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Topic: Living With Epilepsy - Adult Issues

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cdurut
cdurut
New - Christian healing
Created by cdurutat2/7/10 - 9:33 pm|7 Views|1 Comment
Posted To: Living With Epilepsy - Adult Issues
  I am a Christian but I have also lived with epilepsy for 16 years (half my life) I have never been quite sure about asking God for healing (although many friends have suggested I should) but today I feel like I've had a bit of a break through...
larryz
larryz
New - Can taking OTC medications for cold, flu and sinus infections res...
Created by larryzat12/18/09 - 2:46 pm|45 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Can taking certain OTC medications for cold, flu and sinus infections result in seizures?
jasssmit
jasssmit
New - How long do your symptoms last (if they ever even go away)
Created by jasssmitat2/4/10 - 3:38 pm|56 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
During every appointment with my neurologist, I voice my concern regarding my fatigue, irritability, and memory difficulty--symptoms many of us know very well.  My last visit, I told her that in regards to the fatigue, I can barely even function outside...
phylis...
phylis...
New - Who is your personal hero?
Created by phylis...at2/7/10 - 6:07 am|92 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
For me, it was my Grandfather, who believed in me completely and thought that I could do anything I set out to do.  At the age of 14, I said I wanted to be a writer.  "Fine, he said.  You'll go to the Columbia School of Jounalism."  (Unfortunately...
Matthe...
Matthe...
New - Causes of Underemployment.
Created by Matthe...at8/20/08 - 10:38 am|87 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
For those of you who are able to work, but cannot find employment, I was wondering what you think the cause of this might be. For example, is it lack of transportation, experience, education, etc.? By "employment" I mean something commensurate...
jonah
jonah
New - Is there such a thing as PNES
Created by jonahat12/19/09 - 5:52 pm|29 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Juniper
Juniper
New - Convulsions/Seizures after being tickled
Created by Juniperat2/8/10 - 9:08 pm|6 Views
Posted To: Living With Epilepsy - Adult Issues
I'm new to this site/forum and undiagnosed (though, I am able to go through the site and identify with many of the symptoms, etc listed.) My question may be a bit wierd. My boyfriend and I recently ended up in a tickle fight. I had gone for his...
hnubts...
hnubts...
New - should I see a doctor?
Created by hnubts...at2/4/10 - 3:45 pm|48 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with petit mal/absence seizures when I was 16. I stopped taking my medication about seven years ago because I was in denial of having seizures. They continue to happen and I've been debating whether I should see a doctor.
Mornin...
Mornin...
New - Seizures During Sleep
Created by Mornin...at2/11/09 - 7:13 pm|66 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
  Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on...
someone
someone
New - Should I leave my epileptic wife?
Created by someoneat1/30/10 - 7:04 am|294 Views|28 Comments
Posted To: Living With Epilepsy - Adult Issues
The subject will take most of you with surprise. But hear me out first.. I got married a year ago. It was a traditional arranged marriage. I wasn't in love with her, but as is customary in our family, our parents tied the knot and we got married. I met...
derek3...
derek3...
New - Stress from court deposition
Created by derek3...at2/4/10 - 2:15 pm|16 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi can anybody help me?
Campbe...
Campbe...
New - Focal seizures
Created by Campbe...at2/5/10 - 11:00 pm|48 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello, On 11/2/09, I was diagnosed epileptic.  The original EEG showed sharp LEFT sided waves, now they are on the RIGHT. I am on Lamictal & Keppra.  They still are not controlled. Has anyone else had this happen where it was on one...
victor...
victor...
New - Ecstatic Seizures
Created by victor...at8/27/09 - 4:32 am|3471 Views|354 Comments
Posted To: Living With Epilepsy - Adult Issues
 Hi Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual"...
joycep...
joycep...
New - Mother of 22 year old needs help
Created by joycep...at9/11/09 - 6:31 pm|54 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
I'm a mother of a 22 year old son who had his first gran mal in 3rd grade and diagnosed with e when he was 15.  Trilepal controlled them until last October.  In the last 10 months we have doubled the dose of trilepal and added and doubled topomax and...
sparkbird
sparkbird
New - Gardasil, car accident, stress, PTSD, seizures?
Created by sparkbirdat8/4/09 - 8:16 am|81 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, I finally signed up after browsing the forums here for a while and I had some questions wondering if anyone can relate to what's going on with me. Back in 08 I started reciving the Gardasil shot.  A series of 3 shots to help protect against HPV...
SaulGoode
SaulGoode
New - "Stockholm Syndrome"
Created by SaulGoodeat12/22/09 - 7:04 pm|126 Views|10 Comments
Posted To: Living With Epilepsy - Adult Issues
Does anyone else worry sometimes that they may NOT be epileptic anymore?
gregs_...
gregs_...
New - Controlling seizures without medication
Created by gregs_...at4/22/09 - 10:27 am|167 Views|18 Comments
Posted To: Living With Epilepsy - Adult Issues
I hope that this does not turn out to be a controversial subject.  Let me just start by saying that I don't know what kind of seizure disorder I have.  I have had only 3 EEGs between the time I was 19 and now 35.
LoveKe...
LoveKe...
New - Generalized ideopathic/tonic clonic seizures..but simple partials too?
Created by LoveKe...at2/7/10 - 8:36 am|8 Views
Posted To: Living With Epilepsy - Adult Issues
Hello everyone, I'm new here and it looks a helpful place. I'm 21, and had my first TC seizure when I was 14. Because it was a one-off, I just went home from the hospital and that was that. However, when I was 18, I had 3 more in the space of a year....
Newyor...
Newyor...
New - Is anyone else like this? help!
Created by Newyor...at9/19/09 - 9:41 pm|144 Views|18 Comments
Posted To: Living With Epilepsy - Adult Issues
I feel like I'm drowning in a sea of confusion. I was diagnosed with epilepsy when I was a baby and then at 14 I started to react badly to zerontin. My doctors took me off the meds and said my seizures had stopped. I thought I was cured and seizures were...
magichild
magichild
New - Is a Medi-tag a good present for my fiance?
Created by magichildat2/8/09 - 11:18 am|66 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
My fiance has recently begun having tonic-clonic seizures and since this is new for him, he has no medi-tag or anything like that. He is finding it hard to come to terms with it all, so I want to get him one so that when he looks at it he can associate...

Anonymous
New - UPDATED: Can they legally fire me???
Created by Anonymousat10/4/08 - 2:33 am|439 Views|31 Comments
Posted To: Living With Epilepsy - Adult Issues
Thank you to everyone who replied to my thread. I am one of the luckier ones, because as I know now, my boss just has "a way with words" and sometimes says things without thinking about how they come across.
Maddy
Maddy
New - My body
Created by Maddyat2/2/10 - 2:05 pm|72 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
i sit here reading people's comment, people young, old.  People who have had seizures for 40 years everyday.  i get so angry at my body for betraying me.  But I see that there are survivers so there arent reasons for quitting.
phylis...
phylis...
New - Childhood Abuse and Epilepsy
Created by phylis...at2/6/10 - 1:35 pm|10 Views
Posted To: Living With Epilepsy - Adult Issues
It looks like a seizure…it acts like a seizure…but is it epilepsy? As recently as the 1980s, many doctors and scientists thought that by the time babies were born, the structure of their brains was already genetically determined. However, new research...
Caroli...
Caroli...
New - Does Family Ever Get Used To Seizures?
Created by Caroli...at12/31/08 - 9:26 pm|173 Views|16 Comments
Posted To: Living With Epilepsy - Adult Issues
I have had Epilepsy since birth.My family has known me all my life of 29 years.Some of them are okay with it and don't make a big thing if I have one.They just let it run it's course.Some on the other hand either are scared of it or go to extremes when I have one.
hmselby2
hmselby2
New - Temperature Triggers?
Created by hmselby2at11/29/06 - 10:37 am|904 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, I was only recently diagnosed with epilepsy, and upon the suggestion of a friend who also has it I have been trying to document different things that could be my "triggers" for seizures and seizure activity. I have been having...
wisegi...
wisegi...
New - Overcoming Fatigue Post Seizure
Created by wisegi...at2/4/10 - 4:02 pm|29 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello ... I'm new here and am glad to have found this forum.  Thank you. I'm well controlled on lamictal but get a bee in my bonnet every now and again and try to ween off the meds ... a denial thing to be sure.  Inevitably, a seizure comes. ...
Midnig...
Midnig...
New - At the end of my rope....Keppra, Lamictal, Lyrica....over it all
Created by Midnig...at1/27/10 - 3:12 pm|52 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
phylis...
phylis...
New - "Accelerating Research in the Epilepsies.”
Created by phylis...at2/5/10 - 3:13 pm|7 Views
Posted To: Living With Epilepsy - Adult Issues
Cure announces a groundbreaking new focus on funding and collaboration in epilepsy research. Simply click here, to find out more: http://cure.convio.net/site/MessageViewer?em_id=1301.0&dlv_id=6521 phylisfeinerjohnson
Newyor...
Newyor...
New - What is happening to me?
Created by Newyor...at12/3/09 - 10:09 pm|76 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
As i am writing this I don't even know how to express what's going on with me. All I know is that my life is falling apart. I feel so confused all the time and even when I don't feel confused I feel paralyzed to do anything about my life. I'm starting to swear...
dennis100
dennis100
New - VNS Horror Story
Created by dennis100at1/8/08 - 1:44 pm|710 Views|37 Comments
Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with epilepsy 16 years ago at the age of 34. My seizures have never been controlled with medications. Due to multiple focal points I did not quilify for brain surgery. My Neurologist suggested the VNS and I decided to give it a shot. I had...
phylis...
phylis...
New - Possible Causes for Epilepsy and Seizures
Created by phylis...at2/5/10 - 6:54 am|15 Views
Posted To: Living With Epilepsy - Adult Issues
While there are about 40 different kinds of epilepsy, there are probably even more types of seizure disorders -- caused by a number of internal and external events. However most doctors and publications agree upon a number of possible or even probable reasons...
Butter...
Butter...
New - Smoking cigarettes and seizures....
Created by Butter...at7/29/05 - 9:07 pm|4112 Views|52 Comments
Posted To: Living With Epilepsy - Adult Issues
I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non-smokers who even may know....Does...
jimgil
jimgil
New - First seizure; advice please?
Created by jimgilat1/29/10 - 8:54 am|29 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
I posted this before but probably in the wrong forum.  Hi Everyone I am sure there are other threads like this but I am still finding my way around the site, so any answers here would be greatly appreciated - sorry if it is tedious of me.. Basically...
undyin...
undyin...
New - Hydrocephalus and Epilepsy
Created by undyin...at11/19/09 - 12:19 pm|25 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi all, I'm new to the forum, but I'd like to post a question I've been researching the past couple days. I have both hydrocephalus and epilepsy. I had a VP shunt placed in at birth with about 15 or so revisions. I haven't had a revision or replacement...
bmg78
bmg78
New - Recently Diagnosed...a bit confused...
Created by bmg78at2/2/10 - 8:40 am|28 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, In the past two years I have had some seizures that left me with both a broken nose and broken cheekbone because I had no warning before they came on. I was sent for an EEG and a sleep deprived EEG and the results were that I was mildly disrythmyc with...
bleedi...
bleedi...
New - Seizure Alert Dogs
Created by bleedi...at3/26/08 - 10:30 pm|439 Views|36 Comments
Posted To: Living With Epilepsy - Adult Issues
A family member asked me what is the purpose of a seizure alert dog. I don't have one and I don't need one. I basically said the dog is there to protect a person with epilepsy in the case they have a seizure in public and that it is for people who don't...
tiff_25
tiff_25
New - Anyone experience memory loss?
Created by tiff_25at8/2/09 - 1:17 pm|891 Views|117 Comments
Posted To: Living With Epilepsy - Adult Issues
I have read a lot of stories on here, and havent seen anyone mention having memory loss since being diagnosed with epilepsy. I feel as though my memory has become much worse since being diagnosed in Jan 2009. I have been on Lamictal/Lamotigrine since, increased my...
Ei8ht
Ei8ht
New - Seizure, Panic Attack, both? Occurring during ovulation and menst...
Created by Ei8htat12/20/09 - 2:58 pm|101 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
I'm going to try and make this as brief as possible. In short, I experience panic attacks, deja vu, migraines, vertigo, "blank staring," and some symptoms that are similar to CPS Epilepsy; and all of these symptoms are very strongly associated with my menstrual...
stephc...
stephc...
New - my epilepsy
Created by stephc...at2/2/10 - 7:17 pm|8 Views
Posted To: Living With Epilepsy - Adult Issues
 
Mornin...
Mornin...
New - Seizures During Sleep
Created by Mornin...at2/11/09 - 7:16 pm|991 Views|87 Comments
Posted To: Living With Epilepsy - Adult Issues
  Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on...
maymae
maymae
New - HELP! I think I am having nocturnal seizures
Created by maymaeat2/2/10 - 1:18 pm|8 Views
Posted To: Living With Epilepsy - Adult Issues
Hey there. I have had seizures since I was 6 and I am 36  now. And I just got my VNS battery replaced yesterday. I have been diagnosed with petit/gran mal seizures. I take Keppra, Lamictal, and Topamax, and have never be seizure  free a day in my life.
phylis...
phylis...
New - SHARE THE LOVE!
Created by phylis...at2/2/10 - 7:49 am|7 Views
Posted To: Living With Epilepsy - Adult Issues
This Valentine’s week, please ask your co-workers, friends and family to share the love by donating to the Epilepsy cause. It doesn’t have to be a lot, every little bit helps. Simply click on http://www.efepa.org/abouts/view/7  or donate to the...
johnny
johnny
New - Who's decision is it ?
Created by johnnyat1/28/10 - 12:09 pm|69 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
Alang
Alang
New - Controlling Anxiety
Created by Alangat9/22/09 - 8:35 am|152 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello my name is Aaron I'm 19 years old I was born with simple and complex partial seizures. In truth they didn't used to have too much affect on my life, I'd have several a month if I forgot to eat one night or if I was playing sports and got unlucky. But...
vincen29
vincen29
New - California Driving
Created by vincen29at7/25/07 - 8:39 pm|919 Views|17 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello all, I'm in the process of moving to California and am hoping for kinder driving laws. I seem to be troubled with occasional seizures, but am fully compliant and honest with the doctors. I can FULLY understand why people...
phylis...
phylis...
New - Affordable meds at Costco!
Created by phylis...at2/1/10 - 6:04 am|9 Views
Posted To: Living With Epilepsy - Adult Issues
This comes from a person posting on the EFA site: "I have learned while trying to pay for medications when unemployed, like I am, that the best place to get your meds at a very affordable place is Costo.....I just got three months of Lamotragine...
phylis...
phylis...
New - Has anyone been abused because of having epilepsy?
Created by phylis...at1/29/10 - 8:45 am|225 Views|39 Comments
Posted To: Living With Epilepsy - Adult Issues
My abuse wasn't physical, it was emotional... My mother and step-father (a surgeon!) refused to acknowlege I had epilepsy and ignored all the falling, passing out, walking into walls, etc.
whitet...
whitet...
New - Getting into the military with epilepsy.
Created by whitet...at3/25/08 - 2:45 pm|260 Views|39 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello, I tried to get into the Army when I was 18 but they denied me because they couldn't guarentee that I would or could get my medication on a daily basis!  It makes sense!  Now my 17 year old son has plans of joining the Navy.  I've told him what I...
ibusse
ibusse
New - Can't remember to take medication, memory loss, losing friends
Created by ibusseat8/18/09 - 3:00 am|105 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
I wasn't offically diagnosed with epilepsy until I was 21.  However, as I look back and do research I realize I have been having them all of my life.  It has always been frustrating not knowing why I was always day dreaming, losing time, forgetting,...
Daze-o...
Daze-o...
New - Don't know how much more I can take. 10-15sz a day neuro from hll...
Created by Daze-o...at2/26/08 - 10:31 am|84 Views|7 Comments
Posted To: Living With Epilepsy - Adult Issues
I left my Neuro appointment yesterday pretty pissed off and really tired so I came home and got the kids taken care of and went to bed after taking my meds... It went like this:

 
brian ...
brian ...
kepra
Created by brian ...at1/23/06 - 5:45 am|18900 Views|83 Comments
Posted To: Living With Epilepsy - Adult Issues
does anyone know anything about kepra?...
WendyB...
WendyB...
New - How exactly do aura's feel
Created by WendyB...at5/15/06 - 8:30 am|13010 Views|140 Comments
Posted To: Living With Epilepsy - Adult Issues
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....
Maggie
Maggie
electrical shock in head?
Created by Maggieat7/17/05 - 9:37 pm|9454 Views|59 Comments
Posted To: Living With Epilepsy - Adult Issues
Last night I was laying in bed with my eyes closed and all of a sudden on the left side of my brain it felt just like an electrical shock.I jumped and there was a tingling sensation down my right arm.Didn't last very long.A few seconds...
Peaches78
Peaches78
personality change
Created by Peaches78at3/6/07 - 9:54 am|7840 Views|105 Comments
Posted To: Living With Epilepsy - Adult Issues
I was just wondering if anyone who started having seizures later felt that they weren't the same person anymore. I started having seizures almost two years ago, right after I turned 27. Inside I feel like a different person. As if...
elsea
elsea
Losing a driver's license w/ simple partial epilepsy?
Created by elseaat1/11/07 - 2:06 pm|7687 Views|37 Comments
Posted To: Living With Epilepsy - Adult Issues
I may have simple partial epilepsy. Has anyone who has this lost your driver's license? The dr. suggested I have a VEEG test in the hospital. But if I get a dx, then what happens? I already take Tegretol so it is pretty under...
expoiser
expoiser
Something everyone should know!
Created by expoiserat8/5/07 - 4:14 pm|5645 Views|98 Comments
Posted To: Living With Epilepsy - Adult Issues
Evening/morning all, for long ive been quiet on the forum.. And now, well... time to break the habbit. This dicussion thread is not gonna be nice in direction to the people refered to. This whole thread is simply about what have...
sweetie
sweetie
NC DMV PROBLEM
Created by sweetieat10/10/06 - 7:10 pm|5609 Views|7 Comments
Posted To: Living With Epilepsy - Adult Issues
this is my problem i had an accident while driving that did not involve me having a seizure however i was knocked out by the impact i told the paramedics when they arrived i had a seizure disorder and they let the emergency room doctor...
jopeart
jopeart
Sleep Deprivation Grand Mal Seizures?
Created by jopeartat12/13/04 - 2:56 am|4899 Views|36 Comments
Posted To: Living With Epilepsy - Adult Issues
I suffered a grand mal seizure a year ago, and following all the tests over the next six months, was diagnosed not...
Bedge
Bedge
Where did I leave my memory?
Created by Bedgeat1/14/07 - 3:48 am|4509 Views|42 Comments
Posted To: Living With Epilepsy - Adult Issues
Ok ... I've noticed a few weird things latley. For example: My boyfriend and I will be watching telly, when he gets up during the add breaks he asks me to call out to him when the show starts again. I always COMPLETLY forget. And...
poetry...
poetry...
Why have my seizures gotten worse?
Created by poetry...at1/27/04 - 9:48 pm|4425 Views|16 Comments
Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with epilepsy when I was almost 5 years old, in other words, early 1988. My epilepsy was kept under control for so many years. My epilepsy was kept under control until 2003. So that is what? That is fifteen years. I...
Butter...
Butter...
New - Smoking cigarettes and seizures....
Created by Butter...at7/29/05 - 9:07 pm|4112 Views|52 Comments
Posted To: Living With Epilepsy - Adult Issues
I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non-smokers who even may know....Does...
brgnshpr1
brgnshpr1
Bump on back of head
Created by brgnshpr1at12/18/06 - 7:08 am|3917 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
I have developed a bump on the back of my head, at the base of my skull on my right side. I noticed it this morning while washing my hair. It is a little tender to the touch. It is about the size of a quarter. I am currently on...
gretchen1
gretchen1
Muscle twitches?
Created by gretchen1at6/20/06 - 1:05 pm|3771 Views|19 Comments
Posted To: Living With Epilepsy - Adult Issues
I am plagued by muscle twitching. Last night as I was falling asleep it was especially bad, so I decided to start a thread. I didn't have this right after I was diagnosed. I had an open head injury in the first year after I...
victor...
victor...
New - Ecstatic Seizures
Created by victor...at8/27/09 - 4:32 am|3471 Views|354 Comments
Posted To: Living With Epilepsy - Adult Issues
 Hi Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual"...
bassde...
bassde...
I've had the big E for years, but still can't cope...
Created by bassde...at4/15/06 - 7:27 am|3295 Views|50 Comments
Posted To: Living With Epilepsy - Adult Issues
OK, people prepare yourself. I apologize in advance to anyone I might offend in this, but nobody else seems to know what I'm going through here, and I found this site, so maybe someone can listen and understand. I'm just so tired of...
benji
benji
nocturnal epilepsey only need advice anyone else have this ?
Created by benjiat1/26/06 - 11:26 am|3062 Views|42 Comments
Posted To: Living With Epilepsy - Adult Issues
my daughter has seizurs at night when she sleeps and if she falls asleep during the day . this happens every night about one hour after she goes to sleep and throughout the night averaging 12 to 15 per night she has been on almost...
heidi
heidi
weird seizure triggers?
Created by heidiat5/23/06 - 10:30 am|2986 Views|34 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello, I am new to the forum. I have been having symptoms which lead my neurologist to believe I'm having simple and complex partial seizures; he has tentatively diagnosed me with TLE and I've been on 500mg of Keppra twice a day for...
doksda...
doksda...
does anyone have any problems w/ allergies?
Created by doksda...at4/26/05 - 2:55 am|2983 Views|38 Comments
Posted To: Living With Epilepsy - Adult Issues
Does anyone have problems with allergies interfering with your epilepsy?...
jenny_74
jenny_74
Someone answer my question!!!!!!!!!!!!!!!!!Please!
Created by jenny_74at7/19/07 - 11:52 am|2968 Views|42 Comments
Posted To: Living With Epilepsy - Adult Issues
my seisures started when ı was 19 i had memory loss and i kept on asking my friends who i was and where i was so i was sent to england where i was born (ı am from cyprus)The doctor there told me without EEGs to take 200mg of...
lrshaw
lrshaw
Eye Twitching
Created by lrshawat3/15/07 - 2:54 pm|2849 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
For as long as I can remember I get the occasional twitch in my eyes. Nothing big, just occasionally the muscles jump. But ever since my first "episode" (Nov '06, still undergoing testing, the dr. is thinking either complex partial...
Butter...
Butter...
What is that ticking noise?
Created by Butter...at8/18/05 - 6:15 am|2745 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
Every now and then, when it's quiet, I hear a "tick tick tick" in my ear. Such a light sound, in fact that if music was playing I wouldn't even hear it.When I say "light" - I mean LIGHT! It's not a loud ticking sound like a clock....
bigjef...
bigjef...
night time siezures
Created by bigjef...at7/24/05 - 1:56 pm|2739 Views|7 Comments
Posted To: Living With Epilepsy - Adult Issues
I have those too but the only way I know is if my family tells me I had them. So far I am on Keppra 5mg three tablets two times a day, Neurotin 300mg capsules daily, diilantin100mg 5 times daily. I wake up feeling totally exhusted,...
A Day
A Day
Been told not to tell anyone about seizures or Epilepsy...
Created by A Dayat9/19/07 - 9:03 am|2711 Views|58 Comments
Posted To: Living With Epilepsy - Adult Issues
I am still new to all of this...still goinng through tests and Dr's appointments. My SPS's or aura's are affecting my professional life alot latley. I haven't said a word to anyone but my mother, my husband, my best girlfriend (3000...
WVBaker
WVBaker
I just want to give up
Created by WVBakerat1/16/07 - 4:06 pm|2693 Views|24 Comments
Posted To: Living With Epilepsy - Adult Issues
To anyone who will listen: Over the past few weeks, my wife described to me “episodes”, which she claims I was having. I of course, have no reason to doubt her, but don’t remember them. The first ones were describe...
sweetie
sweetie
NC DMV Epilipsy Dirvers License problem
Created by sweetieat10/16/06 - 6:26 pm|2438 Views|14 Comments
Posted To: Living With Epilepsy - Adult Issues
I recentley had a seizure in july of 2006 and recived a letter in august from the NC DMV informing me a review of my medical file indicated that i should be medically evaluated to determine if i could safley operate a motor vehicle...

 
Belinda
Belinda
Back problems because of going down on y...
Created by Belindaat9/11/08 - 12:13 pm|46 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Yes because of all the years I've gone down on my back because of seizures it's now put me in really bad pain. I did something to my disc and the test didn't tell the story. The disco gram I had where they stuck needles in my back was suppose tell...
wldhrt13
wldhrt13
DARK thoughts w/ TLE?
Created by wldhrt13at4/6/09 - 5:49 pm|64 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
I am struggling with lots of deja- vu, horrible tastes in my mouth, ringing in my ears, and feeling like i am watching myself perform tasks in a detached way.  All annoying but tolerable.  I have been experiencing ohter symptoms which are pretty freaky...
NikiPa...
NikiPa...
I don't think i reacted well.... what should i have done
Created by NikiPa...at7/3/09 - 7:14 am|80 Views|11 Comments
Posted To: Living With Epilepsy - Adult Issues
twitch
twitch
i dont wake up so I wear diapers to bed now 27m seizure from hea...
Created by twitchat4/21/09 - 9:04 am|54 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
cooper...
cooper...
impossible to stay awake
Created by cooper...at7/4/08 - 10:39 pm|47 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
lisela...
lisela...
marijuana for people with epilepsy
Created by lisela...at10/19/09 - 11:56 am|60 Views|4 Comments
Posted To: Living With Epilepsy - Adult Issues
hey there what sort of experiences have others had using Marijuana to control their seizures?
mia m
mia m
mia m
Created by mia mat5/27/09 - 4:10 pm|13 Views|1 Comment
Posted To: Living With Epilepsy - Adult Issues
HY i am new.  
srchtt3
srchtt3
migraine and simple partial epilepsy
Created by srchtt3at3/2/09 - 10:52 pm|57 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
I just saw this topic for the epilepsy.com online journal: Differentiating between migraine and simple partial epilepsy Is this true? I had no idea!! My doctors have never even hinted at it! I have migraines off and on. A lot of times they will...
phylis...
phylis...
New - "Accelerating Research in the Epilepsies.”
Created by phylis...at2/5/10 - 3:13 pm|7 Views
Posted To: Living With Epilepsy - Adult Issues
Cure announces a groundbreaking new focus on funding and collaboration in epilepsy research. Simply click here, to find out more: http://cure.convio.net/site/MessageViewer?em_id=1301.0&dlv_id=6521 phylisfeinerjohnson
REl3EL
REl3EL
"Dizzy Spells"
Created by REl3ELat12/9/08 - 10:38 pm|82 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi... I'm new to epilepsy.com and I was just posting this on here to see if anyone else out there had the same thing I do. I'm 21 and have remembered having "dizzy spells" since I was 4. I have never had what people consider an actual...
karina...
karina...
New - "Electric" Dreams
Created by karina...at7/7/09 - 2:02 pm|88 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello, I'm wondering if I can get some insight or if anyone has experienced the same thing. My husband who is 30 years old has had epilepsy since he was around 8 or 9 years old. He has not had a seizure since about the age 14-15, and has been on dilantin.
phylis...
phylis...
"Fighting for a Cure" on DVD
Created by phylis...at10/26/09 - 4:45 am|12 Views|1 Comment
Posted To: Living With Epilepsy - Adult Issues
The 60 minutes "Fight for a Cure" segment willl be made available from Amazon soon. To reserve yours, simply click on www.amazon.com/60minutes. The segment will be the first one on your left. Sorry, they didn't list the price. __________________
stxchick
stxchick
"grand mal" seizures on eeg, but no outward symptoms
Created by stxchickat12/26/09 - 12:34 pm|30 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
As a kid I had grand mal seizures, having my first in a spelling bee in 2nd grade.  At 15 I no longer had seizures and at 18 I was told I could stop my meds. Almost 30 years after stopping my meds, I went to a neuro for something else, he did an eeg...
hope 0s
hope 0s
"Just someone to talk with"
Created by hope 0sat1/25/08 - 7:34 pm|112 Views|4 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello,
stacey...
stacey...
"Live Learn and Be Happy with Epilepsy”
Created by stacey...at7/5/06 - 7:22 am|321 Views|1 Comment
Posted To: Living With Epilepsy - Adult Issues
The book that Stacey Chillemi has written is Available NOW! This book has the most in depth-coverage of important development topics found anywhere on epilepsy, called "Live Learn and Be Happy with Epilepsy.” The author...
RitKid742
RitKid742
"Post-ictal" confusion
Created by RitKid742at1/6/09 - 9:06 pm|170 Views|16 Comments
Posted To: Living With Epilepsy - Adult Issues
Hey all, Most of you don't know me, but, as I stated in my introductory thread, I'm new to all of this (Holy pleonasm, Batman!).   The first time I ever witnessed a seizure was during my video EEG in November.  Naturally, I saw quite a number...
wldhrt13
wldhrt13
"Seized" by Eve LaPlant
Created by wldhrt13at10/9/06 - 2:51 pm|739 Views|10 Comments
Posted To: Living With Epilepsy - Adult Issues
I have just finished reading this book. Anyone else read it? and if so, what do you make of the Temporal Lobe Epilepsy "personality" which includes: hyper-religiousity, hypergraphia, hyposexuality, viscosity/stickiness. I have...
island...
island...
"Seizure Potential"
Created by island...at3/14/07 - 2:49 am|1053 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
I was told my EEG showed "seizure potential" to which I responded "Doesn't everyone have seizaure potential"? My thinking was, if you have a brain, you have the potential for anything to be wrong with it...that doesn't mean there's...
SaulGoode
SaulGoode
New - "Stockholm Syndrome"
Created by SaulGoodeat12/22/09 - 7:04 pm|126 Views|10 Comments
Posted To: Living With Epilepsy - Adult Issues
Does anyone else worry sometimes that they may NOT be epileptic anymore?
gretchen
gretchen
(whoops)
Created by gretchenat5/6/05 - 8:56 am|456 Views|11 Comments
Posted To: Living With Epilepsy - Adult Issues
I'm sorry. I posted a problem I've been having but found out from my neuro the answer so I'm removing my post.Basically I wake up often with sobbing, combativeness, wild emotions. Found out through an AEEG that I'm probably having...
hiphop
hiphop
**THUMB CRAMPS**
Created by hiphopat1/27/06 - 2:22 pm|555 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
HAS ANYBODY HAD SEIZURES WHERE THE CRAMP STARTS IN THE THUMB AND THEN GETS SO PAINFUL THAT YOU ARE JUST HOPING TO PASS OUT. THIS IS HOW MINE STARTED. I HAD NO IDEA WHAT WAS HAPPENING, AND IT IS THE WORST PAIN YOU COULD EVER IMAGINE....
ialdridge
ialdridge
**Urgent - Help Confusion
Created by ialdridgeat9/25/07 - 6:01 am|323 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Ok sorry I know this is going to be long but I have to ask. I have been on depakote for over a month not and have reach my theraputic levels for 2 weeks. They stay around 90. I take Depakote ER 500mg once in the morning and twice...
mkor4
mkor4
...horrific symptoms (edited by epi_help)
Created by mkor4at1/16/08 - 10:45 am|499 Views|37 Comments
Posted To: Living With Epilepsy - Adult Issues
PLEASE help me- I feel like im going crazy but no medications have helped me-psychiatric or anticonvulsants etc and i dont iknow whats wrong with me-im living in hell and i think i wont ever get a diagnosis and working treatmwnt and that the only way...
phylis...
phylis...
10 Tips for 2010
Created by phylis...at12/27/09 - 7:13 am|56 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
reneba...
reneba...
19 year old female with epilespy
Created by reneba...at3/14/08 - 9:47 am|9 Views
Posted To: Living With Epilepsy - Adult Issues