For other perspectives and further links related to epilepsy, you may want to visit some of the sites on this list. We cannot be responsible for the content of other sites, but do let us know if you experience problems with any of these links.
American Epilepsy Outreach Foundation
The Foundation's mission is to raise the public's awareness of epilepsy through advocacy and education, as well as provide support for those living with epilepsy and their families.
Anita Kaufmann Foundation
The Anita Kaufmann Foundation is the only foundation of its kind -- solely dedicated to educating the public about epilepsy and seizures.
BrainTalk Communities: Online patient support groups for neurology (from Massachusetts General Hospital) -- a large and active site with separate forums for epilepsy and a very wide range of other disorders.
Centers for Disease Control and Prevention
National Center for Chronic Disease Prevention and Health Promotion: A page dedicated to some general information on epilepsy.
The National Center for Chronic Disease Prevention also has a toolkit for parents of teens with epilepsy:
CarpeDB is a dynamic epilepsy genetics database sponsored by a National Science Foundation CAREER Award and the Department of Biological Sciences at The University of Alabama.CarpeDB serves as a novel source for both epilepsy researchers and the public by featuring scores of "epilepsy genes" and associated publications in one location.
A website specifically designed to address health issuse such as epilepsy. The site contains articles written by physicians for patients and consumers.
Epilepsy Advocate is a community of people whose lives are directly affected by epilepsy, including those living with epilepsy, their caregivers, family and friends. These remarkable individuals share their experiences with the hop of inspiring others to seek the best care and realize that it is possible to live well with epilepsy. Epilepsy Advocate resources include the Epilepsy Advocate Newsroom, Epilepsy Advocate Radio, Epilepsy Advocate magazine and local events. Epilepsy Advocate is sponsored by UCB, Inc., a biopharmaceutical company with U.S. headquarters in Atlanta.
Epilepsy Bereaved is the leading voluntary organisation in the UK and Internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths.
The Epilepsy Center is an organization that provides services in northwestern Ohio. Features safety tips, posters for sale, and extensive link.
Website of The Epilepsy Foundation, the U.S. national organization that works for people affected by seizures. A good place to get reliable information, especially on legal affairs and community services.
The website of The Epilepsy Institute, a social-service organization for people with epilepsy in New York City and Westchester County, New York.
Website of Epilepsy Toronto, a non-profit oragnization dedicated to the promotion of independence and optimal quality of life for all people with epilepsy and their families. They offer a range of epilepsy support services, information programs and education to the public.
Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.)
The website of Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.). f.a.c.e.s.is an epilepsy organization that funds epilepsy research, education and awareness, and community building events for people with epilepsy.
International Dravet Syndrome Epilepsy Action League
The International Dravet Syndrome Epilepsy Action League, a volunteer-based nonprofit organization, was founded by parents of children with Dravet Syndrome to promote research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.
International Foundation for CDKL5 Research
CDKL5 is a rare, X-linked genetic disorder that results in early-onset, difficult to control seizures and severe neuro-developmental impairment. IFCR is a 501(c)(3) non-profit formed in 2009 by a group of dedicate parents who dared to dream of something life-changing for their children - a cure. The mission of the International Foundation for CDKL5 Research (IFCR) is to lead the way in finding a cure and treatments for CDKL5 disorder by funding global research efforts, and increasing awareness of CDKL5, while enhancing the quality of life for those living with CDKL5, by providing information, programs and services.
The IRELAND Project
A website for The IRELAND Project, based at Columbia University in New York. The IRELAND Project is a multicenter genetic linkage analysis study designed to look for the genes that cause seizures in Rolandic Epilepsy and associated difficulties in reading and speech.
The LGS Foundation is a nonprofit organization dedicated to providing support and information about Lennox-Gastaut syndrome while raising funds to help pursue additional research and services for LGS families.
MayoClinic.com: Mayo Clinic is a world leader in developing innovative ways to diagnose and treat epilepsy in children and adults.
National Association of Epilepsy Centers
The website of the National Association of Epilepsy Centers. Find a comprehensive epilepsy center near you!
National Dissemination Center for Children with Disabilities
National Dissemination Center for Children with Disabilities: Epilepsy information and resources.
New York University (NYU) Comprehensive Epilepsy Center
Website of the NYU Comprehensive Epilepsy Center, the largest epilepsy center in the United States. The Center offers testing, evaluation, screening, treatment, drug trials, alternative therapies and surgical intervention for children, adolescents, and adults with all forms of epilepsy.
PEP Jobs in San Francisco
The PEP Jobs Program includes an Employment Coordinator and an Employment Specialist who work collaboratively to help job seekers with epilepsy find and maintain employment.
Ring Chromosome 20 Foundation
The Ring Chromosome 20 Foundation was created to provide information,resources and assistance to families affected by ring chromosome 20 syndrome. It is both a registered charity in the United Kingdom and a New York City based non-profit organization.
Strong Epilepsy Center
The Strong Epilepsy Center offers comprehensive care for people with epilepsy. They strive to improve a patient's life (including employment, driving and personal well-being) by identifying, in children and adults, their particular type of seizure, so they can develop an individualized medical and/or surgical treatment plan.
Suncoast Epilepsy Association
Suncoast Epilepsy Association: A Florida, non-profit organization which provides services to individuals with epilepsy in Pinellas and Pasco Counties.
Swedish Epilepsy Center
The Swedish Epilepsy Center provides multidisciplinary evaluations for patients with adult epilepsy, pediatric epilepsy and new onset seizures. Treatments may include anti-seizure medications, epilepsy surgery, and vagal nerve and other neurostimulator devices.
"Growing Up with Epilepsy" is a ThinkQuest website created by two young, gifted students with their teacher as their coach.
Wake Forest University School of Medicine
Wake Forest University School of Medicine, Winston-Salem, North Carolina, Department of Neurosurgery: Contains general facts on epilepsy along with links to numerous websites for the epilepsy community of Wake Forest, as well as, various other sites containing helpful information on epilepsy.
A UK website
A UK website with information on epilepsy and local resources for UK residents living with epilepsy.
The BC Epilepsy Society
The BC Epilepsy Society is a non-profit, charitable organization dedicated to serving the British Columbians living with epilepsy, and their families.
The National Society for Epilepsy
The National Society for Epilepsy provides information and support to people with epilepsy. They also provide care for people with epilepsy through medical and residential services.
A German online museum
A German online museum which features artwork, history and virtual tours.
The website for Epilepsy Canada, featuring information on Canadian resources as well as general facts. Also includes "Kidz Korner" with reassuring explanations for children.
Epilepsy Ontario: A website with information on epilepsy and support and volunteer opportunities for the local Ontario epilepsy community.
Epilepsy Association Australia
Epilepsy Association Australia: A growing site with information offered separately for adults, children, and teens. Good general information for everyone and offers of many services for people in Australia.
The website of Epilepsy Action, the working name of the British Epilepsy Association.
Epilepsy Support: A British site offering patient-to-patient community support.
Epilepsy Foundation of Victoria, Australia
The website of the Epilepsy Foundation of Victoria, Australia. You can participate in rating the websites included in the interesting list of links here, including some in other languages. Also some good practical tips.
International Bureau for Epilepsy
The website of the International Bureau for Epilepsy, a European-based group dedicated to improving the non-medical aspects of life with epilepsy around the world. The site also includes links to groups in many countries.
International League Against Epilepsy
International League Against Epilepsy: A preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy. This website contains plenty of helpful information on epilepsy.
American Epilepsy Society
Website of the American Epilepsy Society, which promotes research and education for health care professionals.
Group of clinicians, nurses, clinical scientists, engineers and geneticists working to improve our understanding of epilepsy. They are based in Beaumont Hospital, and under the affiliation of the Royal College of Surgeons in Ireland.
National Institute of Neurological Disorders and Stroke
The site of the National Institute of Neurological Disorders and Stroke, the part of the U.S. National Institutes of Health that covers brain disorders. News about research developments and clinical trials.
|Seizure Alert Dogs||Aug 8, 2009|
|Tongue Bitting||Oct 18, 2009|
|Son of Cain|
|Anti-Suffocation Pillows||Sep 23, 2009|
|info about vicodin||Sep 30, 2009|
|tryptophan, serotonin and epilespy. A new approch to control seizures||Jul 30, 2009|
|View all Forums|
|Simple partial seizures left untreated||Dec 20, 2013|
|Being a Nurse who has epilepsy||Dec 20, 2013|
|Has anyone else had a feeling of complete overstimulation?||Dec 20, 2013|
|Seizures return after 30 years?!||Dec 20, 2013|
|Need some insight regarding symptoms I feel are possibly seizure related||Dec 20, 2013|
|Hi, I'm Caeti! New to having seizures...I think...?||Dec 20, 2013|
|Memory Loss/Side Effects - Lamictal vs. Topomax||Dec 20, 2013|
|MEG (magnetoencephalography) Test||Dec 20, 2013|
|Reaching the break-up point with epileptic girlfriend. Thoughts? Advice?||Dec 20, 2013|
|TLE - PCS... Can one be awake during a grand mal ?||Dec 19, 2013|
|View all Forums|
|topamax and weight loss||19,412|
|Possible cure for absence seizures||16,695|
|How exactly do aura's feel||14,771|
|Sexual Side Effects||13,634|
|MEDICAL ALERT I.D.'s||12,607|
|Over 40 Different Types Of Seizures - Revised||10,552|
|electrical shock in head?||10,131|
|Weight Gain and Depakote||9,035|
|View all Forums|
|keppra and depakote together?||Dec 20, 2013|
|Overwhelmed||Dec 20, 2013|
|Hyperventilation & epilepsy, a way to help yourself.||Dec 17, 2013|
|Falling Down Funny - It's Harder On Us Than It Is On You||Dec 17, 2013|
|Brain Zaps, tics & twitches||Dec 15, 2013|
|Why?!||Dec 15, 2013|
|halfway there!||Dec 13, 2013|
|withdrawal symptoms||Dec 13, 2013|
|women classic snow boots all can get 60% off||Dec 12, 2013|
|update seizure first aid||Dec 12, 2013|
|View all Blogs|
|my partial complex seizures||4,606|
|Topomax... The Dreaded.........||3,805|
|How can you tell if a sleep seizure happens?||3,602|
|Brain Zaps, tics & twitches||3,600|
|side effects of phenobarb.||3,226|
|Tegretol XR and ANXIETY meds||2,907|
|TYLENOL, AEDs & SEIZURES||2,844|
|Nonepileptic "Events" vs. "Seizures"||2,721|
|View all Blogs|
|Cheap Canada Goose Jackets Outlet on sale 60% off online||Dec 12, 2013|
|epilepsy only||Dec 11, 2013|
|Hawaiian and have epilepsy||Nov 28, 2013|
|Epileptics over 50 with poorly controlled seizures||Oct 28, 2013|
|The "CHillin Out" Chat group||Oct 14, 2013|
|Epilepsy Marathon||Oct 13, 2013|
|Epilepsy and Hormones||Oct 5, 2013|
|Epileptics Working from Home for Websites||Sep 18, 2013|
|new worried Mum||Jul 24, 2013|
|Types of Epilepsy||Jul 23, 2013|
|View all Groups|
|Parents Of Children With Epilepsy||269|
|Temporal Lobe Epilepsy||171|
|Women and epilepsy||170|
|Living a life with Epilepsy||133|
|Anyone with Simple Partial Seizures||109|
|Dating and Epilepsy||94|
|Epilepsy and Memory Loss??||88|
|Epilepsy Surgery Group||74|
|Absence Seizures in Kids||73|
|View all Groups|
|Seizures return after 30 year absence?!||Dec 20, 2013|
|Newly diagnosed at age 56||Dec 19, 2013|
|My son`s future||Dec 19, 2013|
|AN Amazing Testimony On A Spell Caster Who help me to get pregnant||Dec 18, 2013|
|Suddenly I'm having seizures after many years with no problem||Dec 17, 2013|
|seizure free for 2 months||Dec 16, 2013|
|My story||Dec 16, 2013|
|my story||Dec 15, 2013|
|epilepsy||Dec 14, 2013|
|My Story||Dec 12, 2013|
|View all Stories|
|Temporal Lobe Epilepsy||657|
|Always Have On Clean Underwear||533|
|my brain has died a thousand deaths...........||532|
|Kelly's Life With Epilepsy||496|
|What My Seizures Are Like......||434|
|Nocturnal grand mal seizures (primary generalized epilepsy)||431|
|My Daily Philosophy.....||386|
|View all Stories|