Place Your Advertisement Here
All ad revenues support the mission of the Epilepsy Therapy Project
 
UPDATED: Fri, 12/21/2007 - 10:11am

  • Epilepsy First Aid
  • Seizure Medication
  • Videos
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project

Developing My Seizure Plan 101


  1. Visit My Resource Kit and use the following tools to help you develop your seizure plan. Stop back frequently - we’ll be adding more over time.
    • My Seizure Plan
    • My Health Care Team
    • My Seizure Medicines
    • Tips for Seizure Observation
    • Instructions for Using Seizure Calendars
    • Seizures Calendars
      • My Seizure Event Diary
      • My Monthly Seizure Calendar
    • My To Do List
    • Questions For My Health Care Team
  2. Print out the My Seizure Plan and follow along as you work through each section. If you are missing information or don’t know what to do, write it down on your To Do List and Questions For My Health Care Team. Take these forms with you to your next office visit and ask for help to complete this.
  3. Once you complete the plan, ask your doctor to review it. You want to make sure that you have the information correct, especially the information on types of seizures and emergencies, doses of medicines, and how to respond to seizures and possible emergencies.
  4. After everyone has signed off on the plan, make many copies.
    • Keep one with you at all times – in your purse, pocket or wallet, or backpack.
    • Put one in a central place in your home.
    • Give one to people who are with you most frequently (if you feel comfortable with this).
    • If you are a parent of a child with seizures, give one to the school nurse so appropriate people will know what to do if your child has a seizure. Make sure that your child knows you are doing this and is part of the process.
    • If you or your child goes to camp or other programs where she may spend a lot of time, give a copy to the camp nurse, counselor, or person in charge. Again, make sure your child knows you are doing this and is part of the process.
  5. Review the plan with your health care team and family on a regular basis – at least once a year or as needed if seizures or your treatment plan changes.
  6. To start developing your seizure plan, click here.
  7. If this is your first time creating a seizure plan, read through the following sections for step-by-step help to develop your plan.

Continue to Organizing My Personal Information

Topic Editor: Steven C. Schachter, MD and Patricia O. Shafer, RN, MN.
Last Reviewed:5/25/07


Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.

No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.


None

Turn the page on your treatment by starting your Epilepsy Diary today.

Keeping a daily record of your seizures can help you and your doctor better understand and treat your epilepsy.

Open my epiCom Diary

Title Posted
Parent Talk  
epi_help
Ecstatic Seizures  
victoria.w
Purchasing Medication from Canada  
hkhoyt
Sharing Awareness  
phylisfjohnson
seizure recovery...  
jubatum
HAVE YOU BEEN INJURED, OR KNOW SOMEONE WHO'S DIED FROM "VNS"  
nancyjudy
vns therapy side effects  
helenpe1
Is it typical for an epileptic person to pace constantly or have sudden rushes of energy making you want to run?  
Concordia
Epileptologist in DFW?  
dhemphill
How long is open trileptal suspension bottle good for?  
Sholow
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
Epilepsy and marijuana  
cjad234
Sexual Side Effects  
George R
How exactly do aura's feel  
WendyBendy
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
View all Forums

Title Posted
im still new w all this epilipsy and now im pregnant?  
ndondero
thinking too much makes my brain hurt...  
jacky99
Heck of a day  
4mygirl2
Diamond jewelry  
tiffanyblog
Depression and Epilepsy  
MichaelK
What a day!  
epi_help
Results with my Neurologist, med changes and life changes  
Gina Marie
i broke his ankle...  
jacky99
Sleep deprivation EEG  
freedbythewind
TYLENOL, AEDs & SEIZURES  
cmscribbles
View all Blogs

Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
Feeling Sick  
JBJ1984
How can you tell if a sleep seizure happens?  
epl_controller
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
View all Blogs

Title Posted
WHY???????????????????????  
marymm
Ugg Bailey Button Boots–Your Winter Footwear  
lovetiffany
Ceremony to welcome President Hu Jintao to the country, accompanied by up to 200 people Barack Obama Barack Obama  
nicky001
Ten best sale cell phones(one) in Otc:A2688 TV cell phone  
agoodseller
new roads to travel  
Marsha Cash
febrile seizures  
febrileseizures
6 months post brain surgery  
robin4902
James Rowell  
jamesrowell
Police Officer with Epilepsy  
Rob Jamieson
So Wonderful of Using a Video Baby Monitor  
buyairshoe
View all Stories

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project