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Tue, 5/22/2012

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Neurologic and Metabolic Disorders

Angelman syndrome
www.angelman.org/
Angelman Syndrome Foundation, Inc.

Autism
www.autism-society.org/
Autism Society of America

Autism-PDD Resources Network
www.autism-pdd.net/
Autism-PDD Resources Network: Organization for parents of children with autism or the related PDD, pervasive developmental disorder. Includes state-by-state information and sample letters for dealing with school staff.

Cerebral cavernous malformations
www.angiomaalliance.org
Angioma Alliance is a non-profit international patient-driven organization serving those affected by cerebral cavernous malformations (also know as cavernous angiomas). Our mission is to inform and support individuals affected by cerebral cavernous malformations while facilitating improved diagnosis and management of the illness through education and research.

Cerebral palsy
www.ucp.org/index.cfm
UCP (United Cerebral Palsy): Organization that works to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities. Site offers information on local as well as national services.

Fragile X
www.nfxf.org/
The National Fragile X Foundation

Hypothalamic hamartoma
www.geocities.com/hhugs2001/index.htm
Hypothalamic Hamartoma Support Group: Information and support site operated by families of children or adults with this rare disorder.

Learning disabilities
www.ldanatl.org/
Learning Disabilities Association of America

Mental illness
www.nami.org/
National Alliance for the Mentally Ill (NAMI): Support and advocacy organization working to improve the lives of people with severe mental illnesses (such as schizophrenia, major depression, bipolar disorder, obsessive-compulsive disorder, and anxiety disorders) and the lives of their families and friends.

Mental retardation
www.thearc.org/
The Arc of the United States: National organization of and for people with mental retardation and related developmental disabilities and their families.

www.jpkf.org/
The Joseph P. Kennedy, Jr. Foundation: Services for those with mental retardation.

Mitochondrial disease
www.umdf.org
United Mitochondrial Disease Foundation

Neurofibromatosis
www.ctf.org
The Children's Tumor Foundation:Ending Neurofibromatosis Through Research (formerly known as the National Neurofibromatosis Foundation).

Stroke and other disorders
www.ninds.nih.gov
National Institute of Neurological Disorders and Stroke

www.stroke.org
National Stroke Association

Sturge-Weber syndrome
www.sturge-weber.com/
The Sturge-Weber Foundation promotes research and services for individuals with Sturge-Weber syndrome, Port Wine Stains, and Klippel-Trenauney syndrome.

Tuberous sclerosis
www.tsalliance.org
Tuberous Sclerosis Alliance: A voluntary organization dedicated to finding a cure for tuberous sclerosis complex (TSC) while improving the lives of those affected.

Williams syndrome
www.williams-syndrome.org/
Williams Syndrome Association


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