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rodand...
My son has BRE and also has jerking and twitching day and night
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My son is nearly 8 years old, and was diagnosed in Dec 2008 with BRE after an EEG. He has mainly had his seizures in the evening in bed before falling asleep. He also has partial seizures which just involve his tongue and face, which scare him as they are just sprung on him when he least expects it at any time of the day, a number of times while he is eating which has caused him to choke on two occasions and swerve his bike into the middle of the road.
My main question I am hoping someone will be able to answer for me, is he has 'tics', which may be his leg will jerk out once, or his arm but quite a large jerk, or his hand/leg/arm will twitch for up to 20 seconds at a time. The two neuros I have spoken to have said it is a nervous tic, but I am surprised that it is not a small seizure or at least related to his epilepsy as it never happened before and it has commonly happened throughout the day, and he jerks alot while sleeping.
Does anyone else experience these tics in the day/night who has epilepsy, is this common, or is it like the neuro said unrelated and perhaps stress related?
Thanks
Recent Comments on this Discussion
Hmm....a nervous tic, huh? Sound to me more like myoclonic jerking. Even though the neuros may be right, I think if it's something that has began when the seizures started then your neuros might want to give some more thought to these episodes.
I think a parent's gut instinct knows when something's not right.
Can they schedule an extended EEG to catch these? Or would an increase in his current seizure medication be of help? Something to ask your neuros to consider.
~Karen
Thanks for your response, appreciated.....
so can myoclonic jerking be part of bre, or would it be that he has two diff types of e alongside each other?
If he has a type of myoclonic epilepsy, that prob doesn't have quite as good an outlook as BRE, what would the prognosis be for him with that on board?
I don't have much experience with BRE but after doing a quick search online I found a link within epilepsy.com's website. You can read more about BRE here http://my.epilepsy.com/node/81 From what you describe, this is just part of the disorder. I certainly would touch base with you son's neuro and let him know what he's been experiencing.
~Karen