Each month, epilepsy.com sends out our epilepsy.com Spotlight newsletter full of recent epilepsy news, updates on seizure medicines, advances in treatment options, and new features on epilepsy.com. It is a vital way to keep subscribers updated with the latest news and information available.
Epilepsy.com won an award! We received the Silver Award: Best Care/ Disease Management Site from the e-Healthcare Leadership Awards committee at the Eleventh Annual Healthcare Internet Conference. The All New epilepsy.com: Warren Lammert provides a guide to our new look. Understanding Epilepsy, a Video Series: Brought to us by Robert Fisher, MD, PhD. AES Meeting News: From the annual AES meeting in Philadelphia. Epilepsy Links: For other perspectives on epilepsy. Post Traumatic Epilepsy: We continue to bring you news about post traumatic epilepsy (PTE) and traumatic brain injury (TBI). Exceptional Parent Article: This month's article focuses on Seizures and Teens: Using Technology to Develop Seizure Preparedness. Holiday Thoughts and Recipes for the Ketogenic Diet.
An interview with Cynthia Folio, PhD, and a link to her daughter’s art work which won The Expressions of Courage contest at her school; Medication alert – Dilantin® 100 mg. capsules: what every person using this medication needs to know; Thanksgiving and the ketogenic diet: menu plans for family gatherings; Side effects on the ketogenic diet: identification and treatment.
Seizures, Sleep, and Medication, by Carl Brazil, MD, PhD; Questions and Answers about Epilepsy, an interview with Patty Shafer, our resource specialist; Randy Siegel's Story as it appeared in the Providence Journal Editorial pages; Ketogenic Halloween Alternative Celebrations; Laboratory Notes on the Ketogenic Diet by Adam Hartman, MD, from Johns Hopkins; and Infantile Spasms: A Family Committed to Helping Others.
Special Interview – Randy Siegel, recently talked to Newsweek and epilepsy.com about his daughter with epilepsy. Words that Harm, Words that Heal – As children across the nation go back to school, Rita Watson, focuses on the power of teachers and how they influence a child’s self-esteem through the words they use. The Ketogenic Diet – Parents will be surprised by new findings that show children with seizure disorders actually prefer the foods on the ketogenic diet when given a choice. Exceptional Parents – Teens: Sex, Seizures and Drugs – New research shows that sexuality can be affected by seizure medicines. The Health Outcomes in Epilepsy and Pregnancy (HOPE) Forum. Medication in the News – A substantial price increase has been announced for H.P. Acthar Gel(R), from $1,650 a vial to $23,000 a vial. Call to Action – The Epilepsy Foundation is urging people to contact their Congressional representatives regarding the Americans with Disabilities Restoration Act. 2007 International Epilepsy Congress in Singapore. Google meets epilepsy.com. Clinical Trials – New therapies, medications, medical devices and surgical procedures are evaluated in research studies known as clinical trials.
Traveling Safely: Seizure Preparedness. Sleeping Peacefully – Carl W. Bazil, MD, PhD, is an expert on the connection between sleep and epilepsy. Eating Ketogenically – The medium chain triglyceride (MCT) diet is an adaptation of the ketogenic diet that is often used in England and Canada. Pregnancy and Seizure Medicines – Starting a family can be scary for women taking seizure medications. Awarding Innovation – The Epilepsy Therapy Development Project (Epilepsy TDP), which brings you epilepsy.com, is committed to advancing new therapies for persons with epilepsy. This week Epilepsy TDP announced three translational research awards. Webcast from NeuroTechnology Series – To hear Steven C. Schachter, MD, and others, you can go to the webcast, supported by Epilepsy TDP, from the CIMIT Summer Education Series. Clinical Trials – New therapies, medications, medical devices and surgical procedures are evaluated in research studies known as clinical trials.
Transportation: Are You Having Problems Getting Your Medicine? – Have you ever found that limited transportation to a pharmacy interferes with taking your seizure medicines on schedule? Rufinamide – This drug is now approved in Europe for children with LennoxGastaut syndrome. Neurotechnology: Translating Basic Discoveries into Clinical Promise. Food and Diet: Helping a Child with Epilepsy on the Ketogenic Diet – This month we present the second of a two-part series on ways to prepare your family and your child for the Ketogenic Diet. The Showcase of Creativity – Go to "The Written Word" and read Jane Jackson’s “The Power Within You” which tells of her epilepsy and how playing darts inspired her to help others. Seizure Medicine Sheets – Our series to help you continues! Ethosuximide and primidone will soon be ready for you to download and print out in a format that is easy to read and understand. Exceptional Parents Articles – You will want to read these pieces about seizures and teens. Fireworks, Flags, Video Games, and Driving: Seizure Risks and Prevention – Can fireworks and certain flickering lights trigger a seizure?
Summer Camp Planning – As part of our unique set of seizure preparedness modules, we present a special section for children planning to attend summer camp. Seizure Preparedness – This new online guide is like a mini-book. We introduce this section to help you learn critical information and skills. Perspectives: Why So Many Names? – Why in the world do seizure medications have different names all over the world? The Ketogenic Diet Monthly Report – This month we present the first of a two-part series on ways to prepare your family and your child for the Ketogenic Diet. Seizure medicine sheets – This month we feature: Trileptal® - oxcarbazepine | Gabitril® - tiagabine | Topamax® - topiramate.
The making of a medication is a long journey; A Video Book about Epilepsy – Roy Sucholeiki, MD, developed and directed the first comprehensive epilepsy program; Ketogenic Diet – Question and answer presentation on the low glycemic index diet; CURE Conference – A special poster session for young investigators was held just prior to the Curing Epilepsy 2007 conference; Seizure Medicine Sheets in a format that is easy to read and understand; Seizures and Teens: The Practical Aspects of Managing Seizure Medications and International AED Database – What if you are traveling to another country and you find yourself in need of your AED medication? Exceptional Parents – This month, maximizing safety for your teens and developing a safety management plan.
Warren Lammert was recently honored by Finding a Cure Against Epilepsy and Seizures (FACES), Chanda Gunn, ETDP spokesperson, being named as one of two official goaltenders for the 2007 U.S. Women’s National Team, Advances in Antiepileptic Drugs, AED IX, The Modified Atkins Diet, Seizure Prediction through Personal Diaries, Can Dogs Predict Seizures? Seizures and Teens: Surgery for Seizures – What’s It All About?, Ketogenic Recipes for Easter and Passover, Keppra Update, National Walk for Epilepsy, and A New Blogger.
CURE: “Curing Epilepsy 2007: Translating Discoveries into Therapies, Spokespersons DJ Hapa and Chanda Gunn, Charles Homer, MD, MPH, a strong advocate for coordinated health care, Ketogenic Diet: Our regular feature is growing in popularity, we have created downloadable Antiepileptic Drug (AED) Information Sheets, Transportation Survey: What do you do if you’re running out of seizure medicine?, and The Email Bag.
National Walk for Epilepsy on Saturday, March 31st in Washington, DC., Sixth Annual Forum for Improving Children’s Health Care, Parents Response to Their Children’s First Seizure: How Can We Help?, A poignant contrast is an interview with a mother who lost her son to Sudden Unexplained Death in Epilepsy (SUDEP), Eric Kossoff, MD, a leading expert in the ketogenic diet informs us of the latest research, and this month's ketogenic recipes,
Special items: The AES News - Caffeine use, Driving against doctors orders, and Seizure drugs in seniors with epilepsy, New Feature – Diet and Health, Epilepsy and Pregnancy Epilepsy TDP News - DJ Hapa: Our new spokesperson, Artists with Epilepsy, and Searching for Effective Therapies: Film Debut Highlights.
|Hi, I'm Caeti! New to having seizures...I think...?||Dec 20, 2013|
|MEG (magnetoencephalography) Test||Dec 20, 2013|
|Memory Loss/Side Effects - Lamictal vs. Topomax||Dec 20, 2013|
|Has anyone else had a feeling of complete overstimulation?||Dec 20, 2013|
|Simple partial seizures left untreated||Dec 20, 2013|
|Reaching the break-up point with epileptic girlfriend. Thoughts? Advice?||Dec 19, 2013|
|TLE - PCS... Can one be awake during a grand mal ?||Dec 19, 2013|
|CA social security disability||Dec 19, 2013|
|Need some insight regarding symptoms I feel are possibly seizure related||Dec 19, 2013|
|Friend having delusions||Dec 19, 2013|
|View all Forums|
|topamax and weight loss||19,412|
|Possible cure for absence seizures||16,695|
|How exactly do aura's feel||14,771|
|Sexual Side Effects||13,634|
|MEDICAL ALERT I.D.'s||12,607|
|Over 40 Different Types Of Seizures - Revised||10,552|
|electrical shock in head?||10,131|
|Weight Gain and Depakote||9,035|
|View all Forums|
|Hyperventilation & epilepsy, a way to help yourself.||Dec 17, 2013|
|Falling Down Funny - It's Harder On Us Than It Is On You||Dec 17, 2013|
|Brain Zaps, tics & twitches||Dec 15, 2013|
|Why?!||Dec 15, 2013|
|halfway there!||Dec 13, 2013|
|withdrawal symptoms||Dec 13, 2013|
|women classic snow boots all can get 60% off||Dec 12, 2013|
|update seizure first aid||Dec 12, 2013|
|My epilepsy recovery||Dec 12, 2013|
|Feeling Sick||Dec 10, 2013|
|View all Blogs|
|my partial complex seizures||4,606|
|Topomax... The Dreaded.........||3,805|
|How can you tell if a sleep seizure happens?||3,602|
|Brain Zaps, tics & twitches||3,600|
|side effects of phenobarb.||3,226|
|Tegretol XR and ANXIETY meds||2,907|
|TYLENOL, AEDs & SEIZURES||2,844|
|Nonepileptic "Events" vs. "Seizures"||2,721|
|View all Blogs|
|Cheap Canada Goose Jackets Outlet on sale 60% off online||Dec 12, 2013|
|epilepsy only||Dec 11, 2013|
|Hawaiian and have epilepsy||Nov 28, 2013|
|Epileptics over 50 with poorly controlled seizures||Oct 28, 2013|
|The "CHillin Out" Chat group||Oct 14, 2013|
|Epilepsy Marathon||Oct 13, 2013|
|Epilepsy and Hormones||Oct 5, 2013|
|Epileptics Working from Home for Websites||Sep 18, 2013|
|new worried Mum||Jul 24, 2013|
|Types of Epilepsy||Jul 23, 2013|
|View all Groups|
|Parents Of Children With Epilepsy||269|
|Temporal Lobe Epilepsy||171|
|Women and epilepsy||170|
|Living a life with Epilepsy||133|
|Anyone with Simple Partial Seizures||109|
|Dating and Epilepsy||94|
|Epilepsy and Memory Loss??||88|
|Epilepsy Surgery Group||74|
|Absence Seizures in Kids||73|
|View all Groups|
|Newly diagnosed at age 56||Dec 19, 2013|
|My son`s future||Dec 19, 2013|
|AN Amazing Testimony On A Spell Caster Who help me to get pregnant||Dec 18, 2013|
|Suddenly I'm having seizures after many years with no problem||Dec 17, 2013|
|seizure free for 2 months||Dec 16, 2013|
|My story||Dec 16, 2013|
|my story||Dec 15, 2013|
|epilepsy||Dec 14, 2013|
|My Story||Dec 12, 2013|
|From Human Friends to Computer Games||Dec 11, 2013|
|View all Stories|
|Temporal Lobe Epilepsy||657|
|Always Have On Clean Underwear||533|
|my brain has died a thousand deaths...........||532|
|Kelly's Life With Epilepsy||496|
|What My Seizures Are Like......||434|
|Nocturnal grand mal seizures (primary generalized epilepsy)||431|
|My Daily Philosophy.....||386|
|View all Stories|