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TAKE CONTROL TODAYI'm a 26 year old woman who started having seizures about a year and a half ago. My issue is telling people, coworkers and men who I may start a relationship with. It's an odd topic to discuss because I feel it's like I"m telling people I"m sick...
My issue is telling people about it. I've had a seizure at work and did not tell my coworkers I had epilepsy prior to the seizure, so they were all panicing and called 911. I felt that I had my seizures under control since I was on medication, but I still had it. Now, my coworkers all think I have medical issues and ask me all the time if I'm OK and how I'm doing. Although I should have told them about it, I'm almost annoyed now that they ask how I'm doing all the time like I'm sick. Does anyone feel the same..
My other issue is telling a guy I'm dating once I feel it may grow into a relationship. It's kind of an odd topic to discuss because then I have to go through the explanation of why I have them, what happens when they occur and its just an awkward feeling almost. However, I do think it's importand to tell him.
Does anyone feel the same or similar. I've also created a blog that I'd like to share. It's my first one, so I still need to add way more content.
http://kimtwin82-epilepsyandmeds.blogspot.com/
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Recent Comments on this Discussion
Hi:
I just want to let you know I understand your dilemma--you want your personal privacy and your freedom to be who you are without being judged. I was very reluctant to let others know about my condition but eventually it has to come out. If you really want a deep relationship with your boyfriend, you need to tell him otherwise he might find out the hard way and not know how to help you. As for coworkers---I always make sure I let them know just in case something happens during the day. I've been told that when a person applies for a job he/she must reveal any medical issues upfront. (I live in Canada--I don't know if it's the same in the US)
People may not understand what epilepsy is, but they are understanding. Just tell the person and ask if he/she has any questions in a soft gentle manner. That seems to make them relax and all you have to do is reassure them that you have everything under control and that you're just like everyone else, except you have epilepsy. I've had epilepsy for a long time and this approach works really well. If you feel annoyed about their behaviour, just be upfront and tell them how you feel. It might take some pressure off them as well.
Take care,
T
Hi Kimtwin,
Welcome.I know how you feel about telling people about your epilepsy as I have been epileptic for forty years.It took me thirty eight years to start opening up to my family and other epileptics but do not talk to the general public about it because people are just plain ignorant.That is just life.Everyone (other epileptics) has there opinion and they are entitled to it.I fully support you if you choose to not tell your co-workers about your epilepsy.That is your right.However, I understand there concern as to why they ask how you are.I do not know the severity of your epilepsy / seizures as you have not divulged that information.You only stated that you had a seizure and your co-workers panicked.And for good reason since they do not know you are epileptic.Unlike Rikk told you, I would never wear and did not wear a medic bracelet for the same reason.I was not afflicted with the kind of epilepsy that dictated such a need.And it is not the worlds business to know I am epileptic IF and only IF I do not need there help if the need is not going to arise.I was never in that or going to be in that situation given the type of epilepsy I have.Please judge your epilepsy accordingly !
However, when it comes to dating, I feel you and the entire epileptic community has the duty to tell our potential life partner on the very first or second date that we are epileptic and ask if that is a problem for them in any way shape or form.The reason why even waiting for a second date would be viable falls back on why I support you for not telling your co-workers.If your first date is in public (out to dinner and dancing, etc) you are not going to necessarily feel comfortable divulging that information in public.
Best wishes to you
Just be completely open about it, my boyfriend told me right off the bat, he just mentioned it casually in conversation the first time we talked, I asked a few questions, because I wasn't entirely sure what it was and even then I didn't know what i was getting myself into but it doesn't change how i feel about him.
If he can accept you for you and understand there may be bumps in the road, then he could be the one for you, if he can't then forget him,
wear a medic alert bracelet. answer questions. people that are around you need to know. the will need to know what to do. Not to tell someone you are seeing that is a maybe for a long term relationship is just plain wrong. if you wait, then the other person will think you are hiding it. if you tell them at the begining, you have stayed up front and you can get a better idea of what the person is like. if they leave, it hurts but it is short term pain. if it is a problem of not knowing and they leave it may be over something other than the seizures.
I too hid my seizures for a long time, but in the end it happened. I not only hurt myself, from a fall, that was the minor pain, the greater was the shame that i had place on the seizure and thus myself. i hurt my friends(some of which I lost)for not trusting them. the truth is this. people that care will stick with you and they have a right to know how to help you. those that have more fear about the seizures should go, if they can't handle the situation. You need to look at the seizures as something you have, not something that has you. By putting things out there you help yourself in handleing the problem, you help those that care for you to do the same. the one thing that kicked me in the teeth, was when i realized that what i was doing was hurting other people with seizures. I did that by continuing the idea that epilepsy is something to be a shamed of. it is a problem of the brain, not a problem of the mind or the soul.
i hope it helps. Remember all people will have an opinion. choose the ones that will give you help. not necessarily the ones that are saying what you want to hear. rikk
Hmmmm...Some people say to wait to tell guys till you have known them for awhile....But I think that if they are worth having they won't care, so I think whenever the opportunity presents itself...