Hello my name is Aaron I'm 19 years old I was born with simple and complex partial seizures. In truth they didn't used to have too much affect on my life, I'd have several a month if I forgot to eat one night or if I was playing sports and got unlucky. But...

Hello all,

Hello Everyone, Looking for: Top Ranked Hospital - Best Neurologist with Epilepsy Specialty in: Southern California / Los Angeles / Pasadena I just experienced my 2nd Grand Mal Seizure/Tonic Clonic  2 days ago at age 22 and it sure does hurt.(Body...

I have read a lot of stories on here, and havent seen anyone mention having memory loss since being diagnosed with epilepsy. I feel as though my memory has become much worse since being diagnosed in Jan 2009. I have been on Lamictal/Lamotigrine since, increased my...

How do you fight your memory loss from your medications or seizures?

I am a fire-fighter of 15 years.  January 6th 2009 i was diagnosed with a brain tumour.  January 26th 09 it was removed.  All was going well till 1st November 09 when i had my first seizure.  It is looking now like i wont ever return to full operational...

I had a question. I had a left mesial temporal lobectomy dec of 2008. I was fine until may of 2009. I started having these weird feelings that to me was like the warning signs of a seizure. It would be the metallic taste and smell, feelings of impending doom,...

Hoping someone has an answer to this.  I have been dealing with having grand mals since I was 14, first one during school lunch you get well known really fast in school when your carried out on a gurney.  In any case, the problem I'm hoping someone can...

  I had my first grand mal in three years the other night. :( I went to bed with a KILLER headache in the occipital lobe area.  It hurt so bad that i was in bed at 7pm.  At 1am i woke up with a bit tongue and what smelled like urine.. good...

I saw this recently - I wonder what sort of study this will be.  If they will be entering into this with the mindset "Ictal Religious Experiences=psychosis" or if they are really interested in pursuing this fascinating topic further.  Hmmm --sparker

Does anyone know if having night terrors and epilepsy are linked?  I've had a night terror issue for years, far before I started having epileptic seizures.  I started having epileptic seizures (at least during the daytime) when I was 18.  My night terror...

hi i am having these things i think they are called aura but i was reading about auras and mine are so different  then  what i have read .i just want to see if anyone is experiencing the same. my auras are about one second when its like my...

so I've been seizure free since day one of my temporal lobectomy. nothing else to worry about. it was allll worth it. now for those who are worried about surgery DONT BE its great! Nothing esle to say.

It is a common question on this forum and a frequently asked one in the chat room whether or not it is "ok" to consume alcohol or smoke marijuana when you have been diagnosed with epilepsy or a seizure disorder. I am here to tell you all something...

Several times now I will be in different places and swear I smell something like a dead animal.  I know this sounds awful and it smells awful.  I am wondering now if this could be an aura from a simple partial seizure.  I have never had this type before. ...

My doctor thought I should try L-taurine for my bipolar condition.  I read up on it and it said L-taurine can cause unusual EEG results.  I am wondering if anyone has used this supplement before and what it did to their EEG test.  I would...

Hi all, I'm new to the forum, but I'd like to post a question I've been researching the past couple days. I have both hydrocephalus and epilepsy. I had a VP shunt placed in at birth with about 15 or so revisions. I haven't had a revision or replacement...

I recently got switched over from the lamotrigine to lamictal.  Has anyone experienced a difference?

 Hi Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual"...

I am taking Lamotrigine for my E and was wondering if anyone out there taking the same meds has had problems with speach. I seem to have difficulty verbalizing my thoughts even though they are straight in my head. Sometimes I also...

A little while ago, when I went to my doc, I told him I felt like I was jumping out of my skin.  I’m already maxed out on meds, so he suggested breathing exercises as a complimentary addition to my regimen. I’ve started them and already, I feel...

Hi everyone. I have several questions and Im very confused right now, maybe someone can shed a light on this situation. Im 24, I had my first grand mal seizure 4 years ago. I was hospitalized because I hit my head and was knocked out for a day straight.....

Hello anyone that might have good info for me -

I need some clarity, opinions, education, from people on this site that are living with epilepsy or have some sort of education with this. I am 29 years old and have been diagnosed with epilepsy for 3 years. Here is a brief summary of my diagnoses....

A family member asked me what is the purpose of a seizure alert dog. I don't have one and I don't need one. I basically said the dog is there to protect a person with epilepsy in the case they have a seizure in public and that it is for people who don't...

Hi. i am a 19 year old college student. I was re-diagnosed with epilepsy in Feburary after having been seizure-free for 7 years and off medication for two. My neurologist has been trying me on different medications and we have finally settled on keppra. Because...

How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....

Hey everyone I was wondering if anyone had tips on being able to live on your own. I am looking for an apartment or a house to live in with roomates. Right now, I live with my boyfriend, because I feel 'safe', he knows my condition and helps but relationship...

Hi all,

I have tonic clonic seizures and usually at night. I am unable to rescue\aid myself; I am with my parents right now while attending college, but I may never live independent. I may have to have someone live with me. What type of person is this? Has anyone...

Hello, My name is Danny I am 26 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also.one questions i have is that the seizures...

Now, I'm sure a large amount of people are familiar with these, and like myself, i'm sure you find it hard to put into words when it come to describing what exactly it feels like. for me, the closest I can get is that my bottom lip and right hand go numb,...

I started having partials about 2 years ago and tonic-clonics about a year ago and I have also started falling to right when in motion. Is this associated?...

I just received an email from the American Epilepsy Outreach Foundation http://epilepsyoutreach.org/9#two with all kinds of wonderfully useful links. So, I thought I'd share them with you. Some may be familiar, and some quite new: Epilepsy Resources

do u think that seizures can be controlled through psychological treatment? i think yes...because many diseases in our bodies starts psyclogically,which finally lands up into a disease.

I am having what I believe is auras. The descriptions here are so precise down to exactly what I do. It is good to know. I am not sure, but if you feel this coming on, is there anyone one does to stop it?  If you are starting to get the dejavu feelings...

I have a feeling that I have recently been having seizures in my sleep.  I've typically had them in the day time before.  I don't know for sure, I just know I wake up in the morning not feeling "right,"  so I'm suspicious.  I have complex partial...

  Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on...

Hello, I am new to the forum. I have been having symptoms which lead my neurologist to believe I'm having simple and complex partial seizures; he has tentatively diagnosed me with TLE and I've been on 500mg of Keppra twice a day for...

Hello all, I am 33 years old and had a single siezure a little over 18 months ago.  I was within minutes put on a medication that i can't recall at the moment (dio something??)  and i was tested with every test anyone could come up with and only one of those...

Hi I took 1 Depo-provera shot and did not get my period for a year. Then when I finally got my period I also started having seizures. Has anyone else had same or similar problems?

 You may have been told or thought that exercise can bring on seizures.  Not necessarily so.  At lease for a large population of those with epilepsy…

Hello Everyone, I never had a problem with seizures all my life until after my Meningioma (Benign Brain Tumor) was removed via surgery.  Now I get Simple Partial Seizures.  I always hear of people saying they get Simple Partial seizures and when they...

I am looking for any help with this topic. I have been unable to work for like 3 years but I dont know if I qualifiy and if someone that is on disabily could help I would be so greatfull.

So I have never found a trigger my siezures beyond them occuring around my period...but I think I might be on to something. Maybe even something that might give me the origin to my seizures- since they haven't found anything on my CT scans or MRI. I went out...

Hello, I tried to get into the Army when I was 18 but they denied me because they couldn't guarentee that I would or could get my medication on a daily basis!  It makes sense!  Now my 17 year old son has plans of joining the Navy.  I've told him what I...

I live in NJ and one year ago my license was revoked for having partial-onset seizures. I have been seizure free for one year now and I have my medical forms all ready to send into the NJ MVC. I am a bit nervous however...i keep thinking of all the things...

Hello all,  This is my first time posting.  I've been having grand mal seizures for 7 years (I'm 31)and I'm looking for support groups in the north suburban Chicago area.  There are some in the west burbs and near the city but it's tough for me...