My daughter had a left temporal lobectomy, following placement and
removal of subdural grids and depth electrodes, January 27th 2009. We
went about 5 months with NO SEIZURES- YAY! Unfortunately, at right
about 6 months, she began having very severe head pain on her left
side- where it's all bumpy from the surgery. At the same time she began
having simple partial seizures again. She now has regular/ approx 3 per
week auras/simple partial seizures, with complex partial occurring less
often. This is definitely better that before surgery(10 or more a
day)! Her history is such that she unfortunately has secondarily
generalized seizures that turn into status epilepticus. So far there
has been no generalized seizures, and I hope we don't go there again.
The left sided head pain lasts ALL WAKING HOURS!!! It is only gone when she is
asleep (as far as we know- at least she can sleep). So, 16 hours per day, every day!? And, it STABS for 1-5 minutes
at a time intermittently throughout the day! We've tried Indomethicin, Prednasone, Melatonin, Propanapol,
all of which have not helped. (and of course the tylenol, ibuprofin,
alleve, etc...) We are trying something new today. The only thing that
helps is pain meds to help get her to sleep at night. This pain is
SEVERE and debillitating.
Is there anyone else who has had this type of head pain?
We had an MRI on a 1.5 Tesla machine, which did not show anything. We
have added Lyrica to our Keppra and Lamictal, and are still hoping to
figure this out.
Thank you for any help,
DAILY Head pain/ HEADACHE and seizures: Began 5 months after left...
Created by vicat8/19/09 - 4:30 pm
New - post temporal lobectomy issues
Created by Angie87at5/9/09 - 4:50 pm|4 Comments
New - VNS, the good, the bad, and the ugly?
Created by boosmommaat11/5/08 - 12:33 pm|17 Comments
Question for VNS patients: Should I be concerned?
Created by suebearat10/27/07 - 1:16 pm|11 Comments
New - Please help Occipital lobe seizures are they
Created by Rooat12/22/09 - 2:31 am|1 Comment
New - Infants
Created by Jen838818at12/11/09 - 5:46 am|5 Comments
New - I'm a Newbie and looking for people with similiar symptoms
Created by tallancat12/5/09 - 10:21 am|5 Comments
New - Seizures with extreme pain???
Created by wmott1122at12/4/09 - 6:26 am
New - My husband has seizures at night
Created by shatinawat12/2/09 - 5:09 pm
New - Running provoking seizures
Created by SaulGoodeat12/2/09 - 10:16 am|1 Comment
New - Seizures at night
Created by ascharlauat12/2/09 - 7:55 am
New - Nightmares or actual seizures?
Created by Violetaat11/27/09 - 2:35 pm|2 Comments
New - I'm new I'd like to share a little about myself and I have a ques...
Created by Kesai-...at11/23/09 - 4:55 am|2 Comments
Hydrocephalus and Epilepsy
Created by undyin...at11/19/09 - 12:19 pm
New - Surgery is a great life change!
Created by mark_88at11/18/09 - 4:03 pm|20 Comments
living with seizures
Created by crystal lat11/17/09 - 8:57 am|1 Comment
controlling seizures through psychlogical treatment as well
Created by ankita...at11/14/09 - 11:22 pm
New - Can somebody relate to me and tell me im not the only person like...
Created by Mosmer36at11/14/09 - 9:31 pm|10 Comments
seizures when sleeping...
Created by jubatumat11/12/09 - 1:18 pm|1 Comment
New - Cussing During A Seizure
Created by maymaeat11/9/09 - 4:34 am|1 Comment
A Scary Doctor
Created by snoodleat11/7/09 - 9:12 am|2 Comments
New - A dream or a seizure?
Created by Newyor...at11/5/09 - 5:11 pm|1 Comment
New - Welcome to My Epilepsy Diary!
Created by epi_helpat10/31/09 - 4:53 am|2 Comments
Hello, new to site and epilepsy
Created by dsimpsonat10/25/09 - 1:00 pm
Award-Winning Actor Danny Glover Featured on "Sharing Miracles"
Created by phylis...at10/23/09 - 1:10 pm