Place Your Advertisement Here. All ad revenues support the mission of the Epilepsy Therapy Project.
 
Thu, 2/9/2012

Welcome to the redesigned epilepsy.com

It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.

The new features include:

  • Streamlined design with less clutter to promote important content and sections
  • New slider masthead
  • New horizontal menu across the site to ease top level navigation
  • Re-designed content pages that are easier to navigate
  • Overall new, fresh look!

Place Your Advertisement Here

Take control of your epilepsy and seizures. Seizure management has never been easier.

TAKE CONTROL TODAY

Sign up for our Newsletter!



Epilepsy Websites

For other perspectives and further links related to epilepsy, you may want to visit some of the sites on this list. We cannot be responsible for the content of other sites, but do let us know if you experience problems with any of these links.

General information and resources

American Epilepsy Outreach Foundation
http://www.epilepsyoutreach.org
The Foundation’s mission is to raise the public’s awareness of epilepsy through advocacy and education, as well as provide support for those living with epilepsy and their families.

Anita Kaufmann Foundation
http://www.akfus.org/index.php
The Anita Kaufmann Foundation is the only foundation of its kind -- solely dedicated to educating the public about epilepsy and seizures.

BrainTalk Communities
brain.hastypastry.net/forums/
BrainTalk Communities: Online patient support groups for neurology (from Massachusetts General Hospital) -- a large and active site with separate forums for epilepsy and a very wide range of other disorders.

Centers for Disease Control and Prevention
www.cdc.gov/nccdphp/epilepsy/index.htm
National Center for Chronic Disease Prevention and Health Promotion: A page dedicated to some general information on epilepsy.
The National Center for Chronic Disease Prevention also has a toolkit for parents of teens with epilepsy:
www.cdc.gov/epilepsy/toolkit/index.htm

CarpeDB
www.carpedb.ua.edu/
CarpeDB is a dynamic epilepsy genetics database sponsored by a National Science Foundation CAREER Award and the Department of Biological Sciences at The University of Alabama.CarpeDB serves as a novel source for both epilepsy researchers and the public by featuring scores of "epilepsy genes" and associated publications in one location.

emedicinehealth.com

www.emedicinehealth.com/

A website specifically designed to address health issuse such as epilepsy. The site contains articles written by physicians for patients and consumers.

Epilepsy Advocate
www.EpilepsyAdvocate.com/    
Epilepsy Advocate is a community of people whose lives are directly affected by epilepsy, including those living with epilepsy, their caregivers, family and friends.  These remarkable individuals share their experiences with the hop of inspiring others to seek the best care and realize that it is possible to live well with epilepsy.  Epilepsy Advocate resources include the Epilepsy Advocate Newsroom, Epilepsy Advocate Radio, Epilepsy Advocate magazine and local events.  Epilepsy Advocate is sponsored by UCB, Inc., a biopharmaceutical company with U.S. headquarters in Atlanta.

Epilepsy Bereaved
www.sudep.org
Epilepsy Bereaved is the leading voluntary organisation in the UK and Internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths.

Epilepsy Center
www.epilepsycenter.com/
The Epilepsy Center is an organization that provides services in northwestern Ohio. Features safety tips, posters for sale, and extensive link.

Epilepsy Foundation
www.epilepsyfoundation.org/
Website of The Epilepsy Foundation, the U.S. national organization that works for people affected by seizures. A good place to get reliable information, especially on legal affairs and community services.

Epilepsy Institute
www.epilepsyinstitute.org/
The website of The Epilepsy Institute, a social-service organization for people with epilepsy in New York City and Westchester County, New York.

Epilepsy Toronto
www.epilepsytoronto.org/
Website of Epilepsy Toronto, a non-profit oragnization dedicated to the promotion of independence and optimal quality of life for all people with epilepsy and their families. They offer a range of epilepsy support services, information programs and education to the public.

Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.)
www.nyufaces.org
The website of Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.). f.a.c.e.s.is an epilepsy organization that funds epilepsy research, education and awareness, and community building events for people with epilepsy.

International Dravet Syndrome Epilepsy Action League
www.idea-league.org
The International Dravet Syndrome Epilepsy Action League, a volunteer-based nonprofit organization, was founded by parents of children with Dravet Syndrome to promote research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.

The IRELAND Project
www.rolandic.com
A website for The IRELAND Project, based at Columbia University in New York. The IRELAND Project is a multicenter genetic linkage analysis study designed to look for the genes that cause seizures in Rolandic Epilepsy and associated difficulties in reading and speech.

LGS Foundation
http://www.lgsfoundation.org/
The LGS Foundation is a nonprofit organization dedicated to providing support and information about Lennox-Gastaut syndrome while raising funds to help pursue additional research and services for LGS families.

Mayo Clinic

www.mayoclinic.com/
MayoClinic.com: Mayo Clinic is a world leader in developing innovative ways to diagnose and treat epilepsy in children and adults.

www.mayoclinic.org/
Mayo Clinic is a world leader in developing innovative ways to diagnose and treat epilepsy in children and adults.

National Association of Epilepsy Centers
www.naec-epilepsy.org
The website of the National Association of Epilepsy Centers. Find a comprehensive epilepsy center near you!

National Dissemination Center for Children with Disabilities
www.nichcy.org/pubs/factshe/fs6txt.htm
National Dissemination Center for Children with Disabilities: Epilepsy information and resources.

New York University (NYU) Comprehensive Epilepsy Center
www.nyuepilepsy.org
Website of the NYU Comprehensive Epilepsy Center, the largest epilepsy center in the United States. The Center offers testing, evaluation, screening, treatment, drug trials, alternative therapies and surgical intervention for children, adolescents, and adults with all forms of epilepsy.

North Shore - Long Island Jewish Comprehensive Epilepsy Center
http://www.northshorelij.com/NSLIJ/Epilepsy+Centers
The website of the North Shore - LI Comprehensive Epilepsy Center.

Pediatric Epilepsy Project at UCLA (PEP)

www.4pep.org
The Pediatric Epilepsy Project at UCLA (PEP) was formed with a single, all-important mission: to raise funds, provide financial support and increase community awareness to help sustain the Division of Pediatric Neurology at UCLA.

PEP Jobs in San Francisco
www.cpmc.org/pepjobs
The PEP Jobs Program includes an Employment Coordinator and an Employment Specialist who work collaboratively to help job seekers with epilepsy find and maintain employment.

Ring Chromosome 20 Foundation
http://www.ring20.org
The Ring Chromosome 20 Foundation was created to provide information,resources and assistance to families affected by ring chromosome 20 syndrome. It is both a registered charity in the United Kingdom and a New York City based non-profit organization.

Strong Epilepsy Center
http://stronghealth.com/services/neurology/epilepsy/epilepsyhome.cfm
The Strong Epilepsy Center offers comprehensive care for people with epilepsy. They strive to improve a patient's life (including employment, driving and personal well-being) by identifying, in children and adults, their particular type of seizure, so they can develop an individualized medical and/or surgical treatment plan.

Suncoast Epilepsy Association
http://pppl.tblc.org/sesweb/
Suncoast Epilepsy Association: A Florida, non-profit organization which provides services to individuals with epilepsy in Pinellas and Pasco Counties.

Swedish Epilepsy Center
http://www.swedish.org/
The Swedish Epilepsy Center provides multidisciplinary evaluations for patients with adult epilepsy, pediatric epilepsy and new onset seizures. Treatments may include anti-seizure medications, epilepsy surgery, and vagal nerve and other neurostimulator devices.

ThinkQuest
http://library.thinkquest.org/J001619/
"Growing Up with Epilepsy" is a ThinkQuest website created by two young, gifted students with their teacher as their coach.

Wake Forest University School of Medicine
http://www1.wfubmc.edu/neurosurgery/
Wake Forest University School of Medicine, Winston-Salem, North Carolina, Department of Neurosurgery: Contains general facts on epilepsy along with links to numerous websites for the epilepsy community of Wake Forest, as well as, various other sites containing helpful information on epilepsy.

Washington University in St. Louis - Epilepsy information
www.neuro.wustl.edu/epilepsy/
Epilepsy information and local resource centers in St. Loius, MO.

International sites (in English)

A UK website
www.bbc.co.uk/health/epilepsy/
A UK website with information on epilepsy and local resources for UK residents living with epilepsy.

The BC Epilepsy Society
www.bcepilepsy.com/
The BC Epilepsy Society is a non-profit, charitable organization dedicated to serving the British Columbians living with epilepsy, and their families.

The National Society for Epilepsy
www.epilepsysociety.org.uk/
The National Society for Epilepsy provides information and support to people with epilepsy. They also provide care for people with epilepsy through medical and residential services.

A German online museum
www.epilepsiemuseum.de/
A German online museum which features artwork, history and virtual tours.

Epilepsy Canada
www.epilepsy.ca/
The website for Epilepsy Canada, featuring information on Canadian resources as well as general facts. Also includes "Kidz Korner" with reassuring explanations for children.

Epilepsy Ontario
www.epilepsyontario.org/
Epilepsy Ontario: A website with information on epilepsy and support and volunteer opportunities for the local Ontario epilepsy community.

Epilepsy Association Australia
www.epilepsy.org.au
Epilepsy Association Australia: A growing site with information offered separately for adults, children, and teens. Good general information for everyone and offers of many services for people in Australia.

Epilepsy Action
www.epilepsy.org.uk/
The website of Epilepsy Action, the working name of the British Epilepsy Association.

Epilepsy Support
www.epilepsysupport.org.uk/
Epilepsy Support: A British site offering patient-to-patient community support.

Epilepsy Foundation of Victoria, Australia
www.epinet.org.au/
The website of the Epilepsy Foundation of Victoria, Australia. You can participate in rating the websites included in the interesting list of links here, including some in other languages. Also some good practical tips.

International Bureau for Epilepsy
www.ibe-epilepsy.org/
The website of the International Bureau for Epilepsy, a European-based group dedicated to improving the non-medical aspects of life with epilepsy around the world. The site also includes links to groups in many countries.

International League Against Epilepsy
www.ilae-epilepsy.org
International League Against Epilepsy: A preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy. This website contains plenty of helpful information on epilepsy.

Research

American Epilepsy Society
www.aesnet.org/
Website of the American Epilepsy Society, which promotes research and education for health care professionals.

Beaumont Hospital
epilepsyprogramme.ie
Group of clinicians, nurses, clinical scientists, engineers and geneticists working to improve our understanding of epilepsy. They are based in Beaumont Hospital, and under the affiliation of the Royal College of Surgeons in Ireland.

National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov/index.htm
The site of the National Institute of Neurological Disorders and Stroke, the part of the U.S. National Institutes of Health that covers brain disorders. News about research developments and clinical trials.


Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.

No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.



Place Your Advertisement Here

Title Posted
Seizure Alert Dogs  
bleedingheart
Tongue Bitting  
Son of Cain
Anti-Suffocation Pillows  
angel_lts
info about vicodin  
daliastanlex
tryptophan, serotonin and epilespy. A new approch to control seizures  
PAOLOMAINARDI
View all Forums

Title Posted
Epileptic Seizure Monitor Alarm System  
onemarvy
Are these normal migraine symptoms or is there something more to it?  
xtheotherside
5 year old worsening seizures. Pls help???  
TIM_C28
Trileptal dosage  
myejk
SEN and epilepsy  
Kim Norris
possible non convulsive epilepticus?  
rayraykay
Fight with the sidewalk  
jasssmit
Focal activity followed by generalized activity but no epilepsy  
BendyPianist
Self-Management of Medication  
columbia.epilepsy.study
Feeling Like a Human Guinea Pig  
christopherpaul
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
View all Forums

Title Posted
Epilepsy Pipeline Update Conference  
bryan_farley
my partial complex seizures  
Zanna1211
The Sunday Dreads  
johnverling
Giant Stuffed Animals For The Toddlers  
zacharysmith
Frederick's of Hollywood Announces the "Hollywood Love Story Contest" Valentine's Day  
cn-lightings
Seizures and medical marijuana  
seizureprone134
From muscle problems to seizures in 6 weeks or less  
ArizonaAbby
Speech at Epilepsy Pipeline Update Conference -2012  
dayna
The Doors.  
BowlofMush
marijuana  
ccraven
View all Blogs

Title Page Views
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
side effects of phenobarb.  
pksmom
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
newborn seizure  
Sunny_80
View all Blogs

Title Posted
Had the worse seizure of my life last night! Complex Partial  
jlamont
Self-Management of Medication  
columbia.epilepsy.study
Dravet Spectrum Disorder  
mytboy
Diving with eplilepsy  
p59
Moms of epileptic toddlers  
Xaviersmom2
Autism  
Aaron Chan
brain surgery  
jen020309
People in their 20's with epilepsy  
Mandy911
TEAM ETP  
krisj
24yr old male  
Dave24
View all Groups

Title Posted
My Story - Still Don't Know What it Means  
arobertshaw85
Help me plz. I can't go on like this  
Lindsea
For my daughter  
britni1780
Why can't I find out what is going on with me?  
dgreer27
nightime seizure  
ishaq
my grandchild with possible panayiotopolous syndrome  
krys
Please Read and Help  
WALLIGAT0R
Hello. I'm new to the forum  
Tom S.
Maxx  
MDS2006
Lyme Disease as a cause for seizures  
ssidah
View all Stories