Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYIn the Western world, doctors and patients debate which antiepileptic drug (AED) is best to use in particular circumstances. But for the majority of people with epilepsy in the world, poverty and limited health care systems preclude use of any AED. Now something is being done about this. Three organizations: the International League Against Epilepsy, the International Bureau for Epilepsy and the World Health Organization have linked to form The Global Campaign Against Epilepsy, popularly entitled “Out of the Shadows.” The Global Campaign has produced several demonstration projects in the Developing World to show the value of education and delivery of epilepsy care. An article in the Bulletin of the World Health Organization in December of 2008, volume 86, pages 964-9 summarizes results of the Campaign in five rural provinces of China. The prevalence of active epilepsy in these provinces is about 1 per 200 people. Starting in 2001, most primary care physicians in the five provinces were educated about epilepsy and given access to phenobarbital pills. Phenobarbital was chosen as the single antiepileptic medication to administer because it is least expensive in a resource-poor setting, stores well and only requires a single daily dose. The demonstration project calculated the percentage of people with epilepsy who were not being treated, the so-called treatment gap. Before the project, the treatment gap was 63%, and after the project 50%. This result demonstrates that an organized program can make a big difference in the care of people with epilepsy in the developing world.
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| Keppra and pain or swelling in joints? | May 22, 2012 | |
| no alleykat | ||
| Georgia Neurologist | May 22, 2012 | |
| rosanna1980 | ||
| New | May 22, 2012 | |
| Luv2lern | ||
| Banzel/Keppra/Lamicital | May 22, 2012 | |
| mindyraa | ||
| lamictal/lamotrigene, marijuana, and pregnancy/breastfeeding | May 22, 2012 | |
| reikihealer | ||
| Weaning off of Dilatin | May 22, 2012 | |
| Katz | ||
| Weird Symptoms | May 22, 2012 | |
| Auburn | ||
| Can exercise induce seizures? | May 22, 2012 | |
| MichaelK | ||
| Becoming off balance.. | May 22, 2012 | |
| taylor4181 | ||
| Film on epilepsy | May 21, 2012 | |
| bcpsmc | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,618 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,241 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,073 | |
| WendyBendy | ||
| Sexual Side Effects | 13,521 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Hyperventilation & epilepsy, a way to help yourself. | May 22, 2012 | |
| buteykomike | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| Feeling | May 19, 2012 | |
| hross1110 | ||
| Absence seizures and school | May 18, 2012 | |
| mgarcia | ||
| Life with Epilepsy, and what I go through every day. | May 18, 2012 | |
| trentonbest | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| I want to get better | May 15, 2012 | |
| EsmeraldaAguilar | ||
| Seizures under control | May 14, 2012 | |
| panteradee | ||
| Dizziness with topiramate/Diamox | May 14, 2012 | |
| girl4him | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
