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Forum Activity
 1never... |
 maryem New - VNS
After 6 years and 5 different meds in 3 or 4 different series I am looking at VNS. But how much does it cost an insursed person, in illinois with Blue cross blue shield? About how much? Or will insure even pay? Is disability easy or hard to get with...
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 kmworden New - Switching from Keppra XR to Zonergan- tossing& turning
I have been on Keppra and then Keppra XR for a little over a year. Seizures started to get progressively worse post-pregnancy so I am switching to Zonegran. I also take Klonopin which seemed to be helpful in working with the Keppra to manage my seizures. ...
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 brian ... |
 kwety New - thinking about surgery
Hi
I'm 29 years old and have a congenit mal formation in my brain. I've had seizures(grand mal until I was 5, then none for 6 years then partial and absence until the age of 20.
Then things got a lot worse I had dozens of partial...
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 jessic... New - Switching to Topamax from Depakote ER.. Advice?
I have been diagnosed with seizures for the past 16 years since I was 13 years old. I have been on Dilantin, Limictal, Depakote, Depakote ER, and Keppra. The only bad side effects from previous meds were protuding gums and the depletion of calcium from my...
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 filly150 New - Vimpat for Primary Generalized Epilepsy
Is anyone out there taking Vimpat for Primary Generalized Epilepsy? If so, what kind of luck did you have with it. I am just starting it as an add-on to Lamictal for Tonic Clonic Seizures. My doctor says that even though it is uses for partials, that...
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Rhiann... New - im 16, had epilepsy since 13 - looking for someone to chat to abo...
basically my names rhiannon.
i live in the UK, and im 16.
i have grand mal, drop and petit mal seizures - and have also resently been experiencing hand twitches.
i would love to hear from anyone who wants to talk about it, been...
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darina New - REAL?? Fake?? HELP MEE
HI im now 18 i started having seizures on the 5th may 2006 my first was in school i was on a bench i was really cold and it was near the end of the first break i remember going to sit on the bench thats about it. whilst sitting on the bench i passed out...
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Skater... New - Please give me your input on my 9 year old son's symptoms
My 9 year old son has Asperger's. His doctor tells me that this elevates his risks of comorbidity which could include seizures. Last year his teacher's noticed he was having many staring spells during school. I noticed them at home as well. A teacher thought...
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aramey New - Neurolosist Needed
Hi,I am 20 years old and am moving to either Parker, Colorado or Woodstock, Connecticut in April of 2010 (not sure which state yet). I was wondering is anybody could recommend a good neurologist in either of these areas as I have no idea where to start!!
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 phylis... New - Honor Epilepsy Awareness Month With YOUR Contribution
Ironically, I heard on the news that the Juvenile Diabetes Philadelphia branch was moving to new quarters to house their expanded staff. At the very same time, our branch of The Epilepsy Foundation was in the process of laying off employees because of...
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 lisab New - Deja vu
Hi, my name is Lisa and this is my first time posting. I am 39 years and a mother of two daughters. About 18 months ago, I had two experiences of deja vu. After the deju vu feeling passed, I had a strange feeling...
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 dfarrell |
kyrissa New - Embarrassed
I know that I don't need to feel this way, but I am embarrassed to admit to others that I have seizures. I am concerned that they will "freak out" like most of society does with epilepsy due to thier lack of control on situations. I have also...
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Ginger... New - Changing prescription from Keppra to Dilantin
I recently lost my insurance and have been on Keppra and generic Keppra for the last six years. So far I haven't really had any problems with it but my dosage was recently elevated due to memory loss. After speaking with my doctor, through his nurse, and...
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monkyh... New - Epilepsy or anxiety - how do I know and what do I do?
Hi there.
I am new to this forum, and unsure whether I actually have epilepsy or not. I am hoping someone will be able to read my story, and tell me if they experience their attacks in a similar way or not.
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 JIMBOMC New - Aneurysm growth
I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this...
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 ETP New - Are you an ETP Champion?
Epilepsy Therapy Project Champions are people in our epilepsy community who are out fundraising for our organization to support research for new therapies to help people living with epilepsy and to support education through epilepsy.com.
The following people...
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 epi_help |
missju... New - Lamictal and hair loss
My neurgologist just switched me from tompiramate to lamictal 200mg and I am very worried about hair loss as a side effect. I lost about 1/4-1/2 of my hair on topiramte and I seem to get every rare side effect there is out there on medications for some reason....
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FS New - New to epilepsy- Anyone wonder if you have non-epileptic seizures?
Hi everyone!
I was diagnosed with epilepsy about 2 years ago (I'm 31 now). My first few attacks were night seizures, the only indication i had was that i had wet the bed both times. Soon after, i had 4-5 seizures in succession in the span of 1 day and have...
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therag... New - Problems with male libido
The male libido is something that men consider as the sexual desire that they might have for someone.Many people suffer nowadays from low levels of libido meaning that for different reasons, men might not have a desire to have sex at all.Companies are offering...
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Cory7 |
mamato... New - post seizure Vomiting
Hello...I am new to this site...my son may have petite mal seizures....since finding out that this may be true, we have been noticing a few things recently....the one I have that is most standing out is Vomiting....when sleeping he...
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rc6002 New - Anyone have good results with Lamictal
Gosh seems like a lot of folks have not had good results with Lamictal. My son is changing from Tegritol to Lamictal (a long process). He is currently at 300 mg a day Lamictal and will have a blood test this...
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 millac... New - Lesions in the brain
Almost a year ago my boyfriend had several massive seizures in his sleep WHILE taking his depakote. He went into the doctors to be observed, they did a cat scan, and found a lesion in his brain. We've gone through test after test, seen many different doctors,...
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 mark_88 |
sparkbird New - Gardasil, car accident, stress, PTSD, seizures?
Hi,
I finally signed up after browsing the forums here for a while and I had some questions wondering if anyone can relate to what's going on with me.
Back in 08 I started reciving the Gardasil shot. A series of 3 shots to help protect against HPV...
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Newyor... New - A dream or a seizure?
I've had this dream for years and I had it again yesterday. Now I'm starting to think it may be a seizure. Actually, it's not the same dream, it's just that the result is always the same. I'll be out walking somewhere in a crowd or something and then suddenly...
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KJL74 New - Seizures and hormones
I am 35 years old and I have petite seizures right before and during my period. This started in high school but recently it seems like it is becoming worse and more often. I've read about people taking birth control pills or taking other meds 14 days out...
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 nikida... New - Gaining weight since I went off Topamax
I was on both Topamax and Lamictal for a long time. My dr took me off topamax b/c I want to have a baby in the next year. Since then I gained 10-15 pounds. I also quit smoking. I want to know if anyone has gone through this too?
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Zoogirl |
 KATHS2 New - Running out of Options
First a short history..I'm 54 years old. I was diagnosed with Complex Partial Seizures 2 years ago, though I've probably been having them all my life, especially during my teenage years...My seizures consist of a strange aura, dizziness and fainting....
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stephof3 New - Hi they want to take my daughter off her meds. not sure what to do
Hi I am new to this but my daughter is going to be 18 soon and the doctor wants to take her off of her meds, She has petit mal seizures so they ask if she has had any and I really don't know. She also has learning delays so sometimes she may not tell me...
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Nicole D New - Burning sensation in head
Hello, I was diagnosed with Complex Partial Seizures in my left temporal lobe about two months ago by two different neurologists; they both suggested Keppra. I started taking the regular Keppra twice a day and was not doing well on it.
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LMAugu... New - Our son was diagnosed today with Benign Rolandic Epilepsy (BRE)
Our 4 y.o. was diagnosed with BRE. He has had 3 seizures, 2 in June (on the same day) and one in July. Both times he was extremly tired and riding in the car. He was about 30 min. in to his sleep with each seizure. The first two in June were about 30 sec....
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myluck... New - keppra and burningand or itching in the head
has anyone who has ever taken keppra experienced burning or itching in the head?? not the scalp
also i can not seem to tolerate the generic very well. are the fillers in the medication different? i take 500 mg
1/2 tablet 2 times a day . any...
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zyn |
 Lauren... New - The Reasons not to consume alcohol or smoke marijuana if you have...
It is a common question on this forum and a frequently asked one in the chat room whether or not it is "ok" to consume alcohol or smoke marijuana when you have been diagnosed with epilepsy or a seizure disorder. I am here to tell you all something...
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 bleedi... New - Seizure Alert Dogs
A family member asked me what is the purpose of a seizure alert dog. I don't have one and I don't need one. I basically said the dog is there to protect a person with epilepsy in the case they have a seizure in public and that it is for people who don't...
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 remedy... New - Myths About Epilepsy
Many people have written essays about conventions and beliefs in epilepsy that have been passed through generations to generations. These beliefs mostly include superstition and misconceptions that make epilepsy sound worse than it should be.
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 cjad234 New - Epilepsy and marijuana
Hi all, I was wondering whether or not the effects of pot on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have adverse effects on the drug's treatments and can...
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Anonymous New - UPDATED: Can they legally fire me???
Thank you to everyone who replied to my thread. I am one of the luckier ones, because as I know now, my boss just has "a way with words" and sometimes says things without thinking about how they come across.
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Shadrak New - Is this Aura???
My name is Jordan I'm a 22 year old Male. in may or june of 2006 something happened to me that I've never forgotten. I've also neve known what it was. I'll discribe it and hopefully someone can relate:
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CoalMi... New - I thought I was doing so well!!
I was diagnosed with Temporal Lobe Epilepsy in August after suffering a grand mal seizure in late July. For a year and a half I had been having simple and complex partial seizures each month (right around my period) but never had a clue it was actually...
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 Maxkat New - Seizures caused by abdominal pain?
Has anybody else every experienced a seizure caused by intense abdominal cramping?
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Chalupa New - Anyone else waiting for their child to 'outgrow' their seizures a...
My now 5 year old son was diagnosed with partial complex seizures a little over a year ago. He has experienced about 20 seizures, all of which last 1-2 minutes and happen in clusters of 2-4 over a week long period always precipitated by a cold (ie. fatigue). ...
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 MichaelK New - Can exercise induce seizures?
All the doctors disagree with me because of the research out there but I gave up running last June because I had a seizure while running. I suddenly collapsed, right before I was going to cross a busy street.
The doctors argue that aerobic exercise is especially...
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mark_88 New - Headed for surgery today!
anxiously awaiting to get there....im leaving to go to london, ontario for my brain surgery (temporal lobectomy) today and ive been waiting for so many years for this day!!! 21yrs in the suffering of comlex partials and 3 grandmals throughout my life and ...
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