 kahuna9d8
New - Single Seizure caused by altitude changesCreated by kahuna9d8at1/23/08 - 5:53 am|56 Views|5 Comments
Posted To: Families & Friends
Hi-
I saw an old post from 2005 from someone who had a 10 yr old daughter that had a seizure at Denver airport. My daughter's boyfriend has now had his second seizure after traveling to Colarado to go snowboarding. The first time was about 5 years...
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 toriasmom
New - Raise AwarenessCreated by toriasmomat5/4/05 - 8:08 am|662 Views|14 Comments
Posted To: Families & Friends
Hi all, I am new to this forum. I have a 21 month old with generalized tonic clonic seizures (recently diagnosed, but started over a year ago). We are trying to do all we can to help her as well as help everyone affected by epilepsy....
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 mblack618
New - Affection & Intimacy with EpilepsyCreated by mblack618at11/1/09 - 11:35 pm|84 Views|9 Comments
Posted To: Families & Friends
My boyfriend has epilepsy..He has grand mals..He has had epilepsy since he was 18..and now hes 31. From being on Depakote from the start he is finally off of it and weaned from KEPPRA to Lamictal now...For the past 2 yrs we have been together intimacy and...
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 raddog876
New - Question about relationship between two people with seizuresCreated by raddog876at1/29/10 - 3:55 pm|16 Views
Posted To: Families & Friends
Hello Everyone,
My name is Chris and I have had seizures since I was a baby. Through one of my dad's friends, I found a friend who also has seizures, only hers are a lot worse then mine. For example I can feel my seizures coming on minutes before...
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 kianam...
New - Need Answers PleaseCreated by kianam...at3/17/09 - 7:48 pm|52 Views|3 Comments
Posted To: Families & Friends
Hello to everyone. I am looking for some answers.
Let me start out by giving some background details.
The person in my house (Amy) is a 28 yr old female. She was diagnosed with Epilepsy when she was 9 months old after a tumble down a flight of stairs.
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 picnup...
New - MEDICAL ALERT I.D.'sCreated by picnup...at11/17/04 - 11:25 am|11452 Views|78 Comments
Posted To: Families & Friends
HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a seizure after you are unable...
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 angela...
New - Epilepsy & PMTCreated by angela...at1/14/10 - 4:13 am|4 Views
Posted To: Families & Friends
I was recently diagnosed PMT, but i also suffer from Epilepsy. I went to my doctor recently & he perscribed me a drug for my PMT called, Citolopram, which i was told could weaken my epeleptic drug called Lamotrigine. I am a bit weary about taking this...
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 Natarsha
Autism & Epilepsy RelatedCreated by Natarshaat12/30/06 - 11:48 pm|874 Views|7 Comments
Posted To: Families & Friends
Can anyone enlighten me on this ?
My Step Sister developed Epilepsy last October *2005* when she was 4.
Does anyone know of a child with Autism & Epilepsy ?
What are they like ?
-------------------------
My Step...
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 trey2007
VNS SURGERY - HAS ANYONE WITH A TODDLER HAD ANY LUCK WITH THIS PR...Created by trey2007at12/21/09 - 2:39 pm|11 Views
Posted To: Families & Friends
MY SON IS A LITTLE OVER 2 YEARS OLD NOW, BUT HAS HAD SEIZURES SINCE 5 1/2 MONTHS OLD. AT FIRST HE WAS DIAGNOSED WITH INFANTILE SPASMS, BUT NOW HAS OUT GROWN THOSE AND HAS A-TONIC DROP SEIZURES. I WAS WONDERING IF ANY PARENTS OUT THERE HAD ANY FEEDBACK ON...
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 birdwi...
epilepsy and "rage episodes"Created by birdwi...at1/8/05 - 1:37 pm|1925 Views|28 Comments
Posted To: Families & Friends
hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of extreme, nearly violent rage where...
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 krazyk...
Facial injury from Grand MaulsCreated by krazyk...at2/1/06 - 2:48 am|1639 Views|14 Comments
Posted To: Families & Friends
My boyfriend of 16 months has epilepsy, he suffers from grand and petite seizure. The thing that scares me most is the fact that every grand maul seizure he has (which is about once a month) happens while he is walking or standing,...
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 ysenapat
URGENT: help with newborn seizuresCreated by ysenapatat4/5/06 - 2:12 pm|343 Views|2 Comments
Posted To: Families & Friends
Hello,
My daughter - a 4 month old has been having around 15-20 seizures every day - on left side or right side for about 4 weeks now. We seem to be going to ER/ICUs, getting a shot of phenobarbitol and then, over a weeks period...
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 seh6571
Help, advice, encouragement...I will take any or all.Created by seh6571at12/4/09 - 10:25 am|28 Views|3 Comments
Posted To: Families & Friends
Hey everyone...
This is my first post. I'm engaged to a wonderful man who also happens to have epilepsy. He was diagnosed at age 2 and is now 36. Never outgrew his seizures. He typically calls his seizures "blackouts".
I...
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 Buddy1986
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 naiana
SAFETY - child and seizure during sleepCreated by naianaat1/4/09 - 7:06 am|53 Views|7 Comments
Posted To: Families & Friends
After two years without seizures, my 5 years old son had a seizure while sleeping, and it took more than 30 minutes to stop. I am terrified. How to let him safe during sleep? Is it safe to let him sleep in his own room, all alone? A baby monitor with video...
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 lisaann
New Here...Have Questions regarding husbands epilepsy.Created by lisaannat9/7/09 - 10:17 am|46 Views|5 Comments
Posted To: Families & Friends
Hi my name is Lisa and I'm hoping someone out there can help me out with some questions regarding my husband epilepsy.
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 robin510
8 year old with rolandic epilepsyCreated by robin510at12/5/04 - 5:26 pm|480 Views|19 Comments
Posted To: Families & Friends
Hi,My son was diagnosed in spring 2003 after several mild seizures. He has been on carbitrol since then -150 mg 2xday. Yesterday his neurologist increased the dose to 200mg 2xday. He has been having difficulties in school...
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 isualum08
Searching for answers and supportCreated by isualum08at10/7/09 - 7:17 pm|17 Views|1 Comment
Posted To: Families & Friends
Hello Everyone!
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 epi_help
Thinking of you...Created by epi_helpat4/4/08 - 3:20 pm|325 Views|14 Comments
Posted To: Families & Friends
Dear Gherkin and Clive,
Just wanted you both to know I am thinking of you and sending lots of prayers your way. Losing a child is so hard, no words to explain this. Losing a child to epilepsy ... while it feels unimaginable, it really points out how...
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 Childr...
Video blog of teens coping with epilepsy on ThriveCreated by Childr...at10/27/09 - 11:03 am|7 Views
Posted To: Families & Friends
Hello,
The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://childrenshospitalblog.org/
The series will touch upon a wide range of epilepsy-related topics - from the epilepsy...
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 Childr...
Video blog of teens coping with epilepsy on ThriveCreated by Childr...at10/27/09 - 11:03 am|3 Views
Posted To: Families & Friends
Hello,
The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://childrenshospitalblog.org/
The series will touch upon a wide range of epilepsy-related topics - from the epilepsy...
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 kianam...
Need Anaswers PleaseCreated by kianam...at3/17/09 - 7:43 pm|32 Views|2 Comments
Posted To: Families & Friends
Hello to everyone. I am looking for some answers.
Let me start out by giving some background details.
The person in my house (Amy) is a 28 yr old female. She was diagnosed with Epilepsy when she was 9 months old after a tumble down a flight of stairs.
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 kianam...
Need Anaswers PleaseCreated by kianam...at3/17/09 - 7:48 pm|36 Views|5 Comments
Posted To: Families & Friends
Hello to everyone. I am looking for some answers.
Let me start out by giving some background details.
The person in my house (Amy) is a 28 yr old female. She was diagnosed with Epilepsy when she was 9 months old after a tumble down a flight of stairs.
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 BethDa...
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 freisi...
boyfriend with epilepsyCreated by freisi...at5/4/09 - 12:23 am|34 Views|4 Comments
Posted To: Families & Friends
Hi,
My boyfriend has epilepsy, until I knew him I didn't know anything about epilepsy. Now I know somethings ... but still don't have any ideea of how to deal with it ...
Thank you for beeing here!
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 rajunc...
No insurance, no money, no medsCreated by rajunc...at5/8/07 - 8:07 am|481 Views|4 Comments
Posted To: Families & Friends
My 26 y.o. daughter was diagnosed in Mar. of last yr. To make a short story long, I'm a lifelong epileptic, (have ins through husband's mil. ret.) her 4 y/o son is newly diagnosed, & is covered by medicare, she divorced, and last week...
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 clarkie
pediatric temporal lobeCreated by clarkieat10/4/09 - 7:26 pm|8 Views
Posted To: Families & Friends
Interested in talking to others who have toddlers with temporal lobe epilepsy
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 ravens...
What to do when someone doesn't believe they had a seizure?Created by ravens...at9/30/09 - 4:23 am|36 Views|4 Comments
Posted To: Families & Friends
A couple of hours ago my fiancé had a seizure, I am sure about it. He doesn't believe me or remember it (says he had a dream but can't remember the dream). I woke up because he convulsed (jerked his whole body really hard once, maybe twice) then I noticed...
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 akangie74
Lennox GastautCreated by akangie74at3/5/05 - 3:32 am|1896 Views|24 Comments
Posted To: Families & Friends
Hello, I am new to this sight. I came here trying to find some help. I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded. The problem is that I don't know what...
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 katika
Seizures in utero?Created by katikaat7/5/05 - 10:47 am|4967 Views|12 Comments
Posted To: Families & Friends
When I was pregnant at about 7months, I complained to my doctor that I would feel rhytmic motions during the day in my womb. They felt like small flutters, very rhytmic and frequent (not like when the baby would...
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 socopearl
My mother has epilepsyCreated by socopearlat9/23/09 - 7:52 pm|32 Views|4 Comments
Posted To: Families & Friends
hi everyone, my name is sam and my mother was diagnosed with epilepsy about 5 years ago. she has absent seizures mostly. her seizures also effect her short term memory to where she'll ask the same question multiple times in a day. she seems to be...
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 jennie...
My dad's been diagnozed with epilepsyCreated by jennie...at9/22/09 - 7:29 pm|19 Views|2 Comments
Posted To: Families & Friends
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 listen...
Child is having VEEG, Seizure is undetectable to parentCreated by listen...at9/20/09 - 1:23 pm|10 Views
Posted To: Families & Friends
My child suffered a fractured skull nearly two years ago. My child is very smart and physically intune. E told the neurologist that
something was occuring in her head and wanted to know when it was
going to stop. The Neuro told us an EEG wouldn't show...
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 pagal
Benign Occipital Epilepsy-TrileptalCreated by pagalat11/18/05 - 12:27 pm|883 Views|6 Comments
Posted To: Families & Friends
My son is 5 years old and was having partial seizures from Benign Occipital Epilepsy. He was 3 1/2 when we first saw this and his eyes shifted sharply to the left side and pulsed for about 1 min.
They increased in severety over...
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 kwajkid
5 Month old having Seizures after immunizationsCreated by kwajkidat4/15/05 - 2:26 am|667 Views|14 Comments
Posted To: Families & Friends
When I had my son's immunizations at his 4 month check-up he had a adverse reaction and had a seizure 20 hours after that lasted approximately 10 minutes. He has had a total of 9 seizure since February 20th approx 1 week apart...
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 oodaloopy
Infant/Toddler seizures after Eating? (Help)Created by oodaloopyat3/31/05 - 6:02 am|1917 Views|12 Comments
Posted To: Families & Friends
Ever since my son was old enough sit up and be spoon-fed he would occasionally have, what I know wonder is, a seizure. ...
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 PatMat...
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 calebt...
Mind pulses, head zaps?Created by calebt...at3/3/05 - 4:47 am|2620 Views|61 Comments
Posted To: Families & Friends
Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two. This lasts about 5 days before it goes...
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 shiana...
3 year old daughter/Seizures while sleepingCreated by shiana...at2/21/05 - 8:19 pm|568 Views|18 Comments
Posted To: Families & Friends
My three year old daughter has just been diagnosed with Epilepsy. We did an MRI and a 48 hour EEG, both of which came back normal. She has had eleven gran-mal seizures, since March 2004. Ten out of the eleven seizures were while she...
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 mitzi525
Epilepsy RibbonCreated by mitzi525at8/25/04 - 7:57 am|1935 Views|26 Comments
Posted To: Families & Friends
Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might know anything about this. Please e-mail...
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 momof1
Medic Alert. Police ignoring.Created by momof1at11/28/04 - 3:56 pm|842 Views|24 Comments
Posted To: Families & Friends
About 4 months ago now I had a seizure while driving. I hit a building. I woke up handcuffed in the back of a police car. I asked where I was. The officer told me I was drunk and had an accident. I told him "I don't drink,...
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 runbik...
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 rc6002
Getting enough sleep?Created by rc6002at1/17/05 - 6:18 pm|443 Views|6 Comments
Posted To: Families & Friends
Hello my son (16) had his first grand mal seizure in July. He is currently switching from Tegratol to to Lamictal He had a 2nd seizure over Christmas (combination - we think of sleep deprivation - up until 2 (the...
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 ny2ga67
My childs storyCreated by ny2ga67at6/27/09 - 11:32 am|21 Views
Posted To: Families & Friends
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 Kevin ...
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 pickle...
19yr ols son with poss epilepsyCreated by pickle...at6/15/09 - 6:22 am|16 Views|4 Comments
Posted To: Families & Friends
hi i'm new here and looking for reassurance/help.
let me start by saying i don't know where to get advice! my son is profoundly deaf and has suffered from horrific migraines which began 2 years ago.they are more or less under control now-he takes amiltryptiline,a...
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 shea30
seizure alarmsCreated by shea30at1/16/05 - 2:53 pm|352 Views|7 Comments
Posted To: Families & Friends
Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to get them under control with medication....
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 Dylans...
Help, I'm losing hope for my 19 year old sonCreated by Dylans...at3/12/09 - 3:32 pm|83 Views|6 Comments
Posted To: Families & Friends
I am the Mom of a 19 year old son that was diagnosed with primary generalized epilepsy 2 years ago after his first tonic-clonic seizure and it has been a bumpy road we've traveled ever since.
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 momoft
Diagnosis getting confusingCreated by momoftat6/1/09 - 10:33 pm|42 Views|3 Comments
Posted To: Families & Friends
Hi! This is my first time to use the forum though I have read alot here!
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 ingrid...
My Fiance' has EpilepsyCreated by ingrid...at5/21/09 - 1:45 pm|13 Views
Posted To: Families & Friends
Hello everybody! My name is Ingrid and my fiance' David has epilepsy. I didnt know until we got serious and now Im trying to get as informed as I can since our wedding date is Aug. 8, 2009. I want to learn so that I can treat with the respect he deserves....
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