A place to get information and share information and ideas on the new Epilepsy Journal that is going to be published by epilepsy.com. This forum includes information on how to volunteer to be a part of it. THIS FORUM IS NOT FOR POSTING YOUR PERSONAL EPILEPSY STORIES.
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Forum Activity
 NikiPa... |
 xtortu... |
Amazon New - Normal EEG but continuing seizures
Hi,
I have been having e for the past 12-13 years. It was rather well-controlled with medication (phenobarbital) till about 6 to 7 months back, when it started again but with different characteristics. The characteristics changed again about a month...
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 Godiva... New - Surgery - How Long Is The Process?
Hi,
I have been stopping by and reading lots on surgery - I've also been looking at www.epilepsy.ca and London Science Center http://www.uwo.ca/cns/pages/programs/epilepsy.htm - where I'd get referred.
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 Nylrad New - After surgery difficulties with my work at a State agency; now at...
I'll try to be brief, but I woulld truly appreciate any input from someone like you. I have had grand mal and complex partial seizures since 1981. I am 52 years old now and I have been an employee at a South Carolina State agency for over 22 years. In...
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 galinda New - Weight Gain and Depakote
Okay so I went to see my neurologist yesterday and he told me some not so good things about my medicine. Well lately I've been gaining weight..but I exercise everyday for 20 to sometimes even an hour a day and I lift weights. ...
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 JayBri... New - Could I file for Disability?
Okay, first I'll explain what my form of E is like. I have simple partial. I'm always frozen unable to respond to my surroundings, my jaw makes shakes and movements, but I'm concious of sounds around me. They only happen as I fall to sleep or wake up...
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skyesmom New - Keppra Questions for Pregnant Folks...
Hey everyone! I'm a first timer to this site and this experience. I am 31 and 14 weeks pregnant with my second child. Ten years ago, when I had my first child, I had never had a seizure a day in my life. All the sudden on a hot summer day almost 4...
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chloe15 New - strobe lights
hey all,
i have epilepsy bout 5 yrs now,it used to be well controlled,but the last 2yrs have been torture...i havent been to a disco in bout a yr and a half bcoz of the strobe lights.....does any1 else hav r had that problem???
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 angel_lts New - Anti-Suffocation Pillows
Anti-Suffocation Pillows
Discount web site
http://www.sleep-safe.co.uk/id90.htm
These anti-suffocation pillows are made from a
pharmacist in the UK who had a son who had epilepsy.
There is 2,700,000 people in the U. S....
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speedy... |
nanny53 New - Wondering about Kappra
Hi. My 8-year old grandson had a seizure while sleeping in my lap. We suspect that he may have had 1 or maybe 2 more over a year ago. He had seizures associated with fevers when a baby. The last one was over 4 years ago. The neurologist suggested...
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travel... New - Uncontrolled E....PLEASE READ!.....and thank you all.
Hi! It's been awhile since I've been here and wanted to give you all an update. I want to first and foremost thank everyone who has ever posted here. You have all saved my life and helped me be strong and get through everything along with my sanity. ...
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riahc3 New - Trileptal and smoking marijuana
Hey
I am currently taking Trileptal (1 1/2 in the morning and 1 1/2 at night) and I use to smoke marijuana until I was told I had epilepsy after my second seizure. I believe my epilepsy is called chronic epilepsy. Ive had a total of 3 seizures (1 before...
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annesmith |
 cjad234 New - Epilepsy and marijuana
Hi all, I was wondering whether or not the effects of pot on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have adverse effects on the drug's treatments and can...
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 1never... |
 scott ... |
Mikey4 New - Deja vu and Epilepsy
Ok I'm going to give a short version and a long version, as the long one might be too long for many...
SHORT:
-I'm 23, have had 5-6 deja vu episodes in 3-4 weeks. Daydream alot and have fleeting thoughts of normal things seeming weird or funny...
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miyagi New - Can you will away a seizure?
Hi all,
I have been diagnosed with epilepsy (gran mal) since I was 16, I am now 30. I am not sure when this sensation began but over the last 2 years I have been feeling the "on-set" of what could be a seizure, but then I never have one. ...
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 ETP New - Are you an ETP Champion?
Epilepsy Therapy Project Champions are people in our epilepsy community who are out fundraising for our organization to support research for new therapies to help people living with epilepsy and to support education through epilepsy.com.
The following...
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edie New - PNES- NON EPILEPTIC SEIZURES
Hello there. I just wanted to know if there is anyone that is living with pnes... My sister has been told she has this and it is very confusing. I have done some research on this condition..but would like to hear from anyone who has this. I just have...
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lilith New - I think I'm having seizures, but i'm not sure
I was doing some research on sleep paralysis tonight, and i ran across some information regarding dejavu, and after several hours of reading, i find myself here, and scared witless.
I experience dejavu almost on a daily basis, sometimes several times...
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scott ... |
 bleedi... New - New job, trust, and interference
I started a new part-time job about three weeks ago. It seemed good at first; my boss respected my epilepsy, encouraged me, and was very polite. Over the weeks he has brought in another worker who obviously doesn't have my knowledge about the field; more...
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 madhat... New - Taking Generic Levetiracetam (Keppra?)
Anyone taking the new generic levetiracetam (Keppra)? For those who don't know the pharmaceutical company Mylan came out with it early November. I was just wondering if anyone taking it has any qualms or comments because I'm starting my regiment on Monday.
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 willhb... New - I know a temp agency that finds disabled people jobs really quick.
I went to Bender Consulting Temp Agency and they find jobs for people with disabilities all the time. They flew me to their office and found me a job in a week. There was another guy with epilepsy who flew there with me and they found us both a job at the...
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 anncha... New - Encephalopathy
Thursday, through Monday, I was at the Neurology Institute of Saint Barnabas Hospital, for contimuous monitoring by EEG and other testing. My neurologists prescribed this for me to find out more of what exactly are my seizures. The challenge was...
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 goddes... |
xalixo New - Hypoglycemia? Anemia? Dehydration? Or Epilepsy? You tell me!
Hi everyone.
What a good find this site has been. I need to know if any doctor or experienced person can tell me if seizures can be caused by any of the aforementioned conditions because i have taken an EEG, ECG and even Brain Scan test and nothing...
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 amyoon New - HAIR LOSS with Zonegran!! Doctor Says There's No Such Side Effect
Hi. I've been here before freaking about my hair. I was certain it was the Keppra that was making my hair fall out and be able to be swept up everyday. Now I've tapered off of it to the minimum amount and I am now going up on Zonegran. My hair is worse! ...
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 alexis00 New - How do you judge weight gain as a side effect? Also, anyone gain ...
Strange question but how do you know you gained weight BECAUSE of a med?
Do you gain a few lbs quickly and then stop or is it consistent weight gain over time until you change your meds?
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 Tabby New - Low medication tolerance
Hi all!
I just wanted to know if anybody else has issues tolerating any meds. I have simple and complex partial seizures, that are becoming worse day by day. I'm on trileptal 1500mg but its not enough to control my seizures. When the Neuro tried to...
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Chelse... New - 18 with seizures
Hi,
I have had 3 seizures (at least I think they're seizures, I am making an appointment to see a neorologist today) in the past 2 years. The first two happened while in an argument with my dad and the last one (two weeks ago) happened...
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ruthx New - advice on my blackouts/starting to look for answers?
Hi im new to this website and thought you could offer me some help.
To give you a brief story of why I have concerns, here goes...
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sas46 New - lamictal vs. generic
My daughter is 23 yrs old and has been on lamictal for 7 years and all has been perfectly fine. Recently the insurance company would not let her prescription be filled unless she had tried the generic brand name. She started taking the generic brand name Lamitrogine...
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henry199 |
adamss... New - any good experiences with trileptal?
Nothing like fishing for the answer you want, huh? Anyways, I am going on this this week, barring any totally unexpected EEG results....I already KNOW it can totally be horrible for some people, the way my other anticonvulsants were for me...I've already...
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jenlee... New - eeg results confusing me
Hello, I am new to the forum and very confused over my son's eeg. He is 13 with autism and severly mentally impaired. I just got the results to his eeg after he had a seizure last month while on vacation. It was the first seizure that we know of. The results...
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rock956 New - Topamax for JME/Myoclonus
Hi
Ive been taking Depakote/Epilim for the past 5 years. I am currently switching to Topamax. Is Topamax known to be successful at controlling the myoclonic jerks? Ive heard it is quite good at controlling the seizures but what about myoclonus?
Thankyou
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milesm... |
ljh New - Allergic Reactions to all medication!! Help!
Hello, I am the foster mother of a 13 year old boy and have been for over 2 years. He was diagnosed with epilepsy at the age of 8 and when he came to live with us at age 11 his epilepsy was well controlled on Tegretol and had been since the age of 8. ...
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 wldhrt13 New - Topamax Two-fer
I started this medication 2 weeks ago and am on 50 mg. will go up to 75 mg this Friday. was wondering at what dose will my seizures stop?
my second question is i havent really had too many side effects yet (knock on wood) when do the side effect...
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Godiva... New - To have surgery or not?
Hi All,
For those who know me from the past - yup, it's been awhile. Some know me as GodivaGirl, some gg, others Erin. Yup, it's been awhile. About a year ago now I moved away from my exboyfriend of 8 years (we were practically married) to move...
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kdyer New - 7 year old son with absence seizures...and now attention and lear...
My son was diagnosed as having absence seizures when he was 4 years old. We suspect that they began when he was 2 1/2 - 3 years old, we just didn't realize what his "eye rolling" was all about for a very long time. He was on several different...
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 megfrito New - Epilepsy Helmet Concept
I am a recent college graduate of the Milwaukee Institute of Art & Design. For my senior project I designed an epilepsy helmet. The product is currently only a concept. I am pursing grants to further my research and get a prototype under way. Please see my...
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reba |
avonla... New - Anti-seizure meds & speech problems
My son had his first seizure (grand mal) at age 12, his second almost a year later, and 3 more after that before he turned 14, each being closer together. Finally, a pediatric neurologist started him on the anti-seizure med, Depakote, which controlled his...
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daj New - Vimpat
Has anyone tried Vimpat yet? If so, will you share your experiences with it (good and bad), decision to take it or not, etc.? My doctor wants me to switch to it. Thanks so much!
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 MichaelK New - Wife doesn't think small seizures are important.
I suffer from several types of seizures, including simple partial, atonic, tonic-clonic, and complex partial. I have had E for over 27 years, but for the past 2 years I have had an abnormally high number of seizures. Tonight I had a simple partial seizure...
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