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VNS Surgery

If you (or your loved one) have had a vagus nerve stimulator implanted, what happened after it?

no more seizures
5% (11 votes)
helped control seizures a lot
33% (72 votes)
helped a little bit
35% (76 votes)
didn’t help at all
16% (35 votes)
worse off
10% (22 votes)
Total votes: 216

View results
View past poll results

Community Forum

Get started in the Community Forum by browsing through the Forum Topics or Recent Forum Activity, below. If you are logged in, you will see "Reply" links on individual discussions encouraging you to join the conversation! Alternatively, to start your own discussion, simply click the "Start a Discussion" link below. If you are not logged in, register now! Learn more about joining the Community Forum, including starting your own discussions, in our Community Forum Help Section.

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Forum Index

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DiscussionsComments
New to Epilepsy.com
A place for newcomers to the site. Stop by and introduce yourself.
13096166
Living With Epilepsy - Adult Issues
A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.
187212846
Living With Epilepsy - Youth Issues
A place to share questions, concerns and challenges in coping with children's seizures and life issues.
2831430
Diagnostic Dilemmas and Testing
A place to ask questions about EEG's and other tests and to share your experience with the diagnostic process.
4452038
Medication Issues
A place to share concerns, experiences and challenges about medications for seizure management.
12306997
Surgery Issues
A place to share concerns, experiences and challenges about surgical treatment and use of devices for epilepsy.
3182075
Complementary Therapies
A place to share concerns, experiences and challenges about alternative or complementary therapies.
111796
Parent Group
A place for parents to learn and get support from other parents of children with epilepsy.
7173670
Families & Friends
A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.
6123771
Women With Epilepsy
A place for women - to share concerns, experiences, and support about issues unique to women with epilepsy.
4372974
Men With Epilepsy
A place for male bonding - to share concerns and experiences of being a man with seizures.
49337
Veterans with seizures
A place for veterans with seizures or family members to meet and share experiences and concerns.
00
Teen Group
A place for teens with seizures to talk with each other, share experiences and support, or just hang out!
2101290
Advocate for Epilepsy
A place to share concerns and strategies for making your voices heard about epilepsy.
39192
Insurance Issues
Concerns and strategies for accessing insurance and Medicare Part D
32138
Products, Resources, Helpful Links
Users are invited to share products, equipment, resources and helpful links that users may find interesting for people with epilepsy, loved ones, and caregivers.
56295
Corner Booth
A place to stop by, socialize and check in with each other. Kick back!
4123467
Creative Corner
Share your creative talents! A place to add your poetry, songs, writings for all to see. (Authors should be attributed properly!)
1567
Epilepsy.com Help
A place to ask questions about the site or to provide feedback to site administrators.
185921

Forum Activity

 
Gina M...
Gina M...
New - Say What?!
Created by Gina M...at5/9/08 - 12:22 pm|12 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
Think one thing, write or say another, ever get this?
dianeguse
dianeguse
New - anyone w/ simple partial seizures?
Created by dianeguseat5/8/08 - 2:23 pm|20 Views|3 Comments
Posted To: Diagnostic Dilemmas and Testing
is there anyone out there that can tell me what a slowing in the back of my brain is? this is what my EEG said. the doctor doesn't know if i'm having migraines or seizures. i have auras but i don't get a headache. my auras are somewhat relaxing, a little...
aodonald
aodonald
New - 4yo w/ absence seizures and HORRIBLE behavior
Created by aodonaldat5/9/08 - 1:29 pm|4 Views
Posted To: Medication Issues
hello my name is Amy. I have a 4 year old son who was diagnosed with absence seizures about 3 years or so ago but i never put him on medication till about 1 year ago i just sort of hoped he would out grow his seizures and when he didn't get better or worse...
katfaerie
katfaerie
New - epilesy and depression and tinitis
Created by katfaerieat3/6/08 - 8:51 am|45 Views|3 Comments
Posted To: Living With Epilepsy - Adult Issues
is anyone else depressed? do you take meds? if so what. does anyone else have constant tinitis? mine began after my first complex partial with generalization grand mal seizure 10 years ago and was put on dilantin. it had not stopped since. despite...
dknight
dknight
New - Easiest tolerated Med for complex partial seizures?
Created by dknightat5/8/08 - 10:35 am|26 Views|6 Comments
Posted To: Medication Issues
I reacted to Trileptal. I am trying to build up to the fully prescribed dosage of Topamax but spent all day yesterday feeling bloated and experiencing frequent urination. I was very embarassed at church during the Wednesday evening service because I went out...
Jessic...
Jessic...
New - Q's about Topamax??? Anyone have a few answers???
Created by Jessic...at5/5/08 - 8:57 pm|55 Views|10 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello! Haven't been on in a while.   Well, my dr. put me on Topamax to help the sz and my head. and my face is numb(like when you go to the dentist) my eyes are twitchin like crazy, my fingers feel like needles are in them and arms and legs...
jen_boi
jen_boi
New - Siezures and Amnesia
Created by jen_boiat4/20/08 - 7:20 am|60 Views|10 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello my name is Jen. I had a two, we think, seizures on Friday. I woke up and could not remember anything such as name, birthday, people, events, so nothing. I went to the hospital and had an xray and cat scan both normal. My girlfriend says it is like...
Stefan...
Stefan...
New - 3 year old on Keppra
Created by Stefan...at4/23/08 - 6:06 pm|22 Views|5 Comments
Posted To: Living With Epilepsy - Youth Issues
My 3 year old has been on Keppra for over a year and it seems like her outburst get worse!  I don't know if it is her being her 3 year old INDEPENDENT self or maybe the Keppra.  I am not one to use her medication as a crutch and I just think it is just...
nire5
nire5
New - Husband's Libido
Created by nire5at4/29/08 - 12:25 pm|15 Views|1 Comment
Posted To: Medication Issues
Hi to you all-
nire5
nire5
New - Husband's Libido
Created by nire5at4/29/08 - 12:23 pm|33 Views|4 Comments
Posted To: Living With Epilepsy - Adult Issues
Hi to you all-
Gina M...
Gina M...
New - Brain electricians on notice to be fired.
Created by Gina M...at4/16/08 - 9:31 pm|318 Views|57 Comments
Posted To: Living With Epilepsy - Adult Issues
There is me. And then there is my brain. My brain and I are not on speaking terms. So, that said, I'd wish to have my brain kidnapped, brainwashed, and reprogrammed so that It and I can finally come to some sort of understanding. During this process...
stephs...
stephs...
New - Simple Partials in Both Arms?
Created by stephs...at5/7/08 - 6:00 pm|18 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Does any one experience simple partials in both arms? Before last week, I also just had focal szs in my right arm, and only during the night. But now they're happening during the day and with a vengeance. My left arm will go stiff - that's my dystonic...
Gina M...
Gina M...
New - Suggestions on how to deal with flickering lights?
Created by Gina M...at5/3/08 - 9:24 pm|128 Views|23 Comments
Posted To: Living With Epilepsy - Adult Issues
I would like to know if anyone has any suggestions about how to deal with flickering lights and terrible patterns that cause seizures?
puremo...
puremo...
New - Thanks for your answers
Created by puremo...at5/9/08 - 1:28 am|4 Views
Posted To: New to Epilepsy.com
puremo...
puremo...
New - Thanks for your answers
Created by puremo...at5/9/08 - 1:28 am
Posted To: New to Epilepsy.com
cjad234
cjad234
New - Epilepsy and marijuana
Created by cjad234at2/5/05 - 9:32 am|14023 Views|102 Comments
Posted To: Complementary Therapies
Hi all, I was wondering whether or not the effects of pot on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have adverse effects on the drug's treatments and can...
justme222
justme222
New - Epilepsy telemetry
Created by justme222at5/8/08 - 9:39 pm|2 Views
Posted To: New to Epilepsy.com
Hi, Can anyone tell me more about this topic.  My neuro wants me to have one, but apparently it involves a 4 day stint in hospital and I have to take a friend in with me for the whole duration.  Why the 4 days in hospital? and why the need for...
urban
urban
New - “THEY LIED TV SPOT”
Created by urbanat5/8/08 - 9:21 pm|6 Views
Posted To: Products, Resources, Helpful Links
Latest to hit the CNBC airwaves…maybe they should’ve hired Martha Stewart for the TV spot J http://www.iwantmyphonefactor.com
bmtmcd
bmtmcd
New - Ketogenic diet centers
Created by bmtmcdat5/8/08 - 7:54 pm|3 Views
Posted To: Complementary Therapies
  My infant daughter has myoclonic epilepsy. We are looking for an epilepsy center on the east coast that offers the ketogenic diet. Especially in the Mid-Atlantic states. If anyone has had a good experience with any of the centers, and can recommend them,...
ValNew...
ValNew...
New - Fructose corn syrup trigger seizures
Created by ValNew...at4/20/08 - 5:07 am|21 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
My son is on 400 mg of Topamax.  Last week he had 3 CP at school, after lunch.  Yesterday he had another one ("Bad one" as he puts it) in the morning, after having pancakes with Lite Syrup.  Aspartame definitely triggers seizures for him, could...
sandee...
sandee...
New - Can Epilapsy in children be cure ?
Created by sandee...at5/5/08 - 4:29 am|18 Views|1 Comment
Posted To: Living With Epilepsy - Youth Issues
kljagain
kljagain
New - What's going on?
Created by kljagainat5/8/08 - 11:57 am|10 Views
Posted To: Complementary Therapies
Haven't seen much posting on acupuncture or other forms of energy work, so I decided to post :-)
staticia
staticia
New - depakote er
Created by staticiaat5/8/08 - 9:11 am|10 Views|2 Comments
Posted To: New to Epilepsy.com
Hi everybody. I am new to this site, My daughter is 12 and was diagnosed with epiliepsy last September and was put on Depakote er. She is taking 500 mg a day. Lately i have noticed that she is very depressed angry and very moody. Her grades have dropped way...
jennif...
jennif...
New - Oily fish and seizure control- a miracle treatment for my daughter
Created by jennif...at9/23/05 - 9:21 pm|3961 Views|26 Comments
Posted To: Complementary Therapies
Last time I posted to this forum I was in despair over the seizures my daughter was suffering. My teenage daughter started having complex partial and simple partial seizures last year- she was having many a day. Now- just months later-...
just sam
just sam
New - article on epilepsy site invaded by hackers
Created by just samat5/8/08 - 3:31 am|31 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
I know this was discussed previously, but here's a link to the article about hackers invading the epilepsy site trying to provoke seizures in people who are photosensitive.  There is a also a poll, if you care to vote.  Epilepsy Site Posts Trigger...
epi_help
epi_help
New - Resources for VNS Therapy
Created by epi_helpat3/24/08 - 7:46 pm|315 Views|26 Comments
Posted To: Epilepsy.com Help
...
Dalia
Dalia
New - Topamax and losing hair?
Created by Daliaat4/22/06 - 3:36 am|1493 Views|11 Comments
Posted To: Women With Epilepsy
hello, im not new here but mostly im reading. I have a question if this happen with some of u. Im on Topamax - taking 150 mg par day and from few months i start to lost very badly my hair. Before i was on Lamictal and i never had...
kellys...
kellys...
New - Re: Keppra and mood swings
Created by kellys...at5/8/08 - 3:11 am|10 Views
Posted To: New to Epilepsy.com
  Hello Everyone, I am new to Epilepsy.com but read the reviews on a regular basis. At this present moment in time, I feel like I am banging my head against a brick wall. I was diagonized with convulsions when I was 2 years old and...
Chipsm...
Chipsm...
New - Could having hit his head pretty hard several times when he was s...
Created by Chipsm...at5/7/08 - 8:55 pm|6 Views
Posted To: Parent Group
Chipsm...
Chipsm...
New - Could having hit his head pretty hard several times when he was s...
Created by Chipsm...at5/7/08 - 8:53 pm|4 Views
Posted To: New to Epilepsy.com
My son is 21 months and has been having what appears to be absence seizures during the day and something the resembles night terrors with stiffening or jerking movements at night. He had a sleep deprived EEg on the 28th that was normal. Could having fallen...
melissaa
melissaa
New - Doctor wants him to switch from Dilantin to Lamictal
Created by melissaaat5/6/08 - 6:53 pm|68 Views|3 Comments
Posted To: Medication Issues
My husband is 37 and has been on Dilantin since he was 12   .  His seizures are under control but his doctor has ordered a MRiIto check for Cerabellum(spelling?) shrinkage and a bone density test.  The Dr. says of there is evidence of damage, he wants...
shirlsue
shirlsue
New - 6 yr old with issues of seizures
Created by shirlsueat5/7/08 - 10:19 am|21 Views|3 Comments
Posted To: Living With Epilepsy - Youth Issues
Little...
Little...
New - 21 month old son w/ epilepsy
Created by Little...at5/5/08 - 2:16 am|15 Views|1 Comment
Posted To: New to Epilepsy.com
We've suspected for a while that Owen's been having minor seizures (very minor-like he'll pause, his eyes roll into his head, and he goes on doing what he was doing. No major breaks in behavior or anything.) Friday we had an appointment with a pediatric...
rose0527
rose0527
New - On Keppra, Baby on the Way
Created by rose0527at2/1/08 - 4:06 pm|139 Views|18 Comments
Posted To: Women With Epilepsy
ladyMy08
ladyMy08
New - Seizure and strange activity
Created by ladyMy08at4/11/08 - 5:28 am|9 Views|1 Comment
Posted To: Women With Epilepsy
m-insane
m-insane
New - Is Jamias Vu always a seizure?
Created by m-insaneat5/6/08 - 10:20 am|31 Views|2 Comments
Posted To: Living With Epilepsy - Adult Issues
Ok so this is my second thread on the site (if you want to see my story got to thread "What Do I Have?) and although I'm medicated for the one grand mal I suffered and the countless petit mals prior to, does mild Jamias Vu necessarily constitute a seizure?...
jjsmum
jjsmum
New - my 41/2 month old having seizures
Created by jjsmumat5/7/08 - 5:56 am|10 Views|1 Comment
Posted To: Parent Group
marchetti
marchetti
New - my head
Created by marchettiat5/1/08 - 12:35 pm|19 Views|1 Comment
Posted To: Living With Epilepsy - Adult Issues
I have been diagnoised with grand mals recently. I found out the hard way that my black outs during my early years where indeed seizures. Now I am trying to figure out what to do with the part that my head hurts then shortly after that my head burns like it...
shinin...
shinin...
New - lamotrine and pregnancy
Created by shinin...at5/7/08 - 1:53 am|4 Views
Posted To: Women With Epilepsy
WendyB...
WendyB...
New - How exactly do aura's feel
Created by WendyB...at5/15/06 - 8:30 am|11986 Views|82 Comments
Posted To: Living With Epilepsy - Adult Issues
How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds....
melissaa
melissaa
New - Doctor wants him to switch from Dilantin to Lamictal
Created by melissaaat5/6/08 - 6:53 pm
Posted To: Medication Issues
My husband is 37 and has been on Dilantin since he was 12   .  His seizures are under control but his doctor has ordered a MRiIto check for Cerabellum(spelling?) shrinkage and a bone density test.  The Dr. says of there is evidence of damage, he wants...
zoester
zoester
New - 5 seizures in 3 days
Created by zoesterat5/6/08 - 3:54 pm|10 Views|1 Comment
Posted To: Families & Friends
my friend has gran mall seizures an is bipolar an an his meds is not working an ,he is 20 an has no insurance no mony an is his bipolar issues make it difficult to him any recommendation is appreciated
m-insane
m-insane
New - What do I have????
Created by m-insaneat5/4/08 - 10:23 am|47 Views|5 Comments
Posted To: Living With Epilepsy - Adult Issues
Hello everyone I'm new to the site and would just like to express my empathy for all of you brave fighters out there who struggle with this disorder. I am confused however and although I know a diagnosis over the internet is not practical, I was curious...
upanama
upanama
New - Keppra for kids
Created by upanamaat3/18/06 - 8:48 pm|1488 Views|21 Comments
Posted To: Parent Group
Hello, Very new 2 this, doctors want to put my 6yr old son on Keppra, anyone using this on their children? Thanks upanama...
JohnsWife
JohnsWife
New - Is Keppra making my husband angry?
Created by JohnsWifeat8/22/07 - 10:26 am|200 Views|12 Comments
Posted To: Medication Issues
About 3 months ago my husband (who was diagnosed with JME at 14 and is now 44) was switched to Keppra by his neurologist. He had been on Depakote ER for a number of years with pretty good seizure control but the side effects were...
queeniw
queeniw
New - new neurologist @hospital
Created by queeniwat1/27/08 - 9:48 am|83 Views|9 Comments
Posted To: Living With Epilepsy - Adult Issues
 Hi!  I am going to see my present neurologist for the last time at the end of this month.  Just want to change - he only feels surgery as an answer and I do not want to have it.  Any suggestions??  I live in Manahawkin, New Jersey and would be willing...
pdl1
pdl1
New - Possible cure for absence seizures
Created by pdl1at6/16/05 - 5:53 pm|15293 Views|91 Comments
Posted To: Medication Issues
I am an MD. My daughter suffered from temporal lobe partial absence seizures from age two. Many medicines helped but none were fully effective.Based on an article on congenital defects in lipid metabolism, I had the flash insight that...
happygirl
happygirl
New - Average Dosage of Keppra
Created by happygirlat3/20/08 - 3:26 pm|50 Views|6 Comments
Posted To: Medication Issues
Hi There, Hoping someone can advise me as to what a normal dosage of Keppra per day should be?  I guess what I am trying to guage is if I am on high or low dosage (1500 mg).  The side effects that I am experiencing right now are being really tired,...
brevan...
brevan...
New - Does anyone have positive results from ACTH treatment for infants?
Created by brevan...at12/15/05 - 6:51 pm|968 Views|4 Comments
Posted To: Medication Issues
When my son was about 7 months old his eyes started rolling back in his head and his head would jerk to the side for just a split second. He was just starting to crawl at that point and thank the Lord I was able to catch it on video...
Saint ...
Saint ...
New - College
Created by Saint ...at1/31/08 - 5:30 pm|43 Views|6 Comments
Posted To: Teen Group
So here's one for all of the seniors and Juniors in High-school... Who is scared of college? All my friends are so pumped for it and I joke around about and talk about all the parties. So I just sit there and smile and talk about it to and put on a fake act...