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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYI'm a teacher for students with disabilities and My "seizures" started a couple of years ago but are differant from any of my students. They all have the absent or grand mal seizures and are pretty unconcious where i tend to stay pretty aware but totally out of control of my body.
I can feel the episode coming on, my "aura's" include a change of hue in my eyesight, and a fruit taste in my mouth, plus my chest starts to feel twisted.
My right side of my body shakes out of control while my left side stays limp (sometimes it's just a quick violent twitch from my right shoulder;) the right side of my face sometimes even slides but then will return back to normal after an hour or so. The episodes can last from just a couple of seconds to once i shook uncontrolably for about an hour and a half then witnesses said i seemed to go compleatly out for a min then i came out of it and was fine.
I have also been told on several occassions my body bends sometimes my feet and head stay on the ground but then the rest of my body lifts to the cealing for a long period of time, other times they descirbe it like i'm in a high mid crunch, they are all strange positions where when they show me what i've done and i try to duplicate the pose i am physically unable to because my muscles are not strong enough. (one person even said i looked possessed haha)
Afterwards i'm confused and exhausted and only remember bits of what happened durring the episode (people who witness it say i look like i know what's going on i just have slured speech and am confused.)
So far EEG's have all come back normal but all my doctors are still convinced i'm having seizures. Is anyone similar? I thought in order for it to be a seizure you cant remember anything, i still remember some, also i thought they just last for a few min at the most mine can last longer. Plus it's just my right side that shakes. There is also a period connection.
Any advice, i'm on meds which are helping tons, but my confusion is still there and i'm tired of being tired. I just want to know if there is anyone out there that has my same symptoms.
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Recent Comments on this Discussion
Hi JC-32
You have just discribed the past 18 years of my life. I know its a scary thing to go through, I experience almost the exact same thing (aura of eyesight, taste, numbness) and then my right side of my body starts to jerk, sometime it gets completly out of control. I think that 5min is the longest I've ever seized....been on meds most of my life (since it started at 11), its been kind of a rocky road.
You are not alone. I know it may feel that way when your aware of these seizures but you cant do anything but wait for them to end. And know that after a severe seizure its normal to be so worn out that you have a hard time moving or speaking. I want to stress to you that its not safe for people to stand by while this happens, and that people around you shoud be informed of what they need to do in case you do have a seizure. I've always had to do this at schools and at any place I've worked, its amazing how understanding people really are.
As I've gotten older I've had an increase in seizure activity around my period, my Neurologist (whos been amazing through the years) decided to increase one of my meds only at that time of the month and its helped. So you may want to talk to your doctor about your options there. Many women with epilepsy experience this issue I'm told.
So anyway I'm rambling on and on...I hope I've been helpful to you in some way. If you ever need/want to talk send me a message
Amanda