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October 2011 Spotlight Newsletter


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Editor in Chief

GREETINGS FROM OUR EDITOR IN CHIEF

Introducing Potiga™® (Ezogabine)

One of the exciting new developments in 2011 is the introduction of new antiepileptic drugs for their use in epilepsy. One of the new medications that has recently been approved and will soon be available for use is Ezogabine (Potiga).

Dr. Joseph Sirven reviews this new medicine.




Read the Full Article Here

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Volume 7, Issue 10 October 2011


COMMUNITY CORNER

Featured Story - Lauryn's Story

I had two febrile seizures as a child, but hadn't had any since I was three years old. I was seizure-free for 15 years after that. Nothing unusual. .... Read more.


Forum Buzz

5 Month old having Seizures after immunizations
When I had my son's immunizations at his 4 month check-up he had a adverse reaction and had a seizure 20 hours after that lasted approximately 10 minutes... Read more.

10 great things about Epilepsy!
Okay folks. I have WAAAAY too much time on my hands for a Friday night! I know my case is milder than many but I am trying to be positive... Read more.

Epilepsy And The Personal Touch
Brief summary experience about what is in the poem.What I had to deal with as a child.I had experienced many odd things but, as I seen specialist afther specialist they all said I was normal... Read more.


ETP on Facebook:

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research

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What's New

 

sudep

Adjunctive Anti-epileptic Drug Therapy and Prevention of SUDEP
Professor Ryvlin and colleagues from the Claude Bernard Universite in Lyon, France, presents a meta-analysis of the impact of anti-epileptic drugs on the prevention of sudden unexplained death in epilepsy (SUDEP).
View Here

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elderly

Chronic Valproic Acid Use in Alzheimer's Disease
Dr. Fleisher from the Banner Alzheimer's Institute and for the Alzheimer's Disease Cooperative Study report results of a test to assess if valproic acid helped to protect the brain of patients with Alzheimer's disease from further deterioration.
Read More

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infants

Is Preterm Birth a Risk for Epilepsy?
Doctors Crump and colleagues present an analysis of 630,000 infants born in Sweden from 1973 through 1979. These included 27,953 who were born preterm. They then examined this database to assess for hospitalization for epilepsy and the use of antiepileptic drugs.
View Here

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doctor

Five Tips to Better Improving Seizure Control
One of the most frequently asked questions asked by patients is, "what can 'I' do in order to better help improve my seizure control?" There are some important aspects of one's life that one can potentially alter that in some cases may prove to be beneficial.
Read More

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Take a Look

Haven't been to the site lately? Wondering what news you've missed? Check out the running archive of stories that were featured in the "What's New" column of the newsletter.

 

Avra Liverman
ETP Dance Choreographer

HOST YOUR OWN PURPLE DANCE!

Ready to join with me and choreograph your fundraising High School Purple Dance for ETP? You can tweak it any way you like to make it your own Purple Dance. Read on, and I'll tell you exactly what we did and give tips on getting started.
Read more

News

Everything you Need to Know about Lamictal. Joseph Sirven, MD, Editor-in-Chief of epilepsy.com, looks at this epilepsy medication.
Read now

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Dr Eric Kossoff

Keto News - What to do when it's time to stop the Ketogenic Diet?
Read Keto News now

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Diary

My Epilepsy Diary is available for the iPhone and the iPod touch from the iTunes App Store and on Android devices through the Android Market. Just search on the word epilepsy and download the application.
Start your diary now

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Acceleration: LIVE! An All Access Pass to An Exciting Evening with The B-52's Benefitting the Epilepsy Therapy Project

 

B-52's. Photo by Joseph CulticeWe are excited to invite you to kick off the holiday season with us and celebrate the launch of ETP's "Acceleration: LIVE!" with the B-52s, on Thursday evening, December 1, at the House of Blues. The B-52's never disappoint and for this very special evening they promise to deliver once again. Although we are inviting you to enjoy the very limited VIP Box seating, this great night of rock 'n roll will keep you on your feet!

In addition to VIP Box Seating, we hope you will consider reserving one of the few very special All Access VIP Backstage passes to meet the band and enjoy dinner with us in the Foundation Room at the House of Blues prior to the show (VIP reception begins at 5:30 PM with dinner at 6:30 PM and a great show at 7:30) Donations are tax deductible of course and opportunities for this first ever evening of ETP's ACCELERATION: LIVE! include:

$10,000 REALLY BIG ACCELERATION

Premium concert seating (10 box seat tickets); VIP reception (10 tickets) and premium table (10 seats) at dinner in the HOB Foundation Room prior to the show; all-access backstage pass (10 passes) to meet the band backstage prior to the show; and a photo with The B-52's!

$5,000 REALLY BIG HAIR

Preferred concert seating (5 box seat tickets); VIP reception (5 tickets) and preferred seating at dinner (5 seats) in the HOB Foundation Room prior to the show; all-access backstage pass (5 passes) to meet the bank backstage prior to the show; and photo with The B-52's!

$1,000 BIG HAIR

Preferred concert seating (1 box seat ticket); VIP reception (1 ticket) and preferred seating at dinner (1 seat) in the HOB Foundation Room prior to the show; all-access backstage pass (1) to meet the band backstage prior to the show; and your photo with The B-52's!

$500 BIG FAN

Preferred concert seating (1 box seat) and preferred ticket to dinner (1 ticket) prior to the show.

Whether you're a serious B-52's fan or simply a fan of accelerating new therapies for those with epilepsy and seizures, we think you'll find this evening of irresistible fun a great way to kick-off the holiday season. The box seats and Foundation Room provide an intimate venue within the House of Blues and seating is limited, so please let us know that we may reserve a table for you today by emailing or calling Heidi Meireles of our ETP staff at 909.464.8137. Tickets are also available online.

We look forward to seeing you on December 1!

 

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Epilepsy Therapy Project's 2012 Pipeline Update Conference

 

pipeline3rd Biennial Conference Networking Forum and the 1st ETP Family Day!

February 2 – 4, 2012 | Hyatt Regency | San Francisco, CA

Join us for our 3rd biennial showcase of emerging and established companies presenting their strategies, candidates and development programs. You'll learn how anti-seizure product development is the optimal pathway for CNS therapeutic development because of well-characterized mechanisms, therapeutic approaches, clear clinical endpoints for regulatory studies. The conference brings together companies and scientific entrepreneurs at the cutting-edge of epilepsy and CNS pipeline advancement to present their strategies, product candidates and development programs to leading clinicians, angel, venture capital and industry investors and prospective corporate partners. Each presenting company is hand-selected by the Scientific and Business Advisory Boards of the Epilepsy Therapy Project. Companies interested in presenting can contact conference@epilepsytherapyproject.org.

This year's conference has been expanded to three days to include a day for people with epilepsy, family and advocates focused on the importance and challenges of developing new therapies for epilepsy and seizures, and to debut the Epilepsy Therapy Project's national "Shark Tank" competition.

The new "Shark Tank" competition is designed to spur entrepreneurs, scientists, clinicians, industrial design engineers and the epilepsy community to submit proposals for inventive product concepts, therapeutics or technologies with the promise of improving treatment and/or quality-of-life for people living with epilepsy. The winner of the Shark Tank competition will receive national recognition and a cash prize to fund the development of their novel idea. Additional details on how to enter the contest found here.

New to the conference this year is the ETP Family Day. This is the third day of the program with the aim of engaging people with epilepsy, families, and the general public in the importance and challenge(s) of developing new therapies for epilepsy and seizures.

Read the press release

Register Today

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TEAM ETP - Two Weeks Until the Big Day!

 

mcmThis Month:

TEAM ETP is running the Marine Corps Marathon

Sunday, October 30th

Washington, DC

SUPPORT TEAM ETP!

Thank you to our sponsors:

teamepilepsy.comThe Epilepsy Company

 

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About the Epilepsy Therapy Project

The Epilepsy Therapy Project

Epilepsy Therapy Project, sponsor of epilepsy.com, is a 501 (c) (3) not-for-profit organization founded by parents and doctors caring for children with uncontrolled seizures by supporting the development of new therapies that offer freedom from seizures and side effects. Read more about the Epilepsy Therapy Project and how your donations can help support our mission to accelerate new therapies for people with epilepsy and seizures.


Support our cause

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