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Topic: Families & Friends

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kahuna9d8
kahuna9d8
New - Single Seizure caused by altitude changes
Created by kahuna9d8at1/23/08 - 5:53 am|56 Views|5 Comments
Posted To: Families & Friends
Hi- I saw an old post from 2005 from someone who had a 10 yr old daughter that had a seizure at Denver airport. My daughter's boyfriend has now had his second seizure after traveling to Colarado to go snowboarding. The first time was about 5 years...
toriasmom
toriasmom
New - Raise Awareness
Created by toriasmomat5/4/05 - 8:08 am|662 Views|14 Comments
Posted To: Families & Friends
Hi all, I am new to this forum. I have a 21 month old with generalized tonic clonic seizures (recently diagnosed, but started over a year ago). We are trying to do all we can to help her as well as help everyone affected by epilepsy....
mblack618
mblack618
New - Affection & Intimacy with Epilepsy
Created by mblack618at11/1/09 - 11:35 pm|84 Views|9 Comments
Posted To: Families & Friends
My boyfriend has epilepsy..He has grand mals..He has had epilepsy since he was 18..and now hes 31. From being on Depakote from the start he is finally off of it and weaned from KEPPRA to Lamictal now...For the past 2 yrs we have been together intimacy and...
raddog876
raddog876
New - Question about relationship between two people with seizures
Created by raddog876at1/29/10 - 3:55 pm|16 Views
Posted To: Families & Friends
Hello Everyone,  My name is Chris and I have had seizures since I was a baby. Through one of my dad's friends, I found a friend who also has seizures, only hers are a lot worse then mine. For example I can feel my seizures coming on minutes before...
kianam...
kianam...
New - Need Answers Please
Created by kianam...at3/17/09 - 7:48 pm|52 Views|3 Comments
Posted To: Families & Friends
Hello to everyone. I am looking for some answers. Let me start out by giving some background details. The person in my house (Amy) is a 28 yr old female. She was diagnosed with Epilepsy when she was 9 months old after a tumble down a flight of stairs.
picnup...
picnup...
New - MEDICAL ALERT I.D.'s
Created by picnup...at11/17/04 - 11:25 am|11452 Views|78 Comments
Posted To: Families & Friends
HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a seizure after you are unable...
angela...
angela...
New - Epilepsy & PMT
Created by angela...at1/14/10 - 4:13 am|4 Views
Posted To: Families & Friends
I was recently diagnosed PMT, but i also suffer from Epilepsy. I went to my doctor recently & he perscribed me a drug for my PMT called, Citolopram, which i was told could weaken my epeleptic drug called Lamotrigine. I am a bit weary about taking this...
Natarsha
Natarsha
Autism & Epilepsy Related
Created by Natarshaat12/30/06 - 11:48 pm|874 Views|7 Comments
Posted To: Families & Friends
Can anyone enlighten me on this ? My Step Sister developed Epilepsy last October *2005* when she was 4. Does anyone know of a child with Autism & Epilepsy ? What are they like ? ------------------------- My Step...
trey2007
trey2007
VNS SURGERY - HAS ANYONE WITH A TODDLER HAD ANY LUCK WITH THIS PR...
Created by trey2007at12/21/09 - 2:39 pm|11 Views
Posted To: Families & Friends
MY SON IS A LITTLE OVER 2 YEARS OLD NOW, BUT HAS HAD SEIZURES SINCE 5 1/2 MONTHS OLD. AT FIRST HE WAS DIAGNOSED WITH INFANTILE SPASMS, BUT NOW HAS OUT GROWN THOSE AND HAS A-TONIC DROP SEIZURES. I WAS WONDERING IF ANY PARENTS OUT THERE HAD ANY FEEDBACK ON...
birdwi...
birdwi...
epilepsy and "rage episodes"
Created by birdwi...at1/8/05 - 1:37 pm|1925 Views|28 Comments
Posted To: Families & Friends
hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of extreme, nearly violent rage where...
krazyk...
krazyk...
Facial injury from Grand Mauls
Created by krazyk...at2/1/06 - 2:48 am|1639 Views|14 Comments
Posted To: Families & Friends
My boyfriend of 16 months has epilepsy, he suffers from grand and petite seizure. The thing that scares me most is the fact that every grand maul seizure he has (which is about once a month) happens while he is walking or standing,...
ysenapat
ysenapat
URGENT: help with newborn seizures
Created by ysenapatat4/5/06 - 2:12 pm|343 Views|2 Comments
Posted To: Families & Friends
Hello, My daughter - a 4 month old has been having around 15-20 seizures every day - on left side or right side for about 4 weeks now. We seem to be going to ER/ICUs, getting a shot of phenobarbitol and then, over a weeks period...
seh6571
seh6571
Help, advice, encouragement...I will take any or all.
Created by seh6571at12/4/09 - 10:25 am|28 Views|3 Comments
Posted To: Families & Friends
  Hey everyone... This is my first post.   I'm engaged to a wonderful man who also happens to have epilepsy.  He was diagnosed at age 2 and is now 36.  Never outgrew his seizures.  He typically calls his seizures "blackouts".  I...
Buddy1986
Buddy1986
Daughter too scared to sleep incase dad has another seizure
Created by Buddy1986at11/25/09 - 6:22 pm|5 Views
Posted To: Families & Friends
Hi,
naiana
naiana
SAFETY - child and seizure during sleep
Created by naianaat1/4/09 - 7:06 am|53 Views|7 Comments
Posted To: Families & Friends
After two years without seizures, my 5 years old son had a seizure while sleeping, and it took more than 30 minutes to stop. I am terrified. How to let him safe during sleep? Is it safe to let him sleep in his own room, all alone? A baby monitor with video...
lisaann
lisaann
New Here...Have Questions regarding husbands epilepsy.
Created by lisaannat9/7/09 - 10:17 am|46 Views|5 Comments
Posted To: Families & Friends
Hi my name is Lisa and I'm hoping someone out there can help me out with some questions regarding my husband epilepsy.
robin510
robin510
8 year old with rolandic epilepsy
Created by robin510at12/5/04 - 5:26 pm|480 Views|19 Comments
Posted To: Families & Friends
Hi,My son was diagnosed in spring 2003 after several mild seizures. He has been on carbitrol since then -150 mg 2xday. Yesterday his neurologist increased the dose to 200mg 2xday. He has been having difficulties in school...
isualum08
isualum08
Searching for answers and support
Created by isualum08at10/7/09 - 7:17 pm|17 Views|1 Comment
Posted To: Families & Friends
Hello Everyone!   
epi_help
epi_help
Thinking of you...
Created by epi_helpat4/4/08 - 3:20 pm|325 Views|14 Comments
Posted To: Families & Friends
Dear Gherkin and Clive, Just wanted you both to know I am thinking of you and sending lots of prayers your way. Losing a child is so hard, no words to explain this. Losing a child to epilepsy ... while it feels unimaginable, it really points out how...
Childr...
Childr...
Video blog of teens coping with epilepsy on Thrive
Created by Childr...at10/27/09 - 11:03 am|7 Views
Posted To: Families & Friends
Hello, The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://childrenshospitalblog.org/ The series will touch upon a wide range of epilepsy-related topics - from the epilepsy...
Childr...
Childr...
Video blog of teens coping with epilepsy on Thrive
Created by Childr...at10/27/09 - 11:03 am|3 Views
Posted To: Families & Friends
Hello, The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://childrenshospitalblog.org/ The series will touch upon a wide range of epilepsy-related topics - from the epilepsy...
kianam...
kianam...
Need Anaswers Please
Created by kianam...at3/17/09 - 7:43 pm|32 Views|2 Comments
Posted To: Families & Friends
Hello to everyone. I am looking for some answers. Let me start out by giving some background details. The person in my house (Amy) is a 28 yr old female. She was diagnosed with Epilepsy when she was 9 months old after a tumble down a flight of stairs.
kianam...
kianam...
Need Anaswers Please
Created by kianam...at3/17/09 - 7:48 pm|36 Views|5 Comments
Posted To: Families & Friends
Hello to everyone. I am looking for some answers. Let me start out by giving some background details. The person in my house (Amy) is a 28 yr old female. She was diagnosed with Epilepsy when she was 9 months old after a tumble down a flight of stairs.
BethDa...
BethDa...
Seizure in my sleep or sleep paryalysis ?????? I don't know whats...
Created by BethDa...at10/9/09 - 2:36 pm|3 Views
Posted To: Families & Friends
freisi...
freisi...
boyfriend with epilepsy
Created by freisi...at5/4/09 - 12:23 am|34 Views|4 Comments
Posted To: Families & Friends
Hi,   My boyfriend has epilepsy, until I knew him I didn't know anything about epilepsy. Now I know somethings ... but still don't have any ideea of how to deal with it ...    Thank you for beeing here!    
rajunc...
rajunc...
No insurance, no money, no meds
Created by rajunc...at5/8/07 - 8:07 am|481 Views|4 Comments
Posted To: Families & Friends
My 26 y.o. daughter was diagnosed in Mar. of last yr. To make a short story long, I'm a lifelong epileptic, (have ins through husband's mil. ret.) her 4 y/o son is newly diagnosed, & is covered by medicare, she divorced, and last week...
clarkie
clarkie
pediatric temporal lobe
Created by clarkieat10/4/09 - 7:26 pm|8 Views
Posted To: Families & Friends
Interested in talking to others who have toddlers with temporal lobe epilepsy
ravens...
ravens...
What to do when someone doesn't believe they had a seizure?
Created by ravens...at9/30/09 - 4:23 am|36 Views|4 Comments
Posted To: Families & Friends
A couple of hours ago my fiancé had a seizure, I am sure about it. He doesn't believe me or remember it (says he had a dream but can't remember the dream). I woke up because he convulsed (jerked his whole body really hard once, maybe twice) then I noticed...
akangie74
akangie74
Lennox Gastaut
Created by akangie74at3/5/05 - 3:32 am|1896 Views|24 Comments
Posted To: Families & Friends
Hello, I am new to this sight.  I came here trying to find some help.  I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded.  The problem is that I don't know what...
katika
katika
Seizures in utero?
Created by katikaat7/5/05 - 10:47 am|4967 Views|12 Comments
Posted To: Families & Friends
When I was pregnant at about 7months, I complained to my doctor that I would feel rhytmic motions during the day in my womb.  They felt like small flutters, very rhytmic and frequent (not like when the baby would...
socopearl
socopearl
My mother has epilepsy
Created by socopearlat9/23/09 - 7:52 pm|32 Views|4 Comments
Posted To: Families & Friends
hi everyone, my name is sam and my mother was diagnosed with epilepsy about 5 years ago.  she has absent seizures mostly.  her seizures also effect her short term memory to where she'll ask the same question multiple times in a day.  she seems to be...
jennie...
jennie...
My dad's been diagnozed with epilepsy
Created by jennie...at9/22/09 - 7:29 pm|19 Views|2 Comments
Posted To: Families & Friends
listen...
listen...
Child is having VEEG, Seizure is undetectable to parent
Created by listen...at9/20/09 - 1:23 pm|10 Views
Posted To: Families & Friends
My child suffered a fractured skull nearly two years ago. My child is very smart and physically intune. E told the neurologist that something was occuring in her head and wanted to know when it was going to stop. The Neuro told us an EEG wouldn't show...
pagal
pagal
Benign Occipital Epilepsy-Trileptal
Created by pagalat11/18/05 - 12:27 pm|883 Views|6 Comments
Posted To: Families & Friends
My son is 5 years old and was having partial seizures from Benign Occipital Epilepsy. He was 3 1/2 when we first saw this and his eyes shifted sharply to the left side and pulsed for about 1 min. They increased in severety over...
kwajkid
kwajkid
5 Month old having Seizures after immunizations
Created by kwajkidat4/15/05 - 2:26 am|667 Views|14 Comments
Posted To: Families & Friends
When I had my son's immunizations at his 4 month check-up he had a adverse reaction and had a seizure 20 hours after that lasted approximately 10 minutes.  He has had a total of 9 seizure since February 20th approx 1 week apart...
oodaloopy
oodaloopy
Infant/Toddler seizures after Eating? (Help)
Created by oodaloopyat3/31/05 - 6:02 am|1917 Views|12 Comments
Posted To: Families & Friends
Ever since my son was old enough sit up and be spoon-fed he would occasionally have, what I know wonder is, a seizure. ...
PatMat...
PatMat...
Need ideas to get 3 1/2 year old nephew to take medicine, please.
Created by PatMat...at8/10/09 - 3:45 pm|5 Views
Posted To: Families & Friends
calebt...
calebt...
Mind pulses, head zaps?
Created by calebt...at3/3/05 - 4:47 am|2620 Views|61 Comments
Posted To: Families & Friends
Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two. This lasts about 5 days before it goes...
shiana...
shiana...
3 year old daughter/Seizures while sleeping
Created by shiana...at2/21/05 - 8:19 pm|568 Views|18 Comments
Posted To: Families & Friends
My three year old daughter has just been diagnosed with Epilepsy. We did an MRI and a 48 hour EEG, both of which came back normal. She has had eleven gran-mal seizures, since March 2004. Ten out of the eleven seizures were while she...
mitzi525
mitzi525
Epilepsy Ribbon
Created by mitzi525at8/25/04 - 7:57 am|1935 Views|26 Comments
Posted To: Families & Friends
Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might know anything about this. Please e-mail...
momof1
momof1
Medic Alert. Police ignoring.
Created by momof1at11/28/04 - 3:56 pm|842 Views|24 Comments
Posted To: Families & Friends
About 4 months ago now I had a seizure while driving. I hit a building. I woke up handcuffed in the back of a police car. I asked where I was. The officer told me I was drunk and had an accident. I told him "I don't drink,...
runbik...
runbik...
Anyone Ever Have a Natural Gas Leak cause grand mal seizures?
Created by runbik...at9/2/08 - 1:21 pm|34 Views|3 Comments
Posted To: Families & Friends
rc6002
rc6002
Getting enough sleep?
Created by rc6002at1/17/05 - 6:18 pm|443 Views|6 Comments
Posted To: Families & Friends
Hello my son (16) had his first grand mal seizure in July.  He is currently switching from Tegratol to to Lamictal  He had a 2nd seizure over Christmas (combination - we think of sleep deprivation - up until 2 (the...
ny2ga67
ny2ga67
My childs story
Created by ny2ga67at6/27/09 - 11:32 am|21 Views
Posted To: Families & Friends
Kevin ...
Kevin ...
Brought a blanket to the meeting, doctor told me move and be free
Created by Kevin ...at6/26/09 - 1:48 am|25 Views|1 Comment
Posted To: Families & Friends
pickle...
pickle...
19yr ols son with poss epilepsy
Created by pickle...at6/15/09 - 6:22 am|16 Views|4 Comments
Posted To: Families & Friends
hi i'm new here and looking for reassurance/help. let me start by saying i don't know where to get advice! my son is profoundly deaf and has suffered from horrific migraines which began 2 years ago.they are more or less under control now-he takes amiltryptiline,a...
shea30
shea30
seizure alarms
Created by shea30at1/16/05 - 2:53 pm|352 Views|7 Comments
Posted To: Families & Friends
Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to get them under control with medication....
Dylans...
Dylans...
Help, I'm losing hope for my 19 year old son
Created by Dylans...at3/12/09 - 3:32 pm|83 Views|6 Comments
Posted To: Families & Friends
I am the Mom of a 19 year old son that was diagnosed with primary generalized epilepsy 2 years ago after his first tonic-clonic seizure and it has been a bumpy road we've traveled ever since. 
momoft
momoft
Diagnosis getting confusing
Created by momoftat6/1/09 - 10:33 pm|42 Views|3 Comments
Posted To: Families & Friends
 Hi! This is my first time to use the forum though I have read alot here!
ingrid...
ingrid...
My Fiance' has Epilepsy
Created by ingrid...at5/21/09 - 1:45 pm|13 Views
Posted To: Families & Friends
Hello everybody! My name is Ingrid and my fiance' David has epilepsy. I didnt know until we got serious and now Im trying to get as informed as I can since our wedding date is Aug. 8, 2009. I want to learn so that I can treat with the respect he deserves....

 
picnup...
picnup...
New - MEDICAL ALERT I.D.'s
Created by picnup...at11/17/04 - 11:25 am|11452 Views|78 Comments
Posted To: Families & Friends
HI I am wondering if anybody else has had the same problem as I am having. My Dr. has told me that I need to get some sort of Medical I.D. to wear. because as most of you know that when you have a seizure after you are unable...
wmott1122
wmott1122
Characteristics of Gran Mal seizures
Created by wmott1122at6/14/05 - 5:33 pm|7986 Views|7 Comments
Posted To: Families & Friends
Hello,  My son has simple partial, complex partial, and generalized gran mal seizures.  He's been having more gran mals lately, the neuro says due to puberty.  What I was wondering is do any of you who have...
katika
katika
Seizures in utero?
Created by katikaat7/5/05 - 10:47 am|4967 Views|12 Comments
Posted To: Families & Friends
When I was pregnant at about 7months, I complained to my doctor that I would feel rhytmic motions during the day in my womb.  They felt like small flutters, very rhytmic and frequent (not like when the baby would...
Val
Val
1 year Old has LONG seizures, anyone have a similar situation?
Created by Valat11/11/05 - 11:27 am|2655 Views|19 Comments
Posted To: Families & Friends
My daughter's seizures began at 5 mths old. They started as Simple Partial and now are Complex Partial. Nothing has ever controlled them, and they average about 30 -40 minutes long, with a few as long as 1.5 - 2 hrs long. She gets...
calebt...
calebt...
Mind pulses, head zaps?
Created by calebt...at3/3/05 - 4:47 am|2620 Views|61 Comments
Posted To: Families & Friends
Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two. This lasts about 5 days before it goes...
justmax
justmax
6 month old with seizures...advise please
Created by justmaxat4/11/05 - 2:27 am|2359 Views|22 Comments
Posted To: Families & Friends
Our son began having seizures at 4 months old 10 hours after his immunizations.  Of course we want to blame them on the vaccines, but the consensus is that they probably brought them out and did not actually cause the seizures. ...
rhea1965
rhea1965
Daughter diagnosed w/Juvenile Myoclonic Epilepsy
Created by rhea1965at1/28/05 - 12:40 am|2346 Views|48 Comments
Posted To: Families & Friends
My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not alone. She recently had a tonic-clonic...
troubled
troubled
How do I do accept my baby's seizures? Help me.
Created by troubledat8/8/05 - 8:00 pm|2284 Views|42 Comments
Posted To: Families & Friends
I am deeply troubled. I found out my baby has seizures right after she was born. While she was being pushed out, a coupld of blood vessles tore and bled in her head. The neurologist said it would heal and the blood would dry up...
judyh
judyh
Unverricht-Lundborg disease epm1, a progressive myoclonus epilepsy
Created by judyhat11/14/05 - 7:03 pm|2144 Views|16 Comments
Posted To: Families & Friends
Hi, My 19 year old daughter has ULD. Symptoms appeared 10 years ago and she was finally diagnosed 5 years ago. We'd love to talk to someone else with this condition. Please contact me. Thanks. Judy...
rosegirl
rosegirl
making fun of yourself
Created by rosegirlat10/5/06 - 2:22 am|2136 Views|27 Comments
Posted To: Families & Friends
Is that a bad thing to do, to make fun of yourself and your condition? I find humor to be the best way to relieve tension, especially when about a topic that makes people feel uncomfortable. One of sorority sisters has epilepsy and...
yannie44
yannie44
Short-term memory loss post- seizure
Created by yannie44at6/4/05 - 11:56 am|1967 Views|21 Comments
Posted To: Families & Friends
Please, does anyone identify with this problem?My son, 21yo now, has always found that after a seizure he has no memory of the past 2-6 hours preceding the seizure.e.g. went out to tea with his friend to celebrate their anniversary...
usmale
usmale
Simple Partial Seizures v. BiPolar Disorder
Created by usmaleat1/5/05 - 6:13 am|1963 Views|20 Comments
Posted To: Families & Friends
This may sound strange, but I really need the input. My Nephew was recently diagnosed with BiPolar Disorder. The "Diagnosis" from what I understand was made simply from descriptions of his behavior. No types of tests. I'm concerned...
mitzi525
mitzi525
Epilepsy Ribbon
Created by mitzi525at8/25/04 - 7:57 am|1935 Views|26 Comments
Posted To: Families & Friends
Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might know anything about this. Please e-mail...
birdwi...
birdwi...
epilepsy and "rage episodes"
Created by birdwi...at1/8/05 - 1:37 pm|1925 Views|28 Comments
Posted To: Families & Friends
hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of extreme, nearly violent rage where...
oodaloopy
oodaloopy
Infant/Toddler seizures after Eating? (Help)
Created by oodaloopyat3/31/05 - 6:02 am|1917 Views|12 Comments
Posted To: Families & Friends
Ever since my son was old enough sit up and be spoon-fed he would occasionally have, what I know wonder is, a seizure. ...
antcon
antcon
Benign Rolandic Epilepsey
Created by antconat5/10/05 - 5:36 am|1901 Views|14 Comments
Posted To: Families & Friends
I need to know if you think medication is necessary for BRE.  My son has had two bad seizures in the last two years and about 7 mild ones.  The neoro wants to place him on treleptal.  ...
akangie74
akangie74
Lennox Gastaut
Created by akangie74at3/5/05 - 3:32 am|1896 Views|24 Comments
Posted To: Families & Friends
Hello, I am new to this sight.  I came here trying to find some help.  I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded.  The problem is that I don't know what...
katika
katika
Staring spells only?
Created by katikaat8/16/05 - 10:45 pm|1887 Views|6 Comments
Posted To: Families & Friends
My 8yr old has history of infantile spasm and complex partial till about 8-10mos (treated and controlled) at that time.    For the past 4 years she has staring spells once or twice a year.  Her eyes appear fixed,...
aelisemc
aelisemc
My 17 year old son has Progressive Myoclonic Epilepsy...
Created by aelisemcat2/8/05 - 10:21 pm|1795 Views|31 Comments
Posted To: Families & Friends
HI MY NAME IS ANN AND I AM NEW TO THIS SITE.  I AM LOOKING FOR ANYONE WHO HAS A CHILD WITH PROGRESSIVE MYOCLONIC EPILEPSY OR ANYONE THAT KNOWS OF A GOOD SITE WHERE I CAN GET  INFORMATION ABOUT THIS DISEASE. ...
ohleigh
ohleigh
parents of young children with petit mal
Created by ohleighat9/30/05 - 3:21 pm|1766 Views|11 Comments
Posted To: Families & Friends
My 10 year old daughter has just been diagnosed with petit mal. She's been on Zarontin for 1 week with increases each week for 3 weeks. I would love to chat with other parents in the same situation. I've got lots to talk about and...
takrentz
takrentz
Ketogenic Diet-Questions
Created by takrentzat6/26/05 - 6:02 pm|1751 Views|12 Comments
Posted To: Families & Friends
Hi,I haven't posted for awhile on this site.  We have been facing the fact that JJ might have Tuberous Sclerosis thus causing his seizures.  The jury is still out on this.We saw a new neuro who strongly suggested...
raeden
raeden
My five year old daughter has been diagnosed with petite mal seiz...
Created by raedenat11/14/05 - 9:47 am|1699 Views|2 Comments
Posted To: Families & Friends
My five year old daughter has been recently diagnosed with petite mal seizures. I don't know anything about this condition and am very desperate and curious as to what I should do. Because of my insurance I have to go through such...
krazyk...
krazyk...
Facial injury from Grand Mauls
Created by krazyk...at2/1/06 - 2:48 am|1639 Views|14 Comments
Posted To: Families & Friends
My boyfriend of 16 months has epilepsy, he suffers from grand and petite seizure. The thing that scares me most is the fact that every grand maul seizure he has (which is about once a month) happens while he is walking or standing,...
storys5
storys5
1st EEG- need help understanding
Created by storys5at11/18/05 - 12:01 pm|1489 Views|5 Comments
Posted To: Families & Friends
Hello everyone. My 7 yr old daughter had a sleep deprived EEG with abnormal results. hoping someone can help before we see her neurologist. I would like to have some idea of what things mean so I can ask more informed questions. Here...
ahitnao
ahitnao
Does this guy really have epilepsy?
Created by ahitnaoat3/17/07 - 8:36 am|1451 Views|13 Comments
Posted To: Families & Friends
There's a guy in my dorm house who says he has epilepsy, and that is why he doesn't drink and cannot drive a car. But it sounds like he's lying sometimes.... Any ideas if that can happen? What is the probability of it? What kind of...

 
gretchen
gretchen
(Off Topic) About One of my STrongest Supporters
Created by gretchenat4/30/05 - 7:42 pm|413 Views|5 Comments
Posted To: Families & Friends
I have 9 daughters. One of them has had her own personal health struggles. She was deaf until she was 15. Through a series of operations she had her hearing restored about 90% but her hearing is distorted, not the same as yours...
Val
Val
1 year Old has LONG seizures, anyone have a similar situation?
Created by Valat11/11/05 - 11:27 am|2655 Views|19 Comments
Posted To: Families & Friends
My daughter's seizures began at 5 mths old. They started as Simple Partial and now are Complex Partial. Nothing has ever controlled them, and they average about 30 -40 minutes long, with a few as long as 1.5 - 2 hrs long. She gets...
gracie...
gracie...
1 year old with seizures
Created by gracie...at11/4/04 - 9:14 am|371 Views|1 Comment
Posted To: Families & Friends
Hi-My 1 yr. old daughter was released from the hospital yesterday after experiencing 2 seizures on Monday.  The first was brief -- maybe 30 sec. - 1minute -- but involved full body convulsions and loss of consciousness. ...
nathol...
nathol...
10 month old son may have epilepsy
Created by nathol...at5/10/05 - 9:07 am|387 Views|3 Comments
Posted To: Families & Friends
hi yamy son matthew is 10 months old, at 8 weeks old he had his first seziure lasting about 2 mins, he then did not have another until he was 9 months oldand in the space of a month has had 3 further seizures the longest...
deleena
deleena
10 year old son,epileptic, how do we cope?
Created by deleenaat3/17/05 - 7:03 am|600 Views|34 Comments
Posted To: Families & Friends
Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school. Paramedics called both times and taken to ER....
deleena
deleena
10 year old son,epileptic, how do we cope?
Created by deleenaat3/8/05 - 6:11 am|378 Views|10 Comments
Posted To: Families & Friends
Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school. Paramedics called both times and taken to...
cjsmom
cjsmom
11 mth old boy - Is he having a Seizure
Created by cjsmomat12/2/04 - 2:41 pm|355 Views|1 Comment
Posted To: Families & Friends
      Day 1 - CJ had a fever all day took 2 long naps but was eating and acting normal. When I got home at 6:30pm I took his temp it was 102.4 I gave him Tylenol. He eat, had Motrin at bed time and stayed asleep all...
Kaity12
Kaity12
12 year old girl, little brother has E, Looking to chat with othe...
Created by Kaity12at10/22/06 - 9:05 pm|1356 Views|3 Comments
Posted To: Families & Friends
Hello, My 3 year old brother has myoclonic seizures and I am very worried about him, I want to talk to other kids that have brothers and sisters with seizures. I have email....
marylisa
marylisa
12 year old son having episodes / frustration with doctors
Created by marylisaat7/31/05 - 8:29 pm|469 Views|8 Comments
Posted To: Families & Friends
HI! I just found this site and have been sitting here for over an hour reading many of your posts. You have given me many questions to ask my son's neurologist. I will warn you, this will be a long post and I apologize for that, but...
marylisa
marylisa
12 year old son having episodes / frustration with doctors
Created by marylisaat7/31/05 - 9:52 am|428 Views
Posted To: Families & Friends
HI! I just found this site and have been sitting here for over an hour reading many of your posts. You have given me many questions to ask my son's neurologist. I will warn you, this will be a long post and I apologize for that, but...
marylisa
marylisa
12 yo son having episodes / frustration with doctors
Created by marylisaat7/31/05 - 10:52 am|750 Views|16 Comments
Posted To: Families & Friends
HI! I just found this site and have been sitting here for over an hour reading many of your posts. You have given me many questions to ask my son's neurologist. I will warn you, this will be a long post and I apologize for that, but...
mspellman
mspellman
13 yr old son diagnosed with right TLE
Created by mspellmanat11/27/04 - 8:03 pm|401 Views|1 Comment
Posted To: Families & Friends
Hello all!  My 13 year old son had his first seizure in November 2003.  After 3 weeks of one seizure after another and numerous tests (EEGs, MRIs), a diagnosis was finally confirmed of right TLE.  His seizures are...
purple
purple
13 yr old w/ nighttime seizures also
Created by purpleat2/21/05 - 8:19 pm|604 Views
Posted To: Families & Friends
My 13 yr old son has nighttime seizures also....everynight now for over 18months!!!!!  He's been on Topomax and now Keppra Klonopin and he is still having seizures.  He's had 2-24 hr EEG studies in the hosp and they "see"...
2caret
2caret
14yo son w/ JME
Created by 2caretat3/14/05 - 5:41 pm|551 Views|24 Comments
Posted To: Families & Friends
HI all.. I am new here and looking for some info. My son had a tonic-clonic in May 2004. He actually had 3 in 1 week but we didnt know about them until the 3rd one. I saw it myself and it was the...
pickle...
pickle...
19yr ols son with poss epilepsy
Created by pickle...at6/15/09 - 6:22 am|16 Views|4 Comments
Posted To: Families & Friends
hi i'm new here and looking for reassurance/help. let me start by saying i don't know where to get advice! my son is profoundly deaf and has suffered from horrific migraines which began 2 years ago.they are more or less under control now-he takes amiltryptiline,a...
storys5
storys5
1st EEG- need help understanding
Created by storys5at11/18/05 - 12:01 pm|1489 Views|5 Comments
Posted To: Families & Friends
Hello everyone. My 7 yr old daughter had a sleep deprived EEG with abnormal results. hoping someone can help before we see her neurologist. I would like to have some idea of what things mean so I can ask more informed questions. Here...
nique313
nique313
2 year old -
Created by nique313at11/15/04 - 7:10 am|562 Views|9 Comments
Posted To: Families & Friends
Hi all, I'm new here and don't have diagnosis yet but am working on it. I'm just wondering if anyone has ever experienced anything similar to what is going on with my 2 year old daughter.  Mostly they have noticed it at...
mshowalt
mshowalt
2 year old just diagnosed with Absence Seizures
Created by mshowaltat8/26/05 - 5:02 am|555 Views
Posted To: Families & Friends
Hi - Just found out last night through an EEG that my Daughter is having Absence Seizures.Anybody else out there with a child having these??Any information would really be appreciated.They want to put her on Valproic Acid, but the...
mshowalt
mshowalt
2 year old just diagnosed with Absence Seizures
Created by mshowaltat8/26/05 - 5:02 am|977 Views|4 Comments
Posted To: Families & Friends
Hi - Just found out last night through an EEG that my Daughter is having Absence Seizures.Anybody else out there with a child having these??Any information would really be appreciated.They want to put her on Valproic Acid, but the...
kbteachem
kbteachem
2 yr old with seizure disorder... advice?
Created by kbteachemat8/23/04 - 6:30 am|404 Views|10 Comments
Posted To: Families & Friends
Our 2 year old son was just diagnosed with absence seizures.  He would stop playing (clue #1) and stare off into space for 3-15 seconds.  Then he would resume playing.  In one month's time this went from 1 every...
Natarsha
Natarsha
20 Year Old Female "Non Epileptic" Worried About 5 year Old Step ...
Created by Natarshaat12/29/06 - 11:20 pm|352 Views
Posted To: Families & Friends
Hi Everyone, I hope your all doing well !!!!!!!!!! My Step Sister is nearing Year 1 in School and I'm very concerned about the way my Dad and Step Sister's Mother are treating her, for example Dad and Sister came around today...
carlsona
carlsona
21 year old brother just had grand-mal, no insurance, Washington ...
Created by carlsonaat4/1/05 - 12:06 am|400 Views|7 Comments
Posted To: Families & Friends
Aloha,My name is Amber and my younger brother (he's 3 years younger, 21) just had a grand mal seizure yesterday in Washington state. He doesn't have any insurance. Luckily the hospital he went to has a fund for that sort of thing,...
jmmjmm1
jmmjmm1
26 with Overprotective parents
Created by jmmjmm1at7/10/05 - 3:34 pm|822 Views|9 Comments
Posted To: Families & Friends
We fight all the time which leads me to more stress and more seizures. I try to tell my parents that. It is especially bad with my mother and I try to tell her that, but she is in the medical profession and she thinks she is always...
kylesmom
kylesmom
3 seizures under our belt, tests negative, now in waiting
Created by kylesmomat4/29/05 - 2:54 pm|822 Views|21 Comments
Posted To: Families & Friends
This is my first time here - My 5 year old son has had 3 seizures. Unfortunately, I do not know what type - the peditrician said they could be petit mal (absence) seizures and the neurologist said they were probably partial lobe seizures....
shiana...
shiana...
3 year old daughter/Seizures while sleeping
Created by shiana...at2/21/05 - 8:19 pm|568 Views|18 Comments
Posted To: Families & Friends
My three year old daughter has just been diagnosed with Epilepsy. We did an MRI and a 48 hour EEG, both of which came back normal. She has had eleven gran-mal seizures, since March 2004. Ten out of the eleven seizures were while she...