Questions about partial seizures caused by heterotopia in both oc...
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UPDATED: Fri, 12/04/2009 - 7:04pm
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mattnsrq
Currently an increase in seizures
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In the past year, my seizure activity has increased.. It initally started not long after they took me from 2 meds to one..I was taking Phenobarbital 150 milligrams and Lamictal 400 milligrams at the time and changed to Lamictal 500 milligrams a day and during that time also, they gave me the generic form...Im not sure if it was the generic form or the canceling of the Phenobarbital that started these issues...Since then i would have a blackout or seizure activity that would last a day or two once a month..
I went to the doctors about 4 months ago and they put me on Clonazepam with the generic version of lamictal and figured that would help. But , it didnt solve the problem...
About a month ago after doing alot of research, i requested to switch from the generic lamictal to Keppra. Every ten days i would replace a 250mg form of lamictal and replace it with a 500mg Keppra...During that month i was feeling better then i have in the past..But the day before Thanksgiving it started happening again, but now it happens frequently...But, the weird thing is i dont realize that ive had any..She just got home last night and on 3-4 different occassions she said i had another blackout...Right now im just so lost for words, ideas, thoughts etc...I have another doctors appointment on Monday, im not sure what she's going to suggest or what i want to do...Is it the Keppra, the wrong combination of medications, the dosages etc... The only thing i can think of is, i was diagnosed and treated for anti complex seizures. What if the seizure activity im having is a different form of seizure now that require a different med or meds ??
I know the changes in my income has increased my stress level, which can cause blackouts, but can it really affect my health this much ???
Another stress of mine is, im recently engaged to a women that loves and cares for me alot. Her job has her on the road 3-4 times a month. I know she is stressed alot more then she needs to be, because of my seizure activity..Just how much can any person take ?? I dont ever see her giving up, but just how much can any person take.....The thoughts or ideas of losing her bother me...
Anyways, i was wondering if anyone can relate or have any thoughts or ideas for me ??
Matt
By mattnsrq at Fri, 12/04/2009 - 7:04pm | 18 views | 1 comments
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Recent Comments on this Discussion
Hi Matt. I can relate to a lot of what you're going through. I have absence seizures and drop attacks which actually started about 15 years ago, but believe it or not I was just put on the correct treatment about 3 weeks ago! Topamax seems to be working the best for me so far. I've struggled a lot with jobs and my financial situation is a mess so I'm hoping that now that I seem to be on the right treatment that I will be able to turn things around. My guess for you is that you're probably not having one specific type of seizure. You've probably been having different kinds. I've had inconclusive EEGs for instance, but when I'm put on an anti-convulsive medication, my problems drop drastically. Just because an EEG hasn't necessarily caught a specific type of seizure right when it's happening doesn't mean that it's not ever happening with you. I would just try to be as thorough as possible with your doc. Tell them every possible symptom, even if it's something that you think sounds stupid, just say it anyways. And, about your change in income and your health, yes it can affect your health that much! And, about your relationship, I'm definitely not the best with relationship advice but I do know that yes a person can put up with a lot when they are in a relationship with someone who has epilepsy. I would just suggest to be open and honest with your doc and your fiancee about the problems that you are having so they will both better understand how they can help you.