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AmyBoop88 New - Severe Epilepsy And Pregnancy Created by AmyBoop88at5/23/12 - 5:04 pm|4 Views Posted To: Women With Epilepsy I've had seizures my entire life. When I was a child they were some sort of grand mal, but I didn't convulse. I would just zone out and not react to any stimuli and stop breathing. And then be in a sort of coma for three days. But I 'outgrew' these seizures...
karyliin6 New - Lamictal Nausea, Dizzy Spells Created by karyliin6at5/23/12 - 4:31 pm|1 View Posted To: Medication Issues Hey Guys,
absenc... New - Fish oil and absence seizures Created by absenc...at5/10/12 - 9:26 am|39 Views|4 Comments Posted To: Medication Issues How many mg of fish oil should I take for absence seizures? Thanks!
Katz New - Weaning off of Dilatin Created by Katzat5/22/12 - 12:14 pm|14 Views|2 Comments Posted To: Medication Issues Trying again to get off of Dilatin after 25 yrs. This time they're trying me on Keppra. To start with I was getting partials, so 1st. neuro tried me on Topamax .. That made me feel unhuman... So he then tried Gabapeten .... That didn't do a thing except...
Tatian... New - Paying for your seizure pills with no insurance? Created by Tatian...at5/13/12 - 10:07 am|35 Views|3 Comments Posted To: Insurance Issues Hello, Living without insurance should not even be an issue in america but some how it is and the people who need it the most is suffering without it, some of us with epilepsy can do alot if only we had our medicine everyday on time but alot of us are not...
Ashley... New - Best pediatric neurologists in NC? Created by Ashley...at4/17/12 - 8:29 am|21 Views|3 Comments Posted To: Diagnostic Dilemmas and Testing We are trying to get my two year old daughter diagnosed w possible absence seizures. The pediatric neurologist we saw in Greensboro, NC was not helpful at all. I told him I felt crazy because at the time I was the only one seeing my daughter blank out and...
mindyraa New - Banzel/Keppra/Lamicital Created by mindyraaat5/22/12 - 12:50 pm|12 Views|2 Comments Posted To: Medication Issues
msmith... New - I think I just had a seizure??!!?? Created by msmith...at5/20/12 - 5:56 pm|23 Views|2 Comments Posted To: Diagnostic Dilemmas and Testing Okay so I'm 15 years old, I'm a girl, and I'm typically very healthy. I eat super healthy and I exercise a lot, I don't know if that makes a difference at all..I don't know what happened. And I'm so scared. So I get really frequent head rushes, or at least...
Angeli... New - Epilepsy, Keppra, OCD Created by Angeli...at5/23/12 - 6:20 am|3 Views Posted To: Parents My son is 3, will be 4 in July. He has been on a generic Keppra since Feb. 1st. He went to the neuro. yesterday and they increased his dosage due to seizure like activities that have occurred since his last visit. We are also keeping an eye on his OCD behaviors...
amyoon New - HAIR LOSS with Zonegran!! Doctor Says There's No Such Side Effect Created by amyoonat2/18/09 - 1:46 pm|576 Views|23 Comments Posted To: Medication Issues Hi.  I've been here before freaking about my hair.  I was certain it was the Keppra that was making my hair fall out and be able to be swept up everyday.  Now I've tapered off of it to the minimum amount and I am now going up on Zonegran.  My hair is worse! ...
Luv2lern New - New Created by Luv2lernat5/22/12 - 3:26 pm|14 Views|1 Comment Posted To: New to Epilepsy.com Hey all,
mamma0810 New - VERY SCARED!!!!! Created by mamma0810at5/22/12 - 7:10 pm|5 Views Posted To: New to Epilepsy.com I am a 25 year old wife and mother of a 4 year old and a 1 1/2 year old. I have been having these symptoms for the past week. I've been getting this feeling of extreme excitement, followed by feeling of electric through my gums, then my heart will race, and...
no all... New - Keppra and pain or swelling in joints? Created by no all...at5/13/09 - 12:20 pm|91 Views|12 Comments Posted To: Medication Issues   Hi,    I started to take Keppra (50mg twice a day) for a few months. I have taken Dilantin and have a VNS for many years now.  After I started to take Keppra all was great at first. Well, now my joints are starting to be very painful. Just...
rosann... New - Georgia Neurologist Created by rosann...at5/17/12 - 2:44 am|26 Views|4 Comments Posted To: Living With Epilepsy - Adults I am absolutely not happy with my neourologist. He walked out in the middle of the visit. I thought he was going to check blook work, but he was just leaving. The nurse came in and said he was pressed for time and couldn't come back. But, I am more questions....
reikih... New - lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding Created by reikih...at5/16/12 - 7:10 am|12 Views|1 Comment Posted To: Medication Issues This is partially in response to other posts I have read. I was diagnosed with epilepsy when I was 16 with Dr.s' opinion I had been having unknown nightly seizures much longer. It just so happened that the big witnessed grand mal was in high school during class.
Auburn New - Weird Symptoms Created by Auburnat2/18/06 - 2:21 am|681 Views|2 Comments Posted To: Diagnostic Dilemmas and Testing I've been going through loops of seeing different doctors for the past 6 months. It started with my physical. I saw my doctor and everything seemed okay--except when I told him I was having joint pain he seemed really concerned, because...
MichaelK New - Can exercise induce seizures? Created by MichaelKat11/16/08 - 4:00 am|949 Views|85 Comments Posted To: Living With Epilepsy - Adults All the doctors disagree with me because of the research out there but I gave up running last June because I had a seizure while running. I suddenly collapsed, right before I was going to cross a busy street. The doctors argue that aerobic exercise is especially...
taylor... New - Becoming off balance.. Created by taylor...at5/22/12 - 8:17 am|8 Views Posted To: Living With Epilepsy - Youth My son is 11 and was diagnosed with epilepsy September 2011. He has Clonic-Tonic, Complex Partial, Myoclonic, and Absent seizures. He is currently taking Depakote to control his seizures. Periodically he becomes off balance and walks similar to the way an...
bcpsmc New - Film on epilepsy Created by bcpsmcat5/21/12 - 5:53 am|14 Views|1 Comment Posted To: Creative Corner Hello Friends, Myself Bharat Parmar and I am a Film student currently workin g on a project, a short film Which has an epileptic girl as a main character. My cousin sister who is an epileptic is an inspiration for this film. I want to explore more about...
cmunley86 New - Is it safe to function normally again? Created by cmunley86at4/4/12 - 3:44 pm|55 Views|7 Comments Posted To: Living With Epilepsy - Adults I'm 25 yrs old, and have been on 1000 mg of Keppra twice a day. However, it's not really working out for me. I had a seizure in November 2011, and a recent one yesterday while I was going for a walk. Thank god I had someone with me, and they made sure I didn't...
Baby Sam New - Clobazam Created by Baby Samat12/14/07 - 6:18 pm|268 Views|18 Comments Posted To: Parents I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.
phylis... New - The definition of FEAR: Created by phylis...at5/21/12 - 10:33 am|23 Views|3 Comments Posted To: Living With Epilepsy - Adults F = False
Mooudii New - help needed ASAP Created by Mooudiiat5/18/12 - 2:06 am|51 Views|7 Comments Posted To: New to Epilepsy.com Hi there ... I have been recently diagnosed with temoporal lobe epilepsy, I am 29 yr old female from UAE - Dubai, It started way back when I was a teenager but has not been recognized until it produced grand mal seizures...
mel239 New - Awareness of seizure? Created by mel239at7/24/10 - 7:00 am|85 Views|9 Comments Posted To: Living With Epilepsy - Adults I have cps with aura and seizures have been pretty much all the same.However,last evening I was sitting in chair watching tv when the inside of my nose started to vibrate,my right arm jerked then my head jerked then I felt like a big bug landed on my head.I...
lane New - epilepsy and psychic abilites Created by laneat6/12/08 - 1:13 pm|100 Views|5 Comments Posted To: Living With Epilepsy - Adults Hi all,
uberzw... New - Catamenial Epilepsy: Finally a solution! Created by uberzw...at7/9/09 - 9:08 pm|477 Views|40 Comments Posted To: Medication Issues
rosann... New - FREE counseling? (online, telephone, or in person) Created by rosann...at5/12/12 - 1:10 pm|14 Views|3 Comments Posted To: Living With Epilepsy - Adults I'm near the edge. Does anyone know of any free counseling available for us? It doesn't matter if its online, through the telephone or in person in the state of Georgia. PLEASE help!
pewter New - PC Seizures, possibly nocturnal seizures, possible thyroid issues... Created by pewterat4/29/12 - 8:04 am|12 Views|1 Comment Posted To: Living With Epilepsy - Adults It has been awhile since I was last here.  Am on 3rd Resident Neuro, same College Hospital Neuro Dept.. i stopped topiramate (had been taking for 4 years) cold turkey in January due to the consistent indifference by neurologists.. they repeatedly...
rosann... New - Georgia Neurologist Created by rosann...at5/17/12 - 2:44 am|4 Views|1 Comment Posted To: Living With Epilepsy - Adults I am absolutely not happy with my neourologist. He walked out in the middle of the visit. I thought he was going to check blook work, but he was just leaving. The nurse came in and said he was pressed for time and couldn't come back. But, I am more questions....
tcameron New - Afraid to have VNS. Anyone had it? Created by tcameronat5/18/12 - 6:31 pm|31 Views|4 Comments Posted To: Surgery Issues I have approx 5 C.P. seiz/month with no auras.  My epileptologist recommended the VNS, but I'm afraid.  I'm also afraid of having real brain surgery.  Then I got the idea:  Perhaps I'm hurting my brain more by continuing to have these seizures?  I tried...
MoSchneb New - Seizures linked to Anxiety? Created by MoSchnebat5/9/12 - 3:52 pm|41 Views|4 Comments Posted To: Living With Epilepsy - Adults
patrish New - Is this a very bad neurogist please?? Created by patrishat12/2/08 - 3:11 pm|103 Views|9 Comments Posted To: Living With Epilepsy - Adults
envyous New - Need Help, Wife Having Seizue Like Symptoms, not sure what it is,... Created by envyousat5/19/12 - 3:22 pm|12 Views|1 Comment Posted To: Medication Issues My wife is suffering pretty massive what looks to be seizures. Her legs and arms start to completly tighten and shake, and then her eyes roll back and then she begins full body shaking, her head shakes like she is saying yes like 100 times per minute or more...
nick71... New - Surgery for a fairly well controlled condition? Created by nick71...at1/30/12 - 3:36 pm|75 Views|6 Comments Posted To: Surgery Issues Hello Everybody!  My name is Nick, I am 26 and was diagnosed with epilepsy when I was 19 even though I have had the complex partials since I was 10... Anyways, I have controlled epilepsy when medicated. I take 600mg of lamictal xr and vimpat 100mg...
rosann... New - How Do You Cope? Created by rosann...at5/12/12 - 12:01 pm|77 Views|11 Comments Posted To: My Epilepsy Diary I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found that it helps to cope with pills and alcohol, cutting,...
suebear New - Question for VNS patients: Should I be concerned? Created by suebearat10/27/07 - 1:16 pm|648 Views|29 Comments Posted To: Surgery Issues Hello everyone, I've had my VNS surgery on October 15th so I'm not sure how to look at this. On one hand I'm feeling really good but on another I have been loosing a bit of energy. The pain is subsiding like they said it would and...
zet New - Epi memory loss Created by zetat5/13/12 - 9:05 am|17 Views|2 Comments Posted To: Living With Epilepsy - Adults Hi, I live outside the US. I have been suffering from seizures for 2 years (I am 43). Before that I had fits of deja vu which I didnt even link with epi. Usually my seizures take place 2 a year while I am asleep. I visited 2 neurologists who gave me contradictory...
Mooudii New - newly diagnosed with temporal lobe epilepsy Created by Mooudiiat5/17/12 - 3:08 am|41 Views|1 Comment Posted To: Living With Epilepsy - Adults Hi there ...  I have been recently diagnosed with temoporal lobe epilepsy, I am 29 yr old female from UAE - Dubai, It started way back when I was a teenager but has not been recognized until it produced grand mal seizures...
butter... New - PUT UP AND SHUIT UP Created by butter...at5/18/12 - 2:45 pm|8 Views Posted To: Epilepsy.com Help          Hello people,     I have to review my epilepsy for a week, & I have had seven auras and 29 arm shacks (pengun attacks) I tell the public I have this condition & they look as if it's contaguese..... Any advice...
Sammis... New - 77 seizures in 17 days?? Created by Sammis...at5/17/10 - 12:13 pm|107 Views|10 Comments Posted To: Living With Epilepsy - Adults Hi all, Diagnosed 3/4/10 with epilepsy everywhere in my brain. I have had 77 seizures mostly noctunal TC's in 17 days. I see my DR on Wed any advice as he doesn't listen much and just passes out drugs. I know the drugs are necessary, but I kind of want to...
pRushb... New - Any ADD/ADHD Epileptics here? Questions.. Created by pRushb...at5/6/12 - 12:43 am|21 Views|3 Comments Posted To: Living With Epilepsy - Adults Hi, I've had diagnosed Epilepsy since I was 12. I'm 32 now, and have done well. I'm very stable on Lamictal XR, and have no side effects. Aside from Depakote lethargy and weight gain as a teenager, I've for the most part been stable on everything.
tashy9923 New - Is anyone takeing Tegretol CR and Pristiq and the same time??? Created by tashy9923at5/17/12 - 7:14 pm|2 Views Posted To: Medication Issues Hello everyone Im an 18 year old female that has epilepsy I take Tegretol and Prstiq and was wondering if anyone else takes the same two medications combined. Thanks
michelleU New - Zonisamide side effects Created by michelleUat3/10/12 - 9:31 pm|25 Views|2 Comments Posted To: New to Epilepsy.com I have been taking zonisamide for almost 2 months now and have developed an itchy rash. I was wondering if anyone else has ever experienced this before? I developed a rash from taking lamotrigine for several years. Anyone experience any other side effects...
LostLia New - Teenager Problems.... Created by LostLiaat5/7/12 - 2:38 pm|11 Views|1 Comment Posted To: Teen Group Hey Everyone,
vitasg New - Life After Left Temporal Lobe Surgery - Desperate for Input Created by vitasgat5/16/12 - 7:45 am|35 Views|3 Comments Posted To: Surgery Issues My 27 year old son had is left temporal lobe removed two years ago.  His seizures started at 19, quickly became severe, uncontrolled with medication.  Medication didn't completely control seizures - candidate for surgery.  Had the surgery one semester prior...
rjguen... New - recent changes have left me concerned Created by rjguen...at5/17/12 - 7:50 am|8 Views Posted To: Living With Epilepsy - Adults hey everybody. i have recently had some developments concerning my disorder and i wanted to run it by you guys to see if i should be worried or not. i have two types of seizures, grand mal and complex partial (or partial complex... i always forget which...
jyhprice New - Does anyone want to join my facebook group? Created by jyhpriceat3/2/10 - 9:45 am|51 Views|2 Comments Posted To: Living With Epilepsy - Adults
upanama New - Keppra for kids Created by upanamaat3/18/06 - 8:48 pm|1652 Views|34 Comments Posted To: Parents Hello, Very new 2 this, doctors want to put my 6yr old son on Keppra, anyone using this on their children? Thanks upanama...
New2Ep... New - Epilepsy and School Created by New2Ep...at5/16/12 - 7:27 am|14 Views|3 Comments Posted To: Living With Epilepsy - Youth Hello I am new to the site and new to Epilepsy in general. I was wondering if anyone could help me out with getting some answers. My daughter is 16 and she was recently diagnosed with generalized epilepsy. Her seizures are different everytime. Most of them...
Arik New - Tonic Clonic seizures with no warning Created by Arikat5/16/12 - 11:57 am|4 Views Posted To: New to Epilepsy.com I am 34 yrs old first time to a site like this with that said in high school during a soccer game I was kicked in the head and got a depressed skull fracture and had brain surgery. No problems for 16 yrs then decided to play soccer in may of 2011 the ball...