilespy
Created by reneba...at3/14/08 - 9:48 am|3 Views Posted To: Living With Epilepsy - Adult Issues |
reneba... 19 year old female with epilespy
Created by reneba...at3/14/08 - 9:48 am|8 Views Posted To: Living With Epilepsy - Adult Issues |
reneba... 19 year old female with epilespy
Created by reneba...at3/14/08 - 9:48 am|20 Views Posted To: Living With Epilepsy - Adult Issues |
galaxy... 19 yr old ,OMG the seizures are back
Created by galaxy...at5/4/06 - 7:16 pm|440 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues Hey there My name is Jessie. I have tonic clonic seizures and before march 14 of this year I hadnt had one in 6 years. I have a boyfriend that is 24 years older than me and he is on disability. I am now not alowed to drive or work...
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