 cdurut
New - Christian healing Created by cdurutat2/7/10 - 9:33 pm|7 Views|1 Comment
Posted To: Living With Epilepsy - Adult Issues
I am a Christian but I have also lived with epilepsy for 16 years (half my life)
I have never been quite sure about asking God for healing (although many friends have suggested I should) but today I feel like I've had a bit of a break through...
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 larryz
New - Can taking OTC medications for cold, flu and sinus infections res...Created by larryzat12/18/09 - 2:46 pm|45 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Can taking certain OTC medications for cold, flu and sinus infections result in seizures?
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 jasssmit
New - How long do your symptoms last (if they ever even go away)Created by jasssmitat2/4/10 - 3:38 pm|56 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
During every appointment with my neurologist, I voice my concern regarding my fatigue, irritability, and memory difficulty--symptoms many of us know very well. My last visit, I told her that in regards to the fatigue, I can barely even function outside...
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 phylis...
New - Who is your personal hero?Created by phylis...at2/7/10 - 6:07 am|92 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
For me, it was my Grandfather, who believed in me completely and thought that I could do anything I set out to do. At the age of 14, I said I wanted to be a writer. "Fine, he said. You'll go to the Columbia School of Jounalism." (Unfortunately...
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 Matthe...
New - Causes of Underemployment.Created by Matthe...at8/20/08 - 10:38 am|87 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
For those of you who are able to work, but cannot find employment, I was wondering what you think the cause of this might be. For example, is it lack of transportation, experience, education, etc.? By "employment" I mean something commensurate...
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 jonah
New - Is there such a thing as PNESCreated by jonahat12/19/09 - 5:52 pm|29 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
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 Juniper
New - Convulsions/Seizures after being tickledCreated by Juniperat2/8/10 - 9:08 pm|6 Views
Posted To: Living With Epilepsy - Adult Issues
I'm new to this site/forum and undiagnosed (though, I am able to go through the site and identify with many of the symptoms, etc listed.)
My question may be a bit wierd.
My boyfriend and I recently ended up in a tickle fight. I had gone for his...
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 hnubts...
New - should I see a doctor?Created by hnubts...at2/4/10 - 3:45 pm|48 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with petit mal/absence seizures when I was 16. I stopped taking my medication about seven years ago because I was in denial of having seizures. They continue to happen and I've been debating whether I should see a doctor.
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 Mornin...
New - Seizures During SleepCreated by Mornin...at2/11/09 - 7:13 pm|66 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on...
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 someone
New - Should I leave my epileptic wife?Created by someoneat1/30/10 - 7:04 am|294 Views|28 Comments
Posted To: Living With Epilepsy - Adult Issues
The subject will take most of you with surprise. But hear me out first..
I got married a year ago. It was a traditional arranged marriage. I wasn't in love with her, but as is customary in our family, our parents tied the knot and we got married. I met...
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 derek3...
New - Stress from court depositionCreated by derek3...at2/4/10 - 2:15 pm|16 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi can anybody help me?
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 Campbe...
New - Focal seizuresCreated by Campbe...at2/5/10 - 11:00 pm|48 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello,
On 11/2/09, I was diagnosed epileptic. The original EEG showed sharp LEFT sided waves, now they are on the RIGHT.
I am on Lamictal & Keppra. They still are not controlled.
Has anyone else had this happen where it was on one...
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 victor...
New - Ecstatic SeizuresCreated by victor...at8/27/09 - 4:32 am|3471 Views|354 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi
Has anyone experienced "ecstatic" seizures? I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life! I'm not religious or "spiritual"...
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 joycep...
New - Mother of 22 year old needs helpCreated by joycep...at9/11/09 - 6:31 pm|54 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
I'm a mother of a 22 year old son who had his first gran mal in 3rd grade and diagnosed with e when he was 15. Trilepal controlled them until last October. In the last 10 months we have doubled the dose of trilepal and added and doubled topomax and...
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 sparkbird
New - Gardasil, car accident, stress, PTSD, seizures?Created by sparkbirdat8/4/09 - 8:16 am|81 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi,
I finally signed up after browsing the forums here for a while and I had some questions wondering if anyone can relate to what's going on with me.
Back in 08 I started reciving the Gardasil shot. A series of 3 shots to help protect against HPV...
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 SaulGoode
New - "Stockholm Syndrome"Created by SaulGoodeat12/22/09 - 7:04 pm|126 Views|10 Comments
Posted To: Living With Epilepsy - Adult Issues
Does anyone else worry sometimes that they may NOT be epileptic anymore?
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 gregs_...
New - Controlling seizures without medicationCreated by gregs_...at4/22/09 - 10:27 am|167 Views|18 Comments
Posted To: Living With Epilepsy - Adult Issues
I hope that this does not turn out to be a controversial subject.
Let me just start by saying that I don't know what kind of seizure disorder I have. I have had only 3 EEGs between the time I was 19 and now 35.
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 LoveKe...
New - Generalized ideopathic/tonic clonic seizures..but simple partials too?Created by LoveKe...at2/7/10 - 8:36 am|8 Views
Posted To: Living With Epilepsy - Adult Issues
Hello everyone, I'm new here and it looks a helpful place.
I'm 21, and had my first TC seizure when I was 14. Because it was a one-off, I just went home from the hospital and that was that. However, when I was 18, I had 3 more in the space of a year....
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 Newyor...
New - Is anyone else like this? help!Created by Newyor...at9/19/09 - 9:41 pm|144 Views|18 Comments
Posted To: Living With Epilepsy - Adult Issues
I feel like I'm drowning in a sea of confusion. I was diagnosed with epilepsy when I was a baby and then at 14 I started to react badly to zerontin. My doctors took me off the meds and said my seizures had stopped. I thought I was cured and seizures were...
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 magichild
New - Is a Medi-tag a good present for my fiance?Created by magichildat2/8/09 - 11:18 am|66 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
My fiance has recently begun having tonic-clonic seizures and since this is new for him, he has no medi-tag or anything like that. He is finding it hard to come to terms with it all, so I want to get him one so that when he looks at it he can associate...
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 Anonymous
New - UPDATED: Can they legally fire me???Created by Anonymousat10/4/08 - 2:33 am|439 Views|31 Comments
Posted To: Living With Epilepsy - Adult Issues
Thank you to everyone who replied to my thread. I am one of the luckier ones, because as I know now, my boss just has "a way with words" and sometimes says things without thinking about how they come across.
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 Maddy
New - My bodyCreated by Maddyat2/2/10 - 2:05 pm|72 Views|8 Comments
Posted To: Living With Epilepsy - Adult Issues
i sit here reading people's comment, people young, old. People who have had seizures for
40 years everyday. i get so angry at my body for betraying me. But I see that there are survivers
so there arent reasons for quitting.
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 phylis...
New - Childhood Abuse and Epilepsy Created by phylis...at2/6/10 - 1:35 pm|10 Views
Posted To: Living With Epilepsy - Adult Issues
It looks like a seizure…it acts like a seizure…but is it epilepsy?
As recently as the 1980s, many doctors and scientists thought that by the time babies were born, the structure of their brains was already genetically determined. However, new research...
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 Caroli...
New - Does Family Ever Get Used To Seizures?Created by Caroli...at12/31/08 - 9:26 pm|173 Views|16 Comments
Posted To: Living With Epilepsy - Adult Issues
I have had Epilepsy since birth.My family has known me all my life
of 29 years.Some of them are okay with it and don't make a big thing if I have
one.They just let it run it's course.Some on the other hand either are scared
of it or go to extremes when I have one.
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 hmselby2
New - Temperature Triggers?Created by hmselby2at11/29/06 - 10:37 am|904 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, I was only recently diagnosed with epilepsy, and upon the suggestion of a friend who also has it I have been trying to document different things that could be my "triggers" for seizures and seizure activity. I have been having...
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 wisegi...
New - Overcoming Fatigue Post SeizureCreated by wisegi...at2/4/10 - 4:02 pm|29 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello ...
I'm new here and am glad to have found this forum. Thank you.
I'm well controlled on lamictal but get a bee in my bonnet every now and again and try to ween off the meds ... a denial thing to be sure. Inevitably, a seizure comes. ...
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 Midnig...
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 phylis...
New - "Accelerating Research in the Epilepsies.” Created by phylis...at2/5/10 - 3:13 pm|7 Views
Posted To: Living With Epilepsy - Adult Issues
Cure announces a groundbreaking new focus on funding and collaboration in epilepsy research. Simply click here, to find out more: http://cure.convio.net/site/MessageViewer?em_id=1301.0&dlv_id=6521
phylisfeinerjohnson
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 Newyor...
New - What is happening to me?Created by Newyor...at12/3/09 - 10:09 pm|76 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
As i am writing this I don't even know how to express what's going on with me. All I know is that my life is falling apart. I feel so confused all the time and even when I don't feel confused I feel paralyzed to do anything about my life. I'm starting to swear...
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 dennis100
New - VNS Horror StoryCreated by dennis100at1/8/08 - 1:44 pm|710 Views|37 Comments
Posted To: Living With Epilepsy - Adult Issues
I was diagnosed with epilepsy 16 years ago at the age of 34. My seizures have never been controlled with medications. Due to multiple focal points I did not quilify for brain surgery. My Neurologist suggested the VNS and I decided to give it a shot. I had...
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 phylis...
New - Possible Causes for Epilepsy and Seizures Created by phylis...at2/5/10 - 6:54 am|15 Views
Posted To: Living With Epilepsy - Adult Issues
While there are about 40 different kinds of epilepsy, there are probably even more types of seizure disorders -- caused by a number of internal and external events. However most doctors and publications agree upon a number of possible or even probable reasons...
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 Butter...
New - Smoking cigarettes and seizures....Created by Butter...at7/29/05 - 9:07 pm|4112 Views|52 Comments
Posted To: Living With Epilepsy - Adult Issues
I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non-smokers who even may know....Does...
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 jimgil
New - First seizure; advice please?Created by jimgilat1/29/10 - 8:54 am|29 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
I posted this before but probably in the wrong forum.
Hi Everyone I am sure there are other threads like this but I am still
finding my way around the site, so any answers here would be greatly
appreciated - sorry if it is tedious of me..
Basically...
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 undyin...
New - Hydrocephalus and EpilepsyCreated by undyin...at11/19/09 - 12:19 pm|25 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi all,
I'm new to the forum, but I'd like to post a question I've been researching the past couple days.
I have both hydrocephalus and epilepsy. I had a VP shunt placed in at birth with about 15 or so revisions. I haven't had a revision or replacement...
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 bmg78
New - Recently Diagnosed...a bit confused...Created by bmg78at2/2/10 - 8:40 am|28 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, In the past two years I have had some seizures that left me with both a broken nose and broken cheekbone because I had no warning before they came on. I was sent for an EEG and a sleep deprived EEG and the results were that I was mildly disrythmyc with...
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 bleedi...
New - Seizure Alert DogsCreated by bleedi...at3/26/08 - 10:30 pm|439 Views|36 Comments
Posted To: Living With Epilepsy - Adult Issues
A family member asked me what is the purpose of a seizure alert dog. I don't have one and I don't need one. I basically said the dog is there to protect a person with epilepsy in the case they have a seizure in public and that it is for people who don't...
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 tiff_25
New - Anyone experience memory loss?Created by tiff_25at8/2/09 - 1:17 pm|891 Views|117 Comments
Posted To: Living With Epilepsy - Adult Issues
I have read a lot of stories on here, and havent seen anyone mention having memory loss since being diagnosed with epilepsy. I feel as though my memory has become much worse since being diagnosed in Jan 2009. I have been on Lamictal/Lamotigrine since, increased my...
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 Ei8ht
New - Seizure, Panic Attack, both? Occurring during ovulation and menst...Created by Ei8htat12/20/09 - 2:58 pm|101 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
I'm going to try and make this as brief as possible.
In short, I experience panic attacks, deja vu, migraines, vertigo, "blank staring," and some symptoms that are similar to CPS Epilepsy; and all of these symptoms are very strongly associated with my menstrual...
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 stephc...
New - my epilepsyCreated by stephc...at2/2/10 - 7:17 pm|8 Views
Posted To: Living With Epilepsy - Adult Issues
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 Mornin...
New - Seizures During SleepCreated by Mornin...at2/11/09 - 7:16 pm|991 Views|87 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi, I'm new to this site. I have most of my seizures in my sleep or in the morning after waking up.. my last one being two days ago. It seems that either illicit drugs, alcohol or lack of sleep bring most of my seizures on, and I'm working on...
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 maymae
New - HELP! I think I am having nocturnal seizuresCreated by maymaeat2/2/10 - 1:18 pm|8 Views
Posted To: Living With Epilepsy - Adult Issues
Hey there. I have had seizures since I was 6 and I am 36 now. And I just got my VNS battery replaced yesterday.
I have been diagnosed with petit/gran mal seizures. I take Keppra, Lamictal, and Topamax, and have never be seizure free a day in my life.
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 phylis...
New - SHARE THE LOVE! Created by phylis...at2/2/10 - 7:49 am|7 Views
Posted To: Living With Epilepsy - Adult Issues
This Valentine’s week, please ask your co-workers, friends and family to share the love by donating to the Epilepsy cause.
It doesn’t have to be a lot, every little bit helps. Simply click on http://www.efepa.org/abouts/view/7 or donate to the...
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 johnny
New - Who's decision is it ?Created by johnnyat1/28/10 - 12:09 pm|69 Views|6 Comments
Posted To: Living With Epilepsy - Adult Issues
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 Alang
New - Controlling AnxietyCreated by Alangat9/22/09 - 8:35 am|152 Views|12 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello my name is Aaron I'm 19 years old I was born with simple and complex partial seizures. In truth they didn't used to have too much affect on my life, I'd have several a month if I forgot to eat one night or if I was playing sports and got unlucky. But...
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 vincen29
New - California DrivingCreated by vincen29at7/25/07 - 8:39 pm|919 Views|17 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello all,
I'm in the process of moving to California and am hoping for kinder driving laws. I seem to be troubled with occasional seizures, but am fully compliant and honest with the doctors. I can FULLY understand why people...
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 phylis...
New - Affordable meds at Costco! Created by phylis...at2/1/10 - 6:04 am|9 Views
Posted To: Living With Epilepsy - Adult Issues
This comes from a person posting on the EFA site:
"I have learned while trying to pay for medications when unemployed, like I am, that the best place to get your meds at a very affordable place is Costo.....I just got three months of Lamotragine...
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 phylis...
New - Has anyone been abused because of having epilepsy? Created by phylis...at1/29/10 - 8:45 am|225 Views|39 Comments
Posted To: Living With Epilepsy - Adult Issues
My abuse wasn't physical, it was emotional...
My mother and step-father (a surgeon!) refused to acknowlege I had epilepsy and ignored all the falling, passing out, walking into walls, etc.
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 whitet...
New - Getting into the military with epilepsy. Created by whitet...at3/25/08 - 2:45 pm|260 Views|39 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello, I tried to get into the Army when I was 18 but they denied me because they couldn't guarentee that I would or could get my medication on a daily basis! It makes sense! Now my 17 year old son has plans of joining the Navy. I've told him what I...
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 ibusse
New - Can't remember to take medication, memory loss, losing friendsCreated by ibusseat8/18/09 - 3:00 am|105 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
I wasn't offically diagnosed with epilepsy until I was 21. However, as I look back and do research I realize I have been having them all of my life. It has always been frustrating not knowing why I was always day dreaming, losing time, forgetting,...
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 Daze-o...
New - Don't know how much more I can take. 10-15sz a day neuro from hll...Created by Daze-o...at2/26/08 - 10:31 am|84 Views|7 Comments
Posted To: Living With Epilepsy - Adult Issues
I left my Neuro appointment yesterday pretty pissed off and really tired so I came home and got the kids taken care of and went to bed after taking my meds...
It went like this:
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