 |
|
|
Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project
NikiPa...
I don't think i reacted well.... what should i have done
- Login or register to post comments
- Share on Twitter
- Share on Facebook
- View/Print content
Last night my husband had a siezure - these have suddenly escalated this year and he's had 3 in a year. FOurtunately I have been ther eeach time. Last night he was working on his lap top and fell so his back was on the chair but his head was not and he fell between the desk and chair. Bearing in my he weights about 30 kgs more than me I couldn't lft off the char to the floor. I started panicking about his head which he kept banging on the wall which was right behind him and I was trying to lean over hte chair to support it. He was kicking his arms and legs around and calmed down and then leaped of the chair on to me we both fell into the table behind us and then he was on the floor and soon came round after that.....
I am feeling very upset today as I don't know what I should've done. Each time I have seen him before he has been on the floor and I have been able to get to him. Last night i was worried that he was going to hurt himself but I think I may have been adding to his distress.
Please can someone give me some advice so I know what to do if he ever falls that way again.
Recent Comments on this Discussion
HELLO,
SORRY FOR YOUR STRESS. MY HUSBAND HAS PUT UP WITH MY SEIZURES FOR 16 YRS. STRONG/MILD, WE NEVER KNOW WHAT'S COMING. I'M 48. HE JUST MOVES THINGS OUT OF MY WAY TO KEEP ME FROM HURTING MYSELF. YOU MIGHT TRY THROWING A PILLOW OR TWO FROM CLOSE BY INBETWEEN HIM AND THE PLACE HE'S BANGING HIS HEAD. I TRY TO TELL EVERYONE I'M AROUND FOR ANY LENGTH OF TIME ABOUT WHAT TO DO ( TEACHERS, BUS DRIVERS, FRIENDS, ECT.) THIS MAKES ME FEEL THAT WOULDN'T BE SHOCKED IF I HAD A SEIZURE WITH THEM. MY NEUROLOGIST TELLS US TO JUST LET ME FINISH OFF THE EFFECTS 3-5 MINS USUALLY AND LET ME SLEEP. NEVER MOVING ME PHYSICALLY!! MOVING SOMEONE DURING THIS CAN BE DANGEROUS. I'VE BITTEN HIM ONE TIME. I FEEL BAD HE HAS TO TAKE CARE OF ME LIKE THIS BUT KNOW HE LOVES ME. I USUALLY HAVE A HEADACHE AFTER. SOMETIMES I REMEMBER WHEN IT STARTED LIKE IF THERE WAS AN AURA BUT NOT ALWAYS. I HAVE SEIZURES 3-6 TIMES A MONTH MOSTLY IN MY SLEEP AND MOSTLY THE PARTIAL KIND. THE VNS SEEMS TO BE HELPING.
IT'S HARD WHEN YOU'VE NEVER BEEN THE ONE WHO NEEDS TAKEN CARE OF BUT HE KNOWS YOU LOVE HIM AND SUPPORT HIM AND THAT'S ALL THAT MATTERS.
Hi there, I just feel so helpless! :o( I am sure a bit more experience and I'll know what to do. I am worried about him as well.... but I am learning loads so I am sure with time it will be easier.
Thanks everyone - I think one of the things that has come of this is that we definitely need to reassess our house and safety.
My husband is feeling very afraid of why this is suddenly happening... He had a siezure 4 years ago and then suddenly has had 3 this year within the space of months. By the sounds of what other people experience on here that sounds pretty good... he is under going medical tests but so far everything has come back clear. We are awaiting the EEG results which we get in the next month.
I feel pretty helpless as I have no understanding of epilepsy or why he is suffering at 31. Thank you all for your advice and help! I will def keep reading peoples diaries to learn more.
There have been a lot of threads regarding seizure breakthrough when switched to a generic AED. This may be a shot in the dark but is there any chance that this new seizure activity could be related to a change in AED manufacturers?
~Karen
Hi Karen,
My hubby is not on any meds. We are still undergoing tests and waiting on results. His first scan came back clear and we are now waiting for the results on the EEG... the specialist has said he won't go on meds until they have run all the standard tests on him.
He has quite a stressful Sales job working for a big corporate company and spends many hours on the laptop each time he has had a siezures it's come on the back of working 8.30am - 8pm / 10pm on the laptop.
Last time he said he remembered feeling really lightheaded but thinking to himself i have to finish this... I think this is his 'aura' or sign that people have mentioend.
One thing i did want to ask on an earlier reply someone said that when people are having a siezure they can't hear what is around them - is this true for everyone? An earlier eposide Dan's eyes were open and he looked up and me and I thought he could see me. This more recent time in the chair i thought he had come towards me and certainly the first one I saw he def got off the ground and came towards me. he then leant against me with my back on the wall - I was on the phone to medical sevices who was advising me to relax and calm down. as he comes out of it he tries to grab hold of something and its been the chair or table leg. He seems to then hold onto it until he ismore aware of everything.
His reactions led me to belive he could hear something and came towards me.
What are your thoughts on that?
I am going to move pillows into different rooms in the house for future use.
thanks again everyone.
You did all you could do with the confusion and complications. The only thing a person can do for a person having a seizure is to attempt to keep them from hurting themselves. Not by attempting to control there body, but by moving thngs out of the way of possible physical harm,
Ask your husband what he remembers, sometimes a part of the seizure may be recalled and you can focus on that time, action, or movement to intervein by seeing that he has a clear space to have the seizure. The seizure generally has to run its course and some people do not want to be touched in anyway or place while having a seizure.
If he does not recall the seiaure at all, then you could go back and analyze what you might do differently next time. It is always scary, if you are watching or if you are having a seiaure but be cool and let it happen...thats all you can do. Very few people have ever died because of a seizure, It they continue , one after another , then call 911.
Hang in there, it just takes some experience and some support and good medical direction !!
Your husband was fortunate to have you with him. Take comfort in the fact that you handled the situation as well as could be expected. I don't know that there was much more you could have done.
In my case, I was sitting at my computer when I had my last seizure on 18 May. When I regained consciousness, I found myself on the floor near a table, and under a bookcase which had tipped over on top of me. I was frightened, shouting incoherently, bleeding, and trapped. I was only able to extricate myself when I regained my wits. The worst of it was that I was alone.
When my daughter has a seizure and she happens to be in an awkward position, my first concern is to make sure that she doesn't injure herself during the seizure. If I can't grab something soft like a pillow, cushion, sweater, stuffed animal, etc, I may take my feet or legs and put them in such a way to prevent her jerking movements from causing injury or take my hands or arms and position them so that she is not banging her head. As the other post mentioned, it's imperative that you have the body positioned so as not to aspirate. It may be difficult to position the patient during the actual seizure because of the intensity of the seizure but do the best you can. Once the seizure is over you'll be able to at least manipulate the head and body.
You probably did the best you can in your circumstance and don't feel bad because you're not sure you could have done more. I think from the description you gave you did everything you could have done in that specific situation.
So in a nutshell, the most important thing is to protect the body, especially the head from injury and try and turn the patient to the side to allow fluids (saliva or vomit) to flow out of the mouth.
~Karen
I just want to start off saying that I am very sorry that you and your husband had to go through that. You did not do anything wrong and you did not add to his distress. When people are having seizures like your husbands, they are unconciousness and nothing will stop them from happening, they stop on their own. You did the right thing by trying to protect his head. As a Neurodiagnostic tech, I will suggest that next time that this happens, make sure that your husband is on the floor and all objects are moved away from him if at all possible. Then find a pillow, or something soft that he can put his head on and then turn him on his side so he does not aspirate on any vomit or saliva. Do not hold him down or put anything into his mouth, not saying that you have done that or will do that. I hope that this helps you and husband out the next time that he has a seizure. Good luck to the both of you.
Hi there, thank you for your encouraging words. I will def remember to turn him on his side next time. I was completely in shock from the panic of trying to protect him.
peace R.C.
Hi
You did GREAT
How is his head ?
3 in one yr is not to bad ? I guess ?
How is he though ? the shock of anyone in any kind of med. condition or trauma can be real bad BUT
pls read a lot of the diarys and posts here from folks doing what he did but a few 100 times instead and it may ease some of your shock and maybe to the point where you keep a little coller head NEXT time. if there is one .
you did fine though . what else can you do ? I am med build and strong but I get so strong during a sz I have broke a lot of furniture and even broke some elses hand while they were trying to hold me down . serious stuff.
in a lol it simply sounds like you folks need to swith furn. and have him sitting a easy chair at the computer
( I am ) and move some pillows around (just in case) but learn pls and try your best not to LET him get in spots like he was in . no cut, no stitches, no foul, Rick.
btw I had a sz about 4 am in a bed covered in pillows after falling on the floor ,before that.