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Forum Activity
 Sloane... |
klhatch New - Seizure identification help? Always lucid, no memory impairment!
Hello, I do not know for sure how long I have been having seizures, possibly since I was a child, but I have only been having the more obvious ones at least for under a year now (I am 29), and am starting Lamictal for them tonight, as they happen nearly every...
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soundwav New - ARE THERE ANY TEENAGERS ON THIS SITE
So guys I am 17 final year of school and live in australia.
I am really lost and I would like to talk to somebody going through epilepsy as a teenager. thanks heaps :)
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57Acad... New - I'm not getting any better; this sucks. (And hello.)
Hi, everyone. Newbie here - my name is Jen, and while I'm not exactly thrilled to have this crap, I am happy to find that there's a warm community of others out there who are going through the same things.
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eviesm... |
colama... |
 happygirl New - Reduction in Keppra
Hi There,
I am very, very slowly coming off my Keppra (my doctor said to do it over 6 months, I am doing it over 12)
In the last week, I have noticed that I have had more problems from a work perspective in that I am getting the most basic things...
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aj85 |
 nick71... New - Surgery for a fairly well controlled condition?
Hello Everybody!
My name is Nick, I am 26 and was diagnosed with epilepsy when I was 19 even though I have had the complex partials since I was 10... Anyways, I have controlled epilepsy when medicated. I take 600mg of lamictal xr and vimpat 100mg...
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lamauld New - Daughter just diagnosed
A few months ago, my daughter, 19 months, began having staring spells. Our pediatrician referred us to pediatric neurologist, who order a short EEG. Today, she told me that the EEG looked normal; however, based upon the information we had given her,...
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maticusw New - Do Aus and Abu Dhabi have many special rules regarding drugs
Hey, I live in the Uk and Im going to Aus for the first time in the summer whilst stopping off in Abu Dhabi. I take 125mg Zonisamide and 300mg Lamotrigine twice daily. Does anybody know about any special rules and all the problems Im going to run into regarding...
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jdw1343 |
jdw1343 |
ameyers6 New - Question about dilantin
i take 300mg of dilantin a day have been seizure free for 14 years
but recently i have been worried about seizures obsessivly and making myself dizzy and sick
my levels for 14 years have always been low like 4.7 and 3.7
my last ER visit 3 days ago...
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Kaboom New - Anyone with a similar story?
Hi, my daughter had a seizure back on November. Her back arched her eyes glazed over and she was making a strange repetitive sound this went on for about 10 min then she went limp and started twitching on her left side. First just her cheek but then her whole...
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 epi_help New - Etp pipeline updates
Hi everyone! I am at thePipelineconference in SanFrancisco. Great speakers talking about what's needed to speed up progress for new treatments. The I'll come into chat tonight for ask epi andfill you in
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 lilian... New - Low dose natural progesterone
Hi everyone,
So, I'm a 38 yo epilepsy patient, diagnosed at 20 with simple partials that can generalize. I've been through several drugs, unacceptable side effects, gone OFF drugs (3 years, and had simple partial psychic and motor...
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kimbas... New - new type of night seizure
Hi, I have a question on a new issue I had. I few nights in a row I started like "clamping" down on my tongue when I was half asleep, but that was it. Then the next night I just started talking in my sleep (not actually sleeping but just rambling...
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mickma... New - Thoughts on Wrong Medication
Hello, I am 46 and had my Epilepsy under control until January 2010 when being treated for another condition the Doctor gave me Amatriptaline medication. I took it for three days, within the first two days my seizures had started again so we stopped the medication...
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soundwav New - Epilepsy changing your lifestyle
Hi, so I have had epilepsy for five years in June and was diagnosed when twelve, so that makes me 18 soon :)
I am changing medications against my wishes to Topamax soon and so much stuff has happened and epilepsy has changed my life, with obstacles...
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eviesm... New - Keppra treatment-12 year old son
I googled my question and was SO pleased to get more than I bargained for when I found this website! I have to say this has been one of the scariest and most challenging year of our lives, and I have felt as a mother at times like I'm on a deserted island,...
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 Adrilu |
jmoore New - Help with understanding my own experience
Hi,
Since I was a young boy, I have been having the following symptoms:
1)Visions (always the same scenes, never triggered by anything external
that I am aware of). Once the visions are over, I can hardly remember
them, but I know that I...
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 suebear New - Question for VNS patients: Should I be concerned?
Hello everyone, I've had my VNS surgery on October 15th so I'm not sure how to look at this. On one hand I'm feeling really good but on another I have been loosing a bit of energy. The pain is subsiding like they said it would and...
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 jasssmit New - Fired from Job
On November 7th I started a job on a one month trial basis. At the end of that month they were to evaluate it I should be hired for a full time, salaried, permanent position. The reason for the trial period was because I have limited programming skills--I'm...
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jmoore New - Help with understanding my own experience
Hi,
Since I was a young boy, I have been having the following symptoms:
1)Visions (always the same scenes, never triggered by anything external that I am aware of). Once the visions are over, I can hardly remember them, but I know that I have...
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msmall02 New - Diet and Development... Could a poor diet trigger seizures? Can ...
My 5 year old has refused to eat breakfast for the past 3 years. He would make himself vomit if he was forced to eat a healthy breakfast ( pancakes, cereal, toast, eggs,bacon, etc..) and lunch and dinner.But on the upside he will eat a salad...
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B116 New - Scared once again! :(
Hey everyone. I Dont know how this goes but im just going to start off saying that i have had siezures since i have been of the age of 3. I am now 18 years old. I have been hospitalized many times and I have been told i have up 7 or more types of epilepsy. :(
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KimberlyL |
 annege... New - Chances of our future children having epilepsy? I have epilepsy a...
My boyfriend and I have recently been talking about getting married and having a child. Since I have epilepsy I simply cannot have an unplanned pregnancy if I want my baby to be healthy. I know the risks of birth defects are higher in women with epilepsy....
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 Kat21 New - finding a new job is so hard, i dont know what to look for
I recently quit my job, i had been put under pressure too many times and it caused me to have many seizures, now i dont know what to kind of jobs to look for that will be safe for me
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 wldhrt13 New - Can Seizures Cause a Stroke?
I understand that having a stroke can leave a person with scars and that those scars from oxygen deprivation can in turn cause a person to end up with a seizure disorder.
But can is the converse true?
Can a person with...
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christ... New - Dilantin to Lamictal (and why the he l l is the price so high??!!)
Hi,
I visited a new neurologist yesterday (a good one from my experience so far), and she suggested I get off Dilantin and switch to Lamictal.
A few questions:
1. Any experience with Lamictal (good or bad?) Side effects?
The neurologist told me...
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gardenia |
 Angeli... New - Chewing, sign of seizure?
A couple of days ago my 3 year old (that has had at least 2 seizures that we've witnessed) was on the couch for "quiet time." I was in my older son's room talking to him about his day at school (a few minutes at the most). When we came out of the room it was...
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seokizaki New - 3rd Trimester Pregnant and Epileptic.
I have just started my 3rd trimester of pregnancy and would like to share my blog with other women who have epilepsy and are pregnant, or are interested in becoming a parent. Hopefully my experiences can help those of you who struggled with this decision...
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 mrsray New - New Pregnancy on Topamax 200mg
Hi Everyone,
I have had two nocturnal seizures 4/05 & 6/05 and was placed on topamax. I just found out that I am pregnant. Does anyone have any information about the risks of taking or not taking topamax or any other seizure medication...
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Nedlog New - No More Options - SCN1A Mutation
This is my first time writing on this website, and i'm hoping to get some feedback and opinions from people.
First, a little background...
My son had his first febrile seizure a week after his first birthday. Shortly after that, he started having non-febrile...
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adritu... New - should I switch from topamax before getting pregnant?
Hi everyone,
this is my first post-- I'd really appreciate whatever feedback you can give me. I had an EEG the other day in hopes of getting off AEDs all together, but no dice, still spikes and my neurologist still said I should stay on.
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daj New - Vimpat
Has anyone tried Vimpat yet? If so, will you share your experiences with it (good and bad), decision to take it or not, etc.? My doctor wants me to switch to it. Thanks so much!
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annege... New - Chances of our future children having epilepsy? I have epilepsy a...
My boyfriend and I have recently been talking about getting married and having a child. Since I have epilepsy I simply cannot have an unplanned pregnancy if I want my baby to be healthy. I know the risks of birth defects are higher in women with epilepsy....
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 butter... New - WORK AND EPIPLEPSY
Hi ya guys,
I had about 10 or more auras today @ work... I have work tomro, do u think i should go in or not ?
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sigep1982 |
clayma... New - Marijuana and personal diary of treatment for Epilepsy.
Does anybody have any experience with high CBD marijuana for treating their Epilepsy?a
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vinaypuri New - Carbamazepine to Keppra
I have has seizure disorder since I was 13. I have had about 8 seizures all my life and in the past it was controlled well with Carbamazepine and Valproate. From last 6 years I have been on Carbamazepine CR - 200 mg - 2 times a day(total of 400 Mg a day)....
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414NZA New - R.E. Marijuana Causes Seizures
I was reading an old forum from '08 about someone having seizures from smoking marijuana. A lot of people seemed to believe that weed stops seizures, so I thought I'd join and post a forum based on my experiences. I, for one, quit marijuana, after I started...
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cocoho... New - Smart meters and seizures???
I was at a party when a doctor friend began telling me that a patient began having break through seizures right after a smart meter was placed at her residence. 2 days later, a smart meter was placed on our gas meter. My 11 y-o, epileptic son began experiencing...
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keaze New - Medication and losing friends
Hey guys. I'm 24 years old. I've been
diagnosed with epilepsy about 7 years ago. I've been taking tegretol
generic since then. I used to flourish when i was younger and have an
exciting life, with great friends by the dozen. Over the years, i've...
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SanjayY New - Unusual Seizure Cycles
My son is 14 nonverbal, Autistic. He has had grandmal seizures since the age of 4. We have yet to get an explanation for the unusual pattern of his seizures. We have yet to get control on his seizures in 10 yrs.
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 triggeree New - surgery
my dr has been trying to get me to operate but with all the adverse reaction i will wait until it they have it for sure you will not have all those possibilities .
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