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brittnyh New - Grey Matter Heterotopia Created by brittnyhat1/30/10 - 4:28 pm|88 Views|13 Comments Posted To: New to Epilepsy.com I am 35 and recently found that I have grey matter heterotopia. I am currently on seizure meds that have made the seizures less harsh but I still get them. I have memory loss, confusion, dizzy spells (head-rushes), body numbness, tingling, vision impairment...
prayin... New - My boyfriend has epilepsy...OUR STORY Created by prayin...at3/19/10 - 12:01 pm|17 Views|2 Comments Posted To: Families & Friends The Story of Angelina & James....and epilepsy
bridgey95 New - Very depressed, unstable and angry Created by bridgey95at3/19/10 - 7:26 pm|12 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues Hi,   I have had epilepsy 15 years. Uncontrolled the whole time. I am on a new medication Vimpat and a birthcontrol (Ortho Micronor since I have catamenial epilepsy) I am to the point right now where I am 28 years old, totally dependent on...
tara m... New - Does Epilepsy Get Worse With Aging? Created by tara m...at3/18/10 - 10:29 pm|24 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues Hi All, First, I should explain that I have been diagnosed nearly twenty years ago with JME, and that it originates in my Occipital Lobe. I experience tonic-clonic, myoclonic jerks, as well as absence seizures. I stopped taking my medications regularly...
kristikay New - IPhone App Created by kristikayat3/13/10 - 6:03 pm|42 Views|5 Comments Posted To: My Epilepsy Diary Help & Feedback I read in a Neurology Now Journal about a seizuretracker app for IPhone. I was pretty excited. However, I searched the app store under every possible name and there is no app. Then when I was setting up my Diary on here I saw that you can also transfer it...
amysus New - Considering surgery for temporal lobe epilepsy-help! Created by amysusat3/18/10 - 3:38 pm|31 Views|6 Comments Posted To: Surgery Issues
jbmom New - Does anyone really know what the unerlying problem is causing yo... Created by jbmomat3/19/10 - 7:30 pm|5 Views Posted To: Living With Epilepsy - Youth Issues My 6 yr old son who started having seizures at 22 months old, was fairly stable until 12/ 18/09 and since then has had 12 seizures and no one can identify the underlying cause. We are tired of treating the symptom and want to treat the problem. Anyone w/ similar...
blueba... New - Military and Epilepsy, my rights Created by blueba...at3/18/10 - 11:06 am|14 Views|2 Comments Posted To: Veterans with seizures Hello, I am active duty Navy currently and experienced my first grand mal seizure in Sept. 2009. I am been on Limited Duty since then, and will be getting Med Boarded as soon as the results of my 48 hr EEG are analyzed. I am currently at home doing the 48 hour EEG.
Mikey4 New - Deja vu and Epilepsy Created by Mikey4at9/6/08 - 4:09 pm|309 Views|21 Comments Posted To: Diagnostic Dilemmas and Testing Ok I'm going to give a short version and a long version, as the long one might be too long for many... SHORT: -I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny...
Laura B New - Lamotrigine/ lamictal and contraception Created by Laura Bat3/5/10 - 2:59 am|32 Views|4 Comments Posted To: Women With Epilepsy Hi  I am trying to find a suitable method of contraception, i am particularly interested in the implant/ implanon. There is some confusion as to whether it will work effectively whilst i am using lamotrigine as it may stop the hormone from working...
remedy... New - Myths About Epilepsy Created by remedy...at11/4/09 - 11:49 pm|79 Views|5 Comments Posted To: Advocate for Epilepsy Many people have written essays about conventions and beliefs in epilepsy that have been passed through generations to generations. These beliefs mostly include superstition and misconceptions that make epilepsy sound worse than it should be.
epi_help New - Welcome to My Epilepsy Diary! Created by epi_helpat10/31/09 - 4:53 am|108 Views|10 Comments Posted To: My Epilepsy Diary Help & Feedback Hi everyone!
kjcana... New - Aura, or something unexplainable! Created by kjcana...at3/14/10 - 10:40 pm|65 Views|10 Comments Posted To: Living With Epilepsy - Adult Issues Hi, Ive had epilepsy for the past 18 years now.  Most of the time well controlled. About 4 years ago I became immune to Tegretol so I was switched to keppra and lamictal. I had been seizure free for over a year until a little over a month ago. I had a seizure...
rootbe... New - how to get the glue out of your hair Created by rootbe...at12/12/05 - 7:30 pm|6308 Views|24 Comments Posted To: Corner Booth As a hairdresser for 20 something years i learned a trick or to. To help you remove the glue from your hair after an E.E.G try this 5 to 7 asprin crushed Half a cup hot water dissolve asprin in water, 2 good size squirts of shampoo,...
aly_m New - lamictal causing headaches? Created by aly_mat6/5/05 - 4:15 pm|1882 Views|14 Comments Posted To: Medication Issues For some reason I have been getting really bad head aches just out of the blue. do you think it could have anything to due with me taking lamictal, or maybe related to have epilepsy? I would really appriciate any responses!! thanks!-Aly...
knickn... New - help ive got pseudoseizures Created by knickn...at11/5/08 - 2:34 pm|61 Views|5 Comments Posted To: Living With Epilepsy - Adult Issues hi my name is danielle and im 23 years old. ive been having seizures and blackouts for just over 10 years and i have been to c every doctor and have had every test possible but only recently just been diagnoised with having pseudoseizures. i am having trouble...
Lexx New - Disability... Created by Lexxat3/13/10 - 3:55 pm|101 Views|12 Comments Posted To: Diagnostic Dilemmas and Testing Hi. I'm fairly new to the site but have had complex partial seizure disorder for at least 25 years now. I'm 38 years old and I take the generic version of tegretol at 800mg/day but usually end up taking up to 1200mg/day. I was originally on the name brand...
tiff_25 New - Anyone experience memory loss? Created by tiff_25at8/2/09 - 1:17 pm|1189 Views|158 Comments Posted To: Living With Epilepsy - Adult Issues I have read a lot of stories on here, and havent seen anyone mention having memory loss since being diagnosed with epilepsy. I feel as though my memory has become much worse since being diagnosed in Jan 2009. I have been on Lamictal/Lamotigrine since, increased my...
garye New - Probable (75%) partial onset (possibly temporal lobe) with second... Created by garyeat3/18/10 - 11:32 am|23 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues Background Male, 42, very active, very healthy. Drink lots of water. Non smoker, social drinker, non drug user. No head injuries in the past. No birth problems. No family history of epilepsy. Fairly stressful period the last 2 years,...
elly New - Myoclonic jerks occuring in the evening? Created by ellyat11/1/07 - 10:10 am|526 Views|27 Comments Posted To: Diagnostic Dilemmas and Testing Hi, I have never posted on here before but I am a bit freaked out and everyone seems to know so much I was hoping someone could help me! I was diagnosed with Juvenile myoclonic epilepsy almost 3 years ago (I am 23 now). I had been...
Its Me New - Still Alone Created by Its Meat3/16/10 - 12:44 pm|31 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues I have been looking for someone to date and one day get married.  My epilepsy had gotten in the way. One of the first things I let a guy know is of my condition, just in case a seizure comes up in the mist of a date.  I will not say it right away,...
Lauren... New - The Reasons not to consume alcohol or smoke marijuana if you have... Created by Lauren...at6/6/09 - 10:02 pm|623 Views|56 Comments Posted To: Living With Epilepsy - Adult Issues It is a common question on this forum and a frequently asked one in the chat room whether or not it is "ok" to consume alcohol or smoke marijuana when you have been diagnosed with epilepsy or a seizure disorder. I am here to tell you all something...
kelvin New - AM FREE FROM EPILEPSY...TRY IT TOO Created by kelvinat3/17/10 - 5:10 am|32 Views|4 Comments Posted To: Living With Epilepsy - Adult Issues I cant beleive this will ever happen to me...i met a man when i travel to africa for business purpose last year and i told him that am suffering from epilepsy and he helped me to cast a spell,,i dont really beleive that the spell will work in the first place...
yvonnel New - What happens postictally? Created by yvonnelat12/28/08 - 12:29 am|36 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues I have JME, so my seizures are infrequent and happen shortly after waking.  My last seizure, I remember looking at the clock and seeing that I should have been at work a half hour earlier.  At first, I thought I had simply overslept, but the soreness throughout...
beccalf75 New - SPS Symptom Question Created by beccalf75at3/18/10 - 8:55 pm|5 Views Posted To: New to Epilepsy.com
randij... New - Can you get supplemental insurance with Epilepsy? Created by randij...at3/18/10 - 8:18 pm|2 Views Posted To: Insurance Issues Hello! I am just out of University, off of my parents health care, and going on to new health care at my future employers. While on my current healthcare, I just pay a standard copay, United (my future insurance company) is saying that I'm going to have...
phylis... New - New Brain Wave Therapy for Epilepsy, Pain, Parkinson's and More Created by phylis...at3/18/10 - 3:25 pm|3 Views Posted To: Living With Epilepsy - Adult Issues This breakthrough news comes from Bottom Line Health:  http://view.ed4.net/v/7M9FCP/AMBZC/NJFCYV3/PX9WX/MAILACTION=1&FORMAT=T
phylis... New - New Brain Wave Therapy for Epilepsy, Pain, Parkinson's and More Created by phylis...at3/18/10 - 3:24 pm|2 Views Posted To: Living With Epilepsy - Adult Issues This breakthrough news comes from Bottom Line Health:  http://view.ed4.net/v/7M9FCP/AMBZC/NJFCYV3/PX9WX/MAILACTION=1&FORMAT=T
evans_... New - Can't find the source Created by evans_...at3/18/10 - 10:59 am|8 Views Posted To: New to Epilepsy.com
jenbren9 New - Epilepsy and Pregnancy Created by jenbren9at1/4/10 - 6:16 pm|66 Views|9 Comments Posted To: Living With Epilepsy - Adult Issues
kattat... New - Lamictal Side Affects and TTC Created by kattat...at3/9/10 - 6:29 pm|26 Views|2 Comments Posted To: Women With Epilepsy Hello everyone :)
sonjad... New - Topamax Dizziness Lasts All Day Created by sonjad...at3/17/10 - 10:02 pm|16 Views|3 Comments Posted To: Medication Issues My doctor put me on Topamax recently. I started taking it about 2 weeks ago. I was taking 25mg the first week, then 50mg the second week and this Friday I am supposed to go up to 75mg and then to a max of 100mg the week after where I am supposed to stay for...
Online... New - TOPAMAX - Side Effects - Taste Perversion (Soda/Soft Drinks) TRY ... Created by Online...at12/20/09 - 7:02 pm|39 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues Having just turned 40 and recently been diagnosed with TLE seizures both Simple and Complex Partial.  I was started on Topamax which seemed like a good choice since I have also suffered with migraines for many years.  It has only been 6 weeks since I started...
sparkbird New - Gardasil, car accident, stress, PTSD, seizures? Created by sparkbirdat8/4/09 - 8:16 am|103 Views|13 Comments Posted To: Living With Epilepsy - Adult Issues Hi, I finally signed up after browsing the forums here for a while and I had some questions wondering if anyone can relate to what's going on with me. Back in 08 I started reciving the Gardasil shot.  A series of 3 shots to help protect against HPV...
Shakey... New - Hysterectomy reduce seizures?? Created by Shakey...at3/18/10 - 9:36 am|7 Views Posted To: Women With Epilepsy Good morning ladies... I like, many of you, have catamenial epilepsy.  My seizures are completely controlled except for 1-7 days before I start my period.  I have been on several different meds and several different combonations of meds for several...
katesisco New - Epilepsy at 60? Created by katesiscoat12/12/09 - 11:37 am|11 Views|1 Comment Posted To: Living With Epilepsy - Adult Issues Have done the eeg and now wait; first for the emergency room dr to review his tests, then forward to my internist. Took 60 years for what must be simple partial to morph into complex partial.  Fell out of a moving car when I was 3, just kept in family,...
rokchik1 New - Temporal Lobe Epilepsy: what does it feel like? Created by rokchik1at6/6/09 - 10:00 am|256 Views|18 Comments Posted To: Diagnostic Dilemmas and Testing Hi Everyone! This is my first time on this site and I am glad to have found you all!  I was "diagnosed" with Temporal Lobe Epilepsy 18mths ago following years of strange symptoms, 3 abnormal EEG's and an MRI which showed a leision in the...
HERMESIEL New - Having a HUGE INSURANCE ISSUE!!! I need suggestions... PLEASE Created by HERMESIELat3/16/10 - 6:58 pm|61 Views|14 Comments Posted To: Insurance Issues Hi folks, I will be losing my insurance in May, and I am taking Lamictal XR ( 800 mil per day) and I am having a HARD TIME trying to find a Health insurance provider that will cover me as soon as I enroll for it. Mostly everyone wants me to wait 12 months...
barn619 New - Not a candidate for brain surgery - now what? Created by barn619at2/14/09 - 10:02 pm|100 Views|8 Comments Posted To: Complementary Therapies Hi,
Silver5 New - heart pacemaker and VNS?? Created by Silver5at3/18/10 - 6:22 am|2 Views Posted To: Surgery Issues Hi everyone,
victor... New - Ecstatic Seizures Created by victor...at8/27/09 - 4:32 am|3953 Views|394 Comments Posted To: Living With Epilepsy - Adult Issues  Hi Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual"...
callpaul New - ALTERNATIVE CURE FOR EPILEPSY. Created by callpaulat3/17/10 - 1:47 am|34 Views|6 Comments Posted To: Epilepsy.com Help  my name is paul frombaltimore ...Ive been epileptic since my childhood and it had caused me so much embarassment, so much pain, it even happened a few times when driving.. i tried all solutions ...spent thousands of dollars with no visible result , and my...
Anie New - Low sperm count...anybody? Created by Anieat3/20/07 - 11:17 am|934 Views|20 Comments Posted To: Men With Epilepsy Hi. I read on this website that AED,specially carbamazepine and phenytoin, affects sperm count,sperm mobility,fertility etc. Has this affected any of you or anybody you know? What did you do about it? I need advice. Thank...
sophie... New - Infantile Spasms- ACTH Created by sophie...at3/17/10 - 3:08 pm|8 Views|1 Comment Posted To: Medication Issues hiya everyone, my names mairi and my daughter sophie started taking seizures at 6weeks, we are not about 10weeks down the line and the seizures are still not under control. she was diagnosed wrongly to start with myoclonic epilepsy and put...
dav1dh New - Left Temporal Lobe surgery Created by dav1dhat3/10/10 - 10:02 pm|32 Views|3 Comments Posted To: Surgery Issues Hello, First off, I have Complex Partial seizures. I have had eplipsy for 10 years.
Ephraimh New - Keppra, Lamictal, and Mood Created by Ephraimhat3/17/10 - 8:14 pm|3 Views Posted To: Medication Issues A neurologist told me that a longer-acting or lasting version of Keppra and Lamictal might cut down on the enormous fatigue that takes a hold of me about two hours after I take my drugs.  I take 1250 mg Keppra & 600 mg Lamictal, twice daily, once...
bempey New - vns surgery Created by bempeyat3/9/10 - 3:58 pm|10 Views|2 Comments Posted To: Living With Epilepsy - Adult Issues We are considering the vns for my daughter who is 36.  She has had seizures since she was 1.  Any ideas on ways to pay for the vns surgery if medicaid denies it.  This is our last hope.  Side effects of meds are almost unbearable.  Thanks,   Brenda
jopeart New - Sleep Deprivation Grand Mal Seizures? Created by jopeartat12/13/04 - 2:56 am|4927 Views|38 Comments Posted To: Living With Epilepsy - Adult Issues I suffered a grand mal seizure a year ago, and following all the tests over the next six months, was diagnosed not...
phylis... New - Deeply Discounted Drugs Without Insurance Created by phylis...at3/17/10 - 3:54 pm|8 Views Posted To: Medication Issues Believe it or not, you can save BIG bucks at the drugstore around the corner (some prescription, some generic and some of both, depending upon the pharmacy) if you just do a little homework... Costco Member Prescription Program -- offers a discount...
shelti... New - Ketogenic diet and epilepsy cure Created by shelti...at3/16/10 - 11:16 am|14 Views|3 Comments Posted To: Living With Epilepsy - Adult Issues I'm wondering if anyone has tried the ketogenic diet with good success?  I think this research is really exciting and thinking I will definitely try it.  Wowza -- 3 months on this diet, and 33 to 50% chance I could go off meds?!  Why aren't more people...