October 2009 Newsletter

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Spotlight Newsletter

Volume 5, Issue 10 October 2009

Greetings from our
Editor-in-Chief

Robert Fisher, M.D.

On My Mind

My Epilepsy Diary

Are your seizures or medication side effects out of control? You can help to take control by using the new MySeizureDiary on epilepsy.com. It is a major revision of the old diary, basically a new product. The new Diary will help you to track your seizures, your medications and your side effects. It will give you tools to help you remember to take your pills, keep your doctor appointments and communicate with your medical team.

Learn more and here

What's New?

	Don't Drive After a Seizure Doctors often fail to counsel about not driving after a seizure: commentary. Read more.
	Can You Afford to Forget? Consequences and costs of forgetting seizure medicines. Read more.
	Epilepsy Organizations Unite on H1N1 Virus Leading U.S. Epilepsy Organizations Unite on H1N1 Virus "Swine Flu" Public Health Recommendations for Children with Epilepsy. Read the press release. CDC Website US Government H1N1 flu.gov Website

Take a Look

Haven't been to the site lately? Wondering what news you've missed? Check out the running archive of stories that were featured in the "What's New" column of the newsletter.

My Epilepsy Diary is available now.

The on-line diary to track seizures and medications just had a major makeover! it is now much easier to use and has many more interactive features.

Read about it here | Go here to test drive it | Go here to check out the user guide

The second issue of the Epilepsy: Insights & Strategies journal is out, with articles about how to swallow pills, managing cost of medicines, surviving an epilepsy diagnosis, ketogenic diet for adults, understanding health insurance, and getting a job. Read more here . . .

The journal is a unique entity, with articles written by and for people who have or care for someone with epilepsy. The first edition was released in May of 2009, and is planned for approximately quarterly release.

Robert Fisher, MD, PhD
Editor-in-Chief

"Serve and Thou Shall Be Served"
	'It is one of the most beautiful compensations of this life that no man can sincerely try to help another without helping himself… Serve and thou shall be served." --- Ralph Waldo Emerson
The Epilepsy Therapy Project is a 501 (c) (3) non-profit organization founded by parents and doctors caring for children with uncontrolled seizures by supporting the development of new therapies that offer freedom from seizures and side effects in a timeframe that matters.

October FUNdraising Tip

Plan the Event

If you haven't thought about it, next month (November) is Epilepsy Awareness month. It's the perfect time for you to kick-off a fundraising effort. No matter whether you do it yourself or with the help of others, in-person or online, NOW is the time to get going on it.

set the date if you haven't already
make a list of who you are going to contact to publicize your event to
organize any details
publicize your event
pull together anything you need to be ready for the event date

If you want to participate in Epilepsy Awareness Month by doing a benefit for our organization go here to get ideas or to add ideas to the fundraising forum.

Throughout the rest of the month please share what you are going to be doing during Epilepsy Awareness month to support our organization in the community forum on fundraising. Next month we'll focus on following up after the event and making sure we know that you are an ETP Champion.

Would you like to host a fundraiser for Epilepsy Awareness Month in November and need some help? We're here to help you make your fundraiser a success. Do you have a question, or want to share fundraising ideas or tips with the epilepsy.com community? Please email: TEAM_ETP@epilepsytherapyproject.org.

About the Epilepsy Therapy Project
	Epilepsy Therapy Project, the sponsor of epilepsy.com, is a non-profit organization whose mission is to advance new treatments for people living with epilepsy. ETP helps scientists develop new drugs and brain stimulators to treat epilepsy. The goal is to fast-track great ideas into treatments to reach people as fast as possible. Your donations go directly toward development of new treatments as well as maintain epilepsy.com. Read more about the Epilepsy Therapy Project and help us with your donations.

Archives can be found here.

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