New - Panayiotopoulos Syndrome/ Schooling Problems/ Keppra
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Calling all parents of children with seizures! We are starting a chat hour just for you! A time to join with other parents to share experiences, support, and learn from each other. Karen and Colina, two of our mentors will facilitate the group. Meet in the chat room every Thursday from 9 to 10 pm East Coast Time!
Questions? Email me at patty@epilepsytherapyproject.org
4Jordie New - Panayiotopoulos Syndrome/ Schooling Problems/ Keppra
Created by 4Jordieat4/20/09 - 2:21 pm Posted To: |
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penson... New - Looking at epilepsy surgery for a 2nd time. Anyone else?
Created by penson...at1/9/09 - 12:04 pm|5 Comments Posted To: |
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4Jordie My child was diagnoised with Occipital Epilepsy
Created by 4Jordieat9/22/08 - 12:20 pm|15 Comments Posted To: |
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Sicili... People Story......Are people really using it?
Created by Sicili...at3/21/08 - 8:30 am|11 Comments Posted To: |
blonde... New - My parents dont care...I feel soooo alone!
Created by blonde...at3/21/08 - 1:02 am|25 Comments Posted To: |

Recent Comments on this Discussion
There has not been a very good turn out for "parent talk" chat so I'm thinking that the date and time might not be working for some. Is there a better day/time that would work for you? Any feed back appreciated.
ty colina
hi all this is my first time on here, i am a mother of 3 boys, my middle son agd 6 was diagnoised last september 2008 with epilepsy, hes been having them since he as one and a half to two years of age, he was having quite a few but they have reduced alot the last couple of months. i have very little support from his school, because hes no a typical bad case of fits and falls to the floor they tell me he hasnt had one fit in school. after taking his speacialist nurse or a meeting he was still kept in school after having a turn. im no longer with my sons father and he will not acept that he has this or go to any of his medical appointments. the consultants are still unsure if he i having them in his sleep, im in need of some support this is the first time i have asked for any. i would like to speak to other parents in the same situation as myself and my family and would also like to speak to someone who suffers from epilepsy because i would like to try and understand how and what is going on with my baby. other than this condition my son has, he is a very handsom, bright, he was stuggling with school but with alot of support and him working hard hes coming on fab now, hes healthy, happy and active little boy. my son has had alot of personal problems, hes had to have therapy for seveal months, like alot of others he has been through alot in his little life so far, but for once things are changing for him, but i still dont understand this condition, or my questions are being answered, theres noting or no one there for us, thats how i feel.im sorry if ive gone to much into it or i may have posted this on the wrong site. i live in great britton so what time and what chat site do i go on please? i realy do hope and pray that i have a reply. thank you so much for our time, bethan x
Hi there and welcome to the site and community. I'm sorry that you and your son are experiencing this anything but typical condition. While I do not have a child with epilepsy, I myself have it, I do comepletely understand how confused and alone you must feel. You have certainly found a great place to learn about epilepsy and get support from all the people whom live with it wether it be themselves or a loved one. To help you get started I recommend you join the group Parents Of Children With Epilepsy http://my.epilepsy.com/node/978023 Also this community Parent Group. Post or blog any questions and concerns you have, there is always someone who can relate or direct you to info.
I usualy try to be there to do the Parent Talk chat on Thursday evenings but have been away most of the summer. There are many parents that drop into chat often so pop in when you feel comfortable. Even members who do not have children with epilepsy can be very helpful and supportive.
Will watch for your posts. Best wishes, Colina
Prent chat tonight 9-10 EST. Hope to see you there!
Hello everyone. Reminder... Parent chat tonight! See ya there!
Hello all you wonderful parents! Just a reminder that tonight is Parent Chat night, hope to see you there!
Hi, my name is Francis and I have epilepsy.My son is 9 yrs.old and he has started having seizures.Once about a year ago and today and possibly mild ones in between.I am having a time dealing with this becausae he is also hearing impaired.He goes to school for deaf
Hi Francis, welcome to the community. Sorry to hear that you and your son have epilepsy. You have found a great site here for support and experience sharing. If you'd like to chat with other parents who have children with epilepsy we hold a parent talk in the chat room on thursday evenings. Also you can post questions you may have in the forum threads. Hope to see you there.
Smiles to you! Colina