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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYHello my name is Aaron I'm 19 years old I was born with simple and complex partial seizures. In truth they didn't used to have too much affect on my life, I'd have several a month if I forgot to eat one night or if I was playing sports and got unlucky. But as for the last 2 years things have changed, I've devloped what I believe is agoraphobia or simply a severe case of anxiety and I have at least 4 episodes a week. I'II admit within the last 4 years my life has drastically changed and not for the better so that may have had an effect mentally. Where I'm trying to get here is to see is any one else has this problem. I can no longer leave the house without my heart racing and the fear takes control. If I dont get to a comfortable enviroment I will no doubt have a seizure.Even typing this is a challenge to me, I feel as if a seizure could come any second. I've tried anti-depression meds, but all that happens there is they control depression but increase seizure rates (IRONY). I'm currently on an anti-anxiety med but it has had no effect. My seizure related meds are Zonegran, Trileptal, and Keppra, which I am currently getting off of replacing with lamotragine. Some say keppra can cause anxiety so I'm taken a shot at getting off it. If any one has any advice or experince with this I would love some feedback, anything to help me get back in the world, thank you.
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Recent Comments on this Discussion
Hi,
I had a Temporal Lobectomy in 2004 and experienced a great deal of anxiety and depression since the surgery. Mentioned the anxiety and depression to my neurologist and my nocturnal Tonic Clonic seizures since my surgery have now been labelled as pseudo-seizures. I was sent to see a psychiatrist and my neurologist has wiped his hands of me (I have not seen him since he sent me to a psychiatrist). You may not experience the same issues with your neurologist but as soon as I mentioned any mental issues like stress and depression, my seizures were labelled as pseudo-seizures.
Hi Aaron,
Prior to my diagnosis of Right Temporal Lobe Epilepsy, I experienced major panic attacks. After my seizures were controlled by Tegretol, I no longer had these events. Two wonderful people, a psychoanalyst and a neurologist worked with me. Over time, we discovered my panic attacks were seizures. Unfortunately, the psychoanalyst passed away and the neurologist now works only in the hospital. I am experiencing jolts of anxiety that awaken me, or happen just after awakening. Medication adjustments help, but do not stop this. I meditate, do relaxation exercises, etc. I am certain if I had my original two guys in my corner, my anxiety could be cleared. It seems that it is up to me. Still, the major panic is usually not around.There is hope for you.
BeeBee
Hi Aaron.
Anxiety is a rough thing, isn't it? People can think you're just being a baby, doctors can think you're overreacting. In the end you begin to feel you're just nuts.
Normal
0
Your brain can work against you sometimes. When something traumatic happens
in your life, your mind can develop these sort of phobias in order to protect
itself from more harm. Why? Because that's the only way it knows how to cope.
It's that or mental shut down, and the mind has a very strong need to
survive...so it stays away from the "bad" so that it can continue
functioning the best way it can. Unfortunately, the brain won't outright tell
you the exact event that made to hide under the covers, so it's difficult to
figure out.
I'm not a huge fan of pills. Many rely on them for a
quick miracle fix because it provides faster results than 5 years of
counseling. The thing is, it's a false state of normalcy. What makes you stay
inside your home may be relieved or eliminated by medication, but when you stop
the meds...back in the house you go. So then you should ask yourself, are you simply treating the symptom? Before you get more prescriptions, you may want to consider counseling to see if the anxiety is caused by Epilepsy, your medication, or perhaps it's something related to your environment.
I'm not downplaying your anxiety either. I also understand that when your control center is misfiring, it can cause a wide range of things which usually include those of the mental variety. The first symptom I get when my noggin is working up a mad is a panic attack. Wherever I am, I....must...GOOOO! If I'm in the store, I drop everything and head for the door. No thinking is involved, I'm just told to run....run away. Can't reason with the grey matter much and all the counseling in the world won't help me during that lovely moment.
I would like you to keep your options open and to include more solutions other than more/different pills. At the very least, mix the medication with an 8 oz. glass of counseling. Digging through your mind takes a while, but it's way worth the effort in the long run.
I also have no idea why the word "normal 0" is appearing in my comment..lol.
I can't agree with you more. Its not only the fact that medication is simply a crutch but the psychatric area of work has lost alot of my respect. I've seen 3 psychatrists in my time and 2 of them set up with a "psychatric evaluation" one 30 min the most recent 60. Both involved simply questioning of my medical history and my opinion on my issues. they wrote me a script and wished me luck, takes about 15 mins max. first one I saw I simple had to fill out paper work in a lobby, turn it in and the determined I was I needed meds because I was bi-polar. None of them involved with counseling, which I agree any one in my position should try some counseling, but thats psychology. For some reason medicade makes it an ease to get the pills but counseling is another thing. I set up an appointment I september but the first one they could give me is in mid January '10. So I've just gotta wait and see, but I've got hope I think counseling could be helpful for anyone with epilepsy.
Hello Aaron,
What's going on , I have had issues with my anxiety also. I have had right and left temporal-lobe epilepsy now for 8 years. My last video EEG was 4 days long and the techs. and my neuorlogist got a good load of my anxiety. I beleive my neuro. had basically and the neuropsychiatrist had labeled me as bi-poolar. My anxiety is from a combination of my meds and my epilepsy , so I was asked to try seroquel for my anxiety. I was also introduced to vimpat to reduce my seizures. I have been taking a low dose of seroquel, 50 mg. when there are people who need it taking 300 mg twice a day or more for bi-polar. When I asked them asked them if am bi-polar, I was told it was more complicated than that. I would have to say that is helping me, I am a bit calmer than I used to be. I take it at night before I go to bed and I wake up feeling good. That does'nt mean my whole day is good though, I would've expected it to be. That medication is a mood stablizer and I don't think it doing what all the doctors thought it would do. I see every other week a social worker from the hospital and think she helps me more than my neuropsychiatrist ever did. I'd go see him ,the appt. will last 15 min. and he'll keep it short and sweet. I can't get a word in he'll just carry on with me how I should feel and want to increase my anti-depressant and that's it. That happens maybe 2-3 times a year.
Then my social worker I go see, she helps more than anything else. She told me that the right temporal is mostly responsible for my emotions and it constantly is misfiring and causes alot my anxiety. More information than my neuro and psychiatrist gave me. When I see her I'll spend anywhere from 45- 60 min. per visit. She is definetly like going to counseling, but was there for me to talk to about my adjusting to vimpat by my neurologist. She is too helpful to talk to and give up, I told her. I've adjusted to the vimpat and I'm at full dose. The medication has reduced the frequency of my simple, complex and tonic clonic. seizures. I need her as counseling ...do we have to end here? She said , no we can still see eachother every 2 weeks. I told her, let's keep doing this if we can. I call her doctor even though does'nt have that title and she laughs. I hope you find something like her, I can have emotional breakdowns with her and she brings me right of it. I know it can be tough dealing with all we have to. I wish you luck with finding something like she is for me...a good counseler with knowledge about epilepsy too. Let's to you talk, listens and has information that you need to here.
Take care , Johnny
The lamotragine should help because on it's lowest level, it's an anti-depressant and then on it's next level, it's for seizure control. So, it's sort of 2 drugs in one.
Also, there's an article about epilepsy, anxiety and depression on my website: www.epilepsytalk.com I hope this helps...
Phylis Feiner Johnson www.epilepsytalk.com
I have to say I'm very grateful for your responses, it helps alot to have others you can relate to. To update my situation I recently went to an epileptic support group and met a new neourologist there, He said that my case was very intresting and he'd wanted to see if he could help me out. But it turned out his practice didn't except medicade, but he decide to see me for free! He was very personable and was the first doc who really explanined why I have my seizures. he also pescribed me to xanx ( which helps a bit, but I've got more work to do). I share this information because the neruos I saw before where all at major practices (shands, nemours, and mayo) but I find that out of all of them the Independent (Dr. Lucey) was the best. well anbody who will see you for free has gotta be decent in some fashion, but I now realise who vital a second opinion is ( in my case a fourth) but I hope someone can find that informations valuable.
What a Prince! But it would have never happened without your persistence! Phylis Feiner Johnson www.epilepsytalk.com
Alang,
I am so happy things worked out for you. And what a humane doc this sounds like. I guess the moral of the story is: persistance plus a good dose of hope.
Phylis Feiner Johnson www.epilepsytalk.com
I have epilepsy. But recent attacks was said to be anxiety. Why? Is it normal for epileptic patient to have anxiety? But some, don't encounter these. I'm trying to control myself. Dislike to have anxiety.
Hi Aaron,
I also have epilepsy and anxiety. I don't have agorophobia and haven't taken Keppra, but I can empathize with your situation. I want you to know there is a lot of hope for you to find something that will help you. The answer may be a switch in anti-seizure medications or a switch in the type of anti-depressant or anti-anxiety med or the dosage (working with your doctor). There are many different classes of depression and anxiety meds, so if one doesn't work or has an unacceptable side effect, there are many other options. The key is to be patient and keep trying different things until you find what works. Expect that this will take time and make sure to keep communicating with your doctor. I haven't found any medication to get rid of all my symptoms but it made a big difference in how I felt (and continue to feel).
I wish you all the best. Christy
Hi Aaron. I suffer from anxiety also. I'm wondering for me, if its the topomax...?? I don't know....all I know is I understand your feelings and I just wanted to say hang in there buddy....keep talking to your neurologist. Make him/her listen to your feelings! That horrible sick feeling always hanging heavily over your whole being constantly is NOT nice....and I am currently try to work on getting that to go away. I go to Yoga, read a lot...walk, and I'm trying to see another neurologst cause I don't think the one I have now is listening to me...I WANT A NEUROLOGIST THAT LISTENS TO ME!!
All the best...keep talking ....whether its to friends, to us here on this website, or your dog...just keep talking!
Lori
I have a patient neurologist and my teenagers have noticed that I cry and laugh at the easiest things. My anxiety level has changed since my medications levels have changed. I am on Keppra, Zonegran and Vimpat.
I realized that my seizures were not so bad. I had emotions that needed to be dealt with. Anxiety with own family at home and and my grown family are stress factors. I have learned just waking up and starting to keep my balance and being able to swallow are stress factors.
My release has been walking or talking.
What has been most successful for me is a combination of meds and a fabulous shrink. (We calll him "The Prince," because he is a Prince among men!)
I had to kiss alot of frogs before I found him. But I find nothing is more effective than talk therapy AND meds.
According to statistics, meds alone are 50% effective in treatment. Talk therapy is also only 50% effective, too. But when combined, they offer 100% probabilty of solving the problems at hand. That's why I've been seeing my psychiatrist for 10 years.
Also, one last thing. It's best to have a psychiatrist who's an MD -- because he can prescribe meds. Believe it or not, my shrink even talks to my neurologist. Now isn't that novel!!!
Phylis Feiner Johnson www.epilepsytalk.com