Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYOne of the Justice Department’s most innovative programs is the ADA Mediation Program through which complaints are referred to professional mediators who have been trained in the legal requirements of the ADA. This has proven to be an effective way to resolve ADA complaints at much less cost and in a shorter period of time than traditional investigations or litigation. From the program’s inception in 1994, more than 75% of the complaints mediated have been resolved successfully.
Highlights of recent mediations include:In Ohio, a person who uses a service animal to alert her to oncoming seizures was denied access to a medical center. The hospital, which had a written policy on service animals, agreed to educate its office staff about the policy, with particular focus on helping staff identify and work with people with non-apparent disabilities who use service animals.
The Justice Department announced the results of its investigation into conditions at Conway Human Development Center (Conway), in Conway, Arkansas, a facility that provides care for approximately 550 residents with developmental disabilities such as mental retardation, cerebral palsy, epilepsy, and autism, ranging in age from 11 to 66. The Department found substantial civil rights violations in the care provided to the residents of Conway and transmitted its findings in a letter from R. Alexander Acosta, Assistant Attorney General for Civil Rights, to Arkansas Governor Mike Huckabee. The letter concludes a 17-month investigation into the terms and conditions of residency at Conway. The investigation found evidence of egregiously deficient, and at times life- threatening, medical care, as well as deficient physical and nutritional management and therapy services. The text of the letter is available online at www.usdoj.gov/crt/split/findsettle.htm.
“Residents of such facilities are among our most vulnerable citizens, and all too often lack voice or representation in our public processes,” said Assistant Attorney General R. Alexander Acosta. “We will ensure respect for their civil rights.
According to the findings letter, the investigation revealed that, over the three months prior to her death, one resident experienced more than eight separate episodes of significant bleeding at the site of her colostomy bag, sometimes in amounts sufficient to spill blood onto her legs and soak her clothing. Yet, according to the letter, Conway staff failed to address the bleeding.
The Department also found evidence that the facility’s neurological care was critically deficient. A majority of Conway residents suffer from seizure disorders, yet the manner of prescribing anti-convulsant medications at Conway may in some instances have actually worsened residents’ seizure disorders. Especially disturbing was Conway’s failure to develop an accountable system for investigating resident deaths, particularly in light of the facility’s identified deficiencies.
The investigation also identified inadequate special education services provided to school-aged residents in violation of the Individuals with Disabilities Education Act. Actual daily instruction time was extremely limited, in some cases lasting as little as six minutes, and the content of class instruction was not educational.
Lastly, the Department alleges that some Conway residents were not being treated in the most integrated setting appropriate to their individualized needs as required by the Americans with Disabilities Act. A number of residents have lived at Conway for most of their lives without the state ever making any meaningful attempt to determine whether they could function in a more appropriate setting. Other residents previously identified for community placement, in some cases decades ago, have never been transferred back into the community.
Since 2001, the Department of Justice has opened 43 similar investigations into nursing homes, mental health facilities, juvenile justice facilities, prisons, and residences for persons with developmental disabilities.
Topic Editor: Steven C. Schachter, M.D.
Last Reviewed:8/18/04
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| Weaning off of Dilatin | May 22, 2012 | |
| Katz | ||
| I think I just had a seizure??!!?? | May 22, 2012 | |
| msmith1997 | ||
| New | May 22, 2012 | |
| Luv2lern | ||
| VERY SCARED!!!!! | May 22, 2012 | |
| mamma0810 | ||
| Keppra and pain or swelling in joints? | May 22, 2012 | |
| no alleykat | ||
| Georgia Neurologist | May 22, 2012 | |
| rosanna1980 | ||
| Banzel/Keppra/Lamicital | May 22, 2012 | |
| mindyraa | ||
| lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding | May 22, 2012 | |
| reikihealer | ||
| Weird Symptoms | May 22, 2012 | |
| Auburn | ||
| Can exercise induce seizures? | May 22, 2012 | |
| MichaelK | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,241 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Medicine adjustments | May 22, 2012 | |
| fashionlove45 | ||
| Hyperventilation & epilepsy, a way to help yourself. | May 22, 2012 | |
| buteykomike | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Adjusting with the thought of epilepsy after misdiagnosis for over 20 years | May 22, 2012 | |
| goofyheather | ||
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| Seizures under control | May 14, 2012 | |
| panteradee | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
