Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAY"The problem with all of the epilepsy treatments is that they are studied in adults first, and kids are not adults. We need to see if the same things work—sometimes they work better, sometimes they don't," says Dr. Eric Geller of St. Barnabas Epilepsy Center in New Jersey. "In reality, all medications work as well in children as they do in adults. The dosing needs to be different, and the side effects may be different. We need to assess them in kids and see how it is. It's the same thing for vagus nerve stimulation."
An early assessment of how well vagus nerve stimulation would work for children was performed in 1995 at the Children's Mercy Hospital in Kansas City, Missouri. For 2 to 14 months, these doctors followed the progress of 12 children with epilepsy that couldn't be controlled by seizure medicines or surgery. They looked at each child's overall status, the number of seizures, and the amount of medication the child took before and after the device was implanted.
The results? Encouraging. For 5 of the 12 patients, the number of monthly seizures was reduced by more than 90%. (A later report from the same hospital showed this result in 6 of 19 patients.) The general well-being of many children seemed to improve, and 4 of the 12 took fewer seizure medicines. Side effects were minimal. The doctors concluded that vagus nerve stimulation does not present problems for children with hard-to-control epilepsy, and it may have a role in their medical management.
However, they were unable to determine what specific kinds of epilepsy or seizures are helped most, so they called for more research.
Numerous studies have followed the one from 1995. In December 2001, doctors from the Children's Hospital in Denver, Colorado, reported on the results of vagus nerve stimulation in 19 children (ages 4 to 10 years) with generalized epilepsies. These were all the children under 12 who had a device implanted at that hospital during the 3 years beaÇ
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| Temporal lobe surgery | Aug 16, 2009 | |
| a_mkelly2000 | ||
| Positive Stories Only | Jul 27, 2009 | |
| onemarvy | ||
| Depakote, Behaviors, and personality | Aug 7, 2009 | |
| nytasha | ||
| 4yr. complex febrile but just had 2 seizures w/out fever please help! | Jul 26, 2009 | |
| krisnichole | ||
| Is anyone else like this? help! | Sep 20, 2009 | |
| Newyorkcita | ||
| Have you had a good experience with your VNS | Aug 1, 2009 | |
| yvonneloke | ||
| School problems | Aug 10, 2009 | |
| 4Jordie | ||
| Nanny with epilepsy | Oct 5, 2009 | |
| wjane | ||
| VNS, the good, the bad, and the ugly? | Aug 16, 2009 | |
| boosmomma | ||
| Has anyone tried Magnesium to stop seizures | Aug 12, 2009 | |
| loristewart | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Banzel/Keppra/Lamicital | May 23, 2012 | |
| mindyraa | ||
| Epilepsy, Keppra, OCD | May 23, 2012 | |
| AngelicScars | ||
| HAIR LOSS with Zonegran!! Doctor Says There's No Such Side Effect | May 22, 2012 | |
| amyoon | ||
| Weaning off of Dilatin | May 22, 2012 | |
| Katz | ||
| I think I just had a seizure??!!?? | May 22, 2012 | |
| msmith1997 | ||
| New | May 22, 2012 | |
| Luv2lern | ||
| VERY SCARED!!!!! | May 22, 2012 | |
| mamma0810 | ||
| Keppra and pain or swelling in joints? | May 22, 2012 | |
| no alleykat | ||
| Georgia Neurologist | May 22, 2012 | |
| rosanna1980 | ||
| lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding | May 22, 2012 | |
| reikihealer | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,241 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Bonnie's Blog | Sep 4, 2009 | |
| manzolini@comcast.net | ||
| Bonnie's Blog | Sep 4, 2009 | |
| manzolini@comcast.net | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Medicine adjustments | May 23, 2012 | |
| fashionlove45 | ||
| Hyperventilation & epilepsy, a way to help yourself. | May 22, 2012 | |
| buteykomike | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Epilepsy Surgery Group | May 10, 2009 | |
| lisam11463 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Trouble Waters | Sep 3, 2009 | |
| noels mummy | ||
| View all Stories | ||
| Title | Posted | |
|---|---|---|
| Is it Emotional | May 23, 2012 | |
| frustrated1965 | ||
| Adjusting with the thought of epilepsy after misdiagnosis for over 20 years | May 22, 2012 | |
| goofyheather | ||
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
