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Volume 7, Issue 8 August 2011
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COMMUNITY CORNER
Featured Story - Katie (cooley21)
I moved to Germany when i was 11 years old. Maybe a year after that, i started having weird blackouts and i had no idea why.... Read more.
Forum Buzz
How important is a lifestyle change for maintaining a seizure free life?
My Husband has recently been diagnosed with epilepsy. Medications helped for a while and now there have been some breakthroughs and he is on a new combo of meds... Read more.
Frustration with sudden onset on seizures
I am unbelievably frustrated. Two months ago I was hospitalized after having two seizures at work... Read more.
Topamax (Topirate) experiences
I found out that I was having grand mal seizures. I also found out that the frequent "anxiety attacks" I was having over the past decade (diagnosed as such by the many doctors I saw) were actually partial complex seizures and not anxiety attacks at all... Read more.
2011 Goal: 50,000 FANS!
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What's New
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Causes of Death Among People with Epilepsy in the Developing World
It is axiomatic that in wealthy countries conditions such as tumors, stroke, and cardiac disease are the leading causes of death; whereas in resource poor nations, epilepsy and infectious diseases often account for the majority of deaths.
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What Happens to the Mothers of Children with Epilepsy?
Doctors Akay and colleagues from the Dokuz Eylul University School of Medicine in Izmir, Turkey present an interesting analysis addressing caretakers of children with epilepsy.
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New MRI Technique May Be Promising in Studying Temporal Lobe Epilepsy
Doctors Henry and colleagues from the University of Minnesota present intriguing and significant investigation utilizing a 7 Tesla brain MRI in 11 healthy patients and eight patients with temporal lobe epilepsy.
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Noninvasive Surgery for Temporal Lobe Epilepsy—The NIH ROSE Trial
Currently, a trial sponsored by the National Institutes of Health is designed to compare advantages and disadvantages of open surgery versus radiosurgery.
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Seizure Prediction Workshop
From September 19-23, 2011 the 5th International Seizure Prediction Workshop (ISPW5) will be held in Dresden, Germany, hosted by Ronald Tetzlaff, from the University of Dresden and by Klaus Lehnertz and Christian Elger, from the University of Bonn.
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ILAE and Wiley-Blackwell Launch New Mobile Application for Epilepsia
Wiley-Blackwell, the scientific, technical, medical and scholarly publishing business of John Wiley & Sons, Inc., launched a new mobile application for Epilepsia, accessible via iPhone, Blackberry, Android, Symbian, PalmOS, and WAP devices.
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Take a Look
Haven't been to the site lately? Wondering what news you've missed? Check out the running archive of stories that were featured in the "What's New" column of the newsletter.
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New Device Offers Hope. We are delighted to provide you with an update on an exciting project funded through our ETP New Therapy Grants program. Dr. DeGiorgio demonstrates Trigeminal Nerve Stimulation (TNS):
Read and watch now
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On My Mind: Carbamazepine. Joseph Sirven, MD, Editor-in-Chief of epilepsy.com, looks at this epilepsy medication.
Read now
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Keto News - Summer Reading on the Ketogenic Diet
Read Keto News now
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My Epilepsy Diary is available for the iPhone and the iPod touch from the iTunes App Store and on Android devices through the Android Market. Just search on the word epilepsy and download the application.
Start your diary now
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"I LOVE to Dance!" — ETP Purple Dance Choreographer, Avra Liverman
"Just think dozens of teens, all over the United States, throwing dance parties to fundraise for ETP" You Can Host a Fundraising Dance Too!
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 Hi! My name is Avra. I'm 15 and just finished my sophomore year of high school. I had my first seizure 4 days before my 14th birthday. Since my diagnosis of Juvenile Myoclonic Epilepsy, I have learned a lot about the different types of Epilepsy and how it affects so many people around the world.
I know first hand the negative side effects of the medications and the fact that so many people aren't controlled with the therapies available to them. This is why my family and I decided to fundraise for the Epilepsy Therapy Project.
I LOVE to dance and all my friends love to dance! So, it seemed like a good idea to organize a fundraising dance. I was pretty nervous at first. I thought… "what if people think it's lame?" "What if no one comes?" Well, it was crazy successful and everyone loved it!!! The Dance itself brought in a little under $4,000.00. My parents sent our fundraising letters asking friends, family and customers to support my Dance by making contributions to ETP either online or by check. We were amazed at the response. At this moment, we have raised just over $19,000.00!!!!!
 You can do this too! Looking back, it really wasn't that hard and I'm happy to share exactly how we did it. Just think…dozens of teens, all over the United States, throwing dance parties to fundraise for ETP. Think of all the research we would be able to support. Let's influence our future by supporting today's cutting edge research. As a group, I think we would be so powerful!
Ready to join with me and choreograph your fundraising dance for ETP? You can tweak it any way you like to make it your own Purple Dance. Read on, and I'll tell you exactly what we did and give tips on getting started.
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Marine Corps Marathon — Meet Team ETP Runner Michael Quesnel
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 My name is Michael Quesnel, the father of my beautiful daughter, Emmarose, who was diagnosed with epilepsy on February 13, 2009. We are told her case is atypical because of her age of 14 being first diagnosed. The first few years have been a roller coaster ride not just for Emmarose, but also for my son Nicholas, my wife Gayle, and for me. Through trial and error with several different medications, a medication was found that fits Emmarose just right; we are truly blessed. The current medication has not altered her wonderful personality, and yet has eliminated her daily seizures. Since being diagnosed, Emmarose participates in epilepsy awareness activities and fundraisers. She is now 16 years old, and has passed her driver's permit test, which is so exciting for 16 year olds. Entering her junior year in high school, she is looking forward to a wonderful year academically and as a defenseman on the varsity soccer team. Throughout all of this, she has been able to maintain a 4.0 GPA in high school, and plans on entering college in the Fall of 2013, in the medical field. The family picture on this page is from her Sweet Sixteen Birthday Party.
Now a little about me, a few years ago, I started running, and quickly grew a love of it for many reasons. First came the 5k runs, which led to 10ks, which led to ½ marathons which led to marathons. I am so proud and fortunate to participate in the Marine Corps Marathon, aka "The People's Marathon", in Washington D.C. on October 30, 2011 on Team ETP. The real heroes, besides our past, current and future service men/women, are the people who suffer everyday with Epilepsy.
I welcome your donation to sponsor my efforts in meeting my fundraising goal!
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To support TEAM ETP, visit our website TEAM ETP – MCM Fundraiser
To support Michael, visit his page
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About the Epilepsy Therapy Project
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