Hello!

My name is Ashley and my journey with possibly having seizures started last month. In the middle of September I began feeling "weird" or out of it and abnormally sleepy at work. One Saturday I was alone at home playing a computer game when all of a sudden I began to feel very strange-everything started to move in slow motion and I felt myself become weak and then I lost some time. I didn't end up on the floor or wake up in a weird place, but I noticed things had happened in my game that indicated I was out for a period of time (Anyone play Sims 3? :D). I was so confused and disoriented afterward. Then I got super tired and all I wanted to do was sleep-I slept for a couple of hours and was okay. 9/21 I woke up abnormally late (hadn't been out late or partying the night before) and had an aura that began to change shape and pattern. I began having these "episodes" where I "spaced" out and moving or twitching my hands. I would become confused and slept most of the day. After a while I got freaked out and my fiance took me to the ER. CT scan turned up nothing, as did any bloodwork. The neuro resident said it was most likely absent seizures, gave me a Rx for Trileptal and said I had to come back to the hospital for MRI and EEG on an outpatient basis. Mind you, this has never happened to me before-I have had no history or immediate family history of any seizure activity. 

Had the MRI and EEG done, both came back normal. Frustrated, the doctor I followed up with was a real piece of work. He was rude & extremely dissmissive that I was experiencing anything at all. He told me to stop the Trileptal as I was not experiencing seizures but migraines with aura's but without the pain. He couldn't explain the jerking, confusion or exhaustion afterwards. 

I found a second opinion that seemed to be better. He said it was most likely seizures and ordered a 48 hr vEEG. In the meantime I am not allowed to go to work and I am not allowed to drive. My epsiodes have increasingly gotten worse-my legs and now my whole body shakes when these things happen, they are happening more frequently around my period, and they are more frequent. My levels of confusion and alterness afterward vary, but the tiredness sometimes turns into anxiety, embarassment and shame (I was out at Target and it was bad), which usually results in tears. I also have frequent headaches and have been taking too much ibuprofen.

Today I have a follow-up with Dr. #2 about my vEEG results. He was 25 min late to our appointment (he was at the hospital), acted like we hadn't had any discussion about anything that happens during the seizures, etc. He told me that my vEEG results were normal and anytime I pushed the button, there was nothing there. He said I need to go back to the first doctor and the first hospital (even though I had nicely explained to him before that I wouldn't be going back to Dr. #1 because I didn't care for his bedside manner and his dismissive behavior, also indicating that I wanted him to be my doctor). And he dissmisses me and my problem. He didn't even tell me what he thought it was-he just told me to go back and sent me on my way. My fiance was trying to tell him that there is SOMETHING going on with me and he kept repeating that the tests were normal, so he couldn't help me.

I may not have seizures, but I have no idea what is happening to my body. Everyone in my family (excluding my future husband and in-laws) think I should go back to Dr. #1 because he is supposed to be the best, but I don't want a dismissive jerk doctor. Thoughts? Advice? I don't know what to do. Thanks.