 Loading
|
Tue, 5/22/2012
- Finding New Therapies
- About Epilepsy Therapy Project
- Donate
- Supporters
- Research & Funding
- Platform & Infrastructure Support
- Conference & Webcasts
- 2012 Epilepsy Pipeline Update Conference
- 2010 Epilepsy Pipeline Update: Portal into CNS
- Conference & Webcast Archive
- Antiepileptic Drug Trials XI - April 2011
- Antiepileptic Drug Trials X - April 2009
- Eilat IX - June 2008
- Epilepsy Pipeline Update: Portal into CNS - March 2008
- 2008 Epilepsy Pipeline Conference: Webcasts & Abstracts
- Antiepileptic Drug Trials IX - March 2007
- Special Interest Groups (SIGs): AES Annual Meeting Webcast - December 2005
- Epilepsy Therapy Pipeline
- Acceleration LIVE!
- Media Center
- Epilepsy Therapy Project Press Releases
- ETP Chairman Warren Lammert Presents Testimony at the Institute of Medicine (IOM) meeting in D.C., June 28, 2011
- Kevin Malone Presents Testimony at the Institute of Medicine (IOM) meeting in D.C., June 28, 2011
- Steve Wulchin Presents Testimony at the Institute of Medicine (IOM) meeting in D.C., June 28, 2011
- Epilepsy News
- Media Resources
- Epilepsy Therapy Project Press Releases
- About Epilepsy
- 1. What is Epilepsy
- 2. Your Diagnosis
- 3. Your Life with Epilepsy
- --- ↑ Start with these Links ---
- All About Epilepsy & Seizures
- Epilepsy 101: The Basics
- Epilepsy and the Brain
- Moods & Behavior
- Sleep and Epilepsy
- SUDEP (Sudden Unexplained Death in Epilepsy) 101: The Basics
- Facing the Questions
- Facing the Facts
- Facing the Uncertainties
- Managing Fear
- Responding to Community Need
- Supporting the Bereaved
- Accessing information
- Empowering the Global Community
- Communicating Risk
- Telling Children and Adolescents?
- Reflecting on My Clinical Experience
- Living with the Risks
- Considering medico-legal issues
- Determining the right to know
- Educating Health Professionals
- Facing the Future
- Feature SUDEP Articles
- Building the Momentum Against SUDEP
- High SUDEP Rate in Some Persons with Childhood-Onset Epilepsy: A Commentary
- New Campaign to Shed Light on Epilepsy’s Dark Secret
- SUDEP, VNS and the FDA
- SUDEP: Unmasking Silent Killer in Epilepsy
- SUDEP A Global Conversation - 2005 Book from Epilepsy Australia
- SUDEP Recommendations
- What Provokes a Seizure?
- History of Epilepsy
- Types of Epilepsy
- Febrile Seizures
- Benign Rolandic Epilepsy
- Childhood Absence Epilepsy
- Juvenile Absence Epilepsy
- Juvenile Myoclonic Epilepsy
- Infantile Spasms
- Lennox-Gastaut Syndrome
- Reflex Epilepsies
- Temporal Lobe Epilepsy
- Frontal Lobe Epilepsy
- Progressive Myoclonic Epilepsies
- Mitochondrial Disorders
- Landau-Kleffner Syndrome
- Rasmussen's Syndrome
- Ring Chromosome 20 Syndrome
- Hypothalamic Hamartoma
- Types of Seizures
- Diagnosis
- Living with Epilepsy
- Living with Epilepsy 101: The Basics
- Safety
- Quality of Life
- Social Effects of Epilepsy
- Support
- First Aid for Seizures
- Know Your Rights
- Famous People with Epilepsy
- Welcome to the Showcase of Creativity
- Gallery of Visual Art
- Poetry Corner
- After a Seizure in Your Bed
- Ahead of Time
- A Life Saved
- A Moment
- Are You?
- A Shadow in My Life
- Beyond that Mountain
- Both Sides of a Mountain
- Brain Waves
- Confusion
- Darkness and Light
- EPILEPLIFE
- Epileptic
- FallOut Shelter : An epileptic
- Last Resort
- Love Poem: 30 Candles
- Mistaken Identity
- My Sister Katie, My Hero
- Needing to Pretend
- Neuro-logic
- Restless Senses
- Seize the Mind
- Seizure
- Soul, Mind and Technology
- Suzanne
- Taste
- The First Time... and After
- The Strength Within Us
- To Be An Epileptic
- To Find a Friend
- 3T Resolution
- Twitch
- Valiant Desperados
- Vision
- Yearning
- The Written Word
- Resources
- Epilepsia Abstracts
- Epilepsy.com Spotlight Newsletter
- 2012
- 2011
- December 2011 Newsletter
- November 2011 Newsletter
- October 2011 Newsletter
- September 2011 Newsletter
- August 2011 Newsletter
- July 2011 Newsletter
- June 2011 Newsletter
- May 2011 Newsletter
- April 2011 Newsletter
- March 2011 Newsletter
- February 2011 Newsletter
- January 2011 Newsletter
- On My Mind: Medication Side Effects
- Effects of Breastfeeding in Children of Women Taking Antiepileptic Drugs
- Estimating Risk for Developing Epilepsy: A population-based study in Rochester, Minnesota
- Answers to Three Commonly Asked Questions about Epilepsy and Teenage Girls
- When is the Right Time for Epilepsy Surgery?
- Trends in Epilepsy Treatment - Going Interactive, Mobile, and 24/7
- American Epilepsy Society Meeting in San Antonio - Highlights of the Latest Research Blog
- 2010
- 2009
- 2008
- 2007
- 2006
- 2004-2005
- Epilepsy News
- Epilepsy Book Reviews
- Feature Articles
- Glossary
- Epilepsy Talk Radio
- Links
- Information About Pregnancy
- General Health Resources
- Epilepsy Websites
- Epilepsy-Related Websites
- Información en Español
- Information in Other Languages
- node/577
- Neurologic and Metabolic Disorders
- Children and Family Services
- Online and Mail-Order Pharmacies
- Prescription Drug Assistance
- Information on the Ketogenic Diet
- Devices and Equipment
- Career and Rehabilitation
- Recreational Therapy Organizations
- Recreation and Leisure Activities
- Multimedia Center
- PubMed Journal Articles
- Resource Library
- shop.epilepsy.com
- What's New Archives
- What's Happening?
- Epilepsy: Insights & Strategies
- Epilepsy: Insights & Strategies, Issue 4, August 2010
- Guide to Charitable Giving for People with Epilepsy
- Family Strategies for Understanding and Coping with the Impact of Epilepsy
- “How Do You Do It?”
- How Getting a Vagus Nerve Stimulator — and a Refocus on Helping Others — Turned My Life Around
- The Most Important Secrets You Must Learn in Order to Live a Happy, Healthy and Productive Life with Epilepsy
- Succeeding With Memory Problems
- Understanding the Impact of the Affordable Care Act: An Overview for People Managing Epilepsy
- Epilepsy: Insights & Strategies, Issue 3, January 2010
- When an Epilepsy Doctor has an Epileptic Seizure
- Seizures Triggered by Video Games: Underestimated and Undiagnosed
- Learning to Use Humor as an Epilepsy Coping Skill
- General Principles of Pharmacology for Epilepsy Patients and Their Caregivers
- Exercising and Playing Sports Safely: Guidance for People with Epilepsy
- Epilepsy and Self-Confidence
- Epilepsy: Insights & Strategies, Issue 2, August 2009
- How to Get Pills into a Patient Who Can't Swallow Them
- Managing Your Antiepileptic Medications for Cost Effectiveness
- Surviving a New Diagnosis of Epilepsy
- Eight Years on the Ketogenic Diet: How a Grown-Up Took the Keto Plunge
- Understanding Your Health Insurance Options: A Practical Overview of Public and Private Resources
- Getting and Keeping a Job in a Recession
- Epilepsy: Insights & Strategies, Issue 1, April 2009
- International Travel with Epilepsy
- Video-EEG Monitoring: In Preparation for Possible Epilepsy Surgery
- Choosing Epilepsy Surgery: Undergoing a Temporal Lobectomy
- The Moment of Empowerment: Thoughts from a Parent
- The Americans with Disabilities Act Amendments Act: Good News for Employees with Epilepsy
- Gain Control of Your Seizures: Strategies for Coping
- How Patients and Health-care Providers Can Improve the Epilepsy Clinic Visit Experience
- Topics List
- Article Submission Process
- Article Format
- Epilepsy: Insights & Strategies, Issue 4, August 2010
- Therapies & Living
- 1. Your Treatment
- 2. Your Seizure Medicines
- 3. Seizure First Aid
- --- ↑ Start with these Links ---
- Treatments & Medication
- Treatment 101: The Basics
- Measuring Quality Care
- Receiving Quality Epilepsy Care
- Seizure First Aid
- Seizure Medicines
- General Information
- First Seizures
- Frequently Asked Questions
- Finding the Best Dosage
- How Long Until It Works?
- Side Effects
- Starting & Stopping Medication
- How to Read a Package Insert
- Compliance
- Blood Testing
- Drugs and Supplements that May Increase the Chance for Seizures
- AED Mechanisms of Actions Roundtable
- First- and Second-line Medications
- Drug Interactions
- Cost
- Medicine for Kids
- Medicine During Pregnancy
- Medicine for Seniors
- Folic Acid Supplementation Prevents Phenytoin-induced Gingival Overgrowth in Children
- Antiepileptic Drugs Interact with Folate and Vitamin B12
- Summary of Antiepileptic Drugs
- Medicine Sheets to Download
- Treatment Guidelines
- Mail Order Pharmacies
- General Information
- Medication Compliance
- Surgery
- Vagus Nerve Stimulation
- Dietary Therapies/Ketogenic News
- Ketogenic Diet
- Ketogenic News
- Keto News Archives
- Keto News 2012
- Keto News 2011
- Keto News 2010
- Will my child get a heart attack??!? No! Long-term use of the diet is safe!
- New York Times Magazine Cover Story
- Excitement in Edinburgh
- October in Edinburgh!
- Infantile Spasms and the Diet: The Evidence Grows
- The Ketogenic Diet Up North
- American Epilepsy Society Annual Meeting Recap
- Top 10 Articles for 2009
- Keto News 2009
- Ketogenic Dietitian and Nurse Collaboration
- 911: Using Ketogenic Diets for Emergencies
- Can You "Fine-Tune" the Ketogenic Diet?
- Side effects on the diet: prevention, not just treatment
- The Ketogenic Diet…in a bottle?
- Diet therapy for epilepsy in the Mideast
- Mixing Ketogenic Diets and Passover
- Is there a right way to do the diet?
- Does Ketosis Matter?
- Top 10 Ketogenic Articles for 2008
- Keto News 2008
- A remembrance of life on the ketogenic diet…60 years later!
- Using the diet for epilepsy….first?
- Siblings and the Ketogenic Diet
- Grace's Magic Diet: A Child's Story
- Ketogenic Diets: Not just for epilepsy any longer
- Ketogenic Diet Centers in the United States
- Proof of Efficacy: Results from a randomized and controlled study of the ketogenic diet in London
- The First International Dietary Treatments for Epilepsy and other Neurologic
- The Ketogenic Diet and Antiepileptic Drugs: A Good Mix?
- Let’s Meet! Exciting past (and future) ketogenic diet conferences
- Top 10 Ketogenic Diet Articles in the Medical Literature of 2007
- Keto News 2007
- Side Effects on the Ketogenic Diet: Identification and Treatment
- Laboratory Notes on the Ketogenic Diet
- Try It…They Might Like It!!
- The MCT Diet
- A Mother's Plan for the Ketogenic Diet
- Preparing yourself, your family, and your child for the Ketogenic Diet: A Parent
- Modified Atkins Diet – More on the plate than ever
- Ketogenic Diet Research
- Do ketogenic diets work for adults with epilepsy? Yes!
- Keto News Archives
- Modified Atkins Diet
- Low Glycemic Index Treatment
- Ketogenic Diet Physicians
- Non-Drug Therapies
- Clinical Trials 101: The Basics
- My Health Care Team
- Find a Doctor
- Find an Epilepsy Center
- Managing my Seizures
- Seizure Preparedness 101
- Understanding Seizures and Emergencies
- Warning Signs of Seizures
- Risk Factors for Seizures
- Seizure Triggers
- What Type of Doctor Should I See?
- Importance of Preventing Seizures and Other Problems
- SUDEP
- Types of Seizures: Overview
- Tonic Clonic Seizures
- Atonic and Tonic Seizures
- Complex Partial Seizures
- Simple Partial Seizures
- Absence Seizures
- What is a Seizure Emergency?
- Assessing Risks for Seizure Emergencies
- Impact of Seizure Emergencies
- Types of Seizures: Overview
- Tracking and Treating Seizures
- Managing Seizure Triggers
- Developing Preparedness Plans
- Importance of Preparedness Plans
- Developing My Seizure Plan 101 Plan
- Organizing My Personal Information
- Knowing My Health Care Team
- Knowing My Type of Seizures
- Understanding My Seizure Triggers
- Taking My Daily Seizure Medicines
- Recording Other Seizure Treatments
- Seizure First Aid - Care and Comfort
- Knowing When Seizures Need Additional Help
- Knowing My Plan for 'As Needed' Treatments
- Knowing When to Call for Emergency Help
- Reviewing My Seizure Plan
- Responding to Seizures
- General First Aid for All Seizure Types
- Always Stay With the Person Until the Seizure Is Over
- Pay Attention to the Length of the Seizure
- Stay Calm, Most Seizures Only Last a Few Minutes
- Prevent Injury by Moving Nearby Objects Out of the Way
- Make the Person as Comfortable as Possible
- Keep Onlookers Away
- Do Not Forcibly Hold the Person Down
- Do Not Put Anything in the Person's Mouth!
- Do not Give Water, Pills or Food by Mouth Unless the Person is Fully Alert
- Call for Emergency Medical Help
- Be Sensitive and Supportive, and Ask Others to Do the Same
- Downloadable Guide
- Witnessing a Seizure
- Seizure Drills
- Tailoring First Aid Plans
- Recording What Happens
- Information to Keep Handy
- What are 'As Needed' Medicines?
- When to Use
- Types of Medicine for 'As Needed' Use
- Diastat 101
- Oral or Sublingual Medicines 101
- VNS Therapy 101
- General First Aid for All Seizure Types
- Adapting Plans for Travel
- Summer Camp
- Acknowledgement
- My Diary
- Kids
- Teens
- Women
- What is Epilepsy?
- For Young Women
- Pregnancy & Motherhood
- Menopause & Epilepsy
- Frequently Asked Questions
- Discussion Checklist
- Families & Caregivers
- Living an Active Life
- Exceptional Parent Articles
- Common Concerns
- About Newborns & Infants
- About Kids with Epilepsy
- Diagnosing Epilepsy In Children
- Treatment For Children With Epilepsy
- Causes of Epilepsy In Childhood
- Conditions Confused With Epilepsy
- Mental Handicap & Cerebral Palsy
- How Long Do Children Need Seizure Medicine?
- Books For Kids With Epilepsy
- Education of Kids With Epilepsy
- Video Games And Epilepsy
- What Happens When We're Gone?
- Back to School
- About Teens with Epilepsy
- Summer Camp
- About Parents with Epilepsy
- For Nannies & Babysitters
- Frequently Asked Questions
- Seniors
- Our Community
- 1. Discuss Living with Epilepsy
- 2. Discuss Medication Issues
- 3. Share Your Story
- --- ↑ Start with these Links ---
- Forums
- Groups
- Blogs
- Chats
- People Stories
- Find People Like Me
- Resource Specialist
- Calendar
- Help Center
- Professionals
- Donate
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYConfusion
By Kathleen Grieger
I come to, and
as I make my way
back to bed
I am confused
I can not tell myself
who I am
who my husband is
or who my children are
I think about the phone
And decide I should call
my husband
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| Seizures During Sleep | Aug 2, 2009 | |
| Morning Sunshine | ||
| Why do they think I have epilepsy? | Aug 27, 2009 | |
| destroyedbyadmin | ||
| Deja vu and Epilepsy | Aug 7, 2009 | |
| Mikey4 | ||
| Need Anaswers Please | Oct 16, 2009 | |
| kianamarie | ||
| "Electric" Dreams | Aug 16, 2009 | |
| karina1481 | ||
| need help getting daughter out of our bed | Aug 8, 2009 | |
| tchaide05 | ||
| I can't sleep | Aug 24, 2009 | |
| densol | ||
| seizures at night | Sep 3, 2009 | |
| jeremy | ||
| "Post-ictal" confusion | Aug 9, 2009 | |
| RitKid742 | ||
| Jerks when falling asleep | Oct 5, 2009 | |
| cependell | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Weaning off of Dilatin | May 22, 2012 | |
| Katz | ||
| I think I just had a seizure??!!?? | May 22, 2012 | |
| msmith1997 | ||
| New | May 22, 2012 | |
| Luv2lern | ||
| VERY SCARED!!!!! | May 22, 2012 | |
| mamma0810 | ||
| Keppra and pain or swelling in joints? | May 22, 2012 | |
| no alleykat | ||
| Georgia Neurologist | May 22, 2012 | |
| rosanna1980 | ||
| Banzel/Keppra/Lamicital | May 22, 2012 | |
| mindyraa | ||
| lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding | May 22, 2012 | |
| reikihealer | ||
| Weird Symptoms | May 22, 2012 | |
| Auburn | ||
| Can exercise induce seizures? | May 22, 2012 | |
| MichaelK | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,241 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| The last straw | Sep 4, 2009 | |
| DUMFY | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Medicine adjustments | May 22, 2012 | |
| fashionlove45 | ||
| Hyperventilation & epilepsy, a way to help yourself. | May 22, 2012 | |
| buteykomike | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Who am I?Really! | Sep 1, 2009 | |
| riki | ||
| Just started having seizures?Morning and after anxiety? | Sep 9, 2009 | |
| Pazzagirl | ||
| My little girls story | Sep 29, 2009 | |
| CroninS | ||
| View all Stories | ||
| Title | Posted | |
|---|---|---|
| Adjusting with the thought of epilepsy after misdiagnosis for over 20 years | May 22, 2012 | |
| goofyheather | ||
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| Seizures under control | May 14, 2012 | |
| panteradee | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
Featured Video
Understanding Epilepsy
- Sleep and Epilepsy
- Current Opinion: Sleep and Epilepsy
- Sleep and Epilepsy - YourDoctor.com
- Sleep Disorders in Children with Epilepsy: More Common than You Think
- Exploring the Relationship between Insomnia and AEDs
- Chanda Gunn: from High Hopes to a Vision for 2008
- To Sleep, Perchance to Dream
- AEDs, Sleep, and Epilepsy
©
2012 Epilepsy.com. All rights reserved.