September 2009 Newsletter

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Spotlight Newsletter

Volume 5, Issue 9 September 2009

Greetings from our
Editor-in-Chief

On My Mind

Summary of Antiepileptic Drugs

There is no formula to choose which seizure medicine to use for a particular patient. No one medicine dominates for effectiveness, and all have various side effects. Doctors and patients choose AEDs after considering which side effects should be avoided in particular cases, convenience of use, cost and physician experience. An important start is to know which AEDs work for which seizure types.

What's New?

Clinical Trial Pros and Cons CDC Highlights H1N1 Risks.
CDC highlights risks of H1N1 virus ("swine flu") for children with epilepsy. Read more.

Diagnosis by cell phone Are women aware of pregnancy risks from seizure medicines?
Antiepileptic drugs (AEDs) pose two types of possible problems for women of child-bearing potential. Read more.

EEG Vigabatrin (Sabril) Approved by FDA
Vigabatrin (Sabril®) was approved by the US FDA for treatment of infantile spasms in children, and uncontrolled complex partial seizures in adults. Read more.

Take a Look

Haven't been to the site lately? Wondering what news you've missed? Check out the running archive of stories that were featured in the "What's New" column of the newsletter.

The second issue of the Epilepsy: Insights & Strategies journal is out, with articles about how to swallow pills, managing cost of medicines, surviving an epilepsy diagnosis, ketogenic diet for adults, understanding health insurance, and getting a job. Read more here . . .

The journal is a unique entity, with articles written by and for people who have or care for someone with epilepsy. The first edition was released in May of 2009, and is planned for approximately quarterly release.

Coming Soon - a new and exciting My Epilepsy Diary

The on-line diary to track seizures and medications is about to have a major makeover! It will be much easier to use and will have many more interactive features. Stay tuned.

Keto News. Dr. Eric Kossoff on how to "tweak" the diet to make it work better. See it here . .

Robert Fisher, MD, PhD
Editor-in-Chief

ROLLIN' TOWARDS A CURE FOR EPILEPSY

Want to support this event, but can't join us in Nebraska? Donate today, and we will let Justin, Rachelle, and Peggy know that you joined them for the ride!

Rollin' Towards a Cure:

Check Out this FUNdraising Event
Hosted by Justin, Rachelle and Peggy!

The event, called the "Yahtzee Run", is set for Saturday, September 12th, 2009. Organized by a team of three, Justin, Rachelle and Peggy, the Yahtzee Run will start in Northeast Nebraska. Motorcycles, Cars, Vans, and Trucks will all be rolling down the road for one thing—one really big and important thing—Epilepsy Awareness!

Justin shares, "…Riders will start out in Humphrey, Nebraska, and will make 4 stops along the way; rolling the dice, marking their scorecards and crossing the finish line in Columbus, Nebraska. The ride is scheduled from 1 pm to 4 pm, and at the end of the ride in Columbus there will be Food, a Raffle, 50/50 split pot, and best yet...Lots of Fun!

This event is just another example of our goal and passion to bring Epilepsy Research to the forefront. All proceeds from the event will be donated to the Epilepsy Therapy Project in support of finding new medicines and therapies to better the lives of those living with Epilepsy."

"You CAN make a difference and on Saturday we WILL!"

Would you like to host a fundraiser like Justin, Rachelle, and Peggy?
Please email: TEAM_ETP@epilepsytherapyproject.org. We're here to help you make your fundraiser a success.

September FUNdraising Tip

Goal Setting

You should have decided if you are the kind of person who likes to work with a group or alone by now. If you have then you are ready for the next step in the FUNdraising process - Goal Setting. If you are going to work with other people, whether 1 other person or many other people, you should be setting a much higher goal than if you are working alone. hit your goal We set goals to:

have something to strive for.
help us focus our time and effort.
provide motivation, persistence and desire
establish priorities
help us create a roadmap to get there

You can find lots of information on goal setting on the Internet, but one of the most common approaches to goal setting is that of setting SMART goals. SMART goals are:

Specific (answer Who? What? When? Where? Which? Why?)
Measurable (help you stay on-track)
Attainable (something that can really be done)
Realistic (something you are willing AND able to do)
Timely (provides you with a deadline to motivate action)

Throughout the rest of the month you will be able to find more information on setting goals in our community forum on fundraising. Next month we'll focus on making a plan or roadmap of your goals that will help YOU to make a difference and become an ETP Champion.

Do you have a question, or want to share fundraising ideas or tips with the epilepsy.com community? Please email: TEAM_ETP@epilepsytherapyproject.org.

About the Epilepsy Therapy Project
	Epilepsy Therapy Project, the sponsor of epilepsy.com, is a non-profit organization whose mission is to advance new treatments for people living with epilepsy. ETP helps scientists develop new drugs and brain stimulators to treat epilepsy. The goal is to fast-track great ideas into treatments to reach people as fast as possible. Your donations go directly toward development of new treatments as well as maintain epilepsy.com. Read more about the Epilepsy Therapy Project and help us with your donations.

Archives can be found here.

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