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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYTopic: Families & Friends
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 Debra24k |
 picnup... New - MEDICAL ALERT I.D.'s
HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a seizure after you are unable...
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Jnmeyerz |
 kwajkid New - 5 Month old having Seizures after immunizations
When I had my son's immunizations at his 4 month check-up he had a adverse reaction and had a seizure 20 hours after that lasted approximately 10 minutes. He has had a total of 9 seizure since February 20th approx 1 week apart...
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 alepatmat New - Lennox Gastaut
Hi My name is Laura and I am new to this Forum, but I think this is a great idea. My son Matthew who is 5 has just recently been diagnoised with Lennox Gastaut Syndrome. Does anyone know how long it usually takes for signs of regression...
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 butter... STAY FOCUSED AND NEVER GIVE UP
Hi guys
Today has been a good day untill I had an aure... I felt secord because I was home alone
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butter... STAY FOCUSED AND NEVER GIVE UP
Hi guys
Today has been a good day untill I had an aure... I felt secord because I was home alone
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 admin |
smurfs21 New To this
Hello everyone, my wife was recently diagnosed with seizures and as with im sure most of you are, are trying to find a way to beat this unforgiving condition. a little backround in Sept 2011 my wife was driving to work on the highway and had a gran mal seizure...
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LostLo... Spouses and epilepsy
Not sure what to say but that either I was horrible husband and didn't realize or about the time my wife started taking medication she changed emotionally and physically. My wife started taking her epilepsy medication sometime in 2006. She was having spaced...
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amira223 |
funkyc... Help needed - Dad has hit my 2 1/2 yr old nephew...is it because ...
Hi there,
Am new to the site and hope someone can help. Have posted also int he chat part as not sure where to go.
Basically, my father has had epilepsy for many years, controlled so he only fits at night (although he has just lost his driving...
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 Dnasty Family difference about Surgery
This is my first post. I read alot of others and try to help though:).
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coworker Co worker with Epilepsy
I was informed by my hiring manager that my Assistant (who I inherited as staff) has epilepsy and was embarassed about it, was not comfortable letting people know.
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 sauer |
 blesst... ADHD and Epilepsy
My 12 year old son was just diagnosed with right frontal lobe seizure disorder. He is now taking Lamictal. We also had him evaluated by a neuropsychologist, who says my son has ADHD, without hyperactivity. But I've been reading...
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moveya... long term care
hello guys!
have you known someone who needs long term care due to epilepsy? my brother,49-year-old, is suffering the same fate. he can no longer take care of himself that's why we hire him apersonal caregiver
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 momof1 The feelings after a seizure.
Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will start to have them while awake. Well...
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judyh Unverricht Lundborg disease or EPM1 looking for others with it
Hi,
I'm still looking for others with ULD. My daughter has it and we've never met another person with it. Please reply. We'd love to "talk" to you. Thanks.
Judy
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 rhea1965 Daughter diagnosed w/Juvenile Myoclonic Epilepsy
My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not alone. She recently had a tonic-clonic...
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SteveS... Girlfriend just had Grand Mal seizure, wondering about leaving he...
My thirty year-old girlfriend just had what looked very much like a grand mal seizure. Her older sister has epilepsy that came on at roughly the same age. My girlfriend has never had a grand mal seizure before, but she has fainted, often while hungry (which...
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 desd Non-Medication of Childhood Absence Seizures
Hello All from Sydney, Australia.Our 8 year old son Matthew was diagnosed earlier this week with Absence Seizures.Given the potential side effects of medicating and that at this stage anyway Mattie's schooling and other activities...
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 dsaul01 |
 usmale Simple Partial Seizures v. BiPolar Disorder
This may sound strange, but I really need the input. My Nephew was recently diagnosed with BiPolar Disorder. The "Diagnosis" from what I understand was made simply from descriptions of his behavior. No types of tests. I'm concerned...
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tacitblue My wife, epilepsy, and abnormal behavior - My Perspective
My wife just joined this forum and I thought I would too. This is my first post and I would like to tell my side of this seizure "adventure" and hopefully hear from others that what we are going though is "normal." We are both 29...
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bgs Relationship strained due to epilepsy.
I was diagnosed with epilepsy 20 years ago; 5 years before I met my wife. I had 6 seizures the first year they diagnosed me. I have what the neurologist calls generalized seizure disorder which manifest as juvenile myoclonic seizures as well as grand mal...
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sspitz Fiancee - Weaning Off Keppra and Side Effects
Hi,
I'm new to this site and am engaged to my fiancee who is epileptic. A year ago she was taken off Topomax for Lamictal and was perfect. Now she's being weaned off of Keppra and on the morning of eliminating her first 250mg morning dose, she had sort...
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 kjs723 Severe leg pain/tingling and seizures
I am at wits end for my daughter. Diagnosed 4 years ago. Have not yet found a med that works for her. Lately she has constant seveer leg pain/tingling. She has to get up and walk around saying Ow OW OW OW till it subsides. Yesterday she had 7 eposides...
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kzumsteg |
 Shenoah Helping my brother cope...
My brother Joseph (19) was dignosed with epilepsy a little over a year and a half ago. He still has problems admitting that he has it, and it's very hard for him to actually say the words, "I have epilepsy."
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smallsock What is so criminal about having a seizure??
First I would like to say/remind everyone that I am on this site to learn more about epilepsy. I ran across this site when I was doing some medical research on my son. My family, friends, and associates do not have seizures. Neither do I. As I know...
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dditizio Marketing Research Project for Caregivers
Caregivers:
Let me introduce myself and the company I work for. My name is Danielle Di Tizio and I'm a Project Manager for MAXimum Research, a Marketing Research company located in Cherry Hill, NJ. We provide expert Market Research to...
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MtGriz Looking for research on the effectiveness of helmets
I wanted to know if anyone has information on the effectiveness of helmets with drop seizures? Would a helmet be sufficient to help prevent further injuries if a gait belt is used presently? Is there any research that anyone knows about?
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 calebt... Mind pulses, head zaps?
Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two. This lasts about 5 days before it goes...
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iforgot FDA DR & MEDICATION LIES!!!!!!!!!!!!!!!!!!!!!!!
If your new to Epilepsy be careful about the treatment you get & who your getting it from.
Show this document to your doctors if you can understand it after reading
here's the link
http://www.fda.gov/ohrms/dockets/ac/99/slides/3547s1i.pdf
You can...
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Ginny21 Adult child of a parent with epilepsy
Hello,
I am 32 and my mom has had epilepsy since right before I was born. My mom has always struggled with short term memory loss and as the oldest sibling I often had to take care of things like lunch money and soccer practice for my much younger siblings....
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claire... My boyfriend suffers with epilepsy
My boyfriend got epilepsy in 2005. His seizures are very strange, he becomes very violent and shouts things out. He can actually stand up and walk about he punches and kicks and we have to try and stop him from hurting himself. Sometimes he will just fall...
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Jaylas... Waiting for EEG results
Hi all. My almost 5 yr old granddaughter Jayla was diagnosed at 10 months with complex partial seizures. She has been on Keppra since and has had nothing other than occasional absence siezures with occasional night terrors. On her last overnight EEG she...
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jackphil Epival and Polycystic ovary syndrome
I was wondering if there has been anyone out there who has a side affect from Epival{ Depakane} that is called Poly Cystic Ovary Syndrome? Pleases let me know /...
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 zeroko... should I stay or should I go now
To give you a little back round on me. I started having epilepsy atthe age of13. I really do anything with my live after finding out I had epilepsy. I diden't even really follow through whit what my doctors said to do.
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mawmaw8 Need Some Answers Please
Hi,Everyone My name is Rennetta and my husband had right temporal lobe surgery in Oct of 2009. He has had some memory problems since then and was seizure free until recently.He gets really bad headaches and he gets very angry. Just wondering if anyone else...
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 janb mood changes and how to deal with them
i am the parent of an adult seizure person, i need to know how other parents delal with the different moods and the anger the person has, the always wanting to argue and fight my daughter gets to the point of wanting to fight with...
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babyz 7 MONTH DIAGNOSED WITH COMPLEX PARTIAL SEIZURES
My 7 month old son was finally just diagnosed with complex partial seizure with secondary generalization. I was so excited that the questioning game was finally over that it didn't hit me until later on that he's HAVING SEIZURES....
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PVC316 Girlfriend with Epilepsy
Hey Everybody,
Being a first time user on this site, and knowing practically nothing about epilepsy with the exception of basic first aid, I really need some help.
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Karen ... How to help a loved one cope
I have been trying to help my brother since our mother's death. John has had epilepsy since he was 6 years old and is now in his 50's. I live two hours away and want to try to help John cope. He has a vagus nerve stimulator and is on medication, but that...
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 mks5288 what are some signs that my boyfriend is bipolar?
Hi,
My boyfriend has TLE and his behaviour and attitude has dramatically changed. His moods swings and short fuses leads me to believe that he is bi polar. I can't really discuss this with him because he will not even listen to what I have...
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socogurl will it get better?
My boyfriend has partial complex seizures that mostly occur when he's sleeping. Normally they are not an issue but lately, hes been having more and more during the night. I find myself worrying about him as i fall asleep and i awake to any sudden movement...
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 yannie44 Short-term memory loss post- seizure
Please, does anyone identify with this problem?My son, 21yo now, has always found that after a seizure he has no memory of the past 2-6 hours preceding the seizure.e.g. went out to tea with his friend to celebrate their anniversary...
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nicknz... Phenobarb during pregnancy and learning disabilities?
Hi everyone, My name is Julie and I am new to this forum. I am 40 years old and have been on phenobarbital since I was 17 years old. Besides the concern I have for myself and taking this med for so long I am recently concerned with my 10 year olds overall...
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prayin... |
picnup... New - MEDICAL ALERT I.D.'s
HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a seizure after you are unable...
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 wmott1122 Characteristics of Gran Mal seizures
Hello, My son has simple partial, complex partial, and generalized gran mal seizures. He's been having more gran mals lately, the neuro says due to puberty. What I was wondering is do any of you who have...
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katika Seizures in utero?
When I was pregnant at about 7months, I complained to my doctor that I would feel rhytmic motions during the day in my womb. They felt like small flutters, very rhytmic and frequent (not like when the baby would...
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calebt... Mind pulses, head zaps?
Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two. This lasts about 5 days before it goes...
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 Val 1 year Old has LONG seizures, anyone have a similar situation?
My daughter's seizures began at 5 mths old. They started as Simple Partial and now are Complex Partial. Nothing has ever controlled them, and they average about 30 -40 minutes long, with a few as long as 1.5 - 2 hrs long. She gets...
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rhea1965 Daughter diagnosed w/Juvenile Myoclonic Epilepsy
My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not alone. She recently had a tonic-clonic...
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 justmax 6 month old with seizures...advise please
Our son began having seizures at 4 months old 10 hours after his immunizations. Of course we want to blame them on the vaccines, but the consensus is that they probably brought them out and did not actually cause the seizures. ...
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troubled How do I do accept my baby's seizures? Help me.
I am deeply troubled. I found out my baby has seizures right after she was born. While she was being pushed out, a coupld of blood vessles tore and bled in her head. The neurologist said it would heal and the blood would dry up...
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judyh Unverricht-Lundborg disease epm1, a progressive myoclonus epilepsy
Hi,
My 19 year old daughter has ULD. Symptoms appeared 10 years ago and she was finally diagnosed 5 years ago. We'd love to talk to someone else with this condition. Please contact me. Thanks.
Judy...
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 rosegirl making fun of yourself
Is that a bad thing to do, to make fun of yourself and your condition? I find humor to be the best way to relieve tension, especially when about a topic that makes people feel uncomfortable. One of sorority sisters has epilepsy and...
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yannie44 Short-term memory loss post- seizure
Please, does anyone identify with this problem?My son, 21yo now, has always found that after a seizure he has no memory of the past 2-6 hours preceding the seizure.e.g. went out to tea with his friend to celebrate their anniversary...
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 mitzi525 Epilepsy Ribbon
Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might know anything about this. Please e-mail...
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usmale Simple Partial Seizures v. BiPolar Disorder
This may sound strange, but I really need the input. My Nephew was recently diagnosed with BiPolar Disorder. The "Diagnosis" from what I understand was made simply from descriptions of his behavior. No types of tests. I'm concerned...
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 birdwi... epilepsy and "rage episodes"
hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of extreme, nearly violent rage where...
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 oodaloopy Infant/Toddler seizures after Eating? (Help)
Ever since my son was old enough sit up and be spoon-fed he would occasionally have, what I know wonder is, a seizure. ...
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antcon Benign Rolandic Epilepsey
I need to know if you think medication is necessary for BRE. My son has had two bad seizures in the last two years and about 7 mild ones. The neoro wants to place him on treleptal. ...
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 akangie74 Lennox Gastaut
Hello, I am new to this sight. I came here trying to find some help. I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded. The problem is that I don't know what...
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katika Staring spells only?
My 8yr old has history of infantile spasm and complex partial till about 8-10mos (treated and controlled) at that time. For the past 4 years she has staring spells once or twice a year. Her eyes appear fixed,...
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aelisemc My 17 year old son has Progressive Myoclonic Epilepsy...
HI MY NAME IS ANN AND I AM NEW TO THIS SITE. I AM LOOKING FOR ANYONE WHO HAS A CHILD WITH PROGRESSIVE MYOCLONIC EPILEPSY OR ANYONE THAT KNOWS OF A GOOD SITE WHERE I CAN GET INFORMATION ABOUT THIS DISEASE. ...
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 ohleigh parents of young children with petit mal
My 10 year old daughter has just been diagnosed with petit mal. She's been on Zarontin for 1 week with increases each week for 3 weeks. I would love to chat with other parents in the same situation. I've got lots to talk about and...
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 takrentz Ketogenic Diet-Questions
Hi,I haven't posted for awhile on this site. We have been facing the fact that JJ might have Tuberous Sclerosis thus causing his seizures. The jury is still out on this.We saw a new neuro who strongly suggested...
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raeden My five year old daughter has been diagnosed with petite mal seiz...
My five year old daughter has been recently diagnosed with petite mal seizures. I don't know anything about this condition and am very desperate and curious as to what I should do. Because of my insurance I have to go through such...
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krazyk... Facial injury from Grand Mauls
My boyfriend of 16 months has epilepsy, he suffers from grand and petite seizure. The thing that scares me most is the fact that every grand maul seizure he has (which is about once a month) happens while he is walking or standing,...
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storys5 1st EEG- need help understanding
Hello everyone. My 7 yr old daughter had a sleep deprived EEG with abnormal results. hoping someone can help before we see her neurologist. I would like to have some idea of what things mean so I can ask more informed questions. Here...
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 ahitnao Does this guy really have epilepsy?
There's a guy in my dorm house who says he has epilepsy, and that is why he doesn't drink and cannot drive a car. But it sounds like he's lying sometimes.... Any ideas if that can happen? What is the probability of it? What kind of...
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Kathy781 |
 gretchen (Off Topic) About One of my STrongest Supporters
I have 9 daughters. One of them has had her own personal health struggles. She was deaf until she was 15. Through a series of operations she had her hearing restored about 90% but her hearing is distorted, not the same as yours...
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Val 1 year Old has LONG seizures, anyone have a similar situation?
My daughter's seizures began at 5 mths old. They started as Simple Partial and now are Complex Partial. Nothing has ever controlled them, and they average about 30 -40 minutes long, with a few as long as 1.5 - 2 hrs long. She gets...
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 gracie... 1 year old with seizures
Hi-My 1 yr. old daughter was released from the hospital yesterday after experiencing 2 seizures on Monday. The first was brief -- maybe 30 sec. - 1minute -- but involved full body convulsions and loss of consciousness. ...
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nathol... 10 month old son may have epilepsy
hi yamy son matthew is 10 months old, at 8 weeks old he had his first seziure lasting about 2 mins, he then did not have another until he was 9 months oldand in the space of a month has had 3 further seizures the longest...
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deleena 10 year old son,epileptic, how do we cope?
Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school. Paramedics called both times and taken to ER....
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deleena 10 year old son,epileptic, how do we cope?
Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school. Paramedics called both times and taken to...
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cjsmom 11 mth old boy - Is he having a Seizure
     Day 1 - CJ had a fever all day took 2 long naps but was eating and acting normal. When I got home at 6:30pm I took his temp it was 102.4 I gave him Tylenol. He eat, had Motrin at bed time and stayed asleep all...
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 Kaity12 12 year old girl, little brother has E, Looking to chat with othe...
Hello, My 3 year old brother has myoclonic seizures and I am very worried about him, I want to talk to other kids that have brothers and sisters with seizures. I have email....
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marylisa 12 year old son having episodes / frustration with doctors
HI! I just found this site and have been sitting here for over an hour reading many of your posts. You have given me many questions to ask my son's neurologist. I will warn you, this will be a long post and I apologize for that, but...
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marylisa 12 year old son having episodes / frustration with doctors
HI! I just found this site and have been sitting here for over an hour reading many of your posts. You have given me many questions to ask my son's neurologist. I will warn you, this will be a long post and I apologize for that, but...
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marylisa 12 yo son having episodes / frustration with doctors
HI! I just found this site and have been sitting here for over an hour reading many of your posts. You have given me many questions to ask my son's neurologist. I will warn you, this will be a long post and I apologize for that, but...
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mspellman 13 yr old son diagnosed with right TLE
Hello all! My 13 year old son had his first seizure in November 2003. After 3 weeks of one seizure after another and numerous tests (EEGs, MRIs), a diagnosis was finally confirmed of right TLE. His seizures are...
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 purple 13 yr old w/ nighttime seizures also
My 13 yr old son has nighttime seizures also....everynight now for over 18months!!!!! He's been on Topomax and now Keppra Klonopin and he is still having seizures. He's had 2-24 hr EEG studies in the hosp and they "see"...
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2caret 14yo son w/ JME
HI all.. I am new here and looking for some info. My son had a tonic-clonic in May 2004. He actually had 3 in 1 week but we didnt know about them until the 3rd one. I saw it myself and it was the...
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pickle... 19yr ols son with poss epilepsy
hi i'm new here and looking for reassurance/help.
let me start by saying i don't know where to get advice! my son is profoundly deaf and has suffered from horrific migraines which began 2 years ago.they are more or less under control now-he takes amiltryptiline,a...
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storys5 1st EEG- need help understanding
Hello everyone. My 7 yr old daughter had a sleep deprived EEG with abnormal results. hoping someone can help before we see her neurologist. I would like to have some idea of what things mean so I can ask more informed questions. Here...
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nique313 2 year old -
Hi all, I'm new here and don't have diagnosis yet but am working on it. I'm just wondering if anyone has ever experienced anything similar to what is going on with my 2 year old daughter. Mostly they have noticed it at...
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mshowalt 2 year old just diagnosed with Absence Seizures
Hi - Just found out last night through an EEG that my Daughter is having Absence Seizures.Anybody else out there with a child having these??Any information would really be appreciated.They want to put her on Valproic Acid, but the...
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mshowalt 2 year old just diagnosed with Absence Seizures
Hi - Just found out last night through an EEG that my Daughter is having Absence Seizures.Anybody else out there with a child having these??Any information would really be appreciated.They want to put her on Valproic Acid, but the...
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kbteachem 2 yr old with seizure disorder... advice?
Our 2 year old son was just diagnosed with absence seizures. He would stop playing (clue #1) and stare off into space for 3-15 seconds. Then he would resume playing. In one month's time this went from 1 every...
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Anonymous 20 Year Old Female "Non Epileptic" Worried About 5 year Old Step ...
Hi Everyone,
I hope your all doing well !!!!!!!!!!
My Step Sister is nearing Year 1 in School and I'm very concerned about the way my Dad and Step Sister's Mother are treating her, for example Dad and Sister came around today...
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carlsona 21 year old brother just had grand-mal, no insurance, Washington ...
Aloha,My name is Amber and my younger brother (he's 3 years younger, 21) just had a grand mal seizure yesterday in Washington state. He doesn't have any insurance. Luckily the hospital he went to has a fund for that sort of thing,...
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jmmjmm1 26 with Overprotective parents
We fight all the time which leads me to more stress and more seizures. I try to tell my parents that. It is especially bad with my mother and I try to tell her that, but she is in the medical profession and she thinks she is always...
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kylesmom 3 seizures under our belt, tests negative, now in waiting
This is my first time here - My 5 year old son has had 3 seizures. Unfortunately, I do not know what type - the peditrician said they could be petit mal (absence) seizures and the neurologist said they were probably partial lobe seizures....
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